The Daisy Garland A = ‘A journey of hope... “aes kaos ETS for children with epilepsy’
Annual Report 2024 For the year ended 31st August 2024
Contents
| Pages | ||
|---|---|---|
| • Our purpose and aims | • Our purpose and aims | 1-2 |
| • Welcome from our Chair | • Welcome from our Chair | 3 |
| • Welcome from our CEO | • Welcome from our CEO | 4 |
| • Our work this year | • Our work this year | 5-10 |
| • Structure, governance and | • Structure, governance and | 11-12 |
| management | management | |
| • Financial review | • Financial review | 13-15 |
| • Forward focus 2024/25 | • Forward focus 2024/25 | 16 |
| • Financial statements | • Financial statements | 17-34 |
| • Thank you | • Thank you | 35 |
© The Daisy Garland The information contained in this publication is not permitted to be reproduced, in whole or in part, without prior permission from The Daisy Garland.
Our Purpose
The Daisy Garland is a national registered charity working exclusively for children and young adults with drug-resistant epilepsy.
Our Aims
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To raise awareness about childhood epilepsy, the ketogenic diet and SUDEP (sudden, unexpected death in epilepsy)
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To fund specially trained Daisy Garland Ketogenic Dietitians to work within NHS hospitals nationwide allowing children and young adults to benefit from this drug-free treatment
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To provide positive support for the parents and carers of children and young adults diagnosed with drug-resistant epilepsy
The Daisy Garland
The Daisy Garland was set-up in 2004 in memory of our brave and wonderful daughter Daisy. Daisy was diagnosed with complex epilepsy when she was 5 1/2 months old. For almost 2 years we battled with one anticonvulsant drug after another, each drug took Daisy further away from us and brought with it more seizures and unwanted side-effects. In January 2000 at the age of 22 months, Daisy started the
ketogenic diet - a drug-free treatment which gradually reduced the severity and frequency of her seizures. Tragically in April 2004 Daisy died in her sleep from SUDEP. She was just six years old.
1
The Ketogenic Diet
In the UK there are over 60,000 children under the age of 16 suffering from epilepsy; more than 18,000 have what is termed as drug-resistant epilepsy. This means their seizures continue in spite of medication.
Recommended in the NICE guidelines the ketogenic diet is a medically recognised and accepted therapy for children with drug-resistant epilepsy. It is important to note that the diet must only be carried out under the close supervision of a trained ketogenic dietitian and a neurologist.
Over the last 19 years, The Daisy Garland has been instrumental in bringing the ketogenic diet to the forefront in the UK funding 30 Daisy Garland Ketogenic Dietitians/Dietetic Support Workers (see map below) all of whom offer a free countrywide ketogenic service to children and young adults with drug-resistant epilepsy.
Statistics show just over 50% of children on the ketogenic diet will experience over 50% seizure control, about a third will see more than 90% improvement and about 10-15% will be seizure-free.
2
Welcome from our Chair
Family support was the essence of our goal when we first launched The Daisy Garland charity and as we approach our 20th Anniversary it remains our cornerstone.
As we enter another year, we are presented with a mixed picture for the charity sector and charitable giving. The continued cost of living concerns impacts greatly on donations the knock-on effect of which is having to do more with less.
Given the increased demand for help our job is ever more
important and fundraising is crucial to continued success. Faced with the opportunities and challenges which running a charity brings we tackle both with enthusiasm, diligence and true commitment.
Here at The Daisy Garland, we invest in the wellbeing of the families under our care offering a wide range of support covering all aspects of the ketogenic diet as a treatment for drugresistant epilepsy plus positive help with mental and emotional health.
Daily feedback tells us our support is life-changing and life-saving. Without a doubt, The Daisy Garland is making a ‘real’ difference.
I am extremely grateful to our committed team for the outstanding work they achieve in supporting thousands of children and their families countrywide. And to the many loyal and inventive fundraisers who never fail to amaze me, and to the Trusts and Foundations who believe in our work.
Our focus was, is and always will be to support families who live with the challenges of drugresistant epilepsy. As this report will show, we are succeeding on all levels.
David Garland - Chair of Trustees
3
Welcome from our CEO
2024 sees the 20th anniversary of the creation of our wonderful charity which was launched after the tragic death of our 6-year-old daughter Daisy from SUDEP (sudden unexpected death in epilepsy).
Over the past 20 years we have worked hard to achieve a goal that is to provide families with the positive support that David and I sought, and so desperately needed, when Daisy was first diagnosed with drug-resistant epilepsy.
With over £2.8M invested in Ketogenic Dietitians and Dietetic Support Workers, all of whom provide a free service to families countrywide; grants for breathing and epilepsy monitors; free Ketogenic Welcome Boxes; an on-line Parent Support Forum; organised countrywide faceto-face get-togethers (Time4Me); Mindfulness courses and retreats; weekly live on-line chat sessions; a gardening project (Green Shoots); chef-led Daisy Garland keto cookery classes plus access to 100’s of tried and tested keto recipes. As well as experience-led advice on types of epilepsy, treatment drugs and their side-effects and in-depth information on the ketogenic diet available on our website, I truly believe that we have achieved our goal.
Of course, we didn’t achieve these things alone, but with the passion and dedication of Karen and Nikki, Judy and our 30 Dietitians and Dietetic Support Workers and our Trustees. And it would be impossible to provide help if we couldn’t raise funds so I am eternally grateful to our outstanding supporters and the generosity of the Trusts and Foundations who have chosen to support us. But as we are all squeezed by spiralling costs across the board, fundraising gets more difficult so your continued help is vital. If you would like to help us in our 20th year please be in touch.
Sara Garland - Founder and CEO
4
[Our Work this Year]
51.5K People benefitted from Daisy Garland support
Tommie has multiple seizures daily. He sleeps in his cot touching my bed and I wake during the night to check on him. This is exhausting. I also live with the worry of not waking during a seizure and the “what if I missed one...”. Tommie’s
epilepsy monitor will give us some much needed reassurance and a more normal life by allowing him his own bedroom. The Daisy Garland is an incredible charity. What they do is amazing and I will be forever thankful for their support x
Gemma , Tommie’s mum
Life-saving Monitors Monitor grants 117 awarded helping keep children with complex epilepsy safe at night
59
Raising epilepsy awareness poster packs sent free to families, schools and NHS clinics
Coffee Mornings, Time4Me & Cookery events breaking down loneliness and isolation
835
Green Shoots 155 families growing with Daisy Free Keto Welcome Garland funding Boxes dispatched support providing all the essentials needed to start and maintain 80 the diet i 7 109,420 Website Page Views
5
Life-changing Support
Sophie sleeps with us every night as we’re too frightened to put her in her own bedroom. Now we’ve been lucky enough to receive our Daisy Garland SATs monitor we can start to get Sophie back into her own bedroom knowing it will alarm if she has a seizure. It’s been a long stressful process since Sophie’s diagnosis, but since having our monitor we feel like a bit of that has been lifted. Thank you Daisy Garland xx
Chelsea, Sophie’s mum
269 Improving Mental Health
Families and health professionals supported through our tailor-made Daisy Garland Mindfulness Courses. Offered free of charge to help reduce anxiety, isolation and loneliness. Participants reported a marked improvement in stress levels and improved quality of life. Testimonial: “Thank you soo much TDG and Gill. I woke up feeling so calm and peaceful this morning, it was bliss….and all thanks to your mindfulness session last night. Will keep practicing but wish I could bottle you xx”
Making a Real Difference
“I just wanted to say how grateful we are to your charity. \ _7 years ago you funded a SATs monitor for our son who has complex epilepsy and we use it whenever he is unwell > f* or having periods of frequent seizures. This weekend our son had tight breathing and croup (which is a regular occurrence) so we rang for an ambulance who said it could be 2 hours and we don’t live very close to our nearest hospital, but very quickly his lips went blue and he went pale and weak,we used the SATs monitor and his oxygen - » _was only 45%!!! We told the operator who immediately got an ambiance to us and when they arrived they radioed for a code red and back up and provided oxygen and nebulisers which cleared his breathing and got his oxygen back to normal range. Without the SATs monitor from you we would not have known how dangerous our son’s situation was and we could have been in a different place right now. We are extremely grateful for what you do x” Hayley .
6
Facebook Annual Reach 14.2M Purple Day (World Epilepsy Awareness Day) 2.7M
Mental Health Support
In September we held our first Mindfulness Retreat in Wales. Over the weekend we offered our nine participants yoga, art and Mindfulness practices. When we planned the retreat we had no idea how life-changing and life-enhancing it would be for the lovely parents who attended. Post retreat, they are in daily contact with each other for 24/7 support.
“Words cannot express how grateful we are that we have you by our side” Helen
SUDEP Awareness Day 318K
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7
Working in collaboration with 16 NHS Trusts The Daisy Garland has funded 30 specialist trained ketogenic dietitians and dietetic support workers to work in hospitals from the South-West of England to Scotland and Northern Ireland. Our dietitians provide a much-needed, free, countrywide service for children and young adults with drug-resistant epilepsy. Pump-prime funding is offered for an agreed timeframe (usually 2 years) supported through the aid of grant funding until such time it becomes a commissioned service in its own right. It is our policy to raise as much of the required funds as possible prior to committing to a new service to ensure that ongoing future ketogenic funding demands can be met.
Dougie is 6 months old and we’ve been in hospital for 4 out of the last 6 weeks. He was having nearly 100 seizures a day last week. I have just received Dougie’s ketogenic welcome box all ready for us to start the diet and it’s moved me to tears. What a beautiful way to introduce parents and children to the diet. I feel so much less alone somehow. Thank you Daisy Garland x 99 Clare, Dougie’s mum
8
ESNA Conference 2024
This year we had a busy stand at the ESNA (Epilepsy Nurses Association) Conference; the national professional organisation for all nurses supporting people with epilepsy. It was the perfect opportunity to raise awareness of our wrap-around family support. Many attendees have since recommended our Mindfulness Courses to parents they support, and we have helped them with epilepsy monitor grants too.
Iea@ THE ) \ NEUROLOGICAL ® atuance The Daisy Garland work in collaboration with The Neurological Alliance, England’s leading coalition of organisations and professional bodies supporting people with neurological conditions. This year we supported the #MyNeuroSurvey campaign, the largest survey of people affected by neurological conditions in the UK and Republic of Ireland, to understand the experiences of people affected and to inform future advocacy and service improvement.
Recipes from Daisy’s Keto Café
Our website Ketogenic Recipes Page is added to and updated regularly. Our wide range of tried-and-tested recipes have been formulated with a keen eye to cost as well as ease of preparation; many include ketogenic prescription ingredients. All recipes are downloadable and printable to help busy families rustle up tempting meals as quickly as possible. Our ever-popular online cookery classes, led by a ketogenic chef, have been designed to inspire families and tempt palates. Cost-saving tips, fact sheets and a list of store cupboard staples are all available on our website too. You can meet some of our keto children between the pages of this report...
9
Our Involvement in the Advancement of Medical Nutrition
We continued to work with management teams specialising in medical nutrition specifically tailored to support children on the ketogenic diet. Families are always keen to trial new products under the close supervision of their ketogenic dietitian. We continue to work and strengthen relationships with Nutricia, Vitaflo and Ketocare foods and would like to highlight and recognise the importance of their support giving our dietitians and families the opportunity to be involved in the advancement of ketogenic nutrition.
Wrap-around Family Support
“Our daughter has had seizures since she was 18 months old and she’s now 8. It’s hard to describe the ongoing anxiety and trauma of living with uncontrolled epilepsy but I don’t want to even think about where we would be without the support of The Daisy Garland. Our little girl follows a ketogenic diet which, without the Daisy Garland funded dietitian in our hospital we simply would not have had access to. Daisy’s Keto Café is an amazing support and I know that at any time I can
connect into the group to ask questions or just for a hand hold. We are also grateful to The Daisy Garland for funding our epilepsy monitor. This will alert us to seizures when they start. It means we can spend less time on edge and hopefully reduce our stomachs flipping over for every little rustle at night. Thank you to the incredible Daisy Garland - a wonderfully positive force in the childhood epilepsy community.”
“You’re an incredibly supportive charity and I think that everything you do has a very unique personal touch, which I haven’t experienced with other charities.”
10
Structure, Governance and Management
Charity Constitution
The charity is controlled by its governing document, a deed of trust, and constitutes an unincorporated charity. The original Declaration of Trust was dated 23rd August 2004 and supplemental deeds dated 8th October 2004 and 6th April 2019.
Trustees
The charity’s Trustees are not renumerated, however their expenses are reimbursed in accordance with The Daisy Garland’s expenses policy. Trustees are recruited through an open selection process and receive an induction on appointment.
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David Garland (Chair)
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Bernard Garland (Vice Chair)
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Gloria Dennison (Treasurer)
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Tracy Mclean (Secretary)
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Dr Sarah Barker (Trustee)
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Kim Byford (Trustee)
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Sarah Cole (Trustee)
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Victoria Whiteley (Trustee)
Staff and Volunteers
Our dedicated team shares a huge passion for the work we do and as we are a small organisation every team member sees first-hand the real difference we make to families. We have 4 office-based staff, this equates to 3.2 full-time equivalent staff (FTE). We also have 38 regular volunteers who assist with service delivery (for example large mailouts), or helping us to raise awareness and funds throughout the UK.
Risk Management
The information contained in this publication is not The Trustees have a duty to identify and review the risks to which the
permitted to be reproduced, in whole or in part, without charity is exposed and to ensure appropriate controls are in place to prior permission from The Daisy Garland charity. provide reasonable assurance against fraud and error.
11
Safeguarding
The charity is fully committed to safeguarding and promoting the welfare of all children. We have a comprehensive safeguarding policy which outlines these responsibilities. It also outlines the procedures to be taken when a child may be identified to be at risk of harm, or may require additional support to ensure they reach their potential. The policy is reviewed and updated annually.
Diversity and Inclusion
We actively support diversity and inclusion and ensure that all our employees are valued and treated with dignity and respect. Our formal Equality, Diversity and Inclusion Policy is implemented in accordance with the appropriate statutory requirements and ensures that no service user, job applicant or employee is discriminated against either directly or indirectly on the grounds of age, disability, gender reassignment, marriage and civil partnership, pregnancy or maternity, race, religion or belief, sex or sexual orientation.
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The Daisy Garland - Small Charity, Big Impact.
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Financial Review
The Daisy Garland charity continues to benefit from the generosity of our supporters and donors and our income streams continue to be relatively stable. We receive no government or statutory funding so rely entirely on these revenue streams. Overall, we raised £293,273 (2023, £420,177) for the full year and spent £185,372 (2023, £286,927). This resulted in net income of £107,901 for the year.
The financial position of the charity remains robust. However, in common with other charities our size we are limited in the resources we are able to apply in segregating the support we provide and fundraising activities. Being aware of this we use our available resources in the manner we deem most effective which the Trustees keep under constant review.
In light of the above, the Trustees of the charity adopt a prudent approach to managing the resources at their disposal and will only commit to funding expenditure which can be supported by grants and current funds.
Year-on-year we are finding a steep rise in families requesting support from the charity; which clearly underlines the importance of the role The Daisy Garland charity plays in supporting children with difficult to control epilepsy and their families.
In the coming year we will continue to support the increasing number of families seeking our help. We will also build upon the invaluable, full wrap-around support provided for children with intractable epilepsy and their families.
Reserves Policy
Total funds held at the year-end were £524,882. Restricted funds generated for NHS ketogenic dietitians and night-time breathing (SATs/epilepsy) monitors totalling £84,177 were spent during the period.
There was a net increase in funds of £107,901.
At 31st August 2024, while cash held by the charity was £566,368, unrestricted reserves were £524,882.
13
Financial Review (continued)
Reserves Policy (continued)
It is the policy of the charity that unrestricted funds which have not been designated for a specific use should be maintained at a specific level to continue operations for at least twelve months. Trustees consider that reserves at this level, will ensure that in the event of a significant drop in income, The Daisy Garland will be able to continue its current activities (including the provision of our charitable services), cover any shortfall between income and expenditure and cover any other committed expenditure.
14
Financial Review (continued)
Public Benefit
The Daisy Garland Trustees declare that the objectives and activities of the charity are of clear public benefit.
The Daisy Garland remains resourceful and cost-conscious at all times.
15
Forward focus for 2024/25
We will be focussing on the following priorities for 2024/25:
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Continuing to provide essential support for families nationwide who have a child with drug-resistant epilepsy - a life-threatening condition
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Developing new programs and specifically, offering specialist training for current NHS dietitians to support their professional development
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Continuing to support 30+ NHS ketogenic services countrywide
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Growing our Green Shoots project improving mental health and wellbeing for the whole family
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Extending our Mindfulness program to include parents/carers and health professionals supported by The Daisy Garland
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Continuing to provide grants for night-time breathing (SATs/ epilepsy) monitors for use in the home. Keeping children safe while they sleep helping reduce the risk of SUDEP (sudden, unexpected death in epilepsy)
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Developing our charity website, and monitoring, optimising and reporting on site performance to ensure improvements in website traffic, conversions and time-efficiencies
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Developing existing and new fundraising income streams to support the expenditure commitments of the charity
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Sustainability - continue to work towards becoming a more environmentally-friendly organisation
Approved by order of the Board of Trustees and signed on its behalf by
David Garland, Chair
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Charity registration number: 1106530
The Daisy Garland
Annual Report and Financial Statements for the Year Ended 31 August 2024
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The Daisy Garland
Contents (continued)
| Reference and Administrative Details | 19 | |
|---|---|---|
| Independent Examiner's Report | 20 | |
| Statement of Financial Activities | 21 | |
| Balance Sheet | 22 | |
| Notes to the Financial Statements | 23 to 34 | 4 |
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The Daisy Garland
Reference and Administrative Details
| Chairman | D Garland |
|---|---|
| Trustees | V Whiteley |
| S Cole | |
| D Garland | |
| B Garland | |
| K Byford | |
| T McLean | |
| G Dennison | |
| S Barker | |
| Secretary | T McLean |
| Charity Registration Number | 1106530 |
| Principal Office | Units A1 and A2 |
| Dart Marine Park | |
| Steamer Quay Road | |
| Totnes | |
| Devon | |
| TQ9 5AL | |
| Independent Examiner | Matthew Keane ACCA |
| Westcotts (SW) LLP | |
| 3 Plym House | |
| Longbridge Road | |
| Plymouth | |
| Devon | |
| PL6 8LT |
The annual report was approved by the Trustees of the charity on 11 June 2025 and signed on its behalf by: ......................................... ......................................... RA Sa D Garland T McLean Chair and Trustee
......................................... Sa T McLean Secretary and Trustee
19
The Daisy Garland I report to the 31 August 2024. the listed bodies. 1. Act; or 2. 3. reached. Matthew Keane ACCA i Westcotts (SW) LLP Meare 3 Plym House Longbridge Road Plymouth Devon PL6 8LT
The Daisy Garland
Independent Examiner's Report to the Trustees of The Daisy Garland
I report to the Trustees on my examination of the accounts of The Daisy Garland for the year ended 31 August 2024.
Responsibilities and basis of report
As the charity Trustees of The Daisy Garland you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’).
I report in respect of my examination of the The Daisy Garland's accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner’s statement
Since The Daisy Garland's gross income exceeded £250,000 your examiner must be a member of a body listed in section 145 of the 2011 Act. I confirm that I am qualified to undertake the examination because I am a member of the Association of Chartered Certified Accountants (ACCA), which is one of the listed bodies.
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
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accounting records were not kept in respect of The Daisy Garland as required by section 130 of the Act; or
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the accounts do not accord with those records; or
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the accounts do not comply with the accounting requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair view' which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
11 June 2025
20
The Daisy Garland
Statement of Financial Activities for the Year Ended 31 August 2024
| Unrestricted | Restricted | Total | Total | ||
|---|---|---|---|---|---|
| funds | funds | 2024 | 2023 | ||
| Note | £ | £ | £ | £ | |
| Income and Endowments | from: | ||||
| Donations and legacies | 2 | 184,377 | 61,956 | 246,333 | 318,543 |
| Other trading activities | 3 | 33,208 | - | 33,208 | 95,834 |
| Investment income | 4 | 11,781 | - | 11,781 | 3,939 |
| Other income | 5 | 1,951 | - | 1,951 | 1,861 |
| Total income | 231,317 | 61,956 | 293,273 | 420,177 | |
| Expenditure on: | |||||
| Raising funds | 6 | (15,674) | - | (15,674) | (22,074) |
| Charitable activities | 7 | (205,057) | (84,177) | (289,234) | (264,853) |
| Other expenditure | 8 | 119,536 | - | 119,536 | - |
| Total expenditure | (101,195) | (84,177) | (185,372) | (286,927) | |
| Net income/(expenditure) | 130,122 | (22,221) | 107,901 | 133,250 | |
| Net movement in funds | 130,122 | (22,221) | 107,901 | 133,250 | |
| Reconciliation of funds | |||||
| Total funds brought forward | 394,760 | 22,221 | 416,981 | 283,731 | |
| Total funds carried forward | 20 | 524,882 | - | 524,882 | 416,981 |
All of the charity's activities derive from continuing operations during the above two periods. The funds breakdown for 2023 is shown in note 20.
The notes on pages 23 to 34 form an integral part of these financial statements.
21
The Daisy Garland
(Registration number: 1106530) Balance Sheet as at 31 August 2024
| (Registration number: 1106530) Balance Sheet as at 31 August 2024 |
|||
|---|---|---|---|
| 2024 | 2023 | ||
| Note | £ | £ | |
| Fixed assets | |||
| Tangible assets | 14 | 2,238 | 2,798 |
| Current assets | |||
| Stocks | 15 | 3,681 | 3,317 |
| Debtors | 16 | 3,607 | 13,454 |
| Cash at bank and in hand | 566,368 | 572,438 | |
| 573,656 | 589,209 | ||
| Creditors: Amounts falling due within one year | 17 | (34,771) | (110,512) |
| Net current assets | 538,885 | 478,697 | |
| Total assets less current liabilities | 541,123 | 481,495 | |
| Creditors: Amounts falling due after more than one year | 18 | (16,241) | (64,514) |
| Net assets | 524,882 | 416,981 | |
| Funds of the charity: | |||
| Restricted income funds | |||
| Restricted funds | - | 22,221 | |
| Unrestricted income funds | |||
| Unrestricted funds | 524,882 | 394,760 | |
| Total funds | 20 | 524,882 | 416,981 |
The financial statements on pages 21 to 34 were approved by the Trustees, and authorised for issue on 11 June 2025 and signed on their behalf by:
......................................... D Garland Chair and trustee
The notes on pages 23 to 34 form an integral part of these financial statements.
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The Daisy Garland
Notes to the Financial Statements for the Year Ended 31 August 2024
1 Accounting policies
Statement of compliance
The financial statements have been prepared in accordance with the second edition of the Charities Statement of Recommended Practice issued in October 2019, the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102) and the Charities Act 2011.
Basis of preparation
The Daisy Garland meets the definition of a public benefit entity under FRS 102. The accounts (financial statements) have been prepared under the historical cost convention with items recognised at cost or transaction value unless otherwise stated in the relevant note(s) to these accounts.
Going concern
The Trustees consider that there are no material uncertainties about the charity's ability to continue as a going concern.
Income and endowments
Voluntary income including donations, gifts, legacies and grants that provide core funding or are of a general nature is recognised when the charity has entitlement to the income, it is probable that the income will be received and the amount can be measured with sufficient reliability.
Donations and legacies
Donations and legacies are recognised on a receivable basis when receipt is probable and the amount can be reliably measured.
Grants receivable
Grants are recognised when the charity has an entitlement to the funds and any conditions linked to the grants have been met. Where performance conditions are attached to the grant and are yet to be met, the income is recognised as a liability and included on the balance sheet as deferred income to be released.
Expenditure
All expenditure is recognised once there is a legal or constructive obligation to that expenditure, it is probable settlement is required and the amount can be measured reliably. All costs are allocated to the applicable expenditure heading that aggregate similar costs to that category. Where costs cannot be directly attributed to particular headings they have been allocated on a basis consistent with the use of resources, with central staff costs allocated on the basis of time spent, and depreciation charges allocated on the portion of the asset’s use. Other support costs are allocated based on the spread of staff costs.
Raising funds
These are costs incurred in attracting voluntary income, the management of investments and those incurred in trading activities that raise funds.
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The Daisy Garland
Notes to the Financial Statements for the Year Ended 31 August 2024 (continued)
Charitable activities
Charitable expenditure comprises those costs incurred by the charity in the delivery of its activities and services for its beneficiaries. It includes both costs that can be allocated directly to such activities and those costs of an indirect nature necessary to support them.
Support costs
Support costs include central functions and have been allocated to activity cost categories on a basis consistent with the use of resources, for example, allocating property costs by floor areas, or per capita, staff costs by the time spent and other costs by their usage.
Taxation
The charity is considered to pass the tests set out in Paragraph 1 Schedule 6 of the Finance Act 2010 and therefore it meets the definition of a charitable company for UK corporation tax purposes. Accordingly, the charity is potentially exempt from taxation in respect of income or capital gains received within categories covered by Chapter 3 Part 11 of the Corporation Tax Act 2010 or Section 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes.
Tangible fixed assets
Individual fixed assets are initially recorded at cost, less any subsequent accumulated depreciation and subsequent accumulated impairment losses.
Depreciation and amortisation
Depreciation is provided on tangible fixed assets so as to write off the cost or valuation, less any estimated residual value, over their expected useful economic life as follows:
Stock
Stocks are measured at the lower of cost and estimated selling price less costs to complete and sell. Cost includes all costs of purchase, costs of conversion and other costs incurred in bringing the stock to its present location and condition.
Cash and cash equivalents
Cash and cash equivalents comprise cash on hand and call deposits, and other short-term highly liquid investments that are readily convertible to a known amount of cash and are subject to an insignificant risk of change in value.
Fund structure
Unrestricted income funds are general funds that are available for use at the Trustees discretion in furtherance of the objectives of the charity.
Restricted income funds are those donated for use in a particular area or for specific purposes, the use of which is restricted to that area or purpose.
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The Daisy Garland
Notes to the Financial Statements for the Year Ended 31 August 2024 (continued)
Pensions and other post retirement obligations
The charity operates a defined contribution pension scheme which is a pension plan under which fixed contributions are paid into a pension fund and the charity has no legal or constructive obligation to pay further contributions even if the fund does not hold sufficient assets to pay all employees the benefits relating to employee service in the current and prior periods.
Contributions to defined contribution plans are recognised in the Statement of Financial Activities when they are due. If contribution payments exceed the contribution due for service, the excess is recognised as a prepayment.
Financial instruments
Classification
Financial assets and financial liabilities are recognised when the charity becomes a party to the contractual provisions of the instrument.
Financial liabilities and equity instruments are classified according to the substance of the contractual arrangements entered into. An equity instrument is any contract that evidences a residual interest in the assets of the charity after deducting all of its liabilities.
Recognition and measurement
All financial assets and liabilities are initially measured at transaction price (including transaction costs), except for those financial assets classified as at fair value through profit or loss, which are initially measured at fair value (which is normally the transaction price excluding transaction costs), unless the arrangement constitutes a financing transaction. If an arrangement constitutes a financing transaction, the financial asset or financial liability is measured at the present value of the future payments discounted at a market rate of interest for a similar debt instrument.
Financial assets and liabilities are only offset in the statement of financial position when, and only when there exists a legally enforceable right to set off the recognised amounts and the charity intends either to settle on a net basis, or to realise the asset and settle the liability simultaneously.
Financial assets are derecognised when and only when a) the contractual rights to the cash flows from the financial asset expire or are settled, b) the charity transfers to another party substantially all of the risks and rewards of ownership of the financial asset, or c) the charity, despite having retained some, but not all, significant risks and rewards of ownership, has transferred control of the asset to another party.
Financial liabilities are derecognised only when the obligation specified in the contract is discharged, cancelled or expires.
11 25
The Daisy Garland
Notes to the Financial Statements for the Year Ended 31 August 2024 (continued)
Debt instruments
Debt instruments which meet the following conditions are subsequently measured at amortised cost using the effective interest method.
Debt instruments that are classified as payable or receivable within one year on initial recognition and which meet the above conditions are measured at the undiscounted amount of the cash or other consideration expected to be paid or received, net of impairment.
With the exception of some hedging instruments, other debt instruments not meeting these conditions are measured at fair value through profit or loss.
Commitments to make and receive loans which meet the conditions mentioned above are measured at cost (which may be nil) less impairment.
2 Income from donations and legacies
| 2 Income from donations and legacies | 2 Income from donations and legacies | ||
|---|---|---|---|
| Unrestricted | |||
| funds | Restricted | Total | |
| General | funds | 2024 | |
| £ | £ | £ | |
| Donations and legacies; | |||
| Donations from individuals | 125,555 | 19,053 | 144,608 |
| Grants, including capital grants; | |||
| Grants from companies | 58,822 | 42,903 | 101,725 |
| 184,377 | 61,956 | 246,333 | |
| Unrestricted | |||
| funds | Restricted | Total | |
| General | funds | 2023 | |
| £ | £ | £ | |
| Donations and legacies; | |||
| Donations from individuals | 145,321 | 25,000 | 170,321 |
| Grants, including capital grants; | |||
| Grants from companies | 132,309 | 15,913 | 148,222 |
| 277,630 | 40,913 | 318,543 |
26
The Daisy Garland
Notes to the Financial Statements for the Year Ended 31 August 2024 (continued)
3 Income from other trading activities
| Unrestricted | |||
|---|---|---|---|
| funds | Total | ||
| General | 2024 | ||
| £ | £ | ||
| Events income; | |||
| Fundraising events income | 33,208 | 33,208 | |
| 33,208 | 33,208 | ||
| Unrestricted | |||
| funds | Restricted | Total | |
| General | funds | 2023 | |
| £ | £ | £ | |
| Events income; | |||
| Fundraising events income | 84,714 | 11,120 | 95,834 |
| 84,714 | 11,120 | 95,834 | |
| 4 Investment income | |||
| Unrestricted | |||
| funds | Total | ||
| General | 2024 | ||
| £ | £ | ||
| Other investment income | 11,781 | 11,781 | |
| 11,781 | 11,781 | ||
| Unrestricted | |||
| funds | Total | ||
| General | 2023 | ||
| £ | £ | ||
| Other investment income | 3,939 | 3,939 | |
| 3,939 | 3,939 | ||
| 5 Other income | |||
| Unrestricted | |||
| funds | Total | ||
| General | 2024 | ||
| £ | £ | ||
| Online shop sales | 1,951 | 1,951 | |
| Unrestricted | |||
| funds | Total | ||
| General | 2023 | ||
| £ | £ | ||
| Online shop sales | 1,861 | 1,861 |
27
The Daisy Garland
Notes to the Financial Statements for the Year Ended 31 August 2024 (continued)
6 Expenditure on raising funds
a) Costs of generating donations and legacies
| a) Costs of generating donations and legacies | ||
|---|---|---|
| Total | Total | |
| 2024 | 2023 | |
| £ | £ | |
| Costs of generating donations and legacies | 15,674 | 22,074 |
7 Expenditure on charitable activities
| Unrestricted | |||
|---|---|---|---|
| funds | Restricted | Total | |
| General | funds | 2024 | |
| £ | £ | £ | |
| Charitable activities | 66,252 | 80,511 | 146,763 |
| Staff costs | 98,654 | 3,666 | 102,320 |
| Allocated support costs | 40,151 | - | 40,151 |
| 205,057 | 84,177 | 289,234 | |
| Unrestricted | |||
| funds | Restricted | Total | |
| General | funds | 2023 | |
| £ | £ | £ | |
| Charitable activities | 127,248 | 5,235 | 132,483 |
| Staff costs | 65,639 | 25,840 | 91,479 |
| Allocated support costs | 31,053 | 9,838 | 40,891 |
| 223,940 | 40,913 | 264,853 | |
| Activity | Activity | ||
| undertaken | support | ||
| directly | costs | 2024 | |
| £ | £ | £ | |
| Charitable activities | 249,083 | 40,151 | 289,234 |
| Activity | Activity | ||
| undertaken | support | ||
| directly | costs | 2023 | |
| £ | £ | £ | |
| Charitable activities | 223,962 | 40,891 | 264,853 |
28
The Daisy Garland
Notes to the Financial Statements for the Year Ended 31 August 2024 (continued)
| 8 Other expenditure | ||
|---|---|---|
| Unrestricted | ||
| funds | Total | |
| General | 2024 | |
| £ | £ | |
| Previous period contracts cancelled | (119,536) | (119,536) |
| (119,536) | (119,536) | |
| 9 Analysis of support costs | ||
| Support costs allocated to charitable activities | ||
| Total | Total | |
| 2024 | 2023 | |
| £ | £ | |
| Staff costs | 2,426 | 5,250 |
| Premises costs | 21,506 | 18,133 |
| Communications and IT | 5,879 | 4,626 |
| General office | 4,670 | 7,590 |
| Finance costs | - | 666 |
| Governance costs | 5,110 | 4,626 |
| Depreciation | 560 | - |
| 40,151 | 40,891 |
10 Trustees remuneration and expenses
No trustees have received any reimbursed expenses or any other benefits from the charity during the year.
29
The Daisy Garland
Notes to the Financial Statements for the Year Ended 31 August 2024 (continued)
11 Staff costs
The aggregate payroll costs were as follows:
| 11 Staff costs The aggregate payroll costs were as follows: |
||
|---|---|---|
| 2024 | 2023 | |
| £ | £ | |
| Staff costs during the year were: | ||
| Wages and salaries | 93,098 | 86,876 |
| Social security costs | 2,812 | - |
| Pension costs | 6,410 | 4,603 |
| 102,320 | 91,479 |
The monthly average number of persons (including senior management / leadership team) employed by the charity during the year was as follows:
| 2024 | 2023 | ||||
|---|---|---|---|---|---|
| No | No | ||||
| Average headcount of employees | Average headcount of employees | Average headcount of employees | Average headcount of employees | 4 | 4 |
No employee received emoluments of more than £60,000 during the year
The salaries are split between Patient Support, Fundraising, and Administration based on the time spent on activities by staff. The split for this year is in the same proportions as last year - 75% Patient Support, 11% Fundraising and 14% Administration.
12 Independent examiner's remuneration
| 12 Independent examiner's remuneration | ||
|---|---|---|
| 2024 | 2023 | |
| £ | £ | |
| Other fees to examiners | ||
| Examination-related assurance services | 1,250 | 1,050 |
| All other services | 1,270 | 1,050 |
| 2,520 | 2,100 |
30
The Daisy Garland
Notes to the Financial Statements for the Year Ended 31 August 2024 (continued)
13 Taxation
The charity is a registered charity and is therefore exempt from taxation.
14 Tangible fixed assets
| 14 Tangible fixed assets | ||
|---|---|---|
| Furniture | ||
| and | ||
| equipment | Total | |
| £ | £ | |
| Cost | ||
| At 1 September 2023 | 2,798 | 2,798 |
| At 31 August 2024 | 2,798 | 2,798 |
| Depreciation | ||
| Charge for the year | 560 | 560 |
| At 31 August 2024 | 560 | 560 |
| Net book value | ||
| At 31 August 2024 | 2,238 | 2,238 |
| At 31 August 2023 | 2,798 | 2,798 |
| 15 Stock | ||
| 2024 | 2023 | |
| £ | £ | |
| Stocks | 3,681 | 3,317 |
| 16 Debtors | ||
| 2024 | 2023 | |
| £ | £ | |
| Prepayments | 3,607 | 13,454 |
31
The Daisy Garland
Notes to the Financial Statements for the Year Ended 31 August 2024 (continued)
| 17 Creditors: amounts falling due within one year | ||
|---|---|---|
| 2024 | 2023 | |
| £ | £ | |
| Trade creditors | - | 2,229 |
| Accruals | 3,462 | 5,712 |
| Dietician accruals | 31,309 | 102,571 |
| 34,771 | 110,512 | |
| 18 Creditors: amounts falling due after one year | ||
| 2024 | 2023 | |
| £ | £ | |
| Dietician accruals | 16,241 | 64,514 |
| 19 Pension and other schemes | ||
| Defined contribution pension scheme |
The charity operates a defined contribution pension scheme. The pension cost charge for the year represents contributions payable by the charity to the scheme and amounted to £4,603 (2023 - £3,947).
32
The Daisy Garland
Notes to the Financial Statements for the Year Ended 31 August 2024 (continued)
| 20 Funds | ||||
|---|---|---|---|---|
| Balance at 1 | Balance at | |||
| September | Incoming | Resources | 31 August | |
| 2023 | resources | expended | 2024 | |
| £ | £ | £ | £ | |
| Unrestricted funds | ||||
| General | ||||
| General Funds | 394,760 | 231,317 | (100,523) | 525,554 |
| Restricted funds | ||||
| Grants - Monitors | - | 20,588 | (29,053) | (8,465) |
| Grants - NHS Dietician funding | 9,701 | - | (9,701) | - |
| September Ball | 12,520 | - | (12,520) | - |
| Ketogenic Family Support | - | 25,000 | (25,000) | - |
| Newsletter Production | - | 6,403 | (6,403) | - |
| Greenshoots Project | - | 1,500 | (1,500) | - |
| 22,221 | 53,491 | (84,177) | (8,465) | |
| Total funds | 416,981 | 284,808 | (184,700) | 517,089 |
| Balance at 1 | Balance at | |||
| September | Incoming | Resources | 31 August | |
| 2022 | resources | expended | 2023 | |
| £ | £ | £ | £ | |
| Unrestricted funds | ||||
| General | ||||
| General Funds | 272,630 | 368,144 | (246,014) | 394,760 |
| Restricted funds | ||||
| Other Donations | - | 603 | (603) | - |
| Grants - Monitors | - | 3,632 | (3,632) | - |
| Grants - NHS Dietician | ||||
| funding | 9,701 | - | - | 9,701 |
| Grants - Core Costs | - | 6,900 | (6,900) | - |
| September Ball | 1,400 | 11,120 | - | 12,520 |
| Grants - Sponsorship | - | 29,778 | (29,778) | - |
| 11,101 | 52,033 | (40,913) | 22,221 | |
| Total funds | 283,731 | 420,177 | (286,927) | 416,981 |
33
The Daisy Garland
Notes to the Financial Statements for the Year Ended 31 August 2024 (continued)
The specific purposes for which the funds are to be applied are as follows:
Restricted funds:
Restricted Donations – Other: Various other donations received to support the activities of the charity. September Ball: Sponsorship of a table at The Daisy Garland Ball for Daisy Garland Families. NHS Dietitian Funding: Funding received for the NHS dietitian/dietetic support worker. Grants - Monitors: Various grants received for the monitors used in treatment. Restricted grant: Funding for the cost of the rent and associated expenses.
21 Analysis of net assets between funds
| Unrestricted | Total funds | ||
|---|---|---|---|
| funds | at 31 August | ||
| General | 2024 | ||
| £ | £ | ||
| Tangible fixed assets | 2,238 | 2,238 | |
| Current assets | 573,656 | 573,656 | |
| Current liabilities | (34,771) | (34,771) | |
| Creditors over 1 year | (16,241) | (16,241) | |
| Total net assets | 524,882 | 524,882 | |
| Unrestricted | Total funds | ||
| funds | Restricted | at 31 August | |
| General | funds | 2023 | |
| £ | £ | £ | |
| Tangible fixed assets | 2,798 | - | 2,798 |
| Current assets | 566,988 | 22,221 | 589,209 |
| Current liabilities | (110,512) | - | (110,512) |
| Creditors over 1 year | (64,514) | - | (64,514) |
| Total net assets | 394,760 | 22,221 | 416,981 |
22 Related party transactions
During the year the charity made the following related party transactions:
S Garland
Sara Garland is the wife of Trustee, David Garland and is employed by the Charity as its Chief Executive. The related party transaction is due entirely to this role and is reflected within note 10 of the financial statements.Transaction value: £35,215 (2023: £30,386).
At the balance sheet date the amount due to/from S Garland was £Nil (2023 - £Nil).
34
Thank You
Thank you to all the fundraisers, donors, volunteers, companies, schools, community groups, Trusts and Foundations who kindly supported us this year. We couldn’t do what we do without your generosity and support.
35
i+yfrtrr
‘A journey of hope... for children with epilepsy’
The Daisy Garland, Units A1 and A2, Dart Marine Park, Steamer Quay Road, Totnes, Devon TQ9 5AL
Telephone: 01803 847999 Email: info@thedaisygarland.org.uk www.thedaisygarland.org.uk
Facebook: The Daisy Garland Twitter: @thedaisygarland Instagram: thedaisygarland
Charity Registration No: 1106530