# GENETIC ALLIANCE UK LTD

## Details

- **Country:** England & Wales
- **Charity number:** 1114195
- **Other names:** GENETIC INTEREST GROUP, GENETIC INTEREST GROUP LIMITED, RARE DISEASE UK, RDUK, SWAN UK
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** May 15, 2006
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1114195


## Contact

- **Address:** Genetic Alliance UK, The Clock Tower, 5 Farleigh Road, Old Weston Road, Flax Bourton
- **Postcode:** Bristol
- **Phone:** 03001240441
- **Email:** contactus@geneticalliance.org.uk
- **Website:** www.geneticalliance.org.uk



## Activities

**Objects:** THE OBJECTS FOR THE PUBLIC BENEFIT ARE:-A) TO RELIEVE PERSONS AFFECTED BY A GENETIC CONDITIONS;B) TO ADVANCE THE EDUCATION OF THE PUBLIC CONCERNING GENETIC CONDITIONS IN SUCH WAYS AS THE TRUSTEES OF THE CHARITY THINK FIT.

**Activities:** Genetic Alliance UK is an alliance of over 230 charities and support groups. We have a 30-year track record of working together to improve the lives of people in the UK with lifelong and complex genetic and rare conditions. We run two long-standing projects, Rare Disease UK and SWAN UK.

**Area of benefit:** NOT DEFINED.




## Classification

- **How:** Provides Advocacy/advice/information, Acts As An Umbrella Or Resource Body
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies, Other Defined Groups, The General Public/mankind



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £885853 | £705015 | £222684 | 11 |
| March 31, 2024 | £780935 | £862752 | £41846 | 17 |
| March 31, 2023 | £741859 | £769204 | £123663 | 16 |
| March 31, 2022 | £713568 | £762424 | £151008 | 17 |
| March 31, 2021 | £939440 | £808907 | £199864 | 17 |



## Trustees

- **Elizabeth Porterfield** (Chair) — appointed Sept. 26, 2017
- Dr Michael Winter FRCGP — appointed Feb. 11, 2025
- Dr Shehla Nilofer Mohammed — appointed Sept. 12, 2023
- Emily Merrell — appointed Nov. 4, 2025
- GLORIA JANE CLARK — appointed Sept. 26, 2017
- Gregor Stevenson — appointed Sept. 12, 2023
- Professor Lara Bloom — appointed Sept. 12, 2023
- Rebecca Middleton — appointed Feb. 11, 2025
- SARA JOHANNE HUNT — appointed Sept. 26, 2017
- Susan Jane Millman — appointed Sept. 26, 2017
- Timothy Kamombo — appointed Jan. 20, 2025
- Toby William Hannam — appointed Sept. 12, 2023