# GENETIC ALLIANCE UK LTD

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1114195
- **Other names:** GENETIC INTEREST GROUP, GENETIC INTEREST GROUP LIMITED, RARE DISEASE UK, RDUK, SWAN UK
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** May 15, 2006
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1114195


## Contact

- **Address:** Genetic Alliance UK, The Clock Tower, 5 Farleigh Road, Old Weston Road, Flax Bourton
- **Postcode:** Bristol
- **Phone:** 03001240441
- **Email:** contactus@geneticalliance.org.uk
- **Website:** www.geneticalliance.org.uk



## Activities

**Objects:** THE OBJECTS FOR THE PUBLIC BENEFIT ARE:-A) TO RELIEVE PERSONS AFFECTED BY A GENETIC CONDITIONS;B) TO ADVANCE THE EDUCATION OF THE PUBLIC CONCERNING GENETIC CONDITIONS IN SUCH WAYS AS THE TRUSTEES OF THE CHARITY THINK FIT.

**Activities:** Genetic Alliance UK is an alliance of over 230 charities and support groups. We have a 30-year track record of working together to improve the lives of people in the UK with lifelong and complex genetic and rare conditions. We run two long-standing projects, Rare Disease UK and SWAN UK.

**Area of benefit:** NOT DEFINED.




## Classification

- **How:** Provides Advocacy/advice/information, Acts As An Umbrella Or Resource Body
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies, Other Defined Groups, The General Public/mankind



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Elizabeth Porterfield** | Chair | Sept. 26, 2017 |
| Dr Michael Winter FRCGP |  | Feb. 11, 2025 |
| Dr Shehla Nilofer Mohammed |  | Sept. 12, 2023 |
| Emily Merrell |  | Nov. 4, 2025 |
| GLORIA JANE CLARK |  | Sept. 26, 2017 |
| Gregor Stevenson |  | Sept. 12, 2023 |
| Professor Lara Bloom |  | Sept. 12, 2023 |
| Rebecca Middleton |  | Feb. 11, 2025 |
| SARA JOHANNE HUNT |  | Sept. 26, 2017 |
| Susan Jane Millman |  | Sept. 26, 2017 |
| Timothy Kamombo |  | Jan. 20, 2025 |
| Toby William Hannam |  | Sept. 12, 2023 |


