Docusign Envelope ID: B118345C-F3F0-467D-91D6-A63F9C72DE2C
CHARITY REGISTRATION NUMBER: 1126534
The Heaton-Ellis Trust Unaudited Financial Statements 5 April 2025
HARPER SHELDON LIMITED Chartered accountants Midway House Staverton Technology Park Herrick Way, Staverton Cheltenham, Glos. GL51 6TQ
Docusign Envelope ID: B14 18345C-F3F0-467D-91D6-A63F9C72DE2C
The Heaton-Ellis Trust
Financial Statements
Year ended 5 April 2025
| Page | |
|---|---|
| Trustees’ annual report | 1 |
| Independent examiner's report to the trustees | 4 |
| Statement offinancial activities | 5 |
| Statement offinancial position | 6 |
| Statement ofcash flows | 7 |
| Notestothefinancialstatements | 8 |
Docusign Envelope ID: B118345C-F3F0-467D-91D6-A63F9C72DE2C
Page 1
The Heaton-Ellis Trust Trustees’ Annual Report Year ended 5 April 2025
The trustees present their report and the unaudited financial statements of the charity for the year ended 5 April 2025.
Reference and administrative details
| Registered charity name | The Heaton-Ellis Trust |
|---|---|
| Charity registration number | 1126534 |
| Principal office | C/o Camberleigh-Hay LLP |
| 37 St George's Road | |
| Cheltenham | |
| GL50 3DU | |
| The trustees | |
| MrC Crossley-Cooke | |
| Mrs S Conway | |
| Mr S P Arber | |
| Independent examiner | MR Robert D Jordan FCCA Harper Sheldon Limited Chartered |
| Accountants | |
| Midway House | |
| Staverton Technology Park | |
| Herrick Way, Staverton | |
| Cheltenham, Glos. | |
| GL516TQ |
Structure, governance and management
The Trust is a registered charity, number 1126534, and is constituted under a trust deed dated 22 October 2008.
The Trustees meet on a regular basis and annually review the Charity against the Charity Governance Code. At an annual finance meeting, the Trustees review their performance for the year and set objectives for the coming year.
All trustees give their time voluntarily and receive no remuneration or other benefits.
Docusign Envelope ID: B118345C-F3F0-467D-91D6-A63F9C72DE2C
Page 2
The Heaton-Ellis Trust
Trustees’ Annual Report (continued)
Year ended 5 April 2025
Objectives and activities
The Heaton- Ellis Trust was set up with a specific and focussed goal, to help extinguish the cruel disease - Motor Neurone Disease (MND),
David Heaton-Ellis finally lost his fight with Motor Neurone Disease (MND) in 2009, David had seen MND take the lives of his brother and an aunt and from the moment he was diagnosed he was determined to make a difference. He wanted to develop a cure for MND. Extraordinary advances in gene-hunting technology mean that these genes can now be identified, the only limitation being cost. David assembled a group of friends and together they agreed on a fund raising target and established the Heaton-Ellis Trust.
Motor Neurones are responsible for activating every voluntary muscle in the human body. When they degenerate, they stop sending messages from the brain to the muscles. The muscles, through lack of stimulus, rapidly become weak and waste away. There is no specific test for Motor Neurone Disease and no effective treatment. The goal for the MND gene-hunting programme is to discover all the genes responsible for causing MND. Once this is achieved drugs can be screened that can arrest and even reverse Motor Neurone degeneration. By raising the initial target of £1 million, the HeatonEllis Trust has helped to fund the gene-hunting initiative.
Achievements and performance
The charity has raised £131,648 during the period through collecting donations.
After meeting incidental costs of running the charity the funding has been retained by the charity and will be put to good use in future periods by supporting the gene-hunting effort in the laboratory of Professor Christopher Shaw at King's College London. Research has progressed to the point where a cure now seems an achievable goal.
During the year a donation of £120,000 was made to MND Association.
Financial review
During the year the charity has raised funds in the region of £153K. From these funds incidental costs of running the charity have been met, along with meeting the costs of holding fund raising events.
Since the constitution of the charity in 2008 the charity has exceeded its initial £1 million target.
Docusign Envelope ID: B118345C-F3F0-467D-91D6-A63F9C72DE2C
Page 3
The Heaton-Ellis Trust
Trustees’ Annual Report (continued)
Year ended 5 April 2025
Rc
Plans for future periods
The trust was created with the aim of raising a specific cash target to fund research into Motor Neurone Disease.
The Heaton- Ellis Trust has reached its initial £1 million target, however the trustees have decided that they want to continue to raise further funds, without a specific financial target.
The Charity is planning to resume its fundraising activities in 2025 and beyond.
2/2/2026
The trustees’ annual report was approved ON ........ccsseeeees aNd signed on behalf of the board of trustees by:
[ChartSignedFB9B73B22E4C4A2...by: (vossley—Caoke
Mr C Crossley-Cooke Trustee
Docusign Envelope ID: B118345C-F3F0-467D-91D6-A63F9C72DE2C
Page 4
The Heaton-Ellis Trust
Independent Examiner's Report to the Trustees of The Heaton-Ellis Trust
Year ended 5 April 2025
| report to the trustees on my examination of the financial statements of The Heaton-Ellis Trust (‘the charity’) for the year ended 5 April 2025.
Responsibilities and basis of report
As the trustees of the charity you are responsible for the preparation of the financial statements in accordance with the requirements of the Charities Act 2011 (‘the Act’).
| report in respect of my examination of the charity's financial statements carried out under section 145 of the 2011 Act and in carrying out my examination | have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner's statement
| have completed my examination. | confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
-
accounting records were not kept in respect of the charity as required by section 130 of the Act; or
-
_ the financial statements do not accord with those records; or
-
the financial statements do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair' view which is not a matter considered as part of an independent examination.
| have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
‘ Pa hiss
_MR Robert D Jordan FCCA
Harper Sheldon Limited Chartered Accountants Independent Examiner
Midway House
Staverton Technology Park Herrick Way, Staverton Cheltenham, Glos. GL51 6TQ
Docusign Envelope ID: B118345C-F3F0-467D-91D6-A83F9C72DE2C
Page 5
The Heaton-Ellis Trust
Statement of Financial Activities
Year ended 5 April 2025
nn
| 2025 | 2025 | 2024 | ||
|---|---|---|---|---|
| Unrestricted | ||||
| funds | Totalfunds | Total funds | ||
| Note | £ | £ | £ | |
| Income and endowments | ||||
| Donations and legacies Investment income |
4 5 |
151,692 1,360 |
151,692 1,360 |
119,825 386 |
| Total income | 153,052 | 153,052 | 120,211 | |
| Expenditure Expenditure on charitable activities |
6,7 | 122,174 | 422,174 | 35,775 |
| Total expenditure | 422,174 | 122,174 | 35,775 | |
| Net income and net movement in funds | 30,878 | 30,878 | 84,436 | |
| Reconciliation of funds | ||||
| Totalfunds brought forward | 97,839 | 97,839 | 13,403 | |
| Totalfundscarriedforward | 128,717 | 128,717 | 97,839 |
The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.
The notes on pages 8 to 12 form part of these financial statements.
Docusign Envelope ID: B118345C-F3F0-467D-91D6-A63F9C72DE2C
Page 6
The Heaton-Ellis Trust
Statement of Financial Position
5 April 2025
Nv
==> picture [410 x 164] intentionally omitted <==
----- Start of picture text -----
|||||||||||
|---|---|---|---|---|---|---|---|---|---|
|2025|2024|
|Note|£|£|
|Current|assets|
|Cash|at|bank|and|in|hand|130,676|99,798|
|Creditors:|amounts|falling|due|within|one|year|10|1,959|1,959|
|Net|current|assets|128,717|97,839|
|Total|assets|less|current|liabilities|128,717|97,839|
|Net|assets|128,717|97,839|
|Funds|of|the|charity|
|Unrestricted|funds|128,717|97,839|
|Total|charity funds|11|128,717|97,839|
----- End of picture text -----
I hSsFofipancial statements were approved by the board of trustees and authorised for issue on Misvisetaseey ANd are signed on behalf of the board by:
[ChartSignedFB9B73B22E4C4A2...by: (yossley—(oole
Mr C Crossiey-Cooke Trustee
The notes on pages 8 to 12 form part of these financial statements.
Docusign Envelope 1D: B118345C-F3F0-467D-91D6-A63F9C72DE2C
Page 7
The Heaton-Ellis Trust
Statement of Cash Flows
Year ended 5 April 2025
==> picture [416 x 205] intentionally omitted <==
----- Start of picture text -----
||||||||||
|---|---|---|---|---|---|---|---|---|
|nn|
|2025|2024|
|£|£|
|Cash|flows|from|operating|activities|
|Net|income|30,878|84,436|
|Adjustments|for:|
|Other|interest|receivable|and|similar|income|(1,360)|(386)|
|Accrued|expenses|_|93|
|Cash|generated|from|operations|29,518|84,143|
|Interest|received|1,360|386|
|Net|cash|from|operating|activities|30,878|84,529|
|Net|increase|in|cash|and|cash|equivalents|30,878|84,529|
|Cash|and|cash|equivalents|at|beginning|of year|99,798|15,269|
|Cash|and|cash|equivalents|at end|of year|130,676|99,798|
----- End of picture text -----
The notes on pages 8 to 12 form part of these financial statements.
Docusign Envelope ID: B118345C-F3F0-467D-91D6-A63F9C72DE2C
Page 8
The Heaton-Ellis Trust
Notes to the Financial Statements
Year ended 5 April 2025 ea nn
1. General information
The charity is a public benefit entity and a registered charity in England and Wales and is unincorporated. The address of the principal office is C/o Camberleigh-Hay LLP, 37 St George's Road, Cheltenham, GL50 3DU.
- Statement of compliance
These financial statements have been prepared in compliance with FRS 102, 'The Financial Reporting Standard applicable in the UK and the Republic of Ireland', the Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (Charities SORP (FRS 102)) and the Charities Act 2011.
- Accounting policies
Basis of preparation
The financial statements have been prepared on the historical cost basis, as modified by the revaluation of certain financial assets and liabilities and investment properties measured at fair value through income or expenditure.
The financial statements are prepared in sterling, which is the functional currency of the entity.
Going concern
The Trustees have evaluated the charity's ability to continue and are satisfied that it can continue to operate for the foreseeable future.
Judgements and key sources of estimation uncertainty
The preparation of the financial statements requires management to make judgements, estimates and assumptions that affect the amounts reported. These estimates and judgements are continually reviewed and are based on experience and other factors, including expectations of future events that are believed to be reasonable under the circumstances.
Fund accounting
Unrestricted funds are available for use at the discretion of the trustees to further any of the charity's purposes.
Designated funds are unrestricted funds earmarked by the trustees for particular future project or commitment.
Restricted funds are subjected to restrictions on their expenditure declared by the donor or through the terms of an appeal, and fall into one of two sub-classes: restricted income funds or endowment funds.
Docusign Envelope ID: B118345C-F3F0-467D-91D6-A63F9C72DE2C
Page 9
The Heaton-Ellis Trust Notes to the Financial Statements (continuea)
Year ended 5 April 2025 i 3. Accounting policies (continued)
Incoming resources
All incoming resources are included in the statement of financial activities when entitlement has passed to the charity; it is probable that the economic benefits associated with the transaction will flow to the charity and the amount can be reliably measured. The following specific policies are applied to particular categories of income:
-
° income from donations or grants is recognised when there is evidence of entitlement to the gift, receipt is probable and its amount can be measured reliably.
-
° legacy income is recognised when receipt is probable and entitlement is established. e income from donated goods is measured at the fair value of the goods unless this is impractical to measure reliably, in which case the value is derived from the cost to the donor or the estimated resale value. Donated facilities and services are recognised in the accounts when received if the value can be reliably measured. No amounts are included for the contribution of general volunteers.
-
e income from contracts for the supply of services is recognised with the delivery of the contracted service. This is classified as unrestricted funds unless there is a contractual requirement for it to be spent on a particular purpose and returned if unspent, in which case it may be regarded as restricted.
-
Resources expended Expenditure is recognised on an accruals basis asa liability is incurred. Expenditure includes any VAT which cannot be fully recovered, and is classified under headings of the statement of financial activities to which it relates: ° expenditure on raising funds includes the costs of all fundraising activities, events, non-charitable trading activities, and the sale of donated goods.
-
e expenditure on charitable activities includes all costs incurred by a charity in undertaking activities that further its charitable aims for the benefit of its beneficiaries, including those support costs and costs relating to the governance of the charity apportioned to charitable activities.
-
e other expenditure includes all expenditure that is neither related to raising funds for the charity nor part of its expenditure on charitable activities.
All costs are allocated to expenditure categories reflecting the use of the resource. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs are apportioned between the activities they contribute to on a reasonable, justifiable and consistent basis.
Financial instruments
A financial asset or a financial liability is recognised only when the charity becomes a party to the contractual provisions of the instrument.
Basic financial instruments are initially recognised at the amount receivable or payable including any related transaction costs.
Current assets and current liabilities are subsequently measured at the cash or other consideration expected to be paid or received and not discounted.
Docusign Envelope ID: B118345C-F3F0-467D-91D6-A63F9C72DE2C
Page 10
The Heaton-Ellis Trust
Notes to the Financial Statements (continued)
Year ended 5 April 2025
nn
3. Accounting policies (continued)
Financial instruments (continued)
Debt instruments are subsequently measured at amortised cost.
Where investments in shares are publicly traded or their fair value can otherwise be measured reliably, the investment is subsequently measured at fair value with changes in fair value recognised in income and expenditure. All other such investments are subsequently measured at cost less impairment.
Other financial instruments, including derivatives, are initially recognised at fair value, unless payment for an asset is deferred beyond normal business terms or financed at a rate of interest that is not a market rate, in which case the asset is measured at the present value of the future payments discounted at a market rate of interest for a similar debt instrument.
Other financial instruments are subsequently measured at fair value, with any changes recognised in the statement of financial activities, with the exception of hedging instruments in a designated hedging relationship.
Financial assets that are measured at cost or amortised cost are reviewed for objective evidence of impairment at the end of each reporting date. If there is objective evidence of impairment, an impairment loss is recognised under the appropriate heading in the statement of financial activities in which the initial gain was recognised.
For all equity instruments regardless of significance, and other financial assets that are individually significant, these are assessed individually for impairment. Other financial assets are either assessed individually or grouped on the basis of similar credit risk characteristics. Any reversals of impairment are recognised immediately, to the extent that the reversal does not result in a carrying amount of the financial asset that exceeds what the carrying amount would have been had the impairment not previously been recognised.
4. Donations and legacies
| Unrestricted | Total Funds | Unrestricted | Total Funds | ||
|---|---|---|---|---|---|
| Funds | 2025 | Funds | 2024 | ||
| £ | £ | £ | £ | ||
| Donations | |||||
| Donations | 131,648 | 131,648 | 117,864 | 117,864 | |
| HMRC Gift Aid Received | 20,044 | 20,044 | 1,961 | 1,961 | |
| 151,692 | 157,692 | 119,825 | 119,825 | ||
| 5. | Investment income | ||||
| Unrestricted | Total Funds | Unrestricted | Total Funds | ||
| Funds | 2025 | Funds | 2024 | ||
| £ | £ | £ | £ | ||
| Bankinterestreceivable | 1,360 | 1,360 | 386 | 386 |
Docusign Envelope ID: B118345C-F3F0-467D-91D6-A63F9C72DE2C
Page 11
The Heaton-Ellis Trust
Notes to the Financial Statements (continued)
Year ended 5 April 2025
ttit
==> picture [230 x 11] intentionally omitted <==
----- Start of picture text -----
6. Expenditure on charitable activities by fund type
----- End of picture text -----
| Unrestricted | TotalFunds | Unrestricted | Total Funds | |
|---|---|---|---|---|
| Funds | 2025 | Funds | 2024 | |
| £ | £ | £ | £ | |
| Charitable Activity Support costs |
120,216 1,958 |
120,216 1,958 |
33,816 1,959 |
33,816 1,959 |
| 122,174 | 122,174 | 35,775 | 35,775 |
| 7. | Expenditure on charitable activities by | activity type | ||||
|---|---|---|---|---|---|---|
| Activities | ||||||
| undertaken directly Support costs |
Total funds 2025 |
Total fund 2024 |
||||
| £ | £ | £ | £ | |||
| Charitable Activity Governance costs |
120,216 - |
- 1,958 |
120,216 1,958 |
33,816 1,959 |
||
| 420,216 | 1,958 | 122,174 | 35,775 | |||
| 8. | Independent examination fees | |||||
| 2025 | 2024 | |||||
| £ | £ | |||||
| Fees payable to the independent examiner for: Independent examination ofthe financial statements |
300 | 216 | ||||
| 9. | Trustee remuneration and expenses | |||||
| No remuneration or other benefits from employment with the | charity or a related | entity were | ||||
| received by the trustees. | ||||||
| No trustee expenses have been incurred | during the year. | |||||
| 40. | Creditors: amounts falling due within one year | |||||
| 2025 | 2024 | |||||
| £ | £ | |||||
| Accrualsanddeferredincome | 1,959 | 1,959 |
No remuneration or other benefits from employment with the charity or a related entity were received by the trustees.
Docusign Envelope ID: B118345C-F3F0-467D-91D6-A63F9C72DE2C
Page 12
The Heaton-Ellis Trust
Notes to the Financial Statements (continuea)
a Year ended 5 April 2025 11. Analysis of charitable funds
| Unrestricted funds | |||||
|---|---|---|---|---|---|
| At | At | ||||
| 6 April 2024 | Income | Expenditure | 5 April 2025 | ||
| £ | £ | £ | £ | ||
| General funds | 97,839 | 153,052 | (122,174) | 128,717 | |
| At | At | ||||
| 6 April 2023 | Income | Expenditure | 5 April 2024 | ||
| £ | £ | £ | £ | ||
| General funds | 13,403 | 120,211 | (35,775) | 97,839 | |
| 12. | Analysis ofchanges in net debt | ||||
| At 6 Apr 2024 | Cash flows At 5Apr 2025 | ||||
| £ | £ | £ | |||
| Cashatbankandinhand | 99,798 | 30,878 | 130,676 |