
## **Trustees’ Annual Report for the period** 

## **From 1 September 2024 to 31 August 2025** 

## **Charity name: The Ups of Downs** 

## **Charity registration number: 1141359** 

## **Objectives and Activities** 

||SORP reference||
|---|---|---|
|Summary of the purposes<br>of the charity as set out in<br>its governing document|Para 1.17|1.<br>To relieve need and assist in the care of<br>children with Down syndrome by the<br>provision of support, advice and training to<br>those responsible for their care, and to<br>health and educational specialists with the<br>object of improve and advancing the health<br>and education of children with Down<br>syndrome.<br>2.<br>The  promotion  of  social  inclusion  among<br>children  with  Down  Syndrome  and  their<br>parents, who may be excluded from society,<br>or parts of society, due to their disability, by:<br>A<br>Providing  a  play  scheme  and  support<br>and  education  services  to  enable  the<br>children to develop and gain new skills.<br>B<br>providing recreational facilities and<br>opportunities for the children and parents<br>C<br>raising public awareness of the issues<br>affecting parents of children with Down<br>syndrome, the children and their<br>siblings, both generally and in relation to<br>their social exclusion;<br>3.<br>To advance the education of children with<br>Down syndrome and the public in the<br>subject of Down syndrome.<br>4.<br>To provide education, training, information<br>and advice to parents/carers with the object<br>of empowering them to advance their<br>children in life and assist their development.|
|Summary of the main<br>activities in relation to those<br>purposes for the public<br>benefit, in particular, the<br>activities, projects or|Para 1.17 and<br>1.19|During the year, The Ups of Downs delivered a<br>range of activities designed to support the<br>development, wellbeing and social inclusion of<br>children and young people with Down<br>syndrome, while also strengthening family|





|services identified in the<br>accounts.||networks.<br><br>Weekly sports and social clubs were<br>provided for school-age children,<br>offering structured activities such as<br>sports, yoga, dance, drama and football.<br>These sessions promote physical<br>development, confidence and social<br>interaction, while giving parents the<br>opportunity to meet informally and build<br>supportive relationships.<br><br>Monthly speech and language therapy<br>sessions were delivered by an<br>independent therapist experienced in<br>working with children and young people<br>with Down syndrome. These sessions<br>support communication skills and<br>provide families with practical strategies<br>to use at home.<br><br>A weekly Youth Club for secondary-age<br>members operated during term time,<br>offering a safe and inclusive space for<br>socialising and developing<br>independence. Additional holiday<br>activities were arranged, including a<br>swimming trip to a local waterpark and<br>attendance at a musical festival.<br><br>Family social events, including summer<br>barbecues and Christmas gatherings,<br>were held throughout the year. These<br>events help children integrate with peers<br>in a relaxed environment and enable<br>parents to connect, share experiences<br>and strengthen community ties.<br><br>A family trip to an SEN Christmas<br>pantomime was organised, giving<br>children the opportunity to enjoy live<br>theatre in an accessible and supportive<br>setting.<br>These activities collectively support the charity’s<br>purpose of promoting inclusion, development<br>and community participation for children and<br>young people with Down syndrome and their<br>families.|
|---|---|---|
|Statement confirming<br>whether the trustees have<br>had regard to the guidance<br>issued by the Charity<br>Commission on public<br>benefit|Para 1.18|The Trustees have had regard to the guidance<br>issued by the Charity Commission on public<br>benefit, reviewing our purpose and benefits to<br>our members and the public, in order to further<br>the charity’s purpose for the public benefit.|



## **Additional information (optional)** 

## You may choose to include further statements where relevant about: 

SORP reference Para 1.38 Policy on grant making 



|Policy on social investment<br>including program related<br>investment|Para 1.38||
|---|---|---|
|Contribution made by<br>volunteers||Volunteers continue to be essential to the charity’s<br>work, contributing across governance, operations<br>and fundraising.<br>Our trustees, all volunteers, provide strategic<br>leadership and drive forward the actions and<br>purpose of the charity.<br>Parent and family volunteers support<br>communication within age groups, welcome new<br>families and take on tasks arising from committee<br>meetings.<br>Volunteers also help organise activities, support<br>events and identify new fundraising opportunities.<br>Many individuals undertake personal fundraising<br>challenges and community events, providing vital<br>income and raising awareness of our work.|
|Other|||



## **Achievements and Performance** 

SORP reference 



||Summary of the main<br>achievements of the charity,<br>identifying the difference the<br>charity’s work has made to<br>the circumstances of its<br>beneficiaries and any wider<br>benefits to society as a<br>whole.|Para 1.20||During the reporting period, The Ups of<br>Downs has continued to deliver a<br>comprehensive programme of support that<br>enhances the development, wellbeing and<br>social inclusion of children and young<br>people with Down syndrome. Our activities<br>have made a demonstrable difference to<br>beneficiaries and contributed positively to<br>wider society.<br>Growth and Consolidation of Saturday<br>Clubs<br>Our Saturday Clubs have continued to<br>flourish and remain a central part of our<br>offer. These sessions provide one of the<br>few regular social opportunities available to<br>children and young people with Down<br>syndrome, enabling them to build<br>friendships, develop confidence and<br>participate fully in inclusive group activities.<br>Parents consistently report that the clubs<br>are an essential part of their weekly<br>routine, offering both respite and the<br>chance to connect with other families<br>facing similar challenges. This peer support<br>network significantly reduces isolation and<br>improves family wellbeing<br>Provision of Summer Holiday Clubs<br>In response to family need, we continued<br>the holiday clubs during the school summer<br>break. These were highly valued by<br>parents, particularly those in employment<br>who often struggle to access appropriate<br>specialist provision during school closures.<br>The holiday clubs provided continuity of<br>routine, meaningful engagement and a safe<br>environment for children, while easing<br>pressure on families at a time of increased<br>childcare demand.<br>Early Development Groups (Ages 2–4)<br>We continued to run our weekly Early<br>Development Groups, offering structured<br>early-years intervention at a critical stage in<br>children’s cognitive, social and<br>communication development. For our<br>youngest members, we also provided**Sing,**<br>**Sign and Phonics**, supporting early<br>language acquisition through<br>evidence-based, interactive learning.<br>These programmes equip parents with<br>practical strategies they can continue at<br>home, amplifying developmental progress.<br>Weekly Maths Clubs (KS2+)<br>Our Maths Clubs for Key Stage 2 and<br>above provided tailored educational<br>support that strengthens numeracy skills<br>and promotes positive engagement with||
|---|---|---|---|---|---|





||||learning. These sessions help reduce<br>attainment gaps and support children to<br>reach their full academic potential.<br>Monthly Meet<br>-<br>Ups for Pre<br>-<br>School Children<br>and Families<br>We have continued to deliver monthly<br>meet-ups for pre-school children and their<br>families. These sessions offer a welcoming<br>environment for new parents to socialise,<br>share experiences and access early<br>guidance. They play an important role in<br>reducing anxiety at the point of diagnosis,<br>fostering early community connection and<br>encouraging long-term engagement with<br>the charity’s services.|
|---|---|---|---|



|**Additional information (optional)**<br>You may choose to include further statements where relevant about:|**Additional information (optional)**<br>You may choose to include further statements where relevant about:|**Additional information (optional)**<br>You may choose to include further statements where relevant about:|
|---|---|---|
|Achievements against<br>objectives set|Para 1.41|Enabled children to take part in inclusive<br>social activities through regular clubs and<br>meet-ups.<br>Supported access to mainstream education<br>with targeted early-years and learning<br>programmes.<br>Strengthened family confidence and<br>reduced isolation through consistent peer<br>support.<br>Helped remove barriers to participation and<br>promoted acceptance within the<br>community.<br>Built early skills that support future<br>independence, training and employment.|
|Performance of fundraising<br>activities against objectives<br>set|Para 1.41|A total of £17,374.50 in donations was<br>raising by volunteers in this period.<br>4 volunteers at London Marathon raised<br>£9,812 April 2025.<br>1 volunteer ran three half marathons<br>raising, £2,163 October 2024.<br>The Hornets Netball team tournament<br>nominated the Ups of Downs and raised<br>£2,050 June 2025<br>Busy bees Nursery also nominated the Ups<br>of Downs - £458 October 2024 / March<br>2025<br>Toddle About Baby Show - £337.50 May<br>2025|





|Investment performance<br>against objectives|Para 1.41||
|---|---|---|
|Other||Appointment of a part-time administrator to<br>assist in the day to day running of the<br>charity, communication to members and<br>accounts.<br>Grants awarded £7605 from JLR Motorvate<br>and WPH Charitable Trust.|
|**Financial Review**|||



|**Financial Review**|||
|---|---|---|
|Review of the charity’s<br>financial position at the<br>end of the period|Para 1.21|At the start of the financial year, the charity<br>held**£36,075.65**in our bank account. By<br>year-end, this had increased to**£57,742.00**,<br>supported by successful fundraising and<br>grant income.<br>Total expenditure for the year was<br>**£39,988.68**<br>This covers delivery of core services<br>including Early Development Groups,<br>Holiday Clubs, Maths Clubs, Speech and<br>Language Therapy, Saturday Clubs and<br>Youth Clubs, as well as for our central<br>running costs.<br>These costs reflect the charity’s<br>commitment to providing regular,<br>high-quality support to children, young<br>people, and their families.<br>Budgeted costs for the upcoming year<br>include planned trips, family events, and<br>essential resources such as storage for<br>learning materials.|
|Statement explaining the<br>policy for holding reserves<br>stating why they are held|Para 1.22|The Ups of Downs aims to maintain<br>reserves at a level equivalent to<br>approximately six months of operating<br>costs. This level of reserves is considered<br>appropriate to ensure the continuity of our<br>essential services, which include weekly<br>development groups, clubs, and family<br>support activities relied upon by our<br>beneficiaries.<br>Maintaining adequate reserves is essential<br>because the charity does not have<br>guaranteed annual fundraising events or<br>predictable high-value income streams. We<br>currently have no confirmed places in the<br>London Marathon or other major<br>fundraising activities that have historically<br>contributed significantly to our income. As a<br>result, our financial position is more<br>vulnerable to fluctuations in voluntary|





|||donations and community fundraising.<br>These reserves ensure the charity can:<br><br>Continue delivering weekly clubs<br>and development groups relied<br>upon by families.<br><br>Meet ongoing financial<br>commitments.<br><br>Manage income uncertainty and<br>unexpected costs.<br><br>Plan responsibly for trips, events,<br>and essential resources in the year<br>ahead.<br>The trustees review the reserves annually<br>to ensure they remain appropriate for the<br>charity’s size, commitments, and risk<br>profile.|
|---|---|---|
|Amount of reserves held|Para 1.22|The Ups of Downs aims to hold reserves<br>equivalent to around six months of<br>operating costs to ensure continuity of our<br>essential services. At year-end, the charity<br>held £57,742 in reserves. With annual<br>operating costs of £39,989 this represents<br>less than 18 months of operational costs.<br>Our charity does not have guaranteed<br>major fundraising events for the coming<br>year. We currently have no confirmed<br>London Marathon places and no other<br>large, predictable fundraising activities.<br>Much of our income is voluntary and can<br>fluctuate significantly year to year.<br>Although this is above our minimum target,<br>we have strong position to continue our<br>charity services without the need for<br>extensive fundraising efforts or grant<br>applications next year.|
|Reasons for holding zero<br>reserves|Para 1.22||
|Details of fund materially<br>in deficit|Para 1.24||
|Explanation of any<br>uncertainties about the<br>charity continuing as a<br>going concern|Para 1.23||



## **Additional information (optional)** You may choose to include further statements where relevant about: 

|<br>The charity’s principal sources of<br>funds (including any fundraising)|<br>Para 1.47|<br>The charities principal sources of funding<br>are donations from members and their<br>families, from our charges towards the cost<br>of activities and grant applications.<br>Expenditure is mostly directly on the<br>children and young people who access our<br>services through the provision of clubs and<br>speech and language therapy.|
|---|---|---|
|||We have no investments.|





|Investment policy and objectives<br>including any social investment<br>policy adopted|Para 1.46||
|---|---|---|
|A description of the principal<br>risks facing the charity|Para 1.46|The principal risk to the charity would be a<br>decline in income. However, we regularly<br>review our financial status and only<br>commission services if financially able.|
|Other||A family member of a Trustee organised and<br>arranged the holiday clubs.|



## **Structure, Governance and Management** 

|Description of charity’s<br>trusts:|||
|---|---|---|
|Type of governing document<br>(trust deed, royal charter)|Para 1.25|Constitution|
|How is the charity<br>constituted?<br>(e.g. unincorporated<br>association, CIO)|Para 1.25|Association|
|Trustee selection methods<br>including details of any<br>constitutional provisions e.g.<br>election to post or name of<br>any person or body entitled<br>to appoint one or more<br>trustees|Para 1.25|Selected by members|



## **Additional information (optional)** 

## You may choose to include further statements where relevant about: 

Policies and procedures adopted for the induction Para 1.51 and training of trustees The charity’s organisational structure and any wider Para 1.51 network with which the charity works Relationship with any related Para 1.51 parties Other 



## **Reference and Administrative details** 

|Charity name|The Ups of Downs|
|---|---|
|Other name the charity uses||
|Registered charity number|1141359|
|Charity’s principal address|73 Bury Road<br>Leamington Spa<br>Warwickshire<br>CV31 3JD|
|||





## **Names of the charity trustees who manage the charity** 

|1<br>2<br>3<br>4<br>5<br>6<br>7<br>8<br>9<br>10<br>11<br>12<br>13<br>14<br>15<br>16<br>17<br>18<br>19<br>20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**<br>**year**|**Name of person (or body) entitled**<br>**to appoint trustee (ifany)**|
|---|---|---|---|---|
||Nicola Enoch||||
||KellyPorcas||||
||Melanie Simkiss||||
||Ursula Adams||||
||Scott Leonard||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||
||||||



## – Corporate trustees names of the directors at the date the report was approved 

## **Director name** 

Name of trustees holding title to property belonging to the charity 

**Trustee name Dates acted if not for whole year** 



## **Funds held as custodian trustees on behalf of others** 

Description of the assets N/A held in this capacity 

Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects 

Details of arrangements for safe custody and segregation of such assets from the charity’s own assets 

## **Additional information (optional)** 

## **Names and addresses of advisers (Optional information)** 

**Type of Name Address adviser** 

## **Name of chief executive or names of senior staff members (Optional information)** 

## **Exemptions from disclosure** 

Reason for non-disclosure of key personnel details 

## **Other optional information** 



## **Declarations** 

**The trustees declare that they have approved the trustees’ report above.** 

**Signed on behalf of the charity’s trustees** 

**Signature(s)** 

**Full name(s)** Melanie Simkiss 

**Position (eg Secretary,** Trustee **Chair, etc)** 

**Date** 

24 June 2026 



## **The Ups of Downs Financial Activities** 

## **1 September, 2024-31 August, 2025** 

||**Total**|
|---|---|
|Income<br>Donations/Income<br>EDG<br>Grants and Trusts<br>Holiday Club income<br>Interest earned<br>Maths Club Income<br>Sales<br>Saturday Club<br>Speech and Language<br>Youth Club<br>**Total for Income**<br>Cost of Sales<br>Cost of sales<br>EDG Costs<br>Holiday Club Costs<br>Maths Club Expenses<br>SALT Costs<br>Saturday Club Costs<br>Youth Club Costs<br>**Total for Cost of Sales**|18,609.56<br>890.00<br>8,105.00<br>1,270.00<br>107.98<br>3,468.00<br>197.00<br>6,345.00<br>555.00<br>1,550.00|
||**£41,097.54**<br>106.30<br>2,928.49<br>3,201.67<br>7,535.67<br>1,654.00<br>13,066.62<br>4,623.38|
||**£33,116.13**|
|**Total**<br>Expenditures<br>Bank charges<br>Computer Costs<br>Fundraising Expense<br>New Baby Bags<br>Office/General Administrative Expenses<br>Other Professional Services<br>Phone Costs<br>Website<br>**Total for Expenditures**<br>**Net Operating Income**<br>**Net Income/(Expenditure)**|**£7,981.41**<br>60.00<br>276.30<br>360.00<br>269.94<br>2,174.56<br>137.00<br>34.80<br>3,559.95|
||**£6,872.55**|
||**£1,108.86**|
||**£1,108.86**|





Cash Basis Tuesday. 30 June 2026 09".49 AM GKITZ


## **Independent examiner's report on the accounts** 

**Section A                        Independent Examiner’s Report** 

**Report to the trustees/** Charity Name THE UPS OF DOWNS **members of On accounts for the year** 31 AUGUST 2025 **ended Set out on pages** 

**Charity no** 1141359 **(if any)** (remember  to include the page numbers of additional sheets) 

I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended **31 August 2025** . 

**Responsibilities and** As the charity trustees of the Trust, you are responsible for the preparation **basis of report** of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”). 

I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act. 

## **Independent examiner's statement** 

I have completed my examination.  I confirm that no material matters have come to my attention in connection with the examination which gives me cause to believe that in, any material respect: 

- accounting records were not kept in accordance with section 130 of the Act or 

- the accounts do not accord with the accounting records 

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in order to enable a proper understanding of the accounts to be reached. 

**Signed: Date:** 16 June 2026 **Name:** Michelle Buckley **Relevant professional** ACA, ICAEW **qualification(s) or body (if any): Address:** 97 LILLINGTON ROAD LEAMINGTON SPA CV32 6LJ 

**Section B Disclosure** 

Only complete if the examiner needs to highlight matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners). 

1 

**October 2018** 

**IER** 



**Give here brief details of any items that the examiner wishes to disclose** . 

2 

**October 2018** 

**IER** 

