Noonan Syndrome Association
Nsa
- Country
- England & Wales
- Charity number
- 1140671
- Status
- Registered
- Registered
- March 3, 2011
- Legal form
- Other
Address
- Address
- The Marshal Room
23-25 Old Row
Whalley Road
Barrow
Clitheroe
Lancashire
BB7 9AZ
Contact
- Phone
- 07359 474430
- [email protected]
- Website
noonansyndrome.org.uk
Activities
The SUPPORT of those affected by Noonan Syndrome and related conditions (on the Ras/MAPK Pathway) by events, social media, publications etc.RESEARCH to advance improvements in understanding and in the care and management of those affected or at risk.RAISING AWARENESS of the condition
Objects: The Relief Of All Persons Affected By Noonan Syndrome By All Or Any Of The Following Means:-1) The Facilitation And Promotion Of Research Into The Causes, Effects, Diagnosis, Treatment And Relief Of Noonan Syndrome With The Useful Results Of The Research Being Disseminated For The Benefit Of The Public;2) The Provision Of Facilities, Financial Aid, Advice And Support Services For Persons Suffering From Noonan Syndrome, Their Families, Dependants And Carers, Including The Families And Dependants Of Those Who Have Died From Noonan Syndrome And Pregnant Mothers Where IT Is Believed That Their Child Is In Danger Of Being Born With Noonan Syndrome; And3) By Advancing The Education Of The Public In Relation To The Effects Of Noonan Syndrome By Communicating Reports And Disseminating Information By Any Means Or Media Concerning Research Work And Studies Undertaken By Or On Behalf Of The Charity.
Classification
- How
- Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, People With Disabilities
Areas of operation
- Country
- Northern Ireland, Scotland
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| March 31, 2025 | £48,067 | £81,393 |
| March 31, 2024 | £30,427 | £48,332 |
| March 31, 2023 | £59,898 | £80,474 |
| March 31, 2022 | £63,260 | £39,070 |
| March 31, 2021 | £66,296 | £32,321 |
Trustees
| Name | Appointed |
|---|---|
| Andrea Dawn Reid-Kelly | Nov. 20, 2017 |
| Andrew Peter Thomas Milne | Jan. 24, 2026 |
| Danielle Burnett | Jan. 24, 2026 |
| David Beatty | Jan. 24, 2026 |
| Dr Emma Burkitt-Wright | July 13, 2024 |
| Grayson Colin Bowler | May 18, 2020 |
| IAN ALEXANDER LEGG BAHon ACIB | |
| Jeanette Dyer | May 18, 2020 |
| Sharon Louise Allsopp | Jan. 18, 2014 |
| Susan Miller | Aug. 13, 2024 |
Nearby
- Friends Of Barrow School 0.0 mi
- Ribble Valley Gymnastics Academy 0.0 mi
- The Sir Frederick Hindle Lectures 0.2 mi
- Oakhill College Charitable Trust 1.0 mi
- Oakhill Association 1.0 mi