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2024-06-07-accounts

CDH UK

FINANCIAL STATEMENTS 7 JUNE 2024

Charity Number 1106065

Scottish Charity Commission SC042410

CDH UK

FINANCIAL STATEMENTS

YEAR ENDED 7 JUNE 2024

PAGE
Trustees' annual report 1
Independent examiner's report to the trustees 9
Statement of financial activities 10
Statement of financial position 11
Notes to the financial statements 12
The following pages do not form part of the financial statements
Detailed statement of financial activities 23

CDH UK

TRUSTEES' ANNUAL REPORT (continued)

YEAR ENDED 7 JUNE 2024

The trustees present their report and the unaudited financial statements of the charity for the year ended 7 June 2024.

REFERENCE AND ADMINISTRATIVE DETAILS

Registered charity name CDH UK
Charity registration number 1106065
Principal office The Denes
Lynn Road
Tilney All Saints
Kings Lynn
PE34 4RT
Norfolk
The trustees Mrs Brenda Lane
Mrs Beverley Power (Chair)
Mrs Donna Fahey
Governing Committee Mrs Brenda Lane (Founder/Vice treasurer)
Mrs Beverley Power (Chairperson)
Mrs Katie Chapman (Secretary)
Ms Rachel Richmond
Mrs Sarah Hill
Mrs Donna Fahey
Mrs Jasmen Sze
Patrons (medical) and Professor Jan Deprest
Medical Advisers Professor Paul Losty
Professor Paola De Coppi
Professor Kypros Nicolaides
Professor Dick Tibboel
Dr Clare Skeritt

Family Liason Volunteers

The areas covered by the volunteers can change during the course of the year and volunteers are also subject to change.

During the year ending 7 June 2024 the following areas had representatives

Kent Norfolk South Wales Mid Wales West Yorkshire East Riding of Yorkshire Cambridge Cumbria Republic of Ireland Northern Ireland

- 1 -

CDH UK

TRUSTEES' ANNUAL REPORT (continued)

YEAR ENDED 7 JUNE 2024

Central Scotland
Lincolnshire
Derbyshire
London
Lancashire
Bereavement Buddies Cornwall
East Yorkshire
West Yorkshire
Republic of Ireland
Northern Ireland
Merseyside
Lincolnshire
Bank The Cooperative Bank
1 Balloon Street
Manchester
M60 4EP
Independent examiner Mrs E A Short FCA
Equitable House
55 Pellon Lane
Halifax
West Yorkshire
HX1 5SP

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CDH UK

TRUSTEES' ANNUAL REPORT (continued)

YEAR ENDED 7 JUNE 2024

STRUCTURE, GOVERNANCE AND MANAGEMENT

Governing document

CDH UK is a registered charity No. 1106065, registered on 28 September 2004, and is governed by its constitution adopted 28 June 2003 as amended on 27 February 2011. The overall responsibility for CDH UK rests with the Trustees of the charity. The committee met on five occasions, which includes the AGM.

Recruitment of trustees is through advertising to families who have a personal experience of CDH in the first instance and then to the wider public.

There was no new elected Officer of the Committee There was one new committee member - Jasmen Sze

Trustee Induction and Training

Induction of Trustees is largely through informal discussion with new recruits. Trustees are supplied with an agreed policy defining the trustees' roles and responsibilities together with a copy of the constitution and a Trustee Handbook.

Risk Management

The board of management is aware and has assessed the risks to which the Charity is exposed and has taken reasonable steps to ensure the Charity's safety and good reputation. As the charity grows systems or procedures are being established to mitigate the risks the charity faces. Internal control risks are minimised by the implementation of procedures for authorisation of all transactions and projects. Procedures are in place to ensure compliance with health and safety of staff, volunteers and visitors and systems are in place to ensure that DBS checks have been carried out on any persons working with children. The charity also holds insurance.

Serious incidents

There was one serious incident during this financial year that was duly reported to both The Charity Commission and OSCR with no ongoing impact due to good due diligence and risk management.

The incident occurred in October 2023 and involved the sudden closure of the charity's TSB Bank account for no apparent or obvious reason. The matter was investigated by the TSB and the Financial Ombudsman Service and resulted in a compensation award to the charity. There was no impact on existing donations or the CDH UK Research Fund. A new account was duly opened with the Cooperative Bank and a further account will be opened in the near future to separate the Research fund from the general charity account banking facility. This is to minimise any future risk.

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CDH UK

TRUSTEES' ANNUAL REPORT (continued)

YEAR ENDED 7 JUNE 2024

OBJECTIVES AND ACTIVITIES

The aims of the charity are: -

CDH UK operates mainly in England, Wales, Scotland, Northern Ireland and the Republic of Ireland, but has no boundaries in terms of where it can operate and therefore carries out work internationally.

CDH UK supports its families and medical professionals in the following ways:

Information - We operate a Freephone support line which anybody can call if they want support and to find out more about CDH. This is very often a person's first point of contact upon diagnosis. We also develop and maintain a helpful and informative website and various Social Media platforms, In addition, we produce an annual magazine called The CDH Magazine - 'the hole story', which informs the reader of our activities throughout the year, research findings in lay terms and features patient stories. An Introduction to CDH Booklet and a free support pack for newly diagnosed families are also available.

Emotional support - accessed through a support line and a number of closed Facebook groups and referrals made to other third parties (suitable for the needs of the end user) such as bereavement counselling which we outsource for up to 12 months' in duration. Facebook groups are as follows: -

  1. Expectant parents’ group

  2. Raising children with CDH - birth to adulthood

  3. Adult support group (16 onwards).

  4. Bereavement group

  5. Dads support group

Meetings - Each year we hold family get together in different parts of the country so that families can meet other families in similar situations, that are also attended by healthcare professionals and other interested third parties.

Financial support - we offer financial assistance schemes as follows: -

  1. Home 2 Hospital scheme - to help families with the cost of travelling backwards and forwards to the hospital and parking costs and in cases of extreme need such as emergency accommodation.

  2. Help 4 Home scheme - where families can apply for funding help for things like special buggies, walking aids and portable breathing treatments and laundry equipment.

  3. Help 4 Holidays scheme - to help families access a family holiday or short break by helping with costs such as additional holiday insurance premiums, portable oxygen whilst away or any other aids whilst away.

  4. Memory Box provision - For our bereaved families, we provide a personalised memory keepsake box to keep personal items in.

  5. Forget me not Fund - This provides grants to help with funeral costs, burial plot, headstone or memorial stone/plaque and general memorial items (at the Committees jurisdiction).

  6. Counselling 4 CDH - Funding private counselling sessions for Bereavement, Anxiety, PTSD or any other counselling need relating to a CDH diagnosis and consequential mental health problems.

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CDH UK

TRUSTEES' ANNUAL REPORT (continued)

YEAR ENDED 7 JUNE 2024

Research Fund - we have donated over half a million pounds to date to various research projects (see Research section for more information) and we continue to raise funds for our research fund. We partner with GOSHCC who act as Grant monitor for the funds granted.

ACHIEVEMENTS AND PERFORMANCE

All the following has enabled us to continue with our good work and to improve our services and resources and to provide better information on CDH. We have also continued to support research both financially and with direct input. This has all impacted on outcomes.

Fundraising

CDH UK is funded purely through donations made by families, individuals, and companies in the general community. During this financial year, we have held a variety of public fundraising events which included:

We hosted a very successful CDH Community Conference (CCC) for families and healthcare professionals which was very supportive and educational for all involved and took place at Alton Towers Theme Park.

Many of our supporters and families held 'in aid' of events across the UK and Scotland. Some of these took place during CDH awareness month of June.

On Awareness Day on 28 June, we held an annual Social Media awareness campaign #JoininJune4CDH where we encouraged participants to join in Colours 4 CDH and Art 4 Awareness.

Events

The main Event in this financial year for CDH UK was the CDH Community Conference (CCC), the 2024 International CDH Symposium held in Lille France and the ERNICA meeting in Wrocslaw, Poland.

This has enabled us to continue with our good work and to improve our services and resources, to provide quality information on CDH and to stay in line with our WE CARE research Strategy. This has impacted on outcomes for patients, their families and healthcare providers.

All the things we provide are done with due regard to the commission public benefit guidance.

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CDH UK

TRUSTEES' ANNUAL REPORT (continued)

YEAR ENDED 7 JUNE 2024

Research

During this financial period we have continued to look at new research projects to participate in and potentially fund.

The following grant awards were made:

CDHeart - international collaboration

A novel mouse model of isolated CDH: lessons learned and a tool for the future SURGICAL-PEARL

We authored and published the CDH Patient Perspective Journey and created a patient friendly graphic and film.

We were also co-authors of the following research publications:

Patient-reported outcomes for CDH: a qualitative study

To see all past co-authorships and funded research please see 'Research Hub' on the CDH UK website.

In addition to funding and carrying out our own research, we have also participated in the following networks and research programmes CDH UK has taken part in meetings online as a founding member of the European Reference Network on rare inherited and congenital anomalies (ERNICA), a board member and Scientific Committee member, as a member of the Research & Registries working Group and Fetal and Pregnancy Group, to represent CDH patients and family groups for ERNICA and to help to build a European standard for care and support groups in Europe using the CDH UK best practices and exacting standard.

CDH UK also:

Projects

A new CDH UK short information film was produced for the CDH Patient Journey and a new information booklet 'CDH and Feeding'

Awareness

Awareness month is June and awareness day is 28th June This was recognised this year by a national Social Media campaign, fundraising initiatives, a series of podcast productions and a national light up event We also took part in the annual BLAW week (Baby Loss Awareness Week), World Birth Defects Day, Rare Disease Day, Mental Health Awareness Week, Charity Fraud Awareness Week.

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CDH UK

TRUSTEES' ANNUAL REPORT (continued)

YEAR ENDED 7 JUNE 2024

This has encouraged further research and impacted on outcomes and the reputation of the charity in a positive way.

FINANCIAL REVIEW

Transactions and Financial Position

There was a deficit for the year of £62,301 (2023 – surplus £69,005). Reserves at the end of the year were £475,461 (2023 - £537,762) including a designated fund of £340,991 and a restricted fund of £81,844. Free reserves amounted to £40,271 (2023 - £36,692) which are used to finance additional projects, trading in the ensuing year and as backup reserve.

The charity has unpaid volunteers to help run its various activities.

Investment policy

The charity retains a prudent amount in general reserves each year most of which are to be spent in the short term. However, the charity is accumulating funds in a designated fund for medical research. Having considered the options available, the Management Committee has decided to invest these funds in a high interest bearing account.

Reserves policy

It is the policy of the charity to maintain unrestricted funds not committed or invested in tangible fixed assets at a level which equates to at least three months unrestricted expenditure. This would provide sufficient funds to cover management and administration and support costs to enable the charity to continue its current activities in the event of a significant decline in funding. Three months expenditure amounts to approximately £32,000 and the total unrestricted funds excluding designated funds and fixed assets is £40,271, any surplus funds will be used towards further research.

Principal funding sources

The principal sources of income were donations and fundraising.

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CDH UK

TRUSTEES' ANNUAL REPORT (continued)

YEAR ENDED 7 JUNE 2024

PLANS FOR FUTURE PERIODS

The Charity's plans for the coming financial year are as follows:

CDH UK has been invited to lecture at EUPSA in April 2025

All our future plans are intended to impact on the charities aims and charitable activities and in line with its framework and efficacy of the charity to in turn impact on the support, care, services and outcomes for patients and their families.

We would like to take this opportunity to thank all supporters and donors of our cause.

The trustees' annual report was approved on 12 February 2025 and signed on behalf of the board of trustees by:

MRS BEVERLEY POWER

Trustee

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CDH UK

INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF CDH UK

YEAR ENDED 7 JUNE 2024

I report to the trustees on my examination of the financial statements of CDH UK ('the charity') for the year ended 7 June 2024.

RESPONSIBILITIES AND BASIS OF REPORT

As the trustees of the charity you are responsible for the preparation of the financial statements in accordance with the requirements of the Charities Act 2011 (‘the Act’).

I report in respect of my examination of the charity's financial statements carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

INDEPENDENT EXAMINER'S STATEMENT

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

  1. accounting records were not kept in respect of the charity as required by section 130 of the Act; or

  2. the financial statements do not accord with those records; or

  3. the financial statements do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair' view which is not a matter considered as part of an independent examination.

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

MRS E A SHORT FCA

Independent Examiner

Equitable House 55 Pellon Lane Halifax West Yorkshire HX1 5SP

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CDH UK

STATEMENT OF FINANCIAL ACTIVITIES

YEAR ENDED 7 JUNE 2024

2024 2023
Unrestricted Restricted
funds funds Total funds Total funds
Note £ £ £ £
Income and endowments
Donations and legacies 4 56,923 – 56,923 178,542
Other trading activities 5 1,324 – 1,324 14,362
Investment income 6 1,700 4,562 6,262 4,085
------------------------------- -------------------------- ------------------------------- -------------------------------------
Total income 59,947 4,562 64,509 196,989
=============================== ========================== =============================== =====================================
Expenditure
Expenditure on raising funds:
Costs of other trading activities 7 7,793 – 7,793 946
Expenditure on charitable activities 8,9 40,657 78,360 119,017 127,038
------------------------------- ------------------------------- ------------------------------------- -------------------------------------
Total expenditure 48,450 78,360 126,810 127,984
=============================== =============================== ===================================== =====================================
------------------------------- ------------------------------- ------------------------------------- -------------------------------------
Net (expenditure)/income and net
movement in funds 11,497 (73,798) (62,301) 69,005
=============================== =============================== ===================================== =====================================
Reconciliation of funds
Total funds brought forward 382,120 155,642 537,762 468,758
------------------------------------- ------------------------------------- ------------------------------------- -------------------------------------
Total funds carried forward 393,617 81,844 475,461 537,762
===================================== ===================================== ===================================== =====================================

The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.

The notes on pages 12 to 21 form part of these financial statements.

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CDH UK

STATEMENT OF FINANCIAL POSITION

7 JUNE 2024

2024 2023
Note £ £ £ £
FIXED ASSETS
Intangible assets 15 9,898 6,137
Tangible fixed assets 16 2,457 –
------------------------------- --------------------------
12,355 6,137
CURRENT ASSETS
Stocks 17 8,751 10,115
Debtors 18 37,914 17,872
Cash at bank and in hand 500,002 874,608
------------------------------------- -------------------------------------
546,667 902,595
CREDITORS: amounts falling due
within one year 19 83,561 370,969
------------------------------------- -------------------------------------
NET CURRENT ASSETS 463,106 531,626
------------------------------------- -------------------------------------
TOTAL ASSETS LESS CURRENT
LIABILITIES 475,461 537,763
------------------------------------- -------------------------------------
NET ASSETS 475,461 537,763
===================================== =====================================
FUNDS OF THE CHARITY
Restricted funds 81,844 155,642
Unrestricted funds 393,617 382,120
------------------------------------- -------------------------------------
Total charity funds 20 475,461 537,762
===================================== =====================================

These financial statements were approved by the board of trustees and authorised for issue on 12 February 2025, and are signed on behalf of the board by:

MRS BEVERLEY POWER Trustee

The notes on pages 12 to 21 form part of these financial statements.

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CDH UK

NOTES TO THE FINANCIAL STATEMENTS

YEAR ENDED 7 JUNE 2024

1. GENERAL INFORMATION

The charity is a public benefit entity and a registered charity in England and Wales and is unincorporated. The address of the principal office is The Denes, Lynn Road, Tilney All Saints, Kings Lynn, Norfolk, PE34 4RT.

2. STATEMENT OF COMPLIANCE

These financial statements have been prepared in compliance with FRS 102, 'The Financial Reporting Standard applicable in the UK and the Republic of Ireland', the Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (Charities SORP (FRS 102)) and the Charities Act 2011.

3. ACCOUNTING POLICIES

Basis of preparation

The financial statements have been prepared on the historical cost basis.

Going concern

There are no material uncertainties about the charity's ability to continue.

Judgements and key sources of estimation uncertainty

The preparation of the financial statements requires management to make judgements, estimates and assumptions that affect the amounts reported. These estimates and judgements are continually reviewed and are based on experience and other factors, including expectations of future events that are believed to be reasonable under the circumstances.

There are not considered to be any judgements or accounting estimates or assumptions that have a significant impact on the financial statements.

Fund accounting

Unrestricted funds are available for use at the discretion of the trustees to further any of the charity's purposes.

Designated funds are unrestricted funds earmarked by the trustees for particular future project or commitment.

Restricted funds are subjected to restrictions on their expenditure declared by the donor or through the terms of an appeal, and fall into one of two sub-classes: restricted income funds or endowment funds.

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CDH UK

NOTES TO THE FINANCIAL STATEMENTS (continued)

YEAR ENDED 7 JUNE 2024

3. ACCOUNTING POLICIES (continued)

Incoming resources

All incoming resources are included in the statement of financial activities when entitlement has passed to the charity; it is probable that the economic benefits associated with the transaction will flow to the charity and the amount can be reliably measured. The following specific policies are applied to particular categories of income:

Resources expended

Expenditure is recognised on an accruals basis as a liability is incurred. Expenditure includes any VAT which cannot be fully recovered, and is classified under headings of the statement of financial activities to which it relates:

All costs are allocated to expenditure categories reflecting the use of the resource. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs are apportioned between the activities they contribute to on a reasonable, justifiable and consistent basis.

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CDH UK

NOTES TO THE FINANCIAL STATEMENTS (continued)

YEAR ENDED 7 JUNE 2024

3. ACCOUNTING POLICIES (continued)

Intangible assets

Intangible assets are initially recorded at cost, and are subsequently stated at cost less any accumulated amortisation and impairment losses. Any intangible assets carried at revalued amounts, are recorded at the fair value at the date of revaluation, as determined by reference to an active market, less any subsequent accumulated amortisation and subsequent accumulated impairment losses.

Intangible assets acquired as part of a business combination are only recognised separately from goodwill when they arise from contractual or other legal rights, are separable, the expected future economic benefits are probable and the cost or value can be measured reliably.

Amortisation

Amortisation is calculated so as to write off the cost of an asset, less its estimated residual value, over the useful economic life of that asset as follows:

Website development - 33% reducing balance
Mobile app - Fully amortised
Awareness film - 20% straight line

If there is an indication that there has been a significant change in amortisation rate, useful life or residual value of an intangible asset, the amortisation is revised prospectively to reflect the new estimates.

Depreciation

Depreciation is calculated so as to write off the cost or valuation of an asset, less its residual value, over the useful economic life of that asset as follows:

Impairment of fixed assets

A review for indicators of impairment is carried out at each reporting date, with the recoverable amount being estimated where such indicators exist. Where the carrying value exceeds the recoverable amount, the asset is impaired accordingly. Prior impairments are also reviewed for possible reversal at each reporting date.

Stocks

Stocks are measured at the lower of cost and estimated selling price less costs to complete and sell. Cost includes all costs of purchase, costs of conversion and other costs incurred in bringing the stock to its present location and condition.

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CDH UK

NOTES TO THE FINANCIAL STATEMENTS (continued)

YEAR ENDED 7 JUNE 2024

3. ACCOUNTING POLICIES (continued)

Financial instruments

The company only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value with the exception of bank loans which are subsequently measured at amortised cost using the effective interest method.

4. DONATIONS AND LEGACIES

Unrestricted Total Funds Unrestricted Total Funds
Funds 2024 Funds 2023
£ £ £ £
DONATIONS
Donations 8,954 8,954 8,911 8,911
Enthuse 32,560 32,560 29,347 29,347
Just Giving 10,382 10,382 8,721 8,721
Gift aid receipts 3,627 3,627 2,397 2,397
Facebook 1,400 1,400 2,951 2,951
LEGACIES
Legacies – – 126,215 126,215
------------------------------- ------------------------------- ------------------------------------- -------------------------------------
56,923 56,923 178,542 178,542
=============================== =============================== ===================================== =====================================

5. OTHER TRADING ACTIVITIES

Unrestricted Total Funds Unrestricted Total Funds
Funds 2024 Funds 2023
£ £ £ £
Fundraising events 1,009 1,009 13,481 13,481
Awareness merchandise 315 315 881 881
-------------------------- -------------------------- ------------------------------- -------------------------------
1,324 1,324 14,362 14,362
========================== ========================== =============================== ===============================
INVESTMENT INCOME
Unrestricted Restricted Total Funds
Funds Funds 2024
£ £ £
Bank interest receivable 1,700 4,562 6,262
================ ========================== ==========================
Unrestricted Restricted Total Funds
Funds Funds 2023
£ £ £
Bank interest receivable 1,922 2,164 4,085
========================== ========================== ==========================

6. INVESTMENT INCOME

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CDH UK

NOTES TO THE FINANCIAL STATEMENTS (continued)

YEAR ENDED 7 JUNE 2024

7. COSTS OF OTHER TRADING ACTIVITIES

Unrestricted Total Funds Unrestricted Total Funds
Funds 2024 Funds 2023
£ £ £ £
Event costs 4,642 4,642 582 582
Promotional expenses 3,151 3,151 364 364
-------------------------- -------------------------- ---------------- ----------------
7,793 7,793 946 946
========================== ========================== ================ ================

8. EXPENDITURE ON CHARITABLE ACTIVITIES BY FUND TYPE

Unrestricted Restricted Total Funds
Funds Funds 2024
£ £ £
Home 2 Hospital 10,471 – 10,471
Memory boxes 317 – 317
Forget Me Not 1,366 – 1,366
Help 4 Home 1,258 – 1,258
Medical research – 78,345 78,345
Help 4 Holidays 139 – 139
Awareness campaign 2,658 – 2,658
Bereavement counselling – – –
CDH Community conference 2,487 – 2,486
Support costs 21,961 15 21,977
------------------------------- ------------------------------- -------------------------------------
40,657 78,360 119,017
=============================== =============================== =====================================
Unrestricted Restricted Total Funds
Funds Funds 2023
£ £ £
Home 2 Hospital 6,817 – 6,817
Memory boxes 359 – 359
Forget Me Not 4,503 – 4,503
Help 4 Home 2,691 – 2,691
Medical research 2,650 83,561 86,210
Help 4 Holidays 294 – 294
Awareness campaign 8,083 – 8,083
Bereavement counselling 675 – 675
CDH Community conference – – –
Support costs 17,383 24 17,406
------------------------------- ------------------------------- -------------------------------------
43,455 83,585 127,038
=============================== =============================== =====================================

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CDH UK

NOTES TO THE FINANCIAL STATEMENTS (continued)

YEAR ENDED 7 JUNE 2024

9. EXPENDITURE ON CHARITABLE ACTIVITIES BY ACTIVITY TYPE

Activities Grant
undertaken funding of Total funds Total fund
directly activities Support costs 2024 2023
£ £ £ £ £
Home 2 Hospital 10,471 –
–		 10,471 6,817
Memory boxes 317 –
–		 317 359
Forget Me Not 1,366 –
–		 1,366 4,503
Help 4 Home 1,258 –
–		 1,258 2,691
Medical research – 78,345
–		 78,345 86,210
Help 4 Holidays 139 –
–		 139 294
Awareness
campaign 2,658 –
–		 2,658 8,083
CDH Community
conference 2,486 –
–		 2,486 –
Bereavement
counselling – –
–		 – 675
Support costs – –
21,977		 21,977 17,406
------------------------------- ------------------------------- ------------------------------- ------------------------------------- -------------------------------------
18,695 78,345
21,977		 119,017 127,038
=============================== =============================== =============================== ===================================== =====================================

Medical research during 2024 includes grants awarded to:

2024 2023
£ £
KU Leuven – 75,427
Paolo De Coppi 74,197 –
Professor J Deprest – 8,131
Professor D Tibboel 4,131 –
------------------------------- -------------------------------
78,328 83,558
=============================== ===============================

The charity agreed to funding for KU Leuven University to carry out research titled 'Developing patient centred care for counselling prospective parents faced with a prenatal diagnosis of CDH.

Dr N Patel - Long term health and health service use in children and adults with congenital diaphragmatic hernia. Royal Hospital for Children - Glasgow

Grant awarded to Professor J Deprest for the research project Congenital Diaphragmatic hernia: Inhaled NO vs intravenous Sildenafil (CODINOS).

Grant awarded to Professor D Tibboel for the research project Prenatal maternal sildenafil administration to prevent pulmonary hypertension due to congenital diaphragmatic hernia: final preclinical steps to a clinical trial.

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CDH UK

NOTES TO THE FINANCIAL STATEMENTS (continued)

YEAR ENDED 7 JUNE 2024

10. ANALYSIS OF SUPPORT COSTS

10. ANALYSIS OF SUPPORT COSTS
Total 2024 Total 2023
£ £
Premises 624 624
Communications and IT 92 1,421
Volunteer expenses 200 444
Bank charges 17 25
Travel costs 1,325 1,713
Insurance 559 475
Stationery and office costs 10,034 6,461
Amortisation 2,504 2,205
Outsourced telephone support 180 470
Online donations fees 1,925 206
Professional fees 496 1,233
Accountancy 2,842 2,129
Depreciation 1,179 -
------------------------------- -------------------------------
21,977 17,406
=============================== ===============================
11. NET (EXPENDITURE)/INCOME
Net (expenditure)/income is stated after charging/(crediting):
2024 2023
£ £
Amortisation of intangible assets 2,504 2,205
Depreciation of tangible fixed assets 1,179 –
========================== ==========================
12. INDEPENDENT EXAMINATION FEES
2024 2023
£ £
Fees payable to the independent examiner for:
Independent examination of the financial statements 1,720 1,600
========================== ==========================

13. STAFF COSTS

The average head count of employees during the year was Nil (2023: Nil).

No employee received employee benefits of more than £60,000 during the year (2023: Nil).

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CDH UK

NOTES TO THE FINANCIAL STATEMENTS (continued)

YEAR ENDED 7 JUNE 2024

14. TRUSTEE REMUNERATION AND EXPENSES

No remuneration or other benefits from employment with the charity or a related entity were received by the trustees.

Travel expenses totalling £898 have been reimbursed to the trustees during the year ended 7 June 2024 (2023- £1,365)

15. INTANGIBLE ASSETS

Awareness
Website Mobile app film Total
£ £ £ £
Cost
At 8 June 2023 4,826 12,138 8,640 25,604
Additions – – 6,265 6,265
-------------------------- ------------------------------- ------------------------------- -------------------------------
At 7 June 2024 4,826 12,138 14,905 31,869
========================== =============================== =============================== ===============================
Amortisation
At 8 June 2023 3,873 12,138 3,456 19,467
Charge for the year 316 – 2,188 2,504
-------------------------- ------------------------------- ------------------------------- -------------------------------
At 7 June 2024 4,189 12,138 5,644 21,971
========================== =============================== =============================== ===============================
Carrying amount
At 7 June 2024 637 – 9,261 9,898
========================== =============================== =============================== ===============================
At 7 June 2023 953 – 5,184 6,137
========================== =============================== =============================== ===============================
TANGIBLE FIXED ASSETS
Equipment Total
£ £
Cost
At 8 June 2023 – –
Additions 3,636 3,636
-------------------------- --------------------------
At 7 June 2024 3,636 3,636
========================== ==========================
Depreciation
At 8 June 2023 – –
Charge for the year 1,179 1,179
-------------------------- --------------------------
At 7 June 2024 1,179 1,179
========================== ==========================
Carrying amount
At 7 June 2024 2,457 2,457
========================== ==========================
At 7 June 2023 – –
========================== ==========================

16. TANGIBLE FIXED ASSETS

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CDH UK

NOTES TO THE FINANCIAL STATEMENTS (continued)

YEAR ENDED 7 JUNE 2024

17. STOCKS

2024 2023
£ £
Raw materials and consumables 8,751 10,115
========================== ===============================
18. DEBTORS
2024 2023
£ £
Prepayments and accrued income 945 2,306
Online giving donations 18,985 4,609
Other debtors 17,984 10,957
------------------------------- -------------------------------
37,914 17,872
=============================== ===============================
19. CREDITORS: amounts falling due within one year
2024 2023
£ £
Trade creditors 1,799 1,678
Accruals and deferred income 3,413 2,046
Medical research 78,347 367,245
------------------------------- -------------------------------------
83,559 370,969
=============================== =====================================

20. ANALYSIS OF CHARITABLE FUNDS

Unrestricted funds

8 June 2023 Income Expenditure Transfers7 June 2024 Transfers7 June 2024
£
 £ £ £
 £
General funds 42,829 59,947 (48,451) (1,700) 52,625
Medical research fund 339,291 – – 1,700 340,991
------------------------------------- ------------------------------- ------------------------------- -------------------------- -------------------------------------
382,120 59,947 (48,451) – 393616
===================================== =============================== =============================== ========================== =====================================
8 June 2022 Income Expenditure Transfers 7 June 2023
£ £ £ £ £
General funds 30,540 194,826 (44,401) (138,136) 42,829
Medical research fund 201,155 – – 138,136 339,291
------------------------------------- ------------------------------------- ------------------------------- ------------------------------------- -------------------------------------
231,695 194,826 (44,401) – 382,120
===================================== ===================================== =============================== ===================================== =====================================

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CDH UK

NOTES TO THE FINANCIAL STATEMENTS (continued)

YEAR ENDED 7 JUNE 2024

The Medical research fund was earmarked by the trustees to contribute towards further study and research into better management and treatment of CDH, and to assist in finding the cause and prevention.

Restricted funds

8 June 2023 Income Expenditure Transfers 7 June 2024
£ £ £ £ £
Medical research fund 155,642 4,562 (78,360) – 81,844
===================================== ========================== =============================== ================ ===============================
8 June 2022 Income Expenditure Transfers 7 June 2023
£ £ £ £ £
Medical research fund 237,063 2,164 (83,585) – 155,642
===================================== ========================== =============================== ================ =====================================

The funds held in restricted funds of £81,844 represents the amount held in the Sparks CDH UK bank account of £104,203 less related expenditure of £63,358.

21. ANALYSIS OF NET ASSETS BETWEEN FUNDS

Unrestricted Restricted Total Funds
Funds Funds 2024
£ £ £
Intangible assets 9,898 – 9,898
Tangible fixed assets 2,457 – 2,457
Current assets 386,459 160,208 546,667
Creditors less than 1 year (5,197) (78,364)
(83,561)
------------------------------------- ------------------------------------- -------------------------------------
Net assets 393,617 81,844 475,461
===================================== ===================================== =====================================
Unrestricted Restricted Total Funds
Funds Funds 2023
£ £ £
Intangible assets 6,137 – 6,137
Tangible fixed assets – – –
Current assets 379,709 522,886 902,595
Creditors less than 1 year (3,726) (367,244)
(370,970)
------------------------------------- ------------------------------------- -------------------------------------
Net assets 382,120 155,642 537,762
===================================== ===================================== =====================================

22. RELATED PARTIES

There were no disclosable related party transactions in either the current or the prior year.

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CDH UK

MANAGEMENT INFORMATION

YEAR ENDED 7 JUNE 2024

The following pages do not form part of the financial statements.

- 22 -

CDH UK

DETAILED STATEMENT OF FINANCIAL ACTIVITIES

YEAR ENDED 7 JUNE 2024

2024 2023
£ £
Income and endowments
Donations and legacies
Donations 8,954 8,911
Enthuse 32,560 29,347
Just Giving 10,382 8,721
Gift aid receipts 3,627 2,397
Facebook 1,400 2,951
Legacies – 126,215
------------------------------- -------------------------------------
56,923 178,542
------------------------------- -------------------------------------
Other trading activities
Fundraising events 1,009 13,481
Awareness merchandise 315 881
-------------------------- -------------------------------
1,324 14,362
-------------------------- -------------------------------
Investment income
Bank interest receivable 6,262 4,085
-------------------------- --------------------------
------------------------------- -------------------------------------
Total income 64,509 196,989
=============================== =====================================

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CDH UK

DETAILED STATEMENT OF FINANCIAL ACTIVITIES (continued)

YEAR ENDED 7 JUNE 2024

2024 2023
£ £
Expenditure
Costs of other trading activities
Opening stock 10,115 8,124
Event costs and promotional goods 6,429 2,937
Closing stock (8,751) (10,115)
------------------------------- -------------------------------------
7,793 946
------------------------------- -------------------------------------
Expenditure on charitable activities
Rent 624 624
Insurance 559 475
Volunteer expenses 200 444
Travelling expenses 1,325 1,713
Home 2 Hospital 10,471 6,817
Outsourced telephone support 180 471
Telephone 92 1,421
Other office costs 5,424 2,631
Amortisation 2,504 2,204
Depreciation 1,179 –
Memory boxes 317 359
Forget Me Not Scheme 1,366 4,503
Help 4 Home 1,258 2,691
Medical research grant 78,345 86,210
Holiday scheme 139 294
Awareness campaign and advertising 2,658 8,083
Bereavement counselling - 675
CDH Community conference 2,486 -
Online donation fees 1,925 206
Postage and stationery and computer expenses 4,610 3,830
Professional fees 496 1,233
Accountancy fees 2,842 2,129
Bank charges 17 25
------------------------------------- -------------------------------------
119,017 127,038
------------------------------------- -------------------------------------
------------------------------------- -------------------------------------
Total expenditure 126,810 127,984
===================================== =====================================
------------------------------------- -------------------------------------
Net (expenditure)/income (62,301) 69,005
===================================== =====================================

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