DOWNRIGHT EXCELLENT (DEx)
TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS
31 MARCH 2021
Charity Number 1120863
Company Number 06249083
www.downrightexcellent.org
DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
Report of the Trustees
The trustees are pleased to present their Annual Report along with the Financial Statements for the year ended 31 March 2021.
The directors of Downright Excellent (“the charitable company”) are its trustees for the purpose of charity law and throughout this report are collectively referred to as its trustees. The financial statements comply with the Charities Act 2011, the special provisions of part 15 of the Companies Act 2006 relating to small companies and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (updated 1 January 2019).
Downri ht Excellent’s DEx charitable ob ects g ( ) j
Downright Excellent’s mission and purpose is ‘to enable children with Down syndrome to maximise their potential’.
This year, Downright Excellent applied to the Charity Commission for permission to alter the charity’s objects – changing ‘Downs Syndrome’ to the currently accepted Down syndrome and removing ‘in London’ which restricted us from offering services elsewhere – this became important when we discovered one of the benefits of operating online is the ability to connect anywhere in the world.
The objects of Downright Excellent now read:
To help children with Down syndrome develop their life skills so they may reach their full potential as individuals and equally participating members of society through, especially but not exclusively:
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educational programmes
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quality play
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education and support for parents and carers
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education and support for siblings.
Approval process:
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Charity Commission approval to the changes was received on 14.12.2020
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The board then passed a special resolution to adopt the changes on 28.1.2021
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This was then submitted to Companies House on 9.2.2021, accepted 18.2.2021 – to be filed as evidence at the Charity Commission
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Changes to the charitable objects finally registered with the Charity Commission on 20 February 2021.
Also, in 2020, the Downright Excellent board requested an update and review of the Memorandum and Articles to bring the document in line with current regulations and practice. Approval process:
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Updated governing document approved by the DEx board by special resolution on 16 July 2020
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This was not a regulated change so the Charity Commission and Companies House were merely notified and confirmations submitted on 22.7.2020.
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DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
Covid-19 – impact on Downright Excellent (DEx) and our response
In last year’s report we described our response to the Covid-19 situation from 14 – 31 March 2020. Immediately DEx closed, we had learned how to deliver small group sessions online to keep the DEx community together and bring support and continuity to DEx children and their families. Little did we realise that we would still be all online over a year later. This report describes some of that journey and how the year impacted on DEx services, our children and families living with Down syndrome (DS) and everyone connected with us. Two months into the first lockdown, our CEO’s report to trustees began, ‘Since the March board, we have all demonstrated that DEx is a robust business and our community is thriving. DEx still exists and is downright excellent. The whole DEx team has ensured that our families feel supported and are still getting value for money; and crucially, that the DEx children and teenagers continue to develop, achieve and see their friends. In re-shaping services for lockdown, the business has shown itself to be flexible, reactive and proactive. All aspects of the organisation within the new normal environment have been considered and successfully implemented – support for families and team, children’s achievement, transitioning to Zoom, communications, securing income, impacts on the community and business short, mid and long term. Thanks to everyone for backing DEx, for passion and commitment and for making this work.’
DEx had ups and downs since that was written but the organisation has survived this tough year and continues to be robust and thriving, albeit rather battered, and still operating all online instead of in person. Some key issues have been the need to support over a hundred children aged 0 – 17 together with their families who are scattered across London and beyond; supporting uncertainty, stress, isolation and lack of customary state assistance for many during lockdown. DEx faced higher costs during the pandemic, fewer opportunities to generate income, and we could not work with our student volunteers. But many wonderful people stepped up to support DEx and see us through to the next stage – in which, arguably, we still face uncertainty but feel more able to keep surviving and even flourishing. We very much hope to return to our meeting place on Fridays and Saturdays at the Sundial Centre in September if restrictions and the pandemic allow. Trustees and the team will consider that situation in July and August.
Structure of DEx
DEx serves around 117 children with Down syndrome (DS) and their families. All joined DEx when they were living in London but now some have moved away and this year, we are able to keep in touch through the new online service and because the changed objects extend our remit. The organisation is run by a board of 6 – 8 voluntary trustees, half of whom are parents of DEx children and represent the different age groups. Paid workers are freelance and part-time with a heavy emphasis on highly specialised professionals. These are: four professionals supporting management, finance and admin functions; and 11 clinicians and specialists whose activities are described in the sections below. This year, instead of the usual 20 – 30 face-to-face volunteers contributing to every aspect of the organisation, we worked with one volunteer assisting the older children online and many online volunteers behind the scenes helping with tasks such as fundraising, website renewal and IT support.
We have not been able to meet in person all year but, instead, have replicated the usual DEx programme online as far as we were able. This has comprised scheduled small group sessions and extension activities:
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In term time, 9am – 2pm on Fridays for 39 children under 5 from their homes
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Small group Speech and Language Therapy (SLT) and Occupational Therapy (OT)
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• Makaton signing training
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Maths provision and consultation.
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Also on Fridays, 20 children in small groups aged 5 – 9 received SLT from their schools.
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In term time, 9am – 1pm on Saturdays for 51 children and young people aged 5 – 17
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Small group SLT and OT for 29 children aged 5 – 9
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• Small group life skills and employability skills for 22 children/young people aged 10 – 17.
Up to seven families of children who have found it impossible to focus online are supported individually as far as resources allow and all families have access to consultations with the DEx team at almost any time.
Complementary educational activities to support skills development and embed lessons learned in the small groups traditionally ran alongside scheduled sessions – and these also provided spaces for peer support and socialising. A range of extra online sessions during the week have attempted to provide some of these opportunities, such as music, fitness, disco dancing, talent contests and crafts. As far as possible, some of these extra activities have been maintained through school holidays to preserve continuity and prevent isolation – siblings are invited to attend.
Safeguarding
Ensuring all the children who access our services are protected from abuse is vital and we continue to ensure our safeguarding procedures are fit for purpose and we act quickly where we suspect a child may be vulnerable to abuse or may have unmet welfare needs. We have regular safeguarding updates at trustee meetings which provide data on the numbers of concerns raised and outcomes. All members of the team, including every volunteer, are required to take the three-hour online NSPCC child protection course which ensures that every member of the DEx team has standard basic information across the organisation. Our CEO and the clinical lead act as safeguarding officers to ensure good practice and swift response is consistent in every DEx activity. We are delighted to welcome a new trustee safeguarding lead who has extensive experience and we look forward to working with her to improve our policies and practice. Policies can be viewed on the DEx website.
Within the wider context, we remain mindful and current in applying data protection (GDPR) and health and safety regulations.
Rationale behind DEx activities
In carrying out our mission to maximise the potential of children with DS, we know from experience and research that all our children have skills and talents that should be celebrated and developed to support them to be the best they can be; and to work towards more independence and employability. We deliver a holistic range of interventions that combine research-based therapies with supporting extension activities to benefit children with DS (aged 0 - 17) and their families. These vital services assist children to achieve more than was ever thought possible by being fully customised for the unique DS characteristics and learning profile; these customised activities are rarely provided by the state. Activities are also shaped by cost as the DEx trustees and team run a ‘lean machine’ – minimising waste, engaging in a range of fundraising activities to generate income and managing the business prudently in order to subsidise provision and serve as many families as possible within budget.
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The Activities
Some activities this year had to cease and, even if we can meet again at Sundial in September, our DEx mornings are likely to look very different depending on restrictions due to the pandemic, sensible precautions, how the team and families are feeling and costs. Stay and Play and Dexstars, described in previous reports, are part of the DEx package of support and provide areas where families and children, including siblings, can socialise informally and/or engage in activities such as music, crafts, exercises, sensory sessions, sandwich making and so on. This is of significant educational and support value but, sadly, will not be running when we re-open because of the crowding factor and vulnerability of many of the DEx children. Another ‘activity’ which will be thoroughly reviewed before next academic year is the assistance that many willing volunteers bring to DEx. If social distancing is still advisable in the next academic year, we will need to restrict numbers at Sundial and this will not only affect the way we operate but the number of volunteers we can work with.
Tweens – aged 10 – 16
Children and young people over 10 do not have therapies like the under 10s. Instead, they meet in small groups to learn life skills. Usually, these are taught and assessed in practical ways such as going shopping and by using a system called smiLE (sic) Therapy which relies on videoing actions and role playing. None of this is satisfactory online, so a new system of teaching these skills was developed early in lockdown with a range of supporting extension activities. The Tweens greatly miss meeting their friends so the Tweens team went more than the extra mile to provide additional activities during the week and throughout every holiday. Our oldest Tweens were due to leave DEx at 16 but we have kept them on for now until we can run a comprehensive exit-planning programme in person.
We now have 22 children in our Tweens group and a new Tweens team of five committed and experienced people including a very dedicated and skilled volunteer. The Tweens team have a range of skills and areas of specialist interests which complement each other. They have all learnt from each other’s expertise.
Despite lockdown we continued to work with our young people to help them build relationships with peers in all contexts, improve their levels of independence and work towards employability. We have been creative in our sessions and have offered a variety of different sessions with the aim of supporting the children, young people and families through a very difficult time whilst learning new skills.
We have helped them to stay fit and heathy by:
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offering dance workshops
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running weekly discos
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talking about and planning healthy meals
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creating a visual cookbook
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cooking live from our kitchens!
We have enabled them to make new friendships by:
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joining another community group
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meeting on Zoom outside DEx’s usual working hours
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providing events such as talent shows, a festival, fun and games sessions
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• creating their own WhatsApp group which is monitored by the team
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working on alternative ways of communicating with our friends.
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We have continued to learn about time and money and how to complete a form with personal details.
Our older Tweens have all chosen a new life skill to learn and have been proud to demonstrate their new skills. Most Tweens chose to make the bed or do the washing – including understanding how to sort the colours. One Tween chose to take responsibility for her daily medication.
We have all learnt new vocabulary: “Zoom”, “Lockdown” “You are on mute!”
DEx clinical interventions: customised Speech and Language Therapy (SLT) and Occupational Therapy (OT) for children aged 0 – 10 years old
Speech and Language Therapy (SLT)
Speech and Language Therapy provides treatment, support and care for children who have difficulties with communication or other difficulties such as eating, drinking and swallowing. DEx SLTs know they cannot provide pure SLT online and are keen to return to small group sessions in person. Examples of extension activities provided at DEx to support therapy sessions have been/are fitness exercises, live cooking, music making, yoga, dancing and laughter sessions.
Overview of the Covid-19 effect and an outstanding innovation
This year has been an extreme challenge for everyone involved in arranging our online small group therapy sessions – including the clinical team, support team, DEx children, their families and schools. However, we staunchly maintained our routine weekly provision and saw significant progress in many children and great efforts from everyone to overcome the challenges of ‘meeting’ on a screen. One exceptional achievement which has become integral to our methodology is the innovative introduction of DEx small group sessions into schools. Some 20 children join DEx group sessions from the school setting with their class teacher or teaching assistant; because we are online, parents/carers can attend too. This means that schools are learning about the language and learning profile of their child and specifically how to support them to flourish in these areas with our support. For example, our specialist therapists have been modelling and empowering families and school staff to successfully implement approaches such as whole word reading to support language and Makaton signing along with strategies such as hand over hand support and errorless learning.
High quality, weekly, tailored SLT provision is a must for children with Down syndrome (DS) whose language skills are the area of most need. Our experience and research show that children flourish with regular, targeted, dynamic therapy delivered by experienced and specialist therapists with whom our children have built rapport and trust. Our therapists have a deep understanding of each child’s language and learning profile. Regular, specialist therapy is largely unavailable to most of our children except via DEx. Funding for SLT across local authorities varies according to borough in a classic postcode lottery but is consistently declining year-on-year, with any provision offered tending to be intermittent and for timelimited periods. We know too that the pandemic has impacted further on the NHS and local authorities’ ability to deliver regular support. Where it is available, SLT is generally delivered by non-specialist therapists and is rarely customised for children with DS who have a unique language and learning profile, different from children with other learning difficulties. Highly specialised speech and language teaching and support is key to enabling our children to maximise their potential.
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DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
To fill this gap, we deliver weekly SLT in term time to small groups of children aged 0 – 9. Our therapists deliver research-based support, for example, we use the whole word reading approach to support language, use Makaton signs to support understanding and deliver working memory training to further underpin language skills. We provide small group therapy and, within this, ensure that each child’s individual profile is reflected and supported. DEx is in a unique position to deliver early intervention support for babies and young children and to be a consistent, highly specialist service through childhood and teenage years.
Each child's progress is measured by termly targets across a range of skill areas including attention and listening, play, social interaction, peer awareness, working memory, understanding of language, expressive language skills, and speech sound skills. Outcomes for all of our children are very positive and our work in partnership with parents and, where possible, nurseries and schools, means we are able to positively influence and support the child's communication and social environments, key influencers and partners.
SLT continues to be our central activity supported by a range of complementary interventions. SLT is always over-subscribed so to cater for increasing demand, we continue to seek ways to deliver elements of our speech and language provision outside the official groups so that all children can benefit from extended opportunities, whether they have a therapy place or are on the waiting list. The supplementary learning activities are described below.
At DEx, all our therapists have experience of working within a multidisciplinary framework. For example, close liaison between our SLT and OT teams ensures we address children’s sensory and motor needs in their SLT sessions. We understand the need to think holistically to ensure that each session provides maximum results for each child and their family.
Occupational Therapy (OT)
The DEx OT service has worked closely alongside SLT since April 2016. Occupational Therapy provides practical support to empower people to overcome barriers preventing them from doing daily activities. This increases people's independence and satisfaction in all aspects of life. An occupational therapist will consider all of the patient’s needs – physical, psychological, social and environmental. In working with children at DEx, our OTs contribute to sensory and emotional regulation which underpins their access to learning. Examples of extension activities provided at DEx have been/are fitness exercises, live cooking, music making, yoga, dancing and laughter sessions. Sadly, our wonderful Friday OT moved on in the spring half term to take up new challenges in her life; she has enriched DEx greatly. We are missing her already.
The Friday OT service adapted fairly well to online therapy sessions. Running successful sessions required some creativity and flexibility – it meant thinking carefully about using toys, materials and resources that families were likely to already have or could make at home, or had easy access to. We saw families in the baby groups making beautiful ribbon boxes for pincer grip practice; sensory pre-writing activities across all groups using homemade tastesafe finger paints or painting with water on chalkboards; and the toddler groups making wonderful sensory bins with dry rice or lentils to find toys in. It was really heartening to see families making such concerted efforts to enrich the therapy experience at home for their children, especially during such challenging times.
The online format lent itself well to running workshops for families on a range of topics such as: potty training, supporting positive behaviour, developing pre-writing and writing skills, dressing skills, feeding skills, babies' positions for play, and highlighting opportunities to develop OT-related skills in everyday tasks at home.
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DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
Although delivered in a different format, which came with unique challenges, the Friday OT service evolved and developed as a result of responding to the challenges faced, aiming to empower families to realise that there is much they can do at home to support their children's fine motor skill development and independence in their activities of daily living, eg feeding, dressing and toileting skills.
Saturday OT similarly adapted content and practice to accommodate the online format all last year. Everyone at DEx found that working online for group sessions and following up with families during the week, created much more work than pre-pandemic. Since the first lockdown, in sessions we have particularly supported: sensory and emotional regulation, positive behaviour and self-awareness. Children aged 5 – 10 years old and their families are learning to use the Zones of Regulation developed by Leah Kuypers to self-regulate more effectively. This programme of OT complements SLT through the use of common vocabulary, expressive language and Zones of Regulation.
Our Saturday OT also offered consultations around the schooling difficulties created for children with Special Educational Needs (SEN) during lockdown as provision from schools varied, eg as children’s customary learning support assistants were re-deployed; and there were transitioning difficulties when schools opened again. OT helped families discuss strategies and manage that. Also, our OT shared her experience by assisting families to complete the demanding Education, Health and Care plan form to ensure their child receives the state support needed to enable them to maximise their potential.
DEx activities that support further development and achievement
Carefully planned extension activities support children to reinforce and broaden their learning and skills in different contexts. These also assist families to work with their child in a range of settings and to learn how to take on a more meaningful role in their child’s development. DEx aims to work with every child’s family and school to create a circle of informed support and shared knowledge.
Maths and memory training
We are very pleased that during the last year, Happy Mind Training (HMT) provided nonclinical services as part of the DEx multidisciplinary team to children aged under 10 years old, to support their mathematical abilities and memory skills. The move to the online therapy from face-to-face was challenging, but the team managed to build a new service with families and children and the HMT provision was integrated into the package of support. The diagram below shows the different stages the clinical team went through in building a new process.
Working alongside the clinical team, HMT delivered one to one online consultation for families and provided learning resources to support maths and memory skills in the format of recordings made available to DEx families and lists of maths and memory apps, books, and games.
Additionally, we organised the ‘online Maths club’, a series of weekly sessions for parents and carers focused on specific maths topics, eg addition or two-digit numbers, to support parents to include maths and memory activities in their everyday life activities, eg while cooking. We also delivered evening workshops specifically for parents and carers to familiarise them with concrete resources to support the mathematical development of their children, such as Numicon and Cuisenaire rods.
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Music
We are indebted to our community musician who used to come along as a volunteer and lead large group singing sessions in Dexstars. When DEx closed, he immediately scheduled two sessions each Saturday and apart from one unavoidable absence has provided music every week and all through holidays since March 2020. Over 40 children and their families have joined in during the year to learn new songs, play any instrument including saucepans, dance and have fun and learning time together. The children and young people meet new friends outside their usual groups, have grown in confidence on Zoom, follow instructions such as ‘freeze’ and ‘break it down’, are learning a range of musical skills including keeping time and making tuneful sounds, eg ‘ooooh’ and ‘bababa’. Our musician also held two online fundraising concerts during the year.
Fitness
We have been proud to partner Sport Works in applying for Sport England funding to provide fun and friendly fitness sessions for two DEx groups per week for 32 weeks – due to finish early June 2021. Overall, 25 families – DEx children, siblings and adults – attended the sessions for ‘olders’ and ‘youngers’ and the older group is now learning fitness-related vocabulary, to remember sequences and to lead their own sets of exercises. We hope to raise more funding to continue this useful addition to routine DEx sessions and will include a further element around healthy lifestyle.
Down syndrome-focused training
This year, we worked hard to create opportunities to maintain our training for team members, families and other professionals, albeit all online. DS-focused training starts with the premise that we are all key workers when in contact with children with DS because every opportunity is a learning opportunity for the child and an opportunity to ‘get it right’ for the adult – including families.
Children with DS have a unique language and learning profile. If this is understood it revolutionises the expectations and approaches or methodologies adults will use. All too often adults working with and/or living with children with DS have not read, or are unaware of, the body of research in this area. Sharing our expertise, knowledge and outcomes is absolutely necessary and key to ensuring the profile of children with DS is understood, and that evidence-based practices are employed to overcome challenges and promote the best outcomes for children so they can truly maximise their potential.
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Training for DEx families
Consultations – All DEx families have been offered individual consultations during the week on an ad hoc basis and the take up has been continual. This has added to the pressures on the DEx team but is a service we would like to continue in some way, if possible, into the future.
Parent Child Interaction Therapy (PCIT) is an evidence-based treatment for children 2 – 7 years of age with social, emotional and behavioural challenges. Caregivers learn how to deliver clear, direct commands to reward child compliance, and utilise effective strategies for child noncompliance. Some of our Friday families were assisted with PCIT.
Friday therapists have been working with families and school staff to train them to use interventions such as whole word reading for language/shape coding effectively for their child in sessions. The families’ and schools’ staff learning has been supported week to week led by OT with a range of workshops supporting potty training, positive behaviour, developing pre-writing and writing skills, dressing skills, feeding skills, babies' positions for play and using opportunities to develop OT-related skills in everyday tasks at home.
Makaton training
To support communication with their children from the earliest age, we ran two five-week ‘Makaton for Babies’ courses for 12 Friday families. Unlike British Sign Language, in Makaton signs and symbols are used together with speech in spoken-word order – this can assist progression to spoken sentences. For most of our children and families, Makaton is the first method of communication they are able to use to indicate wants or make themselves understood. An amazed mum said ‘I don’t have to guess any more. She can now tell me when she is thirsty! In 18 months, she has never been able to do that’.
Schools/key workers
For many years, we have encouraged the staff in our DEx children’s schools to learn from us how to help children with DS to achieve – and more specifically, how to help their particular child. Many schools are not interested but those that do embrace the training are bowled over by the insights and at the progress their child subsequently makes. This year, instead of offering a day’s training, we developed a series of 1.5-hour online workshops accessed from the school settings. There were six modules: Introduction to Down syndrome; The speech, language and learning profile of children with DS and practical strategies for supporting these; Understanding and supporting the sensory needs of children with DS; Supporting positive behaviour; Reading for language and learning; and Using visual support effectively. Around 20 staff and 12 schools attended each module and found this a very convenient method.
We had feedback that the training was impactful and meaningful for attendees. This was because our team know each child and were able to tailor the training, advice and support for each attendee. Online training enabled schools to attend weekly from a range of locations. Each module complemented the other and whilst schools could pick and choose their modules, most opted in for the whole series meaning their learning of each topic was enriched and embedded. We will continue school training online in the future.
Developing trainee SLTs
Pre-pandemic, we worked closely with the linguistics department at University College London (UCL) and are building relationships with the Universities of Greenwich, City and Kingston. Students would volunteer with us on Saturdays to assist with group therapy sessions and practise their skills in different ways in Dexstars and Tweens. The online delivery made this impossible and sadly, the under-10s team have run sessions without
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volunteer assistants for the first time in many years. However, the Tweens are working with our sole session-assistant volunteer this year who is planning a career change with a view to studying SLT from next September. She has greatly enhanced Tweens in many ways and we hope to have assisted her towards her ambition. Also in Tweens, one of our previous volunteers who joined DEx in 2016 in her first SLT year at UCL, progressed from volunteering to paid assistant and is now working every week as a well experienced session leader in Tweens. Previous student volunteers keep in touch, ask for references and, this year, even volunteered to write applications for grants. UCL continues to develop research projects based on DEx children and families and with DEx partnering.
Training for professional development
All the DEx team are freelancers and mostly fund their own professional development. This year the team engaged with a range of topics which will enhance the DEx services, including:
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SCERTS which focuses on building competence in Social Communication, Emotional Regulation and Transactional Support – helping a child become a competent and confident social communicator, while preventing problem behaviours that interfere with learning and the development of relationships.
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The Intensive Interaction approach examines the fundamentals of communication and early interaction abilities in theory and practice.
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Two members of the team attended the international Down Syndrome Research Forum where one gave a talk on ‘Online group therapy sessions with children with Down syndrome: What we have learnt’ (Erica Ranzato, Downright Excellent, UK, UCL London, UK). A paper on maths development is in progress.
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Kairos Project coaching in organisational leadership and management.
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Third Sector fundraising conference – two days.
All the team took advantage of the many free online webinars and training.
Achievements and erformance p
Despite the challenges and stresses, DEx has survived as an organisation and a community – that alone is undoubtedly our greatest achievement this year. We have overcome the challenges of:
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a large gap in income and difficulties in fundraising
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our DEx community being scattered across London and further afield, unable to meet up
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confused and isolated children and young people needing innovative support
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a fundamentally interactive, hands on, face-to-face, dynamic service being entirely recast online
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a small delivery and support team responding to these issues, attending to wellbeing of themselves and others, working harder than ever through the pandemic and struggling with fatigue as cheerfully as possible.
Thanks to the amazing teams – delivery, support and trustees, DEx has pulled through, been strengthened in many ways by the experiences and is now determined to continue strongly into the future. Our children and families have been equally amazing and supported DEx – especially in adopting new formats and assisting in much needed income generation.
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Some notable features of 2020 – 21
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DEx now has a beautiful and functional new website that was started with the help of Octopus Group and fully remodelled and completed by a skilled and creative DEx parent during 2020. This greatly improves our public image and will attract new families and funders.
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As predicted in last year’s report, the DEx digital team has grown from one ex-trustee managing Facebook to a small team scheduling attractive posts, adding Instagram and Twitter to our menu and assisting with fundraising in practical ways and through planned publicity. They are greatly contributing to a programme of regular larger fundraising events and they aim to increase the DEx supporter base.
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We were able to keep low-cost extension activities going through the year to complement therapies, reinforce skills and introduce new skills. These are all a necessary part of the DEx package because 30 – 45 minutes of therapy per week alone is insufficient to embed the lessons learned or help children maximise their potential.
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Board skills and membership have considerably increased this year and despite the limitations of online work, the trustee team are working effectively together and developing their individual roles.
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Our two oldest Tweens are approaching 18 and have been with DEx since toddlers. They have always led the longitudinal growth of DEx as we increased provision for ever older children. They are the first Tweens to have reached this age and be on the verge of leaving DEx – and their stories will be continued in the 2021/22 report.
Routinely, DEx:
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continued to provide Speech and Language Therapy, Occupational Therapy and essential life skills with complementary support and extension activities online to children in London and beyond
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continued to support the families, extended families and carers of DEx children and developed new ways of providing support
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continued to develop DS-focused skills in the wider world by working particularly with key staff in schools
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continued to build great relationships with sponsors including Octopus Group, Sport Works, Herts Disability, UCL and the Press Association.
Also, developed:
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all our activities by reproducing everything possible online; expanding our reach and services; reviewing and improving practice
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the DS-focused online modular training for schools
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holiday activities for continuation of learning, friendship and fun
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our commitment to expand our children’s learning by delivering more structured maths opportunities to many of our 5 – 9-year-olds
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where possible, created individually customised sessions for children with severe challenges.
We have:
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successfully moved many activities online and re-imagined our provision to support children and families – this grew in expertise and content through the year
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strengthened and developed policies and procedures, finance systems and governance
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improved our digital functions by introducing communications for video conferencing to all the team and our families, provided devices for some children so they could
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continue to engage in sessions; changed to a more efficient email system and recruited a skilled volunteer digital team
- engaged in current research through provision of data and facilities for external researchers, submitting research bids for joint projects with UCL.
How our activities meet the public benefit
We have due regard to the Charity Commission's guidance at all times and comply with guidance on public benefit. We refer to it, in particular, when reviewing our aims and objectives and in planning future activities. Downright Excellent’s purpose is ‘to enable children with Down syndrome to maximise their potential’.
The charity’s objects are:
To help children with Down syndrome develop their life skills so they may reach their full potential as individuals and equally participating members of society through, especially but not exclusively:
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educational programmes
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quality play
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education and support for parents and carers
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education and support for siblings.
The public benefits that flow from purpose and objects are:
1] for children with Down syndrome (DS):
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improved skills, particularly communication, social and life skills – through a broad range of professionally customised activities and interventions leading to greater opportunities and achievement throughout life, and increased productivity and happiness as a result.
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2] for their families, including extended family members:
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a sense of belonging and support and of acquiring the knowledge and information – through interaction with other families in similar situations; consultation with professionals experienced in DS; opportunities to attend topic-based training and forums. This leads to less anxiety and depression, and increased ability to assist their child’s development.
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3] for their key workers and other professionals such as school staff and therapists:
-
understanding of the unique learning profile and characteristics of DS and the ability to use this in a variety of contexts – through ongoing interaction with the charity’s team of workers and by attending training workshops, leading to a greater number of people in the community working effectively, assisting people with DS to develop, and thereby saving resources.
No harm nor private benefit arises from these purposes or activities. We review our aims, objectives and activities on a regular basis to evaluate what we have achieved and the outcomes of our work. We evaluate the success of our main activities and the benefits they have brought to our children, families and key workers. We use a range of methods including surveys, feedback and individual assessment and we continue to develop the building blocks for impact measurement. Suggestions for additional activities and projects are compared with the charity’s objectives at board level before being piloted. We rigorously monitor expenditure to keep costs as low as possible and to avoid waste.
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DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
Financial review
The impact of the year
2020/21 has been a difficult year for the charity and for those responsible for income generation and sustaining the business. Moving as many services as possible online and not meeting up at all resulted in an increase in some costs and a reduction in others. Reductions were seen as the landlord very generously waived all rent while we are not at Sundial which resulted in over £11k savings; there were no volunteer or travel expenses and none connected with Stay and Play or Dexstars. Savings in equipment and materials were offset by higher postage costs as handouts were posted to families without printers. Other cost increases were involved in paying for adequate video conferencing facilities for those delivering sessions; higher total fees as development and support hours increased; online teaching aids such as individual whiteboard kits; tablets for homes with nothing more than one mobile phone shared with siblings – and more. Costs increased but opportunities for fundraising decreased as trust funders turned their attention to charities visibly on the frontline; opportunities for routine fundraising activities dried up and many historical donors became short of cash as restrictions bit. This meant that by the end of August, we had used up all reserves, all grant applications had been rejected and some donations we relied upon had not materialised. Although we received generous donations from Octopus, our corporate partner, and a few DEx families fundraised valiantly, we faced a deficit of at least £30k by the end of the financial year. In response, fundraising efforts redoubled and diversified further as seen below, with the result that DEx was able to cover all costs in 2020/21 and will carry forward £91,824 into 2021/22.
One decision that was taken reluctantly by trustees, given the impact of the pandemic on many family finances, was to increase the level of contribution made by DEx families to our highly subsidised package of interventions. Families were consulted and given options so we could set the contributions at fair rates for everyone. Some families have generously offered to contribute more while others do what they can even if on benefits. Most recognised that they are still receiving a highly specialist and subsidised service even while online. At the start of 2021, therefore, the level of family contributions rose from around 18% to around 30% of our current annual budget.
Headline figures reflecting the different types of fundraising and income
Following several years of stable financial performance recorded in annual reports, the 2020/21 finances were not stable nor predictable. Stability was provided by the continuation of the charity meeting its objects to educate and support children with DS and their families. Our total income for the year decreased only slightly from £243,987 to £240,716, a decrease of less than 1.5%. We continued to pursue our policy of diversifying income sources as demonstrated in the following figures and tables.
Correspondingly, our expenditure for the year decreased from £220,019 to £209,920, a decrease of 4.6%. The results for the year are shown in the Statement of Financial Activities and the main sources of funds are as detailed in notes 2 and 3. The charity is exempt from corporation tax as all its income is applied for charitable purposes.
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DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
| Income breakdown | 2021 | 2020 |
|---|---|---|
| £ | £ | |
| Corporategrants & donations | 80,861 | 79,537 |
| Parent/carer contributions | 56,741 | 40,751 |
| Trust and othergrants | 42,392 | 95,449 |
| Fundraisingactivities | 25,403 | 10,441 |
| Other donations | 27,075 | 16,534 |
| Other income | 8,244 | 1,275 |
| Total | 240,716 | 243,987 |
----- Start of picture text -----
2021 - income breakdown
Corporate grants & donations Parent/carer contributions
Trust and other grants Fundraising activities
Other donations Other income
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----- Start of picture text -----
2020 - income breakdown
Corporate grants & donations Parent/carer contributions
Trust and other grants Fundraising activities
Other donations Other income
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DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
----- Start of picture text -----
Income vs expenditure
£250,000
£240,000
£230,000
£220,000
£210,000
£200,000
£190,000
Income Expenditure
2020 2021
----- End of picture text -----
Supporters, funders and fundraising
Last year brought plenty of scares but also revealed many opportunities, amazing support for the organisation and a far brighter financial future going into the new financial year. Some of the highlights are listed below.
Fundraising highlights
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Our trustee who has taken on the role to support fundraising recruited a volunteer team to help research and write funding applications; led two trustee workshops and prepared excellent presentations; personally raised funding by hosting online events and is a great support to the CEO.
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One DEx family raised nearly £10,000 in a range of innovative initiatives from artworks created in lockdown, a massive online quiz in lieu of the annual pub quiz to handcrafting items for sale such as snoods, greetings cards and ear savers and assisting with appeal letters.
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The digital team took shape in January and worked hard to publicise and support the Take on 21 Challenge to mark Down Syndrome Awareness Week in March – an event that encouraged families and friends to cover 21 miles in different ways and combine the total. The event raised around £18k – much of that from the digital team’s own supporter base.
-
We wrote many grant applications from May onwards with a team of helpers from Octopus Group and DEx families, thanks to all of them. Just in time, a CAF Resilience Fund grant of around £37k was awarded and this ensured DEx would operate to the end of March.
-
We launched the Festive Appeal at the end of 2020 and raised nearly £7k with a range of activities such as an online quiz, a yoga session, a singalong concert – not having the digital team at this point meant our publicising was less effective.
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We continued to raise awareness of the ‘low hassle’ fundraising and to encourage as many supporters as possible to sign up to free online shopping donations and to buy DEx all original e-cards.
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DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
Corporate partners
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DEx received incredible support from Octopus Group for three years – in an annual £25k unrestricted grant; support from many skilled and lovely volunteers in person at Sundial and working with us from their desks on infrastructure; additional surprise donations raised in various wacky ways and endless personal support from the Octopus Giving team. DEx has benefited hugely from the expertise and generosity and are saddened to be at the end of our partnership. However, Octopus Group enjoyed working with us so we will remain linked in the future and DEx still has friends at Octopus Group who will continue to help with technical issues or offer specialist support.
-
Finding a replacement for Octopus Group will be so tricky but we are lucky to have attracted a skilled volunteer with professional experience who will assist in the search.
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We are delighted to announce the Press Association is interested in offering DEx the opportunity to bid for a partnership next October. Meanwhile, they have been very generous in extending friendship and offering in-kind gifts such as high-end training, invitations to webinars and the chance to join their payroll giving scheme.
-
We welcome any offers of partnership from congenial organisations.
We also received funding from: the British Science Association for Science Week; Sport England in a partnership with Sport Works; Movement for Good; the Co-op Local Community Fund; and the Property Race Day fund is still on hold until we can safely return to Sundial and begin to roof an outside learning space.
The current income generation strategy is to: diversify our funding sources even further; continue to seek sustainable sources of income; continue to build the volunteer fundraising teams; and expand the digital possibilities as far as capacity will allow.
Finally, DEx trustees will continue to be prudent and flexible as the pandemic continues to unfold in order to sustain DEx as a going concern and a robust business.
Reserves policy
‘Annually or more frequently, if deemed necessary, the board of trustees will review the charity’s requirements for reserves in light of the financial risks to the organisation. It is the policy of the charitable company that unrestricted funds which have not been designated for a specific use should be maintained at a level equivalent to a term’s operational expenditure. The maximum number of weeks in a term is 15 and trustees aim to maintain reserves at this level and to use money received via unrestricted donations and other fundraising activities (including Gift Aid) to build up the reserves. This will ensure that in the event of a significant drop in funding, they will be able to continue the charitable company's current activities while consideration is given to ways in which additional funds may be raised.
As at 31 March 2021 the level of free unrestricted reserves required to comply with our reserves policy is £60,500 (2020: £61,736) which equates to about 15 weeks of budgeted operational expenditure in 2021/22. As at 31 March 2021 free reserves of £91,824 were held which is in excess of policy, however, should there be a funding shortfall, these reserves will be used to top up. This will allow time for Downright Excellent to obtain new sources of funding and/or families to make alternative arrangements.
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DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
Governance and management
Downright Excellent is a registered charity and company governed by a Memorandum and Articles of Association. It is overseen by a skilled board of trustees from a range of backgrounds who meet every six to eight weeks to review finances against budgets, set the strategic direction, develop and implement policies and procedures, review safeguarding concerns, manage risk and make decisions about the charity’s future. The charity trustees are also directors of the company for the purposes of charity law and direct the charity in accordance with the company’s Articles. The charity’s Articles, which date back to 2007, have been updated to bring them in line with current Charity Commission recommendations and to make slight alterations to the objects as detailed on the first page of this report.
All trustees give their time voluntarily and receive no benefits from the charity. Any allowable expenses claimed are set out in the accounts. The board continued to use the meeting agenda schedule that was introduced in 2018 and developed it further. During the pandemic, several extra meetings were held to discuss the financial situation, plan scenarios and develop fundraising initiatives while the Chair, Treasurer and CEO kept in close contact and maintained a watching brief throughout.
Owing to the relatively small size of Downright Excellent’s support team, all trustees proactively assist in the task of running the organisation, for example, the Chair writes letters of thanks while another is Data Protection Officer (DPO) and oversees GDPR compliance. A recently appointed trustee has agreed to lead on safeguarding while other trustees are responsible for overseeing compliance and assistance with fundraising. All these highly responsible tasks are essential for the effectiveness of the charity business and good governance; the extra time and expertise donated by trustees greatly increases capacity and quality at DEx.
The process of working through the self-assessment requirements for the ‘Trusted Charity’ quality mark was put on hold in March 2020 and we will resume when time permits. It is a useful exercise that helps us to identify gaps in processes and structures which we are working to improve and subsequently will underpin our approach to governance and accountability.
Risk systems statement
The trustees of Downright Excellent have given consideration to the major risks to which the charity is exposed and satisfied themselves that systems or procedures are established in order to manage those risks. This is in line with the Charities (Accounts and Reports) Regulations 2008 (these apply to organisations who are required to have their accounts audited. Downright Excellent is below that threshold so works with an independent examiner but the trustees are keen to follow good practice in this area).
A register of risks is maintained, updated and regularly reviewed and discussed by the trustees. As part of this process, major risks are identified, along with their likelihood and likely impact, with mitigating circumstances or actions noted. Some of the major risks identified over the past year include:
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A reduction in income as a result of the pandemic (including individual giving and income from grants)
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An increase in the cost of our services (including through moving services online during restrictions and easing out of lockdown)
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Risks related to the return to face-to-face activities as restrictions ease
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A lack of therapists specialising in Down syndrome (SLTs and OTs).
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DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
Management
DEx is managed by part-time self-employed freelancers – a CEO, supported by an administrative and finance function. The freelance CEO provides operational management of the charity as well as line management of our freelance multidisciplinary team of therapists, professionals and coordinators; she also manages our team of volunteers and leads on fundraising initiatives including applications for grants. Our no longer brand-new administrator has brought efficiency and warmth to DEx and has formed an indispensable part of the team that supports DEx families through sensitive communication, cheeriness and problem solving – in addition to supporting the team.
We sadly announce that our bookkeeper and financial adviser is retiring after a nearly unbroken 12 years of stalwart service at DEx, supporting the CEO and trustees to maintain good financial governance and probity through the best times and the less good. She contributed greatly to the development of DEx from the 19 families in 2009 to nearly 120 families today; she will be much missed in many ways. On a brighter note, the vacancy has provided the opportunity to review the finance function and tasks and to recruit accordingly. We look forward to a new chapter in finance at DEx.
Trustee Board
It’s been a year of development on the DEx trustee board. Through May and June, we unsuccessfully advertised for a deputy treasurer with a good level of charity finance experience to assist our treasurer (who is also a DEx mum and an ace fundraiser). Through the recruitment process, we found and appointed a qualified new board member to lead on finding corporate partners but we did not find our deputy treasurer. Our treasurer nobly stepped into the deputy role so we could advertise for a treasurer with charity finance experience and we were lucky enough to recruit exactly the right the person in August 2020 – just in time to steer us through a very rocky six months when we were not sure if we would generate enough income to see DEx through to the end of the year. Our now deputy treasurer retired in January 2021 to spend more time with her little boy who was finding online school a challenge. On the same day we appointed an excellent new deputy treasurer -in-training to the board. Towards the end of 2020, we advertised specifically for a trustee to lead on safeguarding as we had not been able to replace the lead who retired in January 2020 from the current board members. We were so lucky to recruit a renowned safeguarding expert who will review all policies and practices. These appointments have ensured that DEx remains a dynamic and robust organisation. We see this as a really positive development in DEx’s evolution; enabling us to bring new skills and experience to the strategic direction, governance and scrutiny of DEx activities, thus enabling us to assist DEx children to maximise their potential into the future.
Thoughts from our Chair, James Davis after his first 15 months
It’s been a very challenging and difficult past year for the organisation and, overall, my view is that DEx has finished the year in a far stronger and more developed way by truly embracing and benefitting from the extreme challenges.
The dire fundraising situation through the pandemic actually helped us to recruit many willing volunteers which means that instead of DEx relying on one key funder (as has been the case since its inception in 2007), we have been able to greatly develop the multi-channel fundraising strategy which was launched in 2014. We are still learning how best to position the organisation here, but this strategy is gathering momentum nicely.
Clearly, Covid-19 has affected so many organisations and people in so many different ways. When we shut down face-to-face services two weeks before the March 2020 lockdown, an easy response would have been for DEx to have become dormant. But everyone pulled
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DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
together and DEx has developed in a way that could have taken many years to achieve. The move to online has required the organisation to totally reassess how it runs children’s sessions and the content that works; the multidisciplinary team very much take the credit for the success of the visible delivery online.
Various parts of the organisation have moved on dramatically in the past 12 months. The skill set and amount of resource within the trustees has developed, allowing the organisation to continue to punch above its weight and to grow. DEx now has its own digital team of skilled volunteers which is massively driving forward our communications and ability to publicise fundraising activities. The finance function of the organisation has grown, in terms of the number of people and skills, to be more robust and to meet future needs.
The future is an interesting one, keeping the service as it is (online only) for teaching and therapy sessions would be missing a trick when Covid-19 restrictions are lifted. But only returning to how DEx previously operated would be going backwards in its development. The challenge going forward is how to make best use of operating online whilst appreciating the value of physically meeting up, in terms of the social factor and what more the team can deliver face-to-face.
With so much uncertainty facing all of us over the past 12 months, it really is outstanding to be able to share that the organisation is in a more robust position, compared to all our fears and concerns at the start of and during last year. The whole charity sector has faced so many challenges and it is a credit to everybody involved in DEx, including all the families, that the organisation has survived and is in a good state of health.
Trustee Board – membership and appointment
Appointment and retirement of trustees is in accordance with the Articles of Association which require that appointment and retirement should be by ordinary resolution. Trustees are appointed or co-opted during the year by the directors/trustees. Currently, a proportion of trustees retire in rotation at each Annual General Meeting (AGM) and individuals may be reappointed or elected at that meeting, as per Articles 25 – 30. Co-opted trustees are formally appointed to the board at the next AGM. Officers are elected in the board meeting following an AGM.
Members of the trustee board consist of both beneficiaries (parents of children with Down syndrome who attend DEx) and non-beneficiaries to provide an effective range of experience and skills. Over recent years, we have ensured representatives of both Friday and Saturday children sit on the trustee board to cover all age groups. Such a mix means that the needs of DEx families remain at the heart of what we do and decisions are co-produced, whilst guaranteeing that decisions are taken in the best interests of the charity and remain in line with its purposes. This enables us to continue to provide crucial services to children with DS and their families while maintaining a sound business. We complement this with regular surveys and informal interviews with our families to understand need and impact, and to obtain feedback.
Trustee training and induction
The organisation conforms to current practice in the sector through specific written policies and procedures which are reviewed regularly by the trustees. All trustees receive a thorough induction and observe a signed code of conduct. They perform their tasks and responsibilities according to role descriptions and share in striving for DEx to become a centre of excellence.
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DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
Reference and administrative details
Registered charity name Downright Excellent Charity registration number 1120863 Company registration number 06249083 Registered office 44 Mount Pleasant Road London NW10 3EL
Directors/Trustees
James Davis, Chair
Anasuya Iyer
Christina Leath (appointed 28.1.2021)
George Barbett, Deputy Treasurer (appointed 28.1.2021)
Lewis Eldridge
Louise Ramsay,Treasurer/Deputy (retired 28.1.2021)
Nishad Gudhka
Rajeelan Thayalaseelan, Treasurer (appointed 1.10.2020)
Setareh Golchin (appointed 16.7.20, resigned 28.1.2021 due to ill health)
Secretary Rajdeep Dehal Bankers CAF Bank Ltd 25 King Hill Avenue West Malling ME19 4JQ
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DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
Exem tions from disclosure p
We do not have exemptions.
Funds held as custodian trustee on behalf of others
We do not hold funds on behalf of another individual or organisation.
Trustees’ Res onsibilities p
Company law requires the trustees (who are directors under company law) to prepare financial statements for each financial year that give a true and fair view of the state of the affairs of the charity and of the surplus or deficit for that period. The trustees have agreed to adopt the Statement of Recommended Practice – Accounting by Charities. In preparing the financial statements, the trustees are required to:
-
select suitable accounting policies and then apply them consistently
-
make judgements and estimates that are reasonable and prudent
-
prepare the financial statements on a going concern basis, unless it is inappropriate to assume that the charity will continue in business.
The trustees are responsible for keeping proper accounting records which disclose with reasonable accuracy at any time the financial position of the charity and enable them to ensure that the financial statements comply with the Companies Act 2006 and the requirements of the Charities Act 2011. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps to prevent and detect fraud and/or any other irregularity.
Approved by the trustees on 24.6.2021 and signed on their behalf by:
James Davis Chair, Downright Excellent
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DOWNRIGHT EXCELLENT TRUSTEES ANNUAL REPORT AND FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
Inde endent Examiner’s Re ort to the Members p p
I report to the charity trustees on my examination of the accounts of Downright Excellent (‘the Company’) for the year ended 31 March 2021 which are set out on pages 24 – 33.
Responsibilities and basis of report
As the charity trustees of the Company (and also its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 (‘the 2006 Act’).
Having satisfied myself that the accounts of the Company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity’s accounts as carried out under section 145 of the Charities Act 2011 (‘the 2011 Act’). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
Independent examiner’s statement
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe:
-
1) accounting records were not kept in respect of the Company as required by section 386 of the 2006 Act or
-
2) the accounts do not accord with those records or
-
3) the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a ‘true and fair view’ which is not a matter considered as part of an independent examination or
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4) the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102).
I have no concerns and have come across no matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Karen Hanlan Date: 24.6.21 Member of Institute of Chartered Accountants England & Wales Karen Hanlan Independent Examiner Ltd 12 Waterloo Close Wellesbourne CV35 9JG
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DOWNRIGHT EXCELLENT STATEMENT OF FINANCIAL ACTIVITIES (INCORPORATING THE INCOME AND EXPENDITURE ACCOUNT) YEAR ENDED 31 MARCH 2021
| Unrestricted | Restricted | Total Funds | Total Funds |
||
|---|---|---|---|---|---|
| Funds | Funds | 2021 | 2020 | ||
| Note | £ |
£ | £ | £ | |
| INCOME FROM | |||||
| Donations & legacies | 2 | 100,538 |
11,318 | 111,856 | 59,760 |
| Charitable activities | 3 | 87,661 |
41,142 | 128,803 | 184,045 |
| Investments – bank interest | 57 | - | 57 | 182 | |
| --------------------------------------- | --------------------------------- | --------------------------------------- | --------------------------------------- | ||
| TOTAL INCOME | 188,256 | 52,460 | 240,716 | 243,987 | |
| --------------------------------------- | --------------------------------- | --------------------------------------- | --------------------------------------- | ||
| EXPENDITURE ON | |||||
| Raising funds | 4 | (7,137) |
- | (7,137) | (6,496) |
| Charitable activities | 5 | (151,031) |
(51,752) | (202,783) | (213,523) |
| --------------------------------------- | ----------------------------------- | --------------------------------------- | --------------------------------------- | ||
| TOTAL EXPENDITURE | (158,168) | (51,752) | (209,920) | (220,019) | |
| --------------------------------------- | --------------------------------- | --------------------------------------- | --------------------------------------- | ||
| NET INCOME AND NET | |||||
| MOVEMENT IN FUNDS FOR | |||||
| THE YEAR | 30,088 | 708 | 30,796 | 23,968 | |
| Transfer of funds | - | - | - | - | |
| RECONCILIATION OF FUNDS | |||||
| Total funds brought forward | 61,736 | 510 | 62,246 | 38,278 | |
| --------------------------------------- | ----------------------------------- | --------------------------------------- | --------------------------------------- | ||
| TOTAL FUNDS CARRIED | |||||
| FORWARD | 91,824 | 1,218 | 93,042 | 62,246 | |
| ======================================= | ================================= | ======================================= | ======================================= |
The Statement of Financial Activities includes all gains and losses in the year and therefore a statement of total recognised gains and losses has not been prepared.
All of the above amounts relate to continuing activities.
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DOWNRIGHT EXCELLENT
BALANCE SHEET Company No 06249083
YEAR ENDED 31 MARCH 2021
| 2021 | 2020 | ||||
|---|---|---|---|---|---|
| Note | £ | £ | £ | £ | |
| CURRENT ASSETS | |||||
| Debtors – Gift Aid due | 1,085 | 934 | |||
| Cash at bank and in hand | 131,580 | 137,272 | |||
| --------------------------------- | -------------------------------- | ||||
| 132,665 | 138,206 | ||||
| CREDITORS: Amounts falling | |||||
| due within one year | 6 | (39,623) | (75,960) | ||
| --------------------------------- | --------------------------------- | ||||
| NET CURRENT ASSETS | 93,042 | 62,246 | |||
| ---------------------------- | ---------------------------- | ||||
| NET ASSETS | 7 | 93,042 | 62,246 | ||
| ============================ | ============================ | ||||
| CHARITY FUNDS | |||||
| Restricted Funds | 8 | 1,218 | 510 | ||
| Unrestricted Funds | 91,824 |
61,736 | |||
---------------------------- |
---------------------------- | ||||
| TOTAL FUNDS | 93,042 | 62,246 | |||
| ============================ | ============================ |
For the year ended 31 March 2021, the company was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies.
Responsibilities of directors/trustees:
The members have not required the charitable company to obtain an audit of its financial statements for the year in question in accordance with section 476 of the Companies Act 2006 – however, in accordance with section 145 of the Charities Act 2011 the financial statements have been examined by an independent examiner whose report appears on page 23.
The directors/trustees acknowledge their responsibility for complying with the requirements of the Companies Act with respect to accounting records and the preparation of accounts.
These financial statements were approved by the trustees on 24.6.2021 and signed on its behalf by:
James Davis, Chair
Rajeelan Thayalaseelan, Treasurer
The notes on pages 26 to 33 form part of these financial statements.
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DOWNRIGHT EXCELLENT NOTES TO THE FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
1. ACCOUNTING POLICIES
Basis of accounting
The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (updated 1 January 2019) – (Charities SORP (FRS102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) and the Companies Act 2006.
Downright Excellent meets the definition of a public benefit entity under FRS102. Assets and liabilities are initially recognised at historic cost or transaction value unless otherwise stated in the relevant accounting policy note.
Status of the company
The charitable company is limited by guarantee and does not have share capital. The liability of members is limited to £10 per member.
Going Concern statement
The financial statements have been prepared on a going concern basis which assumes that the charity will continue to operate. The validity of this assumption is dependent upon the continuance of support from key funders and stakeholders and in response to the progress made by the charity in pursuing a viable budget including the obtaining of further grants and donations. The charity’s business plan shows that the charity will be able to operate in the foreseeable future. Based on this understanding the director of trustees believes that it remains appropriate to prepare the financial statements on a going concern basis. The financial statements do not include any adjustments which would result from the basis of preparation being inappropriate.
Income
All income is recognised once the Charitable Company has entitlement to the income, it is probable that the income will be received and the amount of income receivable can be measured reliably.
Expenditure
All expenditure is included on an accrual basis, inclusive of any VAT, which cannot be recovered. Expenditure is allocated to specific activities where the cost relates directly to that activity.
Unrestricted funds
Unrestricted funds are available for use at the discretion of the trustees in furtherance of the charitable objectives of Downright Excellent.
Restricted funds
Restricted income received is accounted for separately as restricted funds and are used for the purposes specified by the donor.
Taxation
As a registered charity no provision is considered necessary for taxation.
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DOWNRIGHT EXCELLENT NOTES TO THE FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
Cash and cash equivalents
Cash and cash equivalents include cash at bank and in hand and short term deposits repayable on or within a three month notice period.
Debtors
Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.
Creditors
Creditors are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably.
2. DONATIONS & LEGACIES:
| Total | |||
|---|---|---|---|
| Unrestricted | Restricted | Funds | |
| Funds | Funds | 2021 | |
| Donations: | £ | £ | £ |
| Sponsored Activities | 18,460 | - | 18,460 |
| Other Fundraising Activities | 6,943 | - | 6,943 |
| Other Donations | 21,969 | 11,318 | 33,287 |
| Octopus Group | 49,650 | - | 49,650 |
| Gift Aid | 3,516 | - | 3,516 |
| -------------------------------- | -------------------------------- | -------------------------------- | |
| 100,538 | 11,318 | 111,856 | |
| ================================= | ================================= | ================================= | |
| Total | |||
| Unrestricted | Restricted | Funds | |
| Funds | Funds | 2020 | |
| Donations: | £ | £ | £ |
| Sponsored Activities | 1,573 | - | 1,573 |
| Other Fundraising Activities | 10,441 | - | 10,441 |
| Other Donations | 45,154 | 500 | 45,654 |
| Ecclesiastical Insurance | 1,000 | - | 1,000 |
| Gift Aid | 1,092 | - | 1,092 |
| -------------------------------- | -------------------------------- | -------------------------------- | |
| 59,260 | 500 | 59,760 | |
| ================================= | ================================= | ================================= |
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DOWNRIGHT EXCELLENT NOTES TO THE FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
3. CHARITABLE ACTIVITIES:
| CHARITABLE ACTIVITIES: | ||
|---|---|---|
| Grants (3a) Parent/carer contributions PCC Summer Programme Training activities Grants (3a) Parent/carer contributions GRANTS: CAF Resilience Fund Octopus Group Sport England British Science Association The Rhiannon Trust Trees of David Solomon CT The National Lottery Community Fund Octopus Group The Funding Network Sport England |
Unrestricted Funds Restricted Funds Total Funds 2021 £ £ £ 26,250 41,142 67,392 56,741 - 56,741 1,270 - 1,270 3,400 - 3,400 -------------------------------- 87,661 ================================= -------------------------------- 41,142 ================================= -------------------------------- 128,803 ================================= Unrestricted Funds Restricted Funds Total Funds 2020 £ £ £ 45,000 98,294 143,294 40,751 - 40,751 -------------------------------- 85,751 ================================= -------------------------------- 98,294 ================================= -------------------------------- 184,045 ================================= Unrestricted Funds Restricted Funds Total Funds 2021 £ £ £ - 37,140 37,140 25,000 - 25,000 - 2,502 2,502 - 1,500 1,500 500 - 500 750 - 750 |
|
| 26,250 41,142 **67,392 ** |
||
| Unrestricted Funds Restricted Funds Total Funds 2020 £ £ £ - 86,658 86,658 45,000 - 45,000 - 4,181 4,181 - 7,455 7,455 |
||
| 45,000 98,294 143,294 |
3a. GRANTS:
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DOWNRIGHT EXCELLENT NOTES TO THE FINANCIAL STATEMENTS
YEAR ENDED 31 MARCH 2021
4. COSTS OF RAISING FUNDS:
| Total | Total | |
|---|---|---|
| Funds | Funds | |
| 2021 | 2020 | |
| £ | £ | |
| Fundraising costs & events | 216 | 346 |
| CEO and finance | 6,921 | 6,150 |
| --------------------------------------- | --------------------------------------- | |
| 7,137 | 6,496 | |
| ======================================= | ======================================= |
5. COSTS OF CHARITABLE ACTIVITIES:
| Total | Total | |
|---|---|---|
| Funds | Funds | |
| 2021 | 2020 | |
| £ | £ | |
| Support Costs (5a) | 17,835 | 30,488 |
| Direct Project Expenditure (5b) | 173,381 | 173,620 |
| Governance (5c) | 11,567 | 9,415 |
| -------------------------------- | ------------------------------- | |
| 202,783 | 213,523 | |
| ================================= | ================================= | |
| UPPORT COSTS: | ||
| Total | ||
| Total Funds | Funds | |
| 2021 | 2020 | |
| £ | £ | |
| Administration | 13,961 | 14,721 |
| Volunteers Expenses | - | 3 |
| Printing, Postage & Stationery | 154 | 98 |
| Website | 1,988 | 2,153 |
| Hall/Room Hire/Rent | 1,500 | 12,792 |
| CRB/DBS Checks | 65 | 66 |
| Travel | - | 320 |
| Membership subscriptions | 167 | 335 |
| -------------------------------- | -------------------------------- | |
| 17,835 | 30,488 | |
| ================================= | ================================= |
5a. SUPPORT COSTS:
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DOWNRIGHT EXCELLENT NOTES TO THE FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
5b. DIRECT PROJECT EXPENDITURE:
| Total | Total | |
|---|---|---|
| Funds | Funds | |
| 2021 | 2020 | |
| £ | £ | |
| CEO | 26,150 | 31,219 |
| Therapists & multidisciplinary team | 128,767 | 117,777 |
| Friday and Saturday Coordination | 488 | 8,895 |
| Sport Works fee | - | 7,455 |
| TFN outings | - | 120 |
| Operations management | 11,768 | 500 |
| DS Training | 2,800 | 995 |
| Hardship fund | - | 1,000 |
| Makaton Training | - | 128 |
| Safeguarding | 2,425 | 2,677 |
| Safeguarding training | - | 450 |
| Teaching Materials and Equipment | 983 | 2,361 |
| Refreshments | - | 43 |
| -------------------------------- | -------------------------------- | |
| 173,381 | 173,620 | |
| ================================= | ================================= | |
| 5c. GOVERNANCE: | ||
| Total | Total | |
| Funds | Funds | |
| 2021 | 2020 | |
| £ | £ | |
| Independent examiners fee | 700 | 650 |
| Accountancy | 10,800 | 8,700 |
| Bank charges | 67 | 65 |
| -------------------------------- | -------------------------------- | |
| 11,567 | 9,415 | |
| ================================= | ================================= | |
| 6. CREDITORS: Amounts falling due within one year | ||
| 2021 | 2020 | |
| £ | £ | |
| Accruals | 18,423 | 22,736 |
| Deferred Income | 21,200 | 53,224 |
| -------------------------------- | --------------------------------- | |
| 39,623 | 75,960 | |
| ================================= | ================================= |
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DOWNRIGHT EXCELLENT NOTES TO THE FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
Movements in deferred income are as follows:
| At beginning of year Released to income in year Deferred in year At end of year |
2021 2020 £ £ 53,224 33,296 (33,224) (33,296) 1,200 53,224 |
|---|---|
| 21,200 53,224 |
Deferred income relates to funding and parental contributions received in advance .
7. SUMMARY OF NET ASSETS BY FUNDS:
| Total | |||
|---|---|---|---|
| Unrestricted | Restricted | Funds | |
| Funds | Funds | 2021 | |
| £ | £ | £ | |
| Debtors | 1,085 | - | 1,085 |
| Cash at bank & in hand | 110,362 | 21,218 | 131,580 |
| Creditors | (19,623) | (20,000) | (39,623) |
| -------------------------------- | -------------------------------- | -------------------------------- | |
| 91,824 | 1,218 | 93,042 | |
| ================================= | ================================= | ================================= | |
| Total | |||
| Unrestricted | Restricted | Funds | |
| Funds | Funds | 2020 | |
| £ | £ | £ | |
| Debtors | 934 | - | 934 |
| Cash at bank & in hand | 113,260 | 24,012 | 137,272 |
| Creditors | (52,458) | (23,502) | (75,960) |
| -------------------------------- | -------------------------------- | -------------------------------- | |
| 61,736 | 510 | 62,246 | |
| ================================= | ================================= | ================================= |
8. RESTRICTED FUNDS:
| Balance | ||||
|---|---|---|---|---|
| at | Balance at | |||
| 1 April | 31 March | |||
| 2020 | Income | Expenditure | 2021 | |
| £ | £ | £ | £ | |
| CAF Resilience Fund | - | 37,140 | (37,140) | - |
| Hardship Fund | 510 | - | - |
510 |
| Operations management | - | 11,318 | (11,318) |
- |
| Sport England | - | 2,502 | (1,794) |
708 |
| British Science Association | - | 1,500 | (1,500) |
- |
| -------------------------------- | -------------------------------- | -------------------------------- | -------------------------------- | |
| 510 | 52,460 | (51,752) |
1,218 | |
| ================================= | ================================= | ================================= | ================================= |
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DOWNRIGHT EXCELLENT NOTES TO THE FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
| Balance at | Balance at | ||||
|---|---|---|---|---|---|
| 1 April | 31 March | ||||
| 2019 | Income | Expenditure | Transfers | 2020 | |
| £ | £ | £ | £ | £ | |
| TNL Community Fund | - | 86,658 | (86,658) | - | - |
| The Funding Network | 2,047 | 4,181 | (6,228) |
- | - |
| Hardship Fund | - | - | (490) |
1,000 | 510 |
| Operations management | - | 500 | (500 |
- | - |
| Sport England | - | 7,455 | (7,455) |
- | - |
| Rent donation | 3,000 | - | (3,000) |
- | - |
| -------------------------------- | |||||
| -------------------------------- | -------------------------------- | -------------------------------- | -------------------------------- | ||
| 5,047 | 98,794 | (104,331) |
1,000 | 510 | |
| ================================= | ================================= | ================================= | ================================ | ================================= |
2020 – 2021 Purpose of funds
-
Restricted incomes received are accounted for separately and are used for the purposes specified by the donor.
-
We have received fantastic support from our funders the Octopus Group. As well as fundraising they have been incredibly generous with additional pro bono activity ranging from providing us with volunteers and extra funding opportunities along with in-kind donations. This was the final year of our incredibly positive partnership with them and we cannot thank them enough for the contribution they have made to help children with DS maximise their potential. This helped to sustain and grow DEx through the pandemic and to develop new skills. The Octopus Group continues to offer support and friendship.
-
We are lucky enough to receive a range of donations from:
-
Individuals who are inspired to undertake sponsored events for Downright Excellent.
-
Some of our amazing families who have set up direct debits, host events such as quiz evenings and make items to sell.
-
Families who can afford the suggested weekly contribution continue to do so and the increased rate now contributes to around 30% of expenditure.
-
CAF Resilience Fund enabled DEx to survive to the end of the year by covering fees retrospectively and filling the gap in income; it also gave us much needed time to significantly increase fundraising.
-
The Sport England grant continued to enable DEx to partner Sport Works Ltd in providing fun sports sessions for Saturday DEx children. These were deferred due to Covid-19 but were able to start in October 2020. We seek funding to continue this popular extension activity.
-
The British Science Association granted £500 which was added to the unspent grant deferred from the previous year due to the pandemic. Science topics were explored online, eg active cooking sessions for older children covering: liquid to solid – pancakes; temperature – boiling water for hot drinks; toast – what does the thermostat on a toaster mean? Changing states: solids, liquids, gases; boiling and melting; hard and soft materials. Younger children mixed paints, melted a frozen toy and made bubble mixture. We hope to repeat this interesting grant next year.
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DOWNRIGHT EXCELLENT NOTES TO THE FINANCIAL STATEMENTS YEAR ENDED 31 MARCH 2021
9. STAFF COSTS, TRUSTEE REMUNERATION, EXPENSES AND RELATED PARTY TRANSACTIONS
The charity has no employees.
The charity trustees were not paid and did not receive any other benefits from employment with the charity. Trustee travel expenses reimbursed during the year amounted to £nil (2020: £nil).
Other than donations and parent/carer contributions as detailed below, there were no transactions with related parties in the year.
Donations and parent/carer contributions from trustees and their related parties using the services provided by the charity totalled £13,370 (2020: £4,836) in the year.
10. COMPARATIVE STATEMENT OF FINANCIAL ACTIVITIES FOR 2020:
| Unrestricted | Restricted | ||
|---|---|---|---|
| Funds | Funds | Total Funds | |
| £ | £ | £ | |
| INCOME FROM | |||
| Donations and legacies | 59,260 | 500 | 59,760 |
| Income from charitable activities | 85,751 | 98,294 | 184,045 |
| Investment income | 182 | - | 182 |
| --------------------------------------- | --------------------------------- | --------------------------------------- | |
| TOTAL INCOME | 145,193 | 98,794 | 243,987 |
| --------------------------------------- | --------------------------------- | --------------------------------------- | |
| EXPENDITURE ON | |||
| Raising funds | (6,496) | - | (6,496) |
| Charitable activities | (109,192) | (104,331) | (213,523) |
| --------------------------------------- | ----------------------------------- | --------------------------------------- | |
| TOTAL EXPENDITURE | (115,688) | (104,331) | (220,019) |
| --------------------------------------- | --------------------------------- | --------------------------------------- | |
| NET INCOME/(EXPENDITURE) AND NET | |||
| MOVEMENT IN FUNDS FOR YEAR | 29,505 | (5,537) | 23,968 |
| Transfers | (1,000) | 1,000 | - |
| RECONCILIATION OF FUNDS | |||
| Total funds brought forward | 33,231 | 5,047 | 38,278 |
| --------------------------------------- | ----------------------------------- | --------------------------------------- | |
| TOTAL FUNDS CARRIED FORWARD | 61,736 | 510 | 62,246 |
| ======================================= | ================================= | ======================================= |
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