# ADVOCACY FOR NEUROACANTHOCYTOSIS PATIENTS

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1133182
- **Other names:** N A FUND
- **Status:** Registered
- **Legal form:** Charitable company
- **Company number:** [07000073](https://find-and-update.company-information.service.gov.uk/company/07000073)
- **Registered:** Dec. 8, 2009
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1133182


## Contact

- **Address:** Flat 39, Coleherne Court, The Little Boltons, LONDON
- **Postcode:** SW5 0DN
- **Phone:** 020 7460 8874
- **Email:** ginger@naadvocacy.org
- **Website:** www.naadvocacy.org



## Activities

**Objects:** 1 TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF NEUROACANTHOCYTOSIS DISEASES AND THEIR FAMILIES THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE2 TO ADVANCE THE EDUCATION OF HEALTH PROFESSIONALS AND THE GENERAL PUBLIC IN AL AREAS RELATING TO NEUROACANTHOCYTOSIS DISEASES

**Activities:** Through personal contact and a news letter the Advocacy supports patients with neuroacanthocytosis and their families around the world. We are also an important initiator and financial supporter of education including research into the clinical and basic science of these neurodegenerative diseases.




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities



## Geography

- **Area of benefit:** UNDEFINED. IN PRACTICE, NATIONAL AND OVERSEAS.
- France
- Germany
- Italy
- Japan
- Netherlands
- Portugal
- Spain
- Switzerland
- United States
- Oxfordshire





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **GINGER IRVINE** | Chair |  |
| Dr Peter George Mills |  | Dec. 4, 2019 |
| Mary Elizabeth Leigh-Wood |  | Dec. 4, 2019 |
| Nicola Keat |  | July 1, 2022 |
| Professor Dr Adrian Danek |  | March 20, 2024 |




