## **PORT Trustees Report for Year end 31.03.22** During this account year PORT has sourced and Funded two Research projects, both having passed scrutiny of the Medical Peer advisory panel of Bowel Research UK (BRUK). The BRUK panel supports PORT to ensure only the best research with the most potential to provide positive outcomes are funded. The research projects PORT funded this year are geared towards both Adult and Paediatric sufferers. ## Research 1 Salford Royal NHS Foundation Trust. “The Effectiveness of an Acceptance and Commitment Therapy (ACT) based psychological intervention on reducing psychological distress in those diagnosed with Gastro-Intestinal Dysmotility” Lead applicant, Dr Katherine Twist Clinical psychologist/Principal Investigator, Co-applicants are Professor Simon Lal Professor of Gastroenterology, Dr Sarah Kelly Consultant Clinical psychologist, Professor John McLaughlin Professor of Gastro and Nutrition, Dr Peter Paine Consultant Gastroenterologist. Research Duration 18 months Cost 49,994.20 This research to be conducted by Dr Katherine Twist and her team is the first time that PORT has funded research aimed at Patient’s mental health instead of Physical health. Patients that suffer from this cruel illness can develop Mental health issues that then can impact on their wellbeing. PORT is very happy to be funding this innovative research. ## Research 2 Great Ormond Street Hospital (GOSH) “The Utility of Motility-MRI in the assessment of Foregut Neuromuscular function in Children with Paediatric Pseudo Obstruction” Lead Applicant Dr Osvaldo Borrelli Paediatric Consultant Gastroenterologist Co-applicants are Dr Anna Rybak Paediatric Consultant Gastroenterologist Tom Anthony Watson Consultant Paediatric Radiologist Dr Lorenzo Blassoni Consultant Nuclear Medicine All are based at Great Ormond Street Hospital Last applicant based at UCL (University College London) Dr Heather Fitzke Post-Doctoral Research Associate Research Duration 18 months ## Cost 50000.00 Great Ormond Street Hospital is the main Paediatric centre in the UK for children suffering with Paediatric Intestinal Pseudo Obstruction and Dysmotility, (PIPO/Dysmotility). PORT is pleased to have formed important links to GOSH and to be funding this research project for them. ## PORT Charity PIPO booklet update This information booklet was been produced by the Pseudo Obstruction Research Trust (PORT), with the help of the Gastroenterology team at GOSH, for children. This booklet has been welcomed by our families and GOSH. The feedback has been very positive and we are proud to have produced such an informative booklet. ## Facebook Page update Our private Facebook members page continues to grow, it is a friendly, informative group where families can converse freely, build up relationships with one another which leads to the families feeling less isolated. This is of paramount importance to help with mental wellbeing. ## Covid Impact Like many Charities Covid has impacted on fundraising this year. PORT would like to thank all the efforts of the various fundraisers and fund raising events that took place during this accounting period. Thankyou ## Sue Stewart Sue Stewart - Chair of the Pseudo Obstruction Research Trust (PORT) - www.port charity.org.uk Charity number: 1114217 PSEUDO OBSTRUCTION RESEARCH TRUST FINANCIAL sfATEMENTS FOR THE YEAR ENDED 31st MARCH 2022 TIM HORNER FCCA Chartered Certified Accountant 55 Crown Street Brentwood Essex CM14 48D www.hillwooldridge.com PSEUDO OBSTRUCTION RESEARCH TRUST Contents Page Trust information Trustees, report Independent examiner's repori Receipts and paynient5 account Statement of asset5 and liabilities PSEUDO OBSTRucfioN RESEARCH TRusr Trust Inforniatlon Charity commlsslon number 1114217 Established 22nd February 21)J6 by Deed of Trust Address Steeple Lodge Church Lane Ooddinghurst Essex CM15 ONJ Webslte www.port-charity.or8.uk Trustees Mrs S Stewart Mrs R Stsnler Mrs S Frost Mr l Frost Mr K Fltzsimmons-wilson Mr B Stewart Mrs A Johnson Mrs L Roberts Mrs L Carrnichael Dr N Meadows Bankers Lloyds TS8 47 Hieh Street Brentwood E$5ex CM14 4RN Independent examiner Tim Horner FCCA 55 Crown Street BrentwoDd Essex CM144BD Payl PSEUDO OBSTRUCTION RESEARCH TRUST Report ol the TTu5tee5 for the Year ended 31st March 2022 History* objectives and activitie5 Pseudo Obstruction Research Trust IPORTI was established in February 2006 in Brentwood, Essex The objectives of the trust are= i) To piomote & protect the physical & menlal health of UK sufferers of Chionic Intestinal Pseudo Obstruction ICIPSI, Gastroparesis & Dysmotility leadin¥ to Trnleslinal failure, through the provision ol lundifig for medical research. support.education & practical advice to advance the edutation ol the General Public in all areas felaling to CIPS. Gastroparesis & Dysmoii5ity leading to Intestinal failure. 21 The relief ol sickne55 and ihe preservation ol health amon8 people residing perm?nenily or temporarily in the United Kingdom The main activity of the Trust In the period under review has beeii fund-raisin8 to provide sufficient reserves to enable the trust lo sponsor future research into the causes of Chronic Intestinal Pseudo Obstruction. Managernent and governance The tnjst deed stipulated the first Trustees, who continue 10 Serve. There must be at least three Truslees. Were there a requirement lor new frustees. these would be identified and appointed by the remaining Trustees. In selectinE individuals for appoiiitment 35 TrLlStee5, Ihe Trustees must have re8ard to the skills, knowledge and experience needed for the effective administration of the Trust. A new Trustee will be indLlCted into the TrLtst by the existing Trustee5. Thi5 would involvp. awarenes5 of the Trustee's responsibiliEies. the governing documeftt. èdminisirarive procedures and the history ol the charity. A new Trustee would receive 3 copy ol the131est annual report and accounts. The TriJstee5 annually review the risks that the charity faie5. To date these have mainly related to safeguarding the charity's reserves and have been satlsfied by ensuring funds are held on deposit with an established bank_ Page 2 PSEUDO OBSTRucnoN RESEARCH TRusr Report oftheTnrn Icontinued) for the year Ènded 31st March 2022 Achievemerts, perforfflan￿ and financial review During the ended 3151 March 2022 the Trust's activities reSU￿ed In net funding receipts totalling £55,745 and expenditure of £49,767. During this account year PORT has sourced and Funded two Research projects, both having passed scrutiny of the Medical Peer advisory panel of Bowel Research UK IBRUKI. The BRUK panel supports PORT to ensure only the best research with the most potential to provide positive outcomes are hjnded. The research projects PORT funded this year are geared towards both Adult and Paediatric Sufferers. rch I Sal rd R al NHS Fou atlon Trust. 'The Effectlvene55 of an Acceptance and Commitment Therapy {Acfi based psychological intervention on reducing psychological distre55 in those diagnosed with Gastro-lntestinal DysmotllitW' Lead applieant, Dr Katherine Twirt ainlcal psycholo8i5tlPrincipal Investigator, Co-applicants are Professor Simon La5 Professor of Gastroenterolo8¥, Dr Sarah Kelly Consultant Cllnical psycholo8lSt. Professor John McLaughlin Professor of Gastro and Nutrition, Dr Peter PaSne Consultant Gastroenterolo8iSt. Research Duratlon 18 months Cost £4 Res ar reat Ormond Streei Hos he Utility of Motility-MRI in the assessment of Foregut Neuromuscular furKtion in Children with Paediatric Pseudo Obstructlon. Lead Applicant Dr Osvaldo Borrelli Paediatrlc Consultant Gastroenterologist Co-applicants are Or Anna Rybak Paediatric Consultsnt Gastroenterologist Tom Anthony Watson Consultant Paediatric Radiologist Dr Lorenzo 8las50ni Consultsnt Nuclear Meditine All are based at Great Ormond Street Hospital Last applicant based at UCL Iuniverswiy College London) Dr Heather Fitzke Post-Doctoral Research Associate Research Duration 18 months Cost £50 0￿, Page 3 PSEUDO OBSTRUCTION RESEARCH TRUST Report of the Trustees (contlnuedl for the year ended 31st March Z022 PORT Charity PIPO booklet update Thi5 informatiot) booklet was been produced by the Pseudo Obstruction Research Trust IPORTI. with the help of the Gastroenterology team ai GOSH, for children. This booklet has been welcomed by our families and GOSH. The feedback has been very positive and we are proud to have produced such an informative booklet. Facebook Page update Our private Facebook membe15 page continue5 to 8row. it is a friendly, informative group where familie5 can converse freely. build up relationships with one another which leads to the families feeling less isolated. This is of paramount importance to help with mental wellbeing. Covid Impact Like many Charities Covid has impÈcted on fundraising this yeor. Trust's lunds The Trust's funds are all currently unrestricted. Approval This report was approved by the Trustees on.. . ............... 2*-'J 3 and signed on their behalf by.. S Stewart Trustee R Stanier Trustee Page 4 PSEUDO OBSTRucfioN RESEARCH TRUS[ Independent Examinefs Report to the TTh￿tee5 of Pseudo Obstruction Research Trust I report on the accoijnts of the Trust for the Year ended 31st March 2022, which are set out on pages 6 to 7. Respertlve responsibilities of trustees and examlner The charity's trustees are responsible for the preparation of the accounts. The charity's trustee5 consider that an audit is not ￿quired for this year lunder section 43121 of the Charities Act 1993 the Artll and that an independent examlnation is needed. It is my responsibility to-. examlne the accounts lunder section 43 of the Act), to follow the procedures laid down in the General Directions glven by the Charity Commisslon lunder section 4317llbl of the Act), and to state whether partlcular matters have come to my attentr'on. Basls of Independent examlner's feport My examination was carried out in accordance wrth the General Directlons given by the Charity Commission. An examlnation includes a review of the accounting records kept by the Charity and a comparison ot the accounts presented with those recofds. It also includes consideratlon of any unusual items or dlsclosures In the accounts, and seeking explanations from you as trLbStee5 coneerning any such matters. The procedures undertaken do not provide èll the evidence that would be required in an audit. and consequently no opinion is glven as to whether the accounts present a 'true and fair, view and the report is limited to those matters set out in the statement below. Independent examlneVs statement In the course of my examination, no matter has come tomy attention- 111 which gives me reasonable cause to believe that, in any material respect, the requirements: to keep accountlng records in accordance with section 41 of the Art,- and to prepare accounts which accord wtth the accounting records and comply with the accounting requirements of the Act have not been met,. or 121 to which, in rny opinion. attention should be drawn in orderto enable a proper understanding of the accounts to be reached. TIM HORNER FCCA Chartered Certified Accountant 55 Crown Street Brentsvood Essex rM14 4BD PSEUDO OBSTRUCTION RESEARCH TRUST Receipts and payments account lor the year ended 31st March 2022 Year ended 31103122 Year ended 31103121 Unrestricted Funds Unrestricted Funds Receipts General donations Internet donations Website comniissions Net fundraising prDce@ds 8ank Interest received 31,934 23.385 79 300 47 10,138 29,470 76 132 Total receipts 55,745 39,816 Payments Contribtstions towards medical research Return of previou5 medical research contributions 99,994 15D,9001 49,094 Expen$es Public liability insurance Promotion, advertising and event eosts Computer and webslte costs Postage and stationerv Sundry expense5 297 297 250 192 loo ioi 275 Total payments 49,767 839 Net receipts / lexpen5esl 5.978 38.977 Cash fund5 brought forward 214,870 175,893 Page6 PSEUDO OBSTRUCTION RESEARCH TRUST Statemenl of assets and liabllities ès at 31st March 2022 2022 2021 Assets Debtors and prepayments Bank account balances 528 214,342 220.848 220.848 214,870 Llabilities Atcrued expenses 220.848 214,870 Net assets 220,848 214,870 Reserves Unresiricted funds 220,848 214,870 /.P4Jp....2.:2S These accounts wère approved by the Trustees on ................. behalf by.. and signed on their S Stewart TrLlStee R Stanier Trustee Page 7 PSEUDO OBSTRUCTION RESEARCH TRUST FINANCIAL sfATEMENTS FOR THE YEAR ENDED 31st MARCH 2022 TIM HORNER FCCA Chartered Certified Accountant 55 Crown Street Brentwood Essex CM14 48D www.hillwooldridge.com PSEUDO OBSTRUCTION RESEARCH TRUST Contents Page Trust information Trustees, report Independent examiner's repori Receipts and paynient5 account Statement of asset5 and liabilities PSEUDO OBSTRucfioN RESEARCH TRusr Trust Inforniatlon Charity commlsslon number 1114217 Established 22nd February 21)J6 by Deed of Trust Address Steeple Lodge Church Lane Ooddinghurst Essex CM15 ONJ Webslte www.port-charity.or8.uk Trustees Mrs S Stewart Mrs R Stsnler Mrs S Frost Mr l Frost Mr K Fltzsimmons-wilson Mr B Stewart Mrs A Johnson Mrs L Roberts Mrs L Carrnichael Dr N Meadows Bankers Lloyds TS8 47 Hieh Street Brentwood E$5ex CM14 4RN Independent examiner Tim Horner FCCA 55 Crown Street BrentwoDd Essex CM144BD Payl PSEUDO OBSTRUCTION RESEARCH TRUST Report ol the TTu5tee5 for the Year ended 31st March 2022 History* objectives and activitie5 Pseudo Obstruction Research Trust IPORTI was established in February 2006 in Brentwood, Essex The objectives of the trust are= i) To piomote & protect the physical & menlal health of UK sufferers of Chionic Intestinal Pseudo Obstruction ICIPSI, Gastroparesis & Dysmotility leadin¥ to Trnleslinal failure, through the provision ol lundifig for medical research. support.education & practical advice to advance the edutation ol the General Public in all areas felaling to CIPS. Gastroparesis & Dysmoii5ity leading to Intestinal failure. 21 The relief ol sickne55 and ihe preservation ol health amon8 people residing perm?nenily or temporarily in the United Kingdom The main activity of the Trust In the period under review has beeii fund-raisin8 to provide sufficient reserves to enable the trust lo sponsor future research into the causes of Chronic Intestinal Pseudo Obstruction. Managernent and governance The tnjst deed stipulated the first Trustees, who continue 10 Serve. There must be at least three Truslees. Were there a requirement lor new frustees. these would be identified and appointed by the remaining Trustees. In selectinE individuals for appoiiitment 35 TrLlStee5, Ihe Trustees must have re8ard to the skills, knowledge and experience needed for the effective administration of the Trust. A new Trustee will be indLlCted into the TrLtst by the existing Trustee5. Thi5 would involvp. awarenes5 of the Trustee's responsibiliEies. the governing documeftt. èdminisirarive procedures and the history ol the charity. A new Trustee would receive 3 copy ol the131est annual report and accounts. The TriJstee5 annually review the risks that the charity faie5. To date these have mainly related to safeguarding the charity's reserves and have been satlsfied by ensuring funds are held on deposit with an established bank_ Page 2 PSEUDO OBSTRucnoN RESEARCH TRusr Report oftheTnrn Icontinued) for the year Ènded 31st March 2022 Achievemerts, perforfflan￿ and financial review During the ended 3151 March 2022 the Trust's activities reSU￿ed In net funding receipts totalling £55,745 and expenditure of £49,767. During this account year PORT has sourced and Funded two Research projects, both having passed scrutiny of the Medical Peer advisory panel of Bowel Research UK IBRUKI. The BRUK panel supports PORT to ensure only the best research with the most potential to provide positive outcomes are hjnded. The research projects PORT funded this year are geared towards both Adult and Paediatric Sufferers. rch I Sal rd R al NHS Fou atlon Trust. 'The Effectlvene55 of an Acceptance and Commitment Therapy {Acfi based psychological intervention on reducing psychological distre55 in those diagnosed with Gastro-lntestinal DysmotllitW' Lead applieant, Dr Katherine Twirt ainlcal psycholo8i5tlPrincipal Investigator, Co-applicants are Professor Simon La5 Professor of Gastroenterolo8¥, Dr Sarah Kelly Consultant Cllnical psycholo8lSt. Professor John McLaughlin Professor of Gastro and Nutrition, Dr Peter PaSne Consultant Gastroenterolo8iSt. Research Duratlon 18 months Cost £4 Res ar reat Ormond Streei Hos he Utility of Motility-MRI in the assessment of Foregut Neuromuscular furKtion in Children with Paediatric Pseudo Obstructlon. Lead Applicant Dr Osvaldo Borrelli Paediatrlc Consultant Gastroenterologist Co-applicants are Or Anna Rybak Paediatric Consultsnt Gastroenterologist Tom Anthony Watson Consultant Paediatric Radiologist Dr Lorenzo 8las50ni Consultsnt Nuclear Meditine All are based at Great Ormond Street Hospital Last applicant based at UCL Iuniverswiy College London) Dr Heather Fitzke Post-Doctoral Research Associate Research Duration 18 months Cost £50 0￿, Page 3 PSEUDO OBSTRUCTION RESEARCH TRUST Report of the Trustees (contlnuedl for the year ended 31st March Z022 PORT Charity PIPO booklet update Thi5 informatiot) booklet was been produced by the Pseudo Obstruction Research Trust IPORTI. with the help of the Gastroenterology team ai GOSH, for children. This booklet has been welcomed by our families and GOSH. The feedback has been very positive and we are proud to have produced such an informative booklet. Facebook Page update Our private Facebook membe15 page continue5 to 8row. it is a friendly, informative group where familie5 can converse freely. build up relationships with one another which leads to the families feeling less isolated. This is of paramount importance to help with mental wellbeing. Covid Impact Like many Charities Covid has impÈcted on fundraising this yeor. Trust's lunds The Trust's funds are all currently unrestricted. Approval This report was approved by the Trustees on.. . ............... 2*-'J 3 and signed on their behalf by.. S Stewart Trustee R Stanier Trustee Page 4 PSEUDO OBSTRucfioN RESEARCH TRUS[ Independent Examinefs Report to the TTh￿tee5 of Pseudo Obstruction Research Trust I report on the accoijnts of the Trust for the Year ended 31st March 2022, which are set out on pages 6 to 7. Respertlve responsibilities of trustees and examlner The charity's trustees are responsible for the preparation of the accounts. The charity's trustee5 consider that an audit is not ￿quired for this year lunder section 43121 of the Charities Act 1993 the Artll and that an independent examlnation is needed. It is my responsibility to-. examlne the accounts lunder section 43 of the Act), to follow the procedures laid down in the General Directions glven by the Charity Commisslon lunder section 4317llbl of the Act), and to state whether partlcular matters have come to my attentr'on. Basls of Independent examlner's feport My examination was carried out in accordance wrth the General Directlons given by the Charity Commission. An examlnation includes a review of the accounting records kept by the Charity and a comparison ot the accounts presented with those recofds. It also includes consideratlon of any unusual items or dlsclosures In the accounts, and seeking explanations from you as trLbStee5 coneerning any such matters. The procedures undertaken do not provide èll the evidence that would be required in an audit. and consequently no opinion is glven as to whether the accounts present a 'true and fair, view and the report is limited to those matters set out in the statement below. Independent examlneVs statement In the course of my examination, no matter has come tomy attention- 111 which gives me reasonable cause to believe that, in any material respect, the requirements: to keep accountlng records in accordance with section 41 of the Art,- and to prepare accounts which accord wtth the accounting records and comply with the accounting requirements of the Act have not been met,. or 121 to which, in rny opinion. attention should be drawn in orderto enable a proper understanding of the accounts to be reached. TIM HORNER FCCA Chartered Certified Accountant 55 Crown Street Brentsvood Essex rM14 4BD PSEUDO OBSTRUCTION RESEARCH TRUST Receipts and payments account lor the year ended 31st March 2022 Year ended 31103122 Year ended 31103121 Unrestricted Funds Unrestricted Funds Receipts General donations Internet donations Website comniissions Net fundraising prDce@ds 8ank Interest received 31,934 23.385 79 300 47 10,138 29,470 76 132 Total receipts 55,745 39,816 Payments Contribtstions towards medical research Return of previou5 medical research contributions 99,994 15D,9001 49,094 Expen$es Public liability insurance Promotion, advertising and event eosts Computer and webslte costs Postage and stationerv Sundry expense5 297 297 250 192 loo ioi 275 Total payments 49,767 839 Net receipts / lexpen5esl 5.978 38.977 Cash fund5 brought forward 214,870 175,893 Page6 PSEUDO OBSTRUCTION RESEARCH TRUST Statemenl of assets and liabllities ès at 31st March 2022 2022 2021 Assets Debtors and prepayments Bank account balances 528 214,342 220.848 220.848 214,870 Llabilities Atcrued expenses 220.848 214,870 Net assets 220,848 214,870 Reserves Unresiricted funds 220,848 214,870 /.P4Jp....2.:2S These accounts wère approved by the Trustees on ................. behalf by.. and signed on their S Stewart TrLlStee R Stanier Trustee Page 7