Autistica funds research, shapes policy and works with autistic people to make more of a difference
Annual Report and Accounts for the year ending 31 March 2023
Honorary roles and charity management
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Contents
03 Honorary roles and charity management
04 Statement from the chair
05 Statement from the CEO
06 Objectives and activities
07 Our vision, mission, values and goals
08 Year at a glance
09 2022-23 Charitable activities spend
10 Progress towards our Goals
11 Our research
12 Driving public policy
13 Communicating to empower
and create change
14 Funding and support
15 Looking ahead
16 Public benefit and impact
18 Structure, governance and management
20 Statement of trustees’ responsibilities
22 Independent auditor’s report to members
24 Statement of financial activities
25 Balance sheet
26 Statement of cash flows
27 Notes to financial statements
37 Committees and advisory committees
38 Thanks
2 Autistica Annual Report and Accounts 2023
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Our trustees, honorary supporters and leaders help make our vision a reality by overseeing and managing all of the charity’s life-saving and life-changing work.
Honorary roles
Charity management
Chief Executive Officer
President
Dame Stephanie Shirley CH
Dr James Cusack
Director of External Affairs (appointed July 2022) Rebecca Sterry
Vice Presidents
Jane Asher
Sir Christopher Ball Lady Christine Bett Hugh Merrill MVO
Director of Fundraising
(on maternity leave: March 2021 to April 2022) Jennie Chambers
Trustees
Interim Director of Fundraising
(December 2021 to July 2022) James Robinson
Chair
Stephen Boyle
Head of Research
Honorary Treasurer
Dr Amanda Roestorf
Matthew Harris
Auditors
John Carey (retired July 2023) Matthew Davis Peter Dilnot (appointed July 2023) Professor Jonathan Green Professor Dr Hilde Geurts (resigned July 2022) Lynn Hawkins Katherine Hudson
Azets Audit Services First Floor, River House 1 Maidstone Road Sidcup Kent DA14 5RH
Bankers
Metro Bank One Southampton Row London WC1B 5HA
Registered office
Suite B
6 Honduras Street London EC1Y 0TH
020 3857 4340 info@autistica.org.uk autistica.org.uk
Charity registration no. 1107350 Company registration no. 05184164
Autistica Annual Report and Accounts 2023
3
Statement from the chair
Statement from the CEO
I joined Autistica as chair two years ago just as we launched our ambitious 2030 Goals. The progress that has been made in that time is extremely exciting and is testament to Autistica’s talented multidisciplinary team and exemplary leadership. But we know that we can’t achieve these goals alone. Collaboration is at the heart of our progress to date and is shaping our plans for the future.
We recognise that none of our work would be possible without our donors and funders. At a time when many individuals are cutting back on giving, we are extremely fortunate that so many of our donors have stayed loyal to Autistica. Our commitment to you is to ensure that every donation is used in the most effective way possible. We are always striving to work with partners who can help us make more of an impact per pound. For example this year and last year we’ve secured major top-up funding for grants we have awarded for social care research and in March, we received over £100,000 top-up pro-bono support for our World Autism Awareness campaign on employment.
I’m extremely passionate about what Autistica can offer in terms of shaping a better future for autistic people. Thanks to the 2030 Goals, we have a clear pathway, we just need the funding and partnerships to make it a reality. If you can help us whether directly or as a vital connector to people who can, get in touch. We’ve included contact details on the final page of this report.
Finally, I’d like to thank those who share their expertise and experiences to support the charity, especially the autistic people and family members who make up the Autistica Insight Group and advisory panels. I’d also like to thank the other board members for their guidance over the past year. We said goodbye to two valued trustees John Carey and Hilde Guerts, but are excited to welome Peter Dilnot to the board.
“ We are always funding for grants we have awarded for social care research and in March, we received over striving to work £100,000 top-up pro-bono support for our World with partners Autism Awareness campaign on employment. who can help It’s not just funding partnerships that are helping us make more us to make a difference. Our relationships with of an impact NHS England, the Department for Health and Social Care, the Department for Work and Pensions per pound.” and others mean that we are turning research into practice, shaping support and services of Stephen Boyle the future. We are uniquely placed to give advice based on the latest research and to involve autistic people in the design of services. With this evidence-led approach, we are are helping the NHS and others to prevent crisis, create more effective support, save money and transform lives.
Thank you all for your continued support. I can’t wait to see what we can achieve together over the next twelve months.
Stephen Boyle
Chair of trustees
I have been extremely proud of what we have been able to achieve this year in progressing our 2030 Goals, especially our work towards doubling the employment rate for autistic people and providing support for all autistic people from day one. We now have a strategy and clear pathway for achieving each of our Goals. And we’re looking to how we can grow our impact as a charity in the coming years.
During and after the pandemic we operated as a small team, but over the past few months we have begun to grow the team to allow us to achieve all that we’ve set out in our Goal plans. Three of our new roles have been funded by grants. With a growing team and ambitious set of Goals we’re looking to the best model of delivery of our work.
As part of our goal to double the employment rate for autistic people, we are creating a gold standard measure of neuroinclusion. The Autistica Neurodiversity Employers Index will enable organisations to measure themselves against best practice, with recommendations for improvement, and an annual awards programme. We’ve also launched a range of free resources for employers and run an awareness campaign to encourage organisations to hire differently. We’ve also begun work on a major report on autism and employment led by Sir Robert Buckland KC MP with the Department for Work and Pensions which will be released in early 2024 with a set of recommendations for employers in September this year.
Traditionally we have outsourced the majority of our research – funding universities around the country – but given much of our research is about product development or service design, we are increasingly running projects in-house with collaborative academic or corporate partners. Despite a challenging economic climate, we are experiencing an exciting time of growth, one which is sustainable and most importantly, drives rapid progress for autistic people.
“Over the past report on autism and employment led by Sir few months we Robert Buckland KC MP with the Department for Work and Pensions which will be released have begun to grow the team in early 2024 with a set of recommendations to allow us to for employers in September this year. achieve all that To ensure autistic people and families are supported with high quality information we are developing we’ve set out in an online evidence-led information hub called our Goal plans.” the Autistica Everyday Tips Hub. We’re also collaborating on research to develop a personal Dr James Cusack support profiles assessment for autistic adults.
Dr James Cusack
Chief Executive Officer
We’ve also been in high demand from the media who seem to be more interested in autism and neurodiversity than ever before. We’ve advised on a couple of BBC documentaries and spoken on a hard-hitting Channel 4 Dispatches programme about autistic people in-patient mental health units. This is all helping to change public attitudes about autism.
Autistica Annual Report and Accounts 2023 5
4 Autistica Annual Report and Accounts 2023
Objectives and activities
Our vision, mission, values and goals
At Autistica, research is at the heart of everything that we do. We know that it has the potential to transform everyday lives by making sure that treatments, support and services work for autistic people.
Research and the development of evidence-based solutions is at the core of each of these goals, but so too is working in partnership and campaigning for change. Autistica works in partnership not only to achieve a step change in the amount of resource focused on autism research, but also to ensure that research funding is directed to the areas of greatest need. We act as the bridge between autistic people, the research community and other funders of autism science.
Right now autistic people face far too many inequalities. Most autistic children and adults wait years for a diagnosis, and when they finally receive one, there is little, if any, appropriate support. They experience avoidable challenges throughout education and face the lowest employment rates of any disability. They are more likely to have poor mental health and physical health throughout their lives. And negative attitudes and inaccessible environments can leave many feeling like they just don’t fit into this world.
We also work with key partners in positions of influence over policy and execution to make sure that the evidence generated by the research we support is put into action. Because research without implementation can never result in impact.
But it doesn’t have to be this way.
We have developed a set of six Goals for 2030 that set out our vision of a different world; one where autistic people can access the right support, live in an inclusive and accepting world, and find fulfilling and sustainable work. And these goals are not only visionary and ambitious; they are also achievable.
Our unique approach is driven by and developed with autistic people and families. It can and will make more of a difference for autistic people in both the short and long term.
Our vision
Our mission
is a world where is to create the every autistic breakthroughs person lives a that enable autistic happy, healthy, people to live long life. happier, healthier, longer lives.
We do this by funding research, shaping policy and working with autistic people to make more of a difference.
Our Goals By 2030:
all autistic people will have proven support from day one
the employment rate for autistic people will double
autistic people will have proven treatments for anxiety
public spaces will be more accessible for neurodivergent people
every autistic adult will be offered a yearly, tailored health check
attitudes to autistic people will change
6 Autistica Annual Report and Accounts 2023
Year at a glance
2022-23 Charitable activities spend
Having launched our 2030 Goals in late 2021, the past year has been focused on strategic planning and kickstarting projects and campaigns to achieve them. These are some highlights from key areas of our work.
£641,358
Research staff and research governance
£721,033
Communicating research, staff and governance
£61,741
Enabling and leading world-class research
To achieve our 2030 Goals we kicked off our own internal research projects this year, including the development of a gold-standard neurodiversity employers index and an online information hub for autistic people and families. We have also co-funded research projects with the National Institute of Health Research and NHS England and partnered on collaborative research with organisations across the UK, which led to £5.767 million of external funding for autism research. We also continued to support the next generation of autism researchers with funded studentships and training.
Sharing evidence and campaigning for change
As part of our goal to double the employment rate for autistic people we ran our Hire Different Campaign to highlight outdated recruitment techniques that prevent autistic talent from securing employment. We also started work with the government on a review of autism and employment, with a co-authored report due early 2024. We’ve also continued to advise organisations such as the British Standards Institute who are developing a new neurodiversity standard. We’ve also shared the latest evidence, personal experiences and expert advice through our monthly webinars with academics, clinicians and autistic people.
Ensuring community involvement
We continue to involve autistic people in everything we do and enable researchers to do the same through our research mailing list - the Autistica Network, and the Autistica Insight Group. We helped to recruit for 61 research projects through our 20,000 strong Autistica Network and the Autistica Insight Group shaped the development of 24 research projects. We involved autistic advisors for each of our Goal projects – for example to inform the topic areas in our Everyday Tips Hub and the roll out of an annual health check. We also brought on board a group of autistic advisors as part of the Government Review of Autism and Employment we are supporting.
£
Funding for impact
We have continued to benefit financially from our key long-term supporters, enabling us to start some of our key projects such as our “Personal Support Plans” which will provide autistic people with more information about what their diagnosis means to them. Our partnership with CareTech Foundation continues to help fund our Social Care Action fund which looks into key areas of social care provision that are under researched, with a view to making life changing improvements for those that access adult social care services. And a huge thank you to Fujitsu and all its staff as our partnership came to an end this year after extending the original partnership for another two years - their support and funds have really helped Autistica continue its vital work during a global pandemic and economic instability.
£1,495,431
Total spend
Goal: Employment
£450
Goal: Support from day one
£25,190
Goal: Anxiety
£41,901
Autistica Network - research participation
£3,758
Embracing Complexity - charity coalition
Autistica Annual Report and Accounts 2023 9
8 Autistica Annual Report and Accounts 2023
Progress towards our Goals
Our research
All autistic people will have proven support from day one
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Developing strengths and needs assessments to make sure support can be individually tailored to every autistic person.
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Building a platform to provide practical support and guidance for autistic people and their families about everyday concerns and needs.
The employment rate for autistic people will double
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Launched the Autistica Employers Guide to Neurodiversity which will be continually added to as new evidence and best practice emerges.
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Developing a gold standard benchmarking metric to help companies to create neurodiverse and inclusive workforces, based on best practice guidance.
Autistic people will have proven treatments for anxiety
Public spaces will be more accessible for neurodivergent people
- Continuing to work with the government, public services, commissioners, local authorities, and public research funders to create environments that are autism friendly and account for the diversity of autistic people’s needs.
Every autistic adult will be offered a yearly, tailored health check
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Supporting NHS England as they look to rollout health checks beyond the initial trial.
-
Continuing our research to demonstrate the benefits the health checks give autistic people.
Attitudes to autistic people will change
- Kicking off our innovative new research project, the Autistica Autism Attitudes Index, to track and measure how attitudes to autism change over time.
“Everything Partnerships – collaboration and I read about commissioning funding autism related to young boys. I wanted to change that. We supported a number of other research I’ve been partnerships across the UK as well as involved in a few research The National Autistic Society and other UK studies, and fed training programme to support families. my experiences into various surveys and Research Funding and Development campaigns.”
In 2022 we continued to build on relationships with NIHR and NHSE to commission funding in priority areas for autism and learning disabilities related to health and social care and innovations that make a difference to autistic people’s lives.
We supported a number of other research partnerships across the UK as well as international collaborations. We partnered with The National Autistic Society and other UK charities to design and pilot a peer education training programme to support families.
In total our research partnerships brought in £5,766,895 of external funding for autism research.
Research Funding and Development
Through the generous funding made available from our donors corporate partners trusts Flo, member of the and foundations, we funded £1.495 million Autistica Insight Group of world leading research in the UK
Autistica network and insight group
The Autistica Network - our email network of people interested in taking part in or learning from research, continued to grow and we now have over 20,000 subscribers including professionals, researchers, autistic adults, parents, educators, policy makers. With over 200 people in the Autistica Insight Group, we supported research through co-production and lived experience insights to shape research that makes a difference for autistic people now and in the future.
Research governance – our Scientific review and expert review panels
Independent peer review from scientific advisers and lived experience experts is crucial to our research governance and funding process. All the research we fund is reviewed independently by our scientific lived experience expert review panels, who provide recommendations on the quality of the research to fit its priorities, fit with Autistica’s strategic goals, value for money, opportunity to influence policy, and to make a difference to autistic people’s lives. We are incredibly grateful to the time, knowledge, insights and expertise that our advisors freely provide to ensure we have strong governance, and continuously and improve our charitable aims to shape and fund the highest quality autism research.
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Trialling new approaches that help point us towards anxiety treatments that reduce anxiety for autistic people across their lifespan.
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Continuing our support for our anxiety app Molehill Mountain.
Autistica Annual Report and Accounts 2023 11
10 Autistica Annual Report and Accounts 2023
Driving public policy
Communicating to empower and create change
We have continued to work closely with government and NHS England to drive forward our goals. In April the government announced that we would be supporting them on a review of autism and employment. And we continue to work closely with NHS England to test and implement an annual health check for all autistic people.
Embracing Complexity –
The Buckland Review on autism and employment
a neurodiversity coalition
In March 2023, we were announced as the lead charity on this important review, working with the Department for Work and Pensions and Sir Robert Buckland. We have received a huge amount of interest from other charities, employers and autistic people. We expect the review to launch early next year, and expect the recommendations to be applicable to a wide range of employers across the UK.
We are thrilled that The Waterloo Foundation have pledged £104,600 to support the Embracing Complexity coalition for the next 3 years. We now have 61 members all working together to improve the lives of those with more than one neurodevelopmental condition. We’ve run workshops at public facing events to encourage collaboration amongst charities and people with lived experience and continued to run webinars to share the latest research with member charities and their networks. Embracing Complexity is in the process of research development and we’ve created an Advisory Group of neurodivergent people to help us shape our plans.
“Working with the fantastic charity Autistica, over the coming months we will ask employers, employer groups, groups working with autistic people and autistic people themselves to identify the barriers to job searches and career progression.”
Developing a plan for health checks with NHS England
Autistic people face poor health outcomes, but these could be avoided with better diagnosis and treatment. With support from NHS England we have been working with Newcastle University to develop and test a health check for autistic people. In January 2023, we brought together different stakeholders, including autistic people, commissioners and policymakers, GPs and researchers in two workshops to understand how this check could be implemented across the NHS. Our plan and the evidence so far was released in June 2023.
Collaborating with charities and government
themselves to We continue to be a key player in a number of government and NHS committees, as the identify the charity that feeds in the latest evidence. We sit barriers to on autism-specific advisory boards for NHS job searches England, the Department for Work and Pensions and career and the Department for Education. The national strategy for autistic children, young people and progression.” adults: 2021-2026 was released last year by the Sir Robert Buckland KC Department for Health and Social Care (DHSC) and MP for The Observer encompassed multiple Autistica recommendations. We’re working with other autism charities to advise the DHSC, and ensure progress is made.
“Having adjustments in my interview made all the difference. It’s about time some traditions were broken. #HireDifferent #Autism Acceptance Week”
Autistic adult supporting our Hire Different campaign
Sharing the latest research and drawing the public’s attention to issues that matter to autistic people is crucial for driving progress.
. Autistica webinar series and the
Highlighting autistic ChangeMakers
Thanks to funding from the National Lottery we’ve been able to use our platform to celebrate autistic people who are using their own experiences and skills to create change for other autistic people. These autistic changemakers are progressing research, improving support and changing attitudes. We’ve amplified their voices every month and shared their successes. Given the success of the series, we intend to continue to highlight these individuals and their stories to empower and inspire others in our community and beyond.
Autistica Festival
In 2022 we held the fourth Autistica Research Festival, with sponsorship again from Fujitsu. We had 67 researchers presenting, 10 autistic people sharing their personal experiences and 5000 views of content over the course of the Festival. Despite the success of the event we have decided to change our events calendar next year and instead, spread events throughout the year. Based on audience feedback, we think this might mean less information overload for those attending, and may prove easier to manage internally. We may well revisit the Festival format again in the future.
Shaping the media and changing attitudes
As the voice of research, we have been asked to advise on a number of media stories and productions. Our Chief Executive was the lead advisor for the highly praised BBC documentary about Christine McGuinness, and advised and appeared on the harrowing Channel 4 Dispatches film about autistic people in inpatient mental health units. Neurodiversity and autism is certainly rising up the media agenda, and we’re pleased to see such indepth journalism being carried out which promotes research and the power that it has to transform lives
Campaigning to get employers to #HireDifferent
In World Autism Acceptance Week 2023 we launched a campaign to help the world understand why interviews aren’t working for autistic people. With billboards in cities across the UK and social media videos, quotes and messages we called for employers to make small changes that could make a big difference to autistic talent. We also used the campaign to encourage companies to download the Autistica Employers Guide to Neurodiversity. Thanks to the campaign, over 1000 companies have downloaded this resource.
Autistica Annual Report and Accounts 2023 13
12 Autistica Annual Report and Accounts 2023
Funding and support
£16,547 Investments
£150 Legacy
Looking ahead
We are so grateful to our loyal donors, partners, and trusts and foundations who support us to achieve our mission. Many of whom support us for multiyear projects that drive real and lasting change.
Trusts and foundations
Corporate and major donors
£383,416 We have a number of long-term funding Trusts partnerships in progress which are enabling major projects to make significant progress. With funding from CareTech Foundation, we are running the £287,560 Social Care Action Fund which is fostering research into important, under-researched areas of social Major donors care provision accessed by or impacting autistic adults. The fund launched last year and continues for three years, with the goal of enabling researchers £273,179 to develop high quality research proposals to Corporate submit to the National Institute for Health and Care Research’s (NIHR) Research for Social £241,941 Care Call (RfSC). In addition, we have received significant support from the London Stock Exchange Gifts in kind Foundation, who have provided funding towards the development of our Neurodiversity Employers Index.
Despite coming to the end of our four-year partnership with Fujitsu, the leading tech company continued to show their commitment to neurodiversity in the workplace by sponsoring the development of the Autistica Employers Guide to Neurodiversity released in March 2023. The resources have already benefitted hundreds of companies and generated a pool of 1,000 corporate contacts. GamesAid continued its unwavering support for Autistica, with GamesAid members choosing to support our cause once again.
Our Major Donors and members of our renamed giving club; the Autistica 2030 Club, continue to support us to achieve our Goals, and connect us with others who can fund or progress the Goals further. In turn, we involve them in special events and personalised updates that bring them closer to our work. This year our major donors have made significant gifts that have kickstarted our employment and support Goal projects, including our “Personal Support Plans” project which will provide autistic people with more information about what their diagnosis means to them.
£163, 621
We also have projects ongoing thanks to funding Other income in 2021-22 from the Peter Sowerby Foundation (for the development of annual health checks for autistic people) and The Maudsley Trust (for our anxiety app Molehill Mountain, developed with King’s College £69,510 London). We have another multi-year partnership Events with Waterloo Foundation, whose funding is enabling us to lead the unique Embracing Complexity £54,057 Coalition which brings together 61 charities to better support people who think differently.
£54,057 Gift aid
“ Many people of colour were labeled as difficult and disruptive in school and face higher rates of hospitalisations and negative police interactions likely because of undiagnosed neurodiversity. More research can help facilitate the development of more effective support and interventions.”
Ben, Autistica Network member (pictured)
Progressing our Goals
We have developed robust plans for achieving four of our goals and will continue to meet the milestones set out in these plans, with project leads now in place on key projects. And we will be pushing hard to get a research plan developed as promised by the government to progress some of the research goals within our plans.
Strengthening our relationships and influence
We know we can’t achieve our Goals alone. We’ll be using every opportunity to find champions in government, policymaking, business and beyond to ensure that we continue to make progress and reach new audiences. We look forward to the release of the Buckland Review on autism and employment in early 2024 which will establish Autistica as the authority and should bring in organisations who can help us to influence employers across the UK.
Bringing more research and development in-house
Many of the projects within our goal plans involve both research and solution development – for example the development of the Everyday Tips Hub and Neurodiversity Index. Given the range of skills we have at Autistica we are bringing more and more projects in-house. We will continue to monitor and explore the right balance of in-house research and external projects, but intend to always fund and co-fund externally as we do now.
Optimising our income
After reviewing and streamlining the fundraising team this year we are now better placed to push forward with our new business aspirations in 2023-24, including exploring new opportunities to generate income in addition to our standard income streams.
In fundraising our key goal is to ensure we can provide long-term financial stability to the charity therefore we will continue to focus on multi-year partnership opportunities as well as opportunities where we have a greater chance of securing funding.
Growing and developing our team
Over the course of the next year we will be recruiting some members to the research and communications team to enable us to deliver on the Goals projects that we are running in-house. We’re also focusing more than ever on staff wellbeing and development, and continually looking to improve how we recruit, support and retain all staff and we especially want to showcase best-practice when it comes to inclusivity of neurodivergent staff.
Individual donors
We continued to benefit from the generosity of £53,645 our supporters through one-off gifts, and regular Individuals monthly contributions, community fundraisers and those participating in various challenge events, including the TCS Money London Marathon which raised circa £70,000 in October.
£1,543,626 To be upated Total income
14 Autistica Annual Report and Accounts 2023
Public benefit and impact
The trustees have referred to the Charity Commission’s guidance on public benefit in relation to the charity’s aims and objectives. The trustees consider it important to demonstrate to supporters and others interested in our work that the research we have funded will support breakthroughs, create tangible progress, and enhance understanding.
Autistic people and family members play an active role across our work. The Autistica Network provides autistic people with the opportunity to be involved in research as participants and advisers. It also gives researchers a valuable resource to recruit to their studies.
Autistic people and families are at the heart of work, our national research network and embedded within our wider governance processes. By involving our community, we can create breakthroughs that enable all autistic people to live happier, healthier, longer lives.
Our Insight Group provide more specialised input to our and others’ work, including co-designing research studies, providing advice on how to best involve autistic people in studies, and reviewing research proposals and Autistica Research Festival submissions to help make sure we support only the best quality research.
We know how important it is that scarce resources are deployed on research that is not just important to families but is also of the highest quality, internationally competitive and does not inappropriately duplicate investment made elsewhere. As a member of the Association of Medical Research Charities we are committed to the highest possible standards of research governance. Independent peer review underscores all the research that we fund.
In addition to the Scientific Review Panel which scores and deliberates on all our research proposals, we are fortunate to benefit from independent scientific advice from world-leading experts in neurodevelopmental conditions, including autism.
Autistica is regulated by the Fundraising Regulator. We are committed to best practice in fundraising and customer service. We promise to keep our supporters informed about our work and to treat their information with respect.
“ After graduating university I found it difficult to find a job, the interview processes never seemed to test the things that should actually matter.”
Jacob, autistic data analyst (pictured)
We’re getting employers to do things differently.
With our Hire Different campaign, the Autistica Employers Guide to Neurodiversity and work with the Department of Work and Pensions, this year we have educated thousands of employers across the UK about how they can recruit, train and retain autistic talent.
Autistica Annual Report and Accounts 2023 17
Structure, governance and management
“They include autistic people in the conversation and our love of knowledge and factfinding means we’re actually pretty good at advocating for ourselves - so long as the information is available. Their research enables that.”
Fern Brady, Autistic comedian
How we are governed
Autistica was registered as a charity in December 2004 and its governing document is its Memorandum and Articles of Association, which were adopted on 20 July 2004. Autistica is incorporated under the Companies Act 2006 as a company limited by guarantee having no share capital. For the purposes of this Act, the chair and other trustees (none of whom receives any remuneration) are the directors of the company. A full list of trustees, together with other legal and administrative information, can be found at the front of this report.
The board of trustees meets formally four times a year and additionally relies on subcommittees to provide further oversight of the work of the charity (see page 39). Each is chaired by a trustee. All key decisions, including the allocation of funds for research, are taken at full meetings of the trustee board.
On 31 March 2023 there were seven members of our trustee board. Trustees may serve for up to two terms of three years and are appointed in accordance with the Memorandum and Articles of Association. Professor Dr Hilde Geurts resigned from the board in July 2022 and John Carey retired in July 2023..
The following issues are addressed by the trustees during the year:
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developing and reviewing the organisational strategy
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reviewing progress against our business plan and research strategy
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agreeing and monitoring an annual business and financial plan
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the award of all grants for research
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the risks the charity is facing in delivering its plans
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the impact of the charity’s work
Each year the skills and expertise required within the trustee board are reviewed to help the charity deliver its objectives. If gaps are identified or a vacancy occurs, new trustees with the appropriate skills and experience are identified. All trustees are offered a full induction when they join, and trustee training is available to keep trustees up to date with the environment in which the charity operates.
How we are managed
The chief executive is responsible to the board of trustees for the management of the charity. The director of fundraising, director of external affairs and head of research report to the chief executive. Remuneration for senior staff is set at market rates and reviewed annually by the board.
The offices of the charity are registered in Islington.
Risk management
The trustees formally consider the major risks faced by the charity as part of a risk management strategy that comprises:
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an annual review of the risks faced by the charity in delivering its plans
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the establishment of systems and procedures to manage those risks identified in the review
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the implementation of procedures designed to minimise any potential negative impact on the charity should those risks materialise
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raising awareness, amongst staff and trustees, of the risk of fraud and the steps to mitigate that risk to the charity
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increasing team capacity to mitigate cyber fraud, seeking expert advice and raising awareness of risks among staff
The charity has identified a number of key risks this year, including the continued impact of Covid-19 on research, fundraising, policy influencing, communications and staff; the stability of our current staff team after a year of significant change; rising costs as a result of the high level of inflation, and; the medium-term effect of Brexit on income, income diversification and improving national and international collaborations in autism research. Our loyal donor base and compelling external relationships put us in a strong position to maintain income and influence and continue supporting UK autism research. We actively seek new partnerships within and beyond autism science and build pro bono support to increase capacity.
“The ideas in this plan have the potential to transform support for autistic people.
The Government and NIHR need to join Autistica in doing their bit.”
Dr Carole Buckley, Royal College of General Practitioners on the Autistica support plan.
Financial Performance
The total income for the year was £1,543,626 (2021-22: £1,501,242). It has been a challenging fundraising environment, and thanks to the generosity of our donors we have been able to maintain our income levels.
The cost of raising funds was £302,483 (202122: £286,545). We spent £1,495,431 (2021-22: £1,210,522) on charitable activities, including £774,398 (2021-22: £726,130) on grants for medical research and £721,033 (2021-22: £484,392) on medical research dissemination.
We have been able to make use of our reserves in the year to offset the loss on operating activities of £254,288 (2021-22: £4,175).
Reserves
The trustees review the reserves policy annually and consider the charity should hold free reserves of approximately £700,000 (2021-22: £700,000) to cover six months’ operating costs plus a contingency of £50,000 (2021-22: £50,000). At 31 March 2023 the charity had free reserves excluding designated funds of £841,439 (2021-22: £1,459,904). Our designated funds were £nil (2021-22: £nil).
At 31 March 2023 the charity had restricted reserves of £708,179 (2021-22: £370,957).
Investments
Free reserves and other surplus cash are held in interest- bearing deposit accounts with authorised UK deposit takers or in regulated money market funds with a maximum of three to four months operating costs (c. £250,000) held in the current account.
Cash outside of the current account should be held in individual interest-bearing deposit accounts with authorised UK deposit takers which benefit from the government Financial Services Compensation Scheme (currently up to £85,000), using the Insignis cash management platform. The maximum amount per deposit account should not exceed £100,000. These can be a mix of instant or close to instant access and longer-term access accounts.
A maximum of 50% of total cash or £1,100,000, whichever is lower, can be held in regulated money market funds with an AAA rating from Fitch and/ or S&P Global, provided that the funds offer instant or close to instant access. A maximum of 25% of total cash or £750,000, whichever is the lower, can be held in equities or funds in line with the asset investment policy. These should be managed by a regulated asset manager. Investments are reviewed by the finance committee, which meets four times a year, and trustees are advised of any recommended changes at full meetings of the trustee board.
At present we have no investment funds which relate to this policy due to liquidating these funds in 2022-23 in the current financial year..
Going concern statement
The trustees have carefully considered the level of funds held and the expected level of income and expenditure for 12 months from the approval of these financial statements. The trustees have concluded that the budgeted income and expenditure is sufficient with the level of reserves for the charity to be able to continue as a going concern. In addition, we have a significant donation and corporate commitments expected in 2023-24.
Approval
The report has been prepared in accordance with the Charities Statement of Recommended Practice (SORP) (FRS 102) and in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to smaller entities. The trustees’ report and financial statements were approved by the board of trustees on 30 November 2023
On behalf of the Board
Matthew Harris
Honorary Treasurer 30 November 2023
Autistica Annual Report and Accounts 2023 19
18 Autistica Annual Report and Accounts 2023
Statement of trustee’s responsibilities
The trustees are responsible for keeping adequate accounting records that disclose with reasonable accuracy at any time the financial position of the charitable company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
Statement of disclosure to auditors
The trustees (who are also directors of Autistica for the purposes of company law) are responsible for preparing the trustees’ annual report (including the strategic report) and financial statements in accordance with applicable law and United Kingdom accounting standards (United Kingdom Generally Accepted Accounting Practice).
Company law requires the trustees to prepare financial statements for each financial year that give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period.
Insofar as the trustees are aware:
-
there is no relevant audit information of which the charitable company’s auditor is unaware
-
the trustees have taken all steps that they ought to have taken to make themselves aware of any relevant audit information and to establish that the auditor is aware of that information.
In preparing these financial statements, the trustees are required to:
-
select suitable accounting policies and then apply them consistently
-
observe the methods and principles in the Charities SORP 2015 (FRS 102)
Stephen Boyle
Chair of Trustees 30 November 2023
-
make judgements and estimates that are reasonable and prudent
-
state whether applicable UK Accounting
-
Standards have been followed, subject to any material departures disclosed and explained in the financial statements
-
prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charitable company will continue in operation
----- Start of picture text -----
“ It is a constant
fight to get
support, and
not everyone
can advocate
for themselves.
Autistica’s Goal
to make sure
every autistic
person gets
support from
day one is really
important.”
Chris, Autistica
supporter (pictured)
Autistica Annual Report and Accounts 2023 21
----- End of picture text -----
20 Autistica Annual Report and Accounts 2023
Independent auditor’s report to members
Independent auditor’s report to members continued
Opinion
We have audited the financial statements of Autistica (the ‘charitable company’) for the year ended 31 March 2023 which comprise the Statement of Financial Activities, the Balance Sheet, the Cash Flow Statement and the related notes. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including FRS 102 “The Financial Reporting Standard applicable in the UK and Republic of Ireland” (United Kingdom Generally Accepted Accounting Practice).
In our opinion the financial statements:
-
give a true and fair view of the state of the charitable company’s affairs as at 31 March 2023 and of its incoming resources and application of resources, including its income and expenditure, for the year then ended;
-
have been properly prepared in accordance with United Kingdom Generally Accepted Accounting Practice; and
-
have been prepared in accordance with the requirements of the Companies Act 2006.
Basis for opinion
We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the charitable company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.
Conclusions relating to going concern
In auditing the financial statements, we have concluded that the trustees use of the going concern basis of accounting in the preparation of the financial statements is appropriate.
Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the charitable company’s ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.
Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report.
Other information
The other information comprises the information included in the Trustees Annual Report, other than the financial statements and our auditor’s report thereon. The trustees are responsible for the other information contained within the annual report. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon. Our responsibility is to read the other information and, in doing so, consider whether the other information is materially
inconsistent with the financial statements or our knowledge obtained in the course of the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact.
We have nothing to report in this regard.
Opinions on other matters prescribed by the Companies Act 2006
In our opinion, based on the work undertaken in the course of the audit:
-
the information given in the Trustees’ Report and the incorporated Strategic Report prepared for the purpose of company law for the financial year for which the financial statements are prepared is consistent with the financial statements; and
-
the Trustees’ Report and the incorporated Strategic Report have been prepared in accordance with applicable legal requirements.
Matters on which we are required to report
by exception
In the light of the knowledge and understanding of the charitable company and its environment obtained in the course of the audit, we have not identified material misstatements in the Trustees’ Report and the incorporated Strategic Report.
We have nothing to report in respect of the following matters where the Companies Act 2006 requires us to report to you if, in our opinion:
-
adequate accounting records have not been kept, or returns adequate for our audit have not been received from branches not visited by us; or
-
the financial statements are not in agreement with the accounting records and returns; or
-
certain disclosures of trustees’ remuneration specified by law are not made; or
-
we have not received all the information and explanations we require for our audit.
Responsibilities of trustees
As explained more fully in the Statement of Trustees’ responsibilities set out on page 22, the trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.
In preparing the financial statements, the trustees are responsible for assessing the charitable company’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so.
Auditor’s responsibilities for the audit of the financial statements
Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor’s report that includes our opinion. Reasonable assurance is a high level of assurance, but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.
Extent to which the audit was considered capable
of detecting irregularities, including fraud
Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above and on the Financial Reporting Council’s website, to detect material misstatements in respect of irregularities, including fraud.
We obtain and update our understanding of the entity, its activities, its control environment, and likely future developments, including in relation to the legal and regulatory framework applicable and how the entity is complying with that framework. Based on this understanding, we identify and assess the risks of material misstatement of the financial statements, whether due to fraud or error, design and perform audit procedures responsive to those risks, and obtain audit evidence that is sufficient and appropriate to provide a basis for our opinion. This includes consideration of the risk of acts by the entity that were contrary to applicable laws and regulations, including fraud.
In response to the risk of irregularities and non-compliance with laws and regulations, including fraud, we designed procedures which included:
-
Enquiry of management and those charged with governance around actual and potential litigation and claims as well as actual, suspected and alleged fraud;
-
Reviewing minutes of meetings of those charged with governance;
-
Assessing the extent of compliance with the laws and regulations considered to have a direct material effect on the financial statements or the operations of the company through enquiry and inspection;
-
Reviewing financial statement disclosures and testing to supporting documentation to assess compliance with applicable laws and regulations;
-
Performing audit work over the risk of management bias and override of controls, including testing of journal entries and other adjustments for appropriateness, evaluating the business rationale of significant transactions outside the normal course of business and reviewing accounting estimates for indicators of potential bias.
As part of an audit in accordance with ISAs (UK), we exercise professional judgment and maintain professional scepticism throughout the audit. We also:
-
Identify and assess the risks of material misstatement of the financial statements, whether due to fraud or error, design and perform audit procedures responsive to those risks, and obtain audit evidence that is sufficient and appropriate to provide a basis for our opinion. The risk of not detecting a material misstatement resulting from fraud is higher than for one resulting from error, as fraud may involve collusion, forgery, intentional omissions, misrepresentations, or the override of internal control.
-
Obtain an understanding of internal control relevant to the audit in order to design audit procedures that are appropriate in the circumstances, but not for the purpose of expressing an opinion on the effectiveness of the charitable company’s internal control..
-
Evaluate the appropriateness of accounting policies used and the reasonableness of accounting estimates and related disclosures made by the trustees.
-
Conclude on the appropriateness of the trustees’ use of the going concern basis of accounting and, based on the audit evidence obtained, whether a material uncertainty exists related to events or conditions that may cast significant doubt on the charitable company’s ability to continue as a going concern. If we conclude that a material uncertainty exists, we are required to draw attention in our auditor’s report to the related disclosures in the financial statements or, if such disclosures are inadequate, to modify our opinion. Our conclusions are based on the audit evidence obtained up to the date of our auditor’s report. However, future events or conditions may cause the charitable company to cease to continue as a going concern.
-
Evaluate the overall presentation, structure and content of the financial statements, including the disclosures, and whether the financial statements represent the underlying transactions and events in a manner that achieves fair presentation (ie. gives a true and fair view).
We communicate with those charged with governance regarding, among other matters, the planned scope and timing of the audit and significant audit findings, including any significant deficiencies in internal control that we identify during our audit.
Use of our report
This report is made solely to the charitable company’s members, as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006. Our audit work has been undertaken so that we might state to the charitable company’s members those matters we are required to state to them in an auditor’s report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company’s members as a body, for our audit work, for this report, or for the opinions we have formed.
Michelle Wilkes FCA
Senior Statutory Auditor, Chartered Accountants For and on behalf of Azets Audit Services First Floor, River House
1 Maidstone Road Sidcup Kent DA14 5RH
12 December 2023
Autistica Annual Report and Accounts 2023 23
22 Autistica Annual Report and Accounts 2023
Statement of Financial Activities, including Income and Expenditure
Balance Sheet as at 31 March 2023
for the year ending 31 March 2023
----- Start of picture text -----
Year ending Year ending
31 March 2023 31 March 2022
Income from Notes Unrestricted Restricted Total Funds Total Funds
£ £ £ £
Donations 2 922,792 604,287 1,527,079 1,496,886
Investments 16,547 - 16,547 4,356
Total income 939,339 604,287 1,543,626 1,501,242
Expenditure on
Costs of raising funds
Costs of generating donations 3 273,083 - 273,083 252,326
Cost of events 3 29, 400 - 29,400 34,219
302,483 - 302,483 286,545
Expenditure on charitable activities
Grants for medical research 4 658,249 116,149 774,398 726,130
Medical research dissemination 4 638,343 82,690 721,033 484,392
1,296,592 198,839 1,495,431 1,210,522
Total expenditure 1,599,075 198,839 1,797,914 1,497,067
Net (expenditure)/income
before gains and losses on
investments and transfers (659,736) 405,448 (254,288) 4,175
Net (losses)/gains on investments 9 (26,955) - (26,955) 41,885
Transfer between funds 14 68,226 (68,226) - -
Net movement in funds (618,465) 337,222 (281,243) 46,060
Total funds brought forward 1,459,904 370,957 1,830,861 1,784,801
Total funds carried forward 841,439 708,179 1,549,618 1,830,861
----- End of picture text -----
The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure is derived from continuing operations.
| Notes Fixed assets Tangible assets 8 Investments 9 Current assets Debtors - amounts falling due within one year 10 Cash at bank Creditors Creditors: amounts falling due within one year 11 |
2023 2022 £ £ £ £ - - - 501,542 - 501,542 269,371 108,484 1,600,572 1,560,879 1,869,943 1,669,363 (285,647) (305,366) |
2023 2022 £ £ £ £ - - - 501,542 - 501,542 269,371 108,484 1,600,572 1,560,879 1,869,943 1,669,363 (285,647) (305,366) |
2023 2022 £ £ £ £ - - - 501,542 - 501,542 269,371 108,484 1,600,572 1,560,879 1,869,943 1,669,363 (285,647) (305,366) |
2023 2022 £ £ £ £ - - - 501,542 - 501,542 269,371 108,484 1,600,572 1,560,879 1,869,943 1,669,363 (285,647) (305,366) |
|---|---|---|---|---|
| Net current assets | 1,584,296 | 1,363,997 | ||
| Total assets less current liabilities Creditors Creditors: amounts falling due after one year 12 |
1,584,296 (34,678) |
1,865,539 (34,678) |
||
| Net assets | 1,549,618 | 1,830,861 | ||
| Reserves Unrestricted funds - general 13 Designated funds 13 Restricted funds 14 |
841,439 - 708,179 |
1,459,904 - 370,957 |
||
| Total funds 15 |
1,549,618 | 1,830,861 |
Approved by the board of trustees on 30 November 2023 and signed on behalf of the board
Matthew Harris Honorary Treasurer Company Registration Number: 05184164
Autistica Annual Report and Accounts 2023 25
24 Autistica Annual Report and Accounts 2023
Statement of Cash Flows
Notes to financial statements
for the year ending 31 March 2023
for the year ending 31 March 2023
| Notes | 2023 | 2022 | ||
|---|---|---|---|---|
| £ | £ |
|||
| Net cash (outflow) from operating activities | 16 | (451,442) | (363,560) | |
| Cash flow from investing activities | ||||
| Bank interest | 16,547 | 4,356 |
||
| Proceeds from sale of investments | 474,587 | - |
||
| Net cash from investing activities | 491,134 | 4,356 |
||
| Net increase/(decrease) in cash | 39,692 | (359,204) |
||
| Cash and cash equivalents at beginning of year | 1,560,880 | 1,920,084 |
||
| Cash and cash equivalents at the end of the year | 1,600,572 1,560,880 |
1. Accounting policies
a) Basis of preparation
Autistica is a company limited by guarantee in the United Kingdom. In the event of the charity being wound up, the liability in respect of the guarantee is limited to £1 per member of the charity. The address of the registered office is given in the charity information on page 4 of these financial statements. The nature of the charity’s operations and principal activities are set out on page 6.
The charity constitutes a public benefit entity as defined by FRS 102. The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland issued in October 2019, the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102), the Charities Act 2011 and UK Generally Accepted Accounting Practice.
The financial statements are prepared on a going concern basis under the historical cost convention, modified to include certain items at fair value. The financial statements are prepared in sterling which is the functional currency of the charity.
The significant accounting policies applied in the preparation of these financial statements are set out below. These policies have been consistently applied to all years presented unless otherwise stated.
b) Income
All income is included in the Statement of Financial Activities (SoFA) when the charity is legally entitled to the income after any performance conditions have been met, the amount can be measured reliably and it is probable that the income will be received.
For donations and grants receivable are included in full in the Statement of Financial Activities when receivable.
Investment income is accounted for when received. Tax recoverable on investment income is accounted for on a receivable basis.
Other income is included in full in the Statement of Financial Activities when receivable.
Gifts in kind and donated services are included at the open market value of the goods or services provided.
c) Expenditure
All expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all costs related to the category. Expenditure is recognised where there is a legal or constructive obligation to make payments to third parties, it is probable that the settlement will be required and the amount of the obligation can be measured reliably.
It is categorised under the following headings:
-
Raising funds are those costs incurred in attracting voluntary income.
-
Expenditure on charitable activities includes expenditure associated with grants for medical research and medical research dissemination. Grants payable are accounted for at the point that either conditions for receipt have been satisfied or the post being funded is filled.
d) Fund accounting
Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objectives of the charity and which have not been designated for other purposes
Restricted funds are funds which are to be used in accordance with specific restrictions imposed by donors or which have been raised by the charity for particular purposes. The cost of raising and administering such funds are charged against the specific fund. The aim and use of each restricted fund is set out in the notes to the financial statements.
The designated fund balance has been represented to ensure that fund balance stated accurately reflects the designation policy adopted by the trustees.
e) Tangible fixed assets
| All assets costing over £5,000 are capitalised. Tangible fixed |
|---|
| assets are stated at cost less depreciation. Depreciation is |
| provided at rates calculated to write of the cost or valuation |
| of fixed assets, less their estimated residual value, over their |
| expected useful lives as follows: |
| • Computer equipment 33% straight line |
| • Other equipment and fittings 25% straight line |
f) Debtors and creditors receivable / payable within one year
Debtors and creditors with no stated interest rate and receivable or payable within one year are recorded at transaction price. Any losses arising from impairment are recognised in expenditure.
g) Leasing commitments
“Assets acquired under finance leases are capitalised and depreciated over the shorter of the lease term and the expected useful life of the asset. Minimum lease payments are apportioned between the finance charge and the reduction of the outstanding lease liability using the effective interest method. The related obligations, net of future finance charges, are included in creditors.
Rentals payable and receivable under operating leases are charged to the SoFA on a straight line basis over the period of the lease.
Autistica Annual Report and Accounts 2023
26 Autistica Annual Report and Accounts 2023
27
Notes to financial statements for the year ending 31 March 2023
Notes to the Financial Statements for the year ending 31 March 2023
advancement, future investments, economic utilisation and the physical condition of the assets. See note 8 for the carrying amount of the tangible fixed assets, and note 1(e) for the useful economic lives for each class of assets.
h) Going concern
The financial statements have been prepared on a going concern basis, but the Trustees recognise that the economic impact of coronavirus still remains unclear. The trustees have carefully considered the level of funds held and the expected level of income and expenditure for 12 months from the approval of these financial statements. The trustees have concluded that the budgeted income and expenditure is sufficient with the level of reserves appropriate for the charity, in the current circumstances, to be able to continue as a going concern.
Bad debts
Debtors are regularly reviewed for recoverability. Any debts which in the opinion of trustees are not recoverable are provided for as a specific bad debt.
The are no key assumptions concerning the future and other key sources of estimation uncertainty at the reporting date that have a significant risk of causing a material adjustment to the carrying amounts of assets and liabilities within the next financial year.
i) Judgements and key sources of estimation uncertainty
The following judgements (apart from those involving estimates) have been made in the process of applying the above accounting policies that have had the most significant effect on amounts recognised in the financial statements:
j) Fixed Asset Investments
Investments are recognised initially at fair value which is normally the transaction price excluding transaction costs. Subsequently, they are measured at fair value with changes recognised in ‘net gains / (losses) on investments’ in the SoFA if the shares are publicly traded or their fair value can otherwise be measured reliably. Other investments are measured at cost less impairment.
Useful economic lives of tangible assets
The annual depreciation charge for tangible assets is sensitive to changes in the estimated useful economic lives and residual values of the assets. The useful economic lives and residual values are re-assessed annually. They are amended when necessary to reflect current estimates, based on technological
2. Income
| Income | |
|---|---|
| 2023 2022 £ £ |
|
| Donations Gifts in kind Challenge events Unrestricted income Restricted donations |
611,591 944,646 241,941 5,082 69,260 25,585 |
| 922,792 975,313 |
|
| 604,287 521,573 |
|
| Total income | 1,527,079 1,496,886 |
| Gifts in kind | 2023 2022 £ £ |
| Costs of activities for generating funds, challenge events Charitable activities, website Charitable activities, administrative support costs - Unrestricted Charitable activities, disseminating information on autism and autism research - Restricted |
122,250 - 1,608 3,207 3,096 1,875 114,987 - |
| 241,941 5,082 |
3. Cost of raising funds
| Cost of raising funds | |
|---|---|
| Costs ofgenerating donations | 2023 2022 £ £ 9,629 12,034 38,290 36,103 82,702 44,952 142,463 159,237 273,084 252,326 2023 2022 £ £ 15,176 30,951 8,520 168 5,704 3,100 29,400 34,219 |
| Website, database, literature and PR costs Other fundraising expenses Allocation of administrative support costs (note 6) Staf costs (note 7) Cost of Events |
|
| Challenge events costs Other event costs Allocation of administrative support costs (note 6) |
4. Expenditure on charitable activities
| Expenditure on charitable activities | |
|---|---|
| Grants for medical research | Unrestricted Restricted 2023 2022 £ £ £ £ |
| The Institute of Psychiatry, Psychology & Neuroscience Discover Network Ambitious about Autism Adolescent Psychoeducation MQ Fellow DARE Embracing Complexity Epilepsy Fellowship GP Barriers - Health Checks Social Care Development Award START Governance costs (Note 5) Grant Administration costs (Note 6) Staf costs(Note 7) |
- 25,190 25,190 96,019 32,860 9,041 41,901 11,504 - - - 3,500 - - - 1 - - - - 61,741 - 61,741 60,786 - 3,758 3,758 11,971 - - - 13,412 - - - 15,873 - - - 16,681 - 450 450 - 35,968 - 35,968 21,213 193,921 - 193,921 105,407 333,759 77,710 411,469 369,764 |
| Total grant expenditure | 658,249 116,149 774,398 726,130 |
| Research dissemination Governance costs (note 5) Staf costs (note 7) |
268,616 4,980 273,596 93,415 35,968 - 35,968 21,213 333,759 77,710 411,469 369,764 |
| 1,296,592 198,839 1,495,431 1,210,522 |
The above activities were organised by the charity. Income from activities organised by individuals and donated to the charity are included in voluntary income.
Autistica Annual Report and Accounts 2023
28 Autistica Annual Report and Accounts 2023
29
Notes to the Financial Statements for the year ending 31 March 2023
Notes to the Financial Statements for the year ending 31 March 2023
5. Governance costs
| Governance costs | |
|---|---|
| 2023 2022 £ £ |
|
| External audit Trustees’ liability insurance Consultancy & recruitment costs Other governance costs Allocation of administrative support costs (Note 6) Staf costs (Note 7) |
28,748 12,180 3,260 3,248 20,940 15,600 7,985 966 2,852 1,550 8,151 8,882 |
| 71,936 42,426 |
No Trustees were paid during this period. One trustee received reimbursements for travel expenses totalling £325 (2022 : none) Governance costs were allocated equally against Grants and Dissemination expenditure in Charitable Activities.
6. Administrative support costs
The following administrative support costs are allocated between other categories of expenditure as detailed below. Costs are attributed directly where possible and the balance is allocated based on time spent by trustees, staff and consultants.
| 2023 2022 £ £ |
|
| Telephone IT Expenditure Stationery, copying, postage and other ofice expenses Staf recruitment and professional development Rent and rates Accountancy Other Staf costs(note 7) |
1,537 4,561 32,414 25,986 8,168 4,039 51,530 50,264 70,615 15,019 71,850 - 13,443 24,904 35,622 30,236 |
| Total support costs | 285,179 155,009 |
| These are divided: Generating donations 29% (Note 3) Events 2% (Note 3) Charitable activities 68% (Note 4) Corporate governance 1% (Note 5) |
82,702 44,952 5,704 3,100 193,921 105,407 2,852 1,550 |
| 285,179 155,009 |
The increase in rent and rates is due to the charity moving into new office accommodation. During the previous financial year, the charity managed without any significant office space following the end of its previous lease in 2020. The increase in accountancy fees reflects the appointment of temporary finance staff to cover for a permanent vacancy which was filled after the year end.
7. Staff costs
| Staf costs | |
|---|---|
| 2023 2022 £ £ |
|
| Salaries Social security costs Pension costs Redundancy Costs These are allocated: |
880,697 829,748 102,587 87,588 23,240 20,547 2,650 - |
| 1,009,174 937,883 |
|
| Generating donations (Note 3) Charitable activities Corporate governance (Note 5) Administration - support costs (Note 6) |
142,463 159,237 822,938 739,528 8,151 8,882 35,622 30,236 |
| 1,009,174 937,883 |
The charity employed 16 full-time and 5 part-time staff members during the year to 31 March 2023 (2022: 16 full-time and 8 part-time). Staff costs are allocated between the various activities according to time spent.
| The charity employed 16 full-time and 5 part-time staf members during the year to 31 March 2023 (2022: 16 full-time and 8 part-time). Staf costs are allocated between the various activities according |
to time spent. | |
|---|---|---|
| 2023 | 2022 | |
| The amounts disclosed above include the following number of highly paid employees: | no. | no. |
| £80,000-£90,000 | 1 | 1 |
The total amount of employee benefits received by key management personnel is £302,791 (2022 - £216,391). Higher staff costs are explained by an increase in members of the senior team. Any pay rises were in line with sector level trends and were in line with any increases awarded to the rest of the team.
The charity considers its key management personnel to comprise those individuals listed on page 3.
8. Tangible fixed assets
| Tangible fxed assets | |
|---|---|
| Cost | Computer equipment Other equipment and fittings Total £ £ £ |
| As at 1 April 2022 and 31 March 2023 | 2,760 1,285 4,045 |
| Depreciation | |
| As at 1 April 2022 Charge for theyear |
2,760 1,285 4,045 - - - |
| As at 31 March 2023 | 2,760 1,285 4,045 |
| Net book value at 31 March 2023 Net book value at 31 March 2022 |
- - - |
| - - - |
Autistica Annual Report and Accounts 2023 31
30 Autistica Annual Report and Accounts 2023
Notes to the Financial Statements for the year ending 31 March 2023
Notes to the Financial Statements for the year ending 31 March 2023
9. Investments
| Investments | |
|---|---|
| Market Value | 2023 2022 £ £ |
| As at 1 April 2022 Disposals Unrealised (Loss)/gain |
501,542 459,657 (474,587) - (26,955) 41,885 |
| As at 31 March 2023 | - 501,542 |
| Historical cost Investments at fair value comprise Fixed income Equities Alternatives Cash |
- 386,995 |
| - 48,855 - 344,153 - 92,791 - 15,743 |
|
| - 501,542 |
There were no material investments in 2022. During the year ended 31 March 2023 the charity disposed of its investment portfolio.
At 31 March 2023, all investments are carried at their fair value. Investments in equities are all traded in quoted public markets, primarily the London Stock Exchange. Holdings in common investment funds, unit trusts and open-ended investment companies are at the bid price. The basis of fair value for quoted investments is equivalent to the market value, using the bid price. Asset sales and purchases are recognised at the date of trade at cost (that is their transaction value).
10. Debtors: amounts falling due within one year
| 0. Debtors: amounts falling due within one year | |
|---|---|
| 2023 2022 £ £ |
|
| Other debtors Prepayments and accrued income |
190,702 46,600 78,669 61,884 |
| 269,371 108,484 |
11. Creditors: amounts falling due within one year
| . Creditors: amounts falling due within one year | ||
|---|---|---|
| 2023 | 2022 | |
| £ | £ | |
| Trade creditors | 21,982 | 33,958 |
| Other creditors | 28,718 | 25,107 |
| Grant commitments (see Note 12 below) | 146,092 | 229,429 |
| Accruals and deferred income | 88,855 | 16,872 |
| 285,647 | 305,366 |
12. Creditors: amounts falling due after more than one year
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2023 2022
£ £
Grant commitments (see table below) 34,678 131,950
Less than 1 yr More than 1 yr Total
£ £ £
At 1 April 2022 229,429 34,678 264,107
Grant commitments 61,742 - 61,742
Paid in year (145,079) - (145,079)
As at 31 March 2023 146,092 34,678 180,770
----- End of picture text -----
13. Unrestricted funds 2023
| 3. Unrestricted funds 2023 | |
|---|---|
| Balances Income Expenditure Transfers Balances c/f £ £ £ £ £ |
|
| Unrestricted funds - general | 1,459,904 939,339 (1,599,075) 41,271 841,439 |
| 1,459,904 939,339 (1,599,075) 41,271 841,439 |
Designated funds
There were no designated funds brought forward or at the year-end.
Unrestricted funds 2022
| Unrestricted funds 2022 | |||||
|---|---|---|---|---|---|
| Balances | Income | Expenditure | Transfers | Balances c/f | |
| £ | £ | £ | £ | £ | |
| Unrestricted funds - general | 1,379,794 | 979,669 | (1,312,084) | 412,525 | 1,459,904 |
| Designated funds | 82,000 | - | - | (82,000) | - |
| 1,461,794 | 979,669 | (1,312,084) | 330,525 | 1,459,904 |
Designated funds
£82,000 2021 Future Leader Awards in Epilepsy
Autistica Annual Report and Accounts 2023 33
32 Autistica Annual Report and Accounts 2023
for the year ending 31 March 2023
Notes to the Financial Statements
Notes to the Financial Statements
for the year ending 31 March 2023
14. Restricted funds 2023
| 14. Restricted funds 2023 | ||||||
|---|---|---|---|---|---|---|
| Balances b/f | Income | Expenditure | Transfers | Balances c/f | ||
| £ | £ | £ | £ | £ | ||
| The Institute of Psychiatry, Psychology & Neuroscienc Mental Health - Anxiety Toolkit |
25,724 | - | (25,190) | (534) | - | |
| Robert Luf Foundation COMRAD | - | 20,000 | - | - | 20,000 | |
| Blackrock | - | 11,208 | - | (11,208) | - | |
| SHAPe, the Sowerby Health intervention for Autistic People |
201,520 | - | (20,520) | - | 181,000 | |
| Fujitsu - Employment guide | - | 69,250 | - | (26,000) | 43,250 | |
| Embracing Complexity | 65,507 | 87,631 | (3,758) | (30,484) | 118,896 | |
| Social Care Scoping | 25,000 | - | - | - | 25,000 | |
| START | - | 358 | (358) | - | - | |
| University College - Ambitious about Autism - Education to Employment |
- | 135,000 | (135,000) | - | - | |
| CareTech - Social Care Fund | 37,500 | 37,000 | (9,033) | - | 65,467 | |
| ICF- Sowerby - Digital Breakthrough | - | 160,000 | - | - | 160,000 | |
| National Lottery | 5,707 | - | (4,980) | - | 727 | |
| National Lottery - Changemakers | 9,999 | - | - | - | 9,999 | |
| NHS England | - | 73,840 | - | 73,840 | ||
| Epilepsy Dossier | - | 10,000 | - | - | 10,000 | |
| Total restricted funds | 370,957 | 604,287 | (198,839) | (68,226) | 708,179 |
Restricted funds are funds where the donor has specified the funds must be spent on a particular project as listed above. All of these grants represent either programme grants for autism research at a particular institution, specific Autistica-led projects or where specified fellowships are awarded for the purposes of supporting individuals engaged in autism research.
Transfers into restricted funds were donations received as unrestricted and subsequently restricted by request of the donor.
Negative balances against specific projects reflect in-year spend which exceeds restricted funds received, but where further.
14. Restricted funds 2022
| 14. Restricted funds 2022 | ||||||
|---|---|---|---|---|---|---|
| Balances b/f | Income | Expenditure | Transfers | Balances c/f | ||
| £ | £ | £ | £ | £ | ||
| The Institute of Psychiatry, Psychology & Neuroscience Mental Health - Anxiety Toolkit |
145,347 | 15,093 | (134,716) | - | 25,724 | |
| Local Engagement | - | - | (208) | 208 | - |
|
| Epilepsy | - | 38,500 | - | (38,500) | - | |
| Anxiety and Depression in Minimally Verbal Individuals |
- | 35,699 | - | (35,699) | - | |
| University College - Anorexia Nervosa in Autistic Women |
- | 5,000 | - | (5,000) | - | |
| SHAPe, the Sowerby Health intervention for Autistic People |
12,266 | 189,254 | - | - | 201,520 | |
| Autistic-led Grants | 50,000 | - | - | (50,000) | - | |
| DARE | - | 45,691 | - | (45,691) | - | |
| Home Based PECs | - | 3,000 | - | (3,000) | - | |
| Podcast | - | - | (171) | 171 | - |
|
| Embracing Complexity | 44,625 | 62,975 | (42,093) | 65,507 | ||
| MQ Fellow | - | 8,000 | - | (8,000) | - | |
| Future Leaders Award - Jane Waite | - | 40,040 | - | (40,040) | - | |
| Social Care Scoping | 25,000 | - | - | - | 25,000 | |
| University College - Ambitious about Autism - Education to Employment |
23,500 | - | (3,500) | (20,000) | - | |
| CareTech - Social Care Fund | 10,000 | 27,500 | - | 37,500 | ||
| Adolescent Psychoeducation | 2,712 | - | (1) | (2,711) | - | |
| National Lottery | 9,907 | - | (4,200) | 5,707 | ||
| National Lottery - Changemakers | - | 9,999 | - | - | 9,999 | |
| COVID 19 | 19,650 | - | (94) | (19,556) | - | |
| NHS England | - | 19,747 | - | (19,747) | - | |
| Epilepsy Dossier | (20,000) | 20,000 | - | - | - | |
| WAAM 2021 | - | 1,075 | - | (1,075) | - | |
| Total restricted funds | 323,007 | 521,573 | (184,983) | (288,640) | 370,957 |
Transfers out of restricted funds were restricted donations received after funding was committed to specific projects.
Autistica Annual Report and Accounts 2023 35
34 Autistica Annual Report and Accounts 2023
Committees and advisory committees
Notes to the Financial Statements for the year ending 31 March 2023
15. Analysis of net funds 2023
| Analysis of net funds 2023 | General Restricted Total £ £ £ |
| Fixed assets Investments Debtors Cash and cash equivalents Liabilities Analysis of net funds 2022 |
- - - - - - 78,669 190,702 269,371 902,325 698,247 1,600,572 (139,555) (180,770) (320,325) |
| 841,439 708,179 1,549,618 |
|
| General Restricted Total £ £ £ |
|
| Investments Debtors Cash at bank Liabilities |
501,542 - 501,542 61,884 46,600 108,484 972,415 685,736 1,658,151 (75,937) (361,379) (437,316) |
| 1,459,904 370,957 1,830,861 |
Analysis of net funds 2022
16. Reconciliation of net expenditure to net cash flow from operating activities
| 2023 | 2022 | |
|---|---|---|
| £ | £ | |
| Net movement in funds | (281,243) | 46,061 |
| Bank interest | (16,547) | (4,356) |
| Non-cash donations (see note 9) | - | - |
| Net (losses)/gains on investments (see note 9) | 26,955 | (41,885) |
| Depreciation charges | - | - |
| (Increase)/decrease in debtors | (160,887) | 128,033 |
| Increase/(decrease) in creditors | (19,720) | (491,413) |
| Net cash flow from operating activities | (451,442) | (363,560) |
17. Related Party Transactions
There were no related party transactions during the year to 31 March 2023 - none (2022: none).
Board Committees
Finance Committee
Matthew Harris (Chair) Stephen Boyle Katherine Hudson Jeff Saul
Nominations Committee
Lynn Hawkins (Chair) Stephen Boyle
John Carey Matthew Harris
Network Steering Committee
Prof Dame Sue Bailey (Chair)
Freddie Adu
Dr Carole Buckley Dr Laura Crane Prof Sue Fletcher-Watson Bec Hanley
Prof Francesca Happé Dr Keren MacLennan
Advisory Committees
Scientific Review Panel
Prof Dermot Bowler
Prof Mark Brosnan Leneh Buckle Prof Lucy Henry Prof Catherine Jones Claudia Klaver Prof Jonathan Mill Dr Richard Rowe
Dr Karen Matthews
18. Guarantee
Autistica is a company limited by guarantee. The Memorandum of Association prohibits any income or property of the company being paid or transferred to the members. Members of the company undertake to contribute a maximum of £1 to cover its liabilities.
Mark Minnot Prof Jeremy Parr Jenny Shorthouse Lisa Wood
Autistica Annual Report and Accounts 2023 37
36 Autistica Annual Report and Accounts 2023
Thanks
Thank you to the autism community and all the supporters who make our work possible.
We were very grateful for significant support in 2022-23 from:
Advisors
Trusts & Foundations
ECR Training Academic Experts Dr Laura Crane (Co-Chair) Dr Hannah Pickard (Co-Chair) Dr Duncan Astle Prof Bryony Beresford Dr Rachael Beresford Prof Mark Brosnan Prof Sarah Cassidy Prof Heather Ferguson Prof Sue Fletcher-Watson Prof Sebastian Gaigg Dr Emma Gowen Prof Jonathan Green Prof Francesca Happé Prof Lucy Henry Prof Emily Jones Dr Steven Kapp Dr Hannah Kovshoff Dr Kathy Leadbitter Prof Will Mandy Prof Katie Maras Prof Sarah Parsons Dr Dheeraj Rai Dr Caroline Richards Dr Stuart Ritchie Prof Emily Simonoff Dr Jane Waite
Edward Cadbury Charitable Trust Robert Luff Foundation Caretech Foundation London Stock Exchange Foundation The Waterloo Foundation UK Research and Innovation
Major donors
Lisa Wood and Adrian Binks Charles Sharland Gordon Holmes Dame Stephanie Shirley 2030 Club Members
Corporate
Argus Media BlackRock Fujitsu
The employees of Wellington Management Company House 337
Ocean Outdoor
Games
Autistica Play Ambassadors DPS Games GamesAid UKIE
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Autistica Annual Report and Accounts 2023 39
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38 Autistica Annual Report and Accounts 2023
Autistica
6 Honduras St, London EC1Y 0TH T 020 3857 4340 info@autistica.org.uk autistica.org.uk
Registered in England. Company No. 5184164 Charity No. 1107350
Can you help us with our mission?
We can’t achieve our 2030 Goals alone.
We need to work in partnership with others who have the power to change laws, transform support and fund innovation.
Contact rebecca.sterry@autistica.org.uk if you have the power to support us.
Thank you.