# THE LILY FOUNDATION

## Details

- **Country:** England & Wales
- **Charity number:** 1122071
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Dec. 19, 2007
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1122071


## Contact

- **Address:** 31 WARREN PARK, WARLINGHAM
- **Postcode:** CR6 9LD
- **Phone:** 0300 400 1234
- **Email:** liz@thelilyfoundation.org.uk
- **Website:** www.thelilyfoundation.org.uk



## Activities

**Objects:** 1)  TO PROMOTE THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF MITOCHRONDRIAL DISEASE AND OTHER METABOLIC DISORDERS IN THE UNITED KINGDOM THROUGH THE PROVISION OF FINANCIAL ASSISTANCE, SUPPORT, EDUCATION AND PRACTICAL ADVICE.2)  TO PROMOTE RESEARCH INTO THE CAUSES AND TREATMENT OF MITOCHONDRIA DISEASE AND OTHER METABOLIC DISORDERS ON TERMS THAT THE USEFUL RESULTS OF SUCH RESEARCH ARE PUBLISHED.3)  TO ADVANCE THE EDUCATION OF THE PUBLIC IN THE SUBJECT OF MITOCHRONDRIAL DISEASE AND OTHER METABOLIC DISORDERS.

**Activities:** We fund research to improve diagnosis, develop treatments and we hope to ultimately find a cure for Mitochondrial Disease. We help build support networks by connecting affected families and also offer direct family support. We aim to raise awareness of mitochondrial disease by improving patient access to information, supporting professional training, and speaking at schools and public events.

**Area of benefit:** NATIONAL AND OVERSEAS




## Classification

- **How:** Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, The General Public/mankind



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Aug. 31, 2024 | £974389 | £1414075 | £940511 | 10 |
| Aug. 31, 2023 | £1436646 | £1297244 | £1380197 | 12 |
| Aug. 31, 2022 | £939122 | £679819 | £1240795 | 9 |
| Aug. 31, 2021 | £580954 | £508405 | £981492 | 5 |
| Aug. 31, 2020 | £709393 | £817407 | £908943 | 5 |



## Trustees

- **Ben Carter** (Chair) — appointed May 23, 2012
- Charles Kirk — appointed Dec. 8, 2023
- Claire Riley — appointed June 9, 2020
- Dean Curtis — appointed Nov. 20, 2018
- Dean Stephen Booth — appointed Dec. 8, 2023
- HELEN MARIE RIDER
- JOHN ELLIOTT SYMONS
- John Spyrou — appointed Oct. 1, 2013
- Rupinder Bains — appointed Oct. 1, 2013