Cont•nts of Ihe Flnanclal StstenMnts
lorthe Year Ended 31 pA?￿h 2024
Paga
Reference and Admlnlstrntive D¢la115
Report of the T￿￿¢8•$
2 to 4
Independent Examinerfs Rewt
Statementof Flnancial Actiyits
Balance Shg8t
Notes to the Financlal Siat•nwnts
8 to 13
Detailed Stalwn•nt of F￿1￿¢￿1 Actiyib
14

Noonan Syndrome A#•oclatlon
Reference and AdmInlstrali￿ DetallB
forth8 Year Endèd 31 Alarch 2024
TRUSTEES
Sharon Alb)pp Chair
Andrea Reid- Kelly DepLAy Chair
Grayson Bowler Treasurer
m￿hael Patton Medical Adviser
Brion Carlton
Jeanette t¥er
lan Legg
PRINCIPAL ADDRESS
PO Box 692
Blackbum
882 9RF
REGISTERED CHARir
NUMBER
1140671
INDEPENDETrif EXAMINER
Morgan Griffiths LLP
Chartered Accountants
Cros5 Chambers
9 High Street
Newtown
Powys
SY16 2NY
BANKERS
Ba￿lay5 Bank PLC
Leicesler
LE87 2BB
Charlty Manager
Sandie Dent
Corre5pondenee Address
PO Box 692, Blackburn. 882 9RF
Pag• 1

Report ofth• Tnmtees
forthe Y•arEnd•d 31 Marth 2024
The trustees present repcAt with fw)ancb81 ststeM￿ d the thaiity for the year ended
31 March 2024. The trustees have adopted the pro¥ispMs of Accounting and Reporting by Charlies:
Statement of RecOn￿ended Prxtice appI￿ab￿ to chariti.es preparing their accounts in awjftlance with I
Financiai Reporting Slandafd applicable in the UK and ReputlK of Ire￿nd (FRS 102) {effe(*we 1 January
2019).
OBJECTIVES AND ACTivmES
Oblectlvps and alms
The objectNes of the charty are to provmle reli8f d all ￿r￿lS affeded by Noonan Syndrom and related
condiiior* (on the RaslMAPK palhwayl by all or arhy dlhe lolbxiNJ M￿n1'.
1. The provoion of g8ner81 advKe, guidance and support Ser￿ for persons affected by N(xJn8n Syndrc¥ne
and ￿ated o)ndilvJns (on the Ra￿lAPK pattfivayl, their familtes, dep&)d8nts and cafern,.
2. The lacilitation and pro1￿tiOn of re¥earch into the causes, affects. diagnosis. treatment and reli￿ of
Noonan Syndrome and relaled Condi￿￿3 lon the Ros*WK pathway) t•Ah the useful resutts of research
being dissemit)aled for the benefrt ol the Pu￿￿..
3. The advancement In Iho educakn Lrf the In relat*)n to the effglts of N￿nan Syndrome and reLated
ondilion8 lon the RasNAPK palhwayl by cOmmun￿trn9 worts and diss6minating informglion by any
means or media concerning research work arKI Stud￿ undertaken by ¢y on behalf of the chanty.
In All th81 we do, our trustees have given careful con8Nlèrnlll￿ to the Ch81ity Commiss￿n,$ general guldance
on publK benerrt and hgvo compl*d wilh the duty in sedion 4 ofthe 2011r2006 Chariiles Act.
ACHIEVEMENT AND PERFORMANCE
Charltablo 8ctlvltl•s
The Charity entered the year in a strong finan¢ial arKI a c(xTVTM￿I to spend fund8 on..
- payment of the Iwo research grant awards on 8￿ful cx)nWh?n of these projects
delivering a Conference and Familtes DaylAdivitstt Vleekend in April 2024 Ipbnned. wjanised, and wlth
some expenditure falllng Into the 202>4 f￿ar￿1 year).
Plannod strategic objectlb*8 de1￿￿[0d during the y￿r including a rwff4V of key Wjlths. developmont of
fomial recruitment ￿r￿e$S and packs for tru$tees and othef TA￿unteerS. ccvnprehensi￿￿ safegua￿1n9 Iralnlng
for designated ¥afeguardlng leads. the Chaw of trustees the chaiity man8ger. and ¢ontinued planning and
delivering of online ￿bInarY on lopieal arKI nwrtanl issues for Meffl￿.
The research proie¢is 'pumpwirnd' by NS4 9rants cc•np*J succe8$fvlly, helping those rn8earch
188m8 secure ftrture furKling from other sources lo progress their find￿798. The 'LNing with Noonan Syndrome,
Soclal research propct was 8180 su￿o$s1u1ty delNered during the year. wth eady resuns from the Survey
elemnl feeding into the charity's rn￿4errn strategic revie*. and a fuller from the in4fjèpth intetNV•V8
expected later in 2024. This has been an importanl p￿lect for charity and will feed into the full strategic
V•V lats in 2024. to infoffn actiths for 202M ar¥J bey￿d.
The charity Lwan supp)thg new r¢¥eorch sxwts ￿Ing Adutt N¢)onan Syndrome and Leamlng in
Young peop￿ with NS. Both subject areas are incTrasingty rebevarrt and wrptytsnt to our membern and the
fvlure of understanding, Ireatment and intemntions for pwle with NS.
The d￿rty opened an account wilh CAF bank lo enabk online banking, fUrt￿r increasing administratv
efficienw lo build on the sijnfficant systems and proc￿ Ir￿r04*ments carried out in the prevMJus year.
T¢y•¥8rds the end ol the year. we began detai￿d p￿nnIng for a wirvJ 2024 Conference and Families
Day￿￿kend e¥*n( uslng feedbadl from the October 2022 eN*rt to infomi a rangg of ¥rtMkshop topics and
speakers.
Membership CA)ntin￿d lo gr￿ thring the year. dOUb￿ng by year end
P>3• 2

forth• Ye•rEnded 31 March 2024
FINANCIAL REVIEW
Flnanelal position
The Stster￿n1 of Financial AAivit*$ a d￿¥1 for the year of £17.905 12023: £20,576). and rn8epA8
now stand at £79.886 12023.. £97,791).
RMeThi8s pollcy
The charity does Mt have a separats forn￿ poiry on Re¥ep￿B but folhmng Board di8cus8ions, the Chatr,
Treasurer aNJ Charity Manager folkM* a Fdicy based on ach￿n9 free reseNes of a minimum of bets¥een 3
and 6 nK*nths' operating eosts induding those asxtiated with the ¢ost of a part time charty manager.
The charity has an established and approw* financial managen*nt system whth 15 reguw reviewed by
the 80ord and put into day lo day prac￿ by the Charity Manager, Charity Treasurer, Finance Officer
topther with the Chair of fnJ&ees.
Frne re8ep4e8 •4u8te to nel oJrr￿t Msets (•xdtwJing restricted funds) arr#wnt ￿ £59,278 (2023:
£57,513).
FufuRE PLANS
The Board Wff4VS its strategr plan annudty wilh a mispolnt r8vitrw ￿ by th8 Strategy & Finan￿ subgroup.
Significant progress has been mwje over the year. though I￿nIted intemal staff resourc• continues lo bo 8
thallenge in progressing obj'ectives within the ambIt￿u$ lim&8calè8 agreed. We will o)nlinue lo revtew and
adjust timescales to ensure they are realith, bul overall g￿￿ progress has teen made against key
ctjject￿es vknich ha* itrengthened the chaws oF*i8tthal thcture and 1Th>ga8•d our vijibllty 8nd
8tanding.
r the coming financi81 year. wa *fjll woqres$ acti￿• w our Communk8tknn8 plan, IncludTrng
8ctiv8 recruitment of 8F£ualisl th￿UnteerS to SUP[￿ with this. The plan supports 8ev•r81 slraleg
¢bleci￿e$ and is critical lo the Chaiivs aim *) Increa￿ roguw givbng and rnlae Its wofilg within tha
he8lih and SOCAal care sectors.
Vle will 8190 m8ke further enhancements lo resouw and 0)ntifi￿ exploriThJ otsns for Ivachkng
and supporting rrKye members acmsg the UK. Vk will deliver a tsference and Famities Event with nath)nal
and intemal*Jnal speaker8 ho* expert kr￿￿* of N(x>Thgn syrvjr(￿.
AS the chantys memtership o)nlinues to grtyw sKJnfficantty. 80 the activit￿ 8nd resource lo delNer th•m
need also to grow. Managing th￿ in a safe and positi¥e *By conlinue to be a key locus during 2024r25.
STRUCTURE, GOVERNANCE AND MANAGEMENr
Governlng document
The charty is controlled ty ts govemwig doujfftht, 8 deed of trust and constitirtes an uThncowrnled charity.
R•crultment and appolntment of new trust••s
Trustees are elecied by way of a rnsOlUti￿ of Ihe Charity at the Annual General Meeling. The Trustees al¥0
have the POW¢f at any lune. and fmm lime to ti￿. to appoirl any pe(son to be 8 Trustee Isubieci lo certain
reslrict¢onsl, ether to fill a casual vxancy or as an addrt￿n to Ihe ¢￿ting membern of the Board of Trustee8
bul so that the lotal number of Twslees [k￿S excead any mgxirmm nurtjer fixed in &cordance with this
Constitution. Any Trustee so apwinted sh811 hokl Off￿ onty until the next follmng Annual General Meeling.
and shall then bo eli9￿￿ for re*￿.

lortheY•ar Ended 31 March 2024
STRUCTURE. GOVERNANCE AND IAANAGEMEI
Oryanlsatlonal structure
charity is organised so that the tnjstees meet rngukrty tt> manage its affairs. Full TNstee Boord meetings
are held at least four tirres per year with other nwotmy hekl ￿ required, t*)th f* to lace and by
conference call or intemeL
There 18 an Annual Gener81 Meeting hth for all the mèrn1￿ of the charity at which Tnjstees arg elBcted or
confirmed.
The part tlme Charity Manager undertakes most of the day to day operat*)ns of the chaiity. In &Jdition to
Chair, thè Iruste88 have •pp)inted a L*puty Chalr and a TTegsurer.
Rlsk m#nagem•nt
Tho trustees have a duty lo Mlentify and the risks to which charity i¥ exposed and lo ensure
appropriate contro& are in pL4ce to pro¥ide rea%￿ab￿ aswjranee against fraud and error. It has an agreed
8et of financMI procedures and prxlKes and guKlan￿ to C4>ver *8 actfvilM, including the re$8N88
polw 8el out above.
Appro¥•d ty ¢Jrd•r of the bowd (rftrustees on 25 January 2025 $bned on its behaw ty.
Sharon A180pp- TnJsteg
Page4

Indowidont Etyninrfs R•portto Tntytws af
Ind•pndent examlnerfs rep(wt to the tru¥leM of Noonan SyNlrryrn Assoclallon
I report lo th8 charity trustees on my examinati￿ of the a(tounts of knnan SyndnTr A880ciatK*n (the
Trust) fi￿the year ended 31 March 2024.
Responsibilities and basis of Ygport
As the chanty trustees of the Trust you are for th8 Preparat￿ of the acctsLmls in accordancg wth
the requirements of the Charilies Ad 2011 fthe W..
I rewt in * of my eyaminab'on of t￿ Trusfs •xounts cart*d ¢xrt under SectK)n 145 of the Ad and in
carrying oul my examinatK)n I have foWyhEd all applKablti DredK)ns gibtn by the Charity Commk8sion urKl$r
Section 14515Xb) of the Acl.
Indop8ndent oxamlnefs ststenwnt
I have completed my examination. l ￿n￿rni thal Th) m•tefW mattors have comg to my attentKin In ¢onnection
the examInat￿n gmng me cau8e to that in any Matw1￿ re8P8Ct
accounting records were not keFI in rnsped Of1￿ Tn4t as requ￿ed by PAdK)n 130 aft￿ ￿., or
the P•xount$ do not ac£ord with tho86 records; or
thè aCLounts th not conM)ty with the applKablts reWireff￿¢s concerning th& fom) and content of
a￿)Unts 581 out in the Charrtieg IP£counts 8nd Reports) R8guL1ti￿s 2008 other than any requirement
th•1 the 8¢¢ounts give a true and fair view rs not 8 matter considered as part of an independent
examinalion.
I have concemi ar￿ c(wn8 other rMtter8 in connectkin with examination to which
attention Should be drv4m in thi• report in (wder tr> enable a proper underslarKling of tho ac£ounl8 lo be
r¢ached.
Thoma8 Landers BA FCA
Morgan Griffiihs LLP
Chartered Accountan18
Cross Chambers
9 High Street
Newtth¥n
SY16 2NY
25 January 2025

Noonan Syndrome A¥¥oclatlon
statement of Fin8n¢lal Actlvt11•6
forthe Year End•d 311Slareh 2024
31.3.24
Total
nds
31.3.23
Unrestrfded
nd
Restricted
funds
Tolal
INCOME AND ENDOWMENTS FROM
Dortat￿)n$ and legacies
30,OM
330
30.374
30.268
Charltablo actlvlties
Research
Support NeNvork
Awareness
8.021
8.542
10.042
Investment income
Other income
53
3,025
Total
30.097
330
30,427
59,898
EXPENDITURE ON
Charftable actlvltles
Research
Support Netsyork
Awareness
5.677
11.322
11.333
20.000
25.677
11.322
11.333
6.474
49.832
24.168
Totsl
28.332
20,000
48.332
80.474
NET INCOMEIIEXPENDITURE)
1,765
119.6701
117.9051
120.576>
RECONCILIATION OF FUNDS
Total funds brought lo￿ard
57,513
40.278
97.791
118.367
TOTAL FUNDS CARRIED FORWARD
59,278
20,608
79.886
97.791
Thè notes form partoftheso financial statemen
Page 6

Noonan Syndrome A8¥0clatlon
Balance Sheet
31 March 2024
31.3.24
31.3.23
Notes
CURRENT ASSET8
Debtors
Cash at bank
10
28.901
70,396
6,565
96,028
99.297
102.593
CREDrroRS
Amounts falling due wf(hin one year
(19.411}
(4,802}
CURRENT Assgrs
79,886
97,791
TOTAL ASSETS LESS CURRENT
UABIUTIES
79,886
97,791
NET ASSETS
79,886
97.791
FUNDS
un￿stricted funds
Reslrthd fvnds
13
59.278
20.608
57,513
40.278
TOTAL FUNDS
79,886
97.791
The finan(3al statements were approved by the Board of Trustees and authorised for issue on
25 January 2025 and were stgn8d on its behalf ty..
Sharon All8opp-Truslee
The note¥ form part ofthese finandal statements
Page 7

forthe Year EndBd 31 March 2024
AccouiillNG POUCIES
8asis of preparlng the finan¢lal Ststernents
The fin8nci81 statements of the charity, whth li a ber￿ffl entity und8r FRS 102. ha￿ been
prepared in accordan￿ with the Charilies SORP IFRS 102} 'Accounling and Rep)rting ty Charibe8".
Statement of Recommend￿ PractKe applicabk to Charrt￿ weparing their accounts in aeeordance
wf(h the Flnancial Reporting Stsrnlard applicabl& in the UK and Republic of Ire18nd IFRS 1021
(effective 1 January 20191.. FinaNaal Rwting Standard 102 The Financial Reporting Standa
opplicable in the UK and Republ￿ of Irelatwj. al￿ the Chanlies 2011. The finanoal statements have
begn prepared Under the hi5torvl cost ￿n￿rnIN.
InGom• rncognltlon
All income Is recognised in the Statement ol Financkil ActNibes I)n￿ the ¢hanty h85 enlillement to the
fvnds, it is probable that the incOff￿ be receNed and the amount can be measured ￿l￿bly.
Exp•ndlturn
Liabilities are rn0)gni￿1 88 expththrn as ￿￿Tr as there is a legal or Obl￿81
commilting the charity to that eypen(Iture, it WObab￿ that 8 transfer of econom￿ benefrts WUI be
required in s8ttlement and the amount of the obligakn cw be measured reIkn1b￿. Expenditu￿ 18
accounted for on an accNaL8 b88is and has been dassified under headings that a99￿al0 all c081
related to tho ¢aleg¢)ry. Vth8re costs cannot be directty ottriLwted to particular he•Jing8 they hove been
allocated to KtNilwa on a basis consistent with the use of resources.
T•xatlon
The charty is ¢x¢mpt from tax on its cherilable adv4ilws.
Fund accountlng
Unrestricled lunds can ￿ used in aCcA)th￿ wlh the th•riiablo obj¢(apffjs al the di8Cntlon of the
trustees.
Reslrfcted funds can b8 used ts p41t¢ular mtrthd Purpo￿ wiihin the r￿JeCtS of the ¢harity.
Re8lriclions arise when specrf*d ty the (k>nor or whon funds are rai￿1 for pathuLqr rèstricted
purpose8.
Further explonalion of the naturn and puw of eaol fuThd is in the notes to the financlul
statement8.
DONATIONS ANO LEGACIES
31.3.24
31.3.23
Donations
Gift aKI
27.784
2,590
27.341
2,927
30.374
30,268
P4ge B
contin&￿￿...

P4ot•# to th• Flnanclal Slaternonty. cont•nued
forlhe Year End•d 31 March 2024
INVESTMENT INCOME
31.3.24
31.3.23
Deposit ac(x>unt inlertst
INCOME FROM CHARITABLE ACTMTIES
31.3.24
31.3.23
Adpiity
Research
Supp)rt Netsw
Avareness
Grants
Grants
Grants
8,021
8.542
10.042
26.605
Grants ￿Ceived, inchjded in Ihe above. we as folkyw•'.
31.3.24
31.3.23
Novo Nofdth Lwnited
Sense . The National Deafolind and Rubelkg As8od•t
Sl George's HO8￿1 Charty
10.105
8.500
8.000
26.605
CHARITABLE ACTIVITIES COSTS
Direci
Cost81gee
)*61
¢)Mts Ise•
Resoaf¢h
Support NetIA￿￿
Awarenes3
25,346
10,660
10.671
331
25.677
11.322
11.333
46,677
1,655
48.332
DIRECT COSTS OF CHARITABLE ACTivmES
31.3.24
31.3.23
Postage and stationery
Pmmolh?nal matefial
Sundries
Fami￿ day
Travel expenses
Computar & IT support costs
Chanty Manager
Researeh
AdmInistrat￿n eosls
Staff & volunteer training
1,350
450
1.035
878
35.635
187
14.957
18,783
595
1,949
16.747
20,000
5.388
198
6,666
46.6n
78,809
Py9

Note• to th• FIna￿la1 Ststèments. eontlnuad
forts Year Ended 31 &larch 2024
SUPPORT COSTS
13
24
24
318
638
638
331
662
Support Neiv
Awareness
61
1.594
1.655
Bas￿ of alkjcaknn
Based on tine
Based on time
Based ￿ tVT
P•lanagemnt
Finance
TRUSTEES. REMUNERATION AND BENEFITS
There were rn trustees, r￿une[knn or other benefits for the enc￿ 31 March 2024 nor for tr
year ended 31 March 2023.
During the year no truslees reimLwtsed fortrabeliNJ expenses { 2023- nfj.
COMPARATIVES FOR THE STATEMENT OF ANAP4CIAL ACTivmES
Unrestrthd Resth"c*Y Tot
lunds
INCOME AND ENCX)WMENTS FROM
26.681
3.$87
30,268
Charitable adivltles
21
42
42
8,000
8.500
10.000
8,IY21
8.542
10.042
Support Neiw)rk
3.025
3,025
Tolal
29,811
30.087
59,898
EXPENDffURE ON
Charitable activities
Research
Support Neh
Awareness
6.474
18,045
14.168
6,474
49.832
24.168
31.787
10.000
Total
38.687
41.787
80.474
NEf INCOMEIIEXPENDITURE
{8.876)
{11.7001
120.578)
RECONCIUATION OF FUNDS
Tolal fvnds brought forward
66.389
51.978
118.367
Paqe 10

Notes toth• Fin8nci41 ￿t•M￿ts. continued
forthe Y¢ar Ertded 31 Alarth 2024
COMPARATIVES FOR THE STATEMEKf OF F14AN￿ ACTivmES. continued
Total
r*J
fvnds
TOTAL FIJNDS CARRIED FORWARD
57.513
40.278
97.791
10. DEBTORS: ApiouKfs FALUNG WE WITHIN 0￿ YEAR
31.3.24
31.3.23
Trade debto
Accrued incc*ne
Prepaymnts
10
8.169
20.722
S.599
28.9)1
6,565
11. CREOITORS: AMOUNTS FAWNG DUE ONE YEAR
31.3.24
31.3.23
Trnde
Other uediio
3,902
900
18.511
19.411
4,802
12. ANALYSIS OF NET ASSETS BETWEEN FUNDS
31.3.24
Totsl
31.3.23
Tot
nds
Currenl assets
Currenl liabilth'es
78.689
{19.4111
99.297
{19.4111
102.593
(4.8021
59.278
20.608
79.886
97.791
13. MOVEMEpif IN FUNDS
At 1.4.23
in frjnds
31.3.24
Unrestricted fund5
General fund
57,513
1.765
59.278
Restrlcted funds
Noonan Syndrome Researth Fund
The Andrew Fami￿ Research Fund
Support costs
30.255
10.016
(19,670)
10,585
10,016
40,278
(19.6701
20.608
TOTAL FUNDS
97.791
(17.￿5)
79.886
Page11

Notes to tht Fina￿1¥] Sla*rnents.eonlln￿l
forthe YearEnded 31 Mavch 2024
13. MOVEMENT IN FUNDS- continued
Net moNpmnt in funds. induded ￿ the abM are as folknvs..
in fund¥
Unregtrfcted funds
General fund
30,097
{28.3321
1.765
Restricted funds
Noonan Syndrome Research FuThJ
120.000)
119,6701
TOTAL FUNDS
30.427
(48.3321
I17,￿5)
Comparatives for movement in funds
At 1.4.22
31.3.23
Unrestrl¢ted funds
General fund
e6.389
(8,8761
S7.513
Restricted funds
Noonan Syndrome Reseath FuThJ
Families Event
The Andrew Famity Research Furvj
Support costs
21.955
20.000
10.016
8,300
120.000)
30.255
10.016
51.978
(11,7001
t40278
TOTAL FUNDS
118.367
120.5761
97.791
Ccrfnparati¥e net m0ven￿ in fvnds. W￿lUded in the atxm are as folhyK:
in t￿￿15
Unrestrlcted funds
Generdl fund
29,811
(38.687)
(8.8761
Rgstrlcted funds
Noonan Syndroffle Researth Fund
Families Event
SupF4)rt costs
Awareness
8.300
8,500
3.287
10.000
8.300
(20.000)
128.500)
(3.287)
110.000)
30.087
(41.787)
{11.7001
TOTAL FUNDS
59,898
(80.4741
120.576)
The Andw Fomity Research Fund..
Pago 12
COntin￿J...

Nol•* to the FIn•￿101 Ststwnents. contlnu•d
for thg Ygar Ended 31 2024
13. MOVEMEKf IN FUNDS . contEnwd
Thls is io fund medtil reSea￿h dirg* rnlevant to Noonan Syndmm.
14. RELATED PARTY DISCLOSURES
During the yearthe made (knalw)ns to the charity t(ts11119 £1.440 2023: £1.590).
Page 13

O•lalled St#t*nentol Fbmncknl Actsvitso•
forthe Year Ended 31 Marth 2024
31.3.24
31.3.23
INCIXIE AND ENDOWMENTS
DonatlonB and legacl
DonatM)ns
Gift aid
27.784
2.590
27,341
2.927
30,374
30.268
Investmont Income
Deposii account inler¢st
53
CharEtsblo 0cOvlt
Grants
.605
(￿hOr Incom•
Other Inco
3.025
Total Incoffllng ro￿￿1¢0•
30.427
59.898
EXPENDITURE
Ch•rhabl• •cthltle3
Postage and stationery
ProMot￿n31 mateiial
Sundries
Famity day
Travel expense8
Computer & IT support costs
Charity Manoger
Research
Adminmlralion e<>sts
Staff & volunteer trathilThJ
1.350
450
1,035
878
35,635
187
14.957
18.783
595
1,949
16.747
20.000
5,388
198
46.677
78.809
Support ¢o•ts
Flnance
Bank charyes
61
Govemance costs
Indemnty Insurance
Accountancy arwj lagal fees
694
669
1.594
1.665
48.332
80,474
Net exp•ndltur•
(17,9051
120.576)
Pwjg 14