# RARE CHROMOSOME DISORDER SUPPORT GROUP

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1110661
- **Other names:** RARE CHROMOSOME DISORDER SUPPORT GROUP, UNIQUE RCD LTD
- **Status:** Registered
- **Legal form:** Charitable company
- **Company number:** [05460413](https://find-and-update.company-information.service.gov.uk/company/05460413)
- **Registered:** Aug. 1, 2005
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1110661


## Contact

- **Address:** F4 The Stables, Station Road West, Oxted, Oxted, Surrey
- **Postcode:** RH8 9EE
- **Phone:** 01883 330766
- **Email:** info@rarechromo.org
- **Website:** www.rarechromo.org



## Activities

**Objects:** 3.1 TO ASSIST AND RELIEVE SUFFERERS FROM RARE CHROMOSOME DISORDERS3.2 TO EDUCATE THE PUBLIC REGARDING RARE CHROMOSOME DISORDERS3.3 TO RELIEVE THE PARENTS AND CARERS OF PERSONS SUFFERING FROM RARE CHROMOSOME DISORDERS WHO ARE IN CONDITIONS OF NEED HARDSHIP OR DISTRESS

**Activities:** Unique - The Rare Chromosome Disorder Support Group, is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities, Other Defined Groups



## Geography

- **Area of benefit:** NATIONAL AND OVERSEAS
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Helen Elizabeth Campbell** | Chair | June 17, 2014 |
| Ben Stern |  | Aug. 14, 2014 |
| Cecely Hugh |  | Dec. 16, 2024 |
| EDNA MARGARET KNIGHT MBE |  |  |
| FIONA CATHERINE FULTON DE ZOETE |  | May 1, 2013 |
| James Edward Lucas |  | Jan. 14, 2025 |
| SOPHIE PRISCILLA SAINTY |  |  |
| Shwetha Ramachandrappa |  | Oct. 11, 2019 |




