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2021-04-30-accounts

REGISTERED COMPANY NUMBER: 06268494 (England and Wales) REGISTERED CHARITY NUMBER: 1120756

REPORT OF THE TRUSTEES AND AUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 APRIL 2021

FOR

PULMONARY HYPERTENSION ASSOCIATION UK

Wyatt, Morris, Golland Ltd Statutory Auditors Park House 200 Drake Street Rochdale Lancashire OL16 1PJ

PULMONARY HYPERTENSION ASSOCIATION UK

CONTENTS OF THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 APRIL 2021

Page
Reference and Administrative Details 1
Report of the Trustees 2 to 9
Report of the Independent Auditors 10 to 12
Statement of Financial Activities 13
Balance Sheet 14
Notes to the Financial Statements 15 to 23

PULMONARY HYPERTENSION ASSOCIATION UK

REFERENCE AND ADMINISTRATIVE DETAILS FOR THE YEAR ENDED 30 APRIL 2021

TRUSTEES I J Armstrong K Yeowart S Townsley T Pannel

The trustees are collectively referred to as both the board of trustees and the Management Committee. They are also directors for the purposes of the Companies Act.

REGISTERED OFFICE Unit 1, Newton Business Centre Newton Chambers Road, Thorncliffe Park Chapeltown Sheffield S35 2PH

REGISTERED COMPANY NUMBER 06268494 (England and Wales) REGISTERED CHARITY NUMBER 1120756 AUDITORS Wyatt, Morris, Golland Ltd Statutory Auditors Park House 200 Drake Street Rochdale Lancashire OL16 1PJ FINANCE OFFICER S Clayton

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PULMONARY HYPERTENSION ASSOCIATION UK (REGISTERED NUMBER: 06268494)

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 30 APRIL 2021

The trustees who are also directors of the charity for the purposes of the Companies Act 2006, present their report with the financial statements of the charity for the year ended 30 April 2021. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).

OBJECTIVES AND ACTIVITIES

Objectives and aims

The main object of the charity is to raise awareness of pulmonary hypertension. Raising awareness is difficult to measure quantitatively making it difficult to accurately assess the performance of the charity. Detailed below is a synopsis of the year's activities and achievements which aim to demonstrate qualitatively how the charity goes about meeting its objectives of raising awareness and providing financial assistance in cases of need.

Awareness is raised through the provision of information and educational resources for sufferers of the said condition, their families, carers and members of the medical profession.

In addition the charity also provides relief of need of sufferers of the said condition, their families and carers through the provision of financial assistance towards, but not exclusively, respite care, travel grants and equipment grants at the discretion of the Executive committee, as and when resources allow.

Public benefit

We review our aims, objectives and activities each year. This review looks at what we achieved and the outcomes of our work in the previous 12 months. The review looks at the success of each key activity and the benefits they have brought to those groups of people we are set up to help. The review also helps us to ensure our aim, objectives and activities remained focused on our stated purposes. We have referred to the guidance contained in the Charity Commission's general guidance on public benefit when reviewing our aims and objectives and in planning our future activities. In particular, the management committee consider how planned activities will contribute to the aims and objectives they have set.

Grantmaking

Requests of £500 or under require an administrator signature, and from £500 to £2,000 need to be agreed by the administrator and a trustee. Grants are only paid to an individual and not an institution,

A monthly grant limited to £5,000 is set. If this is to be surpassed it must be agreed by 2 trustees plus the treasurer.

Requests for in-flight oxygen will be covered on request if resources allow. Only 1 claim allowed per patient per year. These grants will not be included in the £5,000 monthly limit calculation.

Travel insurance claims will be treated as normal grant requests.

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PULMONARY HYPERTENSION ASSOCIATION UK (REGISTERED NUMBER: 06268494)

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 30 APRIL 2021

STRATEGIC REPORT

Achievement and performance

The last 12 months have seen a significant amount of activity, aimed at supporting our members through the COVID-19 pandemic whilst maintaining as much of our core activity as possible too.

This report details the work we have undertaken between 1st May 2020 and 30th April 2021.

PATIENT SERVICES AND SUPPORT

To help improve quality of life and wellbeing for patients, we continued funding the post of a physiotherapist within the specialist PH service at the Royal Brompton Hospital. This follows the successful funding of a physiotherapist post in the Sheffield service and allows more patients to benefit from this specialism.

We reviewed our partnership with Anxiety UK and decided that due to the development of our internal resources, we could offer a better-quality service that also represented better value for money. Our Listening Line service launched at the beginning of 2021, bringing our partnership with Anxiety UK to an end.

Our partnership with Turn2us continues to give members valuable advice and resources around financial matters.

We have expanded our online peer support forums with the addition of a group for carers, and helped set up a group for those who have lost someone due to PH. Membership of these groups, plus our flagship forum, has continued to grow.

Much of our support activity has been focused on the COVID-19 pandemic.

Our dedicated web area has been reviewed and updated daily in line with the twists and turns of the pandemic, acting as a central hub for trusted information for our members.

Regular infocasts (recorded interviews with PH professionals) have provided expert advice and reassurance, with excellent feedback received from members.

We have provided extensive support and guidance around the vaccination rollout, with a focus on accurate and balanced information in line with government guidance but tailored to our membership.

We produced mask exemption notices to help members communicate their exemption whilst out and about, and mental wellbeing tools such as a 28-day positivity calendar and a wellbeing journal.

Regular updates via our social media channels have kept members informed and engaged and as restrictions began to lift, we produced materials to support people worried about a return to 'normality.

Research conducted in the summer of 2020 found that members highly valued the support outlined above:

PUBLICATIONS & RESOURCES

This year saw us produce and distribute numerous publications.

'Your benefits assessment toolkit' supports those currently going through or preparing for a benefit assessment, aimed at upskilling those navigating the welfare system to ensure a correct decision is made.

'Pregnancy and PH' was completed this year, a world-first in tackling this important but controversial subject. This valuable publication gives patients and their loved ones the most up to date and accurate information, plus multiple real experiences and stories.

We have engaged in the rigorous resource development process from the Patient Information Forum. We were successful in receiving their 'quality mark' in early 2021, proving that our materials go through a robust process to maintain high quality.

This year saw further reprints of our core publications PH & You, Medication & PH, and Financial Support: What could my family be entitled to?

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PULMONARY HYPERTENSION ASSOCIATION UK (REGISTERED NUMBER: 06268494)

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 30 APRIL 2021

Between May 2020 and May 2021, four issues of Emphasis, our quarterly member magazine, were produced. Advertising revenue was generated during this time.

All of our publications and resources were made available to order for free from our website, and shipments were made to all of the specialist centres.

Because of the impact of the pandemic on using external services to create resources, the organisation has invested in equipment and training to enable in-house production of media including high quality video and audio and web-based training and presentations. This investment will benefit our members for years to come and ultimately save money on outsourcing.

ONLINE

Our online activity has continued at pace. We have continued to manage and update our suite of websites, including the ongoing development of phocusonlifestyle.org.

Phauk.org saw a huge increase in traffic due to COVID-19 and this year we began to build on that by reviewing all of the content and design to make it easier to navigate and more use-friendly for both visitors and our internal team. This modernising project will continue into next year.

We have continued to produce monthly e-newsletters for both members and the PH Professionals group, and a large number of videos have been produced throughout the year which have been used across our websites and social media channels.

Social media activity and engagement continues to increase. Facebook now has over 4000 followers and our newest channel, Instagram, has gained almost 500 followers in a short period of time. Our YouTube channel now has 250 subscribers and Twitter is up to over 1300 followers.

Our online shop has responded to member demand by selling numerous pieces of high quality merchandise, ranging from the very popular face masks to water bottles and newly-sourced items such as multiwraps and dog bandanas. Sales are helping to promote PH and generate a small amount of funds too.

AWARENESS RAISING AND FUNDRAISING

This year the PHA UK was chosen to join the European Lung Foundation's Patient Advisory Committee, allowing us to put the views and experiences of those living with PH in the UK onto a wider European agenda.

November saw our fifth annual PH Awareness Week, where we focused on raising awareness of PH as a rare condition.

We shared multiple video case studies and secured media coverage across the UK, including on TV and in national online newspapers. The week also saw the launch of our 'PHighter20' challenge, which saw great engagement.

Raising funds in tandem with raising awareness has been a key part of the PHA UK's activity this year.

In August, we launched 'Walk With Us', a walking challenge that members could complete on a route of their choice. The concept involved the PH community walking in tandem, wherever they were in the country, to feel a sense of belonging in a time of isolation due to the pandemic. Many of those who took part chose to fundraise too.

The initiative was launched in reaction to the cancellation of the British Transplant Games, where we were due to be sponsors of the walk event. As well as raising awareness and income, it helped promote health and wellbeing during the lockdown too.

We ran a Christmas card design competition over the summer months to engage members and give children especially something to focus on during a difficult time. This was very successful, with a number of high standard entries received which went on to sell very well. This helped raise awareness of PH and our organisation over the Christmas weeks, as well as income from sales.

The impact on 'organic' fundraising due to the pandemic led to use placing a member of our staff, whose job role involved fundraising administration, on furlough. At the same time, we invested time and resource into incentivising a return to fundraising when lockdown lifted by creating a fundraising pack that would support people with their efforts and maximise success. This comprehensive toolkit was launched in March and has proved very popular.

We have also raised awareness of PH and our organisation via promoting a successful award entry that saw Iain Armstrong named Respiratory Nurse of the Year by the British Journal of Nursing. PR activity including press releases secured widespread media coverage and there was high engagement with online content around the accolade.

RESEARCH

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PULMONARY HYPERTENSION ASSOCIATION UK (REGISTERED NUMBER: 06268494)

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 30 APRIL 2021

In the summer of 2020, we conducted a major piece of research into the impact of the early stages of the COVID-19 pandemic on those with pulmonary hypertension.

The survey attracted 824 responses - the highest ever to a PHA UK survey - and highlighted the psychological and physical impact of shielding, as well perceptions of support.

The findings were disseminated via a printed report ('Shielded Voices'), video case studies and social media and underpinned our activity during PH Awareness Week.

We have also conducted a number of online surveys to gain insight for a number of areas, and produced reports into the findings:

We have supported the UNIPHY research team by creating a logo and strapline for their work, and helping to recruit patients to shape their strategy.

A major research success story of this financial year has been our work with trainee psychologist Gregg Rawlings to trial an intervention for those with PH who struggle with anxiety. We supported by designing and producing a series of workbooks, promotion of the research and recruiting patients to the trial, which ran until February 2021. These workbooks can now be utilised by ourselves to support more members and we will be continuing to support the study by collecting more data as the year goes on.

In addition to the projects above, we have been working with specialist centres to plan a major piece of research to shape the specialist service over the next five years, and this will continue throughout the year.

SUPPORT AND EDUCATION FOR MEDICAL PROFESSIONALS

In addition to the research projects highlighted above, we have continued to provided bursaries for healthcare professionals to complete our medical education programme, 'Pulmonary Hypertension - diagnosis and management' to help them understand more about the condition.

We have begun looking into updating this now hugely successful online course, fact-checking, adding more resources, more tools for students to utilise and more content to reflect the understanding we now have around broader subjects like intimacy, pregnancy, welfare and lifestyle adaptations.

We have continued to provide ongoing support and secretarial input for the PH Professionals group - including hosting virtual meetings and producing monthly e-newsletters.

This year we also launched a dedicated website for the PH Professionals group (https://www.phprofessionals.org.uk/) to house resources like EmPHAsis-10, research papers and related content.

We have continued to offer educational and travel grants to clinical staff working within the field of PH.

Similar to our support for the PH Professionals group, this year we offered our services to the PH Physicians group, hosting virtual meetings and providing secretariat support.

CHARITY DEVELOPMENT

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PULMONARY HYPERTENSION ASSOCIATION UK (REGISTERED NUMBER: 06268494)

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 30 APRIL 2021

We have continued to explore links and foster relationships with other charities, and to outsource comms and design support to enable our core staff team to focus on membership services.

In the coming years we expect our resource centre to continue to offer a valuable source of income due to the ability to rent out the meeting room.

If you have any questions about the contents of this overview, please email office@phauk.org

Financial review

Investment policy and objectives

The charity has invested in a portfolio of investments currently held in Aegon, managed by IEP Financial. Last year the investments were held in Fidelity Investments, managed by R T Williams Ltd (Independent Financial Advisers), but were transferred over in the year ended 30th April 2021to IEP Financial. The investments are valued at market value at the year end in the accounts.

Financial review and reserves policy

The financial position of the charity as at 30 April 2021 was showing:-

£ Unrestricted funds 1,320,656 Restricted funds 8,781 __ Total funds 1,329,437 =======

At 30 April 2021, Pulmonary Hypertension Association UK had free reserves of £393,388 and £900,000 of designated funds as follows:

Where funds set aside for research are subsequently spent the expenditure is inclusive of both the charity's own unrestricted funds and contributions from third party partners including industry.

Going concern

There are no material uncertainties about the charity's ability to continue as a going concern.

Review of risks

The trustees have a risk management strategy which comprises:

The major risk faced by the charity is a fall in donations. There are currently adequate reserves to allow the Trustees to take action should this occur. A key element in the management of financial risk is the provision of a reserves policy to enable, amongst other things, the funding of the proposed future developments. This is regularly reviewed by the Trustees.

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PULMONARY HYPERTENSION ASSOCIATION UK (REGISTERED NUMBER: 06268494)

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 30 APRIL 2021

STRATEGIC REPORT

Register of trustee's interests

In order to provide clarity and to comply with advice from the Charity Commission on dealing with potential conflicts of interest the Pulmonary Hypertension Association UK wishes to make public a register of trustee's interest.

Mr Iain Armstrong, Chairman and Executive trustee is employed by Sheffield Teaching Hospitals NHS Trust. Pulmonary Hypertension Association pay Sheffield Teaching Hospitals NHS Trust quarterly for the secondment of Iain Armstrong's services. In addition Mr Armstrong receives consultancy fees from the charity.

Mrs Susan Townsley is a patient Trustee, and is entitled to claim up to £200 per year as reimbursement for the cost of oxygen during airline travel. This policy is open to all members of the Pulmonary Hypertension Association UK.

All Trustees can apply for grants from the charity as beneficiaries if the relevant charitable conditions are met.

Please see related party and trustees expenses notes in the accounts for more information.

The trustees have charity trustee liability insurance for the year ended 30th April 2021.

Future plans

It is envisaged that future developments would include: -

STRUCTURE, GOVERNANCE AND MANAGEMENT

Governing document

Pulmonary Hypertension Association UK is a company limited by guarantee, governed by its Memorandum and Articles of Association (company number 06268494) and registered with the charity commission (charity number 1120756).

Members of the company guarantee £1 in the event of the company being wound up. There are currently 4 members being the Charity Trustees

The Charitable Company's powers ("the powers") are:

In furtherance of the objects but not otherwise the Management Committee may exercise the following powers:

(i) power to raise funds and to invite and receive contributions provided that in raising funds the Management Committee shall not undertake any substantial permanent trading activities and shall conform to any relevant requirements of the law;

(ii) power to buy, take on lease or in exchange any property necessary for the achievement of the objects and to maintain and equip it for use;

(iii) power subject to any consents required by law to sell, lease or dispose of all or any part of the property of the Charitable Company;

(iv) power subject to any consents required by law to borrow money and to charge all or any part of the property of the Charitable Company with repayment of the money so borrowed;

(v) power to employ such staff (who shall not be members of the Management Committee) as are necessary for the proper pursuit of the objects and to make all reasonable and necessary provision for the payment of pensions and superannuation for staff and their dependants;

(vi) power to co-operate with other charities, voluntary bodies and statutory authorities operating in furtherance of the objects or of similar charitable purposes and to exchange information and advice with them;

(vii) power to establish or support any charitable trusts, associations or institutions formed for all or any of the objects;

(viii) power to appoint and constitute such advisory committees as the Management Committee may think fit;

(ix) power to do all such other lawful things as are necessary for the achievement of the objects;

(x) power to provide financial assistance towards research activities for members of the medical profession.

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PULMONARY HYPERTENSION ASSOCIATION UK (REGISTERED NUMBER: 06268494)

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 30 APRIL 2021

STRUCTURE, GOVERNANCE AND MANAGEMENT Recruitment and appointment of new trustees

Appointment of the management committee is governed by the charitable company's memorandum and articles.

The directors of the company are also charity trustees for the purposes of charity law and are known as members of the Management Committee. Under the requirements of the Memorandum and Articles of Association at each annual general meeting one third of the trustees are subject to retirement by rotation and may be re-elected.

All members of the Management committee give their time voluntarily and received no benefits from the charity. Any expenses reclaimed from the charity are set out in note 9 to the accounts.

Training of charity trustees is in accordance with advice published by the charity commission.

Decision making is carried out democratically during regular trustee meetings, held at least annually. Major decisions are documented in meeting minutes which are held by the secretary. Minutes are circulated to trustees before being signed off.

Organisational structure

Shaun Clayton (Director of Membership Support) is delegated to deal with the day to day management of the charity after discussions with the trustees.

Related parties

Due to the nature of the charity's operations and the composition of the Board of Trustees being drawn from local and national public and private sector organisations, it is inevitable that transactions will take place with organisations in which a member of the board of trustees may have an interest. Any such transactions are conducted at arm's length and in accordance with the charity's financial regulations and normal procurement procedures.

On 31 July 2010 the net assets and operations of Pulmonary Hypertension Association (UK), a unincorporated registered charity (charity number 1082613) were transferred to the charity at net book value.

The trustees of Pulmonary Hypertension Association UK are also trustees of Pulmonary Hypertension Association (UK).

Donations totalling £214,632 were made to the charity by Pulmonary Hypertension Association (UK) (2020 - £232,489).

At 30th April 2021, £20,693 was due from Pulmonary Hypertension Association (UK) (2020 - £26,061).

Details of Trustee's interests are summarised below;

In order to provide clarity and to comply with advice from the Charity Commission on dealing with potential conflicts of interest the Pulmonary Hypertension Association UK wishes to make public a register of trustee's interest.

Mr Iain Armstrong, Chairman and Executive trustee is employed by Sheffield Teaching Hospitals NHS Trust.

Mr Iain Armstrong receives remuneration from Pulmonary Hypertension Association UK for consultancy. Pulmonary Hypertension UK pays Sheffield Teaching Hospitals NHS Trust for Mr Armstrong's services other than those as a trustee.

Mrs Susan Townsley is a Patient Trustee, and is entitled to claim up to £200 per year as reimbursement for the cost of oxygen during airline travel. This policy is open to all members of the Pulmonary Hypertension Association UK.

STATEMENT OF TRUSTEES' RESPONSIBILITIES

The trustees (who are also the directors of Pulmonary Hypertension Association Uk for the purposes of company law) are responsible for preparing the Report of the Trustees and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

Company law requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period. In preparing those financial statements, the trustees are required to

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PULMONARY HYPERTENSION ASSOCIATION UK (REGISTERED NUMBER: 06268494)

REPORT OF THE TRUSTEES FOR THE YEAR ENDED 30 APRIL 2021

STATEMENT OF TRUSTEES' RESPONSIBILITIES - continued

The trustees are responsible for keeping proper accounting records which disclose with reasonable accuracy at any time the financial position of the charitable company and to enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

In so far as the trustees are aware:

AUDITORS

The auditors, Wyatt, Morris, Golland Ltd, will be proposed for re-appointment at the forthcoming Annual General Meeting.

Report of the trustees, incorporating a strategic report, approved by order of the board of trustees, as the company directors, on 10 December 2021 and signed on the board's behalf by:

I J Armstrong - Trustee

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REPORT OF THE INDEPENDENT AUDITORS TO THE TRUSTEES OF PULMONARY HYPERTENSION ASSOCIATION UK

Opinion

We have audited the financial statements of Pulmonary Hypertension Association Uk (the 'charitable company') for the year ended 30 April 2021 which comprise the Statement of Financial Activities, the Balance Sheet and notes to the financial statements, including a summary of significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

In our opinion the financial statements:

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditors' responsibilities for the audit of the financial statements section of our report. We are independent of the charitable company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC's Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the trustees' use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the charitable company's ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report.

Other information

The trustees are responsible for the other information. The other information comprises the information included in the Annual Report, other than the financial statements and our Report of the Independent Auditors thereon.

Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon.

In connection with our audit of the financial statements, our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact. We have nothing to report in this regard.

Matters on which we are required to report by exception

We have nothing to report in respect of the following matters where the Charities (Accounts and Reports) Regulations 2008 requires us to report to you if, in our opinion:

Responsibilities of trustees

As explained more fully in the Statement of Trustees' Responsibilities, the trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the trustees are responsible for assessing the charitable company's ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.

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REPORT OF THE INDEPENDENT AUDITORS TO THE TRUSTEES OF PULMONARY HYPERTENSION ASSOCIATION UK

Our responsibilities for the audit of the financial statements

We have been appointed as auditors under Section 144 of the Charities Act 2011 and report in accordance with the Act and relevant regulations made or having effect thereunder.

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue a Report of the Independent Auditors that includes our opinion. Reasonable assurance is a high level of assurance, but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The extent to which our procedures are capable of detecting irregularities, including fraud is detailed below:

The extent to which the audit was considered capable of detecting irregularities including fraud.

Our approach to identifying and assessing the risks of material misstatement in respect of irregularities, including fraud and non-compliance with laws and regulations, was as follows:

-the engagement partner ensured that the engagement team collectively had the appropriate competence, capabilities and skills to identify or recognise non-compliance with applicable laws and regulations;

-we identified the laws and regulations applicable to the company through discussions with directors and other management, and from our commercial knowledge and experience of charities;

-we focused on specific laws and regulations which we considered may have a direct material effect on the financial statements or the operations of the charity, including the Charities Act 2011and Companies Act 2006 and

-we assessed the extent of compliance with the laws and regulations identified above through making enquiries of management and inspecting legal correspondence where necessary,

-identified laws and regulations were communicated within the audit team regularly and the team remained alert to instances of non-compliance throughout the audit.

We assessed the susceptibility of the charity's financial statements to material misstatement, including obtaining an understanding of how fraud might occur, by:

-making enquiries of management as to where they considered there was susceptibility to fraud, their knowledge of actual, suspected and alleged fraud and

-considering the internal controls in place to mitigate risks of fraud and non-compliance with laws and regulations.

To address the risk of fraud through management bias and override of controls, we:

-performed analytical procedures to identify any unusual or unexpected relationships;

-tested journal entries to identify unusual transactions;

-assessed whether judgements and assumptions made in determining the accounting estimates were indicative of potential bias; and

-investigated the rationale behind significant or unusual transactions.

In response to the risk of irregularities and non-compliance with laws and regulations, we designed procedures which included, but were not limited to:

-agreeing financial statement disclosures to underlying supporting documentation;

-enquiring of management as to actual and potential litigation and claims; and

-reviewing correspondence with HMRC.

There are inherent limitations in our audit procedures described above. The more removed that laws and regulations are from financial transactions, the less likely it is that we would become aware of non-compliance. Auditing standards also limit the audit procedures required to identify non-compliance with laws and regulations to enquiry of the directors and other management and the inspection of regulatory and legal correspondence, if any.

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REPORT OF THE INDEPENDENT AUDITORS TO THE TRUSTEES OF PULMONARY HYPERTENSION ASSOCIATION UK

Material misstatements that arise due to fraud can be harder to detect than those that arise from error as they may involve deliberate concealment or collusion.

A further description of our responsibilities for the audit of the financial statements is located on the Financial Reporting Council's website at www.frc.org.uk/auditorsresponsibilities. This description forms part of our Report of the Independent Auditors.

Use of our report

This report is made solely to the charitable company's trustees, as a body, in accordance with Part 4 of the Charities (Accounts and Reports) Regulations 2008. Our audit work has been undertaken so that we might state to the charitable company's trustees those matters we are required to state to them in an auditors' report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company's trustees as a body, for our audit work, for this report, or for the opinions we have formed.

Wyatt, Morris, Golland Ltd Statutory Auditors Eligible to act as an auditor in terms of Section 1212 of the Companies Act 2006 Park House 200 Drake Street Rochdale Lancashire OL16 1PJ

10 December 2021

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PULMONARY HYPERTENSION ASSOCIATION UK

STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 30 APRIL 2021

Notes
INCOME AND ENDOWMENTS FROM
Donations and legacies
Investment income
2
Total
EXPENDITURE ON
Raising funds
Charitable activities
Charitable activities
Total
Net gains on investments
NET INCOME/(EXPENDITURE)
Transfers between funds
12
Net movement in funds
RECONCILIATION OF FUNDS
Total funds brought forward
TOTAL FUNDS CARRIED FORWARD
2021
Unrestricted
Restricted
Total
funds
funds
funds
£
£
£
447,278
24,963
472,241
4,831
-
4,831
452,109
24,963
477,072
33,940
-
33,940
390,890
123,095
513,985
424,830
123,095
547,925
261,781
-
261,781
289,060
(98,132)
190,928
(47,214)
47,214
-
241,846
(50,918)
190,928
1,078,810
59,699
1,138,509
1,320,656
8,781
1,329,437
2020
Total
funds
£
473,019
191
473,210
42,442
632,347
674,789
5,044
(196,535)
-
(196,535)
1,335,044
1,138,509

The notes form part of these financial statements

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PULMONARY HYPERTENSION ASSOCIATION UK (REGISTERED NUMBER: 06268494)

BALANCE SHEET 30 APRIL 2021

Notes
FIXED ASSETS
Tangible assets
7
Investments
8
CURRENT ASSETS
Stocks
9
Debtors
10
Cash at bank and in hand
CREDITORS
Amounts falling due within one year
11
NET CURRENT ASSETS
TOTAL ASSETS LESS CURRENT LIABILITIES
NET ASSETS
FUNDS
12
Unrestricted funds
Restricted funds
TOTAL FUNDS
Unrestricted
funds
£
27,268
1,208,251
1,235,519
9,789
46,399
164,711
220,899
(135,762)
85,137
1,320,656
1,320,656
Restricted
funds
£
-
-
-
-
-
8,781
8,781
-
8,781
8,781
8,781
2021
Total
funds
£
27,268
1,208,251
1,235,519
9,789
46,399
173,492
229,680
(135,762)
93,918
1,329,437
1,329,437
1,320,656
8,781
1,329,437
2020
Total
funds
£
16,441
953,620
970,061
20,026
129,625
131,313
280,964
(112,516)
168,448
1,138,509
1,138,509
1,078,810
59,699
1,138,509

The charitable company is entitled to exemption from audit under Section 477 of the Companies Act 2006 for the year ended 30 April 2021.

The members have not deposited notice, pursuant to Section 476 of the Companies Act 2006 requiring an audit of these financial statements.

The trustees acknowledge their responsibilities for

(a) ensuring that the charitable company keeps accounting records that comply with Sections 386 and 387 of the Companies Act 2006 and

(b) preparing financial statements which give a true and fair view of the state of affairs of the charitable company as at the end of each financial year and of its surplus or deficit for each financial year in accordance with the requirements of Sections 394 and 395 and which otherwise comply with the requirements of the Companies Act 2006 relating to financial statements, so far as applicable to the charitable company.

These financial statements have been audited under the requirements of Section 145 of the Charities Act 2011.

These financial statements have been prepared in accordance with the provisions applicable to charitable companies subject to the small companies regime.

The financial statements were approved by the Board of Trustees and authorised for issue on 10 December 2021 and were signed on its behalf by:

I J Armstrong - Trustee

The notes form part of these financial statements

Page 14

PULMONARY HYPERTENSION ASSOCIATION UK

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 APRIL 2021

1. ACCOUNTING POLICIES

Basis of preparing the financial statements

The financial statements of the charitable company, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Companies Act 2006. The financial statements have been prepared under the historical cost convention, with the exception of investments which are included at market value, as modified by the revaluation of certain assets.

The trustees consider that there are no material uncertainties about the Charity's ability to continue as a going concern.

Critical accounting judgements and key sources of estimation uncertainty

In the process of applying the entity's accounting policies management have not made any judgements that would have a significant effect on the amounts recognised in the financial statements. No estimations have been made that would have a significant risk of causing a material adjustment to the carrying amounts of assets and liabilities within the next financial year.

Income

All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.

Expenditure

Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.

Grants offered subject to conditions which have not been met at the year end date are noted as a commitment but not accrued as expenditure.

Allocation and apportionment of costs

The costs are allocated between each relevant fund as directed by the trustees. Costs are apportioned to match the correct period to which they relate.

Tangible fixed assets

Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life.

Fixtures and fittings - 15% on reducing balance Office equipment - 25% on reducing balance

At each balance sheet date, the Charity reviews the carrying amounts of its property, plant and equipment to determine whether there is any indication that any items of property, plant and equipment have suffered an impairment loss. If any such indication exists, the recoverable amount of an asset is estimated in order to determine the extent of the impairment loss, if any. Where it is not possible to estimate the recoverable amount of the assets, the Company estimates the recoverable amount of the cash-generating unit to which the asset belongs.

If the recoverable amount of an asset is estimated to be less that its carrying amount, the carrying amount of the asset is reduced to its recoverable amount. Impairment loss is recognised as an expense immediately.

Where an impairment loss subsequently reverses, the carrying amount of the asset is increased to the revised estimate of its recoverable amount and would have been determined (net of depreciation) had no impairment loss be recognised for the asset in prior years. A reversal of an impairment loss is recognised as income immediately.

Stocks

Stocks are valued at the lower of cost and net realisable value, after making due allowance for obsolete and slow moving items.

Taxation

The charity is exempt from corporation tax on its charitable activities.

Fund accounting

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.

Page 15

continued...

PULMONARY HYPERTENSION ASSOCIATION UK

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 30 APRIL 2021

1. ACCOUNTING POLICIES - continued

Fund accounting

Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.

Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.

Pension costs and other post-retirement benefits

The charitable company operates a defined contribution pension scheme. Contributions payable to the charitable company's pension scheme are charged to the Statement of Financial Activities in the period to which they relate.

Government grants - covid 19

Government grants are recognised when there is reasonable assurance that the company will comply with the conditions attaching to the grant and the grant will be received.

Following the outbreak of the Covid-19 Pandemic the company furloughed members of staff and took advantage of the government job retention scheme. Grant income is accrued for in the period matching the period the wages were due for.

Financial instruments

Debtors

Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.

Cash at bank and in hand

Cash at bank and in hand includes cash and short term highly liquid investments with a short maturity of three months or less from the date of acquisition or opening of the deposit or similar account.

Creditors and provisions

Creditors and provisions are recognised where the company has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due.

Financial Instruments

The company only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value with the exception of bank loans which are subsequently measured at amortised cost using the effective interest method. FRS 102 requires investments to be measured at fair value, with changes in fair value recognised in the profit or loss. The fair value was valued from documentation from the Investment broker.

2. INVESTMENT INCOME

INVESTMENT INCOME
2021 2020
£ £
Investment income 4,614 -
Deposit account interest 217 191
4,831 191

Page 16

continued...

PULMONARY HYPERTENSION ASSOCIATION UK

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 30 APRIL 2021

3. NET INCOME/(EXPENDITURE)

Net income/(expenditure) is stated after charging/(crediting):

2021 2020
£ £
Auditors remuneration 5,600 5,600
Depreciation - owned assets 6,435 4,548
Deficit on disposal of fixed assets 730 242
Auditors remuneration non audit work 5,461 5,401
TRUSTEES' REMUNERATION AND BENEFITS
There were no trustees' remuneration or other benefits for the year ended 30th April 2021, nor for the year ended 30th Ap
2020.
Trustees Expenses:
2021 2020
£ £
Amounts paid to trustees 51,473 50,242
====== ======

4. TRUSTEES' REMUNERATION AND BENEFITS

There were no trustees' remuneration or other benefits for the year ended 30th April 2021, nor for the year ended 30th April 2020.

No grants were paid to any trustee during the year (2020 - £Nil).

No honorarium was paid to any trustee during the year (2020 - £Nil).

One trustee received £26,067 for consultancy fees in the year for services other than as a trustee, and £18,782 for secondment to the charity (2020 total - £44,725). These amounts are included in the totals above.

Trustees' expenses

Other expenses includes travel, subsistence and administrative expenses, the number of trustees reimbursed were 1.

5. STAFF COSTS

The average monthly number of employees during the year was as follows:

6.

Administration
No employees received emoluments in excess of £60,000.
The salaries of key personnel in the year were £33,754 (2020 - £32,828).
COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES
Unrestricted
funds
£
INCOME AND ENDOWMENTS FROM
Donations and legacies
468,949
Investment income
191
Total
469,140
EXPENDITURE ON
Raising funds
42,442
Charitable activities
Charitable activities
578,252
2021
3
Restricted
funds
£
4,070
-
4,070
-
54,095
2020
3
Total
funds
£
473,019
191
473,210
42,442
632,347

continued...

Page 17

PULMONARY HYPERTENSION ASSOCIATION UK

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 30 APRIL 2021

6.
COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES - continued
Unrestricted
Restricted
funds
funds
£
£
Total
620,694
54,095
Net gains on investments
5,044
-
NET INCOME/(EXPENDITURE)
(146,510)
(50,025)
Transfers between funds
(3,367)
3,367
Net movement in funds
(149,877)
(46,658)
RECONCILIATION OF FUNDS
Total funds brought forward
1,228,687
106,357
TOTAL FUNDS CARRIED FORWARD
1,078,810
59,699
7.
TANGIBLE FIXED ASSETS
Fixtures
and
Office
fittings
equipment
£
£
COST
At 1 May 2020
11,630
28,492
Additions
286
17,706
Disposals
-
(1,299)
At 30 April 2021
11,916
44,899
DEPRECIATION
At 1 May 2020
5,702
17,979
Charge for year
932
5,503
Eliminated on disposal
-
(569)
At 30 April 2021
6,634
22,913
NET BOOK VALUE
At 30 April 2021
5,282
21,986
At 30 April 2020
5,928
10,513
Total
funds
£
674,789
5,044
(196,535)
-
(196,535)
1,335,044
1,138,509
Totals
£
40,122
17,992
(1,299)
56,815
23,681
6,435
(569)
29,547
27,268
16,441

continued...

Page 18

PULMONARY HYPERTENSION ASSOCIATION UK

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 30 APRIL 2021

8. FIXED ASSET INVESTMENTS

Listed Listed
Investments Investments
2021 2020
£ £
Market value at 1st May 2020 953,620 1,054,143
Additions 832,450 52,864
Disposals ( 839,600) (147,339)
Unrealised gains/(losses) 251,276 (10,557)
Realised gain/(loss) 10,505 4,509
------------- -------------
Market value at 30th April 2021 1,208,251 953,620
======= =======
Historical cost at 1st May 2020 636,972 687,500
Addition 832,450 52,864
Disposals (540,869) (103,392)
------------- ------------
Historical cost at 30th April 2021 928,553 636,972
======= =======
9. STOCKS
2021 2020
£ £
Stocks 9,789 20,026
10. DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
2021 2020
£ £
Trade debtors 4,853 30,716
Pulmonary Hypertension
Association (UK) 20,693 26,061
Accrued income 3,378 5,244
Prepayments 17,475 67,604
46,399 129,625
11. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
2021 2020
£ £
Trade creditors 16,356 35,875
Social security and other taxes 2,135 2,454
Accruals and deferred income 117,271 74,187
135,762 112,516

continued...

Page 19

PULMONARY HYPERTENSION ASSOCIATION UK

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 30 APRIL 2021

12. MOVEMENT IN FUNDS

MOVEMENT IN FUNDS
At 1.5.20
£
Unrestricted funds
General fund
178,810
Medical Research
250,000
Development and Printing of Booklets and
Online content
350,000
Awareness Activities
80,000
Fundraising Activities
50,000
Contingency Fund
65,000
Patient & Peer, Education & Support Events
105,000
1,078,810
Restricted funds
Living with PH
59,699
Breelib Project
-
59,699
TOTAL FUNDS
1,138,509
Net movement in funds, included in the above are as follows:
Incoming
resources
£
Unrestricted funds
General fund
437,594
Medical Research
53
Development and Printing of Booklets and
Online content
-
Awareness Activities
-
Fundraising Activities
14,462
452,109
Restricted funds
Living with PH
-
Breelib Project
15,915
Lottery Grant
9,048
24,963
TOTAL FUNDS
477,072
Net
movement
in funds
£
423,850
(43,856)
(62,934)
(36,599)
8,599
-
-
289,060
(50,918)
(47,214)
(98,132)
190,928
Resources
expended
£
(275,525)
(43,909)
(62,934)
(36,599)
(5,863)
(424,830)
(50,918)
(63,129)
(9,048)
(123,095)
(547,925)
Transfers
between
funds
£
(182,004)
43,856
62,934
36,599
(8,599)
-
-
(47,214)
-
47,214
47,214
-
Gains and
losses
£
261,781
-
-
-
-
261,781
-
-
-
-
261,781
At
30.4.21
£
420,656
250,000
350,000
80,000
50,000
65,000
105,000
1,320,656
8,781
-
8,781
1,329,437
Movement
in funds
£
423,850
(43,856)
(62,934)
(36,599)
8,599
289,060
(50,918)
(47,214)
-
(98,132)
190,928

continued...

Page 20

PULMONARY HYPERTENSION ASSOCIATION UK

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 30 APRIL 2021

12. MOVEMENT IN FUNDS - continued

Comparatives for movement in funds

Unrestricted funds
General fund
Medical Research
Annual Conference
Family Weekend
Development and Printing of Booklets and
Online content
Awareness Activities
Fundraising Activities
Contingency Fund
PHocus 2021
Actelian Physio Project
Patient & Peer, Education & Support Events
Restricted funds
Medical Research
PH Professionals Secretariat
Living with PH
TOTAL FUNDS
At 1.5.19
£
328,687
250,000
60,000
45,000
350,000
80,000
50,000
65,000
-
-
-
1,228,687
102
1,272
104,983
106,357
1,335,044
Net
movement
in funds
£
63,912
32,176
(73,840)
-
(55,399)
(70,845)
(26,588)
-
(4,890)
(11,036)
-
(146,510)
(2,180)
(2,561)
(45,284)
(50,025)
(196,535)
Transfers
between
funds
£
(213,789)
(32,176)
13,840
(45,000)
55,399
70,845
26,588
-
4,890
11,036
105,000
(3,367)
2,078
1,289
-
3,367
-
At
30.4.20
£
178,810
250,000
-
-
350,000
80,000
50,000
65,000
-
-
105,000
1,078,810
-
-
59,699
59,699
1,138,509

Comparative net movement in funds, included in the above are as follows:

Unrestricted funds
General fund
Medical Research
Annual Conference
Development and Printing of Booklets and
Online content
Awareness Activities
Fundraising Activities
PHocus 2021
Actelian Physio Project
Restricted funds
Medical Research
PH Professionals Secretariat
Living with PH
TOTAL FUNDS
Incoming
resources
£
395,734
60,895
-
-
-
12,511
-
-
469,140
320
3,750
-
4,070
473,210
Resources
expended
£
(336,866)
(28,719)
(73,840)
(55,399)
(70,845)
(39,099)
(4,890)
(11,036)
(620,694)
(2,500)
(6,311)
(45,284)
(54,095)
(674,789)
Gains and
Movement
losses
in funds
£
£
5,044
63,912
-
32,176
-
(73,840)
-
(55,399)
-
(70,845)
-
(26,588)
-
(4,890)
-
(11,036)
5,044
(146,510)
-
(2,180)
-
(2,561)
-
(45,284)
-
(50,025)
5,044
(196,535)
Gains and
Movement
losses
in funds
£
£
5,044
63,912
-
32,176
-
(73,840)
-
(55,399)
-
(70,845)
-
(26,588)
-
(4,890)
-
(11,036)
5,044
(146,510)
-
(2,180)
-
(2,561)
-
(45,284)
-
(50,025)
5,044
(196,535)
(146,510)
(2,180)
(2,561)
(45,284)
(50,025)
(196,535)

Details of designated funds

At 30 April 2021, Pulmonary Hypertension Association UK had £900,000 of unrestricted funds currently designated as follows:

continued...

Page 21

PULMONARY HYPERTENSION ASSOCIATION UK

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 30 APRIL 2021

12. MOVEMENT IN FUNDS - continued

Details of designated funds - continued

Where funds set aside for research are subsequently spent the expenditure is inclusive of both the charity's own unrestricted funds and contributions from third party partners including industry

13. OTHER FINANCIAL COMMITMENTS

Commitments under operating lease agreements.

At 30 April 2021 the charity had total commitments under non-cancellable operating leases as follows;

2021 2020 2020
Other
£
-
28,672
28,672
Land &
Building
Other Land &
Building
Expiry date: £ £ £
Within 1 to 5 years - - -
168,060 21,504 206,843
168,060 21,504 206,843

14.

RELATED PARTY DISCLOSURES

Due to the nature of the charity's operations and the composition of the Board of Trustees being drawn from local and national public and private sector organisations, it is inevitable that transactions will take place with organisations in which a member of the board of trustees may have an interest. Any such transactions are conducted at arm's length and in accordance with the charity's financial regulations and normal procurement procedures.

Details of trustee's interests are contained within the trustees report , and note 4.

On 31 July 2010 the net assets and operations of Pulmonary Hypertension Association (UK), an unincorporated charity (charity number 1082613) were transferred to the charity at net book value.

The trustees of Pulmonary Hypertension Association UK are also trustees of Pulmonary Hypertension Association (UK).

Donations totalling £214,632 were made to the charity by Pulmonary Hypertension Association (UK) (2020 - £232,489).

At 30 April 2021, £20,693 was due from Pulmonary Hypertension Association (UK) (2020 - £26,061).

continued...

Page 22

PULMONARY HYPERTENSION ASSOCIATION UK

NOTES TO THE FINANCIAL STATEMENTS - continued FOR THE YEAR ENDED 30 APRIL 2021

15. RESTRICTED FUNDS

Living with PH

Actelion Pharmaceutical provided a grant of £65,000 in 2017 and a further £42,500 in 2018 towards this survey/research project called "Living better with PH". Bayer also provided a grant of £50,000 towards this project in 2018. This is a long term project which will run over a number of years.

Breelib Project

Bayer paid to fund research project to evaluate patient experience using Breelib

Lottery Grant

Grant received from the Lottery Community Fund to assist the printing and postage of the Emphasis Autumn Magazine

Page 23