_**‘I was told that I had a golf-ball-sized brain tumour in my left frontal lobe. I had also just found out that I was pregnant with Gracie (now six), and I had a nine-month-old baby. After my first operation, I couldn’t walk up the stairs, or leave the house. It’s been a long road to recovery, with lasting challenges that include anxiety and extreme fatigue. I was terrified that I wouldn’t be able to look after my children. I have had to work hard to get to where I am today, but I found**_ **brainstrust** _**– their support has been vital. I have also been able to give something back to the community, by walking two marathons in two days with Charlotte and Mel, and raising over £5,000 to help others on this journey.’**_ **Sarah**
**Trustees’ annual report and accounts** _brainstrust_ – the brain cancer people
1 April 2021 – 31 March 2022
## **Contents**
**Our challenge** . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . **3 Chief executive’s introduction** . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . **5 Why we are here and what we do** . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . **6** Our.strategy:.First,.we.are.people. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6 How.we.got.here. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6 The.experts.we.asked.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7
**What implementing this strategy looks like: achievements and performance** . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . **8** Our.support.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8 How.we.have.helped.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9 From.the.team.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10 The.impact.we’re.having. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11 Our.involvement.in.research.–.PRIME.one.year.on. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 14 Your.support.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 15 **Financial review** . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . **19 Structure, governance, leadership and management** . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . **20** Leadership.at. _brainstrust_ . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 21 Senior.staff.contacts. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 22 The. _brainstrust_ .team.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 22 Trustees. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 24 Collaborations,.networks.and.advisers.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 25 Patient-focused.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 25 Clinically.focused.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 25
Public.Health.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 25 Charities. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 26 Organisational.partnerships.and.collaborations.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 26 **Report of the Trustees and Audited Financial Statements for the year ended 31st March 2022 for** _**brainstrust**_ . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . **27** Report.of.the.Trustees. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 28 Report.of.the.Independent.Auditors.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 29–30 Statement.of.Financial.Activities.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 30 Balance.Sheet.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 31 Cash.Flow.Statement.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 31 Notes.to.the.Cash.Flow.Statement.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 32 Notes.to.the.Financial.Statements.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 32–37 Detailed.Statement.of.Financial.Activities. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 37–38
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
**2**
## **Our challenge**
_‘I have had to learn to live with the uncertainty and accept my life is different now … If you are waiting for treatment or lucky enough to be given a choice of treatments, my advice would be to find out all you can about the options, know there is support from_ brainstrust _to help you feel okay about what is ahead, remember to breathe and that you are not alone.’_
_‘I’m still suffering with tiredness and fatigue, and other people who have been through the same have said this can last months and maybe even years, so I guess this could just be a new way of life that I have to get used to. I’m taking anti-convulsant medication, which I will continue with for at least a year to prevent seizures, which up to now I have not suffered with pre- or post-op. I’m still waiting to hear back from the DVLA regarding my driving licence, but my consultant did say I couldn’t drive for 12 months, so I’m following that advice until I hear differently. You don’t realise how much this impacts you until it happens.’_
Kay.has.recently.had.surgery.to.remove.a.large.meningioma She.is. working.hard.on.recovery.and.coming.to.terms.with.her.new.normal .
Lin.is.living.with.an. astrocytoma.and.has.to.make. complex.decisions.about.her. treatment,.which.is.fraught. with.risk .
‘ _It was shocking to be told there is no cure. At just 68 years of age, it took away the retirement my dad and his beloved partner, Kath, should have been enjoying. He could no longer drive. His car was his pride and joy._
_Each scan showed the tumour was stable – and so it stayed for over three years. The treatment had certainly done its job in giving us more time together. However, his mobility got progressively worse. A stick was replaced by a walking frame, and eventually, he needed someone to be with him by his frame, as coordinating his foot movements on the most affected side became very difficult. His balance was badly affected, and due to the location of the tumour, his eyesight got steadily worse, such that he found it hard to read even large print and deal with different levels of light. But he was still with us.’_
Ian.cared.for.his.father,.who.died.after.living.with.a.glioblastoma.diagnosis.for.four.years .
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **3**
_‘As a result of my brain tumour, I have single-sided hearing loss, tinnitus, fatigue, balance issues, dizziness and nausea. All of this makes everyday living a huge effort, and I have had to relearn how to live my life. It now requires a lot of planning, pacing and resting._
_My first contact with_ brainstrust _was when I got in touch to request a brain box. This is an amazing box packed with lots of useful information for anyone diagnosed with a brain tumour, and it is posted to your home free of charge. My next step was to join some of the online workshops and Meetup groups that_ brainstrust _organises. I was really nervous at first, but I found it incredibly helpful to connect with others going through the same or a similar experience to myself. I have also received invaluable coaching from Jodie, my regional support specialist.’_
Helen.is.51.and.married.with.two.boys,.aged.21.and.15 She.lives.in. Staffordshire Her.experience.of.life.with.a.brain.tumour.has.shown. that.it.affects.the.whole.family .
**Over 80,000 people are living with a brain tumour in the UK. Only 12 % of adults survive beyond five years following a diagnosis. Brain tumours reduce life expectancy by an average of 27 years, and they kill more children than any other cancer, yet treatment for a brain tumour is brutal and harmful. It hasn’t changed in 40 years.**
Our.brains.are.incredible.–.they. make.us.who.we.are Your.brain. sparks.the.love,.the.joy.and. everything.else.that.you.feel It’s.the. most.complex.organ.in.the.human. body.–.it.is.the.supercomputer. that.creates.everything.that. The.brain.is. defines.humanity also.incredibly.delicate,.soft.and. intricately.balanced .
This.makes.it.susceptible.to.harm .
The.impact.of.brain.tumours. is.under-reported,.support.and. research.under-funded,.and.the. true.impact.of.the.disease.underacknowledged.and.misunderstood .
When.you.hear.the.words.‘you.have. a.brain.tumour’,.you.face.both.a. potential.cancer.diagnosis.and.also. the.prospect.of.progressive.and.
debilitating.neurological.disease You.are.afraid,.you.are.alone,.you. are.confused,.and.your.life.changes. dramatically.in.an.instant .
Today,. _brainstrust_ .is.here.to.help. everyone.live.their.best.possible. life.with.a.brain.tumour.in.the. face.of.these.stark.facts We.help. people.thrive.and.have.their.best. possible.day We.are.also.here.for. tomorrow We.hope.for.a.world.in. the.future.where.brain.tumours. have.little.impact But.we.know.that. hope.is.not.a.strategy We.support. clinical.research.and.work.with.our. community.of.experts.to.improve. investment.and.build.capacity. so.that.harm.is.reduced,.care.is. improved.in.hospital.and.at.home,. and.people.are.more.confident.and. able.to.take.control Only.then.can. life.with.a.brain.tumour.be.fulfilling. and.enjoyable,.and.people.who.have. heard.the.words.‘you.have.a.brain. tumour’.are.living.the.lives.they. want,.because.they.are.people.first. and.patients.second .
## _**This is our challenge.**_
**4** _**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
## **Chief executive’s introduction**
**The headwinds for us all still blow with the rolling uncertainties of a lingering pandemic, political turmoil, a rising cost of living and a devastating war in Europe. Yet in our work at** _**brainstrust**_ **, we find progress, solace, focus and hope. Our clear strategy, our strong community and our single-minded focus on helping people thrive following a brain tumour diagnosis provide focus and invigoration for our team and for the incredible brain tumour community.**
has.been.a.massive.setback.for.the. brain.tumour.community.during. the.pandemic,.but.now.we.are. confident.that.the.tide.is.turning .
We.know.that.when.our.community. thrives,.so.does. _brainstrust_ ,.and.the. stronger.we.are,.the.more.people. we.can.help.–.a.virtuous.circle Our. sustained.or.increasing.impact.in. the.face.of.continuing.growth.is. testament.to.this,.and.full.credit.to. our.small.team.for.powering.on .
Over.the.last.year,.we.have. worked.hard.to.build.resilience. and.capacity.at. _brainstrust_ following.the.existential.shock.of. the.Covid-19.pandemic We.have. strengthened.our.finances.to. help.us.through.the.significant. and.material.uncertainties.that. exist,.and.we.are.in.the.process. of.scaling.and.strengthening.our. team.–.a.vital.step.in.strengthening. our.organisation.in.the.face.of. unprecedented.and.sustained. demand.for.our.help .
of.accredited.resources,.and.they. participate.in.our.thriving.calendar. of.workshops.and.events This.is. an.increase.of.77%.on.last.year’s. workload,.and.we.do.this.with.a. small.but.dedicated.and.skilled. team .
But.we.reserve.a.special.thank-you,. for.you .
Nearly.everyone.we.help.tells.us. that.they.wish.they’d.found.us. sooner.on.their.journey.with.a. brain.tumour We.hear.this,.and.we. are.working.hard.to.reach.more. people.at.diagnosis Being.able.to. meet.with.the.clinical.community. again,.face.to.face,.is.helping.here We.meet.to.share.our.work.and. collaborate.on.referral.pathways. and.improving.care Not.being.able. to.access.information.in.hospital.
You.are.the.community.that.inspires. us You.energise.us,.you.educate. us,.and.you.keep.us.focused You. also.generate.the.vital.funds.and. awareness.that.fuel.our.mission. and.our.progress.–.thank.you .
We.now.welcome.over.100.people. each.month.to.our.support And. these.people.are.staying.with. us They.receive.coaching.and. counselling,.they.access.our.library.
None.of.us.is.as.smart.as.all.of.us,. and.it.is.your.belief.in.us.–.your. belief.in.our.mission.and.your.belief. in.our.vision.that.everybody.who. hears.the.words.‘you.have.a.brain.
tumour’.can.live.their.best.possible. life.with. _brainstrust_ ’s.help.–.that. drives.us This.is.because.with.us. you.are.a.person.first.and.a.patient. second .
We.thrive.in.a.world.where.we.are. a.person.before.we.are.seen.as.a. patient We.thrive.where.we.get.to. do.the.things.that.people.want.to. do.as.opposed.to.those.things.that. patients.have.to.do .
First,.we.are.people In.our.support,. in.our.research,.in.our.campaigning. and.in.our.fundraising,.that’s.our. vision,.and.it’s.the.mission.you.are. powering .
## **Will Jones** ,.
Chief.Executive,. _brainstrust_
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **5**
## **Why we are here and what we do**
## **Our strategy: First, we are people**
In.April.2019,.we.launched.our. current.strategy Thirteen.years. in.the.making,.this.strategy,.‘First,. we.are.people’,.puts.laser.focus. on.the.human,.practical.and. cultural.contexts.in.which.people. find.themselves.following.a.brain. tumour.diagnosis It.sets.out. our.journey.to.help.these.people. become.less.isolated,.more.in. control,.more.engaged.with.their. clinical.care.and.condition,.and. better.resourced .
The.human.context.sees.a.forgotten. group.of.people.who,.following. diagnosis,.see.themselves.fall.into.a. chasm.between.improving.clinical. care.and.the.scientific.pursuit.of.a. cure In.acknowledging.that.before. we.are.patients,.we.are.people,.we. can.help.people.navigate.this.void,. for.when.we.are.patients,.we.are. only.patients.for.a.small.amount.of. the.time We.want.to.do.things.that. people.want.to.do,.not.always.the. things.that.patients.have.to.do .
In.practical.terms,.we.know. from.our.intimately.close.work.
with.our.community.of.people. with.a.brain.tumour,.and.their. caregivers,.that.a.brain.tumour.is. isolating,.the.journey.is.confusing,. communicating.well.is.hard,. behaviour.and.personality.change. devastates.relationships,.fatigue. impacts 95%.of.those.diagnosed,. and.there.is.a.huge.financial. impact.as.work.stops These.are.just. some.of.the.challenges,.and.these. challenges.are.not.addressed.in. either.the.laboratory.or.the.hospital They.are.addressed.at.home,.where. help.is.hard.to.find .
## **How we got here**
Our.direction.has.been.set.in. consultation.with.our.community We.‘asked.the.experts’.what.they. needed.in.order.to.understand.what. matters.most .
We.heard:
- l You.spend.more.time.being. a.person.than.you.do.being.a. patient .
- l As.a.person,.you.are.more. resourceful,.more.proactive.and. more.confident.in.the.face.of. challenges .
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6 brainstrust trustees’ annual report and accounts: 1 April 2021 – 31 March 2022
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- l Emotions.and.values.drive.your. behaviour,.not.just.clinicians What.matters.to.you.is.more. important.than.what.is.the. matter.with.you .
- l People.look.at.opportunities As.a.person,.you.grow Patients. tend.to.focus.on.problems,.and. barriers.are.hard.to.overcome. unless.they.can.be.treated.or. medicated .
Our.current.strategy.has.been. co-created.with.our.community. and.delivered.with.its.support This. strategy.is.helping.us.to.achieve.our. mission.–.we.are.here.for.a.world.in. which.people.with.a.brain.tumour. are.involved,.resourced,.supported,. confident.and.connected They.are. living.the.lives.they.want,.because. they.are.people.first.and.patients. second .
## **The experts we asked**
The.conclusions.and.decisions. reached.in.the.development.of.our. strategy.result.from.conversations. and.day-to-day.meetings.and. experiences.over.a.six-month.period. with.the.following.stakeholders:
- l beneficiaries.–.people.living. with.a.brain.tumour.and.their. caregivers
- l supporters
- l current.and.prospective. philanthropic.funders
- l other.charities
- l _brainstrust_ .team.members. and.trustees
- l national.research.bodies
- l local.and.national.research. funders
- l clinical.experts.from.all. specialities
- l campaign.groups .
## **Our goal**
**A world where people with a brain tumour are involved, resourced, supported, confident and connected. They are living the lives they want, because they are people first and patients second.**
## **To make this happen, we aim to:**
**help people overcome fear**
**help people to engage with their challenges and care**
**eliminate isolation**
**improve knowledge and understanding**
## **through our work in the following areas:**
**coaching and support building communities information and education regional insight and relevance**
**clinical engagement, development and network building**
**engaging people in research**
## **which is only possible with:**
**effective fundraising efficient marketing and promotion**
**administrative support**
**good governance**
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **7**
## **Our support**
_‘It has been a challenging yet rewarding year for us. We have struggled with capacity after a significant uplift in activity, which has doubled since Covid-19 restrictions ended. Our team has risen to the challenge, but we are not sure how sustainable this is. Alongside making sure we are as efficient as we can be, we have worked hard to build resilience during the period so that we can scale capacity as we move ahead on our mission._
_We are looking forward to expanding our support to build our impact, reach more people and work more sustainably. We have the strategy and structures in place to deliver and scale our work. It’s an exciting period ahead for_ brainstrust _and the team.’_
## **Helen Bulbeck** ,.
Co-Founder.and.Director. of.Services,. _brainstrust_
**What implementing this strategy looks like: achievements and performance**
**8** _**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
## **How we have helped**
## **Direct support for people with a brain tumour**
## l Between.1.April.2021.and.
31.March.2022,. **2,339 people contacted our team of support specialists for help** .by.phone,. webchat,.video.call.or.email This.is.over.1,000.more.(an.85%. increase).from.the.previous. year,.when 1,264.accessed.our. help.in.these.ways .
## l **825 people were new to**
- _**brainstrust**_ .(481.patients,.344 caregivers),.a.72%.increase.from. 479 .people.the.previous.year .
## l **404 brain boxes were sent**
**to people who needed them** ,. double.the.number.of.the. previous.year.(203) .
- l **Over 200 counselling sessions were provided** ,.with.over.half. (54%).being.held.by.Zoom This. compares.to.17%.in.2019/2020 The.rest.of.the.sessions.were. held.by.telephone.(46%) .
Counselling.is.very.hard.to.access. quickly.through.NHS.channels,.with.
waiting.lists.extending.to.months People.can.be.referred,.but.with.an. appointment.date.that.is.beyond. their.prognosis _brainstrust_ ’s.rapidaccess.counselling.service.alleviates. this.pressure.and.enables.people.to. access.counselling.quickly.through. our.network.of.private.counsellors All.are.qualified.practitioners,.and. have.had.additional.training.on. the.needs.of.the.brain.tumour. community .
proved.to.be.the. **most popular and the most useful** .in.terms.of. number.of.people.reached.and. positive.feedback .
- l **1,663 people** .(91%.of. respondents).have.told.us.that. the.brain.tumour.information.
on.our.website. **helped them feel more resourced, more confident or more in control**
## **Online support and information**
- l **110,928 people accessed our online information for the first time during the year.** .This.is.an. increase.of.4%.from.107,112.the. previous.year .
## **Events**
- l These.people **accessed information on our website 256,778 times** .
**We hosted 134 events** (webinars,. Meetups.and.workshops),.a.31%. increase.compared.to.the.102.held. the.previous.year .
- l There.were. **5,160 downloads of long-form health information** from.our.website .
- l **Information about end-of-life care** ,.the. **brain box** ,.and.our. **Overall attendance was also** information.about. **brain tumour significantly up** ,.at.1,032,.compared. **symptoms and diagnosis** .have. to.the.previous.year’s.784 .
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **9**
## **From the team**
_‘During the year, we saw a growth in demand for quick, accessible information. We adapted our information_
_programme of work to meet this demand and expanded our library of Know Hows significantly. These met the changing needs that people told us they had. Topics included finance and welfare benefits, how to bring structure to your day, how to find a new normal, knowing what to ask at diagnosis and how to find trusted information.’_
## **Jodie Eveleigh** ,.
Support.Specialist,.Midlands,. and.Information.Lead
_‘We made sure that our events programme remained relevant as we navigated our way through and beyond_
_pandemic restrictions. These often varied between regions and nations, and people told us their appetite for risk was different, depending on their circumstances. We adopted a flexible, hybrid approach with events running online and offline. This enabled us to support more people, with a more diverse range of topics, while maintaining or improving impact._
## **Carol Cochrane** ,.
Support.Specialist,.Scotland,. and.Events.Lead
_‘We have been travelling less. This has made it harder to connect with some groups, including clinicians._
_However, we have been able to use the time available to develop deeper, more impactful coaching relationships with people who are in crisis or who need more in-depth and ongoing support. We have spent a lot more time on the phone and honing our skills using new modes of communication.’_
## **Helen Bulbeck** ,.
_brainstrust_ .Co-Founder.and. Director.of.Services
_‘We offer both rapidaccess coaching and counselling. We work with the person to identify their needs so that any intervention is personalised for_
_them. People living with a brain tumour often come to_ brainstrust _with a direct ask for counselling. We have no context for them, no understanding of what has brought them to us, and we do not know whether counselling is an appropriate intervention for them. With careful questioning and by supporting the person to develop their understanding of the differences between counselling and coaching, more often than not, coaching will be the preferred intervention._
_Both interventions are transformative – we are delighted to be able to offer both, freely, as part of our extensive support offer. In addition to the six counsellors that deliver our service, we have been very pleased to add a play therapist to the network.’_
## **Molly Hughes** ,.
Support.Specialist,. London.and.the.South-East
**10** _**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
## **The impact we’re having**
_‘Financial measures and numbers to do with ‘people reached’ or ‘people helped’ are important but shouldn’t be considered in isolation. When looking at performance in the charity sector, we must look at the true impact our organisations are having. And by ‘impact’, we don’t just mean reach (counting people); we also mean the change we have driven. Charity is in the incredible position of existing to improve society, or put simply, to improve lives. We need to look closely at the lives that we’re changing and report back on what that change looks like. We must also use our understanding of impact to acknowledge where we need to go further or faster.’_
## **Will Jones** ,.
Chief.Executive,.
_brainstrust_
understanding.impact Progress. trackers.are.completed.and. monitored.collaboratively.with. our.beneficiaries The.process.isn’t. unobtrusive,.but.it.is.helpful In. completing.a.progress.tracker,.or. multiple.progress.trackers,.we.help. people.to.establish.where.the.focus. of.our.support.needs.to.be.to.help. them.move.forward To.complete. a.progress.tracker,.patients.and. caregivers.provide.a.score.of.how. they.are.feeling.on.a.scale.of.1.to. 5.for.each.of.our.indicators They. complete.multiple.progress.trackers. on.their.journey.with. _brainstrust_ ,. and.this.paints.a.picture.of.their. progress .
_**‘Thank you so much for being here. I feel more confident and not alone with you at the end of an email.’**_ Patient
- l feeling.supported
Understanding.the.impact.we. are.having.is.vital.to.all.of.us.at. _brainstrust_ We.have.worked.hard.to. instil.this.principle.in.our.principles. and.processes A.genuine.interest.to. understand.and.report.on.people’s. progress.sits.at.the.very.centre. of.our.work We.track.progress. against.six.indicators These.have. been.defined.as.being.important. to.quality.of.life.by.our.community. of.patients.and.their.caregivers In. turn,.these.indicators.support.the. four.priorities.in.our.strategy These. six.indicators.are:
- l feeling.resourced .
We.learn.how.people.are.doing. against.these.indicators.through. the.use.of.our.bespoke.progress. tracker.tool This.gives.us.a.simple,. flexible.and.human.approach.to.
_**‘You truly are a ray of light and the support we need at this time as my father and I feel very much alone in caring for my mother.’**_ Caregiver
- l engagement.with.care.and. condition
- l reduced.isolation
- l engagement.with.communities
- l creating.control
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **11**
**Fig 1:** _**brainstrus**_ **t beneficiary-reported outcomes before and after engaging with our services (178 respondents from the year in review)**
## **Our impact**
On.average.across.all.six.indicators,. we.have.helped.people.improve. their.well-being.by.almost.18% The. average.initial.score.was.2.87/5,.and. the.average.latest.score.was.3.75/5 This.is.despite.facing.a.progressive,. life-limiting,.life-changing.or. terminal.diagnosis .
**----- Start of picture text -----**
Less.alone
Engaged.with. Part.of.a.
clinical.care community
Resourced On.top.
of.things
..Initial
..Latest Supported
**----- End of picture text -----**
People.see.the.biggest.
improvements.in.feeling.supported. and.feeling.part.of.a.community,. with.an.increase.of.0.94/5 and. 1.03/5.respectively.as.compared.to. their.initial.scores .
**Fig 2:** _**brainstrust**_ **beneficiary outcomes – overview of cohort’s progress by indicator (178 respondents from the year in review)**
**----- Start of picture text -----**
Less.alone
Part.of.a.
community
On.top.of.things
Supported
Resourced
Engaged.with.
clinical.care
0 20 40 60 80 100 120 140 160 178
Decreased....... ..Same....... ..Increased Beneficiaries
**----- End of picture text -----**
## **What we have learned from this year’s impact data**
For.the.year.in.review,.we.have. noticed.that.people.are.contacting. us.with.a.higher.initial.score.than. average.across.all.indicators The. average.initial.score.for.this.period. is.3.3/5 This.is.higher.than.our. historical.average.of.2.87/5 This. may.mean.that.people.are.getting. to.us.later.on.their.journey,.when. they.are.more.confident.and.have. a.better.understanding.of.their. complex.pathway While.we.are. still.having.a.positive.impact.and. improving.well-being.across.all.six. indicators,.we.have.work.to.do.to. ensure.those.who.would.benefit. from.our.support.are.able.to.access. us.when.they.need.it.most This. reinforces.the.need.for.strong. clinical.engagement.and.making. sure. _brainstrust_ .is.accessible,. available.and.a.known.option.for. all.patients.at.every.point.of.their. pathway .
This.higher.starting.point.can.also. be.attributed.to.Covid-19.having. a.lesser.effect.on.people’s.lives. this.year.when.compared.to.the. previous.year.–.people.are.more.in.
**12** _**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
like This.investment.will.enable. us.to.offer.dedicated,.accessible. regional.support.in.new.areas.for. those.who.need.it.most,.when.they. need.it.most .
control.of.their.circumstances,.and. clinical.pathways.are.less.disrupted .
We.see.a.smaller.distance.travelled. when.people.are.in.a.better. place.when.they.reach.out.to.us,. but.despite.this,.we.still.have.a. significant.positive.impact.on. well-being.for.people.who.are.in.a. desperate.situation We.know.that. our.greatest.impact.is.in.helping. people.to.feel.part.of.a.community .
## **Meet Luke**
Luke.was.diagnosed.with.a.lowgrade.brain.tumour When.we. first.started.talking.in.March,.he. struggled.with.anxiety,.panic.and. avoidance We.had.regular.coaching. calls During.our.dialogue,.I.sent.him. links.for.our.Know.Hows.on.driving,. mindfulness,.scanxiety.and.how.to. live.with.uncertainty,.as.well.as.our. information.about.acceptance .
This.consistency.in.distance.travelled. year.on.year.affirms.our.planning We.know.that.we.can.be.even.more. effective As.we.build.capacity.in. the.year.ahead,.we.will.be.able.to. provide.additional.and.more.focused. support.in.regions.where.we.are.not. currently.as.proactive.as.we.would.
We.talked.about.how.hypnotherapy. may.help.him.to.learn.techniques.
to.recentre.when.he.is.most. overwhelmed.or.anxious At.first.he. was.slightly.dubious.but.thought.he. would.give.it.a.try He.now.attends. most.of.the.weekly.resets.and.says. that.they.have.been.so.helpful. for.him He.has.now.attended.the. Brighton.Meetup.and.the.tea.and.a. wee.blether,.virtual.brew.and.lowgrade.Meetups .
Luke.has.completely.transformed. in.the.time.I.have.known.him He. is.now.a.lot.more.confident.and. assured.in.himself We.no.longer. need.our.monthly.phone.checkins,.but.I.do.email.to.see.how.he’s. doing.every.two.months,.as.he.has. now.moved.from.shared.care.to. supported.self-care.in.our.triage. system .
**----- Start of picture text -----**
Less.alone
Engaged.with. Part.of.a.
clinical.care community
Resourced On.top.
of.things
29th.March.2022
2nd.August.2022 Supported
**----- End of picture text -----**
We.reflected.together.recently.on. his.progress.tracker.changes Luke. tells.us.that.he.is.feeling:
- l more.on.top.of.things. (initially.2/5,.now.3/5.–.a.20% improvement)
- l better.supported.(initially 3/5,. now.4/5.–.a.20%.improvement)
- l not.alone.(initially.4/5,.now.4/5)
- l much.more.resourced. (initially.2/5,.now.5/5.–.a.60%. improvement)
- l much.more.able.to.navigate.his. clinical.care.(initially.2/5,.now. 4/5.–.a.40%.improvement)
- l much.more.a.part.of.a. community.(initially.2/5,.now.5/5 –.a.60 %.improvement) .
During.this.exercise,.Luke.said,. _‘Thank you very much for this. I appreciate you taking time to help and update me. Looks like I’m doing much better. I feel like I am, with thanks to you and_ brainstrust _.’_
## **Molly Hughes** ,.
_brainstrust_ .Support.Specialist,. London.and.the.South-East
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **13**
## **Our involvement in research – PRIME one year on**
In.2021,.we.created.the.Patient. Research.Involvement.Movement. (PRIME).to.provide.the.help.needed. to.bridge.the.gap.between.the. clinical.community.and.patients. and.caregivers The.aim.of.this.work. is.to.improve.the.quality.of.clinical. brain.tumour.research.and.its. design .
Since.inception,.PRIME.has.grown. rapidly,.achieving.a.great.deal.in. the.clinical.research.landscape We.have.recruited.50.research. advocates,.who.lend.their.insights. to.researchers,.helping.to.shape.the. trials.and.studies.that.will.hopefully. improve.care.for.future.patients We. have.also.trained.seven.research. partners.in.how.to.deliver.top-level. patient.and.public.involvement,.and. we.have.signed.over.400.people. up.to.our.weekly.research.updates,. helping.them.become.more. knowledgeable.about.the.field .
The.studies.we’ve.supported. include.developing.core.outcome. sets.to.better.identify.patient.
needs,.altering.standard.care.by. introducing.new,.cutting-edge. technologies,.and.looking.at. how.we.can.more.efficiently.get. treatments.out.of.the.lab.and.to.the. patients,.among.many.others These. studies.could.ultimately.improve. the.quality.of.life.for.those.living. with.a.brain.tumour.today.and.in. the.future .
Looking.forward,.we.will.continue. to.improve.the.quality.of.patient. and.public.involvement.in.clinical. research We.will.do.this.by:
- l growing.our.excellent. community.of.research-primed. patients.and.caregivers
- l supporting.more.clinicians.and. researchers.as.our.group.of. research.partners.expands
- l providing.exceptional.and. effective.patient.involvement
- l shaping.the.trials.and.studies. that.can.achieve.meaningful. change.for.our.community .
We.are.working.in.partnership.with. the.charity.Brain.Tumour.Research. to.grow.this.work .
**14** _**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
- l government.support.relating.to. the.Covid-19.pandemic
## **Your support**
In.2021,.our.supporters.raised. £952,203.to.fund. _brainstrust_ ’s. mission This.income.remains.from. a.diversified.mix.of.traditional. charity.fundraising.activity Our. funding.comes.from:
- l special-purpose.fundraising.to. enable.communities.to.access. novel.treatments.and.therapies .
- We.have.limited.income.from.legacy. fundraising.and.high-net-worth. individuals,.and.we.have.minimal. investment.income,.instead.keeping. cash.available.to.provide.liquidity. and.flexibility.so.that.we.can. react.promptly.to.the.needs.of.our. community .
- l trusts.and.foundations
- l direct.and.regular.giving
- l companies.who.support. our.work
- l sponsored.events.and.challenges
We.were.grateful.to.secure. significant.support.from.statutory. and.philanthropic.partners,. which.helped.us.to.survive.an. unprecedented.year.during.the. pandemic We.are.now.working.to.
- l community.fundraising
- l Gift.Aid.recovery
- l in-memory.giving
- l trading
(2020–21:.£741,000),.£346,000 related.to.restricted.income.funds The.net.surplus.for.the.year.was. £289,000.(2020–21:.£230,000),.of. which.£283,000.related.to.restricted. income.funds .
strengthen.those.relationships.as. part.of.a.more.diverse.fundraising. portfolio.that.reduces.risk .
With.all.public.fundraising. cancelled.at.the.outset.of.the. Covid-19.pandemic,.we.have.since. worked.hard.to.reignite.supporter. fundraising We.have.been. delighted.to.see.activity.and.income. from.community.fundraising. channels.build.on.last.year This. focus.is.bringing.our.work.closer,. once.more,.to.the.community.we. are.here.to.serve .
_‘Our supporters continue to inspire us with their ideas for fundraising activities, and it’s rewarding to be able to take a tailored and individualised approach to the way we help to realise their ambitions and passions.’_
## **Julia Smith** ,.
Of.the.gross.income.generated. in.2021–2022,.totalling.£952,203
Fundraising.Manager,. _brainstrust_
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **15**
## **Our income 2021–22**
**----- Start of picture text -----**
Government.Covid-19.pandemic.
Investments:. £26 support:. £6,083
Personal.donations:.
£57,896
Grants.from.other.
Restricted.income.
charities:. £175,831
fundraising.–.partner.
groups:. £326,012
Total.income:.
£952,203 Corporate.support:.
£53,576
Gift.Aid.recovered:. £50,551
Trading:. £12,472
Community.fundraising.including.
team. brainstrust .marathons. contributions.from.restricted.income.
and.challenges: fundraising:. £95,417
£174,339
**----- End of picture text -----**
## **Our expenditure 2021–22**
**----- Start of picture text -----**
Governance:. £14,963
Generating.restricted.income:. £23,782
Generating.unrestricted.income:.
£66,402
Charitable.activities.
restricted.expenditure:.
£19,596
Total.expenditure:. Charitable.activities.
unrestricted.expenditure:.
£663,431 £538,688
**----- End of picture text -----**
Here.are.just.some.of. _brainstrust_ ’s. fundraising.highlights.for.the.year .
**Jack Jarvis rows the Atlantic, sets a new world record and raises funds and awareness for** _**brainstrust**_
On.3.December.2021,.Jack.Jarvis. set.off.from.the.south.coast.of. Portugal.to.attempt.a.world-first. row He.aimed.to.row.across.the. Atlantic,.completely.solo,.on.a.route. never.before.attempted He.did. this.to.raise.money.for. _brainstrust_ in.memory.of.his.grandad After. 111.days.at.sea,.with.4,630.nautical. miles.covered,.Jack.reached.land.in.
Miami.on.24.March.2022,.raising. £70,000.and.helping.us.to.reach. millions.of.people.with.our.mission .
**16** _**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
## **Run, Row, Ride – 30 miles, 30 days, your way**
Every.day,.30.people.are.diagnosed. with.a.brain.tumour.in.the.UK For. these.30.people,.the.road.ahead.is. scary.and.uncertain By.taking.on. Run,.Row,.Ride,.and.raising.£200,. supporters.can.make.sure.that. people.who.are.newly.diagnosed. with.a.brain.tumour.don’t.have.to. face.the.journey.alone .
With.the.Covid-19.pandemic.forcing. mass-participation.and.challenge. events.to.be.cancelled,.we.had.to. amplify.creative.ways.to.fundraise. individually.or.in.small.groups The. Run,.Row,.Ride.event.was.new.in. 2019.and.provided.our.supporters. with.the.perfect.way.to.join.our. mission.and.fundraise.their.own. way.in.the.absence.of.massparticipation.events The.event.has. raised.£44,600.in.three.years.and. has.proved.to.be.an.inspiring.and. accessible.way.for.people.with.a. brain.tumour.and.their.loved.ones. to.support.our.vital.work,.and.get. active.during.a.period.fraught.with. restrictions .
together.to.experience.routes.that. took.in.sections.of.the.South.West. Coast.Path,.the.Cleveland.Way.and. the.Fife.Coastal.Path .
## **Follow the Seagulls**
With.the.easing.of.restrictions.and. a.desire.in.the.community.for.a. challenge.that.matches.the.scale. of.passion.for.our.work,.Follow. the.Seagulls.returned.in.2021 Postponed.events.were.finally.able. to.take.place.in.September .
To.date,.this.amazing.event.has. raised.over.£208,000,.with.£49,000 raised.at.Follow.the.Seagulls.2021,. but.it.is.more.than.a.fundraising. trek.–.the.weekend.never.fails.to. bring.people.from.the.community. together,.to.galvanise.around.a. challenge.that.is.tackled.at.a.pace. comfortable.enough.to.share. stories,.perspectives.and.advice.on. life.with.a.brain.tumour All.who. take.part.in.Follow.the.Seagulls.do. so.because.the.challenge.matches. the.scale.of.their.passion.for.helping. people.with.a.brain.tumour.get.the. vital.support.they.need .
Walkers.gathered.in.Whitby,.on. the.Isle.of.Wight,.in.Fife,.and.in. Dartmouth.to.trek.50.miles.in.two. days.to.support.the.brain.tumour. community First.walked.in.2013 on.the.Isle.of.Wight,.Follow.the. Seagulls.has.grown.steadily.into.a. four-location.event,.but.it’s.no.walk. in.the.park .
Our.heroes.all.put.in.some.serious. training.hours.before.joining.
## **The London Marathon**
The.London.Marathon.took.place.on. Sunday.3.October,.with.the.virtual. London.Marathon.staged.on.the. same.day .
We.welcomed.eight.runners.to.team. _brainstrust_ ,.seven.who.ran.in.London. and.one,.Alice,.who.completed.her. marathon.virtually .
Alice.chose.to.complete.her. marathon.with.a.route.that.started. in.Polstead,.near.Colchester,.and. ended.in.Pin.Mill,.on.the.River.Orwell,. Ipswich.–.she.actually.covered.28 miles,.going.1.8.miles.further.than.the. usual.marathon.distance,.thanks.to.a. few.wrong.turns Alice.was.joined.by. her.sister-in-law.and.even.received.a. donation.along.the.route.from.two. well-wishers .
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **17**
Our.runners.in.London.included.our. head.of.support,.Jane,.who.is.on. her.way.to.complete.the.inspiring. challenge.of.running.12.marathons. in.12.months,.with.the.London. Marathon.her.third .
Also.running.in.London.was. Adam,.who.had.set.himself.the. epic.challenge.of.completing.15 marathons.in.15.days.to.mark. 15.years.of. _brainstrust_ Adam’s.
15th.marathon.was.the.London. Marathon,.and.he.says.it.was.his. favourite.of.them.all,.and.not.just. because.it.was.the.last .
Adam.and.Jane.were.joined. in.London.by.team. _brainstrust_ members.Carol,.Ethan,.Spencer,. Michelle.and.Charlie Spencer. credited.the.support.he.received. from.his.family.for.helping. him.along.the.way,.and.Charlie. commented,.‘It.was.a.pleasure.to. run.for. _brainstrust_ ,.a.charity.that. provided.so.much.support.for.my. family .’
For.Carol.and.Ethan,.the.London. Ethan. Marathon.was.their.first.ever reflected:.‘I.am.very.proud.and. happy.to.raise.a.good.sum.of.money. for.an.amazing.cause.in. _brainstrust_ ,. who.were.there.for.my.family.in.the. time.we.needed.it.most This.is.the. least.I.could.do.–.and.I.hope.that.the. charity.continues.to.help.others.like. our.family Brain.cancer.doesn’t.get. enough.attention,.in.our.opinion It’s. time.we.raised.awareness!’
Our.London.Marathon.team.raised. £14,000.for.our.work.–.to.you.all,. thank.you .
Thank.you.to.The.National.Lottery. Community.Fund.and.players.of.The. National.Lottery The.second.year.of. our.Reaching.Communities.grant. has.helped.us.to.support.more. people.in.the.Midlands.and.southern. England.with.our.high-impact. coaching .
## **Support from trusts and foundations**
Thank.you.to.our.trust.and. foundation.partners.for.caring. about.people.who.are.living.with. a.brain.tumour.diagnosis Your. support.has.played.a.meaningful. role.in.helping. _brainstrust_ .to.survive. and.thrive Your.compassion.has. helped.us.to.make.a.difference .
Thank.you.to.new.funding.partner. the.Moondance.Foundation.for. helping.us.to.grow.our.service.in. Wales .
We.are.grateful.to.The.Rank. Foundation.for.its.continued. support We.value.our.membership. of.RankNet.and.the.opportunities.it. brings.for.learning.and.sharing .
We.are.grateful.to.The.Wyseliot.Rose. Charitable.Trust.for.its.dedication. and.kindness.over.many.years .
**18** _**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
## **Financial review**
The.Trust’s.published.statutory. accounts.for.the.year.ended.31 March.2022.are.incorporated.in.this. Trustees’.Annual.Report.and.include. considerable.detail.on.the.source. and.application.of.funds,.and.the. financial.position.of.the.Trust.at. 31.March.2022,.as.required.by.the. SORP.for.UK.charities.published.by. the.Charity.Commission This.report. comments.on.the.main.points. contained.in.the.accounts .
In.summary,.gross.income.generated. in.2021–2022.was.£952K.(2020–21:. £741K),.of.which.£346K.related.to. restricted.income.funds The.net. surplus.for.the.year.was.£289K. (2020–21:.£230K),.of.which.£283K. related.to.restricted.income.funds .
Through.adaptive.planning.and. changes.to.our.patient.and.caregiver. offers,. _brainstrust_ .has.weathered.the. pandemic.in.good.financial.health .
As.reviewed.elsewhere.in.the. Trustees’.Annual.Report,. _brainstrust_ ’s.
charitable.impact.has.been. significantly.increased.due.to. measures.as.disparate.as.taking. elements.of.our.support.online. (thus.increasing.our.reach.and. effectiveness.while.increasing.cost. only.within.budget).and.focusing. to.an.even.greater.extent.on.that. which.our.research.tells.us.is. the.type.of.support.that.brings. real.benefit.to.our.stakeholders. Therefore,.in.a. and.beneficiaries controlled.way,.overall.expenditure. in.2021–22,.at.£663K,.has.naturally. increased.year.on.year,.alongside. a.higher.level.of.activity,.from.the. lockdown.year.of.2020–21.(£511K) .
The.Trust’s.gross.income.for. 2021–22,.at.£952K,.was,.as.noted. above,.a.significant.increase.on. the.£741K.raised.in.2020–21 Most. community.fundraising.was.severely. impacted.during.2020–21,.and. while.2021–22.has.not.yet.seen.a. return.to.a.‘normal’.twelve.months,. our.supporters,.through.grants,.
donations.and,.in.many.cases,.the. hard.physical.graft.of.traditional. fundraising.through,.for.example,. sponsored.and.testing.walks,. marathons.and,.in.one.extreme.case,. rowing.the.Atlantic.solo.and.by.our. own.increasing.use.of.technology,. our.income.streams.have.covered. our.costs.and.allowed.for.a. significant.growth.in.our.reserves .
Most.of.the.Trust’s.income,.both. general.and.restricted,.is.applied. to.supporting.patients.and.their. caregivers.and.families,.from.the. point.of.a.brain.cancer.diagnosis Our.support.team.provides.UK-wide. coverage,.supported.by.the.Big. Lottery.Fund.and.other.substantial. funders .
The.Trust.has.only.cash.investments,. deposited.with.NatWest.Bank.and. The.Co-operative.Bank At.31.March. 2022,.the.Trust.had.net.reserves,. including.our.restricted.income. funds,.of.£704K.(2021:.£415K),.which.
included.net.unrestricted.reserves. of.£274K.(2021:.£268K).and.net. restricted.reserves.of.£430K.(2021:. £148K) The.unrestricted.surplus.for. the.year.in.review.has.been.added.to. our.general.charitable.funds .
The.Trust.has.a.long-standing.policy. of.holding.unrestricted.reserves. to.cover.four.months.of.defined. core.costs As.at.31.March.2022,. unrestricted.reserves.were.sufficient. to.cover.just.over.six.months.of.core. costs,.the.excess.providing.a.useful. cushion.as.the.UK,.and.especially. the.charity.sector,.continues.to. operate.in.a.very.unusual.and. unpredictable.environment .
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **19**
_‘We believe good governance is an essential component of our success, particularly as we grow. It underpins our integrity, reinforces the trust and confidence our patients and partners place in us, and contributes to a strong highperformance culture.’_
## **Chris Baker**
Chair.of.Trustees
_‘Focused discussions, an agile and adaptable approach to planning and sound cooperation between the appointed trustees and the managers of the Trust have ensured that_ brainstrust _has continued to provide support and guidance for our patients, in accordance with its aims, while maintaining a secure financial footing.’_
## **Gillian Bilbo**
Trustee
_brainstrust_ .is.constituted.as.a.trust,. governed.by.its.Declaration.of.Trust,. dated.4.March.2006
The.overall.guidelines.for.the. management.and.administration. of.the.Trust.are.incorporated.in. the.Declaration.of.Trust,.dated.4 March.2006,.as.amended.by.Deeds. of.Amendment.adopted.by.the. trustees.under.the.terms.of.the. original.deed.and.notified.to.the. Charity.Commission .
This.places.overall.responsibility.for. the.proper.governance.of.the.Trust. with.the.appointed.trustees Dayto-day.management.of.the.Trust. is.delegated.to.William.Jones,.who. has.been.appointed.chief.executive. of.the.Trust The.chief.executive,. supported.by.the.leadership. team,.makes.recommendations. to.the.trustees.on.the.Trust’s. vision,.patient.and.caregiver. support,.related.research,.financial. fundraising,.promotional.activities. and.ensuring.that.funds.raised. are.spent.as.efficiently.as.possible. on.resources.that.will.be.useful.to. people.affected.by.brain.cancer .
**20**
## **Leadership at** _**brainstrust**_
_brainstrust_ .has.a.stable,.experienced. and.committed.leadership.team. who.are.aligned.in.delivering.our. mission.and.who.are.the.strongest. advocates.of.our.vision.and.values Day.to.day,.the.leadership.team. work.to.promote,.develop.and.instil. purpose,.autonomy.and.mastery. throughout.the.organisation. through.a.‘tight-loose’.approach,. which.is.manifested.in.tightly. defined.objectives.for.each.member. of.the.team,.but.loosely.defined. method This.allows.people.to. work.the.way.that.suits.them. best.to.achieve.the.right.goals.for. _brainstrust_ .and.our.beneficiaries .
This.leadership.team.and.trustees. have.a.clear.mandate.to:
l **Set an example** .–.It.is.important. to.demonstrate.our.values.in. everything.we.do We.set.high. standards.of.behaviour.and. inspire.colleagues,.supporters. and.beneficiaries.to.do.the. same We.demonstrate.fairness,. integrity.and.resilience,.and.we. build.trust.with.our.actions .
## l **Look after people** .–.At.
_brainstrust_ ,.we.promote.the.wellbeing.of.individuals,.teams.and. communities We.encourage.a. supportive.culture.and.inclusive. working.arrangements We. prioritise.one-to-one.time.with. people.to.listen.and.understand. their.needs We.support.and. defend.colleagues.in.difficult. situations We.identify.and.deal. with.poor.performance.and.bad. behaviour .
l **Take ownership** .–.We.welcome. responsibility.and.accountability We’re.proactive,.pick.up.things. that.need.doing.without.being. asked.and.push.to.finish.the.job. in.hand We’re.the.first.to.admit. mistakes,.apologise.when.wrong. and.learn.for.next.time .
## l **Provide clarity** .–.We.must.
communicate.clearly.and. concisely.through.the.right. channel We.question.any. decisions,.goals.or.explanations. that.are.vague.or.ambiguous,. and.we.work.to.clarify.them We’re.open,.honest.and. straightforward.in.what.we. say.and.write And.we.provide.
specific,.understandable.and. useful.feedback .
## l **Make good decisions** .–.We.
use.evidence.and.judgement. to.make.good.decisions We. know.that.timely.decisions. are.important,.so.we.don’t. procrastinate.or.fudge We. commit.to.collective.decisions,. particularly.when.we.originally. disagreed We.consult.broadly,. seek.out.contrary.opinions.and. listen.to.quieter.voices We. make.sure.we.can.explain.our. decisions,.with.context,.rationale. and.evidence .
l **Point the way** .–.We.share.an. inspiring.vision.for.the.future.of. the.charity.and.everyone’s.part. in.it In.our.work,.we.make.sure. that.colleagues.understand.the. outcomes.we.want.to.achieve. and.the.value.that.they.will. create .
- l **Build the future** .–.We.bring.great. people.on.board We.actively. look.for.the.widest.range.of. candidates.to.strengthen.our. diversity We.encourage.our. colleagues.to.learn,.develop. new.skills.and.pursue.their.
career.aspirations,.whether.at. _brainstrust_ .or.elsewhere And. we.give.people.opportunity. and.responsibility.at.the.right. pace.for.them We.continually. improve. _brainstrust_ ’s.capability. and.the.effectiveness.and. We. efficiency.of.our.delivery try.out.new.approaches.and. technologies.and.give.others.the. time.and.space.to.do.the.same .
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **21**
## **Senior staff contacts**
**Will Jones** ,. Chief.Executive,. will@brainstrust .org .uk
## **Dr Helen Bulbeck** ,.
Director.of.Services.and.Policy,. helen@brainstrust .org .uk
## **Peter Bulbeck** ,.
Trust.Administrator.and.Clerk. to.Trustees,. hq@brainstrust .org .uk
**Kathy Springate** ,. Head.of.Finance,. kathy@brainstrust .org .uk
**----- Start of picture text -----**
team Board
of Trustees
Gillian Bilbo Kevin Higgs Chris Baker Puneet Plaha Stephen Warrington
Trustee Trustee Chair.of.Trustees Trustee Trustee
Senior
Leadership
Team
Will Jones
CEO
**----- End of picture text -----**
## **The** _**brainstrust**_ **team**
**----- Start of picture text -----**
Advisory Helen Bulbeck Kathy Springate Peter Bulbeck Regulatory
and Supported Director.of.Services. Head.of.Finance Trust.Administrator Bodies
Parties and.Policy
The Fundraising
Patients Regulator
Caregivers The Charities
Commission
NCRI
NIHR Support and Finance Governance Reach and Fundraising OSCR
Public Health Impact and HR Effectiveness Statutory Auditor
England HMRC
NHS Four Nations ICO
JLA
Patient Engagement Support Specialist Payroll and Audit HR Consultant Designer Fundraising
NICE Officer – PRIME London. (Contracted.third. (Agency) (Freelance) Manager
NCRAS and.South-East party) Trusts.and.
Foundations
Cochrane
Support Specialist Support Specialist Communications Fundraising
Scotland Wales Manager Manager
Support Specialist Support Specialist Charity Resources Senior Fundraising
Midlands Northern.England Officer Officer
Support Specialist
Central.Southern.
England
**----- End of picture text -----**
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
**22**
In.recent.years,. _brainstrust_ .has. matured.rapidly We.have.increased. confidence.in.our.work,.our. abilities.and.our.impact We.are. more.focused.than.ever.before.on. our.purpose.and.the.needs.of.our. beneficiaries We.are.proud.that.we. have.catalysed.a.new.ecosystem. in.the.brain.tumour.charity.and. advocacy.landscape.that.is.focused. on.improving.life.for.people.with.a. brain.tumour .
Our.professional.and.highly.trained. team.now.supports.people.across. the.UK,.and.these.people.can.access. impactful,.accredited.resources We. are.a.resilient.organisation.that.has. transitioned.well.from.being.a.‘large. small’.operation.to.a.‘small.big’. charity.with.a.scalable,.professional. and.resilient.structure .
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **23**
## **Trustees**
The.board.of.trustees.meets.
formally.four.times.a.year.to.ratify. the.broad.strategy.and.areas.of. activity.for.the.Trust In.addition,. trustees.may.meet.with.members. of.the.team.to.work.on.specific. projects All.trustees.give.their.time. freely,.and.no.remuneration.is.paid .
In.accordance.with.clause.9.of.the. Declaration.of.Trust,.dated.4.March. 2006:
- (i). There.must.be.at.least.three. trustees Apart.from.the.first.
- trustees,.every.trustee.must.be. appointed.by.a.resolution.of. the.trustees.passed.at.a.special. meeting.called.under.clause.15 of.this.deed .
- (ii). In.selecting.individuals.for. appointment.as.trustees,.the. trustees.must.have.regard.to.the. skills,.knowledge.and.experience. needed.for.the.effective. administration.of.the.charity .
- (iii).The.trustees.must.keep.a.record. of.the.name.and.address.and. the.dates.of.appointment,. reappointment.and.retirement. of.each.trustee .
- (iv).The.trustees.must.make.
- available.to.each.new.trustee,.on. his.or.her.first.appointment:
- (a).a.copy.of.this.deed.and.any. amendments.made.to.it
- (b).a.copy.of.the.charity’s.latest. report.and.statement.of. accounts .
There.are.no.exemptions.from. disclosure.applicable.to.or.within. this.report,.and.neither.the.charity. nor.any.of.its.trustees.are.acting.as. custodian.trustees .
Now.in.our.16th.year.of.operation,. we.have.an.established.national. footprint.across.all.elements. of.our.activity This.is.delivered. with.public.benefit.at.the.heart. by.a.professional.team.with.a. professional.leadership.structure .
## **Our board of trustees**
## **Chris Baker**
## Chair.of.Trustees
Chris.is.EMEA.managing.director.at. a.leading.global.software.company. and.has.over.20.years’.experience. driving.growth.at.some.of.the. highest-profile.companies.in.the. world,.including.Microsoft.and. Salesforce Chris.has.been.a.trustee.
for.nearly.ten.years.and.the.chair.of. trustees.at. _brainstrust_ .for.five.years .
## **Kevin Higgs**
## Trustee
Kevin.is.a.financial.adviser.and. has.been.a.trustee.for.thirteen. years In.a.chance.meeting.while. at.a.previous.employer,.Kevin. was.immediately.taken.by.the. dedication.and.commitment.of.the. charity.to.focus.on.the.support.and. well-being.of.patients.and.families. diagnosed.with.a.brain.tumour He. knew.that.he.wanted.to.be.a.part. of.the.journey.that. _brainstrust_ .has. been.on.since.2006
## **Stephen Warrington**
## Trustee
Stephen.brings.to.the.organisation. extensive.experience.leading. professional.services.businesses.and. consulting.for.major.multinationals,. and.he.has.been.a.trustee.for.five. years Stephen’s.teenage.son.was. diagnosed.with.a.brain.tumour.and. underwent.successful.surgery .
## **Gillian Bilbo**
## Trustee
Gillian.is.a.retired.headteacher.and. is.now.a.school.inspector,.and.she. has.been.a.trustee.for.nine.years She.brings.a.listening.ear.and.an. objective.viewpoint.to.the.board. and.is.supportive.of.fundraising. initiatives .
## **Puneet Plaha**
## Trustee
Puneet.is.an.associate.professor. and.consultant.neuro-oncology. surgeon.in.Oxford,.with.a.specialist. interest.in.brain.tumours,.especially. endoscopic.minimally.invasive. surgery.and.awake.surgery He.has. been.a.consultant.neuro-oncology. surgeon.lead.for.the.Oxford.brain. tumour.MDT.and.neuro-oncology. lead.for.Thames.Valley.since.2012 Puneet.joined. _brainstrust_ ’s.board.of. trustees.in.March.2021
## _brainstrust_ ’s.trustees.have.had.
regard.to.the.guidance.issued.by. the.Charity.Commission.on.public. benefit .
**24** _**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
## **Collaborations, networks and advisers**
Our.ethos.is.that.‘none.of.us. is.as.smart.as.all.of.us’ Indeed,. meaningful.collaboration.and. co-creation.is.a.key.component.of. our.approach.as.we.work.to.secure. the.best.outcomes.for.anyone.who. is.living.with.a.brain.tumour Our. partnerships,.of.which.we.nurture. around.80,.are.global.and.fall.into. five.themes:
## **Patient-focused**
These.partnerships.include. clinical.engagement.with.the.35 neuroscience.and.neurosurgical. centres.and.organisations.that. are.relevant.to.our.community,. such.as.Use.My.Data.and.the. Patient.Information.Forum Clinical. engagement.is.a.priority,.as.this.
is.one.way.in.which.we.can.reach. the.community It.is,.however,.a. two-way.relationship,.as.healthcare. professionals.can.visit.our.website. and.order.resources.for.their. patients,.signpost.coaching.and. other.support.services,.and.also.take. advantage.of.training.opportunities,. such.as.our.expert-led.webinars.and. coaching.programme .
## **Clinically focused**
Clinical.collaborations.are.hubs. of.clinical.practice.and.research,. such.as.the.British.Neuro-Oncology. Society.(BNOS),.the.National. Cancer.Research.Institute.(NCRI). and.Cochrane We.are.very.proud. of.our.clinical.network,.which. has.been.pivotal.in.the.success.of. our.webinar.programme.and.the. growth.of.our.clinical.research. activity.under.the.banner.of.PRIME .
This.community’s.involvement.in. our.educational.events.has.been. transformative.for.our.beneficiaries We.have.built.a.community.of. over.20.clinical.experts,.who.have. selflessly.given.up.their.time.and. knowledge.to.help.people.living. with.a.brain.tumour.understand. more.about.their.condition,.why. at.times.it.is.hard.to.make.a.choice. about.treatment,.and.how.to.live. better.with.a.brain.tumour This. community.continues.to.grow,.and. we.are.so.grateful.for.the.valuable. and.transformative.expertise.so. generously.gifted.by.this.network .
## **Public Health**
We.work.across.the.four.Public. Health.nations This.year,.this.work. has.been.particularly.significant,. as.we.have.worked.closely.with. the.Public.Health.government.
departments.to.ensure.that.our. community.is.well.supported.during. the.return.of.services.following.the. Covid-19.pandemic This.work.has. included.advocating.for.cohorts.of. people.living.with.a.specific.type. of.brain.tumour.to.ensure.the. treatment.and.surveillance.that. they.need.has.been.accessible Furthermore,.by.using.data.from. the.National.Cancer.Registration. and.Analysis.Service.to.reassure. the.community.that.waiting.times. and.urgent.referrals.are.returning. to.normal,.our.work.with.Public. Health.has.enabled.us.to.keep. our.community.updated.in.a. meaningful.and.relevant.way .
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
**25**
people.with.brain.cancer.through. our.role.on.the.Steering.Group.of. the.Children.and.Young.People. with.Cancer.Coalition;.we.work. closely.with.Cancer.Research.UK. on.matters.relating.to.brain.cancer. and.clinical.research;.and.we.work. in.partnership.with.charity.Brain. Tumour.Research.on.a.variety. of.projects,.including.our.PRIME. initiative,.and.on.activity.to.inform. UK.governments.on.the.importance. of.addressing.brain.tumours.at.the. highest.levels.possible .
## **Charities**
We.have.always.worked.closely.with. charities.when.we.have.recognised. that.it.is.in.the.best.interests.of.the. community Our.collaborations.with. charities.have.become.stronger. and.deeper.during.the.pandemic,. and.we.have.worked.hard.this. year.to.continue.to.build.these. relationships .
We.are.actively.involved.in.the. Cancer52.network.of.charities;. we.represent.children.and.young.
Notably,.we.have.enjoyed.our. continued.support.of.the.Tessa. Jowell.Brain.Cancer.Mission. (TJBCM) _brainstrust_ .provides. financial.support.to.the.mission’s. work,.and.our.chief.executive,. Will.Jones,.shares.our.experiences,. insights.and.the.voices.of.our. communities.through.his.role.on. the.Joint.Strategy.Board.of.the. TJBCM .
## **Organisational partnerships and collaborations**
Our.team.also.maintains.a. broad.portfolio.of.strategic. and.commercial.relationships. outside.the.health.and.charity. sectors These.relationships.with. companies.and.individuals.enhance. our.capabilities,.capacity.and. expertise,.and.they.all.contribute. meaningfully.to.our.mission.and. our.impact We.would.like.to. express.our.specific.appreciation.to:
Anaplan
Baker.McKenzie
Charisma.Charity.Recruitment Class.Networks Eric.Callister
Google.UK Harrison.Black Irene.Clark J.Pullan.&.Sons Louise.Baker McQueenie.Mulholland Nifty.Communications Salesforce Smarter.Not.Harder.(SNH) TechSoup Think.Creative.Consultants.Ltd Thrive Tim.Colman Vicki.Munro
**26** _**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
**Registered Charity Number: 1114634**
## _**brainstrust**_ **– Contents of the Financial Statements for the year ended 31st March 2022**
Report.of.the.Trustees.and. Audited.Financial.Statements.for. the.year.ended.31st.March.2022 for. _brainstrust_
Page 28 Report.of.the.Trustees.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 29–30 Report.of.the.Independent.Auditors.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .. 30 Statement.of.Financial.Activities.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 31 Balance.Sheet.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 31 Cash.Flow.Statement. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 32 Notes.to.the.Cash.Flow.Statement.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 32–37 Notes.to.the.Financial.Statements.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 37–38 Detailed.Statement.of.Financial.Activities.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
Harrison.Black.Limited. Statutory.Auditor. Pyle.House. 136/137.Pyle.Street. Newport. Isle.of.Wight. PO30 1JW
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **27**
_**brainstrust**_ **– Report of the Trustees for the year ended 31st March 2022**
_**brainstrust**_ **– Report of the Trustees for the year ended 31st March 2022**
31st.March. The.trustees.present.their.report.with.the.financial.statements.of.the.charity.for.the.year.ended. 2022 The.trustees.have.adopted.the.provisions.of.Accounting.and.Reporting.by.Charities:.Statement.of. Recommended.Practice.applicable.to.charities.preparing.their.accounts.in.accordance.with.the.Financial. Reporting.Standard.applicable.in.the.UK.and.Republic.of.Ireland.(FRS.102).(effective.1.January.2019) .
## **Structure, governance and management**
**Governing document**
The.charity.is.controlled.by.its.governing.document,.a.deed.of.trust.and.constitutes.an.unincorporated.charity .
## **Reference and administrative details**
**Registered Charity number** 1114634
## **Principal address**
4.Yvery.Court,.Castle.Road. Cowes,.Isle.of.Wight. PO31 7QG
## **Trustees**
C.Baker. K.Higgs. G.Bilbo. S.Warrington. B.Young.(resigned.9.11.21). P.Plaha
## **Auditors**
Harrison.Black.Limited. Statutory.Auditor. Pyle.House,.136/137.Pyle.Street. Newport,.Isle.of.Wight. PO30 1JW
## **Trustees’ Responsibility Statement – continued**
The.law.applicable.to.charities.in.England.and.Wales,.the.Charities.Act.2011,.Charity.(Accounts.and.Reports). Regulations.2008.and.the.provisions.of.the.trust.deed.requires.the.trustees.to.prepare.financial.statements. for.each.financial.year.which.give.a.true.and.fair.view.of.the.state.of.affairs.of.the.charity.and.of.the.incoming. resources.and.application.of.resources,.including.the.income.and.expenditure,.of.the.charity.for.that.period In. preparing.those.financial.statements,.the.trustees.are.required.to
l.select.suitable.accounting.policies.and.then.apply.them.consistently;
- l.observe.the.methods.and.principles.in.the.Charity.SORP;
- l.make.judgements.and.estimates.that.are.reasonable.and.prudent;
- l.state.whether.applicable.accounting.standards.have.been.followed,.subject.to.any.material.departures. disclosed.and.explained.in.the.financial.statements;
l .prepare.the.financial.statements.on.the.going.concern.basis.unless.it.is.inappropriate.to.presume.that.the. charity.will.continue.in.business .
The.trustees.are.responsible.for.keeping.proper.accounting.records.which.disclose.with.reasonable.accuracy. at.any.time.the.financial.position.of.the.charity.and.to.enable.them.to.ensure.that.the.financial.statements. comply.with.the.Charities.Act.2011,.the.Charity.(Accounts.and.Reports).Regulations.2008.and.the.provisions. of.the.trust.deed They.are.also.responsible.for.safeguarding.the.assets.of.the.charity.and.hence.for.taking. reasonable.steps.for.the.prevention.and.detection.of.fraud.and.other.irregularities .
Approved.by.order.of.the.board.of.trustees.on. **20th September 2022** .and.signed.on.its.behalf.by:
**C Baker** .–.Trustee
_brainstrust_ .is.also.a.Scottish.Charity,.SC044642,.regulated.by.the.Scottish.Charity.Regulator.(OSCR) .
## **Events since the end of the year**
Information.relating.to.events.since.the.end.of.the.year.is.given.in.the.notes.to.the.financial.statements .
## **Trustees’ Responsibility Statement**
The.trustees.are.responsible.for.preparing.the.Report.of.the.Trustees.and.the.financial.statements.in.accordance. with.applicable.law.and.United.Kingdom.Accounting.Standards.(United.Kingdom.Generally.Accepted. Accounting.Practice) .
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
**28**
**Report of the Independent Auditors to the trustees of** _**brainstrust**_
**Report of the Independent Auditors to the trustees of** _**brainstrust**_
## **Opinion**
We.have.audited.the.financial.statements.of. _brainstrust_ .(the.‘charity’).for.the.year.ended 31st.March.2022.which. comprise.the.Statement.of.Financial.Activities,.the.Balance.Sheet,.the.Cash.Flow.Statement.and.notes.to.the. financial.statements,.including.a.summary.of.significant.accounting.policies The.financial.reporting.framework. that.has.been.applied.in.their.preparation.is.applicable.law.and.United.Kingdom.Accounting.Standards.(United. Kingdom.Generally.Accepted.Accounting.Practice) .
In.our.opinion.the.financial.statements:
l.give.a.true.and.fair.view.of.the.state.of.the.charity’s.affairs.as.at.31st.March.2022.and.of.its.incoming.resources. and.application.of.resources,.for.the.year.then.ended;
l.have.been.properly.prepared.in.accordance.with.United.Kingdom.Generally.Accepted.Accounting.Practice;.and
l.have.been.prepared.in.accordance.with.the.requirements.of.the.Charities.Act.2011
## **Basis for opinion**
We.conducted.our.audit.in.accordance.with.International.Standards.on.Auditing.(UK).(ISAs.(UK)).and.applicable. law Our.responsibilities.under.those.standards.are.further.described.in.the.Auditors’.responsibilities.for.the. audit.of.the.financial.statements.section.of.our.report We.are.independent.of.the.charity.in.accordance.with. the.ethical.requirements.that.are.relevant.to.our.audit.of.the.financial.statements.in.the.UK,.including.the.FRC’s. Ethical.Standard,.and.we.have.fulfilled.our.other.ethical.responsibilities.in.accordance.with.these.requirements We.believe.that.the.audit.evidence.we.have.obtained.is.sufficient.and.appropriate.to.provide.a.basis.for.our. opinion .
## **Conclusions relating to going concern**
ln.auditing.the.financial.statements,.we.have.concluded.that.the.trustees’.use.of.the.going.concern.basis.of. accounting.in.the.preparation.of.the.financial.statements.is.appropriate .
Based.on.the.work.we.have.performed,.we.have.not.identified.any.material.uncertainties.relating.to.events. or.conditions.that,.individually.or.collectively,.may.cast.significant.doubt.on.the.charity’s.ability.to.continue.as. a.going.concern.for.a.period.of.at.least.twelve.months.from.when.the.financial.statements.are.authorised. for.issue .
Our.responsibilities.and.the.responsibilities.of.the.trustees.with.respect.to.going.concern.are.described.in.the. relevant.sections.of.this.report .
There.continues.to.be.uncertainty.as.a.result.of.the.Covid-19.pandemic.and.other.global.matters The.charity. have.taken.measures.to.ensure.the.impact.of.this.is.limited.and.whilst.there.remain.challenges,.the.charity.has. performed.well.in.the.year.and.therefore.the.going.concern.basis.is.considered.appropriate .
## **Other information**
The.trustees.are.responsible.for.the.other.information The.other.information.comprises.the.information. included.in.the.Annual.Report,.other.than.the.financial.statements.and.our.Report.of.the.Independent.Auditors. thereon .
Our.opinion.on.the.financial.statements.does.not.cover.the.other.information.and,.except.to.the.extent. otherwise.explicitly.stated.in.our.report,.we.do.not.express.any.form.of.assurance.conclusion.thereon .
In.connection.with.our.audit.of.the.financial.statements,.our.responsibility.is.to.read.the.other.information.and,. in.doing.so,.consider.whether.the.other.information.is.materially.inconsistent.with.the.financial.statements. or.our.knowledge.obtained.in.the.audit.or.otherwise.appears.to.be.materially.misstated If.we.identify.such. material.inconsistencies.or.apparent.material.misstatements,.we.are.required.to.determine.whether.this. gives.rise.to.a.material.misstatement.in.the.financial.statements.themselves If,.based.on.the.work.we.have. performed,.we.conclude.that.there.is.a.material.misstatement.of.this.other.information,.we.are.required.to. report.that.fact We.have.nothing.to.report.in.this.regard .
## **Matters on which we are required to report by exception**
We.have.nothing.to.report.in.respect.of.the.following.matters.where.the.Charities.(Accounts.and.Reports). Regulations.2008.requires.us.to.report.to.you.if,.in.our.opinion:
l .the.information.given.in.the.Report.of.the.Trustees.is.inconsistent.in.any.material.respect.with.the.financial. statements;.or
l .sufficient.accounting.records.have.not.been.kept;.or
l .the.financial.statements.are.not.in.agreement.with.the.accounting.records.and.returns;.or
l .we.have.not.received.all.the.information.and.explanations.we.require.for.our.audit .
## **Responsibilities of trustees**
As.explained.more.fully.in.the.Trustees’.Responsibilities.Statement,.the.trustees.are.responsible.for.the. preparation.of.the.financial.statements.which.give.a.true.and.fair.view,.and.for.such.internal.control.as.the. trustees.determine.is.necessary.to.enable.the.preparation.of.financial.statements.that.are.free.from.material. misstatement,.whether.due.to.fraud.or.error .
In.preparing.the.financial.statements,.the.trustees.are.responsible.for.assessing.the.charity’s.ability.to.continue. as.a.going.concern,.disclosing,.as.applicable,.matters.related.to.going.concern.and.using.the.going.concern. basis.of.accounting.unless.the.trustees.either.intend.to.liquidate.the.charity.or.to.cease.operations,.or.have.no. realistic.alternative.but.to.do.so .
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **29**
**Report of the Independent Auditors to the trustees of** _**brainstrust**_
_**brainstrust**_ **– Statement of Financial Activities for the year ended 31st March 2022**
## **Our responsibilities for the audit of the financial statements**
We.have.been.appointed.as.auditors.under.Section 144.of.the.Charities.Act.2011.and.report.in.accordance.with. the.Act.and.relevant.regulations.made.or.having.effect.thereunder .
Our.objectives.are.to.obtain.reasonable.assurance.about.whether.the.financial.statements.as.a.whole.are.free. from.material.misstatement,.whether.due.to.fraud.or.error,.and.to.issue.a.Report.of.the.Independent.Auditors. that.includes.our.opinion Reasonable.assurance.is.a.high.level.of.assurance,.but.is.not.a.guarantee.that.an. audit.conducted.in.accordance.with.ISAs.(UK).will.always.detect.a.material.misstatement.when.it.exists Misstatements.can.arise.from.fraud.or.error.and.are.considered.material.if,.individually.or.in.the.aggregate,.they. could.reasonably.be.expected.to.influence.the.economic.decisions.of.users.taken.on.the.basis.of.these.financial. statements .
The.extent.to.which.our.procedures.are.capable.of.detecting.irregularities,.including.fraud,.is.detailed.below: As.outlined.above,.our.objective.is.to.give.reasonable.assurance.that.the.financial.statements.are.free.from. material.misstatements.and.irregularities Whilst.not.a.guarantee.that.such.instances.will.be.detected,.our.risk. based.approach,.using.systematic.testing.methods,.judgement,.communication.with.management,.professional. scepticism,.observation.of.controls.and.systems,.and.audit.experience/knowledge,.allows.us.to.be.satisfied.that. our.procedures.are.highly.capable.of.detecting.irregularities,.including.fraud .
A.further.description.of.our.responsibilities.for.the.audit.of.the.financial.statements.is.located.on.the.Financial. Reporting.Council’s.website.at.www frc org uk/auditorsresponsibilities This.description.forms.part.of.our.Report. of.the.Independent.Auditors .
## **Use of our report**
This.report.is.made.solely.to.the.charity’s.trustees,.as.a.body,.in.accordance.with.Section.144.of.the.Charities.Act. 2011.and.regulations.made.under.Section.154.of.that.Act.and.under.section.44(1)(c).of.the.Charities.and.Trustee. Investment.(Scotland).Act.2005 Our.audit.work.has.been.undertaken.so.that.we.might.state.to.the.charity’s. trustees.those.matters.we.are.required.to.state.to.them.in.an.auditors’.report.and.for.no.other.purpose To.the. fullest.extent.permitted.by.law,.we.do.not.accept.or.assume.responsibility.to.anyone.other.than.the.charity.and. the.charity’s.trustees.as.a.body,.for.our.audit.work,.for.this.report,.or.for.the.opinions.we.have.formed .
Harrison.Black.Limited. Statutory.Auditor. Pyle.House,.136/137.Pyle.Street. Newport,.Isle.of.Wight.PO30.1JW Date:.26th.September.2022
## **Note:**
The.maintenance.and.integrity.of.the. _brainstrust_ .website.is.the.responsibility.of.the.trustees;.the.work.carried. out.by.the.auditors.does.not.involve.consideration.of.these.matters.and,.accordingly,.the.auditors.accept.no. responsibility.for.any.changes.that.may.have.occurred.to.the.financial.statements.since.they.were.initially. presented.on.the.website .
|Notes
**INCOME AND ENDOWMENTS FROM**
Donationsandlegacies
2
Othertradingactivities
3
Investmentincome
4
Otherincome
**Total**
**EXPENDITURE ON**
Raisingfunds
5
**Charitable activities**
6
Charityactivities
Other
**Total**
**NET INCOME/(EXPENDITURE)**
**Transfers between funds**
17
**Net movement in funds**
**RECONCILIATION OF FUNDS**
**Total funds brought forward**
**TOTAL FUNDS CARRIED FORWARD**|Unrestricted**)**
funds**)**
£**)**|Restricted**)**
funds**)**
£**)**|**2022)**
**Total)**
**funds)**
**£)**
**337,854)**
**608,240)**
**26)**
**6,083)**
**952,203)**
**90,184)**
**558,284)**
**14,963)**
**663,431)**
**288,772)**
**–)**
**288,772)**
**415,473)**
**704,245)**|2021
Total
funds
£
509,005
164,950
40
67,096|
|---|---|---|---|---|
||||||
||**337,854)**|**–)**|||
||**262,228)**|**346,012)**|||
||**26)**|**–)**|||
||**6,083)**|**–)**|||
||**606,191)**|**346,012)**||741,091|
|||||38,708
472,096
469|
||**66,402)**|**23,782)**|||
||||||
||**538,688)**|**19,596)**|||
||**14,963)**|**–)**|||
||**620,053)**|**43,378)**||511,273|
|||||229,818
–|
||**(13,862)**|**302,634)**|||
||**20,000)**|**(20,000)**|||
||**6,138)**|**282,634)**||229,818
185,655|
||||||
||**267,736)**|**147,737)**|||
||**273,874)**|**430,371)**||415,473|
The.notes.form.part.of.these.financial.statements
**30** _**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
_**brainstrust**_ **– Cash Flow Statement for the year ended 31st March 2022**
## _**brainstrust**_ **– Balance Sheet 31st March 2022**
|Notes
**FIXED ASSETS**
Tangibleassets
11
**CURRENT ASSETS**
Debtors
Cashatbank
12
**CREDITORS**
Amountsfallingduewithin
oneyear
13
**NET CURRENT ASSETS**
**TOTAL ASSETS LESS CURRENT**
**LIABILITIES**
**CREDITORS**
Amountsfallingdueaftermore
thanoneyear
14
**NET ASSETS**
**FUNDS**
Unrestrictedfunds
Restrictedfunds
17
**TOTAL FUNDS**|Unrestricted**)**
fund**)**
£**)**|Restricted**)**
funds**)**
£**)**|**2022)**
**Total)**
**funds)**
**£)**
**2,824)**
**39,522)**
**730,827)**
**770,349)**
**(35,655)**
**734,694)**
**737,518)**
**(33,273)**
**704,245)**
**273,874)**
**430,371)**
**704,245)**|2021
Total
funds
£
2,030
25,388
465,184|
|---|---|---|---|---|
||**2,824)**|**–)**|||
||||||
||**39,522)**
**300,456)**|**–)**
**430,371)**|||
||**339,978)**|**430,371)**||490,572
(35,462)|
||||||
||**(35,655)**|**–)**|||
||**304,323)**|**430,371)**||455,110|
|||||457,140
(41,667)|
||**307,147)**|**430,371)**|||
||**(33,273)**|**–)**|||
||**273,874)**|**430,371)**||415,473|
|||||267,736
147,737|
|||||415,473|
|Notes
**Cash fows from operating activities**
Cashgeneratedfromoperations
Interestpaid
1
Netcashprovidedbyoperating
activities
**Cash fows from investing activities**
Purchaseoftangiblefxedassets
Interestreceived
Netcash(usedin)/providedby
investingactivities
**Cash fows from fnancing activities**
Newloansinyear
Loanrepaymentsinyear
Netcash(usedin)/providedby
fnancingactivities
**Change in cash and cash**
**equivalents in the reporting period**
**Cash and cash equivalents at the**
**beginning of the reporting period**
**Cash and cash equivalents at the**
**end of the reporting period**|**2022**
**£**
**277,073**
**(818)**
**276,255**
**(3,469)**
**26**
**(3,443)**
**–**
**(7,169)**
**(7,169)**
**265,643**
**465,184**
**730,827**|2021
£
241,382
(469)|
|---|---|---|
|||240,913|
|||–
40|
|||40|
|||50,000
–|
|||50,000|
||||
|||290,953
174,231|
|||465,184|
The.financial.statements.were.approved.by.the.Board.of.Trustees.and.authorised.for.issue.on. 20.September.2022.and.were.signed.on.its.behalf.by:
**C Baker** .–.Chair.of.Trustees
The.notes.form.part.of.these.financial.statements
The.notes.form.part.of.these.financial.statements
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **31**
_**brainstrust**_ **– Notes to the Cash Flow Statement for the year ended 31st March 2022**
_**brainstrust**_ **– Notes to the Financial Statements for the year ended 31st March 2022**
## **1. Reconciliation of net income to net cash flow from operating activities**
|**Net income for the reporting period (as per the Statement**
**of Financial Activities)**
**Adjustments for:**
Depreciationcharges
Interestreceived
Interestpaid
(Increase)/decreaseindebtors
(Decrease)/increaseincreditors
**Net cash provided by operations**
**Analysis of changes in net funds**
At1.4.21
£
**Net cash**
Cashatbank
**465,184**
**465,184**
**Debt**
Debtsfallingduewithinoneyear
**(8,333)**
Debtsfallingdueafteroneyear
**(41,667)**
**(50,000)**
Total
**415,184**|**2022**
**£**
**288,772**
**2,675**
**(26)**
**818**
**(14,134)**
**(1,032)**
**277,073**
Cashfow
£
**265,643**
**265,643**
**(1,225)**
**8,394**
**7,169**
**272,812**|2021
£
229,818
2,030
(40)
469
2,068
7,037|
|---|---|---|
|||241,382|
|||**At31.3.22**
**£**
**730,827**|
|||**730,827**|
|||**(9,558)**
**(33,273)**|
|||**(42,831)**|
|||**687,996**|
## **2. Analysis of changes in net funds**
## **1. Accounting policies**
## **Basis of preparing the financial statements**
The.financial.statements.of.the.charity,.which.is.a.public.benefit.entity.under.FRS.102,.have.been.prepared. in.accordance.with.the.Charities.SORP.(FRS.102).‘Accounting.and.Reporting.by.Charities:.Statement.of. Recommended.Practice.applicable.to.charities.preparing.their.accounts.in.accordance.with.the.Financial. Reporting.Standard.applicable.in.the.UK.and.Republic.of.Ireland.(FRS.102).(effective.1.January.2019)’,. Financial.Reporting.Standard.102.‘The.Financial.Reporting.Standard.applicable.in.the.UK.and.Republic.of. Ireland’.and.the.Charities.Act.2011 The.financial.statements.have.been.prepared.under.the.historical.cost. convention .
## **Income**
All.income.is.recognised.in.the.Statement.of.Financial.Activities.once.the.charity.has.entitlement.to.the. funds,.it.is.probable.that.the.income.will.be.received.and.the.amount.can.be.measured.reliably .
Donations.are.recognised.when.the.charity.has.been.notified.in.writing.of.both.the.amount.and. settlement.date In.the.event.that.a.donation.is.subject.to.conditions.that.require.a.level.of.performance. before.the.charity.is.entitled.to.the.funds,.the.income.is.deferred.and.not.recognised.until.either.those. conditions.are.fully.met,.or.the.fulfilment.of.those.conditions.is.wholly.within.the.control.of.the.charity. and.it.is.probable.that.those.conditions.will.be.fulfilled.in.the.reporting.period .
Grant.income.is.recognised.when.received In.the.event.that.a.grant.is.subject.to.conditions.that.require.a. level.of.performance.before.the.charity.is.entitled.to.the.funds,.the.income.is.deferred.and.not.recognised. until.either.those.conditions.are.fully.met,.or.the.fulfilment.of.those.conditions.is.wholly.within.the.control. of.the.charity.and.it.is.probable.that.those.conditions.will.be.fulfilled.in.the.reporting.period .
Legacy.gifts.are.recognised.on.a.case.by.case.basis.following.the.granting.of.probate.when.the. administrator/executor.for.the.estate.has.communicated.in.writing.both.the.amount.and.settlement. date In.the.event.that.the.gift.is.in.the.form.of.an.asset,.recognition.is.subject.to.the.value.of.the.gift. being.reliably.measurable.with.a.degree.of.reasonable.accuracy.and.the.title.to.the.asset.having.been. transferred.to.the.charity .
Interest.on.funds.held.on.deposit.is.included.when.receivable.and.the.amount.can.be.measured.reliably. by.the.charity;.this.is.normally.upon.notification.of.the.interest.paid.or.payable.by.the.bank .
## **Expenditure**
Liabilities.are.recognised.as.expenditure.as.soon.as.there.is.a.legal.or.constructive.obligation.committing. the.charity.to.that.expenditure,.it.is.probable.that.a.transfer.of.economic.benefits.will.be.required.in. settlement.and.the.amount.of.the.obligation.can.be.measured.reliably Expenditure.is.accounted.for.on. an.accruals.basis.and.has.been.classified.under.headings.that.aggregate.all.cost.related.to.the.category Where.costs.cannot.be.directly.attributed.to.particular.headings.they.have.been.allocated.to.activities.on. a.basis.consistent.with.the.use.of.resources .
## **Tangible fixed assets**
The.notes.form.part.of.these.financial.statements
Depreciation.is.provided.at.the.following.annual.rates.in.order.to.write.off.each.asset.over.its.estimated. useful.life . -25%.on.cost Fixtures.and.fittings.
_continued ..._
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
**32**
## _**brainstrust**_ **– Notes to the Financial Statements for the year ended 31st March 2022 – continued**
## **1. Accounting policies – continued**
## **Taxation**
The.charity.is.exempt.from.tax.on.its.charitable.activities .
## **Fund accounting**
Unrestricted.funds.can.be.used.in.accordance.with.the.charitable.objectives.at.the.discretion.of.the. trustees .
Restricted.funds.can.only.be.used.for.particular.restricted.purposes.within.the.objects.of.the.charity Restrictions.arise.when.specified.by.the.donor.or.when.funds.are.raised.for.particular.restricted.purposes . Further.explanation.of.the.nature.and.purpose.of.each.fund.is.included.in.the.notes.to.the.financial. statements .
## **2. Donations and legacies**
|Donations
Grantsfromawardingentities
Corporategrantsanddonations
GiftAidtaxrecovered
Legacies
**3. **
**Other trading activities**
Fundraisingevents
Saleof‘_brainstrust_’items
Sponsoredactivities
Activitiesofpartnergroups|**2022 **
**£**
**57,896**
**175,831**
**53,576**
**50,551**
**–**
**337,854**
**2022 **
**£**
**75,417**
**12,472**
**174,339**
**346,012**
**608,240**|2021
£
72,702
358,670
42,196
33,437
2,000|
|---|---|---|
|||509,005|
|||2021
£
46,241
11,013
62,477
45,219|
|||164,950|
## _**brainstrust**_ **– Notes to the Financial Statements for the year ended 31st March 2022 – continued**
## **4. Investment income**
|**4. **
**Investment income**|||
|---|---|---|
|Depositaccountinterest
**5. **
**Raising funds**
**Raising donations and legacies**
Fundraisingfees
Promotionalexpenses
**Other trading activities**
Tradingcostsandpurchases
Eventcosts
Sponsoredactivitiescosts
Aggregateamounts
**6. **
**Charitable activities costs**
Charityactivities|**2022**
**£**
**26**
**2022**
**£**
**33,129**
**26,782**
**59,911**
**2022**
**£**
**7,972**
**11,433**
**10,868**
**30,273**
**90,184**|2021
£
40|
|||2021
£
6,933
19,311|
|||26,244|
|||2021
£
8,093
2,073
2,298|
|||12,464|
|||38,708|
|||Direct
costs
£
**558,284**|
_continued ..._
_continued ..._
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
**33**
## _**brainstrust**_ **– Notes to the Financial Statements for the year ended 31st March 2022 – continued**
## **7. Support costs**
|**Support costs**|||
|---|---|---|
||Governance
costs
£||
|Otherresourcesexpended|**14,963**||
## **8. Trustees’ remuneration and benefits**
There.were.no.trustees’.remuneration.or.other.benefits.for.the.year.ended.31st.March.2022.nor.for.the.year. ended.31st.March.2021
## **Trustees’ expenses**
There.were.no.trustees’.expenses.paid.for.the.year.ended.31st.March.2022.nor.for.the.year.ended. 31st.March.2021
## **9. Staff costs**
Total.gross.salaries,.benefits.in.kind.and.employer’s.National.Insurance.costs.for.the.year.ending.
31st.March.2022.were.£431,130.(2021 – £370,904
The.average.monthly.number.of.employees.during.the.year.was.as.follows:
|Fundraising
CharitableActivities
Governance
Other|**2022**
**4**
**9**
**1**
**1**
**15**|2021
3
8
1
1|
|---|---|---|
|||13|
No.employees.received.emoluments.in.excess.of.£60,000
**10 . Comparatives for the statement of financial activities**
|**INCOME AND ENDOWMENTS FROM**
Donationsandlegacies
Othertradingactivities
Investmentincome
Otherincome
**Total**|Unrestricted
fund
£
509,004
119,731
40
67,096
695,871|Restricted
funds
£
1
45,219
–
–
45,220|Total
funds
£
509,005
164,950
40
67,096|
|---|---|---|---|
||||741,091|
_continued ..._
## _**brainstrust**_ **– Notes to the Financial Statements for the year ended 31st March 2022 – continued**
## **10 . Comparatives for the statement of financial activities – continued**
|**EXPENDITURE ON**
Raisingfunds
**Charitable activities**
Charityactivities
Other
**Total**
**NET INCOME**
**RECONCILIATION OF FUNDS**
**Total funds brought forward**
**TOTAL FUNDS CARRIED FORWARD**
**Tangible fxed assets**
**COST**
At1stApril2021
Additions
At31stMarch2022
**DEPRECIATION**
At1stApril2021
Chargeforyear
At31stMarch2022
**NET BOOK VALUE**
At31stMarch2022
At31stMarch2021|Unrestricted
fund
£
38,708
467,740
469
506,917
188,954
78,782
267,736
Fixturesand
fttings
£
**1,494**
**411**
**1,905**
**1,494**
**8**
**1,502**
**403**
–|Restricted
funds
£
–
4,356
–
4,356
40,864
106,873
147,737
Website
£
**8,118**
**3,058**
**11,176**
**6,088**
**2,667**
**8,755**
**2,421**
2,030|Total
funds
£
38,708
472,096
469|
|---|---|---|---|
||||511,273|
||||229,818
185,655|
||||415,473|
||||Totals
£
**9,612**
**3,469**|
||||**13,081**|
||||**7,582**
**2,675**|
||||**10,257**|
||||**2,824**|
||||2,030|
||||_continued ..._|
## **11 . Tangible fixed assets**
**34** _**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
## _**brainstrust**_ **– Notes to the Financial Statements for the year ended 31st March 2022 – continued**
## **12. Debtors: amounts falling due within one year**
|Tradedebtors
Otherdebtors
Prepayments
**Creditors: amounts falling due within one year**
Tradecreditors
Othercreditors
**Creditors: amounts falling due after more than one year**
Othercreditors
**Loans**
Ananalysisofthematurityofloansisgivenbelow:
Amountsfallingduewithinoneyearondemand:
Otherloans
Amountsfallingduebetweentwoandfveyears:
Otherloans–1–5years
Amountsfallingdueinmorethanfveyears:
Repayablebyinstalments:|**2022**
**£**
**(90)**
**15,499**
**24,113**
**39,522**
**2022**
**£**
**12,840**
**22,815**
**35,655**
**2022**
**£**
**33,273**
**2022**
**£**
**9,558**
**33,273**
**–**|2021
£
1,078
6,176
18,134|
|---|---|---|
|||25,388|
|||2021
£
12,742
22,720|
|||35,462|
|||2021
£
41,667|
|||2021
£
8,333|
|||33,333|
|||8,334|
## **13. Creditors: amounts falling due within one year**
## **14. Creditors: amounts falling due after more than one year**
## **15. Loans**
## _**brainstrust**_ **– Notes to the Financial Statements for the year ended 31st March 2022 – continued**
## **16. Leasing agreements**
Minimum.lease.payments.under.non-cancellable.operating.leases.fall.due.as.follows:
||**2022**|2021|
|---|---|---|
||**£**|£|
|Withinoneyear
Betweenoneandfveyears|**13,990**
**–**|24,081
13,990|
||**13,990**|38,071|
## **17. Movement in funds**
|**Movement in funds**|**13,990**|38,071|
|---|---|---|
|At1.4.21
£
Net
movement
infunds
£
**Unrestricted funds**
Generalfund
**267,736**
**(13,862)**
**Restricted funds**
FundA
FundE
FundH
FundI
**677**
**76,895**
**30,031**
**40,134**
**33**
**2,108**
**(2,997)**
**303,490**
**147,737**
**302,634**
**TOTAL FUNDS**
**415,473**
**288,772**
Netmovementinfunds,includedintheaboveareasfollows:
Incoming
resources
£
**Unrestricted funds**
Generalfund
**606,191**
**Restricted funds**
FundA
FundE
FundH
FundI
**33**
**5,069**
**3**
**340,907**
**346,012**
TOTALFUNDS
**952,203**|Transfers
between
funds
£
**20,000**
**–**
**–**
**–**
**(20,000)**
**(20,000)**
**–**
Resources
expended
£
**(620,053)**
**–**
**(2,961)**
**(3,000)**
**(37,417)**
**(43,378)**
**(663,431)**|At31.3.22
£
**273,874**
**710**
**79,003**
**27,034**
**323,624**|
|||**430,371**|
|||**704,245**|
|||Movement
infunds
£
**(13,862)**
**33**
**2,108**
**(2,997)**
**303,490**|
|||**302,634**|
|||**288,772**|
_continued ..._
_continued ..._
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **35**
## _**brainstrust**_ **– Notes to the Financial Statements for the year ended 31st March 2022 – continued**
## _**brainstrust**_ **– Notes to the Financial Statements for the year ended 31st March 2022 – continued**
## **17. Movement in funds – continued**
**Comparatives for movement in funds**
## **17. Movement in funds – continued**
A.current.year.12.months.and.prior.year.12.months.combined.position.is.as.follows:
|**Unrestricted funds**
Generalfund
**Restricted funds**
FundA
FundE
FundH
FundI
**TOTAL FUNDS**|At1.4.20
£
78,782
677
75,180
31,016
–
106,873
185,655|Net
movement
infunds
£
188,954
–
1,715
(985)
40,134
40,864|At31.3.21
£
267,736
677
76,895
30,031
40,134
147,737
415,473
**Unrestricted funds**
Generalfund
**Restricted funds**
FundA
FundE
FundH
FundI
**TOTAL FUNDS**|At1.4.20
£
78,782
677
75,180
31,016
106,873
185,655|Net
movement
infunds
£
175,092
33
3,823
(3,982)
343,624
343,498
518,590|Transfers
between
funds
£
20,000
–
–
–
(20,000)
(20,000)
–|At31.3.22
£
273,874
710
79,003
27,034
323,624|
|---|---|---|---|---|---|---|---|
||||||||430,371|
|||229,818|||||704,245|
Comparative.net.movement.in.funds,.included.in.the.above.are.as.follows:
|**Unrestricted funds**
Generalfund
**Restricted funds**
FundE
FundH
FundI
**TOTAL FUNDS**|Incoming
resources
£
695,871
5,071
15
40,134
45,220
741,091|Resources
expended
£
(506,917)
(3,356)
(1,000)
–
(4,356)
(511,273)|Movement
infunds
£
188,954
1,715
(985)
40,134|
|---|---|---|---|
||||40,864|
||||229,818|
A.current.year.12.months.and.prior.year.12.months.combined.net.movement.in.funds,. included.in.the.above.are.as.follows:
|**Unrestricted funds**
Generalfund
**Restricted funds**
FundA
FundE
FundH
FundI
**TOTAL FUNDS**
**NATURE AND PURPOSE OF FUNDS**|Incoming
resources
£
1,302,062
33
10,140
18
381,041
391,232
1,693,294|Resources
expended
£
(1,126,970)
–
(6,317)
(4,000)
(37,417)
(47,734)
(1,174,704)|Movement
infunds
£
175,092
33
3,823
(3,982)
343,624|
|---|---|---|---|
||||343,498|
||||518,590|
|||||
## **General Fund**
The.‘free.reserves’.after.allowing.for.all.restricted.funds .
## **Restricted Funds**
Funds.designated.for.specific.trials.and.treatments .
_continued ..._
_continued ..._
**36** _**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
## _**brainstrust**_ **– Notes to the Financial Statements for the year ended 31st March 2022 – continued**
## **17. Movement in funds – continued**
All.other.restricted.funds.have.been.created.through.fundraising.or.donations.for.the.benefit.of.individual. brain.tumour.patients The.charity.uses.the.funds.for.direct.treatment.or.to.support.research.relating.to. the.patients’.needs .
## **18. Related party disclosures**
During.the.year.the.charity.purchased.services.from.Fitton.Holman.Creative.Limited.totalling.£10,462 (2021 – £15,745) The.company.is.directed.by.one.of.the.co-founder’s.sister,.Catherine.Fitton .
During.the.year.the.charity.paid.the.co-founders.and.management.employees.of. _brainstrust_ ,.Peter.and. Helen.Bulbeck,.£4,320 (2021 – £4,400).for.administrative.use.of.their.property .
The.co-founder’s.daughter,.Leonora.Bulbeck,.supplied.editorial.services.during.the.year.to.the.charity. totalling.£1,890 (2021 – £980).at.a.commercial.rate .
## **19. Post Balance Sheet events**
Since.the.Balance.Sheet.date,.there.continues.to.be.uncertainty.regarding.the.Covid-19.pandemic.and. other.global.matters The.charity.has.continued.to.minimise.the.impact.of.this.by.maximising.charity. activity.income.and.reducing.costs.where.possible The.charity’s.positive.financial.result.in.the.year.ended. 31st.March.2022.and.the.forecast/results.since.this.date.indicate.that.the.charity.is.in.a.good.position.to. address.these.challenges.going.forward .
## _**brainstrust**_ **– Detailed Statement of Financial Activities for the year ended 31st March 2022**
|**INCOME AND ENDOWMENTS**
**Donations and legacies**
Donations
Grantsfromawardingentities
Corporategrantsanddonations
Giftaidtaxrecovered
Legacies
**Other trading activities**
Fundraisingevents
Saleof‘_brainstrust_’items
Sponsoredactivities
Activitiesofpartnergroups
**Investment income**
Depositaccountinterest
**Other income**
Govgrants–Furloughclaimed
Govgrants–COVIDsupport
**Total incoming resources**
**EXPENDITURE**
**Raising donations and legacies**
Fundraisingfees
Promotionalexpenses
**Other trading activities**
Tradingcostsandpurchases
Carriedforward|2022
£
**57,896**
**175,831**
**53,576**
**50,551**
**–**
**337,854**
**75,417**
**12,472**
**174,339**
**346,012**
**608,240**
**26**
**6,083**
**–**
**6,083**
**952,203**
**33,129**
**26,782**
**59,911**
**7,972**
**7,972**|2021
£
72,702
358,670
42,196
33,437
2,000|
|---|---|---|
|||509,005
46,241
11,013
62,477
45,219|
|||164,950
40
66,627
469|
|||67,096|
|||741,091
6,933
19,311|
|||26,244
8,093
8,093|
This.page.does.not.form.part.of.the.statutory.financial.statements
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022 **37**
## _**brainstrust**_ **– Detailed Statement of Financial Activities for the year ended 31st March 2022**
|**Other trading activities**
Broughtforward
Eventcosts
Sponsoredactivitiescosts
**Charitable activities**
Medicalgrantsandcosts
Patientsupportandstaffng
Salaries
Travel
Administration
Offcerent&rates
Fixturesandfttings
Depreciationofwebsite
**Support costs**
**Governance costs**
Auditors’remuneration
Insurance
Other
Bankloaninterest
Totalresourcesexpended
**Net income**|2022
£
**7,972**
**11,433**
**10,868**
**30,273**
**3,000**
**318,242**
**163,094**
**8,972**
**31,803**
**30,498**
**9**
**2,666**
**558,284**
**3,000**
**2,196**
**8,949**
**818**
**14,963**
**663,431**
**288,772**|2021
£
8,093
2,073
2,298|
|---|---|---|
|||12,464
600
269,348
135,244
(238)
24,537
28,006
–
2,030|
|||459,527
3,198
1,970
7,401
469|
|||13,038|
|||511,273|
|||229,818|
This.page.does.not.form.part.of.the.statutory.financial.statements
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
**38**
**----- Start of picture text -----**
Reference and
administrative
details
**----- End of picture text -----**
## **Helping you**
Talk.to.our.team.24/7.on. 01983 292 405,.or.email. hello@brainstrust org uk
## **Helping us**
Make.a.donation.at. brainstrust org uk/donate,. call.us.on.01983 292 405.during. office.hours,.or.email. fundraising@brainstrust org uk .
## **Registration**
_brainstrust_ .is.a.registered.charitable. trust,.registered.with.the.Charity. Commission.for.England.and.Wales. as.Charity.No 1114634,.registered. with.the.Office.of.the.Scottish. Charity.Regulator.as.Charity.No SC044642
## **Registered address**
_brainstrust_
4.Yvery.Court. Castle.Road. Cowes.
Isle.of.Wight. PO31 7QG www brainstrust org uk www braintumourhub org uk
**Regional office (north of England)** _brainstrust_ C19–21.Joseph’s.Well. Hannover.Lane. Westgate. Leeds. LS3 1AB
## **Declaration**
The.trustees.declare.that.they.have. approved.the.trustees’.report.above . Signed.on.behalf.of.the.charity’s. trustees .
Signature:.
Full.name:. **Christopher John Baker** Position:. **Chair of the Board of Trustees** Date:. **20 September 2022**
_**brainstrust**_ **trustees’ annual report and accounts:** 1 April 2021 – 31 March 2022
**39**
_brainstrust_ .is.a.registered.charitable.trust.–.registered.with.the.Charity.Commission.for.England.and.Wales. as.Charity.No 1114634,.registered.with.the.Office.of.the.Scottish.Charity.Regulator.as.Charity.No SC044642. ©. _brainstrust_ 2022.