# SAMUEL HARDGRAVE HARLEQUIN ICHTHYOSIS RESEARCH TRUST (S.H.H.I.R.T)

## Details

- **Country:** England & Wales
- **Charity number:** 1139061
- **Other names:** S.H.H.I.R.T
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** Nov. 17, 2010
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1139061


## Contact

- **Address:** 95 The Mount, Coulsdon
- **Postcode:** CR5 2PW
- **Phone:** 02086608673
- **Email:** Adam.Hardgrave@shhirt.org.uk
- **Website:** www.shhirt.org.uk



## Activities

**Objects:** THE TRUSTEES MUST APPLY THE INCOME OF THE CHARITY IN FURTHERING THE FOLLOWING OBJECTS (THE OBJECTS)THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH FOR THE PUBLIC BENEFIT BY PROVIDING FUNDING FOR RESEARCH PROJECTS UNDERTAKEN AND SPONSORED BY CONSULTANTS AND OTHER CLINICIANS IN HARLEQUIN ICHTHYOSIS  AT ST  THOMAS' HOSPITAL AND BARTS HOSPITAL IN LONDON (AND ANY OTHER HOSPITAL/CONSULTANT PROVIDING SPECIFIC RESEARCH FOR THE DISEASE) AND PROVIDING OR ASSISTING IN THE PROVISION OF EQUIPMENT AND SERVICES FOR THE NEONATAL INTENSIVE CARE UNIT (NICU) AT ST THOMAS HOSPITAL AND THE RONALD MCDONALD HOUSE , WHICH PROVIDES PARENTS WITH FREE ACCOMMODATION WHILST THEIR  CHILD IS IN THE EVELINA CHILDREN'S HOSPITAL (IN ST THOMAS' NICU). ('THE OBJECTS')

**Activities:** Charity raises funds through UK organised events such as the Brighton Marathon, London Marathon, London Triathlon, and Great South Run.  As a charity we also run our own annual Pro-Am Golf Day and quiz night.  We also raise funds through one-off small scale events such as cake sales, dress down days and awareness days and we recycle various items such as ink cartridges, CD/DVD's and mobile phones.

**Area of benefit:** LONDON,




## Classification

- **How:** Makes Grants To Organisations, Provides Other Finance, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups, The General Public/mankind



## Areas of operation

- Bromley
- City Of London
- Croydon
- Essex
- Hampshire
- Peterborough City
- Sutton



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Aug. 31, 2025 | £0 | £0 | — | — |
| Aug. 31, 2024 | £0 | £0 | — | — |
| Aug. 31, 2023 | £0 | £0 | — | — |
| Aug. 31, 2022 | £509 | £3040 | — | — |
| Aug. 31, 2021 | £9584 | £12500 | — | — |



## Trustees

- ADAM ROBERT HARDGRAVE — appointed Oct. 3, 2011
- JAMES LESTER BERRY — appointed Oct. 3, 2011
- JAMIE HARDGRAVE
- Jon Small — appointed Nov. 1, 2014
- MATTHEW EDWARD BIDWELL — appointed Oct. 3, 2011
- ROLAND BURTON