# THE HEATON - ELLIS TRUST

## Details

- **Country:** England & Wales
- **Charity number:** 1126534
- **Status:** Registered
- **Legal form:** Trust
- **Registered:** Nov. 3, 2008
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1126534


## Contact

- **Address:** Swanee River Ltd, Summertown Pavilion, 18-24 Middle Way, OXFORD
- **Postcode:** OX2 7LG
- **Phone:** 01865957780



## Activities

**Objects:** TO SUCH CHARITY OR CHARITIES OR FOR SUCH CHARITABLE PURPOSE OR CHARITABLE PURPOSES AS THE TRUSTEES SHALL FROM TIME TO TIME IN THEIR ABSOLUTE DISCRETION DETERMINE.

**Activities:** The Trust was set up to help extinguish Motor Neurone Disease (MND) for which there is no specific test or effective treatment. The goal for the MND gene-hunting programme is to discover all the genes responsible for causing MND. Once achieved drugs can be screened that can arrest and even reverse motor neurone degeneration. Funds raised by the trust will help to fund the gene-hunting initiative.

**Area of benefit:** UNDEFINED. IN PRACTICE, NATIONAL




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Other Charities Or Voluntary Bodies, The General Public/mankind



## Areas of operation

- Hampshire
- Oxfordshire
- Suffolk
- West Berkshire



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| April 5, 2025 | £153052 | £122174 | — | — |
| April 5, 2024 | £120211 | £35775 | — | — |
| April 5, 2023 | £7671 | £34794 | — | — |
| April 5, 2022 | £7878 | £33471 | — | — |
| April 5, 2021 | £18761 | £2081 | — | — |



## Trustees

- **SIMON ARBER** (Chair)
- CHARLIE CROSSLEY-COOKE — appointed March 22, 2011
- SOPHIE OLIVIA CONWAY