NEPHROTIC SYNDROME TRUST UNAUDITED ANNUAL REPORT 30 SEPTEMBER 2024
Charity Number 1107601
CHALMERS & CO (SW) LIMITED
Chartered Accountants Trading as Chalmers & Co. 6 The Linen Yard South Street Crewkerne Somerset TA18 8AB
NEPHROTIC SYNDROME TRUST
UNAUDITED ANNUAL REPORT
YEAR ENDED 30 SEPTEMBER 2024
| CONTENTS | PAGES |
|---|---|
| Reference and administrative details | 1 |
| Trustees annual report | 2 to 4 |
| Independent examiner's report | 5 |
| Receipts and payments account | 6 |
| Statement of assets | 7 |
| Notes to the accounts | 8 to 9 |
NEPHROTIC SYNDROME TRUST
REFERENCE AND ADMINISTRATIVE DETAILS
YEAR ENDED 30 SEPTEMBER 2024
The board of trustees Mr D Yearsley Dr M Saleem Mrs W Cook Ms G Benson Mrs L Mathias-Lukins Dr G Welsh Mrs S Jenkins Dr W Ding (Appointed 9 November 2023) Charity registration number 1107601 Principal office 38 Southway Drive Yeovil BA21 3ED Independent examiner S M Bachrach, Chartered Accountant Chalmers & Co (SW) Limited Chartered Accountants Trading as Chalmers & Co. 6 The Linen Yard South Street Crewkerne Somerset TA18 8AB
Bankers
HSBC 13 Chapel Street Stratford Upon Avon Warwickshire CV37 6ET
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NEPHROTIC SYNDROME TRUST
REFERENCE AND ADMINISTRATIVE DETAILS
YEAR ENDED 30 SEPTEMBER 2024
The trustees have pleasure in presenting their report and the unaudited accounts of the charity for the year ended 30 September 2024 as set out on pages 5 to 9. The accounts have been prepared in accordance with the accounting policies set out on page 8 and comply with the Trust Deed and applicable law.
STRUCTURE, GOVERNANCE AND MANAGEMENT
The charity is governed by its declaration of Trust dated 12 October 2004 and was registered with the Charity Commission on 13 January 2005 and amended 20 January 2021, registered number 1107601.
Reference and administrative details including the principal office address and details of trustees who served the charity throughout the year are shown in on page 1 of the financial statements. All trustees are appointed by a resolution of the trustees in accordance with the Trust Deed. Formal trustee training will be provided on an ad hoc basis as required.
OBJECTIVES AND ACTIVITIES
The main charitable object of the charity is to promote research for the benefit of the public by the promotion and funding of research into the causes and treatment for Nephrotic Syndrome carried out at Bristol University laboratories.
The Charity aims to support the research team to enable them to find new more effective therapies and treatments for all classifications of Nephrotic Syndrome. It also aims to raise awareness of Nephrotic Syndrome and to support the NS community by providing a hub of information and resources via its website and through all social media channels, support groups and annual conferences.
When planning the activities for the year, the trustees have considered the Charity Commission’s general guidance on public benefit and, in particular, the specific guidance for charities for the advancement of health and the saving of lives. The trustees believe the activities set out above and further described below under ‘achievements and performance’ clearly demonstrate the charity’s commitment to providing an identifiable public benefit and that access to this benefit is not restricted in any way.
ACHIEVEMENTS AND PERFORMANCE
Fundraising Update: The charity raised £75,617 in the year ended 30 September 2024. The Wing Walk event has been postponed until May 2025, yet most donations have already been received. It was acknowledged that this was a significant result for the size of the charity.
There are now a few more monthly donations, but it is challenging to maintain a balance between funding and support. It was acknowledged that it is often the people with the sickest children who contribute the most. Wendy continues to look into several grants, but many are either oversubscribed or the charity does not fit the criteria. It was also acknowledged that there is ‘charity fatigue’ and the charity continues to look for more creative ways of fundraising. There is a plan to appoint a volunteer fundraising team to plan larger fundraising events. A review of social media is still to take place as more needs to be done to attract and engage with the next generation, with the possibility of appointing a communications co-ordinator.
There are currently restricted reserves held of £5,750 to be used for App promotion and development.
App Update: The app is fully operational with approximately 50 users, although there appears to still be an issue with sign-ups. Renal professionals are being encouraged to promote the App.
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NEPHROTIC SYNDROME TRUST
REFERENCE AND ADMINISTRATIVE DETAILS
YEAR ENDED 30 SEPTEMBER 2024
A patient day took place during the year in Cardiff, Wales, with the next National Information Day to be held in Scotland. Other roadshows are also planned.
Research Update: Nephure Collaboration – Professor Moin Saleem is working on research related to Parasol. The FRD trial outcome is expected soon. The website continues to be updated with articles from Dr Gavin Welsh and Dr Wen Ding.
Mental health remains a concern for many members, and the funding of relaxation and well-being sessions for children with emotional/mental health issues continues.
2025 will mark 20 years of the Charity and there are plans to organise a significant social event and fundraiser.
RISK MANAGEMENT
The trustees have initiated a wide-ranging review of the major risks to which the charity is exposed, covering all identified, relevant areas including financial risk and risks associated with personnel. Risks have been identified, assessed and safeguards have been put in place to eliminate or mitigate such risks as far as is reasonably possible.
FINANCIAL REVIEW
Total receipts during the year were £77,832 (2023 - £58,141), with the majority of income arising from donations. Total payments were £85,815 (2023 - £116,165), the major expenditure being the donation to United Bristol Hospitals as disclosed further in the Receipts and Payments Account on Page 6.
Net funds therefore decreased by £7,983 (2023 – by £58,024) to £67,182 (2023 - £75,165). £61,432 of these funds being free reserves.
RESTRICTED FUNDS
Restricted funds include those which have been donated and used for three projects during the year:
1. App development. This project commenced in the latter part of 2019 and received further funding during 2021. This fund has a balance carried forward of £5,750.
2. Future App Development Grant. £10,000 was received during 2022. Spending in the year covered the balance of the Patient Day expenses after using the specific grants received for that days costs together with 5% of Wendy’s salary covering the development and promotion of the app prior to its launch. The fund balance carried forward amounted to £1,279.
3. Patient Day Grants. £2,158 was received during to the year to fund the patient day. This grant was fully utilised during the year.
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NEPHROTIC SYNDROME TRUST
REFERENCE AND ADMINISTRATIVE DETAILS
YEAR ENDED 30 SEPTEMBER 2024
RESERVES POLICY
The trustees closely monitor the charity's financial position and seek to ensure that reserves are sufficient to meet its ongoing liabilities. The charity does not aim to hold substantial unrestricted reserves, but to pass any surpluses on to those in need.
Signed by order of the trustees:
Mr D Yearsley
Mrs W Cook
Approved by the trustees on the 6th May 2025
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NEPHROTIC SYNDROME TRUST
INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF NEPHROTIC SYNDROME TRUST
YEAR ENDED 30 SEPTEMBER 2024
I report to the trustees on my examination of the accounts of the Charity for the year ended 30 September 2024.
Responsibilities and basis of report
As the Charity’s Trustees you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (the Act).
I report in respect of my examination of the Charity’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination. I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent Examiners Statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination which gives me cause to believe that in, any material respect:
-
the accounting records were not kept in accordance with section 130 of the Charities Act; or
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the accounts do not accord with the accounting records.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
S M Bachrach, Chartered Accountant Independent Examiner Chalmers and Co Chartered Accountants 6 The Linen Yard South Street Crewkerne Somerset TA18 8AB
Dated: 6 May 2025
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NEPHROTIC SYNDROME TRUST
RECEIPTS AND PAYMENTS ACCOUNT FOR THE YEAR ENDED
30 SEPTEMBER 2024
| RECEIPTS Donations Grants received Interest received PAYMENTS Donations to United Bristol Hospital Wages & pension costs of administrator Wages of the app administrator Insurance Promotional costs Fundraising costs Travel Costs for Mental Health Care NNF expenditure Other donations/grants Patient Day costs Website cost Donorfy onboarding costs Just Giving fee Go cardless fees Printing, stationery and postage Sundry Expenses Accountancy and payroll fees Telephone Computer expenses (inc. internet) Bank & Paypal Charge --- PURCHASE FIXED ASSETS ---- = NET OF PAYMENTS Transfer between Funds Bank and cash funds brought forward Bank and cash funds carried forward |
2024 2024 2024 2023 Unrestricted Restricted Total Total Funds Funds Funds Funds £ £ £ £ 75,617 - 75,617 58,089 - 2,158 2,158 - 57 - 57 52 ----------------------------- - ------------------------------- ----------------------------- - -------------------------------------- - 75,674 2,158 77,832 58,141 31,000 - 31,000 70,000 29,379 1,450 30,829 28,789 - 1,750 1,750 - 216 - 216 214 861 - 861 60 6,828 - 6,828 6,348 619 - 619 340 490 - 490 595 - - - 2,691 - - - 528 - 5,898 5,898 652 1,020 - 1,020 804 1,194 - 1,194 - 1,450 - 1,450 1,417 187 - 187 - 720 - 720 511 320 - 320 163 678 - 678 1,368 496 - 496 501 406 - 406 459 207 - 207 217 ----------------------------------- ------------------------------- -------------------------------------- - -------------------------------------- - 76,071 9,098 85,169 115,657 646 - 646 508 ---------------------------------- - ------------------------------- -------------------------------------- - -------------------------------------- - 76,717 9,098 85,815 116,165 ================ =================== ============================= ================= =================== ================= =================== (1,043) (6,940) (7,983) (58,024) - - - - (1,043) (6,940) (7,983) (58,024) 61,196 13,969 75,165 133,189 60,153 7,029 67,182 75,165 ============================= ============================= ============================= ============================= |
|---|---|
The notes on pages 8 and 9 form part of these financial statements.
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NEPHROTIC SYNDROME TRUST
STATEMENT OF ASSETS
FOR THE YEAR ENDED
30 SEPTEMBER 2024
| 30 SEPTEMBER 2024 | ||
|---|---|---|
| 2024 | 2023 | |
| £ | £ | |
| CASH FUNDS | ||
| Paypal account | - | 240 |
| Bank current account | 67,182 | 74,925 |
| ----------------------------- - | ----------------------------- - | |
| 67,182 | 75,165 | |
| ============================= | ============================= | |
| £5,750 (2023 - £13,979) restricted funds are included in the totals listed above. | ||
| ASSETS RETAINED FOR THE CHARITY’S OWN USE | ||
| Laminator at cost (4 April 2011) | 10 | 10 |
| Laptop (5 September 2019) | 540 | 540 |
| Lenovo 510 Pentium Desktop PC (October 2019) | 320 | 320 |
| Argos printer at cost (2 October 2020) | 78 | 78 |
| Computer monitor (15 November 2020) | 75 | 75 |
| Laptop for roadshows (2 April 2021) | 399 | 399 |
| Office Chair (28 March 2023) | 190 | 190 |
| Office Desk (5 September 2023) | 318 | 318 |
| Laptop for volunteer (19 April 2024) | 646 | - |
| ============================= | ============================= |
We confirm that the above Statement of Assets is an accurate record of the Charity’s assets at the year end.
Mr D Yearsley
Mrs W Cook
6 May 2025
The notes on pages 8 and 9 form part of these financial statements.
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NEPHROTIC SYNDROME TRUST
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED
30 SEPTEMBER 2024
1. ACCOUNTING POLICIES
Basis of accounting
The accounts have been prepared on a receipts and payments basis and in accordance with the trust deed and applicable United Kingdom accounting standards, the Statement of Recommended Practice "Accounting and Reporting by Charities" (SORP 2005) and the Charities Act 2011.
Restricted and Unrestricted Funds
General accumulated unrestricted funds represent the funds of the charity that are not subject to any restrictions regarding their use and may be applied in achieving any of the objectives of the charity as decided by the trustees.
Restricted funds
These relate to incoming resources which have been received subject to specific conditions imposed by the donor and binding on the Trustees and may only be applied in accordance with the restrictions placed on the donation.
Income is treated as unrestricted unless a restriction is placed upon it by the donor or by the terms of the fundraising venture undertaken by the charity.
Grants
Grant income is recognised on a receivable basis. Where a restriction is placed on the use of the grant, the amount of the grant is included in restricted funds. Grant expenditure is recognised on a payable basis.
2. STAFF COSTS
The charity had two employees during the year.
3. STOCKS
At the end of the year the charity held a stock of items which are for resale. The original cost of these items was £250 (2023 - £500).
4. RELATED PARTY TRANSACTIONS
The trustee Mrs W Cook received remuneration and pension of £30,829 during the year arising from her employment as administrator. (2023 - £28,789)
. The trustee Mrs S Jenkins received remuneration of £1,750 during the year arising from her employment as administrator of the App development. (2023 - £Nil) None of the above received any remuneration for their duties at Trustees.
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NEPHROTIC SYNDROME TRUST
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED
30 SEPTEMBER 2024
| 2024 |
2024 | 2024 | 2024 |
2023 | ||
|---|---|---|---|---|---|---|
| Future App | ||||||
| NNF | Development | Patient |
Total |
Total | ||
| Funds | Fund | Day | Funds |
Funds | ||
| £ |
£ | £ | £ |
£ | ||
| BREAKDOWN OF RESTRICTED | ||||||
| INCOME & EXPENDITURE ITEMS | ||||||
| RECEIPTS | ||||||
| Grants received | - | - | 2,158 | 2,158 | - | |
| ----------------------------- | ----------------------------- | ----------------------------- | ----------------------------- | ----------------------------- | ||
| - | - | 2,158 | 2,158 | - | ||
| PAYMENTS | ||||||
| Wages & pension costs | 1,750 | 1,450 | - | 3,200 | 2,879 | |
| Nephrotic Syndrome | ||||||
| UK APP costs | - | - | - | - | 2,467 | |
| Travel & subsistence | - | - | - | - | 224 | |
| Patient Day costs | - | 3,740 | 2,158 | 5,898 | 652 | |
| Sundry Expenses | - | - | - | - | - | |
| ----------------------------- | ----------------------------- | ----------------------------- | ----------------------------- | ----------------------------- | ||
| 1,750 | 5,190 | 2,158 | 9,098 | 6,222 | ||
| PURCHASE OF | ||||||
| FIXED ASSETS | - | - | - | - | - | |
| ----------------------------- | ----------------------------- | - ---------------------------- | - | ----------------------------- | ------------------------------ | |
| 1,750 | 5,190 | 2,158 | 9,098 | 6,222 | ||
| ============================= | ============================= | ============================= | =========================== | ============================ | ||
| NET OF PAYMENTS | (1,750) | (5,190) | - | (6,940) | (6,222) | |
| ============================= | ============================= | ============================= | ============================= | ============================= | ||
| TRANSFER | ||||||
| BETWEEN FUNDS | - | - | - | - | (1448) | |
| ----------------------------- | ----------------------------- | ----------------------------- | ----------------------------- | --------------------------------- | ||
| (1,750) | (5,190) | - | (6,940) | (7,670) | ||
| ============================= | ============================= | ============================= | ============================= | ============================= | ||
| FUNDS B/FWD | 7,500 | 6,469 | - | 13,969 | 21,639 | |
| ============================= | ============================= | ============================= | ============================= | ============================= | ||
| FUNDS C/FWD | 5,750 | 1,279 | - | 7,029 | 13,969 | |
| ============================= | ============================= | ============================= | ============================= | ============================= |
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NEPHROTIC SYNDROME TRUST
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED
30 SEPTEMBER 2024
We confirm that the Receipts and Payments Accounts on pages 6 to 9 have been prepared from the books and records of the Charity. All other relevant information has been made available for their preparation.
We also confirm that the Receipts and Payments Accounts are an accurate record of the Charity’s activities in the period.
Mr D Yearsley
Dated: 6 May 2025
Mrs W Cook
Dated: 6 May 2025
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