BUTTERFLY THYROID CANCER TRUST
Registered Charity number: 1108932
FINANCIAL ACCOUNTS FOR THE YEAR ENDED 31ST DECEMBER 2022
DRAYCOTT & KIRK CHARTERED ACCOUNTANTS
92 Westgate Guisborough Cleveland TS14 6AP
BUTTERFLY THYROID CANCER TRUST
SUPPORT GROUP INFORMATION PERIOD ENDED 31 DECEMBER 2022
Trustees:
Address
Mr F Stafford F.R.C.S Mr R Bliss F.R.C.S. Mr J Salter Mr D Farnell Bsc Mrs R Newton PO Box 205 Rowlands Gill Tyne & Wear NE39 2WX
Bankers
Lloyds TSB West Street Gateshead
Accountants Draycott & Kirk LLP Chartered Accountants Cleveland House 92 Westgate Guisborough CLEVELAND TS14 6AP Reg. charity no. 1108932
Page 1
Independent Examiner's Report to the Trustees of Butterfly Thyroid Cancer Trust
I report on the accounts of the charity for the year ended 31 December 2022 which are set out on pages 3 to 6
Respective responsibilities of trustees and examiner
The charity’s trustees are responsible for the preparation of the accounts. The charity’s trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.
It is my responsibility to:
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examine the accounts under section 145 of the 2011 Act;
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follow the procedures laid down in the general Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act; and
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state whether particular matters have come to my attention.
Basis of independent examiner's report
My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a “true and fair view” and the report is limited to those matters set out in the statement below.
Independent examiner's statement
In connection with my examination, no matter has come to my attention:
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1 which gives me reasonable cause to believe that, in any material respect, the requirements:
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to keep accounting records in accordance with section 130 of the 2011 Act; and
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to prepare accounts which accord with the accounting records and comply with the accounting requirements of the 2011 Act
have not been met; or
- 2 to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.
C N Mason
Chartered Certified Accountant
Draycott & Kirk LLP Cleveland House 92 Westgate Guisborough Cleveland TS14 6AP
Date 10/05/2023
Page 2
BUTTERFLY THYROID CANCER TRUST
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TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2022
Registered charity number 1108932
Charity's principal address PO Box 205
Rowlands Gill
Tyne & Wear
NE39 2WX
Names of Charity trustees who manage the charity
Mr F Stafford F.R.C.S
Mr R Bliss F.R.C.S.
Mr J Salter
Mr D Farnell Bsc
Mrs R Newton
Structure, governance and management
Governing document Trust Deed
Constitution Trust
Trustee selection methods Trustees selected by existing Trustees
----- End of picture text -----
Objectives and activities
To alleviate the physical, psychological or financial difficulties or hardship of people affected by thyroid cancer. To promote education about thyroid cancer to members of the public at large.
| The charity provides: | A dedicated telephone helpline. | Holidays |
|---|---|---|
| A buddy system | Awareness Events | |
| Patient information packs | Research Grants | |
| Website | Patient information DVD | |
| On site clinical support | Suppression cards | |
| Hospital visits | Conference Presentations | |
| Facilitates patient introductions | RAI room accessories | |
| Attends thyroid cancer conferences | Clinical Trials advisory role | |
| Network of patient support contacts | Patient information advisory role | |
| RAI room renovations/revamp | QR Code cards | |
| NICE TC commissioner – national TC guidelines | ||
| Provision of holiday respite accommodation | ||
| Patient Information Management position for | Scottish Thyroid Cancer Network |
Volunteers and group members are involved in fund raising activities. They attend and provide information stands at relevant conferences.
Page 3a
BUTTERFLY THYROID CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2022
Summary of the main activities and achievements undertaken for the public benefit in relation to the objects KF: HOT trial committee meeting KF NCRI Meeting Mount Vernon RAI Room completed KF NICE Meeting 12 KF Discussions with Jason Ramasingh re Scoop KF RSM Council Meeting KF PIL Investiagting Thyroid Nodules KF NICE Guidelines Patient Information KF Royal Marsden Delphi Project Training with Amy KF Chris Nutting discussion re [patient meeting with RSM KF Scottish Cancer Network meeting 1 KF accepted position of bord member to above KF Letter of support to Omar Hilmi to get CNS KF Discussions with Omar Hilmi re new paeds dedicated unit Glasgow KF NICE Meeting 13 KF Delphi project survey KF Discussions with UCLH re provision of things for paed patients KF Provided things fo paeds in N CCC a nd UCLH KF Patient info for new RAI Guidelines KF NCRI Meeting two parties interested in Paula Clayton fund KF NICE meeting 14 New patient support Maha Phillips HoT Trial meeting KF RAI room for paeds in Leeds KF SCN Meeting leading on pt info KF meeting re filming HOR KF NICE meeting 15 KF International Woman's day interview Interview with final year journalism student - to be aired on radio and press- Merseyside Live KF Prof Will Drake - new thryoid theatres in St Barts Delphi Project - round 2 KF RAI guidelines completed KF discussion with Oxford Churchill and Cheltenham re RAI rooms KF support letter for Will Darke re. consolidation of thryoid surgery at St Barts KF Discussion with RSM re. Pt/ doctor forum prior to World Thyroid Congress 2023 KF International board meeeting re. Lenvatinib guideance KF Scottish TCN RAI and folow up meeting KF Scottish TCN surgical meeting KF HoT trial launch meeting LODGE PURCHASE Travel expenses provided for pt to travel to Gloucester for RAI KF Scottish meeting - all groups KF meeeting with Carli of INFLECT re. radio nucleotides supply for UK production - recommended round table discussion with JW, KN, MS in June KF discussion with Saba and Fahad re production of leaflets outlining procedures for long term calcium monitoring post surgery KF intro to new Scottish network manager - Anna Morton KF -request from Ding re Delphi project to facilitate patient recruitment KF - refused to endorse NICE decision to include 'consider' rather than 'offer' in guidelines KF - co-author forRam Moorthy paper on thryoid nodules KF - co-author in Pavi Mnjam paper on approach to low risk differentiated TC KF - HoT trial meeting Abi Phillips added as patron for BTCT SF - Butterfly Lodge booking system set up KF - further work with UCLH re RAI paediatric rooms KF - RAI rooms in Oxford finally given the green light KF - training with Amy TV's and stands provided for NCCC KF - asked to write a chapter for UKM's new book KF - invited to host patient / doctor forum prior to TC world Congress in June 2023 KF - TCN Scottish meeting - MS praised BTCT for RAI room uplifts KF - Omar Hilmi requested assitance in highlighting importance of CNS for TC patients KF - zoom calls with UCLH KF - ZOOM calls with Amy and patient New RAI guidance published in Journal for Oncology through BTCT funding KF - SCN call to confirm adoption of RAI guiidelines across Scottish network KF - filming with CRUK KF - NICE call to confirm acceptance of BTCT's request to 'offer' patients Thyrogen Holiday award QR codes for patient information film and website - decision as to how to use these to follow (continued on page 3c)
Page 3b
BUTTERFLY THYROID CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2022
Summary of the main activities and achievements undertaken for the public benefit in relation to the objects continued…
AH - continues to work one day per week as TC patient advisor
AH - liaises with KF and SF re. administrative issues eg lodge bookings, stationery provision etc
AH - presented at AGM
AH - over 100 contacts in 2022 - asked to provide data for 2023 AGM
SF - corresponds with Allerthorpe Country Park regulalry with updates to lodge bookings
SF - liaises with AH and patients to organise booking dates
SF - corresponds with clients to securure bookings
SF - administers donations for lodge bookings
SF - administers reciepts to donators
SF - administers final year accounts and general charity procedures
Abbreviations:
| KF | Kate Farnell |
|---|---|
| TSH | thyroid stimulating hormone |
| BAETS | British association of endocrine and thyroid surgeons |
| CNS | clinical nurse specialist |
| NICE | National Institute for Clinical Excellence |
| NCCC | Newcastle Centre for Cancer Care |
| TCN | Thyroid Cancer Network |
| TC | thyroid cancer |
| UKM | Ujjal Mallick |
| RCP | royal college of physicians |
| HOT | hemi or total |
| EORTC | European Organisation for Research and Treatment of Cancer |
| UCLH | University College Hospitals, London |
| CRUK | cancer research UK |
| NCRI | national clinical research institute |
| RAI | radioactive iodine |
| LID | Low Iodine Diet |
| MS | Mark Strachan |
| PIL | Patient Information Leaflet |
| KN | Kate Newbold |
| DK | Dae Kim |
| ATC | anaplastic/ advanced thyroid cancer |
| BTA | British Thyroid Association |
| AH | Amy Horton |
| Pt. | Patient |
| BTCT | Butterfly Thyroid Cancer Trust |
| SCN | Scottish Cancer Network |
| RSM | Royal Society of Medicine |
| WTCC | World Thyroid Cancer Congress |
| JW | Jon Wadsley |
| AGM | Annual General Meeting |
| SF | Steven Farnell |
Page 3c
BUTTERFLY THYROID CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2022
Reserve Policy
A designated fund of £100,000 relates to monies which is to be used to maintain holiday accommodation for patients. This will incorporate the ‘Michael Crawley Award’
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£20,000 for improvements to hospital rooms
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£15,000 pledged for 2 year PhD project commencing summer 2022
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£47,000 unrestricted fund (Paula Clayton Fund) to be used for all TC patients.
The balance of the reserves is for the sustainability of the trust and for future projects should income not be sustained in future years.
Review of financial Postion at year end.
Signature D Farnell Full Name Daniel Farnell Position Trustee Dated 10/05/2023
Page 3d
BUTTERFLY THYROID CANCER TRUST
Statement of financial affairs for the year to 31 December 2022
| Note Incoming Resources Grants 2 Donations Subscriptions Gift Aid Deposit account interest Total Incoming Resources Expenditure Direct charitable expenditure Payroll Professional fees Telephone Poetry Book Postage and stationery Insurance Advertising Motor & travelling costs Repairs and maintenance Sundries Awards Grants 2 Holiday Lodge Costs Conferences Phd Sponsorship 2 Accountancy Total Expenditure Transfers between funds Net Incoming/Outgoing Resources Total funds brought forward Total funds carried forward __ |
Unrestricted Funds 70,000 60,975 - 905 181 ___ 132,061 __ 66,960 30,766 2,355 - 3,134 1,092 1,689 257 748 1,440 1,066 - 2,839 - 15,860 390 _ 128,596 _ 47,172 _ 50,637 366,259 _ 416,896 ____ |
Restricted Funds - 7,172 - - __ 7,172 _ - - - - - - - - - - - - - - __ - _ (47,172) __ (40,000) 40,000 __ - _____ |
Designated Total Funds Funds - 70,000 - 68,147 - - 905 - 181 _____ - 139,233 _____ - 66,960 - 30,766 - 2,355 - - - 3,134 - 1,092 - 1,689 - 257 - 748 - 1,440 - 1,066 6,693 6,693 2,839 - - 15,860 - 390 _____ 6,693 135,289 _____ - _____ (6,693) 3,944 101,827 508,086 _____ 95,134 512,030 ______ |
2021 120,000 90,334 - 1,158 44 ___ 211,536 __ 66,960 25,924 1,223 3,449 1,671 541 24,193 - 3,548 1,174 362 27,098 - 120 10,000 360 __ 166,623 ___ - __ 44,913 463,173 __ 508,086 _______ |
|---|---|---|---|---|
__ |
_ |
__ |
Page 4
BUTTERFLY THYROID CANCER TRUST BALANCE SHEET AS AT 31ST DECEMBER 2022
| FIXED ASSETS Land & buildings Fixtures & Equipment CURRENT ASSETS Debtors Bank Accounts Cash In Hand CURRENT LIABILITIES NET ASSETS FUNDS Restricted Funds Unrestricted Funds Designated funds |
NOTE £ £ £ £ 3 180,000 3 - - - - 331,435 507,482 595 332,030 604 508,086 ________ 512,030 508,086 - - _ _ 3 512,030 508,086 _ _ _ _ 4 - 40,000 4 416,896 366,259 4 95,134 101,827 512,030 508,086 _ _ _ _ 2021 2022 |
|---|---|
These Financial Statements were approved by the Trustees on
Date 10/05/2023
Signed D Farnell
Full Name Daniel Farnell
Trustee
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BUTTERFLY THYROID CANCER TRUST
Notes to the Accounts for the period ended 31st December 2022
1 Accounting Policies
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a. The charity constitutes a public benefit entity as defined by FRS 102. The financial statements have been prepared in accordance Accounting and Reporting by Charities: Statement of Recommended practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued on 16 July 2014 (as updated through update bulletin 1 publish on 2 February 2016), the Financial Reporting Standards applicable in the United Kingdom and Republic of Ireland (FRS 102) and UK Generally accepted practice as it applies from 1 January 2015.
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The charity has applied update bulletin 1 as published on 2 February 2016 and does not include a cash flow statement on the grounds it is applying FRS 102 Section 1A.
The Financial statements are prepared on a going concern basis under the historical cost convention. The Financial statements are presented in sterling which is the functional currency of the charity and rounded to the nearest pound.
The significant accounting policy's applied in the preparation of the financial statements are set out below. These policies have been applied to all years shown unless otherwise stated.
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b Funds Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objectives of the charity and which have not been designated for other purposes. Restricted funds are funds which are to be used in accordance with specific restrictions imposed by donors or which have been raised by the charity for particular purposes. The cost of raising and administrating such funds are charged against the specific fund. The aim and use of each restricted fund is set out in the notes to the accounts.
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c All grants and voluntary income are accounted for gross when receivable, as long as they are capable of financial measurement.
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d All expenditure is accounted for gross of VAT, and when incurred.
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e Provision for depreciation of fixed assets held for use by the charity is made at annual rates calculated to spread the cost (less anticipated residual disposable value) of each asset evenly over its expected useful life. The depreciation rates currently in use for fixed assets held for use by the charity are 15% on straight line for Fixtures and equipment.
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f Reserves policy: The trustees have considered the level of reserves needed in order to maintain the ongoing activities of the charity. The trustees consider that an amount representing twelve months running costs are advisable.
2a Grants Receivable
| Grants Receivable | |
|---|---|
| Syncona David Clayton |
2022 2021 £ £ 70,000 80,000 - 40,000 |
| 70,000 120,000 |
Details of grants are included in note 4.
Page 6a
BUTTERFLY THYROID CANCER TRUST
Notes to the Accounts for the period ended 31st December 2022
2b Grants made
| **3 ** | Research Grant - University of Sheffield Improvements to RAI rooms Tangible Fixed Assets B/f Additions during the period Depreciation for the year Net book value at 31 December 2022 |
Holiday Lodge - 180,000 |
£ 15,860 6,693 |
|
|---|---|---|---|---|
| 22,553 | ||||
| Total - 180,000 |
||||
| 180,000 | 180,000 | |||
| - | - | |||
| 180,000 | 180,000 |
4 Funds
| Unrestricted funds Restricted funds David Clayton b) Designated Funds a |
Opening balance 366,259 |
Transfer Incoming between resources funds 132,061 47,172 |
Outgoing resources (128,596) |
Closing balance 416,896 |
|
|---|---|---|---|---|---|
| 40,000 | 7,172 (47,172) |
- | - | ||
| 40,000 | 7,172 (47,172) |
- | - | ||
| ) | 101,827 | - - |
(6,693) | 95,134 |
a) Donations from BACIT to be used for Research Grant Award, holiday lodge and hospital improvements, but not exclu b) It has been agreed with Mr Clayton that this fund no longer needs to be used for the sole purpose of helping people w advance disease, so has now been transferred to unrestricted funds
5 Analysis of funds by assets
| Fixed assets Current assets Current liabilities |
Unrestricted Restricted Designated Total 180,000 - - 180,000 236,896 - 95,134 332,030 - - - - |
|---|---|
| 416,896 - 95,134 512,030 |
6 Transactions with trustee's and connected persons
During the year there was no transactions with Trustees or connected persons including remuneration or expenses.
7 Trustee indemnity insurance
During the year, insurance was purchased to indemnify the committee against default on their part.
8 Control
The charity is under the control of the Trustees.
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