## Trustees Report for 2025 Accounts 

KF: NHS England meeting for Pembro for ATC pts 

KF: Working party meeting for ION paper 

KF: Letter for David Hamilton for thy3f patients 

KF: Pembro meeting 

KF: Thyroid group meeting NCRI 

KF: Omar Hilmi funding discussion pt eye, suggest BTF part fund 

KF: Call with Neil and Nikita re WTC Boston – BTCT to part fund Nikita’s travel + subsistence. Nikita to be responsible for QR code cards and ensuring Molly’s film shown on monitors at venue. 

KF: New patient information film ( Molly’s film) accepted for WTC and Nikita to represent BTCT 

KF: HOT Trial meeting 

KF: Lauren Hullett 

KF: Investigated showing new patient information film in Newcastle to a select audience 

KF: Selpercatinib submission for SMC 

KF: Individualisation of RAI room for Ollie at NCCC 

SF: Preparation for “Rarity Life Magazine” article on BTCT 

KF: HoT trial meeting 

KF: Discussion with Amy Barnes (radiographer in Leicester) regarding AI support for U/S scans (basically underlining what we already know about KOIOS software. 

KF: Mollys film to be shown at World Congress Boston and confirmed sponsorship of Dr Nikita Chander as BTCT representative. Nikita to be responsible for dissemination of new QR code cards to attendees. 

KF: Facilitated patient with rare gene fusion for filming 

KF: Facilitated support for Northampton patient who wasn’t given any information at diagnosis 

KF: Press release for ION 

KF: BAETS webinar 

KF: SMC submission and meeting for Selpercatinib 

KF: Selpercatinib PACE meeting for Scotland 

KF: NCRI meeting - discussion regarding whether ‘fat jabs’ were appropriate for thyroid cancer pts ? 

KF: ION documents finalized 

KF: New trial coming Dr Carlos Wong AI – BTCT offered to help with patient involvement and information 



KF: Protracted NCRI meeting. Discussions include both national and international research trials. 

KF: further discussion on GLP1 agonists and thyroid cancer pt information 

KF: Press re ION trial results 

KF: Family support for 9 year old with lung metastases 

SF: Rarity Life Magazine article published 

KF: First meeting for new generic pt info film to replace “Thyroid Cancer uncovered” 

Niki Chander attended World CONGRESS with “My Thyroid and Me” young patient information film (Molly’s film) 

KF: Discussion regarding upgrades to paediatric rooms at The Christie and Glasgow 

KF: Further work with Play Team at Christie to do paediatric rooms and also links for Glasgow established 

KF: Mollys film to be broadcast on the BAETS APP for conference 2025 

KF: Presentation for Imperial College patients 

KF: meeting to discuss new nodule investigation guidelines 

KF: Glasgow paediatric patient room 

KF: Alicja’s PHD project published in BMJ – “Factors affecting thyroid cancer survivors” 

KF: further support for Balraj’s family wrt ongoing treatment 

KF: Discussion with Dr Carlos King Ho Wong regarding an AI development aid in thyroid cancer decision making 

KF: NorthEast Enterprise Award 

KF: Further discussions with Amy Barnes, Sheffield NIHR re. thyroid nodules AI to reduce number of FNAS 

KF: Molly’s film shortlisted for Smiley film awards 

KF: Molly’s film shortlisted for National TV film awards 

KF: Meeting with Geroge Mochloulis and Carian Cruz regarding thermal ablation vs surgery for micro carcinomas 

Thermal Ablation v surgery for micropap ca 

KF: Wanting multi centre study BTCT to support with patient group , me to be stakeholder ,they want NIHR grant . 



KF: Meeting with Neil Sharma  to discuss trial looking at surveillance vs surgery for low risk tc 

AH: patient mediator offering support to patients on Thursdays through email, text, virtual meetings and telephone. Attends virtual and live meetings pertinent to her position in BTCT. Assists in local RAI room Individualisation for young patients. 

SF: Administrator for BTCT, responsible for maintaining sufficient supplies of QR code cards, leaflets, stationery  and advertising/ awareness supplies; liaising with national centres to deliver BTCT patient information media; accounts and finance; charity commission and HMRC governance; fundraising; IT; lodge bookings and maintenance; involvement in grant submissions and virtual meetings pertinent to his role. 

## **Abbreviations:** 

|KF|Kate Farnell|
|---|---|
|SF|Steven Farnell|
|AH|Amy Horton|
|EP|Euan Preston|
|BTCT|Butterfly Thyroid Cancer Trust|
|SMC|Scottish Medical Committee|
|NICE|National Institute for Clinical Excellence|
|D & T|Dabrafenib & Trametinib|
|TC|Thyroid Cancer|
|UCLH|University College London Hospitals|
|BAETS|British Association of Endocrine Thyroid Surgeons|
|ION|Iodine or Not|
|USS|Ultrasound Scan|
|PPI|Patient & Public Involvement|
|BTF|British Thyroid Foundation|
|BTA|British Thyroid Association|
|RAI|Radioactive Iodine Treatment|
|TYA|Teenage & Young Adult cancers|
|NuTH|Newcastle upon Tyne Hospitals charity|
|NIHR|National Institute for Health and Care Research|
|HOT|Hemi or Not|
|ATC|Advanced Thyroid Cancer|
|WTC|World Thyroid Cancer Congress|
|NCCC|Northern Cancer Care Centre|
|JW|Jon Wadsley|
|KG|Kate Garcez|
|KN|Kate Newbold|
|CRUK|Cancer Research UK|





BurrERFLY THYROID CANCER TRUST
Rogistered Charity number: 1108932
FINANCIAL ACCOUNTS FOR THE
YEAR ENDED 31ST DECEMBER 2025
DRAYCOTT & KIRK
CHARTERED CERTIFIED ACCOUNTANTS
92 Westgate
Guisborough
Cleveland
TS14 6AP

BUThERFLY THYROID CANCER TRUST
SUPPORT GROUP INFORMATION
YEAR ENDED 31 DECEMBER 2025
Trustses:
Mr F St8fft)rd F.R.C.S
Mr J Salter
Mr D Farnell Bsc
rs D Golighuy
Mrs R Newlon
Addres5
PO Box 205
RovAands Gill
Tyme & Wear
NE39 2WX
Bankeys
Lloyds TSB
Wesl Street
Gateshead
Accountants
Draycotl & Ifjrk LLP
Chartered Cedified A¢￿Un￿ntS
Cleveland HoL￿e
92 Westgate
Guisborough
CLEVELAND
TS14 6AP
Reg. charity no.
1108932
Page 1

Ind•pondent Examlnerfs Report lo the Trustees of Butterfly Thyrold ¢ancerTrust
I report on the accounts of the charity for the year ended 31 De¢emtxr 2025 are set out on pages 3 to 6
Re$pe¢tive responsibllfjiies of iTUStèes and examlner
The chanws trustees a￿ reswnsible for the preparab.on of the accounts. The chaiTty's trustees eonsider th8t an
audit is not required for this year under Se￿￿ 144121 of the Charitses Act 2011 (the 2011 Acll and that an
independent examinat￿Th is needed.
It is my responsitylty to".
exarnine the accounts under sectw 145 01 the 2011 ACL"
follow the procedu￿ Lgid do*n in the general 05￿￿10nS gven by th8 Charity Commission under section
14515llbl of the 2011 Act- and
state whether parbDJlar matters have come to my attention.
Basis ot independent ex3mlne¢s report
My examination bWd5 carried out in &￿rdance wilh the ger￿ra1 Directi￿$ 9iven b"1 the Charity Commission. An
examination i￿ludeS a rewew of the accountsng re<x)rds kept by the charty and 3 comparison of the acrx)unts
presented wlh thtsse records. K also indudes cwS1derat￿n of any unusual itèms )r disdosures in the account5,
and seeknng explanations frorn you as trusiees con￿mIng any such mattets. The prO￿dU￿$ undertaken do not
provide all the ev￿en￿ that would be required in an audit and ¢onsequenUy no opinion is given as to whether the
awounts present a and fair viewf and Ihe re¢￿ is Iirnited lo those tnatiers se out ￿ the stslewnent below.
Independent exzminels statsment
In Connection wth my examinab"on. matier has corne to my aitention..
which gNes rne rea$￿able cause to believe Ihat. in any material respect. the requiretnents..
to keep a¢¢ounting re(xYds in accordance with se¢ti(ffi 130 of U)e 20. 1 ACL and
to prepare accwnts wh￿h vAth the atsx)unting records ard ts)mrAy ￿th Ihe acc(yJnts"ng
requirements of Ihe 2011 Act
have not been met.. or
to which. in my opin￿n. attenlwjn shwkl be dra*Tt in ¢)rder to enable a prope. understr￿ing of the accounts
lo be read)ed.
C N Mason
Charter8d ce￿fiedACc0u￿￿nI
Dray¢oll & LLP
Clevelanrl House
92 Weslgate
Guisborough
Cleveland
TSt4 6AP
Dète

BUTTERFLY THYROID CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2025
istered chari
numb8r
1108932
Charit￿5 prfnclpal address
PO Box 205
Rowlands Gill
& Wear
NE39 2WX
Narn•s of Charity tru$to05 who manage the tharity
Mr F Slafford F.R.C.S
Mr5 0 Golight
klr J Salter
Mr D Famell Ssc
Mrs R Ne*tyn
Structure. govèmance and manayèmtrnt
Goveming docurnent
Tntst D￿d
ConslilutKJn
Tw5t
Trustee Se￿tr￿ rnethod5
Twu#e￿ S￿￿t&d ty ￿81*19 Tru&le88
Objectives and activitie5
To allevrdle Ihe physical. p5ychdogical OTfinanoa drfficuthes ￿ hardship of t*ople 8fl8cl&1 by thyroid cgncer.
To promote e(f￿atiOn about thyroKI cancer io membe[5 of the wblic 81 latge.
The charity provides.. A ￿ed￿al￿ tdeph[K￿ helpline.
Holidays
A buddy System
Awareness Even's
Palienl infotmaiion sb*ks
Research Grants
Webstle
Pal*nt infom)atKn OVD
On site dinical supF
Suppressi(* Catts
H05ptsI
Conferentè Pressntations
Facilitates palEnl intr￿1￿5
RAI r￿[￿ access￿e$
Atlends thYr￿d tsncÈr (J)nfÈrencÈs
ClintAI Trials *Jiqsory role
Neith of pabent SUPkVt cwtac
Patiènt infom)ati()n advisory ro58
RAI r(K>m renovati￿SIrwdrnp
NICE TC cornmi55ioner- nati{￿*1 TC guHlelines
Provision of IM>liday Tesple a￿0￿m￿tion
pat￿ni InfcyMa￿) Manag8meni posilw for S¢ottish Thyrmd Lan￿r NetwDrk
Vdunteers and 9mup members we involveo ￿ fuTrJ raisiro ackn¥ril*s. They altend anc wovtde infoxrnatK>n
star￿S at rÈlevant eonferertts.
Ptye 38

TTERFLYTHVTr
10 CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2t125
hk•v•rn•nts und•rtsk*n forth* blk b•n•fft kn r•latloDtoth•
KF.. MHS Engignd rtreing fDrPthyvtsATCVS
KF.. Workry party n￿tyng for ION paper
KF." L@tiorfoi David forthy3f patients
KF.. Pembro rneeting
KF.. ThyNd 9foup meetn9 NCRI
KF. Omar Hilmi (und￿￿ d￿U55￿n ￿ eye. 5ug9e51 BTF partfw
KF Cal with Nèd and Nikits iè WTC Boston- BTCT to P￿t￿j￿j N*ts'¥tr￿d * Subsist￿. to be resp)nthloforQR ¢fylerxd5 and en5Uri
4dly's film irMJwn on monirrt at venue.
KF.. New pèikni InformaDon rkn I kI0￿Y'S￿￿}*x￿￿ WTC ar￿ N*Aa brewewl 8TCT
KF." HOT Trial rneebn9
KF.. Lauren Hullell
KF.. Investigated S￿￿n9 new p3kn1 rkn in N*¢asOe io a sdecl aLthn
KF-. Splpgr¢atinib Subms8k)n for SMC
KF.. Individualisation ol W room IorlJlèAINCCC
SF.. Preparation fLY-Rarity Lif9 k4aga2inè" on BTCT
KF.. HOT trial meeti
KF". DiSCuS8N)n ￿th W Banes in fva*undErfwdng %•*￿tY￿ a1re•Jy krmw abNrt
KOIOS g¢ftwarèl.
KF." Mollys lilm to bè shovn) Cihwress Boslon 3￿j $rAY￿st1POrDr BT,=T rwe5entative. to b¢
responsiblg fDr dL3$9Minati￿ of n*wQR ¢￿¢¢ardS lo alt￿￿90$.
KF.. Farylilawd Dabenlwth rarn futhn forllrring
KF.. FaQI￿ated supportlor Norulampton pabèni%%knvAsnlgr¥¢n any irdtyNthI at d￿0￿$
KF.. Press release for ION
KF.. BAETS weknnar
KF.. SMC submisgon ar￿ r￿eti￿ for$￿th
KF." S￿pe1C3t￿ib PACE meebng for Smuan
KF." NCRI meèting. diSCUSSk)n iegaitsing whethw Yatjabs. rts?
KF". ION documents fnalize
KF. Nwi irial co￿ng Or Ca￿￿8w(WAJ- BTCT ortered tobdp*ith ￿ti￿nt •l¥d￿nemaTrj inftin*
KF Protiatied NCRI mtttsng. Di5DY&s￿ns both nationalaTh* r8searr*trA&.
KF." furthErdiscv8sw SLPI agonistsaThJ ihyrowj piinf¢xmakn
KF.. Press re ION rosutts
KF." Family suppor1f0r9￿rp￿ luw metss
SF." Rarity Lrfe mag￿lne arbde publis
KF. First meetiro IIY Dew generic ot info 10 rep￿t￿h￿C•1
Nikl Chanderatte￿ed Wortd CONGRESS*ith"MyThymM1 kl8. IKWVsflml
KF Disru$*¢n r*gardI￿ upgrades to paediatrK rowm alThe Chrisbe and GL3>J¢y
KF.. Further workwilh Play Team alChnst*io do paedkitrK ror*Tr5wJ¥so knks&yGlw* e*knhed
KF. Moltys flrn ￿ be broadcasl on BAETSAPPftt¢(￿lerertt 2025
KF." Pr￿￿￿tin Imperial ediege patients
KF." tn*8tyThg to di%CuSS new Thr￿Ule InvestsgatKn gidelhgs
KF.. Gksgow paediatric Pat*nt mom
KF.. Aicja's PHD kyoied Pu￿lsh￿d in BKU-Faetors afteeting ty￿d wrvr•tyS"
KF." further Supmfor 8alrajs family trèaknènt
KF". DISeu$Sion Dr King Howoty warding 8rt￿ de¥etyj￿aid in th>Tc*J de¢tsiM makr
KF." NorthEasi Enierpnse Award
KF." Further dts¢USs￿nS Amy 8arnes. sheffi￿ NWR ts. torethce roJmbpi(rf FNAS
KF.. Molly's film lor Smi*y Am
KF.. Molly's film Sh(￿￿$%￿¥ tor Na1￿￿1 TV fikn
KF.. Wanllng multi Cent￿ 8TCTtO 5UPPryt*ilh paliÈ￿t5rnty. ffe t0bestakeh0W.￿fjYw*t NIHR gr8nl.
KF." kIÈè￿fftg Nèil Shama ID d￿5$ al 5ur¥elLywvSSury*l<¢ky* rtsk

BirrYERFLYTHYROfl CANCER TRUST
TRUSTEES ANNUAL REPORT
R THE YEAR ENDED
TDE
EIIBER
Summa
otthe mafj
H.. pelrenl mediqÈ)roflerfrKJ Suoptrtto Thutsdaysthrnw emal. tèAt. mèthgsand and
INe m¢eting$ Psthenlto pJsitv)n ￿ 8TCT. Asssts ￿ I￿1 r{￿￿ foryoury pabetts.
SF.. AdminY&traknrfor 8TCT. respmgble for sufventsupfl￿s￿f1x¢ c￿e￿rts. ￿ar￿ts, sta1¥￿et￿ wfvEtb*nyl8w8¢ness
Suwlies. liaising With nabonal io BTCT Patient ￿f0￿￿￿tion trtdk*. Ète￿ntS and fin3Th￿. chath. CDmmiSSiOll and HMRC
goveErLancB". fundr¥iwn9". tT. Wge bookitt95 and rtwntsnanre." InvifvempniiigtÈMsthmtssH￿s ￿d¥1￿u￿ rth*tsws wbnenl to his role.
brovlatlons..
Kate FarThe11
Stev￿ Fam
Arny HorlD
Euan Presl
Èuttwfy Th￿QKI Carw Tnk5t
ScotD5h MedKal Comrnittee
Na￿n￿l lnsti￿le forClinic* ExcefAKe
Oabralenib &Trar￿￿knib
Thyi(xd CanC@r
Uh￿￿￿1ty ¢¢iiègè LorRltr) Hospit*
Bnlrsh AssQLxal￿ ol ThIT<*J
k>dine or Not
EP
BTCT
SMC
￿￿E
D&T
TC
U¢LH
BAETS
ION
uss
ultrasou￿ Stan
Pa1￿￿{& Pthlic Involvement
Brrfa5h Th￿K* Favtsdatity)
Brilish ThyroKfAssocKgt
Radioactive Trealm
Teenage & Young
Newtasle w)on Tyne Hosptsts rjwity
Naknona In$biute fot Heayth Re5earfh
or NDI
Ad¥anre# Car
wor￿ Thyrokl c￿r¢0¥¥Jr￿s
Cancercare Centre
Jon Wadslèy
Ka￿ GaTCÈz
Kalè Néwbokrt
CwwR9¥9arth UK
BTF
RAI
TYA
NUTH
NIHR
HOT
ATC
WTC
NCCC
Jw
KG
KN
CRUK
PwJ?3

r6LY YTrIYRUD CWXER TR
FOR THE YEPA ENDE031ST
D¢sitywÈdknnd¥
£10.00). Buttethy Lod9•
£7.500- PatentSUFWrt e0MaLg
t25.￿. thw9n&t6dlO a<kniiistrth0 ¢(6ts.
ance ofttie rts*0fv68 kn $[￿￿Tr ryéwtartdfwe
F¥ll NaTh•
Far￿*
Trtr51ee
)% L4.L
P** 3d

YTHY
70.CQO
78.512
1.183
13.1YJ
141894
7e.512
1.1t3
13.1(9
1418É4
Gfft Ak#
1.614
17.134
S1.046
Dir*t(**llabl• exwthtyi•
Payr¢U
Pr0fKtsSKi￿ lees
TeWc4ie
71228
43.035
43.ts
Z013
1,71
1.377
1.X7
T.18
2.&*
8.&11
Irtswarkce
3.424
1.￿7
M¢*or & ¢￿tr
R8Fw$ 3rKI marlenar
8.841
12
437
l>arls
6.6iS
1.9%
Accountsncy
Profft (*?
Deve￿￿ts0Th
23.6
167.a
187.421
1T3.233
{24 5271
791.￿7
124.:271
117.813
Total fur4$
7.428
878,ll5

BurrERFLY THYROID CANCER TRUST
BALANCE SHEET AS AT 31ST DECEMBER 2025
FIXED ASSETS
Land & buildir,g5
Fixtur8s & e(yJipment
130.0511
3.46'3
153.0
1.677
CURRENT AS
D&btors
Bank Accolmls
Cash In Hand
723,461
597 724.1)58
597 720,689
854.203
878,735
RRENT
ABILITIES
ETA
ET
8S4208
878,735
ND
Restricted Funds
Un￿Stricted Funds
Designated funds
786.7
87.428
791.307
87.428
854.2Jg
878,735
Those Financlal Slatem•nts war? approved by the Twste•s on
e￿ Lt.L
Slgn•d
Full Name
Oanièl Farnell
Tru5teg
Page S

ntin
The ¢hartty conslituies a rMJbli¢ benvfit eTrtity 8s dofffted by FRS 102. The Ifftanrsl slale￿At￿ hale
been prep8red in ac(YJFdance Accodnlirtg Rewrtsng by Charibe$." Staten*nl of Recornrn8nded
pratt￿ applicab* 10 chaiit¢s prepa￿￿ theK 8ruJunts in accotd8ncè wAh Ih? Fin&ncial Repurting
S18né3rd 8ppIIcaoiÈ in Ihe UK of Ire￿[￿1 IFRS 1021155ued oft 16 Jufy 2014135 usxlat
th1o￿h u4xJale bJHetin 1 publish 2 Fe￿ary 20161, the F¥)antsw Reportiw Stai dards appb(able
in the United King￿VIn and Rep￿* of Ire12rK1 (FRS 10218nd LIK Generaty 2uxOail pfaEtKe as a
apr￿￿$ from 1 January 2015.
The has 8ppliaY U¥Klote 1 as put4bhed on 2 FeL¥uary2016 ar•J does hKbJe
C8sh now s¢atemert Dn the #rounds apFty'ng FRS 102 SeclffJn 1
The F+nanaal staten￿niS are ¢)n a go￿9 coTKern basis undwtbe ty￿ corTrwil￿n.
The @nantAal statements are r<eserd&J 15 the ftÉn(AiMal rJJrTency If the (*athyand
roundeo lo the nearest ￿u￿￿.
The s¥anifirAni a¢(x)tsntnQ POIWS in the prepar8tw)n oflhe finanual 518t¢m8nts are set wl bekn¥.
These politr4es have been aPF￿ to al years un*5S Othwise ￿at￿l.
Funds
Unrestrictsd ftJnd5 a￿ awJtlatAe fotuse at ￿Cre￿O￿ of Ihe tsvstee5 in furthernno of the general
objeciwes ofthe charity al￿ which hav8 destyjnated for other purrxjses.
ReStrF￿éd futaas arE fvrvjs whtch are 10 b? accor￿90)ce wrth 5P8ryfi¢ restrSEI ons Irry)s*l by
donors orwhicty h8¥e been r8i5ed try the challty lorpartioJtar puTroses. The rxjst o 2nd
adminisifaling l￿d$ are Charged agautst the The and use cf each rE5twxl8d
Jnd ts Sei In the note5 to Ihe acctyJnts_
grAnts 4nd %￿nIary mCOm8 accounw for SVD55 recoTheble. as És Ih8y
ate ¢apalAe olfinancial measureft*nL
All ts gccouDted ft)rg¢uss of VAT, inojr¥ed.
Prowsiory fordeprnu8bon olfi*d &ssets hehy for use by the d￿rIty i* m8Oe ut anniiHI r8les
cal¢ul#ied lo spread the cost Oess ant￿paled reskjual waluel oleach a..￿et
oKer 115 expeued tseful lrfe. dewewbon r8tes >Jr￿n1￿ Bi use IDr fi)*d asset$ hepj for use
by the Ghanly ar& 15% on strawam frJrFi¥tU￿5 and and 15% rèJur3n) b*rte (or
I9￿d a￿] tyJlk1iws_
Ros8Thes Kthy.. The Irustee5 ha¥8 0)ft5kJerett Ihe ol needed kn othrlo
mainipAn the orvjothg 8fATh￿tr$ ofthe L*anty The INslets c41￿￿jertha1 an
reprESent￿g ts¥elTr*t months rA)5ts atE 8ttvsatle.
2a Grants
2025
syn￿￿5
70.0
70.000
Detals ofgr8nts are note 4.
Pag8fj8

TfERFLYTHYROID CANCER TRUST
Not￿ to theAccouTr)ts forthe
rfod 31st Dvcember2025
2b GrJnts mad•
Researth Grart. unP￿r$￿ofsh2ffj￿d
ImprovemEnls to RAI rrKths
3T•n
Ib￿ Flxed Assets
Flxtures &
Hofilla
Bir
2.397
2.532
4.929
182.397
during IF*pwiod
180.000
184.929
DepretyalvJn Bir
Depreu3l￿n for Ihe
DepreualK)n Clf
720
740
1.460
27.720
23.
51.410
49.950
Nel bwk at 31 Dec¢r(bw 2025
3.469
1￿.050
133.519
4 Furtds
Transfer
Openi
rtsi
fuThls
Unrestrlct•d funds
791.307
142.894
766.780
Rostri¢ted funds
Deslgnat¢d Funds
87.428
87.428
al Donati￿S frtym Sy[W￿ to be used fu Researth (>anl A¥Rrd, imwowements,
bLrt eX￿U￿¥ety
5 Amaty$l$ ol lun*Js by ass•ts
Unrewc￿ Re5tsicterf DesKJn8W Total
Fixed assets
Current assets
Current liabilibes
133.519
631261
133.519
720.639
87.428
766.780
87.428
8Y.2J8
6 Transactions with tvllstee's and Mnr*cled
Durifig the ￿ the￿ ¥¥as no trar*wAon5 vnth Tntstees u ¢onn*tsJ P￿sOr￿ iNAudI￿ r￿￿rat1)n expense6.
7 Twustee Ind•mn
Insuranc•
During th8 yyar. Insurw¢*w3s pwthased to th￿￿ty￿*(Y￿nMit￿ee wnStdÈf￿tt￿ thwr pwt
8 Control
The uThJerlhè dlhe Tnèstees.

BurrERFLY THYROID CANCER TRUST
Rogistered Charity number: 1108932
FINANCIAL ACCOUNTS FOR THE
YEAR ENDED 31ST DECEMBER 2025
DRAYCOTT & KIRK
CHARTERED CERTIFIED ACCOUNTANTS
92 Westgate
Guisborough
Cleveland
TS14 6AP

BUThERFLY THYROID CANCER TRUST
SUPPORT GROUP INFORMATION
YEAR ENDED 31 DECEMBER 2025
Trustses:
Mr F St8fft)rd F.R.C.S
Mr J Salter
Mr D Farnell Bsc
rs D Golighuy
Mrs R Newlon
Addres5
PO Box 205
RovAands Gill
Tyme & Wear
NE39 2WX
Bankeys
Lloyds TSB
Wesl Street
Gateshead
Accountants
Draycotl & Ifjrk LLP
Chartered Cedified A¢￿Un￿ntS
Cleveland HoL￿e
92 Westgate
Guisborough
CLEVELAND
TS14 6AP
Reg. charity no.
1108932
Page 1

Ind•pondent Examlnerfs Report lo the Trustees of Butterfly Thyrold ¢ancerTrust
I report on the accounts of the charity for the year ended 31 De¢emtxr 2025 are set out on pages 3 to 6
Re$pe¢tive responsibllfjiies of iTUStèes and examlner
The chanws trustees a￿ reswnsible for the preparab.on of the accounts. The chaiTty's trustees eonsider th8t an
audit is not required for this year under Se￿￿ 144121 of the Charitses Act 2011 (the 2011 Acll and that an
independent examinat￿Th is needed.
It is my responsitylty to".
exarnine the accounts under sectw 145 01 the 2011 ACL"
follow the procedu￿ Lgid do*n in the general 05￿￿10nS gven by th8 Charity Commission under section
14515llbl of the 2011 Act- and
state whether parbDJlar matters have come to my attention.
Basis ot independent ex3mlne¢s report
My examination bWd5 carried out in &￿rdance wilh the ger￿ra1 Directi￿$ 9iven b"1 the Charity Commission. An
examination i￿ludeS a rewew of the accountsng re<x)rds kept by the charty and 3 comparison of the acrx)unts
presented wlh thtsse records. K also indudes cwS1derat￿n of any unusual itèms )r disdosures in the account5,
and seeknng explanations frorn you as trusiees con￿mIng any such mattets. The prO￿dU￿$ undertaken do not
provide all the ev￿en￿ that would be required in an audit and ¢onsequenUy no opinion is given as to whether the
awounts present a and fair viewf and Ihe re¢￿ is Iirnited lo those tnatiers se out ￿ the stslewnent below.
Independent exzminels statsment
In Connection wth my examinab"on. matier has corne to my aitention..
which gNes rne rea$￿able cause to believe Ihat. in any material respect. the requiretnents..
to keep a¢¢ounting re(xYds in accordance with se¢ti(ffi 130 of U)e 20. 1 ACL and
to prepare accwnts wh￿h vAth the atsx)unting records ard ts)mrAy ￿th Ihe acc(yJnts"ng
requirements of Ihe 2011 Act
have not been met.. or
to which. in my opin￿n. attenlwjn shwkl be dra*Tt in ¢)rder to enable a prope. understr￿ing of the accounts
lo be read)ed.
C N Mason
Charter8d ce￿fiedACc0u￿￿nI
Dray¢oll & LLP
Clevelanrl House
92 Weslgate
Guisborough
Cleveland
TSt4 6AP
Dète

BUTTERFLY THYROID CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2025
istered chari
numb8r
1108932
Charit￿5 prfnclpal address
PO Box 205
Rowlands Gill
& Wear
NE39 2WX
Narn•s of Charity tru$to05 who manage the tharity
Mr F Slafford F.R.C.S
Mr5 0 Golight
klr J Salter
Mr D Famell Ssc
Mrs R Ne*tyn
Structure. govèmance and manayèmtrnt
Goveming docurnent
Tntst D￿d
ConslilutKJn
Tw5t
Trustee Se￿tr￿ rnethod5
Twu#e￿ S￿￿t&d ty ￿81*19 Tru&le88
Objectives and activitie5
To allevrdle Ihe physical. p5ychdogical OTfinanoa drfficuthes ￿ hardship of t*ople 8fl8cl&1 by thyroid cgncer.
To promote e(f￿atiOn about thyroKI cancer io membe[5 of the wblic 81 latge.
The charity provides.. A ￿ed￿al￿ tdeph[K￿ helpline.
Holidays
A buddy System
Awareness Even's
Palienl infotmaiion sb*ks
Research Grants
Webstle
Pal*nt infom)atKn OVD
On site dinical supF
Suppressi(* Catts
H05ptsI
Conferentè Pressntations
Facilitates palEnl intr￿1￿5
RAI r￿[￿ access￿e$
Atlends thYr￿d tsncÈr (J)nfÈrencÈs
ClintAI Trials *Jiqsory role
Neith of pabent SUPkVt cwtac
Patiènt infom)ati()n advisory ro58
RAI r(K>m renovati￿SIrwdrnp
NICE TC cornmi55ioner- nati{￿*1 TC guHlelines
Provision of IM>liday Tesple a￿0￿m￿tion
pat￿ni InfcyMa￿) Manag8meni posilw for S¢ottish Thyrmd Lan￿r NetwDrk
Vdunteers and 9mup members we involveo ￿ fuTrJ raisiro ackn¥ril*s. They altend anc wovtde infoxrnatK>n
star￿S at rÈlevant eonferertts.
Ptye 38

TTERFLYTHVTr
10 CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2t125
hk•v•rn•nts und•rtsk*n forth* blk b•n•fft kn r•latloDtoth•
KF.. MHS Engignd rtreing fDrPthyvtsATCVS
KF.. Workry party n￿tyng for ION paper
KF." L@tiorfoi David forthy3f patients
KF.. Pembro rneeting
KF.. ThyNd 9foup meetn9 NCRI
KF. Omar Hilmi (und￿￿ d￿U55￿n ￿ eye. 5ug9e51 BTF partfw
KF Cal with Nèd and Nikits iè WTC Boston- BTCT to P￿t￿j￿j N*ts'¥tr￿d * Subsist￿. to be resp)nthloforQR ¢fylerxd5 and en5Uri
4dly's film irMJwn on monirrt at venue.
KF.. New pèikni InformaDon rkn I kI0￿Y'S￿￿}*x￿￿ WTC ar￿ N*Aa brewewl 8TCT
KF." HOT Trial rneebn9
KF.. Lauren Hullell
KF.. Investigated S￿￿n9 new p3kn1 rkn in N*¢asOe io a sdecl aLthn
KF-. Splpgr¢atinib Subms8k)n for SMC
KF.. Individualisation ol W room IorlJlèAINCCC
SF.. Preparation fLY-Rarity Lif9 k4aga2inè" on BTCT
KF.. HOT trial meeti
KF". DiSCuS8N)n ￿th W Banes in fva*undErfwdng %•*￿tY￿ a1re•Jy krmw abNrt
KOIOS g¢ftwarèl.
KF." Mollys lilm to bè shovn) Cihwress Boslon 3￿j $rAY￿st1POrDr BT,=T rwe5entative. to b¢
responsiblg fDr dL3$9Minati￿ of n*wQR ¢￿¢¢ardS lo alt￿￿90$.
KF.. Farylilawd Dabenlwth rarn futhn forllrring
KF.. FaQI￿ated supportlor Norulampton pabèni%%knvAsnlgr¥¢n any irdtyNthI at d￿0￿$
KF.. Press release for ION
KF.. BAETS weknnar
KF.. SMC submisgon ar￿ r￿eti￿ for$￿th
KF." S￿pe1C3t￿ib PACE meebng for Smuan
KF." NCRI meèting. diSCUSSk)n iegaitsing whethw Yatjabs. rts?
KF". ION documents fnalize
KF. Nwi irial co￿ng Or Ca￿￿8w(WAJ- BTCT ortered tobdp*ith ￿ti￿nt •l¥d￿nemaTrj inftin*
KF Protiatied NCRI mtttsng. Di5DY&s￿ns both nationalaTh* r8searr*trA&.
KF." furthErdiscv8sw SLPI agonistsaThJ ihyrowj piinf¢xmakn
KF.. Press re ION rosutts
KF." Family suppor1f0r9￿rp￿ luw metss
SF." Rarity Lrfe mag￿lne arbde publis
KF. First meetiro IIY Dew generic ot info 10 rep￿t￿h￿C•1
Nikl Chanderatte￿ed Wortd CONGRESS*ith"MyThymM1 kl8. IKWVsflml
KF Disru$*¢n r*gardI￿ upgrades to paediatrK rowm alThe Chrisbe and GL3>J¢y
KF.. Further workwilh Play Team alChnst*io do paedkitrK ror*Tr5wJ¥so knks&yGlw* e*knhed
KF. Moltys flrn ￿ be broadcasl on BAETSAPPftt¢(￿lerertt 2025
KF." Pr￿￿￿tin Imperial ediege patients
KF." tn*8tyThg to di%CuSS new Thr￿Ule InvestsgatKn gidelhgs
KF.. Gksgow paediatric Pat*nt mom
KF.. Aicja's PHD kyoied Pu￿lsh￿d in BKU-Faetors afteeting ty￿d wrvr•tyS"
KF." further Supmfor 8alrajs family trèaknènt
KF". DISeu$Sion Dr King Howoty warding 8rt￿ de¥etyj￿aid in th>Tc*J de¢tsiM makr
KF." NorthEasi Enierpnse Award
KF." Further dts¢USs￿nS Amy 8arnes. sheffi￿ NWR ts. torethce roJmbpi(rf FNAS
KF.. Molly's film lor Smi*y Am
KF.. Molly's film Sh(￿￿$%￿¥ tor Na1￿￿1 TV fikn
KF.. Wanllng multi Cent￿ 8TCTtO 5UPPryt*ilh paliÈ￿t5rnty. ffe t0bestakeh0W.￿fjYw*t NIHR gr8nl.
KF." kIÈè￿fftg Nèil Shama ID d￿5$ al 5ur¥elLywvSSury*l<¢ky* rtsk

BirrYERFLYTHYROfl CANCER TRUST
TRUSTEES ANNUAL REPORT
R THE YEAR ENDED
TDE
EIIBER
Summa
otthe mafj
H.. pelrenl mediqÈ)roflerfrKJ Suoptrtto Thutsdaysthrnw emal. tèAt. mèthgsand and
INe m¢eting$ Psthenlto pJsitv)n ￿ 8TCT. Asssts ￿ I￿1 r{￿￿ foryoury pabetts.
SF.. AdminY&traknrfor 8TCT. respmgble for sufventsupfl￿s￿f1x¢ c￿e￿rts. ￿ar￿ts, sta1¥￿et￿ wfvEtb*nyl8w8¢ness
Suwlies. liaising With nabonal io BTCT Patient ￿f0￿￿￿tion trtdk*. Ète￿ntS and fin3Th￿. chath. CDmmiSSiOll and HMRC
goveErLancB". fundr¥iwn9". tT. Wge bookitt95 and rtwntsnanre." InvifvempniiigtÈMsthmtssH￿s ￿d¥1￿u￿ rth*tsws wbnenl to his role.
brovlatlons..
Kate FarThe11
Stev￿ Fam
Arny HorlD
Euan Presl
Èuttwfy Th￿QKI Carw Tnk5t
ScotD5h MedKal Comrnittee
Na￿n￿l lnsti￿le forClinic* ExcefAKe
Oabralenib &Trar￿￿knib
Thyi(xd CanC@r
Uh￿￿￿1ty ¢¢iiègè LorRltr) Hospit*
Bnlrsh AssQLxal￿ ol ThIT<*J
k>dine or Not
EP
BTCT
SMC
￿￿E
D&T
TC
U¢LH
BAETS
ION
uss
ultrasou￿ Stan
Pa1￿￿{& Pthlic Involvement
Brrfa5h Th￿K* Favtsdatity)
Brilish ThyroKfAssocKgt
Radioactive Trealm
Teenage & Young
Newtasle w)on Tyne Hosptsts rjwity
Naknona In$biute fot Heayth Re5earfh
or NDI
Ad¥anre# Car
wor￿ Thyrokl c￿r¢0¥¥Jr￿s
Cancercare Centre
Jon Wadslèy
Ka￿ GaTCÈz
Kalè Néwbokrt
CwwR9¥9arth UK
BTF
RAI
TYA
NUTH
NIHR
HOT
ATC
WTC
NCCC
Jw
KG
KN
CRUK
PwJ?3

r6LY YTrIYRUD CWXER TR
FOR THE YEPA ENDE031ST
D¢sitywÈdknnd¥
£10.00). Buttethy Lod9•
£7.500- PatentSUFWrt e0MaLg
t25.￿. thw9n&t6dlO a<kniiistrth0 ¢(6ts.
ance ofttie rts*0fv68 kn $[￿￿Tr ryéwtartdfwe
F¥ll NaTh•
Far￿*
Trtr51ee
)% L4.L
P** 3d

YTHY
70.CQO
78.512
1.183
13.1YJ
141894
7e.512
1.1t3
13.1(9
1418É4
Gfft Ak#
1.614
17.134
S1.046
Dir*t(**llabl• exwthtyi•
Payr¢U
Pr0fKtsSKi￿ lees
TeWc4ie
71228
43.035
43.ts
Z013
1,71
1.377
1.X7
T.18
2.&*
8.&11
Irtswarkce
3.424
1.￿7
M¢*or & ¢￿tr
R8Fw$ 3rKI marlenar
8.841
12
437
l>arls
6.6iS
1.9%
Accountsncy
Profft (*?
Deve￿￿ts0Th
23.6
167.a
187.421
1T3.233
{24 5271
791.￿7
124.:271
117.813
Total fur4$
7.428
878,ll5

BurrERFLY THYROID CANCER TRUST
BALANCE SHEET AS AT 31ST DECEMBER 2025
FIXED ASSETS
Land & buildir,g5
Fixtur8s & e(yJipment
130.0511
3.46'3
153.0
1.677
CURRENT AS
D&btors
Bank Accolmls
Cash In Hand
723,461
597 724.1)58
597 720,689
854.203
878,735
RRENT
ABILITIES
ETA
ET
8S4208
878,735
ND
Restricted Funds
Un￿Stricted Funds
Designated funds
786.7
87.428
791.307
87.428
854.2Jg
878,735
Those Financlal Slatem•nts war? approved by the Twste•s on
e￿ Lt.L
Slgn•d
Full Name
Oanièl Farnell
Tru5teg
Page S

ntin
The ¢hartty conslituies a rMJbli¢ benvfit eTrtity 8s dofffted by FRS 102. The Ifftanrsl slale￿At￿ hale
been prep8red in ac(YJFdance Accodnlirtg Rewrtsng by Charibe$." Staten*nl of Recornrn8nded
pratt￿ applicab* 10 chaiit¢s prepa￿￿ theK 8ruJunts in accotd8ncè wAh Ih? Fin&ncial Repurting
S18né3rd 8ppIIcaoiÈ in Ihe UK of Ire￿[￿1 IFRS 1021155ued oft 16 Jufy 2014135 usxlat
th1o￿h u4xJale bJHetin 1 publish 2 Fe￿ary 20161, the F¥)antsw Reportiw Stai dards appb(able
in the United King￿VIn and Rep￿* of Ire12rK1 (FRS 10218nd LIK Generaty 2uxOail pfaEtKe as a
apr￿￿$ from 1 January 2015.
The has 8ppliaY U¥Klote 1 as put4bhed on 2 FeL¥uary2016 ar•J does hKbJe
C8sh now s¢atemert Dn the #rounds apFty'ng FRS 102 SeclffJn 1
The F+nanaal staten￿niS are ¢)n a go￿9 coTKern basis undwtbe ty￿ corTrwil￿n.
The @nantAal statements are r<eserd&J 15 the ftÉn(AiMal rJJrTency If the (*athyand
roundeo lo the nearest ￿u￿￿.
The s¥anifirAni a¢(x)tsntnQ POIWS in the prepar8tw)n oflhe finanual 518t¢m8nts are set wl bekn¥.
These politr4es have been aPF￿ to al years un*5S Othwise ￿at￿l.
Funds
Unrestrictsd ftJnd5 a￿ awJtlatAe fotuse at ￿Cre￿O￿ of Ihe tsvstee5 in furthernno of the general
objeciwes ofthe charity al￿ which hav8 destyjnated for other purrxjses.
ReStrF￿éd futaas arE fvrvjs whtch are 10 b? accor￿90)ce wrth 5P8ryfi¢ restrSEI ons Irry)s*l by
donors orwhicty h8¥e been r8i5ed try the challty lorpartioJtar puTroses. The rxjst o 2nd
adminisifaling l￿d$ are Charged agautst the The and use cf each rE5twxl8d
Jnd ts Sei In the note5 to Ihe acctyJnts_
grAnts 4nd %￿nIary mCOm8 accounw for SVD55 recoTheble. as És Ih8y
ate ¢apalAe olfinancial measureft*nL
All ts gccouDted ft)rg¢uss of VAT, inojr¥ed.
Prowsiory fordeprnu8bon olfi*d &ssets hehy for use by the d￿rIty i* m8Oe ut anniiHI r8les
cal¢ul#ied lo spread the cost Oess ant￿paled reskjual waluel oleach a..￿et
oKer 115 expeued tseful lrfe. dewewbon r8tes >Jr￿n1￿ Bi use IDr fi)*d asset$ hepj for use
by the Ghanly ar& 15% on strawam frJrFi¥tU￿5 and and 15% rèJur3n) b*rte (or
I9￿d a￿] tyJlk1iws_
Ros8Thes Kthy.. The Irustee5 ha¥8 0)ft5kJerett Ihe ol needed kn othrlo
mainipAn the orvjothg 8fATh￿tr$ ofthe L*anty The INslets c41￿￿jertha1 an
reprESent￿g ts¥elTr*t months rA)5ts atE 8ttvsatle.
2a Grants
2025
syn￿￿5
70.0
70.000
Detals ofgr8nts are note 4.
Pag8fj8

TfERFLYTHYROID CANCER TRUST
Not￿ to theAccouTr)ts forthe
rfod 31st Dvcember2025
2b GrJnts mad•
Researth Grart. unP￿r$￿ofsh2ffj￿d
ImprovemEnls to RAI rrKths
3T•n
Ib￿ Flxed Assets
Flxtures &
Hofilla
Bir
2.397
2.532
4.929
182.397
during IF*pwiod
180.000
184.929
DepretyalvJn Bir
Depreu3l￿n for Ihe
DepreualK)n Clf
720
740
1.460
27.720
23.
51.410
49.950
Nel bwk at 31 Dec¢r(bw 2025
3.469
1￿.050
133.519
4 Furtds
Transfer
Openi
rtsi
fuThls
Unrestrlct•d funds
791.307
142.894
766.780
Rostri¢ted funds
Deslgnat¢d Funds
87.428
87.428
al Donati￿S frtym Sy[W￿ to be used fu Researth (>anl A¥Rrd, imwowements,
bLrt eX￿U￿¥ety
5 Amaty$l$ ol lun*Js by ass•ts
Unrewc￿ Re5tsicterf DesKJn8W Total
Fixed assets
Current assets
Current liabilibes
133.519
631261
133.519
720.639
87.428
766.780
87.428
8Y.2J8
6 Transactions with tvllstee's and Mnr*cled
Durifig the ￿ the￿ ¥¥as no trar*wAon5 vnth Tntstees u ¢onn*tsJ P￿sOr￿ iNAudI￿ r￿￿rat1)n expense6.
7 Twustee Ind•mn
Insuranc•
During th8 yyar. Insurw¢*w3s pwthased to th￿￿ty￿*(Y￿nMit￿ee wnStdÈf￿tt￿ thwr pwt
8 Control
The uThJerlhè dlhe Tnèstees.