# THE ANNABELLE ROSE FOUNDATION FOR SPINAL MUSCULAR ATROPHY

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1139272
- **Other names:** THE ANNABELLE ROSE FOUNDATION
- **Status:** Registered
- **Legal form:** Other
- **Registered:** Dec. 8, 2010
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1139272


## Contact

- **Address:** 5 Reeve Road, Stansted
- **Postcode:** CM24 8SJ
- **Phone:** 0300 800 0762
- **Email:** contact@annabellerosefoundation.co.uk
- **Website:** www.annabellerosefoundation.co.uk



## Activities

**Objects:** THE OBJECTS OF THE ANNABELLE ROSE FOUNDATION SHALL BE:(I) THE RELIEF OF PERSONS SUFFERING FROM SPINAL MUSCULAR ATROPHY AND RELATED CONDITIONS.(II) THE RELIEF IN CASES OF PSYCHOLOGICAL AND EMOTIONAL DISTRESS OF THE PARENTS AND GUARDIANS AND OTHER RELATIVES OF SUCH PERSONS OR OF SUCH PERSONS WHO ARE DECEASED.(III) THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF SPINAL MUSCULAR ATROPHY SUBJECT TO THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH

**Activities:** We support sufferers of sma and their families however we can, in line with our objectives: e.g. funding for car/home adaptations, funding specialist medical equipment and toys, financial support, help and support with funeral costs/arrangements, as well as providing emotional support for the families affected by the condition and donating money to fund research.




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Other Finance, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies



## Geography

- **Area of benefit:** NOT DEFINED IN PRACTICE NATIONAL
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **WAYNE DANIEL BURFITT** | Chair |  |
| Charlotte Burfitt |  |  |
| DANNY WEBSTER |  | Sept. 13, 2013 |
| GREG CHRISTOPHER TAYLOR |  |  |
| MICHELLE WEBSTER |  |  |
| NATALIE CHAROLTTE TAYLOR |  |  |
| PETER JACKSON |  | Oct. 30, 2012 |
| SOPHIE Jackson |  | Oct. 30, 2012 |
| joanne McBride |  | Feb. 10, 2019 |




