# THE CIARAN BUCKLEY TRUST

## Details

- **Country:** England & Wales
- **Charity number:** 1117246
- **Status:** Registered
- **Legal form:** Other
- **Registered:** Dec. 14, 2006
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1117246


## Contact

- **Address:** 9 LINKS GREEN WAY, COBHAM
- **Postcode:** KT11 2QH
- **Phone:** 07515529514
- **Email:** BUCKLEY_SALLY@YAHOO.CO.UK



## Activities

**Objects:** (1) TO ASSIST IN THE TREATMENT AND CARE OF PERSONS SUFFERING FROM KERATITIS-ICHTHYOSIS-DEAFNESS SYNDROME ("KID SYNDROME"), BLINDNESS, DEAFNESS, ANY OTHER SERIOUS SKIN CONDITION OR GENETIC DISORDER THROUGH PROVISION OF FINANCIAL ASSISTANCE;(11) TO PROMOTE SCIENTIFIC RESEARCH INTO KID SYNDROME, ANY OTHER GENETIC DISORDER AND ANY CONDITION CAUSING BLINDNESS, DEAFNESS OR AFFECTING THE SKIN THROUGH PROVISION OF FINANCIAL ASSISTANCE; AND(111) TO THE ADVANCE THE EDUCATION OF THE PUBLIC ABOUT KID SYNDROME.

**Activities:** The Trust raises funds in memory of Ciaran, who suffered from a genetic skin disorder called Keratitis-Ichthyosis-Deafness Syndrome (KID syndrome). The Trust aims to help people with similar conditions, as well as supporting research and promoting awareness about the difficulties of living with the multiple disabilities of blindness, deafness and skin disorders.

**Area of benefit:** NOT DEFINED. IN PRACTICE COBHAM AND ITS ENVIRONS




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities, Other Charities Or Voluntary Bodies



## Areas of operation

- Northern Ireland
- Surrey
- Throughout London



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Oct. 18, 2024 | £353 | £276 | — | — |
| Oct. 18, 2023 | £482 | £258 | — | — |
| Oct. 18, 2022 | £361 | £266 | — | — |
| Oct. 18, 2021 | £387 | £234 | — | — |
| Oct. 18, 2020 | £24 | £216 | — | — |



## Trustees

- JANET CONVERY
- JOHN SAUVEN
- NATASHA BUCKLEY
- SALLY GARLEY
- SARAH LIMA