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||||Page||
|---|---|---|---|---|
|Reference and Administrative<br>Details|||||
|Report ofthe Trustees||2|to|10|
|Independent<br>Examiner's|Report||||
|Statement of Financial|Activities||12||
|Balance Sheet|||13||
|Cash Flow Statement|||14||
|Notes to the Cash Flow|Statement||15||
|Notes tothe Financial Statements||16|to|23|
|Detailed Statement: ofFinancial Activities|||24||





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|||for the year e|nded 31March 2|022|||
|---|---|---|---|---|---|---|
||||||2022|2021|
||||Unrestricted|Restricted|Total|Total|
||||fund|funds|funds|funds|
|||Notes|f|f|E|E|
|INCOME AND ENDOWMENTS|FROIVI||||||
|Donations<br>and legacies|||94,591|10,000|104,591|156,990|
|Other trading activities||||||513,430|
|Investment<br>income||||||808|
|Total|||94,591|10,000|104,591|671,228|
|EXPENDITURE ON|||||||
|Raising funds|||76,537||76,537|377,848|
|Charitable<br>activities|||||||
|Awareness<br>and education|||18,861|19,000|37,861|221,775|
|Relief|||33,802||33,802|81,665|
|Grants awarded||||||207,482|
|Total|||129,200|19,000|148,200|888,770|
|NET INCOIVIE/(EXPENDITURE)|||(34,609)|(9,000)|(43,609)|(217,542)|
|RECONCILIATION<br>OF FUNDS|||||||
|Total funds brought forward|||58,994|15,715|74,709|292,251|
|TOTAL FUNDS CARRIED FORWARD|||24,385|6,715|31,100|74,709|





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|||||2022|2021|
|---|---|---|---|---|---|
||||Notes|E|E|
|Cash flows from operating|activities|||||
|Cash generated<br>from operations||||(195,310)|(70,187)|
|Net cash used in operating|activities|||(195,310)|(70,187)|
|Cash flows from investing|activities|||||
|Sale oftangible fixed assets|||||(1j|
|Sale offixed asset investments|||||1|
|Interest received|||||808|
|Net cash provided<br>by investing<br>activities|||||808|
|Change<br>in cash and cash equivalents||in the||||
|reporting<br>period||||(195,310)|(69,379)|
|Cash and cash equivalents|at the beginning|||||
|ofthe reporting<br>period||||224,465|293,844|
|Cash and cash equivalents|at the end|of||||
|the reporting<br>period||||29,155|224,465|





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|RECONCILIATION||OF NET EXPENDITURE TO NET CASH FLOW FROM OPERATING|OF NET EXPENDITURE TO NET CASH FLOW FROM OPERATING|OF NET EXPENDITURE TO NET CASH FLOW FROM OPERATING|OF NET EXPENDITURE TO NET CASH FLOW FROM OPERATING|ACTIVITIES||
|---|---|---|---|---|---|---|---|
|||||||2022|2021|
|||||||E|E|
|Net expenditure|for the reporting|||period (as per the|Statement of|||
|Financial Activities)||||||(43,609)|(217,542)|
|Adjustments<br>for:||||||||
|Loss on disposal offixed assets|||||||1|
|Interest received|||||||(808)|
|Movement<br>in subsidiary|||company|balance|||20,866|
|(Increase)/decrease||in debtors||||(2,954)|56,789|
|(Decrease)/increase||in creditors||||(148,747)|70,507|
|Net cash used in|operations|||||(195,310)|(70,187)|
|ANALYSIS OF CHANGES|||IN NET FUNDS|||||
||||||At 1.4.21|Cash flow|At 31.3.22|
||||||E|E|E|
|Net cash||||||||
|Cash at bank|||||224,465|(195,310)|29,155|
||||||224,465|(195,310)|29,155|
|Total|||||224,465|(195,310)|29,155|





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|DONATIONS|DONATIONS|AND LEGACIES|AND LEGACIES||||
|---|---|---|---|---|---|---|
||||||2022|2021|
||||||f|f|
|Donations|||||104,591|156,990|
|OTHER TRADING ACTIVITIES|||||||
||||||2022|2021|
||||||f|f|
|Charitable|activities|||||513,430|
|INVESTMENT||INCOME|||||
||||||2022|2021|
||||||f|f|
|Deposit account interest||||||808|
|RAISING FUNDS|||||||
|OTHER TRADING ACTIVITIES|||||||
||||||2022|2021|
||||||f|f|
|Jeans for Genes Day||||||223,915|
|Staff costs|||||62,072|112,052|
|Promotional||items|||14,465|41,731|
|Corporate partnerships:|||Licensing and sponsorship|||150|
||||||76,537|377,848|
|CHARITABLE||ACTIVITIES|COSTS||||
||||||Support||
|||||Direct|costs (see||
|||||Costs<br>f|note 8)<br>f|Totals<br>f|
|Awareness|and education|||7,737|30,124|37,861|
|Relief|||||33,802|33,802|
|||||7,737|63,926|71,663|





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|||||||||2022||2021|
|---|---|---|---|---|---|---|---|---|---|---|
|||||||||f||f|
|Grants awarded||||||||||207,482|
|The total grants paid|to|institutions||||during the year was as|follows:||||
|||||||||2022||2021|
|||||||||f||f|
|Dingley's<br>Promise||||||||||3,416|
|FOP Friends||||||||||3,416|
|Jessie May||||||||||3,416|
|Kleefstra Syndrome||||||||||3,416|
|Newlife (Foundation|for Disabled Children)|||||||||3,416|
|Glasgow Children's<br>Hospital||||Charity||||||3,416|
|Immunodeficiency||||||||||123,095|
|48XXYYFamily Support||Group|||UK|||||3,416|
|Acrodysostosis<br>Support||||||||||3,416|
|AKU Society||||||||||3,417|
|Child Growth<br>Foundation||||||||||3,417|
|Down Syndrome<br>Training|||and||Support Service Ltd|||||3,417|
|The Fragile XSociety||||||||||3,417|
|Local families<br>with bleeding||||disorders||||||3,417|
|My Aware||||||||||3,417|
|The Neurofibromatosis||Association||||||||3,417|
|Ring20 Research and|Support||||UK CIO|||||3,417|
|Scottish Huntington's|Association|||||||||3,417|
|SIBS||||||||||3,417|
|The Ataxia Telangiectasia|||Society|||||||3,417|
|Muscle Help Foundation||||||||||3,417|
|Rainbow Trust Children's|||Charity|||||||3,417|
|Tuberous<br>Sclerosis Association||||||||||3,417|
|Zoe's Place Trust re Coventry||||||||||3,417|
|Zoe's Place Trust re Liverpool||||||||||3,417|
|||||||||||205,095|
|SUPPORT COSTS|||||||||||
|||||||||Governance|||
||||||||Management||costs||
||||||||Totals||||
||||||||f|f||f|
|Awareness<br>and education|||||||21,942|8,182||30,124|
|Relief|||||||33,802|||33,802|
||||||||55,744|8,182||63,926|
|NET INCOME/(EXPENDITURE)|||||||||||
|Net income/(expenditure)|||is|stated||after charging/(crediting):|||||
|||||||||2022||2021|
|||||||||f||f|
|Auditors'<br>remuneration||||||||||2,250|
|Deficit on disposal of|fixed assets|||||||||1|





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||||2022|2021|
|---|---|---|---|---|
|Wages|and salaries||105,056|270,789|
|Social|security|costs|5,784|15,778|
|Other|pension|costs|6,976|12,698|
||||117,815|383,010|



|||2022|2021|
|---|---|---|---|
|Fundraising||1|1|
|Charitable||2|2|
|Administration/|management||1|



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|The number o|femployee|s<br>who|se|employee benefits (excludi|ng em|plo|yer<br>pension cos|ts) exceeded|f60,000was|
|---|---|---|---|---|---|---|---|---|---|
|||||||||2022|2021|
|E60,001 —F70,000||||||||1||
|E100,001 - E200,000||||||||||
|The aggregate|employee|benefits||paid to key management|personnel||were E65,890|(2021:E104,427), the ke||
|management|personnel|figures|include external contractors||in key|positions.||||
|COMPARATIVES<br>FOR THE STATEMENT OF FINANCIAL ACTIVITIES||||||||||
|||||||Unrestricted||Restricted|Total|
||||||||fund|funds|funds|
||||||||E|E|f|
|INCOME AND|ENDOWMENTS||FROIVI|||||||
|Donations<br>and|legacies||||||144,990|12,000|156,990|
|Other trading|activities||||||513,430||513,430|
|Investment<br>income|||||||808||808|
|Total|||||||659,228|12,000|671,228|





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|||||||Unrestricted|Restricted|Total|
|---|---|---|---|---|---|---|---|---|
|||||||fund|funds|funds|
|||||||E|E|E|
||EXPENDITURE|ON|||||||
||Raising funds|||||377,848||377,848|
||Charitable<br>activities||||||||
||Awareness<br>and education|||||210,244|11,531|221,775|
||Relief|||||81,665||81,665|
||Grants awarded|||||207,482||207,482|
||Total|||||877,239|11,531|888,770|
||NET INCOME/(EXPENDITURE)|||||(218,011)|469|(217,542)|
||RECONCILIATION||OF|FUNDS|||||
||Total funds brought|||forward||277,005|15,246|292,251|
||TOTAL FUNDS|CARRIED|||FORWARD|58,994|15,715|74,709|
|13.|DEBTORS:AMOUNTS|||FALLING DUE WITHIN ONE YEAR|||||
||||||||2022|2021|
||||||||E|E|
||Trade debtors||||||10,185||
||Other debtors||||||11||
||VAT||||||6,252|15,819|
||Prepayments<br>and||accrued income||||2,325||
||||||||18,773|15,819|
|14.|CREDITORS: AMOUNTS||||FALLING DUE WITHIN ONE YEAR||||
||||||||2022|2021|
||||||||E|E|
||Trade creditors||||||1,181|34,711|
||Social security|and|other||taxes||3,057|2,168|
||Other creditors||||||9,530|125,421|
||Accruals and deferred|||income|||3,060|3,275|
||||||||16,828|165,575|





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||||||||Net||
|---|---|---|---|---|---|---|---|---|
||||||||movement|At|
|||||||At 1.4.21|in funds|31.3.22|
|||||||f|f|f|
|Unrestricted|funds||||||||
|General fund||||||58,994|(34,609)|24,385|
|Restricted funds|||||||||
|Roald Dahl's|MCC|||||6,715||6,715|
|GDUK Helpline||||||9,000|(9,000)||
|||||||15,715|(9,000)|6,715|
|TOTAL FUNDS||||||74,709|(43,609)|31,100|
|Net movement||in funds,|included||in the above are as follows:||||
|||||||Incoming|Resources|Movement|
|||||||resources|expended|in funds|
|||||||f|f|f|
|Unrestricted|funds||||||||
|General fund||||||94,591|(129,200)|(34,609)|
|Restricted funds|||||||||
|GDUK Helpline||||||10,000|(19,000)|(9,000)|
|TOTAL FUNDS||||||104,591|(148,200)|(43,609)|
|Comparatives||for movement||in|funds||||
||||||||Net||
||||||||movement|At|
|||||||At 1.4.20|in funds|31.3.21|
|||||||f|f|f|
|Unrestricted|funds||||||||
|General fund||||||277,005|(218,011)|58,994|
|Restricted funds|||||||||
|PID UK||||||8,531|(8,531)||
|Roald Dahl's|MCC|||||6,715||6,715|
|GDUK Helpline|||||||9,000|9,000|
|||||||15,246|469|15,715|
|TOTAL FUNDS||||||292,251|(217,542)|74,709|





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|Comparative|net movement|in funds, included|in the above are as follows:|||
|---|---|---|---|---|---|
||||Incoming|Resources|Movement|
||||resources|expended|in funds|
||||E|E|f|
|Unrestricted|funds|||||
|General fund|||659,228|(877,239)|(218,011)|
|Restricted funds||||||
|PID UK|||3,000|(11,531)|(8,531)|
|GDUK Helpline|||9,000||9,000|
||||12,000|(11,531)|469|
|TOTAL FUNDS|||671,228|(888,770)|(217,542)|



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