Noonan Syndriwne As¥o¢i•
Cont•nls af the Financial Slatements
for Year Ended 31 Mar¢h 2023
Pag•
Reference and Adrninistr•tive Details
Report of the Trustees
Independent Examin¢rf$ Report
ststement of Financbal Activlties
Balance Sheet
Notes to the Flnanclal Slatements
8 to 13
Detalled Statement of Finan¢ial Acllvitles
14

Noonan Syndrnme AsgocSatlon
Referene¢ and Admlnistrntive Details
for Ihe Year End•d 31 March 2023
TRUSTEES
Sharon Allsopp Chair
Andrea Reid- Kelty Dewty Chair
Grayson Btr￿er T￿aSUre[
Michael Patton Medical Adviser
Brian Carlton
Jeanette ttyer
lan Legg
PRINCIPAL ADDRESS
PO Box 692
Blad(bum
B82 9RF
REGISTERED CHARtrY
NUMBER
1140671
INDEPENDENT EXAMINER
Morgan Grrfffths LLP
Chartered Accountants
Cross Chambers
9 High Street
Powys
SY16 2NY
BANKERS
Barclays Bank PLC
Le￿ester
LE87 2B8
Charity Managgr
Sandie Dent
Corresponden¢e Address
PO Box 692. Blackbum. BB2 9RF
Page 1

Noonan SyThlrome AssocEatlon
Report ofthè fntsteès
for the Yeaf ErKled 31 ￿[Ch 2023
The trustees present their report with the financial statements of the c*arity forthe year ended 31 March 2023.
The Iruslees have adopted Ihe provisK)ns of Accounting and Reporting by Charities.. Statement of
Recommended Practw appli¢abb to charities preparing their a￿O￿nts in accordance vthh the Financial
Reporting Standard applicable in the UK and Republic of Ireland IFRS 102) (effective 1 January 2019}.
OBJECTIVES AND ACTIVITIES
Objectives and alms
The objectives of the charity are lo provi(le relief of all persons affected by Noonan Syndrome and related
conditions lon the RaslMAPK pathway) by all or any of the foll¢)wing ￿￿n$..
1. The provision of general advi￿. guidance and support servKes for persons aff￿ by Noonan Syndrome
and related conditions lon the RaslMAPK pathway), their families. (kpendents and ¢arers',
2. The fa¢ilitath)n and promotion of research into the causes. effects. diagnosis. trea1Th￿nt and r￿￿ef of Noonan
Syndrome and ￿lated conditions (on the RaslMAPK pathway) with the useful results of research b￿.ng
disseminated for the benefit of the publt.,
3. The advancerrEnl in the educalrfyrt of the Publ￿ in relat￿n to the effects of Noonan Syndrome and related
conditions lon the RaslMAPK pathway) by ¢ornmuni¢ating ￿p)rts and disseminating inf0m￿tiOn by any
means or media conceming rewrch work and $iudies undertaken by or on behaifof the charity.
In all that we do. our trustees have given careful consideration to the Charity Commissh?n's general guidance
on public benefft and have complied with the duty in section 4 of the 2011r20[￿ CharIt￿S Act.
ACHIEVEMENT AND PERFORMANCE
Charitable activities
The Charity entered the year in a strong finanaal position. with an agreed strategy to invest surplus funds into..
further strengthening its operab'onal systems and pr(￿sseS
developing a new website and cornmisstoning the professional creation of medical factsheets
delivering a Families DaylA¢tivilies Weekend. whth had not been Frt)ssible in ihe iwo preceding years due
lo the Covid-19 pandemic
Other planned key strategic objertNe5 were delNered during the year. including a successfvl appltcalion to
the Cranfield Trust lo further develop the Charity's strategy and 3-year business plan. This invofved
Menlorlcrilical Fr￿nd support for the Charity Manager over a ￿X-MOnth period. We also continued to delNer
online webinars on a rdnge of medical and non-medical tO[￿S to support our members.
Imth the research projects 'pumpprimed' by NSA grants Unde￿ay. the Charity supported an additional
project delivered in collaboration with Loughborough UnNersity: LNing with Noonan Syndrome. This social
research study will explore, through surveys and in-depth inteNiews. the day-to-day experience of families
and individua15 affected by Noonan Syndrome and provide greater understanding of how the condition impacts
on people's lives. This understanding will not only contribute to leaming Within ihe health and social care
sectors bul will also help infom the Charity's future supp)rt activiti'e&
The planned reb'remenl ofthe Finan￿ Officer in Octobergave u$ to develop and implement new finanaal
processes wth no disruption to the Charity's operat￿n$. We invested in Xero finance sofvare and recruited
an extemal professional bookkeeper to handle the daY￿daY rec4)rding and reconcilialton of the Charity's
accounts.
Towards the end of the year, we launched the new website and med1￿1 fac*sheets as planned. The enhanced
look and searchability of the sile has resuKed in an increase in new members. including health and S(￿la1 care
professionals. In October, we hekl a Families Weekendlconference at Whitemoor Lakes Activity Cenlre, with
workshops, presentations and a medical Q&A session for adults and a range of exob.ng activities for children.
Page 2

Noonan Syndrome Association
Report ofthe Tntstees
for the Year Ended 31 March 2023
FINANCIAL REVIEW
Financial positk>n
The statement of Financial Activities SIKMS a deficil for the year of £20.576 (2022.. surplus £24,190), and
reserve5 now stand al £97.791 (2022.. £118.367}.
Reserves pollcy
The charity does not have a separate forff*l policy on Reserves but foll¢)wing Board discussions, the Chair,
Treasurer and Charity Manager follow a polw based on achieving free reserves of a minimum of behveen 3
and 6 months. operating costs induding those associated with the cost of a part ts'me charity manager.
The Charity has an established and approrKiate financial management system whith Is wulaty reviewed by
the Board and put into day lo day Practi￿ by the Charity Manager. Charity Treasurer. Finance OffKer together
with the Chair of Tfuslees.
Free reserves which equate to nel Current assets (exdthling reslricted fvndsl amount lo £57.513 {2022.'
£66,389).
FUTURE PLANS
The Board rewews its strategic plan annualty wilh a n*J-point revivw carried out by the Strategy & Finance
subgroup to check progress. Significant Pfogress has been made over the year. though limited internal Slaff
resource Can to a challenge in progressing obiectries within the ambitious timescales ag￿ed. We will continue
to revlew and adjust tirnescales lo ensure they are realistsc. but overall good progress has been made against
key obiectsves whth have strengthened the charity's operational struciure.
Over the corning ffinan￿al year. we will be workiThJ with Cranfield Trust again. to devebp a Communications
Plan. This plan supports several Strateg￿ obiecb'ves and wll be ￿lt￿al in the Charity's airn lo increase regular
glving and raise its profile within the healih and social care seGtors. We will also make further enhanGements
to tha website. explore options for regional support for members. and recruit operational volunt6&rs and two
atjdllional Iruslee8 With re￿Vant experience in finance, markebng andlor clynmun￿ts.0n5.
As the charity's membership continues to grtrw. $0 the aclT¥ib'es and resource lo delNer them need also to
grow. Managing this in a safe and posilive way will conbnue to be a key locus during 2023124.
STRUCTURE, GOVERNANCE AND MANAGEMENT
Goveming do¢urnent
The charity is controlled ty its goveming docuff*nt. a deed of trust and constilules an unincorporated charity.
R•¢rultm•nt and appolntment of new tru•l•e8
Trustees are elected by way of a resolution of the Charity at the Annual General Meeting. The Tnjstees also
have the power at any time. and from to time. lo appoint any person to be a Trustee Isubject to certain
slriclionsl. either lo fill a casual vacancy or as an addrtion to the existing members of the Board of Trustees
bul so that the total numter of Trustees does not exceed any maximum number fixed in accordance with Ihis
Con51ilution. Any Trustee so appointed shall hold office onty untsl the next following Annual General Meeting.
and shall then be eligible for re-electim.
Organlsatlonal structurn
The charity is organised so thal the trustees meel regulady to manage its affairs. Full Trustee Board meetings
are held al leasl four limes per year ￿￿th other rmetings held a5 rwuired. l)oth face to faGe and by confefence
call or inlemet.
There is an Annual General Meeting heid for all Ihe membefs of the ¢harity at whth Trustees are elected or
confimied.
The part time Charity Manager undertakes most of the day to day operalions of the charity. In addition to a
Chalr, the trustaes have appointed a Dewty Chair and a T￿asUrer.
Page 3

Il¢)onan Syndrom• As8oelation
Report of the Trustees
for the Year Ended 31 PAarch 2023
STRUCTURE, GOVERNANCE AND MANAGEMENT
Risk management
The trustees have a duty to identrfy and review the risks to whth the charity Is exposed and to ensu
appropriate controls are in place lo provide reasonable a55urartt against fraud and error. It has an agreed
set of financial pr￿dureS and w11c￿5. practKes and guidance to cover its activities. indLKling the reserves
policy set out above.
Approved by order of the board of Iru$tees on 30 January 2024 and syned on its behalf by..
Sharon All8opp - Trustee
Page 4

Independent Exami￿¥ Report to the Trustees ol
Noonan Syndrome Association
Independent examinerfs report to the trustees of Noonan Syndrome Association
I report lo the charity trustees on my exarrinalh￿ ofthe accounts of Noonan Syndrome Association (the Trust}
for the year ended 31 Mard) 2023.
Responsibiliti8s and basis of report
As the Charity trustees of the Trust you are responsible for the preparat*)n of Ihe accounts in accordance with
the requ1￿merb¢S of the Charities Aci 2011 ('tt)e Ad).
I report in respect of my examination of the Trusfs xcounts carried out under Section 145 of the Act and in
carying out ry examinatN)n I have follrywed all ap￿￿ble Directh￿S gNen by the Charity Commission under
Section 1451Sllbl of the Act.
Independent examinerfs statement
I have completed my examination. I confirn that no material matters have to my attention in connection
with the examination gr¥ing me cause to believe that in any ￿￿terIal respect
accounting records were not kept in respect of the Trusi as r4uired by SectM)n 130 of the Ac¢ or
the accounts do not accord with those records.. or
the accounts do not compty the appI￿able requirements a)ncerning the fom and contenl of
accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement
th8t the a￿Unts grve a true and fw'r vie4V whiGh is not a matter considered as part of an independent
examination.
I heve no ¢on*ms and have come across no other matters in o)nnection with the examination to which
attention shoukl be drawn in this reFth in order to enable a rKoper understanding of the accounts to be
rea¢hed.
Thorn￿ Landers BA FCA
Morgan Griffilhs LLP
Chartered Accountants
Cross Chambers
9 High Street
Newtown
Powys
SY16 2NY
30 January 2024
Page 5

Il¢)onan Syndrome Assoclatlon
Slatement of Financial Activitses
far the Year Ended 31 hlarch 2023
31.3.23
Total
31.3.22
fund
fvnd$
Notes
INCOME AND ENDOWMENTS FROM
Donations and legacies
26.681
3,587
30,268
27,360
Charitable a¢tivitie8
Research
Support Neiwork
Awareness
21
42
42
8.000
8.500
10.000
8.021
8.542
10.042
23,150
12,750
Other income
Total
EXPENDITURE ON
Charltabl• 4ctlvlll•s
Research
Support Network
Awareness
6,474
18,045
6,474
49,832
7,376
21,831
31.787
Tot•1
NET INCOMEI(EXPENOITUREI
18,876>
(11,700)
(20,576)
24,190
RECONCILIATION OF FUNDS
Total funds brought ft)Thrnrd
66.389
51,978
118,367
94,177
TOTAL FUNDS CARRIED FORWARO
Page 6

Balance Sheèt
31 March 2023
31.3.23
31.3.22
Notes
CURRENT ASs￿s
Debtors
Cash at bank
10
6.565
96,028
10.912
108.259
102,593
119.171
CREDITORS
Amounts falling due within one year
11
14.802}
18041
NET CURREfrif ASSETS
118367
TOTAL ASSETS LESS CURRENT
LIABILITIES
97.791
118,367
NET ASSETS
118367
FUNDS
Unrestr￿ted funds
Reslricled funds
13
57.513
66.389
TOTAL FUNDS
The financial statements were approved by the Board of Trustees and aulhorised for issue on 30 January 2024
and were swned on its behalf by..
Sharon Allsopp- Trustee
The notes fo￿￿ part of Ilwe fmanoal state11￿ts
Page 7

Noonan Syndrome Association
Notes to the Financial Statèments
forthe Year Ended 31 hlareh 2023
ACCOUNTING POLICIES
Basi5 of preparing the financial statements
The financial statements of the charity. which is a publ￿ tenefit entity under FRS 102. have been
prepared in accordance with the Charities SORP IFRS 102) 'Aceounting and Rewrting by Charities."
Statement of Recommended PractKe applicable lo charities preparing their accounts in accordance
vrith the Financial Reporting Standard appI￿able in the UK and Republic of Ireland {FRS 1021 {effective
1 January 20191.. Financial Repo￿"n9 Standard 102 'The Financial ReFJOrting Standard appltcable in
the UK and Republic of Ireland. and Ihe Charities Act 2011. The finanryal statements have been
prepared under the historical cost convention.
Income recognition
All income is recognised in the Statement of Financial Activit￿ once the charity has entittement to the
funds, it is probable that the income will be received and the amunt Can be measured reliably.
Expenditure
Liabilities are recognised as expenditure as S￿)n as there is a legal or Constn￿"Ve obligation committing
the charity lo that expenditure. it is probable that a transfer of economK benefits will be required in
settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on
an accruals basis and has been classified under headings that aggregate all cost related lo the category.
here eosls cannot be directly attributed to part￿lar he￿ing$ they have been allocaied to activities
on a basis consistent with the use of reSoUr￿s.
Grants offered subject to condibons whKh have not been met at the year end date are noted as a
mmitrnenl not accrued as expenditure.
Taxation
The charity is exempt from lax on its Charitab￿ acbvities.
Fund a¢¢ounting
Unrestricled funds can be used in accordance with the ¢haritable objecb'ves at discretion of the
Injstees.
Resth"cted funds can only be used for parttcular restricted purposes within the objects of the charity.
Restrictions ar￿ when specified by the donor or when fvnd5 are raised for particular restri¢ted
purposes.
Further explanakn.on of the nature and purtKse of e&h fund is included in the notes to the financial
ststeff￿nts.
DONATIONS AND LEGACIES
31.3.23
31.3.22
Donations
Gift aid
27,341
24.593
2.767
27.360
Page 8
coniinued...

Noonan SY￿lf0￿? Association
Notes to th• Flnanclal Statements - continuod
far the Year Ended 31 March 2023
INCOME FROM CHARrfABLE ACTIVITIES
31.3.23
31.3.22
Activity
Reseaffh
Support Nelwork
Awareness
Grants
Grants
Grants
8,021
8,542
10,042
23,150
12,750
26,605
Grants received. included in Ihe above. are as foll1￿..
31.3.23
31.3 22
Novo Nordisk Limited
Novacyl Group
Sense - The Natiional Deafblind and Rubella Association
St Geor9e's Hospital Charity
10.105
10.900
25.000
8.500
8,000
35.900
CHARITABLE ACTIVITIES COSTS
Direcl
Costs Isee
note 51
Support
costs {see
note 71
Tol81$
Research
Support Netsvork
Awareness
6,141
49,166
23,502
333
666
666
6.474
49.832
78,809
80.474
DIRECT COSTS OF CHARITABLE ACTIVITIES
31.3.23
31.3.22
Telephone
Postage and stationery
Promotional material
Sundries
Family day
Travel expenses
Computer & IT support costs
Charity Manager
Administration costs
479
1,333
1.035
668
878
35,635
187
14,957
18,783
2,080
2,394
20,270
26.556
Page 9
continued...

Noonan Syndrom• A8•ocialion
Noies to the Finpncial Stst¢ments- ¢ontlnued
for tl* Ye•r End¢d 31 IAar¢h 2023
GRANTS PAYABLE
31.3.23
31.3.22
Research
Support Network
3.150
The total grants paKI to institutions duriThJ the year vras as foll(yws:
31.3.23
31.3.22
G￿1 OrrTrJnd Street Ho$￿tal
Loughborough UnNersity
7,743
SUPPORT COSTS
costs
Re8ear¢h
Support Nebwork
Awareness
333
Activity
Management
Governance costs
Basis of allocation
Based on time
Based on time
TRUSTEES, REMUNERATION AND BENEFrrs
There were no trustees, ￿mUneratiOn or other benefits for the year ended 31 March 2023 nor for the
year ended 31 March 2022.
Trust•••' Ox￿￿￿0$
During the year no trustees were Rimbursed for travelliw expenses12022 - nill.
COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES
unrestn.thd
nd
Restricled
fvnd8
Total
funth
INCOME AND ENDOWMENTS FROM
Donations and lega¢ies
27,060
27.360
Charltable actlvllles
Research
Supp)rt Nefvk
23,150
23.150
Total
EXPENDITURE ON
Page 10
continued...

Ilot•s to th• Flnan¢lal Ststemwlts. eontim*d
forthè YèarEnd•d 31 Ilarch 2023
COMPARATIVES FOR THE STATEMEKf OF FINANCIAL ACTivrriES- contlnu•d
Unreslrthd Resln"¢X&J Tolal
fuThJs
Charltable actlvltl•s
Research
Supwt Net*
3.150
7,743
7,376
21.831
14,088
9.863
Total
28.177
10,893
39,070
NEf INCOMEI(EXPENDITUREI
{1.1171
25.307
24,190
RECONCIUATION OF FUNDS
Total fund$ brought forwanl
67.5L
26.671
94.177
TOTAL FUNDS CARRIED FORWARO
66,389
51,978
118.367
10. DEBTORS: AIKIUNTS FALUNG DUE WITHIN ONE YEAR
31.3.23
31.3.22
Accrued inc4
Prepayments
5,599
2,652
8.260
6.￿5
10.912
11. CREDITORS: APKIUNTS FALUNG DUE WITHIN ONE YEAR
31.3.23
31.3.22
Trwje r￿Jbt0
3.902
4,802
12. ANALYSIS OF NET ASSETS BETWEEN FLINDS
31.3.23
31.3.22
To￿1
ftjnds
unl￿￿1 Restrithd
Trj
Current 8ssets
Current liabilrt
f2,315
14.8021
40,278
102.593
14.8021
119,171
18041
57,513
40.278
97.791
118,367
P4e11

Noonan Syndrom• A$S￿latIon
Notes to the Flnancial Statements- continuèd
for the Year Ended 31 March 2023
13. MOVEMEKf IN FUNDS
Net
mo%*ment
In funds
At
31.3.23
At 1.4.22
Unrestricted funds
General fund
86.389
18.876)
57,513
Restricted funds
Noonan Syndrome Research Fund
Families Evènl
The Andiew Famity Research Fund
Supwrt costs
21,955
20,000
10,016
8.300
120.000)
30.255
10.016
51,978
(11,7001
40.278
TOTAL FUNDS
118,367
120.S761
97.791
Net rr￿rne￿l in lunds. included in the above are as foll¢M'.
Incomlng
resources
Resources
expended
Mo¥¢mgnt
in fund$
Unrestrlcted funds
General fund
29,811
{38,687}
{8.876)
Restricted funds
Noonan Syndrome Research Fund
Families Evgnl
Support costs
Awareness
8,300
8,500
3.287
10,000
128.500)
(3,287)
110,000)
120.0001
30,087
(41,7871
111,71XI)
TOTAL FUNDS
59,898
(80.4741
120.576)
Comparatives for movement In funds
movement
fin fuThas
Al 1.4.21
31.3.22
Unrestrfcted funds
General fund
{1.1171
66.389
Restricted funds
Noonan Syn(Irome Research FurKI
Families Event
The Andrew Family Research Fund
Support costs
1,655
15,000
10,016
20,300
5,000
21,955
20,000
10,016
26.671
25.307
51,978
TOTAL FUNDS
94.177
24,190
118.367
Pa9E12

forthe Year Ended 31 ￿•￿h 2023
13. MOVEMEwf IN FUNDS- contlnued
Unrestricted fundy
General fund
27.¢AO
P8.1771
(1.1171
Restricted funds
Noonan Syndrom8 Research FuTrl
Families Event
The Atxlre4V Famity Research FUNJ
Sup1￿ costs
20,300
3,150
7,750
{3.1501
17.7431
36.2CKI
(10.8931
25,307
TOTAL FUNDS
63,260
(39.0701
24,190
The Andrew Famdy Rese*ch F￿￿1.
This is to fund ￿search to No)nan Syndrcrfre.
14. RELATED PARTY DISCLOSURES
During the yew the trustees rn* dC￿a￿r￿S to tr* Iijtallw £1.590 2022: £2.181).
Page 13

Noonan Syndrom•A8Boclatlon
Oetalled Ststem¥nt of Flnon¢lal A¢tlvltte#
lorthe Year Ended 31 March 2023
31.3.23
31.3.22
INCOME AND ENDOWMENTS
Oonations and legacle8
Donalior
Gift aid
27,341
2.927
24,593
2,767
30,268
27.360
Charltable acthiltles
Grants
26,605
35,900
Othèr Income
Other Incorn
3,025
Total Incomlng rn8ource•
59.898
63280
EXPENDITURE
Charttable actlvltle•
Telephone
Postage and 81altonery
Promotlonal material
Sundrie8
Famlly day
Travel expenses
Compuler & IT supporl Gosls
Charity Manager
Adminislralion costs
Grants lo inslilulions
479
1.333
1.035
878
35,635
187
14,957
18.783
6.686
2.394
20,270
10,893
78,809
37,449
Support Gosts
Govern•nce Costs
Indemnrty insurance
Accountancy and legal fees
669
996
733
888
1.665
1.621
Total resourc&s expended
80.474
39.070
Net {expendlture)llncome
{20,5761
24,190
This page dc¢s not lorm Fort Of1￿ statutory financial Btatemenis
Page 14