BUTTERFLY THYROID CANCER TRUST
Registered Charity number: 1108932
FINANCIAL ACCOUNTS FOR THE YEAR ENDED 31ST DECEMBER 2020
DRAYCOTT & KIRK LLP CHARTERED ACCOUNTANTS
92 Westgate Guisborough Cleveland TS14 6AP
BUTTERFLY THYROID CANCER TRUST
SUPPORT GROUP INFORMATION PERIOD ENDED 31 DECEMBER 2020
Trustees:
Mr F Stafford F.R.C.S Mr R Bliss F.R.C.S. Mr J Salter Mr D Farnell Bsc Mrs L Abbs RN Mrs R Newton
Address
PO Box 205 Rowlands Gill Tyne & Wear NE39 ZWX
Bankers
Lloyds TSB West Street Gateshead
Accountants
Reg. charity no.
Draycott & Kirk LLP Chartered Accountants Cleveland House 92 Westgate Guisborough CLEVELAND TS14 6AP 1108932
Page 1
Independent Examiner's Report to the Trustees of Butterfly Thyroid Cancer Trust
I report on the accounts of the charity for the year ended 31 December 2020 which are set out on pages 3 to 6
Respective responsibilities of trustees and examiner
The charity’s trustees are responsible for the preparation of the accounts. The charity’s trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.
It is my responsibility to:
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examine the accounts under section 145 of the 2011 Act;
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follow the procedures laid down in the general Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act; and
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state whether particular matters have come to my attention.
Basis of independent examiner's report
My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a “true and fair view” and the report is limited to those matters set out in the statement below.
Independent examiner's statement
In connection with my examination, no matter has come to my attention:
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1 which gives me reasonable cause to believe that, in any material respect, the requirements:
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to keep accounting records in accordance with section 130 of the 2011 Act; and
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to prepare accounts which accord with the accounting records and comply with the accounting requirements of the 2011 Act
have not been met; or
- 2 to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.
R D Kirk
Chartered Accountant
Draycott & Kirk LLP Cleveland House 92 Westgate Guisborough Cleveland TS14 6AP
Date 12/04/21
Page 2
BUTTERFLY THYROID CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2020
----- Start of picture text -----
Registered charity number 1108932
Charity's principal address PO Box 205
Rowlands Gill
Tyne & Wear
NE39 ZWX
Names of Charity trustees who manage the charity
Mr F Stafford F.R.C.S
Mr R Bliss F.R.C.S.
Mr J Salter
Mr D Farnell Bsc
Mrs L Abbs RN
Mrs R Newton
Structure, governance and management
Governing document Trust Deed
Constitution Trust
Trustee selection methods Trustees selected by existing Trustees
----- End of picture text -----
Objectives and activities
To alleviate the physical, psychological or financial difficulties or hardship of people affected by thyroid cancer. To promote education about thyroid cancer to members of the public at large.
The charity provides: A dedicated telephone helpline. Holidays A buddy system Awareness Events Patient information packs Research Grants Website Patient information DVD On site clinical support Suppression cards Hospital visits Conference Presentations Facilitates patient introductions RAI room accessories Attends thyroid cancer conferences Clinical Trials advisory role Network of patient support contacts Patient information advisory role RAI room renovations/revamp
Volunteers and group members are involved in fund raising activities. They attend and provide information stands at relevant conferences.
Page 3a
BUTTERFLY THYROID CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2020
Summary of the main activities and achievements undertaken for the public benefit in relation to the objects
Patient information DVD dissemination is ongoing and still a popular resource for patient and treatment centres. Online availability is becoming more popular. There is still work to be done in encouraging centres to take up this resource.
January
KF: successful application for commissioners post with Nice for TC guidelines Patient meeting planned for 16th May at Centre for Life, Newcastle upon Tyne. Programme agreed and patients invited.
KF: continuation of Scottish project meetings.
KF: accepted the thyroid cancer commissioners post with NICE commencing March
Disseminated COVID19 advice for thyroid cancer patients with Laura Moss and Jon Wadsley Impact of COVID19 pandemic evident through 3000 queries in week one of first lockdown Finalists and bronze award in People’s Choice, Charity Film Awards Michael Crawley Awards to Bekka Jackson
KF: assisted Bekka to obtain second surgical opinion
KF: assisted Marc V to access CNS support
April
Patient meeting cancelled due to COVID19.
KF: continuation of work on HoT Trial (Hemi or Total) with compilation of film scripts for clinician film and patient film . Commenced work on UKM idea to publish a book of poetry derived from patients experiences during their treatment journey. Updated patient leaflet
New Covid guidelines and dissemination KF: NCRI Meeting KF: HOT trial meeting
May
2020 Conference call with Navio, Toronto to discuss patient phone app to assist patients through their treatment Clinical trials App with CRUK and Dae Kim ? use for Hot Trial ? Working party.
KF: Conversation with Lilly re new drug ?TKI Selpercatinib
Submission to NICE and telecon for above
KF: Arranged for patient MV to be seen by Kate N privately [no fee ] Began work for patient/doctor conference March 2021 RCP
July
KF: Selpercatinib scoping NICE meeting
KF: First NICE virtual meeting ‘Introduction to the guidelines’ New CNS Julio Rodriguez West Middlesex Hosp., leaflets, DVDS, TSH cards
RAI Room Mount Vernon RAI room Nottingham RAI room Edinburgh RAI room Derby RAI room Christie
September
Patient Survey effect of COVID . Mark Strachan given the 2020 award for his contribution to the Scottish Project to update TC treatment guidelines throughout Scotland TV awareness campaign: regional advert broadcast during September, with national broadcasting throughout October and November on SKY TV Survey results abstract submitted to NCRI and BAETS Michael Crawley award to patient Marc V with contribution of £1k for wedding KF: Second NICE guideline meeting Abstract accepted and presented at BAETS meeting 2020 Abstract accepted and presented at NCRI meeting 2020 Filming with Rebekah Jackson
Page 3b
BUTTERFLY THYROID CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2020
Summary of the main activities and achievements undertaken for the public benefit in relation to the objects continued…
Abbreviations:
KF Kate Farnell TSH thyroid stimulating hormone BAETS British association of endocrine and thyroid surgeons CNS clinical nurse specialist NICE national institute for clinical excellence TC thyroid cancer UKM Ujjal Mallick RCP royal college of physicians HOT hemi or total CRUK cancer research UK NCRI national clinical research institute RAI radioactive iodine
Page 3c
BUTTERFLY THYROID CANCER TRUST
TRUSTEES ANNUAL REPORT
FOR THE YEAR ENDED 31ST DECEMBER 2020
Reserve Policy
A designated fund of £200,000 relates to monies which may be awarded for appropriate research funding
£40,000 for improvements to hospital rooms
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£2,000 pledged for Michael Crawley award
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£30,000 pledged for 5 year PhD project commencing 2021
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£10,000 for UKM book publication
£20,000-£25,000 will be used to fund a national and/ or regional patient /doctor conference to be confirmed once COVID isolation measures have been relaxed The balance of the reserves is for the sustainability of the trust and for future projects should income not be sustained in future years
Review of financial Postion at year end.
| Signature Full Name Position Dated |
RichardBliss RichardBliss Trustee |
|---|---|
| 12/04/2021 |
Page 3d
BUTTERFLY THYROID CANCER TRUST
Statement of financial affairs for the year to 31 December 2020
| Note Incoming Resources Grants 2 Donations Subscriptions Gift Aid Deposit account interest Total Incoming Resources Expenditure Direct charitable expenditure Payroll Professional fees Telephone Fund raising costs Postage and stationery Insurance Advertising Motor & travelling costs Repairs and maintenance Sundries Awards Grants 2 Conferences Phd Sponsorship Accountancy Total Expenditure Transfers between funds Net Incoming/Outgoing Resources Total funds brought forward Total funds carried forward __ |
Unrestricted Funds 100,000 63,910 - 2,603 152 ___ 166,665 __ 66,960 24,996 972 - 1,196 500 25,119 181 463 1,290 1,000 - (500) 360 _ 122,537 _ - _ 44,128 290,120 _ 334,248 ____ |
Restricted Funds - - - - __ - __ - - - - - - - - - - - - - - __ - __ - __ - - __ - ____ |
Designated Total Funds Funds - 100,000 - 63,910 - - 2,603 - 152 ____ - 166,665 ___ - 66,960 - 24,996 - 972 - - - 1,196 - 500 - 25,119 - 181 - 463 - 1,290 - 1,000 10,406 10,406 - (500) - - 360 ____ 10,406 132,943 _________________________ - ____ (10,406) 33,722 139,331 429,451 ___ 128,925 463,173 ____ _ |
2019 100,000 52,127 90 - 210 _____________ 152,427 __ 65,493 24,996 846 - 826 500 40,577 4,585 2,872 3,180 1,693 15,199 500 10,000 - __ 171,267 __ - __ (18,840) 448,291 __ 429,451 _____ |
|---|---|---|---|---|
__ |
_ |
__ |
Page 4
BUTTERFLY THYROID CANCER TRUST BALANCE SHEET AS AT 31ST DECEMBER 2020
| NOTE | 2020 | 2020 | 2019 | 2019 | |
|---|---|---|---|---|---|
| £ | £ | £ | £ | ||
| FIXED ASSETS | |||||
| Fixtures & Equipment | 3 | - | - | ||
| CURRENT ASSETS | |||||
| Debtors | - | - | |||
| Bank Accounts | 462,715 | 428,993 | |||
| Cash In Hand | 458 | 463,173 | 458 | 429,451 | |
| ________ | |||||
| 463,173 | 429,451 | ||||
| CURRENT LIABILITIES | - | - | |||
| ____ | ____ | ||||
| NET ASSETS | 3 | 463,173 | 429,451 | ||
| ____ | ____ | ||||
| ____ | ____ | ||||
| FUNDS | |||||
| Restricted Funds | 4 | - | - | ||
| Unrestricted Funds | 4 | 334,248 | 290,120 | ||
| Designated funds | 4 | 128,925 | 139,331 | ||
| 463,173 | 429,451 | ||||
| ____ | ____ | ||||
| ____ | ____ | ||||
| These Financial Statements were approved | by the Trustees on | ||||
| Date | 12/4/21 | ||||
| Signed Richard Bliss | |||||
| Full Name Richard Bliss | |||||
| Trustee |
Page 5
BUTTERFLY THYROID CANCER TRUST
Notes to the Accounts for the period ended 31st December 2020
1 Accounting Policies
- a. The charity constitutes a public benefit entity as defined by FRS 102. The financial statements have been prepared in accordance Accounting and Reporting by Charities: Stament of Recommended practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the Uk and Republic of Ireland (FRS 102) issued on 16 July 2014 (as updated through update bulletin 1 publish on 2 February 2016), the Financial Reporting Standards applicable in the United Kingdom and Republic of Ireland (FRS 102) and UK Generally accepted practice as it applies from 1 January 2015.
The charity has applied update bulletin 1 as published on 2 February 2016 and does not include a cash flow statement on the grounds it is applying FRS 102 Section 1A.
- The Financial statements are prepared on a going concern basis under the historical cost convention. The Financial statements are presented in sterling which is the functional currency of the charity and rounded to the nearest pound.
The significant accounting policy's applied in the preparation of the financial statements are set out below. These policies have been applied to all years shown unless otherwise stated.
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b Funds Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objectives of the charity and which have not been designated for other purposes. Restricted funds are funds which are to be used in accordance with specific restrictions imposed by donors or which have been raised by the charity for particular purposes. The cost of raising and administrating such funds are charged against the specific fund. The aim and use of each restricted fund is set out in the notes to the accounts.
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c All grants and voluntary income are accounted for gross when receivable, as long as they are capable of financial measurement.
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d All expenditure is accounted for gross of VAT, and when incurred.
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e Provision for depreciation of fixed assets held for use by the charity is made at annual rates calculated to spread the cost (less anticipated residual disposable value) of each asset evenly over its expected useful life. The depreciation rates currently in use for fixed assets held for use by the charity are 15% on straight line for Fixtures and equipment.
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f Reserves policy: The trustees have considered the level of reserves needed in order to maintain the ongoing activities of the charity. The trustees consider that an amount representing twelve months running costs are advisable.
2a Grants Receivable
| Grants Receivable | |||
|---|---|---|---|
| Syncona Details of grants are included in note 4. |
2020 £ 100,000 |
2019 £ 100,000 |
|
| 100,000 | 100,000 | ||
Page 6a
BUTTERFLY THYROID CANCER TRUST
Notes to the Accounts for the period ended 31st December 2020
2b Grants made
| **3 ** | Research Grant Improvements to RAI rooms Tangible Fixed Assets B/f Additions during the period Depreciation for the year Net book value at 31 December 2020 |
Office equipment - - |
£ - 10,406 |
|
|---|---|---|---|---|
| 10,406 | ||||
| Total - - |
||||
| - | - | |||
| - | - | |||
| - | - |
Fixed Assets have been written down to a Nil balance.
4 Funds
| Unrestricted funds Restricted funds Designated Funds a |
Opening balance 290,120 |
Transfer Incoming between resources funds 166,665 - |
Outgoing resources (122,537) |
Closing balance 334,248 |
|
|---|---|---|---|---|---|
| - | - - |
- | - | ||
| - | - - |
- | - | ||
| ) | 139,331 | - - |
(10,406) | 128,925 |
a) Donations from BACIT to be used for Research Grant Award and hospital improvements.
5 Analysis of funds by assets
| Fixed assets Current assets Current liabilities |
Unrestricted Restricted Designated Total - - - - 334,248 - 128,925 463,173 - - - - |
|---|---|
| 334,248 - 128,925 463,173 |
6 Transactions with trustee's and connected persons
During the year there was no transactions with Trustees or connected persons including remuneation or expenses.
7 Trustee indemnity insurance
During the year, insurance was purchased to indemnify the committee against default on their part.
8 Control
The charity is under the control of the Trustees.
Page 6b