# UK NATIONAL INTRATHECAL BACLOFEN TRUST (UKNIBT)

## Details

- **Country:** England & Wales
- **Charity number:** 1129812
- **Status:** Registered
- **Legal form:** Other
- **Registered:** May 26, 2009
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1129812


## Contact

- **Address:** Birmingham Community, Health Nhs Trust, Oak Tree Lane Centre, Oak Tree Lane, Selly Oak
- **Postcode:** B29 6JA
- **Phone:** 07753787155
- **Email:** amjad.mahmood@bhamcommunity.nhs.uk



## Activities

**Objects:** TO ADVANCE EDUCATION FOR THE PUBLIC BENEFIT IN THE SUBJECT OF INTRATHECAL BACLOFEN (ITB) TREATMENT, IN PARTICULAR BUT NOT EXCLUSIVELY BY UNDERTAKING RESEARCH INTO THE SUBJECT AND PUBLISHING THE RESULTS IMPARTIALLY ACCORDING TO NATIONAL ETHICAL STANDARDS.

**Activities:** CREATE PUBLIC AWARENESS ABOUT OVERALL MANAGEMENT OF GENERALISED SPASTICITY, MORE SPECIFICALLY THE PLACE OF INTRATHECAL BACLOFEN IN ITS MANAGEMENT.  ARRANGE THE ANNUAL UK NATIONAL INTRATHECAL BACLOFEN CONFERENCE.  ARRANGE USER GROUP MEETINGS FOR INTRATHECAL BACLOFEN USERS AND THEIR CARERS.  PROVIDE SMALL GRANTS FOR RESEARCH INTO MANAGEMENT OF SPASTICITY.  PROVIDE TRAINING FOR PROFESSIONALS INVOLVED

**Area of benefit:** UNDEFINED. IN PRACTICE, LOCAL.




## Classification

- **How:** Provides Other Finance, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities



## Areas of operation

- Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £7925 | £5071 | — | — |
| March 31, 2024 | £4350 | £6116 | — | — |
| March 31, 2023 | £3625 | £4818 | — | — |
| March 31, 2022 | £0 | £1000 | — | — |
| March 31, 2021 | £0 | £0 | — | — |



## Trustees

- AMJAD MAHMOOD
- Dr Muhammad Shahid Chughtai — appointed Aug. 12, 2024
- Dr SUDHA BALARISHNAN — appointed Nov. 3, 2011
- Dr Thuya Win — appointed Aug. 12, 2024