Company registration number: 07144171 Charity registration number: 1134499
## Myotonic Dystrophy Support Group
(A company limited by guarantee) Annual Report and Financial Statements for the Year Ended 31 December 2025
Community Accounting Plus Units 1 & 2 North West 41 Talbot Street Nottingham NG1 5GL
## **Myotonic Dystrophy Support Group**
## **Contents**
|Reference and Administrative Details|1|
|---|---|
|Trustees' Report|2 to 5|
|Independent Examiner's Report|6|
|Statement of Financial Activities|7 to 8|
|Balance Sheet|9|
|Notes to the Financial Statements|10 to 19|
## **Myotonic Dystrophy Support Group**
## **Reference and Administrative Details**
**Trustees** Michael Walker, Chair Claire McAlonan, Vice Chair Peter Ferrari, Treasurer Euan Cumming Linda Perry Dr Ami Ketley Dr Valeria Di Leo **Secretary** Michael Walker, Chair **Charity Registration Number** 1134499 **Company Registration Number** 07144171 **Registered Office** 19 - 21 Main Road Gedling Nottingham NG4 3HQ **Independent Examiner** Eva Stevens, employee of Community Accounting Plus Units 1 & 2 North West 41 Talbot Street Nottingham NG1 5GL
Page 1
## **Myotonic Dystrophy Support Group**
## **Trustees' Report**
The trustees, who are directors for the purposes of company law, present the annual report together with the financial statements of the charitable company for the year ended 31 December 2025.
## **Trustees and officers**
The trustees and officers serving during the year and since the year end were as follows:
Trustees: Michael Walker, Chair Claire McAlonan, Vice Chair Peter Ferrari, Treasurer Euan Cumming Linda Perry Dr Ami Ketley Dr Valeria Di Leo (appointed 16 May 2025) Rose Walton (resigned 16 May 2025)
Secretary: Michael Walker, Chair
## **Structure, governance and management**
## _**Nature of governing document**_
The charity is a company limited by guarantee and registered charity. It is operated under the rules of its memorandum and articles of association dated 02/02/2010. It has no share capital and the liability of each member in the event of winding-up is limited to £1.
## _**Recruitment and appointment of trustees**_
By personal invitations to those with appropriate skills, word of mouth.
## **Objectives and activities**
## _**Objects and aims**_
To support families and carers who are affected by Myotonic Dystrophy.
## _**Objectives, strategies and activities**_
Annual conferences; Patient information days; Regular newsletter; Local contact get-togethers; Information leaflets; Social Media; Website; Telephone Helpline.
## _**Public benefit**_
The activities mainly benefit those with and those affected by the condition.
The trustees confirm that they have complied with the requirements of section 17 of the Charities Act 2011 to have due regard to the public benefit guidance published by the Charity Commission for England and Wales.
Page 2
## **Myotonic Dystrophy Support Group**
## **Trustees' Report**
## **Achievements and performance**
2025 saw us once again holding two National Conferences.
We reversed the order from 2024 and held the Annual General Meeting in the South, taking place near Bristol. The Conference in the North was in October near Warrington.
These conferences are an excellent way for our members to meet other families affected by Myotonic Dystrophy and to meet professionals who willingly give up their time on a Saturday, to give talks and presentations, whilst mingling with the members.
In addition to this, the Trustees organised two Patient Information Days. The format is different to the National Conference and the days are organised in collaboration with the local Neuromuscular Team. The Team supplies most of the speakers.
With the help of Dr Bob Ballantyne, the Specialty Doctor for Glasgow and West of Scotland, the first was held in the Spring, and took place at Cumbernauld, Near Glasgow. The second event took place in Croydon, South London, with the teams from St George’s Hospital, Tooting and King’s College, South London.
Again, this is allowing us to go to parts of the UK, where we have not previously held any events or National Conferences.
In total, the four events brought together over 400 delegates.
There will be a change in 2026, due to the International Conference (IDMC) being held at end of May in Canada, where most of our regular professional speakers will be participating. 2026 will see only one National Conference which will include the AGM.
We had several get-togethers in Newark, Wakefield, Swansea, Ipswich, Newcastle, Glasgow, Northampton and Oxford.
We did our best to increase awareness amongst the health professionals by having exhibition stands at the following conferences,
Anaesthetics Conference Paediatric and Child Health General Practitioners Conference
We continued to financially support the Registry in Newcastle, having increased our donation in 2024. With Cure DM Charity, we shared meetings with the Registry Team for its onward development. We attended the Cure DM Family Day at Chester Zoo and representatives from them came along to our conference in Warrington. We continue to develop a good working relationship with each other.
Page 3
## **Myotonic Dystrophy Support Group**
## **Trustees' Report**
## **Financial review**
The Trustees have undertaken a detailed budgeting process in order to best use the significant level of resources at our disposal. This has slightly reduced our overall reserves in 2025, as planned, and a programme of activities in 2026 is expected to reduce our reserves still further.
The Board continues to assess the ways in which our reserves could best be directed, so as to promote real outcomes to our members. In 2025 we donated various amounts for research purposes; introduced the new Grant Scheme for our members; and updated our computers and systems within the office.
We received a good level of legacy income during the year, but less than in recent years.
As an interim measure, we continue to invest funds with a number of regulated financial institutions in the UK so as to generate interest income for the Group. These investments are restricted to fixed term bonds and similar cash deposits.
The Support Group’s assets as at 31 December 2025 include Restricted cash balances of £85,367, which have been received for the express purpose of supporting research into Myotonic Dystrophy.
## _**Policy on reserves**_
Our current policy is to maintain reserves at a level equivalent to two years’ estimated expenses/running costs. At present this position is being maintained, and there is no need to make a change.
Our aim is to use the reserves we have on a gradual basis, into the medium and long term, rather than to use them all in one or two years (for example).
## _**Principal risks and uncertainties**_
## _Financial risk_
The Board considers that there are no material financial risks at the current time, given the financial reserves held and the absence of significant long term financial commitments. Income and expenditure levels are regularly monitored by the Board to ensure that our planned activities remain in line with the resources we have available.
Page 4
## **Myotonic Dystrophy Support Group**
## **Trustees' Report**
## **Statement of Responsibilities**
The trustees (who are also the directors of Myotonic Dystrophy Support Group for the purposes of company law) are responsible for preparing the trustees' report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice), including FRS 102 "The Financial Reporting Standard applicable in the UK and Republic of Ireland". The report and accounts have been prepared in accordance with the provisions in the Companies Act 2006 relating to small companies.
Company law requires the trustees to prepare financial statements for each financial year. Under company law the trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources, including its income and expenditure, of the charitable company for that period. In preparing these financial statements, the trustees are required to:
- select suitable accounting policies and apply them consistently;
- observe the methods and principles in the Charities SORP;
- make judgements and estimates that are reasonable and prudent;
- state whether applicable accounting standards, comprising FRS 102 have been followed, subject to any material departures disclosed and explained in the financial statements; and
- prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charitable company will continue in business.
The trustees are responsible for keeping proper accounting records that can disclose with reasonable accuracy at any time the financial position of the charitable company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
The trustees are responsible for the maintenance and integrity of the corporate and financial information included on the charitable company's website. Legislation governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.
## **Small companies provision statement**
This report has been prepared in accordance with the small companies regime under the Companies Act 2006.
The annual report was approved by the trustees of the charity on .................... and signed on its behalf by:
......................................... Michael Walker Company secretary and trustee
Page 5
## **Myotonic Dystrophy Support Group**
## **Independent Examiner's Report to the trustees of Myotonic Dystrophy Support Group ('the Company')**
## **Independent examiner’s report to the trustees of Myotonic Dystrophy Support Group ('the Company')**
I report to the charity trustees on my examination of the accounts of the company for the year ended 31 December 2025.
## **Responsibilities and basis of report**
As the charity’s trustees of the Company (and also its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 (‘the 2006 Act’).
Having satisfied myself that the accounts of the Company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity’s accounts as carried out under section 145 of the Charities Act 2011 (‘the 2011 Act’). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
## **Independent examiner’s statement**
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
1. accounting records were not kept in respect of the Company as required by section 386 of the 2006 Act; or
2. the accounts do not accord with those records; or
3. the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a ‘true and fair' view which is not a matter considered as part of an independent examination; or
4. the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities [applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)].
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
......................................
Eva Stevens, BSc, CPFA, employee of Community Accounting Plus member of the Chartered Institute of Public Finance and Accountancy (CIPFA)
Units 1 & 2 North West 41 Talbot Street Nottingham NG1 5GL
Date:.............................
Page 6
## **Myotonic Dystrophy Support Group**
## **Statement of Financial Activities for the Year Ended 31 December 2025 (Including Income and Expenditure Account and Statement of Total Recognised Gains and Losses)**
|**Note**
**Income and Endowments from:**
Donations and legacies
2
Charitable activities
3
Other trading activities
4
Investment income
5
Total Income
**Expenditure on:**
Charitable activities
6
Total Expenditure
Net (expenditure)/income
Net movement in funds
**Reconciliation of funds**
Total funds brought forward
Total funds carried forward
19|**Unrestricted**
**£**
68,781
2,610
31,127
26,751
129,269
(140,068)
(140,068)
(10,799)
(10,799)
774,926
764,127|**Restricted**
**£**
-
6,340
-
-
6,340
(43,674)
(43,674)
(37,334)
(37,334)
122,701
85,367|**Total**
**2025**
**£**
68,781
8,950
31,127
26,751
135,609
(183,742)
(183,742)
(48,133)
(48,133)
897,627
849,494|**Total**
**2024**
**£**
313,582
5,651
14,783
4,833|
|---|---|---|---|---|
|||||338,849|
|||||(128,492)|
|||||(128,492)|
|||||210,357|
|||||210,357
687,270|
|||||897,627|
All of the charity's activities derive from continuing operations during the above two periods. The funds breakdown for the period is shown in note 19.
The notes on pages 10 to 19 form an integral part of these financial statements. Page 7
## **Myotonic Dystrophy Support Group**
## **Statement of Financial Activities for the Year Ended 31 December 2025 (Including Income and Expenditure Account and Statement of Total Recognised Gains and Losses)**
## **These are the figures for the previous accounting period and are included for comparative purposes**
|**Note**
**Income and Endowments from:**
Donations and legacies
2
Charitable activities
3
Other trading activities
4
Investment income
5
Total income
**Expenditure on:**
Charitable activities
6
Total expenditure
Net income
Net movement in funds
**Reconciliation of funds**
Total funds brought forward
Total funds carried forward
19|**Unrestricted**
**funds**
**£**
313,582
3,195
14,783
4,833
336,393
(128,492)
(128,492)
207,901
207,901
567,025
774,926|**Restricted**
**funds**
**£**
-
2,456
-
-
2,456
-
-
2,456
2,456
120,245
122,701|**Total**
**2024**
**£**
313,582
5,651
14,783
4,833|
|---|---|---|---|
||||338,849|
||||(128,492)|
||||(128,492)|
||||210,357|
||||210,357
687,270|
||||897,627|
The notes on pages 10 to 19 form an integral part of these financial statements. Page 8
## **Myotonic Dystrophy Support Group**
## **(Registration number: 07144171) Balance Sheet as at 31 December 2025**
|**Note**
**Current assets**
Stocks
9
Debtors
10
Cash at bank and in hand
11
**Creditors: Amounts falling due within one year**
12
**Net assets**
**Funds of the charity:**
**Restricted income funds**
Restricted funds
19
**Unrestricted income funds**
Unrestricted funds
**Total funds**
19|**2025**
**£**
2,165
1,551
854,478
858,194
(8,700)
849,494
85,367
764,127
849,494|**2024**
**£**
3,283
1,481
900,222|
|---|---|---|
|||904,986
(7,359)|
|||897,627|
|||122,701
774,926|
|||897,627|
For the financial year ending 31 December 2025 the charity was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies.
Directors' responsibilities:
- The members have not required the charity to obtain an audit of its accounts for the year in question in accordance with section 476; and
- The directors acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and the preparation of accounts.
These financial statements have been prepared in accordance with the special provisions relating to companies subject to the small companies regime within Part 15 of the Companies Act 2006.
The financial statements on pages 7 to 19 were approved by the trustees, and authorised for issue on .................... and signed on their behalf by:
......................................... Peter Ferrari Trustee
The notes on pages 10 to 19 form an integral part of these financial statements. Page 9
## **Myotonic Dystrophy Support Group**
## **Notes to the Financial Statements for the Year Ended 31 December 2025**
## **1 Accounting policies**
## **Summary of significant accounting policies and key accounting estimates**
The principal accounting policies applied in the preparation of these financial statements are set out below. These policies have been consistently applied to all the years presented, unless otherwise stated.
## **Statement of compliance**
The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice (applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)) (issued in October 2019) - (Charities SORP (FRS 102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006.
## **Basis of preparation**
Myotonic Dystrophy Support Group meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy notes.
## **Going concern**
The financial statements have been prepared on a going concern basis.
The trustees assess whether the use of going concern is appropriate i.e. whether there are any material uncertainties related to events or conditions that may cast significant doubt on the ability of the charity to continue as a going concern. The trustees make this assessment in respect of a period of one year from the date of approval of the financial statements.
## **Exemption from preparing a cash flow statement**
Under the exemption available to smaller charities the Board of Trustees has chosen not to include a Statement of Cash Flows within the financial statements.
## **Income and endowments**
Voluntary income including donations, gifts and legacies that provide core funding or are of a general nature is recognised when the charity has entitlement to the income, it is probable that the income will be received and the amount can be measured with sufficient reliability.
## _**Donations and legacies**_
Donations are recognised when the charity has been notified in writing of both the amount and settlement date. In the event that a donation is subject to conditions that require a level of performance by the charity before the charity is entitled to the funds, the income is deferred and not recognised until either those conditions are fully met, or the fulfilment of those conditions is wholly within the control of the charity and it is probable that these conditions will be fulfilled in the reporting period.
Legacy gifts are recognised on a case by case basis following the grant of probate when the administrator/executor for the estate has communicated in writing both the amount and settlement date. In the event that the gift is in the form of an asset other than cash or a financial asset traded on a recognised stock exchange, recognition is subject to the value of the gift being reliably measurable with a degree of reasonable accuracy and the title to the asset having been transferred to the charity.
Page 10
## **Myotonic Dystrophy Support Group**
## **Notes to the Financial Statements for the Year Ended 31 December 2025**
## **Expenditure**
All expenditure is recognised once there is a legal or constructive obligation to that expenditure, it is probable settlement is required and the amount can be measured reliably. All costs are allocated to the applicable expenditure heading that aggregate similar costs to that category. Where costs cannot be directly attributed to particular headings they have been allocated on a basis consistent with the use of resources, with central staff costs allocated on the basis of time spent, and depreciation charges allocated on the portion of the asset’s use. Other support costs are allocated based on the spread of staff costs.
## _**Charitable activities**_
Charitable expenditure comprises those costs incurred by the charity in the delivery of its activities and services for its beneficiaries. It includes both costs that can be allocated directly to such activities and those costs of an indirect nature necessary to support them.
## **Taxation**
The charity is considered to pass the tests set out in Paragraph 1 Schedule 6 of the Finance Act 2010 and therefore it meets the definition of a charitable company for UK corporation tax purposes. Accordingly, the charity is potentially exempt from taxation in respect of income or capital gains received within categories covered by Chapter 3 Part 11 of the Corporation Tax Act 2010 or Section 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes.
## **Tangible fixed assets**
Individual fixed assets costing £5,000.00 or more are initially recorded at cost, less any subsequent accumulated depreciation and subsequent accumulated impairment losses.
## **Depreciation and amortisation**
Depreciation is calculated to write down the cost or valuation, less estimated residual value, of all tangible fixed assets with a cost exceeding £5,000 over their expected useful lives on a straight line basis.
**Asset class Depreciation method and rate** IT equipment 25% on a straight line basis
## **Stock**
Stock is valued at the lower of cost and estimated selling price less costs to complete and sell, after due regard for obsolete and slow moving stocks. Cost is determined using the first-in, first-out (FIFO).
## **Trade debtors**
Trade debtors are amounts due from customers for merchandise sold or services performed in the ordinary course of business.
Trade debtors are recognised initially at the transaction price. They are subsequently measured at amortised cost using the effective interest method, less provision for impairment. A provision for the impairment of trade debtors is established when there is objective evidence that the charity will not be able to collect all amounts due according to the original terms of the receivables.
## **Cash and cash equivalents**
Cash and cash equivalents comprise cash on hand and call deposits, and other short-term highly liquid investments that are readily convertible to a known amount of cash and are subject to an insignificant risk of change in value.
Page 11
## **Myotonic Dystrophy Support Group**
## **Notes to the Financial Statements for the Year Ended 31 December 2025**
## **Trade creditors**
Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of business from suppliers. Accounts payable are classified as current liabilities if the charity does not have an unconditional right, at the end of the reporting period, to defer settlement of the creditor for at least twelve months after the reporting date. If there is an unconditional right to defer settlement for at least twelve months after the reporting date, they are presented as non-current liabilities.
Trade creditors are recognised initially at the transaction price and subsequently measured at amortised cost using the effective interest method.
## **Fund structure**
Unrestricted income funds are general funds that are available for use at the trustees' discretion in furtherance of the objectives of the charity.
Restricted income funds are those grants for use in a particular area or for specific purposes, the use of which is restricted to that area or purpose.
## **2 Income from donations and legacies**
|Donations and legacies;
Donations from individuals
Legacies
Gift aid reclaimed
Within legacies:
In memorium £14,981 (2024 - £25,409)
Legacies £39,026 (2024 - £268,144)|**Unrestricted**
**funds**
**General**
**£**
12,506
54,007
2,268
68,781|**Total**
**2025**
**£**
12,506
54,007
2,268
68,781|**Total**
**2024**
**£**
16,592
293,553
3,437|
|---|---|---|---|
||||313,582|
|||||
Page 12
## **Myotonic Dystrophy Support Group**
## **Notes to the Financial Statements for the Year Ended 31 December 2025**
## **3 Income from charitable activities**
|**Unrestricted**
**funds**
**General**
**£**
Donations
-
Royalties
-
Conferences
2,610
2,610
**4**
**Income from other trading activities**
Trading income;
Income from sale of donated goods and services
Fundraising
Membership subscriptions
**5**
**Investment income**
Interest receivable and similar income;
Interest receivable on bank deposits|**Restricted**
**funds**
**£**
6,285
55
-
6,340
**Unrestricted**
**funds**
**General**
**£**
1,641
24,507
4,979
31,127
**Unrestricted**
**funds**
**General**
**£**
26,751|**Total**
**2025**
**£**
6,285
55
2,610
8,950
**Total**
**2025**
**£**
1,641
24,507
4,979
31,127
**Total**
**2025**
**£**
26,751|**Total**
**2024**
**£**
2,413
43
3,195|
|---|---|---|---|
||||5,651|
||||**Total**
**2024**
**£**
1,847
8,124
4,812|
||||14,783|
||||**Total**
**2024**
**£**
4,833|
Page 13
## **Myotonic Dystrophy Support Group**
## **Notes to the Financial Statements for the Year Ended 31 December 2025**
## **6 Expenditure on charitable activities**
|Awareness
Christmas cards
Cleaning & hygiene
Conferences & AGM
Cost of sales
Donations to registry & research
Equipment, repairs & renewals
Information leaflets
Insurance
Legal & professional
Newsletter
Office equipment rental
Payroll & bookkeeping services
Photocopying
Postage
Printing & stationery
Rent, rates & utilities
Recruitment
Sundry expenditure
Telephone
Office admin
Patient Information days
Travel, subsistence & meetings
Wages & NI
Website costs
Premises maintenance
Bank charges
Training
IDMC 2024|**Unrestricted**
**funds**
**General**
**£**
5,631
-
232
34,457
1,641
26,667
5,265
770
944
1,254
2,090
2,269
361
1,100
6,300
433
10,282
516
391
1,840
8,720
16,383
4,828
6,463
597
33
501
100
-
140,068|**Restricted**
**funds**
**£**
-
-
-
-
-
43,674
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
43,674|**Total**
**2025**
**£**
5,631
-
232
34,457
1,641
70,341
5,265
770
944
1,254
2,090
2,269
361
1,100
6,300
433
10,282
516
391
1,840
8,720
16,383
4,828
6,463
597
33
501
100
-
183,742|**Total**
**2024**
**£**
4,055
703
87
31,391
1,191
12,500
162
2,023
991
1,056
2,031
2,322
467
750
9,067
523
10,972
-
388
1,647
7,708
9,871
4,222
6,523
756
3,493
134
-
13,459|
|---|---|---|---|---|
|||||128,492|
Page 14
## **Myotonic Dystrophy Support Group**
## **Notes to the Financial Statements for the Year Ended 31 December 2025**
## **7 Staff costs**
The aggregate payroll costs were as follows:
|**Staff costs during the year were:**
Wages and salaries|**2025**
**£**
6,463|**2024**
**£**
6,523|
|---|---|---|
The monthly average number of persons (including senior management team) employed by the charity during the year was as follows:
|Average number of employees|**2025**
**No**
1|**2024**
**No**
1|
|---|---|---|
No employee received emoluments of more than £60,000 during the year.
## **8 Tangible fixed assets**
|**8**
**Tangible fixed assets**|||||
|---|---|---|---|---|
|**Cost**
At 1 January 2025
Disposals
At 31 December 2025
**Depreciation**
At 1 January 2025
Eliminated on disposals
At 31 December 2025
**Net book value**
At 31 December 2025
At 31 December 2024
**9**
**Stock**
Stocks
**10 Debtors**
Prepayments||**IT Equipment**
**£**
1,797
(1,797)
-
1,797
(1,797)
-
-
-
**2025**
**£**
2,165
**2025**
**£**
1,551||**Total**
**£**
1,797
(1,797)
-
1,797
(1,797)
-
-
-
**2024**
**£**
3,283|
|||-|||
|||-|||
|||-|||
|||**2025**
**£**
2,165
**2025**
**£**
1,551|||
|||||**2024**
**£**
1,481|
Page 15
## **Myotonic Dystrophy Support Group**
## **Notes to the Financial Statements for the Year Ended 31 December 2025**
## **11 Cash and cash equivalents**
|Cash at bank
Short-term deposits|**2025**
**£**
164,478
690,000
854,478|**2024**
**£**
210,222
690,000|
|---|---|---|
|||900,222|
## **12 Creditors: amounts falling due within one year**
|Trade creditors
Other taxation and social security
Other creditors|**2025**
**£**
7,116
24
1,560
8,700|**2024**
**£**
5,901
164
1,294|
|---|---|---|
|||7,359|
## **13 Obligations under leases and hire purchase contracts**
## **Operating lease commitments**
Total future minimum lease payments under non-cancellable operating leases are as follows:
|**Land and buildings**
Within one year|**2025**
**£**
8,758|**2024**
**£**
8,500|
|---|---|---|
## **14 Charity status**
The charity is a company limited by guarantee and consequently does not have share capital. Each of the trustees is liable to contribute an amount not exceeding £1 towards the assets of the charity in the event of liquidation.
## **15 Related party transactions**
During the year the charity made the following related party transactions:
## **Michael Walker**
During this period, the charity paid £4,921 (2024 - £5,597) to L&T Press Ltd for printing. The company is owned by Michael Walker who is a director of the charity.
At the balance sheet date the amount due to/from Michael Walker was £Nil (2024 - £Nil).
Page 16
## **Myotonic Dystrophy Support Group**
## **Notes to the Financial Statements for the Year Ended 31 December 2025**
## **16 Fees payable to independent examiner**
During the period, the fees payable (excluding VAT) to the charity’s independent examiner Community Accounting Plus are analysed as follows:
|Accounting Plus are analysed as follows:|||
|---|---|---|
|Independent examination
Other financial services|**2025**
**£**
1,045
301
1,346|**2024**
**£**
1,005
289|
|||1,294|
## **17 Taxation**
The charity is a registered charity and is therefore exempt from corporation taxation.
## **18 Trustees remuneration and expenses**
During the year the charity made the following transactions with trustees:
## **Michael Walker**
Michael Walker received remuneration of £5,276 (2024: £6,630) and £2,793 (2024: £1,532) of expenses were reimbursed to Michael Walker during the year.
## **Linda Perry**
Linda Perry received remuneration of £7,460 (2024: £7,708) and £165 (2024: £57) of expenses were reimbursed to Linda Perry during the year.
## **Peter Ferrari**
- £3,166 (2024: £1,339) of expenses were reimbursed to Peter Ferrari during the year.
## **Euan Cumming**
- £Nil (2024: £160) of expenses were reimbursed to Euan Cumming during the year.
## **Claire McAlonan**
- £422 (2024: £41) of expenses were reimbursed to Claire McAlonan during the year.
## **Dr Valeria Di Leo**
- £1,139 (2024: £Nil) of expenses were reimbursed to Dr Valeria Di Leo during the year.
## **Dr Ami Ketley**
- £34 (2024: £41) of expenses were reimbursed to Dr Ami Ketley during the year.
The trustees received no remuneration, benefits or expenses for their role as a trustee, however; as allowed by their governing document, Michael Walker received remuneration as an employee of the charity relating to the office administration and Linda Perry was paid on a contract basis also relating to the office administration. The remaining trustees were reimbursed for travel expenses.
No trustees have received any other benefits from the charity during the year.
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## **Myotonic Dystrophy Support Group**
## **Notes to the Financial Statements for the Year Ended 31 December 2025**
## **19 Funds**
|**Unrestricted funds**
**_General_**
General Fund
**Restricted funds**
Research & Registry Fund
**Total funds**
**Unrestricted funds**
**_General_**
General Fund
**Restricted**
Research & Registry Fund
**Total funds**|**Balance at 1**
**January 2025**
**£**
774,926
122,701
897,627
**Balance at 1**
**January 2024**
**£**
567,025
120,245
687,270|**Incoming**
**resources**
**£**
129,269
6,340
135,609
**Incoming**
**resources**
**£**
336,393
2,456
338,849|**Resources**
**expended**
**£**
(140,068)
(43,674)
(183,742)
**Resources**
**expended**
**£**
(128,492)
-
(128,492)|**Balance at 31**
**December**
**2025**
**£**
764,127
85,367|
|---|---|---|---|---|
|||||849,494|
|||||**Balance at 31**
**December**
**2024**
**£**
774,926
122,701|
|||||897,627|
The specific purposes for which the funds are to be applied are as follows:
The restricted funds are for the research and national registry. Research donations are to be agreed at Board level.
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## **Myotonic Dystrophy Support Group**
## **Notes to the Financial Statements for the Year Ended 31 December 2025**
## **20 Analysis of net assets between funds**
## **Unrestricted**
||**Unrestricted**|||
|---|---|---|---|
|Current assets
Current liabilities
Total net assets
Current assets
Current liabilities
Total net assets|**General**
**£**
772,827
(8,700)
764,127
**Unrestricted**
**General**
**£**
782,285
(7,359)
774,926|**Restricted**
**£**
85,367
-
85,367
**Restricted**
**£**
122,701
-
122,701|**2025**
**Total funds**
**£**
858,194
(8,700)|
||||849,494|
||||**2024**
**Total funds**
**£**
904,986
(7,359)|
||||897,627|
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