# DRAVET SYNDROME UK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1128289
- **Other names:** THE IDEA LEAGUE UK
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** Feb. 26, 2009
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1128289


## Contact

- **Address:** PO Box 756, CHESTERFIELD
- **Postcode:** S43 9EB
- **Phone:** 01246 912421
- **Email:** info@dravet.org.uk
- **Website:** www.dravet.org.uk



## Activities

**Objects:** 1) TO FUND RESEARCH INTO DRAVET SYNDROME AND OTHER RELATED GENETIC SODIUM CHANNEL EPILEPSY&#x27;S TO BENEFIT SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES.2) TO ADVANCE THE EDUCATION OF THE MEDICAL COMMUNITY IN THE SUBJECT OF DRAVET SYNDROME, THEREFORE PROMPTING ACCURATE AND EARLY DIAGNOSIS AND BENEFITING SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES.3) TO PROMOTE THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES THROUGH THE PROVISION OF FINANCIAL ASSISTANCE, SUPPORT, EDUCATION AND PRACTICAL ADVICE.

**Activities:** Support for children and adults suffering from Dravet syndrome and their families




## Classification

- **How:** Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities



## Geography

- **Area of benefit:** UNDEFINED. IN PRACTICE, NATIONAL
- Northern Ireland
- Scotland
- Throughout England





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Galia Wilson-John** | Chair | May 12, 2015 |
| Alex Williams |  | July 26, 2023 |
| John David Rees Lloyd |  | Feb. 1, 2019 |
| Neil Williamson |  | Sept. 1, 2020 |
| Stephanie Smith |  | June 26, 2024 |




