## Trustees’ Annual Report
For the period
27 June 2022 to 26 June 2023
## Reference and Administration details
Charity – Foundation for Prader-Willi Research UK
Also known as FPWR UK
Registered charity number 1141923
Address 5 St Peters Close Bishop Auckland County Durham DL14 6DD
Trustees
Catherine Shaw – Chairperson Danica Matheson – Treasurer David Jack – Secretary Angela Saunders - Trustee
Structure, governance and management
Governing Document – Trust Deed
Charity constituted as a trust
Trustees are appointed by existing trustees
## Objectives and activities
The objectives of the charity are to advance the education of the public in general (and particularly amongst scientists) on the subject of Prader-Willi Syndrome and to promote research for the public benefit in all aspects of that subject and to publish the useful results.
The main activities undertaken for public benefit included the following fundraisers Go Orange fundraising Christmas Hamper Raffle Move it May campaign Bonus Ball Scratch Cards Abseil down Spinnaker Tower
Christmas Calendar donations Coronation Pub Fundraiser One Small Step Sponsored Walk Event Kilt Walk events Plymouth Half Marathon skydive Fundraising Afternoon Teas Online fundraising (Amazon Smile, Easy Fundraising etc) Various Running events Personal Donations – Birthdays/funerals etc Halloween balloon race
All of the above events were undertaken with the sole goal of funding and promoting research into Prader-Willi Syndrome
In setting our objective and planning our fundraising activities, our trustees have given serious consideration to the Charity Commission’s general guidance on public benefit.
## Achievements and performance
In the 2022 – 2023 financial year FPWR UK contributed to 3 research projects totalling £56,000
Elena Bochukova Dphil at The University of London. A total of £10,000 was contributed - to add to our £60,000 contributed during the 2021/2022 financial year - towards the $108,000 study looking Genetic Determinants of Behavioural, Physical and Physiological Characteristics of PWS
Dr Giles Yeo of the University of Cambridge. A total of £20,000 was contributed during this financial year. The total cost of this research was $161,947 and was looking at Mapping the hypothalamic functional architecture underlying appetite control in the PWS brain
£26,000 was contributed to a phase 3 trail into the effectiveness of a device stimulating the Vagus Nerve to control temper outbursts and disruptive behaviour in PWS
Two new staff members were employed on a part time basis, to cover administration and storage and distribution of merchandise.
## Financial review
FPWR UK holds in reserve a minimum of £3000 solely for funding future fundraising events, as it does not have any regular ongoing commitments. The sum to be kept in reserve is assessed year on year.
FPWR UK has no funds materially deficit
## Declaration
The trustees declare that they have approved the trustees’ report above
Signed on behalf of the charity’s trustees
## C Shaw
Catherine Shaw Chairperson 10 March 2024
## **FOUNDATION FOR**
## **PRADER-WILLI REASERCH**
## **UNITED KINGDOM**
**ACCOUNTS FOR THE YEAR TO 26 JUNE 2023**
**Registered Charity 1141923**
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM CONTENTS ACCOUNTS FOR THE YEAR TO 26 JUNE 2023**
|Independent Examiners Report|1|
|---|---|
|Income & Expenditure|2|
|Balance Sheet|2|
|Notes to the Accounts|3|
|Declaration|4|
|**ANNEX**||
|Annual Report||
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM INDEPENDENT REPORT TO THE TRUSTEES ACCOUNTS FOR THE YEAR TO 26 JUNE 2023**
I have been requested to report on the accounts of the Charity for the **year ended 26 June 2023.**
## **Respective responsibilities of Trustees and Examiner**
As the Charities trustees you are responsible for the preparation of the accounts: you consider that the audit requirements of section 43(2) of the Charities Act 1993 (the ACT) does not apply. It is my responsibility to state, on the basis of procedures specified in the General Directions given by the Charity Commissioners under section 43(7)9b) of the Act, whether particular matters have come to my attention.
## **Basis of Independent Examiners Report**
My examination was carried out in accordance with the General Directions given by the Charity Commissioners. An examination includes a review of the accounting records kept by the Charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all evidence that would be required in an audit, and consequently I do not express an audit opinion on the view given by the accounts
## **Independent Examiners Statement**
In connection with my examination, no matter has come to my attention:
1 which gives me reasonable cause to believe that in any material respect the requirements:-
to keep accounting records in accordance with section 41 of the Act: and
to prepare accounts which accord with the accounting records and to comply with the accounting requirements of the Act
have not been met: or
2 to which in my opinion, should be drawn in order to enable a proper understanding of the accounts reached.
## **LYNDA ELIZABETH LEBETER** Date **11 December 2023**
## **Independent Examiner**
Willow House
20 Ryburn Close Canterbury Gardens Moorgate Park Clifton York YO30 4XH
Page 1
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM**
## **BALANCE SHEET ACCOUNTS FOR THE YEAR TO 26 JUNE 2023**
|**2023**
**ACCUMULATED FUND**
Accumulated Surplus at 27 June 2022
21,619
Surplus/Deficit Income Over Expenditure
5,548
-
**TOTAL**
16,071
**REPRESENTED BY**
Cash at Bank and In Hand
16,071
Sundry Debtors
-
Sundry Creditors
-
16,071
**INCOME**
**Grants & Donations**
Grants
-
Donations
4,891
4,891
**Fee Income**
Fee Income
46,462
Fundraising Events
18,398
Other
773
65,633
**Investment Income**
Bank Interest
-
**TOTAL INCOME**
70,524
**EXPENDITURE**
**Direct Charitable Expenditure**
Repairs & Renewals
-
Rent
1,606
Salaries
5,566
Research Donations
57,000
Miscellaneous small items
86
Insurance
432
Advertising
735
65,425
**Other Expenditure**
Stationery & Postage
978
Miscellaneous administrative costs
234
Fundraising Costs
9,435
10,647
**TOTAL EXPENDITURE**
76,072
**Excess/(Deficit) Income Over Expenditure**
5,548
-
**2023**
**INCOME AND EXPENDITURE**
**ACCOUNTS FOR THE YEAR TO 26 JUNE 2023**|**2023**
**ACCUMULATED FUND**
Accumulated Surplus at 27 June 2022
21,619
Surplus/Deficit Income Over Expenditure
5,548
-
**TOTAL**
16,071
**REPRESENTED BY**
Cash at Bank and In Hand
16,071
Sundry Debtors
-
Sundry Creditors
-
16,071
**INCOME**
**Grants & Donations**
Grants
-
Donations
4,891
4,891
**Fee Income**
Fee Income
46,462
Fundraising Events
18,398
Other
773
65,633
**Investment Income**
Bank Interest
-
**TOTAL INCOME**
70,524
**EXPENDITURE**
**Direct Charitable Expenditure**
Repairs & Renewals
-
Rent
1,606
Salaries
5,566
Research Donations
57,000
Miscellaneous small items
86
Insurance
432
Advertising
735
65,425
**Other Expenditure**
Stationery & Postage
978
Miscellaneous administrative costs
234
Fundraising Costs
9,435
10,647
**TOTAL EXPENDITURE**
76,072
**Excess/(Deficit) Income Over Expenditure**
5,548
-
**2023**
**INCOME AND EXPENDITURE**
**ACCOUNTS FOR THE YEAR TO 26 JUNE 2023**|**2023**
21,619
5,548
-|**2022**
39,895
18,276
-
21,619
21,619
-
-
21,619
-
916
916
35,898
19,657
3,768
59,323
-
60,239
-
1,694
322
70,000
-
432
63
72,511
3,138
377
2,489
6,004
78,515
18,276
-
**2022**|**2022**
39,895
18,276
-|
|---|---|---|---|---|
|||16,071||21,619|
|||16,071
-
-||21,619
-
-|
|||16,071||21,619|
|||4,891
65,633
-||916
59,323
-|
||-
1,606
5,566
57,000
86
432
735||-
1,694
322
70,000
-
432
63||
|||70,524||60,239|
|||65,425
10,647||72,511
6,004|
||978
234
9,435||3,138
377
2,489||
||||||
|||76,072||78,515|
|||5,548
-||18,276
-|
Page 2
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM NOTES TO THE ACCOUNTS ACCOUNTS FOR THE YEAR TO 26 JUNE 2023**
## **1 STATEMENT OF ACCOUNTING POLICIES**
The financial statements have been prepared under the historical cost convention and in accordance with the Financial Reporting Standard for Smaller Entities.
## **2 Debtors**
|Sundry Debtors
**Creditors**
Other Creditors
**4 Cash at Bank and in Hand**
Cash at Bank and in Hand|**2023**
**2022**
**£**
**£**
-
-|
|---|---|
||-
-|
||**2023**
**2022**
**£**
**£**
-
-|
||-
-|
||**2023**
**2022**
**£**
**£**
16,071
21,619|
||16,071
21,619|
Page 3
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM DECLARATION OF THE TREASURER ACCOUNTS FOR THE YEAR TO 26 JUNE 2023**
We the Management Committee are responsible for the preparation of the financial statements for the **year ended 26 June 2023** set out on pages 1 to 3 and we consider that the Charity is exempt from an audit.
We have supplied all accounting records, documentation and information including full explanations for this purpose.
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> Dated 14/04/2024
## **TREASURER**
Page 4