->
on CHARITY COMMISSION RE") FoR ENGLAND AND WALES
Trustees’ Annual Report for the period
From 18* September 2023 To 31% August 2024
Charity name: Up on Downs (Hertfordshire)
Charity registration number: 1126111
Objectives and Activities
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|CS|SORP|reference|| en|
|||theSummarygoverning charity asofdocument the setpurposes out in|its|of|||Para|1.17|||| andSupportHertfordshire. theirfor families,peopleTo|helperscreatewith|Down'sand anddevelop carersSyndrome withinthe|||
|||||conditions which|will|enable|peopie with|||
|||Down’s|syndrome|to|attain|their|full|
|potential|and|to|undertake|any|other|
|||||charitable|activities|in connection|with|||
|te,||Down's|syndrome in the|Hertfordshire|area.|||
|activities|in|relation|to|those|
|||Summary of the main||||Para 1.17 and||||meetings*|Support and networking|
||purposes for the public|||||These are a major source of support and|||
|||benefit,|in|particular, the|||wellbeing for families,|providing|friendships|
|||activities,|projects or|||with peers, entertainment for children with|
|||services|identified|in the|||||DS|and|their siblings and exchange|of|||
|||accounts.|||||forinformation. volunteeringTheyandalso forprovide practitionersopportunitiesto|||
||||||Welearndelivered more about11|howmonthly to supportmeetings families.through|||
|||
|||||the year.|||
|||||||«|Training|||
|||| These are an effective way for family|
|||||||members, teachers and practitioners|to|
||||||||inthelearn how community. to support children at school and|||
|||||||||signposting»|Individual advice and|||
|||||This|is how we support|individuals with|||
|||specific|complex|situations|that may be|||
|.||blocking|their|ability|to|access|education|
|||||ea|n|abld s|e|rvices.s|us|fo Resolvingpromote|familyindividuawel|l|beingissues|||
|||||and|inclusion.|We|also|promote|
|||||||||encounterawareness ofand issueshow|to familiesnavigate are them. likely to||||
|||||||This also|includes visiting new families|||
|||and|offering|them|our|parent welcome|||
|||||||packs with|gifts and|information.|||
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Small groupspeech therapy Most
| families are concerned about having very
| limited access to ongoing speech therapy.
| Weemployateamofhighlyskilledtherapy
practitionerswhoaimtodeliver27
| sessions throughouttheyeartoeach child
| enrolled in the scheme. Parents pay a
| contribution that approximates to roughly
half of the cost oftheir child’s place and the||
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|||||charity funds the rest, occasionally making
a much larger contribution forfamilies in|||
|||||financial difficulty. Groups vary from 2-4
children although insome circumstances|||
||||||we also offer 1:1.||
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Social communication group for
| olderyoung people||
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||| This isanonlinefacilitatedgroupwhich
enables them to meet a defined friendship
| groupweeklytopracticetheir skillsand
develop confidence. We delivered weekly
| sessionsthroughoutterm-timefortheyear.
| 6
Fi nesscl bfo oldery ung
| people
| This is an online club led bya fitness
| trainerwho hasDS and isthereforean
| inspirationalrolemodelgivingyoung
peopleanimpetustoexerciseforhealth
| and w llbeing. We delivered weekly
| sessions intermtimethroughtheyear.
| °
Newslettersandinformation
| publishing
| Wekeepmembersuptodatewitha
.
| monthly newsletter featuring upcoming
| eventsandrelevantinformation.
| We maintain awebsite whichwas
| developed throughout the year and we
| havestepped upourpresence on facebook
andInstagramwithpublicpages and
privategroups.||
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||| .
Celebrations and awareness
| events
| Asourchildren areoftenexcluded from
| partieswith typically developing peerswe
| hold inclusive seasonal parties for allthe
| family. These fulfil thesamefunction as
| ourregularnetworkingmeetingsbutare
| morefocussed onentertainment improving
| wellbeing and quality of life generally. Our
| Christmas party isusuallythelargestevent
| ofthe year.We also hold Easter and
| Halloweencelebrationsandweorganisea
| summertriptoan outdoor animal ortheme
| park.||
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|||TeenageEvents0||||
-[ t—]
,
||||The Teenage club enables us to offer a||
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|||friendshipexperienceforolderchildren
who might find our other parties too||
|||“pabyish”. We have found that meetings in||
||||a bowling alley are most successful for this||
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||group and they also enable parents to get
together in a separate area and go outina
large group afterwards.
:
ChoicesYouthClub
TheFriday nightyouth clubrunsweekly
and brings in a range ofyoung people with
disabilitieswhose social life is otherwise
limited. The group ran sessions with
sports, cooking, art, sculpture, danceand
gaming, according to the interests of||
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|||||users.||
|| Statementconfirming
Pata tale
whetherthetrustees have
| had regard to the guidance
issued by the Charity
Commission on public|All trustees receive a Trustee Handbook
| with a copy ofthe charity's constitution and
guidance from the Charity Commission is
referenced and circulated.||=
|
||
|Additional information (optional)||||
|You maychoose
t
include further statements where relevant about.
Co|SORPreference
| Thecharitydoesnothavea grants
|
Para1.38
| programme andaimsto provide mostof its
| Policy on grant making
services free ofcharge to members. Where
|
contributionsfrom families are sought
|
towardsaspecificprogramme, eg.Speech
|
and communication groups, the trustees
|
| can decide byvote to assist afamily in||||
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||
.
..
Para1.38
Policyon sociai investment
| including program related||
||||
||
| investment
|
;
|
| Para1.38
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Contributionmadeby
| volunteers
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;
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Other
|||Many membersandtheircloserelatives
andfriends contributetothecharityby
| undertakingfundraising activitiesand
assisting with the organisation and running
| of specific events. Occasionallywe are
| alsoabletoinvolvecommunityvolunteers
| such as studentsworking towards the
| DukeofEdinburgh'sAwardorlocal
businessorganisationswhowould liketo
focuson a particular causefora limited
time. Where volunteers are likely to be
sieandarenotmembersthemselves,
||||
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a
Achievements and Performance
|||[CO
|
;
|Summaryofthemain
Srentitvingthepailealenl
e
|anaswork hasmadeto|SORPreferenceTOEe|
| Inthefinancialyear23/24thecharity:
|
e
Held regular monthly family support
|
Para1.20
|
meetings,welcomemorningsand
|
|
activitiesforparentstonetwork
|
me
online.
e
Continued aweeklyprogrammeof|SORPreferenceTOEe|
| Inthefinancialyear23/24thecharity:
|
e
Held regular monthly family support
|
Para1.20
|
meetings,welcomemorningsand
|
|
activitiesforparentstonetwork
|
me
online.
e
Continued aweeklyprogrammeof|
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|||||including Social Communication on
||
|,|.|:
i
_ benefits to society as a
|whole,
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||||Thursdays and Fitness club on
|
Monaays.
|
e
Maintained
a weekly youth club for
|
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teenagerswith specialneedstogive
|
them enrichment activities and
|
|
regularcontactwith a friendship
|
group. Feedback has been
|
consistently excellent from young
|
/
people and carers attending.
|
e Continuedourspecialistspeech
development groups at three sites
|
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with ourSymbol-trained co-workers
|
to promote better communication
|
skills in ourchildren withDown’s
syndrome
|
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Continued toworkwith ourYoung
|
Ambassadors which enabled some
|
of ourteenagers with DS to take on
|
amoreformalrepresentative role at
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|
events.
|
e
Arranged family days out at
|
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HertfordshireZooandStandalone
|
farm toenablethecommunity to get
|
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togetheroverthe longschool
|
holidays.Wealsoorganised aday
atthe De Havilland AircraftMuseum
||
||||
|
:|||
to celebrateWorld Down's
SyndromeDay.
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e
Held our annual Christmas party
|
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with giftsfor allthechildren.
|
e Welcomed newparentswithhome
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visits, follow ups and new parent
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welcome packs.
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e
Continued to provide individual
|
advice on school-based education|
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L__dd||andtomeetwith colleaguesto
discuss local SEND.
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e
Continued toproduce our regular
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newslettersandsteppedupour
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social media presencethroughout
the period to keep ourcommunity in
_|touch
and aware oftheoffer.|
a
Additional infermation (optional)
|
||
|Achievements against
objectives set||
|
Para 1.44|Thecharityachievedand exceeded the
objectives setout in itsconstitution.|||
|---|---|---|---|---|
||||||||
||||The charity's fundraising activities bought|||
||Performance offundraising||in sufficient funds to comfortably cover the
year’s activities and restore reserves to||
||
|||activities against objectives
set|| Pa 147|level that trustees are comfortable with to
enable it continue to operate securely.|||
||
||investmentperformance
againstobjectives|| Para1.41
|
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||Other|||||
| Financial Review | ||||||||
|---|---|---|---|---|---|---|---|---|
| financial position attheend | _ | charitycommission, available online. | ||||||
| Statementexplaining the |
Para 1.22 |
Theorganisation has builtupabalanceof _ policyforholding reserves |
£45K, aroundthe level ofannual spend, to |
stating whythey are held _ provide security in providing activities and |
_ providing supporttofamiliesgoing forward |
_andweatherfuturecashflowvariations. |
||
| Reasons for holding zero | [essece | |||||||
| "Details offund materially in deficit ee |
Explanation ofany |
uncertainties about the | Para 1.24 |
Para 1.23 | ||||
| charity continuing as a going | © | |||||||
| Additional information (optional) You may choose to include further statements |
The charity's principal |
sources offunds (including |
Para 1.47 |
anyfundraising) |
where relevant about, ' The charityhas no regularfunderand _ raises its annual income through |
|||
| investmentpolicyand |
objectives including any _ social investment policy |
adopted | Pata 1.46 |
|||||
| Adescription oftheprincipal |
risks facingthe charity | Para1.46 | ||||||
| Other |
Structure, Governance and Management
;
| (Description ofchartys | |||
|---|---|---|---|
| Typeofgoverningdocument | Para1.25 | ||
| _ How is the charity Para 1.25 _ constituted? |
|||
| Trusteeselectionmethods | Pa'@125" _ including details ofany |
constitutional provisions e.g. _ election to post orname of |
|
| any person or body entitled | |||
| _ to appoint one or more trustees sex nissan neers |
|||
| Additional information (optional) | |||
| You may choose to include further statements | where relevant about, | ||
| A trustee handbook is provided fornew | |||
| Policies and procedures |
_ adopted for the induction |
Bama “Lat |
|
| Thecharity'sorganisational |
structure and anywider |
Para 1.51 |
|
| re |
Relationship with any related |
Para 1.51 |
|
| Other | |||
| Pd | |||
| Reference and Administrative details | |||
| (Charity name |
Upon Downs (Hertfordshire) _Othernamethe charity uses _ Upon Downs eege _Registered charity number 1126114 |
Charity’s principal address = 20A Upper CulverRoad _ StAlbans _Hertfordshire |
|Names ofthe charity trustees whomanagethe charity
ates
actedThnotforwhl “igineaf parson Tor body) entitled
TFersiesmame
MISTI em(ipemnste (tan
Lauren Hartley
Chair
Wholeyear
Board and membership ofUp
1
| on Downs.|Names ofthe charity trustees whomanagethe charity
ates
actedThnotforwhl “igineaf parson Tor body) entitled
TFersiesmame
MISTI em(ipemnste (tan
Lauren Hartley
Chair
Wholeyear
Board and membership ofUp
1
| on Downs.|Names ofthe charity trustees whomanagethe charity
ates
actedThnotforwhl “igineaf parson Tor body) entitled
TFersiesmame
MISTI em(ipemnste (tan
Lauren Hartley
Chair
Wholeyear
Board and membership ofUp
1
| on Downs.|Names ofthe charity trustees whomanagethe charity
ates
actedThnotforwhl “igineaf parson Tor body) entitled
TFersiesmame
MISTI em(ipemnste (tan
Lauren Hartley
Chair
Wholeyear
Board and membership ofUp
1
| on Downs.|Names ofthe charity trustees whomanagethe charity
ates
actedThnotforwhl “igineaf parson Tor body) entitled
TFersiesmame
MISTI em(ipemnste (tan
Lauren Hartley
Chair
Wholeyear
Board and membership ofUp
1
| on Downs.|Names ofthe charity trustees whomanagethe charity
ates
actedThnotforwhl “igineaf parson Tor body) entitled
TFersiesmame
MISTI em(ipemnste (tan
Lauren Hartley
Chair
Wholeyear
Board and membership ofUp
1
| on Downs.|
|---|---|---|---|---|---|
|jonnGlakoTreasurer~—~~*~“‘dR
2||Wholeyer||“Board
and membership
on Downs.|ofUp|
|Alisande Nuttail
3|Secretary|June2024onwards||Board andmembership
on Downs.|ofUp|
|aaronHope
4|aise
oo|||ee ee eee nd
on Downs.||
|Sarah Stockley
9|| Trustee|Wholeyear||Board and membership
on Downs.|ofUp|
|DiluChowdhury
6|Trustee|Wholeyear||Board and membership
on Downs.|ofUp|
|‘Frances Gerber
Hawkins|| TrusteeCOWhole|Wholeyear”“Board||“Board andmembership
ofUp
on Downs.||
|7
(previously known||||||
|as Frances||||||
|Wotton)
;a
8|el
enee|stn cee-
ee||- a — —||
|||||;||
|12
es|||||7|
|ToSD||||||
|17
18||||Po||
Corporate trustees ~ names of the directors at the date the report was approved. a
ne Name of trustees holding title to property belonging to the charity Fristoe nae [Dates acted foto whote year[ Se
[—~™]
_
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|---|---|---|---|---|---|---|---|---|
|Funds|held|as|custodian|trustees|on|behalf|of|others 00|
|||Description|of the|assets|||||
|||held|in this capacity|||
|(Name|and|objects ofthe CE|||
||charity|on whose|behalf the|||||
||assets|are|held|and how this|||||
|||falls|within|the|custodian|
|_|charity's|objects|
|Details|of arrangements|for|||
|safe|custody|and|
|||segregation|of|such|assets|
|||from|the|charity’s|own|
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Additional information (optional)
Names and addresses of advisers (Optional information)
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|||||
|---|---|---|---|
|Type|of|Name|Address|
|adviser|in|
|General and|| Julie|Evens|||
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Name of chief executive or names of senior staff members (Optional information) Janet Hopcroft a
Exemptions from disclosure
Reason for non-disclosure of key personne! deta
|[|]
Otheroptionalinformation0
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i
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:
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Pn_——————as sss
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
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Signature(s)) a ) ih a,
Full name(s) JOHN CLARK SACAY STeckLe
Position (eg Secretary, Treasurer— a a ee |
Date) 97/03/25 Foul as
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,
Up on Downs accounts 2023/24
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||||||||||
|---|---|---|---|---|---|---|---|---|
|Up|on|Downs|accounts|
|2023/24|Bal|b/f|Income|Costs|Bal|c/f|
|Speech|development|-|4,444.00|-5,902.29|-1,458.29|
|Grants,|Donations|&|Other|
|Expenditure|24,611.92|47,242.98|-24489.21|47,365.69|
|Total|as|at|31St August|2024|24,611.92|51,686.98|-30,391.50|45,907.40|
|Up|on|Downs|accounts|
|2022/23|Bal|b/f|Income|Costs|Bal|c/f|
|Speech|development|-|4,983.50|-7,284.88|-2,301.38|
|Grants,|Donations|&|Other|
|Expenditure|26,821.85|28,307.90|-28,216.45|26,913.30|
|Total|as|at 31S August 2023|26,821.85|33,291.40|-35,501.33|24,611.92|
|Up|on|Downs|accounts|
|2021/22|Bal|b/f|Income|Costs|Bal|c/f|
|Speech|Therapy|-|4,037.00|-7,400.08|-3,363.08|
|Grants,|Donations|&|Other|
|Expenditure|39,659.85|14,467.23|-23,942.15|30,184.93|
|Total|as|at 31S August 2022|39,659.85|18,504.23|-31,342.23|26,821.85|
|Up|on|Downs|accounts|
|2020/21|Bal|b/f|Income|Costs|Bal|c/f|
|Speech|Therapy|-|5,063.00|-7,953.38|-2,890.38|
|-|Grants,|Donations|&|Other|
|Expenditure|39,447.00|29,068.08|-25,964.85|42,550.23|
|Total|as|at 31S August 2021|39,447.00|34,131.08|-33,918.23|39,659.85|
|Up|on|Downs|accounts|
|2019/20|Bal|b/f|Income|Costs|Bal|c/f|
|Speech|Therapy|-|2,824.00|-4,517.80|-1,693.80|
|Grants,|Donations|&|Other|
|Expenditure|39,450.72|20,428.83|-18,738.75|41,140.80|
|Total|as|at 31S August 2020|39,450.72|23,252.83|-23,256.55|39,447.00|
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' Balance carried forward has increased by £21,295.48 to £45,907.40.
It can be seen that we have had a successful year in terms of income generation with an increase of £18,935.08 on last year (excluding the speech development programme) from grants and donations coupled with a slight decrease in expenditure.
This significant increase in income arises primarily from three significant sources: an increased grant from the National Lottery, a donation from the Hitchin Property Trust and large number of individual donations connected to our involvement in the St Albans Half Marathon. The cost to the charity of providing the Speech Development Programme has dropped slightly to £5,902.29; this is due to having slightly fewer children in the programme and a delay in receiving invoices from co-workers.
;
The balance of our PayPal account is currently £137.70
Grants, donations and funds raised totalled £51,686.98 including these significant revenues as follows:
.
| National Lottery Community Grant | £13,134.00 |
|---|---|
| StAlbans Half Marathon Sponsorship and other proceeds | £12,171.14 |
| Hitchin Property Trustdonation | £7,500.00 |
| Rita Donagh donations | £2,891.00 |
| HCC Building Life Chances Early Years Grant | £1,407.00 |
| StAlbans Cathedral Congregational Giving Donation | £1,215.00 |
| Christmas card sales | £1,151.50 |
| St George’s Day Charity Club Donations | £841.00 |
| John F Hunt Power donation towards Ambassador’s Programme | £630.00 |
| HCC Councillor's Locality Budget granttowardsAmbassador's Programme |
£600.00 |
| CBRE Global Investments donation (nominated by John Clarke) | £525.00 |
| Radlett Cork Lodge (Freemasons) Donation | £500.00 |
| Pimlico Lodge (Freemasons) Donation | £500.00 |
| Colourbyte donation forfundraising material (initiated by Stockley family) |
£500.00 |
Outgoings totalled £30,391 .50 including this list of the most significant costs to the charity:
| charity: | |||
|---|---|---|---|
| . | Staffsalaries | £17,762.36 | |
| Facilitator for teen zoom meetings (partially funded by BLC grant) | £1,835.00 | ||
| Cost of providing the Speech Development Programme | £1,458.29 | ||
| Choices teen youth club (funded by BLC grant) | £1,905.80 | ~ | |
| Hertfordshire Zoo and Woodside farm summer trips “) | £436.75 | ||
| Christmas party 2023 (including presents) | £483.10 | ||
| Zoom Annual Subscription | £155.78 | ||
| Familymeetingscosts | £72.10 |
Notes
3 The total cost of the summer trips was £841.75 less £405.00 in parental contributions, £111.75 of this amount was paid using PayPal funds.
We, the undersigned, confirm that these accounts have been circulated to all trustees of Up on Downs and agreed as correct at the charity’s Annual General Meeting on Sunday 18" November 2024.
| November 2024. | ||
|---|---|---|
| “ | f) | |
| John Clark | Lauren Hartley | Sarah Stockley |
| Trustee—Treasurer | Trustee-Chair | Trustee |
umma of charl structure and ear endin 31° Au ust 2024 Scrutiny of accounts undertaken on Friday 14 February 2025. This is a parent run organisation which supports families of children with Downs Syndrome. They support other parents by sharing information and creating opportunities for families to socialise and learn together. They support our children by arranging specific artivities and by working with other agencies to increase awarene55 of Downs Syndrome and improve the opportunities available to people with the condition. Organisation There are two part time employees currently, originally three up until May 2024- Alisande Isande) Nuttall- Director110 Hours perweek) until May 2024 upon her resignation. Sande now serves as a Trustee of the charity Janet Hopcroft- Services Coordinator until May 2024, Dirertor thereafter111 Hours per week in both instances) Gemma Albon - Assistant Family Service5 Coordlnator110 Hours per weekl Services and Support Provided Speech and communication development se$5ions for children are provided bythe charity. The charity pays a percentage of the c05t and families make a £99 per tem contribution towards the cost of running the scheme. Support is provided by speech development Co-workers and overseen by a speech therapist. Speech Therapists and ca-workers are employed on an ad hoc basis, they invoice as and when theywork forthe charity. Pre-natal contatt wtth families by charity volunteers/staff, pr¢)viding further support once the baby has been born including new parent vistts Monthly family meeting 2 Sat of every month- on a drop in basis EHCP and benefits training and advising parents Social Events for families and teenagers with Down syndrome Accountln8 Information End of Term lin line wlth School Terms) is the busiest time for transartions Weekly analysis of Charitie5 Aid Foundation ICAF) giving- this 15 necessary in orderfor the donation5 to be documented on the accounts and thank you replies sent to donors Charities Aid Foundatlon credits are shown as inltial don*ion less the fee taken byfAF for donatlon admin Gift aid refunds-will be reimbursed by CAF separately within the month the donation is made
Further Infornlation All adminlstration is condutted from Employees homes Accounts Sample Testlng Item5 were randomly selected by Elaine Hoar on Friday 14 February 2025. All periods are as detailed on the bank statements. all accountslreceipts/invoices verified and seen on the following 2023-2024 Balance Check Income & Expenditure totsls in the monthly accounts analysis has been reconciled against the funds received in andout of the bank account for September 2023 - August 2024. September 2023 Balance Check Bank Statement @ 31 August 2023= £24,611.92 Spreadsheet Opening Balance- £24,611.92 @ 01 September 2023 Money Out = £2,867.90 Money In= £2,319.98 Spreadsheet Balan at 30 September 2023 = £25,159.84 Recelpts Sample Reviewed all expenditure and income against the bank ststement and receipts. October 2023 Recelpts Sample 12 - Reviewed the Grant from Building Life Chances Early Year5 £1407.00 against accounts and bank statement. Expenditure Sample 20 - Reviewed payment to Magda Kruszewska £394.50 against recelpt and bank statement. November 2023 Recelpts Sample 17° Reviewed donation from J R Robinson £60.Q) against the bank statement. Expendlture Samples Reviewed payment to Gemma Albon £269.00 against the receipt and bank statement. IV- Reviewed payment to Zoom £143.88 against the bank statement. January 2024 Expendlture Sample 24th- Reviewed payment to Christchurch Baptist Churth £45 against the receipt and bank statement.
March 2024 Receipts Sample 11 - Reviewed donation from Colourbyte Europe Ltd £500.00 against receipt confirmation and bank statement, May 2024 Receipts Sample Reviewed all receipts £3667.413gainst the bank statement for Mav 2024. June 2024 Expenditure Sample Reviewed payment relating to Wilko £5.80 against the receipt and bank statement. July 2024 Receipts Example 19° Reviewed the funding from the National Lottery £13,134.00 agalnst the confim13tion letter and bank statement. Expenditure Samples nd_ Reviewed payment to Emily Enoch £185.00 agalnst the invoice and b3nk statement. 15 - Reviewed payment to Hertfordshire Zoo £700 against the receipt and bank statement. th 15 - Reviewed the payment to Paula Binks £640.14 against the Invol and bank statement. July 2024 Balance Check Spreadsheet Opening Balance - £45,589.82 @ 01 Aug 2024 Money In= £1,222.89 Money Out= £905.32 Bank & Spreadsheet Balan at 31 Aug 2024= £45,907.40 The 202312024 accounts Ikive been reconclled to the spreadsheets maintained by Up on Down5 to ensure that total Income and costs have been reported accurately. Sample te5tin8 has been evldenced by ticking of the recelpts/transactions and inthlllng the relevant pages.