REGISTERED COMPANY NUMBER: 7339522 (England gnd Wales) REGISTERED CHA]UTY NUMBEIL. England and Wal&s 1137820, Scotland SC047369 REPORT OF THE TRUSTEES AND UNAUDTfED FINANCIAL STATEMENTS FY)R THE YEAR ENDED 31ST MARCH 2024 FOR A COMPANY LIMITED BY GUARANTEE ChaTiOt Ho￿e Limited 44 Grnnd Parade Brighton E&st Sussex BN2 ￿￿A A COMPANY LIMITED BY GUARANTEE COIYfENTS OF THE FINANCIAL STATENfENrs FOR THE YEAR ENDED 31ST MARCH 2024 Page Chair's Report 202>24 Report ofthe Tn 2 to 12 Independent E￿mIner'S Report 13 Statement of ￿nancIal Activities 14 Balance Sheet 15 to 16 Notes to the FinAnclal Ststements 17 to 24 Detsil¢d StAtement of Knan¢ial Activities 25 to 26 RETT UK A COMPANY LIMITED BY GUARAKTEE CHAIR'S REPORT 2023-24 FOR THE YEAR ENDED 31ST MARCH 2024 I would like to start with thanking the Rett UK team who continue to an 2m82ing job. the Rett Community and all those that have supported the clwity ovff the last year. l am writing this as the f￿al pr¢pRrations att being made for the Rett UK Family Weekend being held in Northampton in October 2024. It has been a long time since we organised a in person event of this 5caJ4 but with the Covid-19 pandemic now finnly behind us, the time felt right for a big evenL Rob and the whole team have pulled out all the stops to prepare a bigger, b¢tter and entirely free weekend (thanks to our spotL8ors and a very suc(xsful Big Give campaign). l know that the programme will showcase and celebrdte all &spects of the charity's work from family support to cornmuni¢ation workshops and the latest update5 on gene therapies and treatmen1& But even more imw)rtanL it will be a chance for the Rett Community to Come together in person to learn from and w one anothu. If. lik¢ m4 you are unable to atten¢ then look out for the reports on our website and in Rett News. Just as the staff team have had a busy year, so also it h&8 been an eventful twelve months on the Board. Much effort went into preparing a n¢w Strategi¢ Plan, we have made giKMI progress reviewing and updating our policies and procedures and we have managed to maintain a healthy finan¢iaI position in a challenging economic environmenL In facL we have been so successful at fimd-rdising that we are Lwrying more reserves than we ideally should This has enabled us to invest in support functions such as rr and the website. but in the year ahead we are planning more significant investments in frontline activities such as expanding our family support team under Julie's leadership and purcha5in8 new eye-gaze devi¢es to replace our ageing devices which loaned to Rett families as part of the critical LX)mmunication support we provide. I am very grnteful for all the fundraising activities that hav¢ been going on this year giving us the financial base to enable this to happen (and to th)nna for her unstinting efforts to provide administrative support to all our intrcpid fillthiscrs). The Board of TnLStees compri￿ 12 tslcntcd and ￿Mmitted iTrlividuais and I would like to thank each one of them for their contributions thts year. W¢ have a great balance of skill ￿ a mix of youth and cxperienK a good gender balance and a healthy mix of people with and without dirert family experi¢n¢e of Rett syndrome. It h&$ been thrilling this year to have Romi Loffler join us - the fi￿t person with Rett syndrome to join the Board. The Board has had to l¢arn new ways of working so th* Romi can fully and equally participate at Board meetings, which has ultimately improved the way it works. Romi's insight into what it means to live with Rett is really valuable. It is a tremendo￿ testament to Romi. her parents and her communication parthers. that this h&s been at all ￿ssible. Hers is a ma￿elloUS example of people with Rett syndrome fulfilling their I￿ntIal. As a charity we aim to help supp)rt every person with Rett synthDme to discover and fulfil their own potential. recognising that this is differart for each prnn. Onwards and upwants into another yearT Page I RETh UK A COMPANY LIMfTED BY GUARAiwfEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31ST MARCH 2024 The truste&s who are also directors of the charity for the purw)ses of the Compgnias Act 2006, present their report with the financial ststem¢nts of the charity for the year ended 31st March 2024. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Reo)mmended Practice applicable to charities preparing their acwunts in a¢¢ordance with the Financial Reporting Standard applicable in the UK and Republi¢ of Ireland (FRS 102) (effective l January 2019). Objectives and aim$ About Rett Syndrome Rett syndrome is a progressiv¢. neurodevelopmentai disorts. Rett syndrome is caused by mutstions in the MeCP2 gene that lead to a deficiency of the methyl cytosine binding protein 2 (MeCP2), an imp)rtant protein wnsible ft)r nornial function in the brnin and other parts of the n¢rvous system. MeCP2 mutations much more commonly affect females, as the gene is found on the X-chromosome (whi¢h females have 2 LX)pies of, whilst mal&s only have l). Rett syndrome h&8 an estimated worldwide incidence of l out of every 10,(KM>15.000 live female births making it one of the most common genetic causes of developmental and intellectual impairment in females. The Inciden￿ in males is currently unknown. People with Rett syndrome typically have nornul development up until &18 months of ag¢ but then experi¢n¢c rapid regre&sion of previously acquired milestones including speecR4 gross and fine motor skills. and develop stereotypical. repetitive hand movements that prevent them from purpM)5efui hand function. (￿er time people with Rett syndrome may develop muscle ¢ontrdCtures, rigidity, and debilitsting scoli(tsi4 along with periods of recurre￿ seizure% burdensome 8astrointsstinal abnornialities and breathing abnornMliti¢& Objectives And aims Our purpose... Rett UK is a national charity dedicated to supporting and empowering people with Rett syndrome. their families and those involved in providing their care. We are a manbership orwusation and welLX)me members from the UK and abroad. Our strategic ain￿ are to ... - provide professional family-support s¢rvices activities and events at a regional and national level - educats health. social care and education professionals aL*Jrt Rett syndrome to ￿able quicker di48nosis and improved stsndards of care throughout th¢ UK - advocate for people with Rett synthY)me to be given the supwAt and resources needed to be active communiL7tors - promote, support and encourage research into new therapies and treatments for Rett syndrome Our VASlOn... That everyone with Rett syndrome is given evffy possible OPWtimty to achieve their individual p￿tial so that they may live their life to the full. RETT UK A COMPANY LIMITED BY GuARA￿rEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31ST MARCH 2024 ORJECTIVES D AcfiviTIES Publie belleflt In shaping our objectives and planning our activities for the year, the Trustees have given consideration to the duties set out in section 17(5) of the Charities Act 2011 to have due regard to public benefit and to the Charity Commtssion Guidance on public benefiL Jn particular. the T￿￿eeS have considered how the planned acttvities will contribute to the overall aims and objectives that they have seL The Trustees believe that the Parngr￿￿ specifically on 'Athievements and Perfornwj￿" for the year. relate in detail the benefit that the charity provides to the publiG Pag¢ 3 RETf UK A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRusfEES FOR THE YEAR ENDED 31ST MARCH 2024 ACHIEVEMENT AND PERFORMANCE Charitable aetivities This has been a very positTve year wh¢Te we have r¢mained committed to consistently providing great quality support to our families and the Rett community. Over the past year we have rolled out numerous SU¢LY&sful proje¢t4 including our onlin¢ conference which saw record attendance. Our engagement has extended to attending a multitude of mettings, where we*e been able to stand beside families during their most difficult moments, offering Steth advoca￿ Suppo￿ We also continued to conne¢t families with a network of Rett professional4 fosterin8 comie£tions that might otherwise never have been made. We end the year with a defi¢it of£12.679 and a L￿h balance of£217,533 at 31 Marth 2024. Conne¢ting Families and Reduting Isolation Our Family Support service remains the primary point of contact for individuals affected by Rett syndrome. The demand for assistance continues to surge, with an increasing number of families initially reaching out through social media platfornjs and subsequently becoming members. thereby gaining 8L*e&s to the filll spe(*nrn of support services we offer. Each quarter withesses an ov¢rwh¢lming ¢n8agemenL totalling more than 80(FF interactions with family members. These interactions encompass calls to our helpline, communications via our support mil, direct correspondence. responses ¢)n FacebooK WhatsApp, Twitter, Insts￿ and Facebook Me&wger. These points of contact serve diverse puryx)$4 ranging from scd(ing infornwtion about Rett syndrome or specifi¢ symptoms to emotionally ¢harged calls from families grdppling with a new diagnosis. As their intensity and duration vary, our dedI￿d family support team is equipped with extensiv¢ skills and training to th each rall effectively. Th provide comfor¢ empathy, guidanc4 advi4 and pertinent inf0rn]atA0￿ underst￿1￿ the unique needs of every individual who reach￿ out to us. The demand for our s¢rrfices continues to ww. and we are comnlltted to meeting it by LX)ntinuaily bolstering our resources and ex￿rtiSe wherever necessary. Fgmfily Support A key challenge we faced this year has been the lengthy process involved in receiving genetic test results. While the increasing use of whole genome testing by paediatricians is a p)sittve step fonvar4 providing a more comprehensive identification of 8eneli¢ defecty it has led to extended waitin8 tim4 often rangin8 from 12 to 18 months. This delay has understandably caused significant distress for many familie& To help ease this burde￿ we have been advocating for clinicians to consider clinical diag005es based on patient symptoms and ¢stablished crit¢ri4 offering a possible solution while awaiting genetic confirn]ations. Rett UK Onlin¢ Conference 2023 The team delivered an outstanding event this year, with ovu 850 registrations and 798 attendees across nearly 50 sessions. We hosted 33 speaker4 and all tslks were meticulously hand-subtided thr accessibility. The evenvs success has been reflected in the excellent feedback and engagement we've receiv4 &8 well as the ongoing ￿ngagement with our services. Our marketing team wtll continue to promote the recorded talks to e￿sure sustained engagemenL RETh UK A COMPANY LIMrrED BY GuARA￿E REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31ST MARCH 2024 Dydtabase We successfully laun¢hed our datsbase proje¢t in January> thanks to fimding from CAF. and it has already Start￿ delivering tangible benefits. While there were a few initial challenge4 our ongoing monthly collaboration with our database provider, has helped r¢solve legacy data i&sues and ensure that all rew)rting features are fi￿lY aligned with our needs. In addition, we arc running complementary projects to further enhance the system's efficiency and functionality. One exciting development is the integrntion of an Outlook plugin. allowing seamle&8 communication to be directly added to the datsbase. This ha5 significantty improved our sffvice quality and streamlined opaations ￿blIng us to Off￿ even bdtff support. Research Partnership wlth Reading University & Gill Townend We have now embarked on a three-year proje¢t tn parthership with Reading University. Gill will be working with a group of speech and language therapy students from the university for one day every weeL Together, they will conduct targeted research to improve the effectivene&8 of our communicatio￿$ effo￿. Initially> our focus will be on the Communications Professionals NetworK and we aim to provide SUp￿rt to our Regional Communication Coordinators (RCCS). Communleation Prof4s8ionAls Nehvork The Communication Professionals Network establish￿1 with the b￿kIng of Rett UK'S proficient Communication and Education team, continues to thrive. This dynamic network ￿ to professionals engaged with individuals having Rett syndrome. regardless of their settin& age group. level of expertis4 or geographical location within the UL Membership to thls invaluable netwo￿ involves a one-time enrolment f4 granting aGL￿ to a wealth of ex¢eptionaJ resources and tcam-backed suppor¢ ¢omplement¢d by the provision of comprehensive communication guidelines. Alongside these benefits, each member receiv¢s a copy of the ￿MMUnication guidelines as a valuable reference. Explore the network's offerlngs and com)e¢t with I1￿mInded professionaIs at www.r&tuk.o@CPN. Trust And Foundatlons Trsin¢e We are delighted to share that we welwmed a new team member to Rett UK this year. Cherie Hunter has joined us as a Trainee Trust and Foundation Fundraiser. Cherie will be collabornting closely with Becky to gain a deep understanding of the role. Her passion for our mission is deeply personal. having experieneed our support firsthand when we &ssisted her family and her late sister, Charlotte. We are confident that Cherie's personal ￿miectIon to Rett UK will provide her with a unique pUs￿1v4 enbancing her contribution to the team. European Congra8 in MarseRUe The Rett Syndrome A&80¢iation of Fr8nrK hosted the 2023 European Congress in Marseillc on the 7th and 8th of October. This marked the first major in-perwn event for many of us in the last five years, and knth Abigail and I were honored to Day l of the 7th European Rett Syndrome Conference provided valuable uk%Jates on rare disease str8tegieg. clinical trials. and the lat¢st discoverics in Rett Syndrome resear¢h. Kry topia8 included epilepsy managemenL breathing difficulties, and the daily ¢hallenges f&ed by those living with Rett syndrome. We also explored technol0￿C41 advancements in Augmentative and Alternative Communication (AAC) during the networking breaks. On Day 2, the focus shifte41 to innovative therapies, including discu&8ions on neurnl precursor L%ll therapy and the genetic detenninants of MECP2 reactivation. We delved into physical therapy practic4 communication guidelines, and cutting-¢dg¢ technologies. which all presented promising tools for improvin8 the quality of life for individuals with Rett Syndrome. The event was a rich source of knowledge and inspiration for ail attendees. Page 5 RETT UK A COMPANY LIMITED BY GUARAKTEE REPORT OF THE TRusfEES FOR THE YEAR ENDED 31ST MARCH 2024 Rett Syndrome Europe Event Satellite meeting 17th and 18th March. Angela Ruskin Universty Rett UK was delighted to parther with Rett Syn(Irome Europe for the first ever RSE Netwo￿ Support and Research meeting. The main meeting w&$ held in Budape& Hun8ary. satellite meetings were held simultaneously in the UK Netherlands, Se]bi4 Georgi4 Croatia and Turkey. The UK satellite event allowed us a fantastic opporttmty to generate fresh interest in Rett syndrome. both in tems of research and clini￿1 focus. We were thrilled to have a diverse group of attendees join us in person and remotely, including Students, researche￿ and professionals from Kings College Li)ndon and Cambridge University. Tog&her, we agreed on the following key priorities for the UL. - Maintaining the delivery of exceptional SUp￿rt services - Increasing awareness of Rett syndrome . Preparing the UK for potential futsjre treatsnents Loan Device Programme Our program has grown and evolved prof￿1OnalIY over the past year, offerin8 unique online supporL The loan program provides an initial 8-week ternL extendable up to 6 months. with dedicated assistance from a Re8ionaI Communi¢ations a)ordinator. We*e improved the loan guide pack to align with NHS fimding application readines4 ensuring effective tracking of progr￿ with Auw¢ntstive and AlteTnative Communication (AAC). Family FeedbAck" "l cannot tk7nk you apkl tk Rett UK team enough for your support in trialling the communication deviee. It htzs been Iife-chan￿ngf0r us, and ltrn thrilled to share that we recetved confirnlltiion today that thefundingfor the eqwi)ment has been approvedlll EHCP support Throughout the year. our committed team has seen a SI￿lfi￿t increase in demand for EHCP supporL We've assisted a large number of families with both new and ongoing EHCPS. broadening our services to include acting as expert advo¢ates during Annual Rcviews. Additionally. where possible. wdve extended our assistance to professionals in both specialist and mainstream school4 focusing on ¢(￿MUnIcation challeng&s and Rett syndrom¢. This growing demand highlights the essential need for our servitts. Many famili&9 are seeking clarity on EHCPS, their PUTpose, entitlementy and the various timelines involved. We￿e recognized a clear need for thorough 8uidanK as families often feel unsure about their role in influencing the content of documents. Friendship groups The adult (16+) friendship group is now att established part of our events calendar and continues to meet online on a monthly basis. W¢ continue to innovate in the gmups &s we continue to explore how we can work directly wlth people with Rett syndrom< to d¢velop adv(w skill4 and listen to what they tell u& wc see the members of this adult group as important contributors to helping us shape the seTvices and support we offer. Reglonal Communieation Champions We currently hold a monthly meeting for RCC discussio￿ supplemented by additional meetings when necessary. These additional meetings are primarily intended for providing training to create resources 8nd to offer assistance to the newly appointed RCCS. We are thrilled by the seam1￿5 integtation of the new members of the team and their remarkable level of engagement. The mentorship dynamic between the veterans and the new team members is proving to be efft¢tiv< as the newcomers have actively participated in resource 8eneTation and have also gained hands-on experience through their involvement in the loan program. Additionally, we continue actively seeking to expand our team of RCCS to 8T￿ that arc currently not Gove￿ in order to extend our reach and provide support to even more individuals affected by Rett syndrome. Page 6 A COMPANY LIMITED BY GUARANfEE REPORT OF THE TRUSTEES FOR THE YEAR ELYDED 31ST MARCH 2024 Communie8tion partner training This year, we revamped the Communication Partner training course to make it more intffactive and le&s content-heavy. The feedback has been overwhelmingly positive, with 10(P/o of participants finding all components helpful or very helpful and cxpresslng that they would recommend the course to others. We observed a noticeable increase in participant confidence between the two session& and three families reW)rt￿ significant improVem￿ts in their child's communication following the first session. Partnerships Alliances Campaigning and Awareness Raising As we maintsin our parthership with R£verse Rett under the RDA banner. we &knowledge the vital importancc of unity in the face of advancing medical and trchnological developments. Working together not only deepens our ¢ollective knowledge but also ensures thal as new treatments and technolo81&8 emerge, we are well-prepared to adapt effectively. This collaboration allows us lo stay at the forefront of suppo¢ ensurin8 that the entire UK Rett community fully benefits from these groundbreaking treaknents and innovation& Carer Poverty Coalition We joined 50 other members of the Carer Poverty Coalition in wrAting to the Chancellor ahead of the Autumn ststemenL urging him to provide unpaid carers and the people th¢y look after with the financial support they urgently need. Across the UK at least 5.7 million people care for a loved one who is older, disable4 or seriously ill. Yet despite the invaluable support they provid4 thousands are facing huge financial hardship, with 750/0 of those receiving Carevs Allowance struggling to make ends meeL Dtsabled Children's Parthership As members of the parthership, we were invofved in the following Lxmpaigns ov¢r the ￿u[Se of the year. #SEIWABetterMegsage - This campaign focusas on ensuring that the govermnenvs SEND refom programme creates a fairer, more acc￿sIble system of support for disabled ¢hildrer4 making services e&sier to navigate and obtain without #CiveItBack- A long-standing Lxnpaign that athlIE￿ the sI￿1fiCant underfimding of disabled children's health and care services, calling on the government to reinvest in vital service5 for these ¢hildrEn and families. #FailedADdForyotten - Following the pandemic. this campaign highlights the unprecedented delays in health and S￿la] care service5 for disabled Childre￿ calling for urgent improvements to addre￿ backlogs. DCP Manifesto - l£ading up to th¢ expected general electio￿ this manifesto calls for major wlitical parties to prioritise disabled Childre￿ advocating for the appointment of a Minister for Disabled Children and stronger accountability across the educatio￿ heald4 and social care systems. We are also now part of the newly rc-fonned Public Affairs Group Meeting which has a focus on tying to engage with politicians to get things achieved. This looks like it has got off to a good start with ¢ommitsnents from senior Labour party members willing to engage immediately. Rett UK is also a member of The Helplin￿ Partnethp. Genelic Alliance UK Embracing Complexity. The NVCO, Bedfordshire charnb￿ of Commewe. RETf UK A COMPANY LNITED BY GUARANTEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31ST MARCH 2024 NHS Clinics Our specialised Rett clinics operats across four lo￿tions. Cardiff. Manch¢ster, IL)nd0￿ and Nottingham. All clinics have returned to their regular schedule& with Manchester and Nottingham offering in-person appoinlments. IA)ndor4 on the other hand, has opted to continue conducting clinics virtually. a choice that has proven effectTve for familie5 scattered across the UK. This approach minimises travel-relatd disruptions for families and their chilthEn. The added advantage of observing the child in their familiar environment has yielded posttive r&8ults. In situations Whe￿ clinic team members deem an iTrperson me&ing necessary, such app)inknents will be 2rrange(L ensuring faL￿ts>face a&8essments for families. This service Proves invaluable for familias stn]ggling to find lo￿ experts with knowl* of this rare disordcr. We persist in exploring av¢nues to enhanL% the capabilities of these clini Rett UK remains dediLYted to making a meaniw itnpa¢t on families grappling with the daily Ch￿lenge$ posed by Rett syndrome. Our efforts encompass various dimension4 from aileviatin8 the isolation th&8e families often experience, to empowering them as effective advocates for their children. We focus on bolstering their emotional ￿SI11enCe. enhancing their overall well-bein& fostering positive intrd-family relationships. and ensuring they access the entitled benefits to optimi7£ their family's financlai stability. Through these initiatives, Rett UK is actively shaping a brighter firture for those affected by this devastating disor Page 8 A COMPANY LIMITED BY GUARANIEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31ST MARCH 2024 FThANc￿L RE￿Ew Principal thnding sour Rett UK is funded by donations from individuals. cOrE￿10nS and trusts. The Board of Tn]ste¢s reviews the funding to limit the exposure to any particular source of fimds. Where fimd5 are T￿e1ved from donors with a re5tri¢tion on their they are h¢ld in sep8ratc ￿strIcted funds. Investment policy and objectives The Finance Committ¢¢ will r¢wmtncnd aj￿ monitor the invcstm¢nt stnrt risk profile and priorities of the Charitys investments and for this purpose may seek appri)priate advice from an independent interniediary / advisor who is authorlsed by the FCA. Re(J)mmendations will be brought to the Board of Th￿teeS at the next meeting. The Finance Committee has delegated powers to authorise any nece&8ary urgent changc4 which will be circulated to The Board of Tnstees, norn]ally by mail, for ￿MmentIa8reeMent within 7 days. Rett UK'S investments currently comprise cash held on dqyosit with Hampshire BanL This enables easy and speedy aCC￿S to funds and refiects the Board's low risk approa¢h to investsnents. Reserves policy Rett UK has a p)licy of maintsining a genttal (or unrestricted) resffve of betwea) 3 and 6 rnonths, running COS￿ calculatsd against the current yeaes budgeted g¢n¢raI expenditure. The lower amount is to pmvide a safe margin for the security of Rett UK'S ongoing work. The higher amount is to ensure that are consistently disbursed towards the charitable objectives of Rett UL That range of general reserve also includes an awareness of the likely costs of ￿lUndanCY payments and other winding up Costs should Rett UK decide, or be forceinted by ordinary resolution and at ea¢h Annual General Meeting one-third of the Trustees rn￿$t retiT4 but may be reappointed. The present trustees may app)int new TnL8tees but those Trustees aprK)inted by the Trustees rn￿$t retire at the next Annual General Meeting. Prnspective members of the Board of Tn￿eeS are given a file of introductory papers including planning and strategic d￿vrnents and other relevant documentation. They will nomially attend at least one Trnstee meeting as an observer. Internal Control and Risk management The Board of Th￿tee5 is responsible for the charitys system of internal control and for reviewing its effectiveness. It acknowledges that such a system can onIy manage and mitigate risk rather than finally eliminate the risk of failure to achieve set objectives. The management of risk is delegated to th¢ CEO who has implemented a risk manwent policy and provides reports to Trusttts at ea¢h board meeting. Our systems of control include a threfryear B￿lnesS Plan written by the CEO and 8n Annual BudgeL Regular Consideration is given to monitoring the actual perfornwice against the budget and forecasts and to the fom]al delegation to spend within clearly defined limits. Having examined the major strategi4 businass and Operation￿ n￿e5 which the Charity faw the Board of Tntstees confirms that systems have been established to minimise organisationaI and financial risks. The Board of Thistees has established two sui￿￿)M￿tte4 each with S￿IfiC tcrn)s of reference and chaired by a member of the Board of Trustees. The Finance Committee. Chaired by the Treasurer, discusses and agree5 the annual b￿1get (including approving salary reviews) for approval by the Board of Trustees. It monitors the investment S1￿cture, risk profile and priorities of the charity's inveslments and for this PUryK)se may seek appropriate 8dvi¢e from an independent interniediary / adviser who is authorised by the FCA. It reviews the annual audit plan of the external organisation's Reserves, Policy and practice and makes appropriate r¢¢ommcndations to the Board of T￿￿. The Management Conunit*e reviews and discuw personnel and genernl nwwent issues before making recommendations to the Board of Tn￿ee9. It also h&$ responsibility thr reviewing the policies and procedures of Rett UK. the majority are Teviewed every three years with the exception of The Safeguarding Children and Vulnerable Adults Policy. The Finance Policy and The Reserves Policy which arc reviewed annually. Other PM)licies may be reviewed when a change in legislation or guidance necessitates IL Page 10 RE￿ UK A COMPANY LIMITED BY GUARAwfEE REPORT OF THE TRUSTEES FOR THE YEAR ENDED 31ST MARCH 2024 REFERENCE AND ADMINISTRATIVE DETAILS Registered Company number 7339522 (England and Wales) Registered Charity number England and Wales." 1137820 Scotland: SC047369 Rwstsred office Victory House Chobham Street Luton Bedfordshire LUI 3BS Trustee$ Mr M Britten Mr P R Gander Mr D A Rogerson Mr C R Beadl¢ Mts J Campobello Mr S Ledger Mrs P S Bardon Mr A Sadek (resigned 19n12023) E J Le-warde Indepelldent Examiner Dr Shona F Wardrop C.A Chariot House Limited Chartered Accountants 44 Grand Pajzde Brighton East Sussex BN2 9QA Page 11 RETT UK A COMPANY LIMITED BY GUARANTEE REPORT OF THE TRusfEES FOR THE YEAR ENDED 31ST MARCH 2024 REFERENCE AND ADMINISTRATIVE DETAIIS Bankers Metro Bank plc One Southatnpton Row London WCIB SHA HSBC Ballards Lane Church End Finchley ix)ndon N3 2BH Hampshire Trust Bank plc PO Box 74003 IL)ndon EC2P 2QR Cambridge & Counties Bank Chamwood Court 5b New Walk Leicestsr England LEI 6TE Patrons Yvonne Milne MBE Evelyn Glennie DBE Gloria Hunniford Jon Snow Victoria Murphy President Yvonne Milne MBE Vice President Lorna Jaffa Approved by order ofthe board of tswtees on 28th September 2024 and signed on its behalf by: 04Q50 Mr D A Rogerson . Tn Page 12 INDEPENDENf EXAMINER'S REPORT TO THE TRUSTEES OF RETT UK A COMPANY LIMITED BY GUARANTEE Independent examiner's report to the trustees of Rett UK (A company limlted by gugr8ntse) Cthe Company,) I report to the charity trust￿ on my examination of the accounts of the Company for the year end￿ 31st MarGh 2024. Responsibfilities gnd basis of Trport As the charity's trustee5 of the Company (and aIso its directors for the purwises of Lx)mpany law) you are responsible for the preparation of the ac￿￿nts in acLx)rdance with the requiMents of th¢ Companies Act 2006 (lhe 2006 Ad). Having satisfied myself that the aecounts of the Company are not required to be audited under Part 16 of th¢ 2006 Act and are eligible for independent examination, I rep)rt in respect of my examination of your charity's accounts as Lxried out under S¢ction 145 of the Charities Act 2011 Cthe 2011 ACV). In carying out my examination I have followed the DiRctions given by the ChaTity Commission under S￿tIOn 145(5) (b) of the 2011 ACL Independent examine￿$ ststemeDt Since your charity's gro&8 income exceeded £250,000 your e￿9M1fter must be a member of a listed b￿ly. I can confinn that I am qualified to undertake the examination because l am a membff of the Institute of Chartered Accountants of S¢otIan whi¢h is one of the listed bodie I have cornpleted my examination. I ¢onfirn] that no rnatt￿S have come to my attention in connection with the examination giving me ¢ause to believe: accounting records were not kept in rwt of the Company as Tcquired by Se£%ion 386 of the 2006 ACL. or the a¢LN)unts do not accord wlth those rewrds. or the accounts do not Comply with the accounting requirem¢nts of Sectis)n 396 of the 2006 Act other than any requirement that the accourt8 give a true and fair view whi¢h is not a matter LX)nsider¢d as part of an independent examination. or the a¢¢ounts have not been prepared in a¢￿)rdance with the Meth(￿ and principles of the Statement of Recommended Practice frir accounting and reporting by charities (applicable to ¢harities preparing their a￿OUnts in accordance with the Financial Reporting Stsndard applicable in the UK and Republic of Ireland (FRS 102)). I hav¢ no concerns and have ¢ome acro&q no other matters in connection with the examination to whTch attention should be drawn in this rew)rt in order to enable a proper Und￿5￿ of the accounts to be Mche(L Dr Shona F Wardrop C.A The InStit￿e of Chartered Accountwjts of Scotland Chariot House Limited Chartered A¢¢ount8nts 44 Grand Parade Brighton E&st Sussex BN2 9QA P8ge 13 REvf UK A COhtPANY LIMITED BY GUARANfEE STATEMENT OF FINANCIAL AcfiviTIES ILYCORPORATING AN INCOME AND EXPENDITURE ACCO FOR THE YEAR ENDED 31ST MARCH 2024 2024 Total funds 2023 Totsl funds fun