BUTTERFLY THYROID CANCER TRUST
Registered Charity number: 1108932
FINANCIAL ACCOUNTS FOR THE YEAR ENDED 31ST DECEMBER 2021
DRAYCOTT & KIRK CHARTERED ACCOUNTANTS
92 Westgate Guisborough Cleveland TS14 6AP
BUTTERFLY THYROID CANCER TRUST
SUPPORT GROUP INFORMATION PERIOD ENDED 31 DECEMBER 2021
Trustees:
Mr F Stafford F.R.C.S Mr R Bliss F.R.C.S. Mr J Salter Mr D Farnell Bsc Mrs L Abbs RN Mrs R Newton
Address
PO Box 205 Rowlands Gill Tyne & Wear NE39 2WX
Bankers
Lloyds TSB West Street Gateshead
Accountants
Reg. charity no.
Draycott & Kirk LLP Chartered Accountants Cleveland House 92 Westgate Guisborough CLEVELAND TS14 6AP 1108932
Page 1
BUTTERFLY THYROID CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2021
----- Start of picture text -----
Registered charity number 1108932
Charity's principal address PO Box 205
Rowlands Gill
Tyne & Wear
NE39 2WX
Names of Charity trustees who manage the charity
Mr F Stafford F.R.C.S
Mr R Bliss F.R.C.S.
Mr J Salter
Mr D Farnell Bsc
Mrs L Abbs RN
Mrs R Newton
Structure, governance and management
Governing document Trust Deed
Constitution Trust
Trustee selection methods Trustees selected by existing Trustees
----- End of picture text -----
Objectives and activities
To alleviate the physical, psychological or financial difficulties or hardship of people affected by thyroid cancer. To promote education about thyroid cancer to members of the public at large.
| The charity provides: | A dedicated telephone helpline. | Holidays |
|---|---|---|
| A buddy system | Awareness Events | |
| Patient information packs | Research Grants | |
| Website | Patient information DVD | |
| On site clinical support | Suppression cards | |
| Hospital visits | Conference Presentations | |
| Facilitates patient introductions | RAI room accessories | |
| Attends thyroid cancer conferences | Clinical Trials advisory role | |
| Network of patient support contacts | Patient information advisory role | |
| RAI room renovations/revamp | ||
| NICE TC commissioner – national TC guidelines | ||
| Provision of holiday respite accommodation |
Volunteers and group members are involved in fund raising activities. They attend and provide information stands at relevant conferences.
Page 3a
BUTTERFLY THYROID CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2021
Summary of the main activities and achievements undertaken for the public benefit in relation to the objects Patient information DVD dissemination is ongoing and still a popular resource for patient and treatment centres. Online availability is becoming more popular. Subscription forms to be revised at next print to include passcode and new patient support contact telephone number. Labels added to existing forms with these details. KF: Ram Moorthy thyroid nodule working party KF: advocate for patient in Whitby to be seen by Newcastle consultant KF: attended TC radiology conference KF: to provide patient info for LM thyroid genomics meeting Funding request from Sheffield ( Saba + Ovie) re thyroid nodule diagnostic tool. Application accepted in principle . Start date early 2022 – asked to re-submit application within 6 months of commencement date in compliance with charity funding award stipulations. KF: NICE meeting KF: BAETS webinar on day case thyroid surgery KF: NCRI meeting Rebekkah’s film released KF: to lead on patient information for MB’s research on LID and iodine levels KF: involved in recruiting patients for CE at Bristol Uni KF: presentation at KN’s TC Conference with DK re. HOT trial Hotel accommodation paid to allow mum to attend her young daughter’s RAI treatment in Leeds Co- applicant for ATC to be included in genomic testing KF: initiated work on RAI restriction guidelines as part of NCRI sub group KF: NICE meeting KF: review of HOT trial patient info. KF: update from Alicja and Jamie (Northumbria Uni – PHD project) : to be submitted in September; subsequently reviewed and awaiting publication ~ July 2022 KF: ongoing discussions with UCLH & Birmingham re. RAI upgrades KF: discussions with NCCC re. three scanner rooms RAI room completed at James Cook, Middlesbrough and TV provided Ceiling panels for NCCC Ceiling panels for Nottingham. Waiting area chair and TV provided KF: reviewed Pt information for HOT trial Edinburgh RAI room completed KF: Ram Moorthy thyroid nodule consensus work KF: RAI restrictions info meeting KF: HOT trial meeting KF: discussion re. Cheltenham RAI room and waiting area KF: Invitation to be a member of EORTC Nottingham and Derby rooms completed KF: invitation to submit to Scottish Medicine Consortium on Selpercatinib KF: working party to obtain dual drug therapy for ATC patients KF: NICE meetings 5,6 & 7 KF: RAI restriction info meeting
BTCT Webinar with Mark Strachan – 100 attendees!!
Demi Jones ( influencer diagnosed with TC) invited to be a patron for BTCT
NCCC – three scanner rooms completed
KF: NICE meetings 8 & 9 KF: BTA guidelines meeting TV provided for Nottingham KF: RAI restriction guidelines meetings 2 & 3 KF: discussion with Geri Hamilton re. BTCT helpline support KF: RAI restriction guideline meeting #4 BTCT Advanced TC webinar hosted by Jon Wadsley, with invited patient speakers ; Marc Valentine and Joe Plater KF: HOT trial committee meeting HOT trial information added to pt. info DVD Patient support helpline interview #1 – Geri Hamilton GoFundMe platform for Paula Clayton raised £47k which has been subsequently made available to BTCT as restricted grant £15k donation provided via training shoe design project by Mark Evans TC Awareness campaign September (ITV), October and November (SKY) Patient support helpline interview #2 – Amy Horton – successfully appointed and commenced November 2021 Ujjal Mallik’s ‘book of poetry’ completed and submitted for publication
Page 3b
BUTTERFLY THYROID CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2021
Summary of the main activities and achievements undertaken for the public benefit in relation to the objects continued…
KF: virtual meeting with Marc Valentine KF: virtual meeting with Belfast CNSs re. BTCT information and dissemination KF: NICE meetings 10 & 11
KF, SF: virtual training session with Amy Horton
Provision of mobile phone and Ipad for AH – updates to website and pt information with revised patient contact details Poetry book launch
‘Christine’s Story’ DVD available online
RAI rooms completed during 2021: Mount Vernon
Notts City – waiting area and TV Edinburgh Freeman – gamma rooms Guys Derby
Cheltenham have proved unsurmountable due to internal politics UCLH and Oxford are ongoing
Abbreviations:
| KF | Kate Farnell |
|---|---|
| TSH | thyroid stimulating hormone |
| BAETS | British association of endocrine and thyroid surgeons |
| CNS | clinical nurse specialist |
| NICE | National Institute for Clinical Excellence |
| LM | Laura Moss |
| TC | thyroid cancer |
| UKM | Ujjal Mallick |
| RCP | royal college of physicians |
| HOT | hemi or total |
| EORTC | European Organisation for Research and Treatment of Cancer |
| UCLH | University College Hospitals, London |
| CRUK | cancer research UK |
| NCRI | national clinical research institute |
| RAI | radioactive iodine |
| LID | Low Iodine Diet |
| MB | Matt Beasley |
| CE | Clare England |
| KN | Kate Newbold |
| DK | Dae Kim |
| ATC | anaplastic/ advanced thyroid cancer |
| BTA | British Thyroid Association |
| AH | Amy Horton |
| Pt. | Patient |
Page 3c
BUTTERFLY THYROID CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2021
Reserve Policy
A designated fund of £200,000 relates to monies which is to be used to provide holiday accommodation for patients. This will incorporate the ‘Michael Crawley Award’
-
£20,000 for improvements to hospital rooms
-
£30,000 pledged for 2 year PhD project commencing summer 2022
-
£20,000 - £25,000 will be used to part fund BTCT’s invitation to organize a patient /doctor forum within the World Thyroid Cancer Conference to be held in London in 2023
-
£47,000 restricted fund (Paula Clayton Fund) to be used for patients with ATC/ advanced disease
The balance of the reserves is for the sustainability of the trust and for future projects should income not be sustained in future years
Review of financial Postion at year end.
| Signature Full Name Position Dated |
D Farnell Daniel Farnell Trustee |
|---|---|
| 29/05/2022 |
Page 3d
BUTTERFLY THYROID CANCER TRUST
Statement of financial affairs for the year to 31 December 2021
| Note Incoming Resources Grants 2 Donations Subscriptions Gift Aid Deposit account interest Total Incoming Resources Expenditure Direct charitable expenditure Payroll Professional fees Telephone Poetry Book Postage and stationery Insurance Advertising Motor & travelling costs Repairs and maintenance Sundries Awards Grants 2 Conferences Phd Sponsorship 2 Accountancy Total Expenditure Transfers between funds Net Incoming/Outgoing Resources Total funds brought forward Total funds carried forward __ |
Unrestricted Funds 80,000 90,334 - 1,158 44 ___ 171,536 __ 66,960 25,924 1,223 3,449 1,671 541 24,193 - 3,548 1,174 362 - 120 10,000 360 _ 139,525 _ - _ 32,011 334,248 _ 366,259 ____ |
Restricted Funds 40,000 - - - __ 40,000 __ - - - - - - - - - - - - - - __ - __ - __ 40,000 - __ 40,000 ____ |
Designated Total Funds Funds - 120,000 - 90,334 - - 1,158 - 44 ____ - 211,536 ___ - 66,960 - 25,924 - 1,223 - 3,449 - 1,671 - 541 - 24,193 - - - 3,548 - 1,174 - 362 27,098 27,098 - 120 10,000 - 360 ____ 27,098 166,623 _________________________ - ____ (27,098) 44,913 128,925 463,173 ___ 101,827 508,086 ____ _ |
2020 100,000 63,910 - 2,603 152 _____________ 166,665 __ 66,960 24,996 972 - 1,196 500 25,119 181 463 1,290 1,000 10,406 (500) - 360 __ 132,943 __ - __ 33,722 429,451 __ 463,173 _____ |
|---|---|---|---|---|
__ |
_ |
__ |
Page 4
BUTTERFLY THYROID CANCER TRUST BALANCE SHEET AS AT 31ST DECEMBER 2021
| FIXED ASSETS Fixtures & Equipment CURRENT ASSETS Debtors Bank Accounts Cash In Hand CURRENT LIABILITIES NET ASSETS FUNDS Restricted Funds Unrestricted Funds Designated funds |
NOTE £ £ £ £ 3 - - - - 507,482 462,715 604 508,086 458 463,173 ________ 508,086 463,173 - - _ _ 3 508,086 463,173 _ _ _ _ 4 40,000 - 4 366,259 290,120 4 101,827 139,331 508,086 429,451 _ _ _ _ 2020 2021 |
|---|---|
These Financial Statements were approved by the Trustees on
Date Signed D Farnell Full Name Daniel Farnell Trustee
Page 5
BUTTERFLY THYROID CANCER TRUST
Notes to the Accounts for the period ended 31st December 2021
1 Accounting Policies
-
a. The charity constitutes a public benefit entity as defined by FRS 102. The financial statements have been prepared in accordance Accounting and Reporting by Charities: Statement of Recommended practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued on 16 July 2014 (as updated through update bulletin 1 publish on 2 February 2016), the Financial Reporting Standards applicable in the United Kingdom and Republic of Ireland (FRS 102) and UK Generally accepted practice as it applies from 1 January 2015.
-
The charity has applied update bulletin 1 as published on 2 February 2016 and does not include a cash flow statement on the grounds it is applying FRS 102 Section 1A.
-
The Financial statements are prepared on a going concern basis under the historical cost convention. The Financial statements are presented in sterling which is the functional currency of the charity and rounded to the nearest pound.
The significant accounting policy's applied in the preparation of the financial statements are set out below. These policies have been applied to all years shown unless otherwise stated.
-
b Funds Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objectives of the charity and which have not been designated for other purposes. Restricted funds are funds which are to be used in accordance with specific restrictions imposed by donors or which have been raised by the charity for particular purposes. The cost of raising and administrating such funds are charged against the specific fund. The aim and use of each restricted fund is set out in the notes to the accounts.
-
c All grants and voluntary income are accounted for gross when receivable, as long as they are capable of financial measurement.
-
d All expenditure is accounted for gross of VAT, and when incurred.
-
e Provision for depreciation of fixed assets held for use by the charity is made at annual rates calculated to spread the cost (less anticipated residual disposable value) of each asset evenly over its expected useful life. The depreciation rates currently in use for fixed assets held for use by the charity are 15% on straight line for Fixtures and equipment.
-
f Reserves policy: The trustees have considered the level of reserves needed in order to maintain the ongoing activities of the charity. The trustees consider that an amount representing twelve months running costs are advisable.
2a Grants Receivable
| Grants Receivable | |||
|---|---|---|---|
| Syncona David Clayton Details of grants are included in note 4. |
2021 £ 80,000 40,000 |
2020 £ 100,000 |
|
| 120,000 | 100,000 | ||
Page 6a
BUTTERFLY THYROID CANCER TRUST
Notes to the Accounts for the period ended 31st December 2021
2b Grants made
| Research Grant (Phd sponsorship) Improvements to RAI rooms Tangible Fixed Assets B/f Additions during the period Depreciation for the year Net book value at 31 December 2021 |
Office equipment - - |
£ 10,000 27,098 |
|
|---|---|---|---|
| 37,098 | |||
| Total - - |
|||
| - | - | ||
| - | - | ||
| - | - |
3 Tangible Fixed Assets
Fixed Assets have been written down to a Nil balance.
4 Funds
| Unrestricted funds Restricted funds David Clayton b) Designated Funds a |
Opening balance 334,248 |
Transfer Incoming between resources funds 171,536 - |
Outgoing resources (139,525) |
Closing balance 366,259 |
|
|---|---|---|---|---|---|
| - | 40,000 - |
- | 40,000 | ||
| - | 40,000 - |
- | 40,000 | ||
| ) | 128,925 | - - |
(27,098) | 101,827 |
a) Donations from BACIT to be used for Research Grant Award and hospital improvements. b) Donations to be used to help people with advanced disease.
5 Analysis of funds by assets
| Fixed assets Current assets Current liabilities |
Unrestricted Restricted Designated Total - - - - 366,259 40,000 101,827 508,086 - - - - |
|---|---|
| 366,259 40,000 101,827 508,086 |
6 Transactions with trustee's and connected persons
During the year there was no transactions with Trustees or connected persons including remuneation or expenses.
7 Trustee indemnity insurance
During the year, insurance was purchased to indemnify the committee against default on their part.
8 Control
The charity is under the control of the Trustees.
Page 6b
Independent Examiner's Report to the Trustees of Butterfly Thyroid Cancer Trust
I report on the accounts of the charity for the year ended 31 December 2021 which are set out on pages 3 to 6
Respective responsibilities of trustees and examiner
The charity’s trustees are responsible for the preparation of the accounts. The charity’s trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.
It is my responsibility to:
-
examine the accounts under section 145 of the 2011 Act;
-
follow the procedures laid down in the general Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act; and
-
state whether particular matters have come to my attention.
Basis of independent examiner's report
My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a “true and fair view” and the report is limited to those matters set out in the statement below.
Independent examiner's statement
In connection with my examination, no matter has come to my attention:
-
1 which gives me reasonable cause to believe that, in any material respect, the requirements:
-
to keep accounting records in accordance with section 130 of the 2011 Act; and
-
to prepare accounts which accord with the accounting records and comply with the accounting requirements of the 2011 Act
have not been met; or
- 2 to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.
C N Mason
Chartered Certified Accountant
Draycott & Kirk LLP Cleveland House 92 Westgate Guisborough Cleveland TS14 6AP
Date 30/5/22
Page 2