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2021-06-26-accounts

Trustees’ Annual Report

For the period

27 June 2020 to 26 June 2021

Reference and Administration details

Charity – Foundation for Prader-Willi Research UK Also known as FPWR UK

Registered charity number 1141923

Address 43 Buttershaw Drive Buttershaw Bradford BD6 3RY

Trustees

Catherine Shaw – Chairperson Lin Edwards – Treasurer

Structure, governance and management

Governing Document – Trust Deed

Charity constituted as a trust

Trustees are appointed by existing trustees

Objectives and activities

The objectives of the charity are to advance the education of the public in general (and particularly amongst scientists) on the subject of Prader-Willi Syndrome and to promote research for the public benefit in all aspects of that subject and to publish the useful results.

Although FPWR UK continued to fundraise where possible, the Covid 19 Pandemic caused much disruption. Many fundraisers and events to be cancelled, and the income to be negatively affected as a result.

The main activities undertaken for public benefit included the following fundraisers Go Orange fundraising Christmas Hamper Raffle Move it May campaign Sponsored bike ride Facemask fundraising sales Zoom Pilates Classes Online fundraising (Amazon Smile, Easy Fundraising etc) Camper Van Raffle

All of the above events were undertaken with the sole goal of funding and promoting research into Prader-Willi Syndrome

In setting our objective and planning our fundraising activities, our trustees have given serious consideration to the Charity Commission’s general guidance on public benefit.

Achievements and performance

In the 2020 – 2021 financial year FPWR UK funded Donna Lehman PhD at The University of Texas Health Science Centre. A total of £10,000 was contributed towards the $89,100 study looking at How the epitranscriptomic signature of active AGRP neurons disrupted in PWS.

Financial review

FPWR UK holds in reserve a minimum of £3000 solely for funding future fundraising events, as it does not have any regular ongoing commitments. The sum to be kept in reserve is assessed year on year.

FPWR UK has no funds materially deficit

Declaration

The trustees declare that they have approved the trustees’ report above

Signed on behalf of the charity’s trustees

C Shaw

Catherine Shaw Chairperson 23 March 2022

FOUNDATION FOR

PRADER-WILLI REASERCH

UNITED KINGDOM

ACCOUNTS FOR THE YEAR TO 26 JUNE 2021

Registered Charity 1141923

FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM DECLARATION OF THE TREASURER ACCOUNTS FOR THE YEAR TO 26 JUNE 2021

We the Management Committee are responsible for the preparation of the financial statements for the year ended 26 June 2021 set out on pages 1 to 3 and we consider that the Charity is exempt from an audit.

We have supplied all accounting records, documentation and information including full explanations for this purpose.

��������������������

Dated

TREASURER

Page 4

FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM CONTENTS ACCOUNTS FOR THE YEAR TO 26 JUNE 2021

Independent Examiners Report 1
Income & Expenditure 2
Balance Sheet 2
Notes to the Accounts 3
Declaration 4
ANNEX
Annual Report

FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM INDEPENDENT REPORT TO THE TRUSTEES ACCOUNTS FOR THE YEAR TO 26 JUNE 2021

I have been requested to report on the accounts of the Charity for the year ended 26 June 2021.

Respective responsibilities of Trustees and Examiner

As the Charities trustees you are responsible for the preparation of the accounts: you consider that the audit requirements of section 43(2) of the Charities Act 1993 (the ACT) does not apply. It is my responsibility to state, on the basis of procedures specified in the General Directions given by the Charity Commissioners under section 43(7)9b) of the Act, whether particular matters have come to my attention.

Basis of Independent Examiners Report

My examination was carried out in accordance with the General Directions given by the Charity Commissioners. An examination includes a review of the accounting records kept by the Charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all evidence that would be required in an audit, and consequently I do not express an audit opinion on the view given by the accounts.

Independent Examiners Statement

In connection with my examination, no matter has come to my attention:

1 which gives me reasonable cause to believe that in any material respect the requirements:-

to keep accounting records in accordance with section 41 of the Act: and

to prepare accounts which accord with the accounting records and to comply with the accounting requirements of the Act

have not been met: or

2 to which in my opinion, should be drawn in order to enable a proper understanding of the accounts reached.

LYNDA ELIZABETH LEBETER

Date 07 April 2022

Independent Examiner

Willow House 20 Ryburn Close Canterbury Gardens Moorgate Park Clifton York YO30 4XH

Page 1

FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM

BALANCE SHEET ACCOUNTS FOR THE YEAR TO 26 JUNE 2021

2021
ACCUMULATED FUND
Accumulated Surplus at 27 June 2020
26,274
Surplus/Deficit Income Over Expenditure
13,621
TOTAL
39,895
REPRESENTED BY
Cash at Bank and In Hand
39,895
Sundry Debtors
-
Sundry Creditors
-
39,895
INCOME
Grants & Donations
Grants
-
Donations
3,015
3,015
Fee Income
Fee Income
27,523
Fundraising Events
2,609
Other
20
30,152
Investment Income
Bank Interest
2
TOTAL INCOME
33,169
EXPENDITURE
Direct Charitable Expenditure
Repairs & Renewals
-
Rent
1,436
Salaries
2,484
Research Donations
10,000
Miscellaneous small items
96
Insurance
420
Advertising
1,580
16,015
Other Expenditure
Stationery & Postage
2,288
Miscellaneous administrative costs
83
Fundraising Costs
1,162
3,533
TOTAL EXPENDITURE
19,548
Excess/(Deficit) Income Over Expenditure
13,621
2021
INCOME AND EXPENDITURE ACCOUNT
ACCOUNTS FOR THE YEAR TO 26 JUNE 2021
2021
ACCUMULATED FUND
Accumulated Surplus at 27 June 2020
26,274
Surplus/Deficit Income Over Expenditure
13,621
TOTAL
39,895
REPRESENTED BY
Cash at Bank and In Hand
39,895
Sundry Debtors
-
Sundry Creditors
-
39,895
INCOME
Grants & Donations
Grants
-
Donations
3,015
3,015
Fee Income
Fee Income
27,523
Fundraising Events
2,609
Other
20
30,152
Investment Income
Bank Interest
2
TOTAL INCOME
33,169
EXPENDITURE
Direct Charitable Expenditure
Repairs & Renewals
-
Rent
1,436
Salaries
2,484
Research Donations
10,000
Miscellaneous small items
96
Insurance
420
Advertising
1,580
16,015
Other Expenditure
Stationery & Postage
2,288
Miscellaneous administrative costs
83
Fundraising Costs
1,162
3,533
TOTAL EXPENDITURE
19,548
Excess/(Deficit) Income Over Expenditure
13,621
2021
INCOME AND EXPENDITURE ACCOUNT
ACCOUNTS FOR THE YEAR TO 26 JUNE 2021
2021
26,274
13,621
2020
75
-
26,349
26,274
26,274
-
-
26,274
-
2,368
2,368
69,884
9,750
113
79,747
-
82,115
-
1,565
2,771
40,000
782
420
1,285
46,823
1,224
66
7,653
8,943
55,766
26,349
2020
2020
75
-
26,349
39,895 26,274
39,895
-
-
26,274
-
-
39,895 26,274
3,015
30,152
2
2,368
79,747
-
-
1,436
2,484
10,000
96
420
1,580
-
1,565
2,771
40,000
782
420
1,285
33,169 82,115
16,015
3,533
46,823
8,943
2,288
83
1,162
1,224
66
7,653
19,548 55,766
13,621 26,349

Page 2

FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM NOTES TO THE ACCOUNTS ACCOUNTS FOR THE YEAR TO 26 JUNE 2021

1 STATEMENT OF ACCOUNTING POLICIES

The financial statements have been prepared under the historical cost convention and in accordance with the Financial Reporting Standard for Smaller Entities.

2 Debtors

Sundry Debtors
3 Creditors
Other Creditors
4 Cash at Bank and in Hand
Cash at Bank and in Hand
2021
2020
£
£
-
-
-
-
2021
2020
£
£
-
-
-
-
2021
2020
£
£
39,895
26,274
39,895
26,274

Page 3