Trustees, Report and Accounts 2024
YAT SOCLety
DVOC '
Ataxla TeLan9lect
OLL
Iv
RAN
{(
V49lttt•sl•
6AR
IJ
taxi
tasia

Welcomè to the Ataxia TeLangiectasia (AT) Society
We are a small, national charity supporting children, adults and their families
whose lives have been shattered by a diagnosis of AT, a rare, degenerative, life
limiting condition for which there is no cure. Our purpose is to improve the
quality of life and quality of care for people living with AT while actively
promoting research to improve treatments and ultimately bring about a cure.
We are the only charity in the UK providing specialist, practical and therapeutic
support for people affected by AT.
Message from the Chair of Trustees, Mike Detsiny
Trustees, Annual Report
Objectives and activities
Achievements and performance
Structure, governance and management
Financial review
Principal risks and uncertainties
Plans for the future
Statement of trustees responsibilities
Independent auditor's report
Statement of financial activities
Statement of financial position
Statement of cash flows
Notes to the financial statements
Reference and administrative information
14
21
"Together we can really
make a diFFerence and ensure
there is hope for the Future and
support For today."
Mike Detsiny
Chair of Trustees

Chair OF Trustees, statement
Messa9e from the Chair of Tfustees.
Mike Detsiny
In 2025 I will be stepping down as Chair of The AT
Society after ten years in the role. It has been one
of my greatest honours to have the privilege to
lead this incredible charity. But ten years is too
long, and it is important my successor brings new
drive and thinking to the role to ensure your
Society continues to improve the service we
deliver to those who need us and frequently rely
on us to meet their needs.
Inside this report you will find details of the many
services we deliver and the increasin9 number of
initiatives we are taking, from the new research we
are involved in and the clinical trials on the horizon,
to the broader support services now provided. I do
hope you will find them full of hope and
encouragement.
Virtually every charity will tell you that their past
year has been particularly challenging. that is the
nature of the charity sector. However, I would
argue that the last decade has been one of almost
unparalleled difficulty for the sector and for small
charities in particular. COVID and the cost-of-living
crisis have made fundraising incredibly hard. Many
small charities have failed to survive and, whilst
COVID is not currently a major threat, the financial
landscape is putting ever more strain on people's
ability to donate. Unfortunately, given we currently
have a no-grovrth economy, fundraising will
inevitably get increasingly difficult.
Against this challenging background we have
managed to improve our range of services and,
whilst our finances could always be better, they are
currently strong enough for us to face the future
with confidence. All this has been achieved thanks
to the generosity of all of our wonderful
supporters, and to the dedication of our staff team
who seem to regard their efforts as a vocation
rather than a job. Staff turnover is way lower than
is the norm and no challenge seems too daunting
to them. They are brilliantly led by Kay Atkins and
Susie Norbury, and it has been my pleasure and
privilege to work with them. The team's efforts
have, of course, been supplemented by very many
volunteers, and my fellow trustees.
A new Chair will be elected at our AGM in May and
tradition demands that no announcement can be
made before then. However, l am very happy to
inform readers that our Board have unanimously
declared that they would like Rachel Poupard to
lead us through the next sta9e of our development.
Rachel has family experience of the cruelty of AT
and indeed, her parents were the founders of our
charity. I could not leave the AT Society in better
hands.
Mike Detsiny
Chair of Trustees
AT Society Trustees, Report and Accounts 2024

Trustees, report
Tcustees Annual Report
The AT Society's Board of Trustees have pleasure in
presenting their report, together with the Society's
audited financial ststements for the year ended 31
December 2024.
objectives laid out in that year's plan and examine
the impact these activities have had on individuals
affected by AT.
The review ensures that the Society's mission and
objectives stay true to its core purpose and gives us
This report has been prepared in compliance with the
the opportunity to evaluate how the Society's work
duty in Section 1715) of the Charities Act 2011 to
contributes to its charitable aims for the public good,
have due regard to public benefit guidance published
particularly for those impacted by AT, in alignment
by the Charity Commission. Reference and
with the Charity Commission's guidance.
administrative information is set out on the inside
In working towards these priorities, the Society has a
back cover, and forms part of this report.
structured, budgeted business plan that is subject to
The trustees, who are directors of the company for
ongoing review. Below, we outline the Society's
the purposes of the Companies Act, have adopted
efforts and accomplishments for 2024 to
the provisions of Accounting and Reporting by
demonstrate how we have achieved our aims and
Charities.. Statement of Recommended Practice
confirm we have complied with our duty to have due
applicable to charities preparing their accounts in
regard to the guidance contained in the Charity
accordance with the Financial Reporting Standard
Commission's general guidance on how we have
applicable in the UK and Republic of Ireland (Charities
delivered public benefit when reviewing these.
SORP FRS 1021 (effective 1 January 2019).
Further details are available in our 2024 Impact
Report at www.atsociety.org.uklabout-us.
Objectlves and actlVLties
Achievements and perFormance
Ensuring the Society's work achieves its aims and
delivers public benefrt
Dedicated to providing support for today and
The purpose of the Society and its public benefit as
hope for tomorrow.
set out in the company's Memorandum of Association, 2024 represented the AT Society's 35 year of
is "the relief of sickness and distress among persons
operation. The anniversary was marked in a number
suffering from ataxia telan9iectssia"
of ways throughout the year and included an Early
Our vision is a world where no one need suffer from
Day Motion in the House of Commons. In this
the devastating effects of AT, and our mission is to
important year, building on last year's progress, we
improve the quality of life and quality of care for
were pleased that overall, our income grew more
people living Wlth AT while actively promoting
than expected, which was largely due to some
research to improve treatments and ultimately bring
extremely generous legacies and grants. To deliver
about a cure.
growth and investment against the backdrop of
ongoing challenges in the external world, including
We do this by:
the cost-of-living crisis and global insecurity, is huge
Providing excellent and inclusive, specialist care
testament to all involved and our thanks go to all our
and support, information and advocacy to meet
wonderful supporters for this. The uplift has enabled
the challenges of living with AT
us to invest in three new important medical research
Promoting and commissioning high quality AT
projects towards the end of the year and into 2025,
research
to cover our costs, and help towards improving our
Raising awareness of AT and speaking out to
investments for the year ahead.
ensure that the voices of people affected by AT
Through the year we continued to work collaboratively
are heard, improving practice, policy-making and
to achieve more informed, and more coordinated
systems so that they really work for all children and health and social care services across all sectors. We
adults affected by AT
provided bespoke AT training for health and
Working to achieve better, more informed, and
education providers to improve their awareness and
more coordinated health and social care services
knowledge of AT: 100% said their knowledge of AT
across all sectors
had improved considerably and 97% said their work
To fulfil our mission, the trustees undertake an annual
with families and children affected by AT would
review of the Society's goals, priorities, and initiatives
significantly improve as a direct consequence. We
as part of our plannin9 process. We look at the
worked closely with the public sector to help local
previous year's performance compared to the
teams implement national advice; and with our
AT Soci•ty Trustees. Report and Accounts 2024

international partners in the AT Global Alliance, we
co-funded important medical research projects, as
well as shared knowledge, expertise and best-
practice to keep developing our collective skills.
We committed to spending more on seniice delivery
this year. A lar9e part of this increased investment
was on supporting access to specialist health care and
advice and helping towards funding the 280A increase
in the number of children and adults attending the AT
medical clinics throu9hout the year. The clinics are
based at Nottingham University Hospital and Royal
Papworth Hospltal and enable the progression of AT
to be monitored and managed closely by AT
professionals, helping enormously to improve
individual lives. Of parents attending with their
children, 72% came away with new approaches to
better manage this complex condition.
930A of parents attending the children's AT
specialist clinics said they were extremely useful
and 870k of parents felt their concerns were
addressed.
living with AT and their 8CK)+ family members and
carers, many of whom were also the very people hit
hardest by the cost-of-living crisis. Nearly 40% of the
emergency support grants provided were needed to
help families pay for escalating cost of housing
adaptations, utility bills and food bills; 30°A were on
disability equipment and increased transport costs. In
2024 1000A of parents said the advice and support
received to navigate their way through a crisis or to
address specific and pressing issues around housing,
benefits, and education needs was 'extremely
helpful,.
Beyond financial struggles, the emotional toll of living
with AT can be overwhelming: anxiety, frustration,
and uncertainty often weigh heavily on young people
and their families. Recognising these challenges, we
remained dedicated to offering meaningful support
that prioritised mental well-being. Through play and
art therapy, we provided children with a safe space to
express their emotions, while counselling services
equipped parents with coping strategies to manage
stress and build resilience. We also developed useful
tools to help families navigate their emotional
journey.
"I don't know how we would get through this
without the AT Society"
The year saw a 5% increase in new diagnosis, and
using a combination of friendly home visits, online
meetin9s and telephone calls, we were able to
provide space where new families felt safe, respected
and able to access services. It's imperative that we
continue to reach families early, creatin9 person-
centred and responsive approaches, and thanks to
our supporters, we achieved this and continued to
have an open-door approach that meant no one was
turned away.
"From the very beginning, the AT Society was
there. They didn't just offer support they were
part of the light that helped guide us. They
stepped in with school visits, home visits, advice
about housing, and support in ways we hadn't
even thought about. We are forever grateful for
everything they've done
not just for our
daughter, but for our entire family."
In June we held an activity weekend in Cumbria for
adults with AT, which was an overwhelming success.
It promoted inclusion and belonging by connecting
39 individuals to each other and to wider
opportunities and support. It helped those with a rare
condition to no longer feel rare, but to feel a part of
an important community. Friendships were made,
challenges were conquered, and a lot of fun was had.
Working closely with medics and the pharmaceutical
industry, we have also invested time and money to
support long-anticipated clinical trials. We have
funded travel and overnight stays, to ensure financial
hardship is not a barrier to a child's participation;
disseminated information and hosted meetings to
keep families informed; and worked closely with
hospital teams to help recruitment to new trials. We
were pleased that the first, NEAT,
(https://quincetx.com/pipelinen started at the end of
the year for children aged 6-9 years old and aims to
slow the disease progression. A second, IB1001,
which aims to
improve the ataxia, will begin in 2025. Both trials
represent significant milestones and strengthen our
communities, hope for the future.
Throughout the year, we remained committed to
advancing high-quality AT research, deepening our
understanding of this complex condition. In 2024, we
were proud to commit to funding groundbreaking
medical research taking place in the UK from 2024-
2028 that will lay the foundation for future clinical
trials. We also delivered key talks and hosted
international scientific discussion on important topics
and kept our patient group informed throughout.
While significant challenges remain, there is genuine
reason for optimism, and our role in investing in
research continues to be essential.
We provided and developed expert and accessible
information, advocacy and care to support 235 UK
individuals coping with the everyday pressures of
AT Soci•ty Trustees. Report and Accounts 2024

Trustees, report
"I don't feel so lonely now. I've never met
anyone with AT before and I've made good
friends from this event."
Under the terms of the Memorandum and Articles of
Association, trustees (direttorsl may either be
appointed by the Board to fill a casual vacancy or are
to be elected by the Society's members at the annual
9eneral meeting to serve a 3-year term of ofPice. All
trustees can serve a maximum of terms of office,
and in very exceptional circumstances, the Board may
agree to extend this to three terms. All appointed
trustees must submit themselves to election at the
annual general meeting immediately following their
appointment. The Board of Trustees may consist of
between 3 and 20 members. At the time of writing,
we have 9 trustees and in accordance with our aim to
be a user-led organisation, over half of our Board
have lived experience of AT.
Vetting and checks of trustees are carried out in line
with Charity Commission guidance. All new trustees
receive an information pack which includes their legal
obligations under charity and company law, the
annual report and accounts, the annual plan and
budget, the company's Memorandum & Articles of
Association, all mandatory policies and
representative selection of the Society's current
literature. Induction meetings take place with the
Chair, and with all staff, and a conflict of interest
always declared.
The Board has a positive approach to its own training
and development, regularly reviewing skills and
needs and organising appropriate training, whether
for the group or for individuals. All trustees are DBS
checked every 3 years and complete safeguarding
training appropriate for their role every 2 years, and
all are encouraged to keep abreast of developments
both in charity governance and in current issues
concerning AT.
All trustees give their time voluntarily and receive no
benefit from the charity by virtue of the office they
hold. Any expenses reclaimed from the charity are set
out in note 11 to the accounts. Beneficiaries are not
prevented from being trustees, but in such
circumstances, the trustee declares their interest and
takes no part in the discussion or decision that they
may benefit from. All conflicts of interest are declared
at the start of each meeting.
"You got me doing things I wouldn't normally
do. Being in a wheelchair won't stop me! Not
anymore."
We were also pleased to start our strategic review
mid-way through 2024, which will be completed in
2025. We began this by surveying and collecting
dats from our AT families through the year,
deepening our understanding of how people with
AT are experiencing the world, to ensure we can
meet their needs and connect with audiences we're
not yet reaching. The end strategy will likely involve
proactively investing in medical research,
broadening our care and support reach and
accessibility, and increasing our fundraising
investment to increase capacity and growth.
We would like to thank everyone who has
supported us to make this all possible in our 35
year. Every donation, no matter how big or small,
makes a difference in our determined efforts to
help people affected by AT to deliver a service that
provides the best support now and hope for the
future.
Structure, Governance and Management
The Ataxia Telangiectasia Society is a charitable
company limited by guarantee, incorporated in
England and Wales, in 2004, under Company
number 5177145. It is registered with the Charity
Commission in England under the same name, in
2004, registration number 1105528. The Society
uses the working name "AT Society"
The company was established under a
Memorandum of Association which defined its
objects and powers, and it is governed by its
Articles of Association. In the event of the company
being wound up members may be required to
contribute an amount not exceeding £1 each.
Directors of the company are also trustees for the
purposes of charity law and are the governing body
of the Society. They meet formally as a Board of
Trustees a minimum of four times each year and
determine the overall strategy for the organisation
and the policies and procedures for the
implementation of the strategy. The Board also
oversee the effective and equitable use of the
Society's resources and ensures that it meets all its
legal, regulatory and ethical obligations.
AT Society Trustees. Report and Accounts 2024

The AT Society has two sub-committees that report
into the Board, both consisting of volunteer scientific
experts in the field and lay AT family members. Our
Scientific Advisory Board, chaired by Professor Rob
Dineen, advise on our research strategy and
rigorously assess projects to maximise our
investments into the highest quality research.
Our Clinical Trials sub-committee, chaired jointly by
Dr Rita Horvath and Dr Anke Hensiek, was set up in
2023, to keep abreast of the different trials on the
horizon, provide information for families and
improved connection with Principal Investigators
conducting trials, and to provide input from patients
in enabling new trials and trial design.
Day to day operational and fundraising management
is delegated to the Director of Operations, Susie
Norbury. Our Family Support work is led by the
Head of Services, Kay Atkins and our research
programme is led, voluntarily, by our trustee and
scientific advisor Professor Penny Jeggo.
Remuneration of the Society's staff team of 9 15
reviewed annually against performance and
affordability. We are a Living Wage Employer which
means we ensure pay is fair for all roles and are
committed to paying all our employees at or above
the living wage as determined by the Living Wage
Foundation.
affiliated to the Genetic Alliance UK, Rare Disease
UK, Euro-Ataxia, and are members of the NCVO and
the Association of Medical Research Charities
("AMRC"). We work closely with Ataxia UK,
neurological alliances, and UK and AT groups.
Flnancial review
During the year we were pleased to have increased
our income whilst controlling costs.
The AT Society received income of £657,491 (2023:
£478,337) and spent £571,90812023: £662,593). The
Society therefore had an overall surplus for the year
of £85,583 (2023,. deficit of £184,256). The large
deficit in 2023 was due to a commitment we made in
the year to use our reser+/es to invest in new research
studies and in our sUPPOrt services.
With funds brought forward from previous years, the
Society will carry forward £485,316 in reserves (2023:
£399,733). Unrestricted general funds carried
forward are at £404,744 (2023: £303,301). The
Society also carries forward restricted funds of
£80,572 (2023: £96,432), which the trustees consider
to be at an appropriate level.
Of the Society's total income some 42°A was
received in donations and legacies from individuals,
and donations from companies and trusts; 39Yo in
grants from NHS England, the Medical Research
Council and Trusts; and 17°A from fundraising
challenges and events. The remaining income came
from trading and investments.
The Society values its staff and aims to be an
exemplary employer of a skilled and committed
workforce. It does not discriminate in any way in the
recruitment, training or retention of employees, and
artively encourages its staff to enhance and extend
their skills, particularly regarding its charitable
objectives; learning and personal development are
central to the appraisal process.
The staff team organise and provide most of the
services delivered by the Society and manage and
support the Society's volunteers. During the year we
enjoyed volunteer support to help with
administrative duties, fundraising and beneficiary
events, communications and design support, and
legal advice, for which we are immensely grateful.
The hours of voluntary support totalled
approximately 1,000 through the year, representing
a cost saving of around £10,000.
All trustees and members of the sub-committees
active in 2024 are listed on the inside back cover of
this report.
To strengthen our ability to campaign on beha5f of
and meet the needs of people living with AT, we are
Investment policy
The trustees recognise their duty to maximise the
financial returns generated from the way in which the
charity's assets are invested and do so responsibly
and ethically in a way that is consistent with the aims
and values of the AT Society. In 2022 the trustees
evaluated the investment returns and agreed to
move funds from a deposit account with the
Charities Aid Foundation, to a more flexible deposit
platform with Flagstone, still managed by CAF, and
which involves investing in UK banks with higher
interest-bearing returns and no risk of capital loss.
We have continued to use this system during 2024,
and were pleased to have generated £13,875 in
investment income, representing a 77% growth on
the previous year. However, the trustees review the
investment policy on an annual basis and in 2025 will
be exploring whether there are other more beneficial
opportunities to maximise our returns.
AT Society Trustoes. Report and Accounts 2024

TfUStees' report
Reserves policy
The AT Society maintains free unrestricted reseNes:
To provide a level of working capital that
protects the continuity of our core work
To provide a level of funding for unexpected
opportunities
To provide cover for risks such as unforeseen
expenditure or unanticipated loss of income.
The Board of Trustees regularly review this criteria
with reference to the AT Society's strategy and
Annual Plan and determine the target level of free
reserves to meet these.
Given the economic climate and the risks to income
and cost increases, the Board considered it prudent
for a charity of this size, heavily reliant upon
voluntary income, to maintain a minimum level of 9
months of operational costs. In 2023 we committed
to new research studies and made the conscious
decision to allow our reserves to temporarily fall to
7 months. By the end of 2024 the Society built this
back up to having unrestricted reserves of 8.5
months.
Grant-making policies
The Society makes two types of grants to meet its
objectives: research grants and individual support
grants.
Research grants
The Society is a member of the Association of Medical
Research Charities (AMRCI and works to AMRC
standards in its research grant programme. Our
Scientific Advisory Board {SAB) ensure that research
grants undergo a robust peer-reviewed process and
confirm that:
The project has scientific merit and meets the aims
of the Society's research strategy
The proposed study does not duplicate other
current or recent research
The Society is spending its research funds in the
most effective way
The AT Society's research strategy and procedures are
reviewed by the SAB and reported to the trustee
board, with priorities agreed to ensure the greatest
possible impact for its research programme.
For the next few years, the AT Society is primarily
focusing its research efforts on understanding and
treating the neurological problems caused by AT and
the loss of the ATM protein. This is the feature of AT
which has the greatest impact on everyday life for
people with AT. It not only affects movement and
manual dexterity, but also speech, eating and
nutrition, posture and potential scoliosis and it also
contributes significantly to the development of lung
disease.
The research projects we supported in 2024 can be
seen on page 17 of the accounts. Our full research
programme can be viewed at:
The Board of Trustees will at times designate funds
from free reser4es for significant project costs or
replacement of major assets. In 2019 the trustees
designated £350,000 to invest in medical research
projects, of which we now have £93,330 remaining.
It is anticipated that the majority of the remaining
designated funds will be spent in 2025 on new
research studies.
The charity also holds restricted reserves of £80,572
which represent the excess of restricted income
over restricted expenditure. These restricted
reserves are closely monitored to ensure they are
used in accordance with the terms specified when
the funds were received,
Fundraising
Durin9 the year, the AT Society engaged in public
fundraising, but did not use external professional
fundraisers or commercial participators for this.
However, professional fundraisers are used on
occasion for fundraising from Trusts and
Foundations. The charity continued to observe and
comply with the relevant fundraising regulations
and codes and is a member of the Fundraising
Regulator. In 2024 the charity received no
complaints relating to its fundraising practi￿.
Individual support grants
The Society provides financial support grants to any
individual affected by AT, to assist with the cost of
items that they need because of the condition but
cannot easily afford, and for which they cannot get
help from other sources. An application form is used
and there are formal criteria for the assessment and
awarding of grants, approved by the AT Society
Support Team. Applicants need the support of an
appropriate professional and need to demonstrate
what efforts have been made to obtain ststutory or
other funding.
AT Society Trustees. Report and Accounts 2024

Principal risks and uncertainties
This is reflected in our safeguarding policies and
procedures, which include safe recruitment measures
and clear training requirements, which are regularly
reviewed by our safeguarding leads, senior staff and
Board of Trustees.
Overall responsibility and accountability for risk lies
with the Board of Trustees, who review it formally on
an annual basis, and regularly throughout the year.
The AT Society's approach to risk management
centres on identifying the risks to which the charity
may be exposed, and the establishment and
implementation of systems and procedures designed
to mitigate the impact on the charity of them. Our
approach is informed by guidance provided by the
Charity Commission, including its overarching
definition of risk:
"the uncertainty surrounding events and their
outcomes that may have a significant impact, either
enhancing or inhibiting any area of a charity's
operations."
The key risks areas identified remain the same as the
previous years, and include:
Insufficient funds to allow the charity to meet its
objectives
Information security and data protection
Safeguarding children, young people and
vulnerable adults
Loss of key staff.
To mitigate these risks, we have a fundraising
strategy that we monitor closely to address
underperforming income streams. Being a small
national charity always means our resources are
spread thinly, but it also means we are agile enough
to respond immediately to challenges. Whilst
donations under-performed in the year, an increase
in legacy income presents opportunities to review
our investment strategy, as well as invest in
fundraising resource for longer term growth.
The AT Society is committed to safeguarding any
personal and fundraising data that we process,
ensuring that it is stored and shared safely and
securely. We are compliant with GDPR and review all
data privacy and protection policies regularly to
ensure that they remain strong and effective. All staff
receive annual training in managing data risks and
updates on protection, and we have additional
cyber-security insurance to moderate these risks and
their associated costs.
We have a committed and loyal staff team and
turnover is well below the sector norm, however the
loss of anyone would be significant for the charity and
so to reduce these risks the AT Society works hard to
be an employer where everyone feels they belong,
and feels valued, supported, and motivated to stay.
We provide flexible and hybrid working, a positive and
inclusive work environment, wellness programs and
professional development. Whilst we are a Livin9
Wage employer, salaries are far from high, especially
for those based in the southeast. The Board of
Trustees have committed to a salary review in 2025
and for adjustments to be made where necessary.
Plans For Future periods
To continue to ensure we are delivering the very best
services for people affected by AT, in 2025 we will
continue progressing the work we began in 2024 to
deepen our understandin9 of how people with AT are
experiencing the world, grow our impact, and connect
with audiences we're not yet reaching.
A key priority will be to complete a >5-year strategy
which recognises and responds to the needs of people
affected by AT and the economic situation that is likely
to impact on the charity's operation for some years to
come.
Mid-way through the year we will hold our first,
international AT clinical research conference since
2018. This will be a landmark event and will bring
together the world's leading AT scientists and clinical
experts to collaborate, share ideas and drive forward
solutions to improve patient outcomes. Scientists,
medical professionals and charities have been calling
for this face-to-face meeting, which will lead into the
AT Society Family Weekend, where UK families
affected by AT come together for support,
connection, and learnin9.
In 2025 we will also:
Protecting the welfare of children, young people and
vulnerable adults who receive the services we
provide 15 central to our culture and is a governance
priority. Everyone who works or volunteers for the
AT Society has a responsibility to safeguard and
promote beneficiaries, welfare, alongside a duty to
recognise, respond and share concerns or worries
about possible abuse and harm in a timely fashion.
AT Society Trustees. Report and Accounts 2024
Disseminate findings from our clinical conference
and set up international legacy working groups to
take forward key areas of development
Continue to focus on developing our mental
health work to help people to cope with the
challenges that AT brings and will be led by the
insights of people affected by AT

Trustees, report
Provide expert and friendly advice and support
to all service users, their families, and
professionals
Fight for the overlooked needs of disabled
people and stand up to the injustices that make
life so much harder for people with AT
Work with our NHS partners to run our specialist
AT medical clinics in the most effective and
efficient way possible
Deliver opportunities for wider family networks
to meet and learn about AT to help them better
support their family or friend with the condition
Continue our equity, diversity and inclusion
ambitions to ensure all our seNices are fully
accessible
Make sound judgements and estimates that are
reasonable and prudent
State whether applicable UK Accounting
Standards and statements of recommended
practice have been followed, subject to any
material departures disclosed and explained in the
financial statements
Prepare the financial statements on the going
concern basis, unless it is inappropriate to
presume that the Society will continue on that
basis.
The trustees are responsible for keeping proper
accounting records which disclose with reasonable
accuracy at any time the financial position of the
charity and enable them to ensure that the financial
statements comply with the Companies Act 2006.
The trustees are also responsible for safeguarding the
assets of the charity and hence for taking reasonable
steps for the prevention and detection of fraud and
other irregularities.
In accordance with company law, as the directors of
the company, we certify that:
So far as we are aware there is no relevant audit
information of which the company's auditors are
unaware
Continue working Wlth, and investing in, the AT
research community to advance our
understanding of AT and move us closer to
finding treatments and an eventual cure
Work with pharmaceutical and biotech
companies to help advance clinical trials and
support patients to understand and access those
trials
Develop our efforts to reduce our carbon
footprint by keeping moving closer to becoming
a paperless office, reducing travel by meeting
online where possible; recycling waste and
equipment. and buying environmentally friendly
products.
As the trustees of the company, we have taken all
the steps that we ought to have taken in order to
make ourselves aware of any relevant audit
information and to establish that the charity's
auditors are aware of that information.
Statement OF trustees, responsibllltles
Auditors
Hicks and Company, the auditors, were re-appointed
as the charitable company's auditors during the year
and have expressed their willingness to continue in
that capacity. A resolution will be proposed at the
annual general meeting that they be re-appointed as
auditors to the charity for the ensuing year.
This report has been prepared in accordance with the
special provisions of Part 15 of the Companies Act
2006 relating to small companies.
Approved by the Board of Trustees on 19 May 2025
and signed on their behalf by:
The trustees (who are also the directors of the Ataxia
Telan9iectasia Society for the purposes of company
lawl are responsible for preparing the Report of the
Trustees and the financial statements in accordance
with applicable law and United Kingdom Accounting
Standards (United Kingdom Generally Accepted
Accounting Practice). Company law requires the
trustees to prepare financial statements for each
financial year which give a true and fair view of the
state of affairs of the charitable company and of the
incoming resources and application of resources,
including the income and expenditure of the
charitable company for that period. In preparing
those financial statements, the trustees are required
to:
Select suitable accounting policies and then
apply them consistently
Observe the methods and principles in the
charity SORP
David MacDonald
Treasurer
AT Society Trustees, Report and Accounts 2024

Independent auditor's report
Independent auditof's report
Opinion
We have audited the financial statements of The
Ataxia Telangiectasia Society (the 'charitable
company,) for the year ended 31 December 2024
on pages 14 to 22. The financial reporting
framework that has been applied in their
preparation is applicable law and United Kin9dom
Accounting Standards (United Kingdom Generally
Accepted Accounting Practice).
In our opinion the financial statements:
Give a true and fair view of the state of the
charitable company's affairs as at 31 December
2024 and of its incoming resources and
application of resources, including its income
and expenditure, for the year then ended;
Have been properly prepared in accordance
with United Kingdom Generally Accepted
Accounting Practice; and
Have been prepared in accordance with the
requirements of the Companies Act 2006.
issue. Our responsibilities and the responsibilities of
the trustees with respect to going concern are
described in the relevant sections of this report.
Other information
The trustees are responsible for the other
information. The other information comprises the
information included in the annual report, other than
the financial statements and our Report of the
Independent Auditors thereon.
Our opinion on the financial statements does not
cover the other information and we do not express
any form of assurance conclusion thereon.
In connection with our audit of the financial
statements, our responsibility is to read the other
information and, in doing so, consider whether the
other information is materially inconsistent with the
financial statements, or our knowledge obtained
in the audit or otherwise appears to be materially
misstated. If, based on the work we have performed,
we conclude that there is a material misstatement of
this other information, we are required to report that
fact. We have nothing to report in this regard.
Basis for opinion
We conducted our audit in accordance with
International Standards on Auditing (UK) {ISAs (UKI)
and applicable law. Our responsibilities under those
standards are further described in the Auditor's
responsibilities for the audit of the financial
statements see(ion of our report. We are
Independent of the charltable company in
accordance with the ethical requirements that are
relevant to our audit of the financial statements in
the UK, including the FRC'S Ethical Standard, and
we have fulfilled our other ethical responsibilities in
accordance with these requirements. We believe
that the audit evidence we have obtained is
sufficient and appropriate to provide a basis for our
opinion.
Opinion on other matters prescribed by the
Companies Act 2006
In our opinion, based on the work undertaken in the
course of the audit:
The information given in the Report of the
Trustees for the financial year for which the
financial statements are prepared is consistent
with the financial statements, and
The Report of the Trustees has been prepared in
accordance with applicable legal requirements.
Matters on which we are required to report by
exception
In the light of the knowledge and understanding of
the charitable company and its environment obtained
in the course of the audit, we have not identified
material misstatements in the Report of the Trustees.
Conclusions relating to going concern
In auditing the financial statements, we have
concluded that the trustees, use of the going
concern basis of accounting in the preparation of
the financial ststements is appropriate.
Based on the work we have performed, we have
not identified any material uncertainties relating to
events or conditions that, individually or
collectively, may cast significant doubt on the
charitable company's ability to continue as a going
concern for a period of at least twelve months from
when the financial ststements are authorised for
AT Society Trustees, Report and Accounts 2024

Independent auditor's report
We have nothing to report in respect of the
following matters where the Companies Act 2006
requires us to report to you if, in our opinion:
Adequate accounting records have not been
kept or returns adequate for our audit have not
been received from branches not visited by us;
or
The financial statements are not in agreement
with the accounting records and returns; or
Certain disclosures of trustees, remuneration
specified by law are not made; or
We have not received all the information and
explanations we require for our audit; or
The trustees were not entitled to take advantage
of the small companies exemption from the
requirement to prepare a Strategic Report or in
preparing the Report of the Trustees.
considered material if, individually or in aggregate,
they could reasonably be expected to influence the
economic decisions of users taken on the basis of
these financial statements.
Irregularities, including fraud, are instances of non-
compliance with laws and regulations. We design
procedures in line with our responsibilities, outlined
above, to detect material misstatements in respect
of irregularities, including fraud. The extent to which
our procedures are capable of detecting
irregularities, includin9 fraud is detailed below:
Based on our understanding of the entity and sector
in which it operates, we identified the principal risks
of non-compliance with laws and regulations
relating to charitable companies and the application
of charitable funds. We also considered those laws
and regulations that have a direct impact on the
preparation of the financial statements. We
communicated identified laws and regulations
throughout our team and remained alert to any
indications of non-compliance throughout the audit.
We assessed the susceptibility of the charity's
financial statements to material misstatement,
including obtaining an understanding of how fraud
may occur, by making enquiries of the trustees and
management as to where they considered there was
susceptibility to fraud and considering the internal
controls in place to mitigate fraud risks and non-
compliance with laws and regulations.
In response to the risk of fraud through
management bias (including the risk of override of
controls) and the risk of irregularities and non-
compliance with laws and regulations, we designed
procedures which included, but were not limited to:
Responsibilities of trustees
As explained more fully in the Statement of
Trustees, Responsibilities set out on page 8, the
trustees (who are also the directors of the
charitable company for the purposes of company
law) are responsible for the preparation of the
financial statements and for being satisfied that
they give a true and fair view, and for such internal
control as the trustees determine is necessary to
enable the preparation of financial statements that
are free from material misstatement, whether due
to fraud or error.
In preparing the financial statements, the trustees
are responsible for assessing the charitable
company's ability to continue as a going concern,
disclosing, as applicable, matters related to going
concern and using the going concern basis of
accounting unless the trustees either intend to
liquidate the charitable company or to cease
operations, or have no realistic alternative but to
do so.
Performing analytical procedures to identify
unusual or unexpected transactions
Assessing whether judgements and assumptions
made in determining accounting estimates were
indicative of potential bias
Reviewed a sample of transactions from the
client's records for proper authorisation
Performing completeness of income tests
Test checking the appropriateness of journal
entries
Agreeing financial statement disclosures to the
underlying supportin9 documentation
Checking for correspondence with the Charity
Commission
Reading the minutes of Trustees, meetings
Checking for any actual and potential litigation
and claims including inspecting legal costs.
Our responsibilities for the audit of the
financial statements
Our objertives are to obtain reasonable assurance
about whether the financial statements as a whole
are free from material misststement, whether due
to fraud or error, and to issue a Report of the
Independent Auditors that includes our opinion.
Reasonable assurance is a high level of assurance
but is not a guarantee that an audit conducted in
accordance with ISAS IUIQ will always detect a
material misstatement when it exists.
Misstatements can arise from fraud or error and are
AT Society Trustees. Report and Accounts 2024
10

There are inherent limitations in our audit
procedures outlined above. The more removed
that laws and regulations are from financial
transactions, the less likely it is that we would
become aware of non-compliance. Auditing
standards also limit the audit procedures to
identify non-compliance with laws and regulations
to enquiry of the trustees and other management
and the inspection of regulatory and legal
correspondence, if any. Material misstatements
that arise due to fraud can be harder to detect
than those that arise from error as they may
involve deliberate concealment or collusion.
Use of our report
This report is made solely to the company's
members, as a body, in accordance with Chapter 3 of
Part 16 of the Companies Act 2006. Our audit work
has been undertaken so that we might state to the
company's members those matters we are required
to state to them in an auditor's report and for no
other purpose. To the fullest extent permitted by
law, we do not accept or assume responsibility to
anyone other than the company and the company's
members as a body, for our audit work, for this
report, or for the opinions we have formed.
We are not responsible for preventing non-
compliance and cannot be expected to detect
non-compliance with all laws and regulations. A
further description of our responsibilities for the
audit of the financial statements is located on the
Financial Reportin9 Council's website at
wMv.frc.org.uk/auditorsresponsibilities. This
description forms part of our Report of the
Independent Auditors.
Phili
Dea
Senior
atutory Auditor
For and on behalf of Hicks and Company
Chartered Accountants and Statutory Auditor
Vaughan Chambers
Vaughan Road
Harpenden
Hertfordshire AL5 4EE
19 May 2025
AT Society Trust•es' R8port and Accounts 2024
11

Statement OF financial actLVlties
I rai riivrv a'1 Drceiiivri 2024
Unrestricted
funds
Restricted Total funds
funds
2024
Total funds
2023
Notes
Income and endowments from:
Donations and legacies
Charitsble activities
Welfare
Other trading activities
Investment income
Totsl
391,471
248,510
639.981
454.711
3,200
3,200
435
14,396
1,385
7,845
478.337
435
13,875
405,781
13.875
657,491
251,710
Expenditure on:
Raising funds
Charitable activities
Research
Clinic
Welfare
Information
Education
Governance
Total
145,354
145.354
147.711
74.337
41,131
23,039
32,870
24,580
33,147
374,458
22,801
62,894
107,602
4,153
97.138
104,025
130.641
37.023
24,580
33,147
571,908
183,749
97,671
138,035
34,351
23,096
37,980
662,593
197,450
Net incomo1loxpenditure)
Reconciliation of funds
Total funds brought forward
Transfers between funds
Total funds carried forward
31,323
54,260
85,583
1184,256)
303,301
70,120
404.744
96,432
{70,120}
80,572
399,733
583,989
485,316
399,733
The statement of financial activities includes all gains and losses in the year.
All incoming resources and resources expended derive from continuing activities.
The notes on pages 15 to 20 form part of these financial statements.
AT Society Trustees, Report and Accounts 2024
12

Statement of Financial position
Unrestricted
funds
Restricted Total funds
funds
31.12.24
Total funds
31.12.23
Notes
Fixed assets
Tangible assets
14
1,614
1.614
1.722
Current assets
Debtors
Cash at bank
15
125,372
294,145
419,517
19,143
138.487
157,630
144,515
432,632
577.147
15,829
444,650
460.479
Creditors;
Amounts fallin9 due within one year
Net current assets
Total asset$ less current liabilities
Net assets
116,3871
403,130
404.744
404,744
(77,0581
80,572
80,572
80,572
{93,4451
483,702
485.316
485,316
162.4681
398,011
399,733
399,733
Fund5:
Unrestricted funds
Restricted funds
Total funds
19
404,744
404,744
80.572
485,316
303,301
96,432
399,733
80,572
80,572
404,744
These financial statements have been prepared in accordance with the special provisions of Part 15 of the
Companies Act 2006 relating to small charitable companies.
The notes on pages 15 to 20 form part of these financial statements.
The financial statements were approved by the Board of Trustees on 19 May 2025 and were signed
on its behalf by:
David MacDonald
Treasurer
AT Sou•ty Trustees. Report and Accounts 2024
13

statement of cash Flows
Tfal riiv¢J a I vrcenivei" 2024
2024
2023
Notes
Cash flows from oporating activities:
Cash used in operations
Net cash used in operating activities
(24,598)
(24.598)
{121.299)
{121,2991
Cash flows from investing activities:
Purchase of tangible fixed assets
Proceeds from sale of fixed assets
Interest received
(1.295)
18331
378
7,845
7,390
13,875
12,580
Nat cash used in investing activit¢es
Change in cash and cash equivalents
in the reporting period
Cash and the cash equivalents
at the beginning of the reporting perlod
Cash and cash equivalent5
at the end of the reporting period
(12,018)
{113,9091
444,650
558,559
432,632
444,650
Notes to the statement OF cash flows
Year •nd•d 31 December 2024
Reconciliation of net income/lexpenditure) to net cash flow from operating activities
2024
2023
Not income/(•xpenditure> for the reporting period as
per the ststement of financlal activlti•s
Adjustments for:
Depreciation charges
Profit on sale of fixed assets
Interest received
(Increase)Idecrease in debtors
Increase/ldecreasel in creditors
Net cash from operating activities
85.583
{184,2561
1.403
1,079
195)
(7,845)
78,309
(8,491)
(121,299)
(13,875)
(128,686)
30.977
(24,5981
AT Society Trustees, Report and Accounts 2024
14

Notes to FinanciaL statements
1. Accounting policies
Governance costs include those costs
Basi5 of preparing the financial statements
associated with meeting the constitutional and
The financial statements of the charitable company,
statutory requirements of the charity and
which is a public benefit entity under FRS 102, have
include the audit fees. All costs are allocated
been prepared in accordance with the Charities SORP
between the expenditure categories of the
(FRS 102) 'Accounting and Reporting by Charities:
Statement of Financial Activities on a basis
Statement of Recommended Practice applicable to
designed to reflect the use of the resources.
charities preparing their accounts in accordance with
Costs relating to a particular activity are
the Financial Reporting Standard applicable in the UK
allocated directly, other costs are apportioned
and Republic of Ireland (FRS102} (effective 1 January
on an appropriate basis e.g. estimated usage.
2019),, Financial Reporting Standard 102 'The
Leases
Financial Reporting Standard applicable in the UK and Rentals payable under operating leases are charged
Republic of Ireland, and the Companies Act 2006. The to the Statement of Financial Artivities evenly over
financial statements have been prepared under the
the period of the lease.
historical cost convention.
Grants payable
Grants payable are charged in the year when the
offer is conveyed to the recipient except in cases
where the offer is conditional, such grants being
recognised as expenditure when the conditions are
fulfilled.
Income
All incoming resources are included in the Statement
of Financial Activities when the charity is entitled to
the income and the amount can be quantified with
reasonable accuracy. The following specific policies
are applied to particular categories of income:
Voluntary income is received by way of grants,
donations and gifts. Donations and gifts are
included in the Statement of Financial Activities
when received. Grants are included when
receivable. Grants, where entitlement is
conditional on the delivery of a specific
performance by the charity, are recognised when
the charity becomes unconditionally entitled to
them
Donated services and facilities are included at the
value to the charity where this can be quantified.
The value of services provided by volunteers has
not been included in these accounts
Investment income is included when receivable.
Bank interest is included when received
Tax refunds {e.g. gift aid) are accounted for when
receivable
Trading income is accounted for on a receivable
basis.
Allocation and apportionment of costs
Costs have either been directly allocated or have
been allocated on the basis of an estimate of timè
spent.
Tangible fixed assets
Depreciation is provided at the following annual
rates in order to write off each asset over its
estimated useful life.
25% on cost
20% on cost
Equipment
Furniture
Taxation
The charity is exernpt from corporation tax on its
charitable activities.
Fund accounting
Unrestricted funds are available for use at the
discretion of the trustees in furtherance of the
general objectives of the charity.
Designated funds are unrestricted funds earmarked
by the Board of Trustees for particular purposes.
Restricted funds are subject to restrictions on their
expenditure imposed by the donor or through the
terms of appeal.
Pension costs and other post-retirement
benefits
The charitable company operates a defined
contribution pension scheme. Contributions payable
to the charitable company's pension scheme are
charged to the Statement of Financial Activities in
the period to which they relate.
Expenditure
Expenditure is recognised on an accruals basis as a
liability is incurred. Expenditure includes VAT, which
cannot be recovered, and is reported as part of the
expenditure to which it relates:
Costs of generating funds comprise the costs
associated with attracting voluntary income
Charitable expenditure comprises those costs
incurred by the charity in the delivery of its
activities and services for its beneficiaries. It
includes both costs that can be allocated directly
to such activities and those costs of an indirect
nature necessary to support them
AT Society Trustee5' Report and Accounts 2024
15

Notes to Financial statements
vrai riTr(Jed 31 oeceniver 2024
2. Donations and Legacies
3. Other tfadin9 actLVlties
2024
2023
2024
2023
Sale of merchandise
435
1,385
Donations
Legacies
Grants
71,269
180.616
256,514
109,328
22,254
639,981
154,330
4. Investment income
161,447
119,634
19,300
454,711
Fundraising activities
Income tax refund
Deposit account interest
13.875
7.845
5. Welfare
Restricted income from
family meetings
Restricted income from
adult activity breaks
14,396
Grants received, included in the above, are as follows:
3,200
Grants from NCG
Grant from Medical Research
Council
Grants from Trusts
62,894
59,233
3.200
14,396
70,120
17,356
6. Raisin9 funds
123,500
256.514
84,858
161,447
Staff costs
Event support, publicity and
literature
Merchandise
Other direct costs
Support costs allocated to
activities
98,777
91,701
4,667
13,086
499
2,149
12,399
11,003
30,408
28,376
145,354
147,711
7. Charitable actLVities costs
Research
Clinic
Welfare Information EducationGovernance 2024 Total 2023 Total
Costs directly
allocated to artivities
Staff costs
Newsletter
Welfare. equipment,
respite etc.
Research costs and
conference
Clinic costs
15,084
54,729
68,995
139
29.217
139
19,203
20,524 207,752
278
197,031
340
17.401
17,401
36,561
19,020
19,020
25,821
37,059
37.059
33.162
Event support.
publicity and literature
Other direct costs
Grant fundlng of
activities
368
368
257
7,614
7.614
13,776
59,994
27,670
87,664
159.907
Support costs
allocated to activities
3,040
12,237
16,436
7,299
5,377
5,009
49.398
48.027
97.138
104.025
130.641
37.023
24,580
33,147 426,554
514,882
AT Society Trustees. Report and Accounts 2024
16

8. Analysis OF grants
9. Net income
2024
2023
Net incomel(expenditure} is stated after charging:
Grants to institutions
Grants to individuals
59.994
27,670
87.664
140.160
19,747
159,907
2024
2023
Auditors, remuneration
Depreciation
owned assets
Operating lease rentals
land and buildings
Operating lease rentsls
equipment
5.400
5.040
Grants to individuals are made to provide financial
support grants to any individual affected by AT, to assist
with the cost of items they need as a result of the
condition. Grants to institutions are made to fund
research.
1.403
1.079
27,750
27,288
The following grants to institutions have been made in
the year:
5,866
5,866
Modulation of RELB/p52 - dependent NF-kB
activities to improve neurodegenerative
symptoms of AT
Joint funding of 3 research projects.
(6)
60.000
59.994
*R•s•arch projècts fundèd.. 11 Inv•stigating th• rol• of mutant Tripl• T
hap¢rtsn* in ATM assombly in Ataxia T•langi•etasia.' A structural
perspective, 21 Identifying existin9 drug5 to rgpurpo5¢ for Ataxia
T•langiectasia, 31 Biomarkers for Babies and Young Children with Ataxia
T•langi•ctasi
10. Operatin9 lease commitments
The charity's total future minimum lease payments under non cancellable operatin9 leases are as follows for each of the
periods:
Land & buildings
Equipment
2023
2024
2024
2023
Less than one year
Two to five years
More than five years
27,792
4,632
5,392
4,780
5,866
10,172
32,424
10,172
16,038
11. Trustees, remuneration and beneFits
No member of the Board of Trustees received any
remuneration during the year (2023: £Nill.
Trustees. expenses
Travel expenses of £Nil were reimbursed during the
year12023: £Nil}.
12. StaFF costs
2024
2023
Salaries
Social security costs
Pension provision
269,992
20.961
15.576
306,529
255,372
19.153
14,207
288.732
No employee had emoluments in excess of
£60,000 (2023: none).
AT Soclety Truste•s' Report and Accounts 2024
17

Notes to financiaL statements
Yto( riiurv 31 December 2024
12. Staff costs (continued)
During the year the Society paid £59,040 in
employee benefits to key management personnel for
their services to the charity (2023: £57,141) and
employed the equivalent of 7 full-time staff (2023: 7
E). The Society operates a defined contribution
pension scheme in respect of the employees. The
scheme and its assets are held by independent
managers. The pension charge represents
contributions due from the Society and amounted to
£13,500 (2023: £12,821 }.
13. Comparatives For the statement OF
Financial actLVlties
Unrestricted Restricted Total funds
funds 2023 funds 2023
2023
14. TangibLe Fixed assets
Equipment Furniture
Totsl
Cost
At 1 January 2024
Additions
At 31 December
2024
18,537
1,295
4,472
23.009
1,295
19,832
4.472
24,304
Depreciation
At 1 January 2024
Charge for the
year
At 31 Do¢•mb•r
2024
17,333
3,954
21,287
885
518
1,403
18,218
4,472
22,690
Not book value
at 31 December
2024
At 31 December
2023
Income and
•ndowm•nts from:
Donations and
le9acies
Charltabl•
artivitios:
Welfare
Other trading
Investment income
1,614
1,614
280,293
174,418
454,711
1,204
518
1,722
14,396
14,396
1,385
7,845
478,337
1,385
7,845
289,523
15. Debtors: amounts FaLLin9 due within one
year
188,814
Expenditur• on:
Raising funds
Charitabl•
activities:
Research
Clinic
Welfare
Information
Education
Governance
31.12.24
31.12.23
147,711
147.711
Tradè dèbtors
Pre payments and accrued
income
Other debtors
15,925
5,240
149,379
38,438
9,376
32,851
23,096
37,980
438.831
34,370
59,233
128,659
1,500
183,749
97,671
138,035
34,351
23,096
37,980
662,593
125,495
7,696
3,095
144,51 S
2.893
15.829
Other debtors include an office lease deposit of
£2,895 which falls due in more than one year.
223,762
N•t movement In
funds
Reconciliation of
funds
Total funds brought
forward
Gross transfers
between funds
Total funds carried
forward
(149,3081
{34,948) 1184,256)
16. Contingent asset
A residual legacy was left to the AT Society in
2024. As at the year end the amount bequeathed
to the AT Society could not be determined.
Subsequent to the year end in April 2025 a sum of
£399,206 was received by the charity.
364,843
219,146
583.989
187,7661
87,766
303.301
96,432
399,733
AT Society Trustees. Report and Accounts 2024
18

17. Creditors: amounts Falling due within one
year
19. Movement in Funcls
Net
Movement
in funds
31.12.24
31.12.23
At 1.1.24
At
31.12.24
Support grants payable
Institutional grants payable
Trade creditors
Accruals
Deferred accruals
Taxation and social security
9,570
60,000
3,116
13.248
1,200
6,311
93,445
2,890
38.973
1,957
12,175
Unrestricted funds
General fund
Designated
research fund
217.790
93.624 311,414
85,511
7,819 93,330
303,301
101,443 404,744
6,473
62.468
Restrict•d funds
Research
3,511
Grant funding
commitments
Support Institutional
grants
grants
Total
(11} 3,500
Welfare. support,
equipment
Information
91,136
(14,196) 76,940
Grant liability at 1
January 2024
Grants expense in
the year
Grants paid
in the year
Grant liability at 31
December 2024
1,785
96,432
399,733
11,653)
(15.8601 80,572
85,583 485,316
132
2,890
38,973
41,863
Total funds
27,670
59,994
87,664
(20,990> {38,967) {59,957}
9.570
60.000
69,570
18. Contin9ent liabilities
Total funds
Research grant funding
Total funds
Natural History of
Ataxia-Telangiectasia
Statistics Consultancy
3,500
3,500
3,500
3,500
The above contingent liabilities relate to research
grant funding where payment of the remaining
funding is contingent on receipt of a satisfactory
progress report from the institution in receipt of the
award.
AT Society Trustee$. R8port and Account$ 2024
19

Statement of Financial actLVlties
Teijr eiiueu J I VEL¥IIIV¢I £V£4
19. Movement in funds (continued)
Incomin9
resources
Resources
expended
Transfers
inl(outl
Movement
in funds
Unrestricted
General fund
Designated research fund
un
405,781
(312,1571
162,3011
(374,4581
93,624
7,819
101,443
70.120
70,120
405,781
Restricted funds
Research
Clinic costs
Welfare. support, equipment
Information
92,910
62,894
93,406
2,500
251.710
657.491
(22.801}
(62,894)
(107,6021
(4,1531
{197,450)
{571,908)
(70,120)
(11)
(14,1961
11.653)
115,860)
85.583
170,120)
Total funds
Purpose of restricted funds
Research
Restricted research income relates primarily to a
grant received from the Medical Research Council
to fund research projects.
Clinic costs
Represents amounts received from NHS England in
relation to our work supporting the specialist AT
clinics run at Nottingham University Hospital and the
Royal Papworth Hospital.
Welfare, support and equipment
The balance remaining represents provisions to fund
work to support adults with AT to live more
independently, plus funds restricted to particular
items of equipment and geographical areas and to
our welfare and communications work more
broadly. Amounts spent in the year include the
funding of a family weekend, emergency support
grants, grants towards equipment for adults and
young people, grants towards counselling, grants
towards housing modifications and the funding of
family support stsff.
Information
The balance carried forward at the year end relates
to funds to be used for the production of
information materials in respect of AT.
Designated research fund
During 2019, the Board of Trustees designated
£350,000 for research. During 2024, £62,301 (2023:
£123,244) has been spent from this fund on
research.
A transfer of £70,120 has been made back to
unrestricted designated reserves from restricted
reserves in respect of research expenditure initially
made from unrestricted designated funds which was
subsequently funded by restricted income received
in the year.
It is anticipated that the remainin9 designated funds
will be spent in 2025.
20. ReLated pafty disclosures
No trustee or any other person related to the charity
had any personal interest in any contract or
transaction entered into by the charity durin9 the
year or the previous year save as a potential
beneficiary of the charity in the normal course of its
activities.
21. Ultimate controlLing party
In the opinion of the trustees, there was no
controllin9 paty during the year.
22. Statutory information
The Ataxia Telangiectasia Society is a private
company, limited by guarantee, registered in
England and Wales. The company's registered
number and registered ofPice address can be found
on the facing page.
AT Society Trustoes. Report and Account$ 2024
20

Reference and Administration Details
The working name for The Ataxia Telangiectasia Society is the AT Society. The reference and
administrative details, trustees and advisers are listed below.
Dr Jayesh Bhatt
Michael Detsiny
Chai r of Trustees
Nicholas Gull
Professor Penny
Jeggo
David Macdonald
Treasurer
Ji.
Joe Pemberton-
Powel
Rachel Poupard
Jhilna Shah
Lian Yarlett
Seci'etary
Seni
Susie Norbury
Directoi of Fundraising & Operations
Kay Atkins
Head of Services
V.LSOry
Professor Rob Dineen
Cliciir
Professor Jessica Downs
Dr Julie Greenfield
Dr Anke Hensiek
Dr Rita Horvath
Dr Winnie Ip
Professor Penny Jeggo
Dr Svetlana Khorenkova
Professor Laurence Pearl
Erik Thomassen
Dr William wh￿tehOuse
Our Scienti*ic Advisory Board voluntarily provides expert,
independent advice on AT research priorities
tc
Drs Rita Horvath and
Anke Hensiek
Cli,Iirs
Emily Barker
Dr Madhu Dandapani
Professor Rob Dineen
Professor Penny Jeggo
Natasha Schneider
Dr William Whitehouse
Patr
Mrs Joan Bartholomew,
The Lord Bilimoria of Chelsea CBE
DL
The Lady Parkinson DL
The Revd Canon Paul Thomas OBE
'MiS Joan Bariholoiiiew sadly died In Mai ch 2024, wè ale
Banke
The Co-operative Bank
PO Box 250
Skelmersdale WN8 6WT
udit
ffice/ operatlona
Hicks & Company
Chartered Accountants
Statutory Auditors
Vaughan Chambers
Vaughan Road
Harpenden
Herts AL5 4EE
AT Society
Unit 54
Thra1es End Business Centre
Thrales End Lane
Harpenden
Hertfordshire
AL5 3NS
HSBC Bank plc
1 High Street
Harpenden
Herts AL5 2RS
Email.. info@atsociety.org.uk
Website.. www.atsociety.org.uk
Company Registered in England
and Wales, Number". 5177145
CAF Bank Ltd
PO Box 289
West Malling
Kent ME19 4TA
Charity Commission Registered
in England, Number.. 1105528

280/0
"I don't know how we
would get thfOU9h
this without the AT
Society"
95
increase in chtldfen and adults
with AT accesstng specialist
medical SUPPOft
children and adults WLth AT
attended AT specialist medical
clinics throughout the year
50/0
400/0
930/0
incfease in new dia9nosis in the
year
of emergency support 9fants
helped alleviate the cost of
Living crisis
OF parents attendin9 the AT
specialist medical clinics for
children Found them very useful
'1 feel less isolated and
lonely now.I've never met
anyone with AT before and
I've made good ffiends from
this event."
2000+
"The bi99est diffefence this
weekend made fof me was
watchin9 all the youn9
adults having fun, smilin9
and intefactin9 .
hours of mental health support
over the year
235
1000/0
people with AT in the UK
supported in 2024
OF parents said the advice and
support received to èddfess their
housin9, benefits, and education
needs was 'extremely helpFul'
new medical research projects
funded through the yeaf
How we chan9ed lives in 2024
AT50CIETY.ORG.UK
*Ataxia Telan9iectasia
IAT society
Unit 54
Thrales End Business Centre
Thrales End Lane
Harpenden
Hertfordshire
AL5 3NS
01582 760733
info@atsociety.org.uk
www.atsociety.org.uk
Reglstered wlth
FR
FUNDRAISING
REGULATOR
Reg. Charity No. 1105528
Reg. Company No. 5177145
amrc