GIST CANCER UK Annual Report for 2020
Trustees 2020: Nic Puntis (Chair) Jayne Bressington (Vice Chair & Patient Director PAWS-GIST) Sheena Kynoch (Secretary) John South (Treasurer) David Falconer (Treasurer) Stella Turner Terry Weldon James Palgrave Terry Riley Jane Means Amalia Formoso Tony Manuel (Shadow Treasurer) Special volunteers 2020: Lena Stoll Laura Brown Marion Oliver David Robinson Karen Langdon Life President Judith Robinson
2020 was indeed a very unusual year for everyone on our planet. The COVID-19 pandemic disrupted most walks of life and created significant levels of anxiety and uncertainty, particularly for cancer patients.
During this year we saw a marked increase in GIST patient registrations with GIST Cancer UK and our helpline and private patient forum (listserve) were buzzing as patients sought help and also shared their experiences with others in our community. It has been amazing to see everyone pulling together to support one another to overcome obstacles during this difficult time and our support services being so well used.
Our Trustees held four board meetings during the year, twice in person, before the pandemic and twice via MS Teams, our newly installed virtual meeting platform. The implementation of our new back-office systems which includes MS Teams has been incredibly timely. Sincere thanks go to James Palgrave who worked tirelessly to overhaul and implement our new systems.
We welcomed Tony Manuel, Terry Riley and Jane Means as new Trustees. Victoria Bassett resigned as a Trustee in June 2020 and we thank her for her dedicated service to the charity for the past five years.
Sadly, in October, our Treasurer David Falconer passed away, having lost his battle with Lung Cancer. David was involved in the GIST Cancer Arena for over 20 years and will be sorely missed.
Our work to support GIST Patients and Carers continues and to this end we managed to host one Patient/Carer meeting in London, in March 2020, just before the National Lockdown. This meeting was extremely well attended and the feedback that we received was very complimentary. The topics covered being both scientific/educational; to bring everyone up-to-date on GIST clinical trials, as well as covering strategies for coping in relation to eating/nutrition and the emotional side of being a GIST patient and carer.
A video of our meeting can be found here: - - https://www.gistcancer.org.uk/patient meetings 2020/
We are grateful to all the medical professionals who give up their time to speak at our events. Unfortunately, the ongoing Covid-19 situation has meant that we were unable to convene further Patient/Carer meetings so we focused on boosting our support services by the development of GIST patient videos on a range of relevant topics in addition to our Patient/Carer forum, helpline and the provision of literature.
COVID-19 cancelled our PAWS-GIST clinics during 2020 so we are exploring every option to start the clinics again in 2021. The clinic website www.pawsgistclinic.org.uk continues to offer valuable help and information.
Further to donations and fundraising from our fantastic supporters we were able to approve four GIST/PAWS-GIST research grants during 2020 which amount to a total of £102,896.
£78,373 was granted for ground breaking PAWS-GIST research projects.
£24,523 was granted to extend the SSGXXII Scandinavian 3 versus 5 years adjuvant imatinib study in the UK, enabling more eligible UK GIST patients to join this study.
We continue to support the National GIST Tissue Bank which includes the specialist courier costs for tissue transfers when rare samples are donated by patients from operations in other parts of the UK. The Tissue Bank is hosted at The Royal Marsden under the direction of Professor Robin Jones, Janine Salter and the brilliant biobank team.
All of our literature was re-branded to our new GIST Cancer UK name and continues to be available both in print and online via our website.
We have added Instagram and LinkedIn to our social media platforms and our social media team have continued to grow our community via these media.
Despite face-to-face meetings being impossible for most of 2020, our Trustees, participated in NICE & Scottish Medicines Consortium reviews of treatments for GIST, as well as meetings and conferences with National and International patient advocate and medical groups. All aimed at raising awareness, gathering useful information and opening opportunity for collaboration that will further GIST research to improve treatments and find a cure.
Finally, we are extremely grateful for the continued charitable grants received from various Pharmaceutical Companies for our patient support activities and for the tremendous Fund-raising efforts of all our supporters. GIST Cancer UK Trustees are all volunteers and without this support our ability to provide our services would be impossible.
2020 marks the eleventh year since GIST Cancer UK registered as a charity and is the tenth anniversary of the launch of our PAWS-GIST initiative. We have come a long way in that time with modest resources and I am very proud of what we have achieved.
Thank you to everyone who continues to support our work. Your donations and support allow us to continue our work for the direct benefits of GIST patients.
Nic Puntis
Chairman of Trustees GIST Cancer UK January 2021
GCUK Accounts 31 December 2020
GCUK 31 December 2020
Independent Examiners Report of the Trustees of GIST Cancer UK
I report on the accounts of the charity for the year ended 31 December 2020.
Respective responsibilities of trusees and examiner
The charity's trustees are responsible for the preparation of the accounts. The charity's trustees consider that an audit is not required for this year under section 144 of the Charities Act 2011 (the Charities Act) and that an independent examination is needed.
It is our responsibility to;
1. examine the accounts under section 145 of The Charities Act
2. to follow the procedures laid down in the general directions given by the Charitiy Commission (under section 145 (5) (b) of the Charities Act) and
3. to state whether particular matters have come to my attention
Basis of independent examiner's statement
My examination was carried out in accordance with general Directions given by the Charity Commission. An examination includes review of the accounting records kept by the charity and a comparision of the accounts presented with those records.
It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from the trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit, and consequently no opinion is given as to whether the accounts present a 'true and fair' view and the report is limited to those matters set out in the statement below.
Independent examiner's statement
In connection with my examination, no matter has come to my attention
1 . which give me reasonable cause to believe that in any material respect the requirements to keep accounting records in accordance with section 130 of the Charities Act to prepare accounts which accord with the accounting records and comply with the accounting requirements of the Charities Act have not been met; or
2 . to which in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.
ALICJA MOGG
Foxwise Accountancy Ltd 22a Burton Street Melton Mowbray Leicestershire LE13 1AF
18 February 2021
1
GCUK
Profit and Loss Account
for the year ended 31 December 2020
| Income Donations - GCUK Donations - PAWS Interest Research Purchases General Research - GCUK Research and Consultancy - GCUK Research and Consultancy - PAWS Direct Expenses Publicity/Goods for Sale - GCUK/PAWS Overheads Motor Expenses - GCUK/PAWS Entertainment/Subsitance - GCUK/PAWS Travel Meeting Costs - GCUK/PAWS Hotel Costs - GCUK/PAWS Meeting Costs - 2018 - London GCUK/PAWS Meeting Costs - 2018 Manchester - GCUK/PAWS Meeting Costs - Autumn/Cardiff - GCUK/PAWS Meeting Costs - Autumn 20 Bath Meeting Costs - Winter/Scotland - GCUK/PAWS Meeting Costs - Trustee Meeting Spring Clinic - PAWS Courier Services - GCUK/PAW Post - GCUK/PAW Printing - GCUK/PAWS Stationery - GCUK/PAWS Telephone - GCUK/PAW Web Hosting - GCUK/PAW Accountancy - GCUK/PAWS Insurance - GCUK/PAWS Sundry - GCUK/PAWS Genetic Alliance Membership Fee |
2020 £ 47,690 30,032 408 78,130 6,733 9,982 26,999 43,714 1,940 1,940 668 435 466 1,218 4,722 - 95 845 - - - - 552 3,724 672 368 800 1,764 392 275 50 |
2019 £ 116,565 20,217 2,559 139,341 10,560 35,800 7,335 53,695 5,200 5,200 1,393 1,045 1,755 3,103 3,139 4,875 - - 4,534 375 4,934 2,383 284 728 234 216 2,888 1,380 341 - 172 |
|---|---|---|
2
GCUK
Profit and Loss Account for the year ended 31 December 2020
| Just Giving ESMO Sponsored Event Admission Fee - Ride London Travel Costs - GSUK/PAWS Cancer 52 Membership Bank Charges Suspense & Mispostings Profit |
216 23 - 1,221 150 - - 18,656 64,310 13,820 |
400 - 1,282 4,805 150 9 (11) 40,414 99,309 40,032 |
|---|---|---|
3
GCUK
Balance Sheet as at 31 December 2020
| Assets Trade debtors HSBC - PAWS/GIST 547 HSBC - GIST 689 HSBC - Gist Support UK 670 Nationwide - GIST 514 HSBC - PAWS GIST Community - 469 Shawbrook Bank - GIST/PAWS 621 Liabilities Trade creditors Net business assets represented by Capital account: Brought forward Net profit |
2020 £ 5 183,286 200,952 79,280 76,730 12,085 86,099 638,437 1,000 1,000 637,436 623,616 13,820 637,436 |
2019 £ - 184,928 200,740 65,496 76,730 9,623 86,099 623,616 - - 623,616 583,584 40,032 623,616 |
|---|---|---|
4
GCUK Accounts 31 December 2020
GCUK 31 December 2020
Independent Examiners Report of the Trustees of GIST Cancer UK
I report on the accounts of the charity for the year ended 31 December 2020.
Respective responsibilities of trusees and examiner
The charity's trustees are responsible for the preparation of the accounts. The charity's trustees consider that an audit is not required for this year under section 144 of the Charities Act 2011 (the Charities Act) and that an independent examination is needed.
It is our responsibility to;
1. examine the accounts under section 145 of The Charities Act
2. to follow the procedures laid down in the general directions given by the Charitiy Commission (under section 145 (5) (b) of the Charities Act) and
3. to state whether particular matters have come to my attention
Basis of independent examiner's statement
My examination was carried out in accordance with general Directions given by the Charity Commission. An examination includes review of the accounting records kept by the charity and a comparision of the accounts presented with those records.
It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from the trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit, and consequently no opinion is given as to whether the accounts present a 'true and fair' view and the report is limited to those matters set out in the statement below.
Independent examiner's statement
In connection with my examination, no matter has come to my attention
1 . which give me reasonable cause to believe that in any material respect the requirements to keep accounting records in accordance with section 130 of the Charities Act to prepare accounts which accord with the accounting records and comply with the accounting requirements of the Charities Act have not been met; or
2 . to which in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.
ALICJA MOGG
Foxwise Accountancy Ltd 22a Burton Street Melton Mowbray Leicestershire LE13 1AF
18 February 2021
1
GCUK
Profit and Loss Account
for the year ended 31 December 2020
| Income Donations - GCUK Donations - PAWS Interest Research Purchases General Research - GCUK Research and Consultancy - GCUK Research and Consultancy - PAWS Direct Expenses Publicity/Goods for Sale - GCUK/PAWS Overheads Motor Expenses - GCUK/PAWS Entertainment/Subsitance - GCUK/PAWS Travel Meeting Costs - GCUK/PAWS Hotel Costs - GCUK/PAWS Meeting Costs - 2018 - London GCUK/PAWS Meeting Costs - 2018 Manchester - GCUK/PAWS Meeting Costs - Autumn/Cardiff - GCUK/PAWS Meeting Costs - Autumn 20 Bath Meeting Costs - Winter/Scotland - GCUK/PAWS Meeting Costs - Trustee Meeting Spring Clinic - PAWS Courier Services - GCUK/PAW Post - GCUK/PAW Printing - GCUK/PAWS Stationery - GCUK/PAWS Telephone - GCUK/PAW Web Hosting - GCUK/PAW Accountancy - GCUK/PAWS Insurance - GCUK/PAWS Sundry - GCUK/PAWS Genetic Alliance Membership Fee |
2020 £ 47,690 30,032 408 78,130 6,733 9,982 26,999 43,714 1,940 1,940 668 435 466 1,218 4,722 - 95 845 - - - - 552 3,724 672 368 800 1,764 392 275 50 |
2019 £ 116,565 20,217 2,559 139,341 10,560 35,800 7,335 53,695 5,200 5,200 1,393 1,045 1,755 3,103 3,139 4,875 - - 4,534 375 4,934 2,383 284 728 234 216 2,888 1,380 341 - 172 |
|---|---|---|
2
GCUK
Profit and Loss Account for the year ended 31 December 2020
| Just Giving ESMO Sponsored Event Admission Fee - Ride London Travel Costs - GSUK/PAWS Cancer 52 Membership Bank Charges Suspense & Mispostings Profit |
216 23 - 1,221 150 - - 18,656 64,310 13,820 |
400 - 1,282 4,805 150 9 (11) 40,414 99,309 40,032 |
|---|---|---|
3
GCUK
Balance Sheet as at 31 December 2020
| Assets Trade debtors HSBC - PAWS/GIST 547 HSBC - GIST 689 HSBC - Gist Support UK 670 Nationwide - GIST 514 HSBC - PAWS GIST Community - 469 Shawbrook Bank - GIST/PAWS 621 Liabilities Trade creditors Net business assets represented by Capital account: Brought forward Net profit |
2020 £ 5 183,286 200,952 79,280 76,730 12,085 86,099 638,437 1,000 1,000 637,436 623,616 13,820 637,436 |
2019 £ - 184,928 200,740 65,496 76,730 9,623 86,099 623,616 - - 623,616 583,584 40,032 623,616 |
|---|---|---|
4