# ASSOCIATION FOR GLYCOGEN STORAGE DISEASE (UK) LIMITED

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1132271
- **Other names:** AGSD (UK), POMPE UK
- **Status:** Registered
- **Legal form:** Charitable company
- **Company number:** [06981121](https://find-and-update.company-information.service.gov.uk/company/06981121)
- **Registered:** Oct. 22, 2009
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1132271


## Contact

- **Address:** A G S D UK, PO Box 699, SOUTHAMPTON
- **Postcode:** SO50 0QT
- **Phone:** 0300 123 2790
- **Email:** info@agsd.org.uk
- **Website:** www.agsd.org.uk



## Activities

**Objects:** THE RELIEF OF SICKNESS, PARTICULARLY OF PERSONS SUFFERING FROM ANY FORM OF GLYCOGENSTORAGE DISEASE

**Activities:** We are the national charity for people experiencing Glycogen Storage Disease, their families and carers as well as for medical professionals working in this field. As the UKs main charity in this area, we support people with the disease, promote research and raise public awareness of GSDs.




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Human Resources, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities, Other Defined Groups



## Geography

- **Area of benefit:** UNDEINED. IN PRACTICE, NATIONAL
- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Dr Florence Osbourne** | Chair | May 1, 2021 |
| Ailsa Arthur |  | Oct. 29, 2017 |
| Dr Charlotte Dawson |  | Jan. 15, 2023 |
| Dr Karolina Stepien |  | Jan. 18, 2026 |
| Kempton Rees |  | Jan. 15, 2023 |
| Rachel Thomas |  | July 15, 2020 |
| Sarah Chikhani |  | July 12, 2020 |




