## THE HEPATITIS C TRUST **----- Start of picture text -----**
2021
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## Annual Report & Accounts T H E H E P A T I T I S T R U S T ## Contents ## TRUSTEES' REPORT The Hepatitis C Trust, finding and supporting those living with, affected by or at risk of hepatitis C. On a mission with our partners to eliminate hepatitis C from the UK by 2030, leaving no one behind. |TRUSTEES' REPORT|| |---|---| |WHO WE ARE|4| |MESSAGE FROM THE TRUSTEES|6| |FINANCIAL OVERVIEW|8| |OBJECTIVES
ACHIEVEMENTS AND PERFORMANCE|10| |Advocacy and campaigning|12| |Reaching our community|18| |Training|24| |Adapting to Covid-19|26| |Supporting people|28| |FUNDRAISING|32| |THE YEAR AHEAD|34| |GOVERNANCE AND MANAGEMENT|36| |RISK ASSESSMENT|36| |FINANCIAL REVIEW|37| |STATEMENT OF TRUSTEES RESPONSIBILITIES|38| |INDEPENDENT AUDITOR’S REPORT|39| |FINANCIAL STATEMENT|43| **3** **2** **----- Start of picture text -----**
WHO WE ARE
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## The Hepatitis C Trust WHO WE ## OUR AIMS ## ARE We are the UK charity for hepatitis C, a cancer-causing virus that can be cured if diagnosed on time. We support those living with, affected by or at risk of hepatitis C. Most of our board, staff and volunteers have had either direct or indirect experience of hepatitis C. We believe in patient-centred treatment and are committed to ensuring all our actions are to the benefit of each individual. Our overarching objective is to help eliminate hepatitis C from the UK by 2030. ## HOW WE WORK Our strategy is based around the pillars of better prevention and more diagnosis and treatment for all. We work through a range of projects and services to deliver and support this. With an elimination deal in place and our peer programmes now reaching across communities and prisons in the UK, we are currently working to identify and engage both those undiagnosed and those diagnosed but untreated. - To raise awareness and encourage testing amongst those living with hepatitis C who are undiagnosed and at risk of developing serious liver damage if diagnosed too late. _**Hepatitis C is a blood-borne**_ � To provide comprehensive support throughout the treatment pathway to _**virus that predominantly**_ individuals with hepatitis C. _**infects liver cells. This can**_ � To provide a range of trusted information _**result in inflammation and**_ about hepatitis C for all whether they _**significant damage to the**_ are living with the virus, friends or families, healthcare professionals, _**liver. It can also affect the**_ politicians, the media or the general _**liver’s ability to perform its**_ public. _**essential functions. Although**_ � To change the misperception of _**it has always been regarded**_ hepatitis C as a ‘drug users’ disease, _**as a liver disease, recent**_ misinformation which discourages those who have been exposed in _**research has shown that**_ other ways from getting tested. _**the hepatitis C virus (HCV)**_ � To provide individual representation for _**affects a number of other**_ people with hepatitis C experiencing _**areas of the body. These can**_ difficulties or discrimination in a number of settings, including _**include the digestive system,**_ compensation and healthcare. _**the lymphatic system, the**_ � To provide collective representation _**immune system and the**_ for people with hepatitis C, who _**brain. A simple course of**_ historically have not found a strong, coherent voice with which to _**direct-acting-antivirals**_ address policy-makers at a local _**can now deliver a fast and**_ or national level. _**effective cure for hepatitis C.**_ - To undertake research and evaluation of our peer programmes, exploring the unique value of peers in case finding and in supporting those affected by hepatitis C. **The Hepatitis C Trust and Changing Lives joint testing event, Yorkshire, July 2020** Our vision is to stop people dying from hepatitis C and eliminate it from the UK by 2030 **5** **4** **TRUSTEES’ MESSAGE** ## Message from the Trustees’ As we move into our 20th It has been a great year for partnership anniversary year, we leave working. A standout initiative being behind a year unlike any other. the large-scale testing of homeless The surge of activity we saw people, which came about as a result last year, following the launch of of the Government’s ‘Everyone In’ NHS England’s hepatitis C (HCV) Covid-19 scheme, where homeless elimination deal, was undoubtedly people were temporarily housed in set back this year by Covid-19 hotels and hostels. This initiative meant and the subsequent national that, working with partners, we were able to test concentrated numbers of shutdowns and restrictions. In homeless people in any one venue over spite of this we had some really the course of a day. Allowing us to positive achievements throughout test up to 100 high-risk and often the year. difficult-to-engage people at a time. The Black Lives Matter movement prompted us to develop a work stream to assess race and equality within our organisation and our work. We formed a Black Lives Matter working group to develop and implement an action plan for improvement. Under the action plan we signed up to the Race at Work Charter and began to deliver against its commitments. Harm prevention, including reinfection, remained high on our agenda throughout the year. We launched our reinfection and harm prevention strategy and priorities for the next few years, which includes focused pieces of work that will feed into national research and discussions about harm prevention, needle syringe programme provision and ultimately the maintenance of elimination. A key focus will be reinfection, which we believe may have been exacerbated by recent Covid-19 restrictions and reduced needle syringe programmes. Our national helpline support service, in the community and prisons, proved more important than ever this year. We increased the number of hours our prison helpline was available, to provide maximum support for people in prison at a time when our staff were unable to access them in person. Our helpline support staff also maintained our work within The Infected Blood Inquiry as hearings moved online. In line with the growth of our peer support work, our staff team almost doubled in size this year. Online platforms ensured we were able to stay connected as an organisation, welcome new staff, deliver a wide range of volunteer and staff training and a comprehensive programme of support to maintain the mental wellbeing of all. The biggest loss this year was the closure, or scaling back, of hepatology services as nurses and doctors were redeployed to work on Covid-19. As a consequence, many clinics were cancelled, HCV testing ceased and new treatment starts were delayed. As the Secretariat of HCV Action, we were able to bring together hepatitis C health professionals through a series of webinars. This allowed us to provide the health professional community with much needed national overviews of the impact of the pandemic on both hepatitis C services and the elimination drive across England and Scotland. We also developed a new organisational research strategy working with our staff, external researchers and academics. The new strategy will help us to raise the profile of the work we’re doing; show its impacts; better evidence and communicate the voice of people affected by hepatitis C; and allow us to take a more active role in shaping the national hepatitis C research landscape over the coming years. However, working beside and supporting our NHS colleagues produced some welcome outcomes, including new ways of working with shorter care pathways and more responsibilities designated to our HCV peers. Responsibilities which included our peers picking up and delivering HCV medicines to patients and providing one-to-one support to those most anxious, isolated and vulnerable. World Hepatitis Day provided a much needed breath of fresh air this year. Our challenge to walk the height of Everest on peaks across the UK brought together patients, staff and partners, walking in small socially distanced groups towards a collective goal, raising money for the work of our peers and the charity Mind. In our 20th year, the Trust, despite the impact of Covid-19, has expanded its operations throughout the UK, and is striding towards our goal of elimination. Our innovative peer model continues to truly place the patient at the centre of their care. Our Art on a Postcard fundraising arm continued to raise money for the Trust by holding some outstanding online art auctions throughout the year. Once again, we owe a huge gratitude to our staff, and our supporters. ‘Leave no on behind’, remains the central tenet of our charity. As we move forward, we are mindful that while there have been many positives over the past year, we also face some unknowns, including the rebuilding of the HCV elimination momentum that was so suddenly slowed down. David Macmillan, Chair of Trustees We do, however, move forward with hope and enthusiasm. There is the firm commitment from NHS England and many new initiatives that will come to fruition in the coming year, including A&E testing, community pharmacy testing and the implementation of local Trust outreach vans. All of which makes us optimistic that we can still reach the elimination goal before 2030. We hope you enjoy the rest of the report Thank you **7** **6** **FINANCIAL OVERVIEW** ## Financial overview An overview of our total income and expenditure for this year, with a comparison to that of last year. More in-depth details can be found in our financial report available on pages 39-55. **----- Start of picture text -----**
TOTAL
INCOME
2019-20 2020-21
DONATIONS £0.32M £0.27M
INVESTMENTS £192 £152
RENTAL INCOME £0.05M £0.02M
OTHER INCOME £0.005M
GRANTS RECEIVED £2.4M £3.34M
TOTAL £2.77M £3.63M
1
0
2
2
-
-
0
9
2
1
0
0
2
2
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TOTAL
EXPENDITURE
2019-20 2020-21
RAISING FUNDS £0.18M £0.21M
CHARITABLE ACTIVITIES £2.1M £2.8M
OTHER INCOME £0.05M £0.02M
TOTAL £2.33M £3.03M
1
0
2
2
-
-
0
9
2
1
0
0
2
2
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* Amounts below £0.01M do not show in the pie chart, but are available in the table. **9** **8** **----- Start of picture text -----**
OUR OBJECTIVES
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## Our 2020/21 objectives - To increase our case finding capacity through the expansion of our peer programmes. - To review and develop our infrastructure in line with our increase in service delivery. - To ensure hepatitis C stays firmly on the agenda of UK governments, policy makers and the general public. - To continue to represent and support those affected by The Infected Blood Inquiry, and act as a source of expertise to the Inquiry team. - To work closely with Public Health England and other monitoring bodies to ensure all data is effectively shared and fed into the same system. - To continue to evidence the impact and value of our peer work in moving towards the goal of elimination. - To create new and innovative ways of working in a Covid-19 restricted environment. **10** **11** **ADVOCACY AND CAMPAIGNING** > Our Achievements ## Policy and parliamentary A key focus of our work over the past year has been ensuring appropriate policies are in place to achieve hepatitis C elimination and that parliamentary oversight of NHS England’s hepatitis C elimination deal is fully supported. A timely webinar in June provided us with the opportunity to present a comprehensive update on the pandemic’s impact on hepatitis C services and the elimination drive in England at the time. We followed this with a second webinar not long after, which focused on the impact on services in Scotland. Both webinars were well-received, and played a key role in supporting hepatitis C service providers with access to important information during a time of uncertainty. ## UK ## PARLIAMENT We met with a range of parliamentarians this year, updating them on the progress towards achieving hepatitis C elimination and outlining the challenges requiring policy change. This included a meeting with Public Health Minister Jo Churchill, which focused on identifying the actions required to reduce the rate of new hepatitis C infections. We have also played a significant role in keeping the hepatitis C professional community up-to-date on the impact of Covid-19 on hepatitis C services, while taking an active role in government consultations to ensure hepatitis C has been represented in inquiries into delivering core NHS services during the pandemic. ## **TAKING OUR NATIONAL HEPATITIS C ODN STAKEHOLDER EVENT ONLINE** ## **SECRETARIAT OF THE ALL-PARTY PARLIAMENTARY GROUP ON LIVER HEALTH** This year we recast our National Hepatitis C Operational Delivery Network (ODN) Stakeholder Event as a week-long webinar series, featuring a half-day series of presentations and Q&As, alongside four focused webinars on subjects of current relevance to ODNs and other hepatitis C services. Our new online format meant that we were able to secure more speakers and attendees than previously. In our role as the Secretariat of the All-Party Parliamentary Group on Liver Health, we continued to work with the group’s parliamentary members to table Parliamentary Questions related to hepatitis C. We held a number of well-attended online meetings, focusing on the impact of the pandemic on hepatitis C services; drug policy; harm reduction and hepatitis C; hepatitis C testing for homeless populations; and liver pathology. We also produced a monthly ‘liver health’ e-newsletter providing updates to parliamentarians and other stakeholders on hepatitis C and liver health. ## HCV ACTION ## WORK The impact of Covid-19 made our work as the Coordinator of HCV Action, a network of over 1,000 hepatitis C health professionals, more important than ever this year. ## **CONDUCTING SURVEYS ON THE IMPACT OF COVID-19 ON HEPATITIS C SERVICES** Assisting the hepatitis C professional community more widely, we conducted surveys to understand the nature of the impact of Covid-19, and to gain a better understanding of the impact within individual ODNs in England. Our findings were published in HCV Action e-updates. ## **ADAPTING PLANS & COORDINATING UPDATES** ## **CONSULTATION SUBMISSIONS** We adapted our plans to play a key role in informing the hepatitis C professional community of updates in relation to hepatitis C services at a time of significant disruption and disconnection between services. We provided submissions to several consultations this year to ensure issues relevant to hepatitis C were represented. This included submissions to the Health and Social Care Committee’s inquiry into delivering core NHS and care services during the pandemic and beyond, and Dame Carol Black’s independent review of drugs. We also partnered with Public Health England, tailoring survey questions to capture informaton not picked up by their existing surveillance, to help inform their monitoring reports. ## **GOOD PRACTICE CASE STUDIES** We produced a variety of good practice case studies and resources over the course of the year. ## Sadiq Khan Mayor of London ‘I’m proud that, despite the extraordinary challenges presented by Covid-19, our health and care services continue to do all they can towards our shared goal of eliminating hepatitis C.’ ## Alex Norris L a b o u r Sh a d o w P u b l i c H e a l t h M i n i st e r _**The impact of Covid-19 made our work as the Coordinator of HCV Action, a network of over 1,000 hepatitis C health professionals, more important than ever this year.**_ **‘I am calling on the government to urgently address the dearth of harm reduction services which are proven to be so successful in preventing the transmission of hepatitis C. According to goverment data, over a third of injecting drug users report not having adequate needle and syringe equipment for their needs.’** ## Paul Davies We ls h C o n se r va t i ve P a r t y L e a d e r **‘It is more important than ever that the Welsh Government re-focuses its efforts on eliminating hepatitis C. Over ten thousand people are currently living with the virus in Wales, of whom around half are not aware they have an infection which could be inflicting lasting damage on their liver.’** **Statements of support from politicians for World Hepatitis Day** **13** **12** **ADVOCACY AND CAMPAIGNING** > Our Achievements ## Policy and parliamentary ## SCOTTISH PARLIAMENT With harm reduction and the drug deaths crisis becoming an increasingly prominent issue in Scottish politics, this year we engaged with a wide range of MSPs to ensure hepatitis C was represented in the conversation on this issue, particularly within parliamentary debates. We also supported politicians in tabling motions and Written Questions relating to hepatitis C and harm reduction. With each of the devolved nations at different stages of reaching elimination, it is important we are able to work with, and support, all UK nations in meeting their goal. ## **SEXUAL HEALTH AND BLOOD-BORNE VIRUS (SHBBV) HEPATITIS C ELIMINATION GROUP** We supported our membership of the SHBBV Hepatitis C Elimination Group, whose remit is to ensure the outcomes of the Scottish Government’s Sexual Health and BBV Framework are delivered in Tayside, by attending meetings and providing updates to colleagues on the impact of Covid-19 on hepatitis C services. Aidan Rylatt, Policy & Parliamentary, The Hepatitis C Trust ## Mark Drakeford F irs t Min is t e r o f Wa le s **‘Wales is committed to eliminating hepatitis C by 2030, sparing thousands of people from the increased risk of liver disease and cancer which this virus causes.’** ## Joe FitzPatrick ## WELSH PARLIAMENT ## **PARLIAMENTARY CHAMPIONS** This year, we worked closely with our Welsh Hepatitis C Parliamentary Champions to lobby the Welsh Government to prioritise the recommendations outlined in the Health, Social Care and Sport Committee’s inquiry into hepatitis C elimination in Wale s. ## **ROUNDTABLE MEETINGS** We participated in a roundtable meeting with Members of the Senedd, key hepatitis C service representatives and other health care leaders to discuss the steps needed to achieve hepatitis C elimination in Wales. _**With harm reduction and the drug deaths crisis becoming an increasingly prominent issue in Scottish politics, we engaged with a wide range of MSPs to ensure hepatitis C was represented in the conversation on this issue.**_ Sc o t t is h Go v e rn me n t Min is t e r f o r Pu b l i c H e a l t h , Sp o rt s a n d We llb e in g **‘Last World Hepatitis Day, the Scottish Government announced it was bringing forward its ambition to eliminate hepatitis C by six years, aiming for elimination by 2024. I am delighted to reaffirm our commitment.’** ## **PUBLIC HEALTH WALES** We worked with the Public Health Wales National Hepatitis C Patient Re-Engagement Exercise Implementation Group, attending meetings to ensure representation for the patient perspective. **Statements of support from politicians for World Hepatitis Day** **15** **14** **ADVOCACY AND CAMPAIGNING** > Our Achievements **----- Start of picture text -----**
Everest Challenge, Parliament Hill, London
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## World Hepatitis Day ## **NEWS & BLOGS** ## **SOCIAL MEDIA EVENTS** World Hepatitis Day is held annually on 28 July. It is one of the World Health Organization’s officially mandated global public health days. For people and organisations around the world working to eliminate hepatitis C, World Hepatitis Day presents a great opportunity to raise collective awareness about the risks of hepatitis C and to push for increased testing and treatment, while also reflecting on how far we’ve come. � The Trust’s CEO Rachel Halford wrote a blog for LocalGov looking at lessons learnt along the way to eliminating hepatitis C and the success of multi-agency partnership working; along with an article for Drink and Drug News calling for the re-doubling of efforts to eliminate hepatitis C. On 26 July, two days ahead of World Hepatitis Day, we held a series of Facebook live streams featuring music and talks about hepatitis C, with the rapper DJ Mr C playing a rap about the Trust and its goals for elimination. ## **LANDMARK BUILDINGS LIT PURPLE** Landmark buildings such as town halls, museums and hospitals were once again lit up in purple across the UK to show support for hepatitis C elimination and in memory of those who lost their lives to the virus. � Activist and writer Philip Baldwin wrote a guest blog for our website about the importance of testing, and a feature for Gay Times about his hepatitis C diagnosis and the similarities and differences between the hepatitis C virus, HIV and Covid-19. This year, people and organisations were incredibly creative in raising both funds and awareness in Covid-safe ways. ## **POLITICAL SUPPORT** We secured a number of statements of support from politicians across the UK, including the Mayor of London Sadiq Khan, Shadow Public Health Minister Alex Norris, First Minister of Wales Mark Drakeford and Scottish Public Health Minister Joe FitzPatrick. These featured widely on our social media platforms. - The BBC interviewed our team in Edinburgh and a client whose late diagnosis progressed to Liver Cancer, both were covered on TV and Radio news. ## **CLIMBING THE HEIGHT OF MOUNT EVEREST** - There was also significant news from the Scottish health board NHS Tayside, who announced it has effectively eliminated hepatitis C from its region. The health board has diagnosed 1,970 people and treated over 1,800, more than 90% of the estimated prevalence of the virus. The Hepatitis C Trust staff and volunteers successfully took on the massive challenge of climbing the equivalent of the height of Mount Everest, an elevation of 8,848 metres. We achieved this by climbing different peaks across the UK, with the metres climbed by individuals and small groups accumulating to the total height count. The money raised went to our peer volunteers and the mental health charity Mind, in recognition of their work and the mental health challenges presented by Covid-19. ## 8,848m climbing UK peaks People and organisations were incredibly creative in raising both funds and awareness in Covid-safe ways. **Everest Challenge, Ivinghoe Beacon, Buckinghamshire** **----- Start of picture text -----**
Everest Challenge, Pic de Céciré, French Pyrenees
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Everest Challenge, South Yorkshire
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Leeds City Museum lit up purple to mark World Hepatitis Day
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**17** **16** **REACHING OUR COMMUNITY** > Our Achievements ## Reaching our community through peer work The Hepatitis C Trust was founded on peer work and it remains core to our operations today. Our peers, who have lived experience of hepatitis C, work within the community to actively engage those most at risk. By using their own personal stories and drawing on their treatment experience they are uniquely placed to provide support and advice to others through the treatment pathway. This year our peers successfully helped to overcome some of the difficulties NHS Operational Delivery Networks (ODNs) faced in delivering hepatitis C services, refocusing their work to support in any way they could. ## SUBSTANCE MISUSE SERVICES The impact of Covid-19 this year meant that many of the substance misuse services (SMS) we work with were forced to operate on reduced services. While we still focused on our work with people accessing these services, we also focused on those who had already tested positive, ensuring they were able to access treatment and support, and that their opportunity to clear hepatitis C was not put at risk. This was our second focused year delivering our hepatitis C peer programmes within 20 of the 22 NHS ODN areas as part of NHS England’s elimination initiative. During this time we managed to secure some good successes while confronting the challenges of a Covid-19 environment. Working in partnership with ODNs we were able to help them overcome some of the difficulties they faced in delivering hepatitis C services, the biggest being the redeployment of clinical staff to other services. For example in North Central London the whole of the hepatology team were redeployed to work on Covid-19, leaving hepatitis C services uncovered – in areas with less Covid-19, hepatology services were able to operate at a fuller capacity. By implementing policies and guidance to protect staff, volunteers and the people we work with, our peers were able to continue their work in the community. We developed new ways to engage with vulnerable patients, providing interventions to reduce isolation, while keeping patients both safe and engaged in the face of limited or no access to hepatitis C clinics. ## **DELIVERING MEDICATION** Providing support to NHS staff deployed to Covid-19, and patients who for health reasons were fearful of leaving their home, our peers took on the role of picking up medication from pharmacies and delivering it to patient’s homes, helping to ensure they could continue their treatment – a practice which was prohibited prior to Covid 19. ## **WHOLE VENUE TESTING** A unique opportunity was presented this year by the Covid-19 government ‘Everyone In’ initiative, in which homeless people across England found themselves temporarily housed in hostels or hotels. A situation which allowed us, while working with partners, to test and treat a high-risk and particularly difficult-to-engage group in whole venue testing. Through our partnership work with NHS clinicians, drug service providers, accommodation providers and local authorities we were able to test up to 100 homeless people a day. ## **REACHING THE DISENGAGED** Our peers worked alongside ODNs to go through ‘look back’ lists of patients who had previously tested positive for hepatitis C, but who had disengaged from services and had not been treated, contacting them to check their current status and to re-engage them where possible. ## **PREVENTING REINFECTION** We increased the attention given to the scale of reinfection across each ODN, looking at how we could best support and identify reinfected patients. ## **PEER-ASSISTED POSTAL TESTING** With drug services operating at a reduced capacity, we worked to ensure people were still able to get tested. In some cases our peers, wearing PPE protection, visited clients’ homes to assist them in taking postal service tests, ensuring they carried their tests out correctly and sent them to the right place for diagnosis. ## **TELEPHONE SUPPORT** With restrictions on in-person contact, we maintained regular one-to-one contact with our patients by telephone, providing them with phones where required. ## **TELEPHONE ASSESSMENTS** Our peers supported patients in carrying out direct dial telephone assessments with specialist nurses. Nurses who were able to assess and proceed them on to a multidisciplinary team of relevant healthcare professionals for treatment if required. **Our north east peer team deliver hepatitis C testing, Middlesbrough, March 2021** ## **LARGE SCALE TRAINING** We were able to upscale our training to frontline workers by taking advantage of TOTAL NUMBERS virtual technologies, a greater uptake of online training and an increased number of substance misuse services staff people engaged in working from home. 12,100 people engaged in hepatitis C interventions. 7,687 12,100 The readiness of our peers to adapt to change, develop new partnership opportunities, close gaps in service provision and safely manage new Covid-19 risks was commended by both our ODN and community partners this year. people tested for hepatitis C. people found to be hepatitis C positive. 2,402 people supported to start treatment. 1,334 staff received Hepatitis Awareness Training. 3,926 ‘Without this joint working we would not have been able to offer the follow up and support people needed in order to continue with treatment.’ Lizi Sims, Lead Hepatology Community Nurse **Outreach testing in Bradford, January 2021** **19** **18** **REACHING OUR COMMUNITY** Our Achievements ## Reaching our community through peer work OUR WORK OUR WORK OUR WORK WITH ## IN SCOTLAND ## IN WALES ## THE SOUTH ASIAN ## COMMUNITY For the first part of this year we focused our Follow Me peer programme within the Swansea area, working in partnership with local substance misuse providers and pharmacies; with our work in pharmacies proving to be particularly successful in supporting people in accessing testing and treatment. The impact of Covid-19 was particularly difficult for our Scottish team this year as resources across the Forth Valley, Lothian and Fife shifted to Covid-19 related needs. Public Health Scotland staff working in the hepatitis C field remain redeployed and will not return to their work in this area until 2022. The scope of our South Asian community work was limited this year, not only by Covid-19 but also, as with previous years, by a reduced budget. We have, however, managed with the expertise of our South Asian Support Officer to provide support for a number of media pieces; some bespoke HCV support; as well as providing South Asian women with Covid-19 information and support. The significant impact of Covid-19 meant that Welsh health services were forced to deploy their resources to Covid-19 related needs, and this, along with a national lockdown, led to our funding being placed on hold. - During this period our Scottish team focused on supporting their peer volunteers and the most vulnerable in the community, offering one-to-one support through regular check-ins, and where possible video calls. - With a reduction in the opening times of substance misuse services and restrictions on travel, our peers advocated for people who inject drugs (PWIDs) to be able to access Opioid Substitution Therapy (OST) and needle syringe programme (NSP) provision. We are now, however, delighted to have recently secured new funding and recruited two posts to develop a Peer Support Service across Wales over the coming months. - Dry blood spot testing (DBST) was ‘I had missed so many of my another area affected, with laboratory resources designated to Covid-19 we appointments at the hospital, - found we were unable to get patient’s bloods done in order to get them I almost felt embarrassed to treatment. This created a disruption in the treatment pathway. show my face. But, I had peer - � Our Scottish team provided the support with me every step of patient perspective to the EPIToPE project, who are carrying out research project, who are carrying out research the way. They made going for to evaluate the population impact the blood tests not so scary, of HCV direct-acting antivirals as preventative treatment for PWIDs. and it turned out it wasn’t as They also joined workshops organised by the Drug Death Task Force to bad as I thought.’ - Our Scottish team provided the patient perspective to the EPIToPE project, who are carrying out research project, who are carrying out research to evaluate the population impact of HCV direct-acting antivirals as preventative treatment for PWIDs. They also joined workshops organised by the Drug Death Task Force to review Medical Assisted Treatment Standards and IEP provision. Hepatitis C patient, 2021 **----- Start of picture text -----**
Our peers help deliver a hepatitis C testing event at YMCA Nomad, Lincolnshire, June 2020
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**21** **20** **REACHING OUR COMMUNITY** > Our Achievements ## Health and Justice prison peer project � We produced short animated videos for the Way Out prison TV channel, to keep hepatitis C firmly on the agenda of people in prison, reaching 40,000 prisoners. ## Although restrictions to The impact of Covid-19 was particularly difficult for people in prison this year. We worked hard to maintain contact and deliver our services remotely. We are pleased to once more be delivering face-to-face contact. in-person access made delivering our face-to-face prison peer programme more difficult this year, we were still able to maintain good levels of awareness about hepatitis C through online platforms and specifically tailored communications products, a well as through the work of our prison peers who we trained and supported by telephone and online. � We worked with health care professionals using the telemedicine system, which allowed our staff to join healthcare professionals virtually as they supported patients in prison. ## **PROBATION SERVICES** We worked with a wider group of people affected by the criminal justice system this year, laying the foundation for us to work beyond the prison gate into approved premises and local probation services. Sean Cox, Director of Prisons ## **PRISON ENGAGEMENT DURING COVID-19** We came up with a number of innovative strategies and adaptations to our usual working practices this year in order to continue our services with people in prison , who were often restricted to their cells for 23 hour periods due to Covid-19. ## **PARTNERS & ENGAGING WITH STAKEHOLDERS** Our stakeholder engagement activities included collaborations with NHS England, HMPPS governors, healthcare providers and substance misuse services. We also worked with multiple partners throughout the year to increase screening rates for hepatitis C in prisons. - We developed a new in-cell activity pack, delivering it to 30,000 people in prison. ## HIGH INTENSITY ## TEST AND - We produced 75,000 hepatitis C information leaflets designed to fit under cell doors. ## TREAT (HITT) ## **WORKING REMOTELY** - We found new ways to communicate with our volunteer prison peers, such as through email and zoom, to ensure they were fully supported in their well being, training and their work to raise awareness about hepatitis C in prison. When unable to access prisons in person we worked remotely. At such times our prison peers delivered events through virtual platforms to both staff and people in prison across the UK. We continued to deliver HITT, whole prison testing events, in 40 Practice Plus Group prisons, working in partnership with Gilead and PPCT as part of NHS England’s elimination initiative . However, due to Covid-19 restrictions we held less than we had hoped. ## **NHS OPERATIONAL DELIVERY NETWORKS (ODNs)** - We increased the availability of our prison helpline, extending our hours from 10am-4pm Monday to Friday to 8am-8pm Monday to Sunday, making our service available for an additional 42 hours a week. We continued to work with ODNs to find people who had recently left prison, ensuring a continuity of hepatitis C care from prison to the community. During the gaps in between lockdowns, when we were able to gain access to prisons, we took part in six successful HITTs, in which, in most cases, we reached our goal of testing 95% of the whole prison population. ## **PEER TRAINING** - We produced radio adverts to promote our helpline service, our Follow Me peer and treatment programmes and to share our peer stories, reaching 70,000 prisoners. Although unable to recruit and train any new prison peers, we were able to support and engage our current peers with learning, wellbeing activities and training. **----- Start of picture text -----**
Hepatitis C testing at HMP Lincoln, Aug 2019
TOTAL NUMBERS
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HEPATITIS AWARENESS TRAINING (HAT) FOR PRISON STAFF: staff from across the England prison estate attended our HAT training. 400 ## THE WOMEN’S PRISON ESTATE: Covid-19 restrictions limited our access to the female prison estate this year. However, through being creative and working in partnerships with others: **----- Start of picture text -----**
A HITT at HMP Stockton, Oct 2019
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women received a one-to-one intervention. **----- Start of picture text -----**
Our prison peer programme
features in insidetime, Mar 2021
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## 700 ## THE MEN’S PRISON ESTATE: 835 men accessed a peer talk. men recieved a one-to-one intervention. 7,635 ## HITTs: people in prison were tested through whole prison testing events. 4,102 _**We supported 6,000 prisoners to get tested for hepatitis C this year.**_ **----- Start of picture text -----**
Hepatitis C testing at HMP East Sutton, Sept 2019
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**23** **22** **OUR TRAINING** > Our Achievements ## Our training work ## HEPATITIS ## AWARENESS ## TRAINING (HAT) We use HAT in all areas of our work, from community to prisons, to health professionals working within the hepatitis C field. Our training ensures professionals who come into contact with people who have, or are at risk of, hepatitis C, are able to deliver the right information and advice. This year, due to Covid-19 restrictions, we adapted our HAT to be delivered online. ## OUR PEER ## TRAINING Training people with lived experience of hepatitis C to become peers is an integral part of our work; not only to ensure we are effective across our peer support programmes but also to offer an opportunity for training and development within a work setting. Throughout this year we continued to recruit and train paid and volunteer peers. ## **PEER STAFF, TRAINING & SUPPORT** - We introduced a 12-week programme of weekly training, which focused on vocational training, including harm minimisation, vaccines and mental health. � We also introduced a 30 minute morning check-in session with breakout groups and daily discussions to encourage connection, emotional support and an opportunity for people to meet new people from across the organisation. - Working with Aspire Training Associates we set up a catalogue of vocational qualifications to offer both staff and volunteer peers. � We established a learning pathway so that peer volunteers could embark on a training programme which ensured they were compliant with CQC outcomes to perform regulated activities, helping them to develop their CV and supporting them to move into paid employment. A secondary learning pathway was also developed so that staff were able to achieve a level 2 or 3 Diploma in Health & Social Care. - Each Friday was designated for peer volunteer training with up to 20 attendees per session. - We produced an educational training video to instruct staff on how to comply to our new Covid-19 safety policy while performing work activities — a big part of this was safe PPE procedures. � We have a separate accreditation pathway in development for peer volunteers within the prison estates. As part of this process the Trust has signed up to the Adult Social Care Data Set and is compliant with this government funded department. This allows the trust to access funding from Skills for Care for vocational training and workforce development. ## _**We delivered a total of 91 peer training sessions this year.**_ Before I met the Peer Lead and volunteer Peer I missed so many of my appointments. But they reassured me and were there with me every step of the way. I felt really heard, and I am now about to start my treatment really soon. Hepatitis C patient, 2020 **Our peers work with partners at Coastline Homeless Service to deliver testing and health checks, December 2020** ‘I love being a peer volunteer for The Hepatitis C Trust. They have given me an opportunity to give back to my community, and I have learnt skills and built my confidence.’ Volunteer peer, 2020 **Training new peer volunteers, Chatham, Kent, June 2020** **Our peers working in partnership to test homeless people in a hotel in Guildford, May 2020** **25** **24** **ADAPTING TO COVID-19** ## Adapting to Covid-19 **----- Start of picture text -----**
Adapting to Covid-19
TESTING THE HOUSED HOMELESS
UPDATING HEPATITIS C
HEALTH PROFESSIONALS
COMMUNITY TESTING
COVID-19 TOP TIPS POSTER
HELPING WITH HOME TESTING KITS
DELIVERING MEDICINES TO PATIENTS
2020-21
TRAINING AND SUPPORTING
OUR STAFF AND PEERS ONLINE
OUTREACH TESTING
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**27** **26** **SUPPORTING PEOPLE** Supporting People Our Achievements ## HELPLINE INFORMATION AND SUPPORT ## SERVICES For much of the past year our staff have delivered our helpline service from home due to Covid-19 restrictions. Quick to adapt to change this resulted in little disruption to the continuity of our services and our ability to offer the best care, information and support to those affected by hepatitis C. ## **COVID-19, RESPONDING TO HEPATITIS C CONCERNS** Alongside our usual level of service provision, this year we became a main point of contact for people with concerns about Covid-19 and issues of increased susceptibility or risk due to hepatitis C related liver damage. Many service users were shielding, or concerned they should be shielding, due to a hepatitis C infection; their level of liver damage as a result of a hepatitis C infection; or a compromised immune system brought about by the longer-term effects of the old interferon and ribavirin treatments. With the arrival of the vaccination programme we also found ourselves providing reassurance andencouragement for people getting vaccinated. ## **REACHING OUT DURING COVID-19** We took a proactive role early on in the pandemic, contacting our more vulnerable, elderly and/or isolated callers, checking in to make sure they were aware of local mutual aid services, as well as providing emotional support thoughout a difficult time. Those with advanced liver disease were particularly worried about their medical appointments being repeatedly cancelled or delayed. ## **ANXIETY & ISOLATION** Depression, anxiety and other mental health issues, like obsessive compulsive disorder, frequently came up as people struggled with lockdown and being isolated from their medical teams or other sources of support. It was also clear that there was a heightened anxiety in the general population about the transmission of Covid-19, hepatitis C and other viruses, as a result of ongoing health protection messages in the media. ## **THE CHANGING NATURE OF CALLS TO OUR SERVICE** Calls to our service changed as a result of a reduced number of people getting tested. We had just 129 calls from those recently diagnosed, compared to 277 for the same period last year. This was due to a combination of factors such as GP and hospital appointments being delayed or cancelled and less publicity around the Infected Blood Inquiry, which had previously done a lot to raise public awareness about getting tested. Over this period we responded to 2,722 calls, emails and social media messages in total. ## OUR PRISON ## HELPLINE ## **RESTRICTED ACCESS** During this Covid-19 period many people in prison were kept inside their cells for up to 23 hours a day, largely due to staff shortages in the face of increased ill health. This made it more difficult for people in prison to access a telephone and consequently our prison telephone helpline services. We did, however, still receive 237 calls, most of which related to people wanting to be tested. You were there for me when I was diagnosed in 2004, through my treatment in 2006, and you’re there for me now during this crisis. Thank you so much. Helpline caller, 2020 ## INFORMATION ## AND SERVICES ## **GENERAL INFORMATION** We continue to send out leaflets and other information resources from our helpline to both patients and professionals from a variety of settings. ## **OUR NEWSLETTER** Our newsletter is an important resource for a range of people wishing to keep up-to-date on our UK activities; to hear about personal experiences from people who have been infected by hepatitis C; for general updates on The Infected Blood Inquiry; and for news and other events connected with hepatitis C. We published five newsletters this year. Our current newsletter membership stands at 3,800. ‘Great newsletter! Interesting… and I was pleased to read about such good progress being made during such challenging times.’ Newsletter subscriber, 2021 **29** **28** **SUPPORTING PEOPLE** > Our Achievements ## Supporting People ## THE INFECTED ## BLOOD INQUIRY ## **COVID RESTRICTIONS** Due to Covid-19 restrictions The Infected Blood Inquiry hearings were put on hold until September 2020, at which time we were able to attend in person again. However, the announcement of a second lockdown not long after meant that hearings soon returned to being online. - Covid-19 restrictions had little effect on the Inquiry’s overall progress, with the Inquiry team continuing to work hard throughout lockdown. However, the restrictions did have an impact on the number of people coming forward to give evidence. - The momentum of raising awareness about infected blood as a major risk factor for hepatitis C was also lost. This, along with GP and hospital appointments being adversely affected, meant that far fewer people who may have been infected in this way came forward for testing. Both the publicity around the Inquiry and our ability to have personal contact with those directly involved in the Inquiry were greatly reduced as a result of this. We also received less contact with members of the public concerned about whether they should be tested for hepatitis C, without the media coverage previously generated by the Inquiry around the issue of infected blood. ## **OUR WORK WITH THOSE INFECTED AND AFFECTED** - Much of our work with those infected and affected centred on helping individuals making claims to UK blood support schemes. We also continued to support and encourage those who had received a recent diagnosis to make a witness statement. We look forward to the next stage of the inquiry, including the review of payments to those affected. - We completed our own witness statement for the Inquiry team, outlining the wide range of issues and concerns we have heard from people contacting the helpline over the past 17 years. Samantha May, Helpline Information and Support Service Manager _**Infected blood continues to be a large part of our work on the helpline. In total, we took 926 calls from people with various concerns about infected blood and blood products, of which 123 were directly related to the Inquiry itself, with 499 related to problems about making claims from payment schemes.**_ **31** **30** **FUNDRAISING** ## Fundraising Our main income as an organisation comes from trusts and donors. However, we also raise money through fundraising initiatives. By far the most successful of these is Art on a Postcard. An established brand in the art world and a thriving small industry, it has gone from strength to strength over the seven years it has been running, raising over three quarters of a million pounds for the Trust. ## ART ON ## A POSTCARD Set up as a one-off secret postcard auction in 2014, Art on a Postcard (AOAP) now has a number of outstanding events under its belt including partnerships with The Other Art Fair and Photo London, as well as annual outings with Art Car Boot Fair. In addition to AOAP auctions, we have a successful print shop which has released a number of sell out print editions including Hate’s Outta Date by Harland Miller. Artists we’ve worked with include Damien Hirst, Grayson Perry CBE, RA Marina Abramovic, Harland Miller, Rebecca Salter RA, Patrick Hughes, Larry Clark, Es Devlin, Jeremy Deller, Peter Blake, Gilbert and George, Wolfgang Tillmans, Marc Quinn and Cecily Brown. **----- Start of picture text -----**
Boy George, Untitled
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## AUCTIONS ## **WINTER 2020** ## **SUMMER 2020** As with the summer auction, this auction was organised and held during the Covid-19 ongoing pandemic. We continued our partnership with Dreweatts and joined forces with GowithYamo who produced a fantastic virtual exhibition. Despite working virtually, we managed to raise £75,000 with help from the outstanding artwork donated by Winston Branch, Faith Wilding, Erik van Lieshout, AnjSmith, Ryan Mosley and many more. This year we had some outstanding artwork from the Chapman Brothers, Julian Opie, Oh de Laval, Lothar Goetz and Remi Rough, and many other artists including Boy George who having enjoyed a sell-out show in Monaco last year made his AOAP debut this year. Unlike previous years where our auction remained anonymous until the end of bidding, this year we gave our audience the opportunity to know the artist upfront. Partnering with the auction house Dreweatts we raised £45,000 in spite of the logistical challenges posed by Covid-19. ## **INTERNATIONAL WOMEN’S DAY, MARCH 2021** We celebrated International Women’s Day with a striking auction of artworks by international female-identifying artists with the theme ‘I am’, taken from an initiative run by The Hepatitis C Trust’s female prison team. Contributing artists included Claudette Johnson known for her large scale paintings of black women, Dr Chila Kumari Burman whose work has recently shown in Tate Britain, Yui Kugimiya a Brooklyn-based artist who uses traditional painting techniques to produce stop-motion animations and Antonia Showering who recently had a White Cube show. We continued our collaboration with Dreweatts auction house and GowithYamo, who created a virtual exhibition. A total of £67,000 was raised for the Trust’s work with women in prison. These times call for empathy and the artistic community can always be relied upon to step up. Gemma Peppé, Director, Art on a Postcard **----- Start of picture text -----**
Walter Swennen, Poker Face
Martin Whatson, Scribble Postcard #1
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Walter Swennen, Poker Face
Jake and Dinos Chapman,
Solar Anus Alice Campbell, The Pianist
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Nasser Azam, Queen
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Susie Hamilton, Nurse/3
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Otto Schade, No Title
Walter Swennen, Captain Time Jess Quinn, He Had Been Wandering in the Wrong Lee Wagstaff, , Pandamoniun
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**33** **32** ## **YEAR AHEAD** ## Looking foward ## IN THE YEAR AHEAD ## WE WILL: - Play a role in supporting the NHS England hepatitis C elimination programme to recover from the impact of Covid-19. - Further develop our harm prevention work, and work with partners to better understand reinfection. - Continue to represent and support those affected by the Infected Blood Inquiry and act as an expert source to the inquiry team. - Work closely with Public Health England and other monitoring bodies to ensure all data is effectively shared and fed into the same system. - Establish and implement our research strategy. - Invest in communications personnel to ensure hepatitis C stays firmly on the agenda of the government, policy makers and general public. Having stepped up to the challenge of Covid-19 and truly felt the benefit of working in partnership with other key stakeholders, we go into next year with a renewed vigour to achieve elimination. Rachel Halford,Chief Executive **----- Start of picture text -----**
Caroline Coon, I am…for The Hepatitis C Trust 2021
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**35** **34** ## Governance and management ## LEGAL ENTITY The Trust was incorporated in England and Wales on 10 March 2004 (registration number 05069924) and gained charitable status on 10 June 2004 (charity number 1104279). On 1 September 2004 all the charitable activities, assets and liabilities from the original unincorporated charity, The Hepatitis C Trust (charity number 1083097), were transferred to this incorporated charity. On 1 October 2008 the charity registered in Scotland (charity number SCO39914). The current charity is governed by its Memorandum and Articles of Association. ## CHARITABLE ## OBJECTS The objects of the Trust, as set out in the Memorandum and Articles of Association are: **1.** The relief of persons suffering from hepatitis C and the provision of support to such persons and their families; **2.** The advancement of education concerning hepatitis C; and **3.** Research into all aspects of hepatitis C including (but not limited to) the causes, detection, transmission, prevention and treatment of hepatitis C and the publication and dissemination of the useful results of all such research. ## TRUSTEES (Those who served during the year and/or were responsible for the annual report) Sir Adrian Baillie Bt Dr M F Bassendine Mr Peter Holt The Hon David Macmillan Mr Edward Mead Mr Charles Walsh Mr John Jolly Mr Simon Lincoln (from 9/12/2020) attend a Board meeting to get a better understanding of the role of a trustee at The Hepatitis C Trust. ## PATRONS The Marchioness of Bute Ms Emilia Fox Ms Sadie Frost Boy George Mr Andrew Loog Oldham The Lord Mancroft Mr Alan McGee Ms Justine Roddick Mr Robbie Williams Newly appointed Trustees are sent briefing information about The Trust and their role as a trustee, including the Charity Commission’s booklets, _The Essential Trustee: what you need to know_ (CC3) and _The Hallmarks of an Effective Charity_ (CC60). They are then asked to spend a day at the Trust’s London offices, meeting the staff and learning more about each project and in particular financial oversight. ## CHIEF EXECUTIVE ## KEY MANAGEMENT PERSONNEL Rachel Halford ## RECRUITMENT The Trustees have determined that the Chief Executive and the Senior Directors, together with the Trustees themselves, are the key management personnel. **Anita Klein, Singing Bird** The Trustees are not remunerated and the pay of the Chief Executive and the Senior Directors has been set according to bands suggested by an independent consultant and by benchmarking against market rates. ## AND APPOINTMENT ## OF TRUSTEES ## Financial review The charity’s Trustees are also the company directors for the purposes of company law. Subsequent Trustees may be appointed by ordinary resolution. When vacancies occur on the Board, new Trustees are recruited through a variety of means including advertising, stating skills that are needed on the Board. The Trust wishes to have patients as a majority of its Board, which increases the challenge of finding suitable and willing Trustees. ## RISK ASSESSMENT With the continued successful delivery of our peer programmes, we remain confident in our financial position. ## RESERVE POLICY ## FUNDING The Trustees have prepared a risk assessment, examining the major risks which the charity faces and have set out the necessary steps that need to be taken to lessen any risks. This register is updated on a regular basis. The key risks and the actions to be taken to mitigate them in the latest risk assessment are set out in the table below. Following the successful delivery of our ongoing peer programmes, we received further investment under the NHS elimination initiative this year. As such our income has, once more, continued to significantly increase, allowing us to maintain a secure financial position for the Trust. The policy of the Trustees is to hold a reserve of three months’ costs, amounting to £1,050,000. Our total unrestricted reserves for this year are £468,076. Alongside this are our current restricted reserves of £824,254 to fund activities in the year 31 March 2022. The Trustees are committed to raising core reserves through our fundraising strategy involving: In relation to our raising funds, please see our costs in the financial statements at the back of the report, mainly in regard to income generation from Art on a Postcard (see page 22). We do not engage external professional fundraisers or commercial participators to carry out our fundraising activities and we do not engage in face-to-face or telephone fundraising. All our approaches to fundraising take account of the Code of Fundraising Practice issued by the Fundraising Regulator. We have � received no complaints about our � fundraising activities either during the � financial year or subsequently. Potential Trustees have an initial meeting with the Chief Executive who gives them a copy of the governing document, the latest accounts and a description of all the Trust’s projects and explains the Trust’s philosophy and how it works in practice. They are then asked to At £3,632,826 our income has significantly increased from that of the previous year £2,774,493, while our expenditure at £3,037,265 increased by £700,024. This increase in expenditure is in line with additional costs incurred through the implementation and running of our extended peer programme service delivery. Broadening our base of possible trust funders by demonstrating that addressing hepatitis C has broader social benefits, not just positive health outcomes **----- Start of picture text -----**
KEY RISKS MITIGATING ACTION
Covid risk Implement Covid strategies and procedures
Insufficient reserves New fundraising strategy to broaden funding base
Failures/errors in planning More resources devoted to planning/forecasting
Adverse publicity Media crisis planning
Owner sells property/need to find Contingency move planning
new premises
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Engaging with corporate donors Expanding Art on a Postcard Moving our focus towards longer term statutory funding **37** **36** ## Statement of Trustees responsibilities The Trustees (who are also directors of The Hepatitis C Trust for the purposes of company law) are responsible for preparing The Trustees’ Report and the Financial Statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice). Company law requires Trustees to prepare financial statements for each financial year which give a true and fair view of the state of the affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period. In preparing these financial statements, the Trustees are required to: - select suitable accounting policies and then apply them consistently; - observe the methods and principles in the Charities SORP 2015 (FRS 102); - make judgements and estimates that are reasonable and prudent; ## Independent Auditor's Report - state whether applicable UK Accounting Standards have been followed, subject to any material departures disclosed and explained in the financial statements; - prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charitable company will continue in business. The Trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charitable company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. In so far as the Trustees are aware: - There is no relevant audit information of which the charitable company’s auditor is unaware; and - the Trustees have taken all steps that they ought to have taken to make themselves aware of any relevant audit information and to establish that the auditor is aware of that information. ## AUDITORS Azets Audit Services (formerly Wilkins Kennedy Audit Services) have indicated their willingness to continue in office. A resolution proposing their re-appointment will be submitted at the Annual General Meeting. ## SMALL COMPANY RULES These accounts have been prepared in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to small companies and with the Statement of Recommended Practice, Accounting and Reporting by Charities (SORP FRS 102) issued in January 2015. This report was approved by the Board of Trustees and signed on its behalf by: ……………………………………… The Hon David Macmillan Date: 7 December 2021 **39** **38** ## **INDEPENDENT AUDITOR’S REPORT TO THE TRUSTEES AND MEMBERS OF THE HEPATITIS C TRUST** ## **INDEPENDENT AUDITOR’S REPORT TO THE TRUSTEES AND MEMBERS OF THE HEPATITIS C TRUST** ## **Opinion** We have audited the financial statements of The Hepatitis C Trust (the ‘charitable company’) for the year ended 31 March 2021 which comprise the Statement of Financial Activities, the Balance Sheet, the Cash Flow Statement and notes to the financial statements, including significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards, including Financial Reporting Standard 102 _The Financial Reporting Standard applicable in the UK and Republic of Ireland_ (United Kingdom Generally Accepted Accounting Practice). ## In our opinion the financial statements: - give a true and fair view of the state of the charitable company’s affairs as at 31 March 2021, and of its incoming resources and application of resources, including its income and expenditure, for the year then ended; - have been properly prepared in accordance with United Kingdom Generally Accepted Accounting Practice; and - have been prepared in accordance with the requirements of the Companies Act 2006. ## **Basis for opinion** We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the charitable company in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion. ## **Conclusions relating to going concern** In auditing the financial statements, we have concluded that the trustees’ use of the going concern basis of accounting in the preparation of the financial statements is appropriate. Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the charitable company's ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue. Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report. ## **Other information** The other information comprises the information included in the trustees annual report, other than the financial statements and our auditor’s report thereon. The trustees are responsible for the other information contained within the annual report. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon. Our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the course of the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether this gives rise to a material misstatement in the financial statements themselves. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact. We have nothing to report in this regard. ## **Opinions on other matters prescribed by the Companies Act 2006** In our opinion, based on the work undertaken in the course of the audit: - the information given in the trustees' report (incorporating the directors’ report) for the financial year for which the financial statements are prepared is consistent with the financial statements; and - the directors’ report has been prepared in accordance with applicable legal requirements. ## **Matters on which we are required to report by exception** In the light of the knowledge and understanding of the charitable company and its environment obtained in the course of the audit, we have not identified material misstatements in the directors’ report. We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 requires us to report to you if, in our opinion: - adequate accounting records have not been kept, or returns adequate for our audit have not been received from branches not visited by us; or - the financial statements are not in agreement with the accounting records and returns; or - certain disclosures of directors’ remuneration specified by law are not made; or - we have not received all the information and explanations we require for our audit **;** or - the trustees were not entitled to prepare the financial statements in accordance with the small companies’ regime and take advantage of the small companies’ exemptions in preparing the directors’ report and from the requirement to prepare a strategic report **.** ## **Responsibilities of trustees** As explained more fully in the trustees’ responsibilities statement, the trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error. In preparing the financial statements, the trustees are responsible for assessing the charitable company’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the charitable company or to cease operations, or have no realistic alternative but to do so. ## **Auditor’s responsibilities for the audit of the financial statements** Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor’s report that includes our opinion. Reasonable assurance is a high level of assurance, but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements. Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The specific procedures for this engagement and the extent to which these are capable of detecting irregularities, including fraud is detailed below: - Enquiry of management and those charged with governance around actual and potential litigation and claims as well as actual, suspected and alleged fraud; - Reviewing minutes of meetings of those charged with governance; - Assessing the extent of compliance with the laws and regulations considered to have a direct material effect on the financial statements or the operations of the company through enquiry and inspection; - • Reviewing financial statement disclosures and testing to supporting documentation to assess compliance with applicable laws and regulations; - Performing audit work over the risk of management bias and override of controls, including testing of journal entries and other adjustments for appropriateness, evaluating the business rationale of significant transactions outside the normal course of business and reviewing accounting estimates for indicators of potential bias. **40** **41** **INDEPENDENT AUDITOR’S REPORT TO THE TRUSTEES AND MEMBERS OF THE HEPATITIS C TRUST** ## **THE HEPATITIS C TRUST STATEMENT OF FINANCIAL ACTIVITIES INCORPORATING AN INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 31ST MARCH 2021** Because of the inherent limitations of an audit, there is a risk that we will not detect all irregularities, including those leading to a material misstatement in the financial statements or non-compliance with regulation. This risk increases the more that compliance with a law or regulation is removed from the events and transactions reflected in the financial statements, as we will be less likely to become aware of instances of non-compliance. The risk is also greater regarding irregularities occurring due to fraud rather than error, as fraud involves intentional concealment, forgery, collusion, omission or misrepresentation. A further description of our responsibilities is available on the Financial Reporting Council’s website at: https://www.frc.org.uk/Our-Work/Audit/Audit-and-assurance/Standards-and-guidance/Standards-and-guidancefor-auditors/Auditors-responsibilities-for-audit/Description-of-auditors-responsibilities-for-audit.aspx. This description forms part of our auditor’s report. ## **Use of our report** This report is made solely to the charitable company’s members, as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006. Our audit work has been undertaken so that we might state to the charitable company’s members those matters we are required to state to them in an auditor’s report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company’s members as a body, for our audit work, for this report, or for the opinions we have formed. ## **John Howard FCA (Senior Statutory Auditor)** For and on behalf of Azets Audit Services Statutory Auditor 2[nd] Floor, Regis House 45 King William Street London EC4R 9AN Date |**Unrestricted**
**Note**
**Funds**
**£**
**Income from:**
Donations
**2**
273,195
Investments
**3**
151
Charitable activities
**4**
400,506
Rental income
20,302
Other income
**-**
**Total**
694,154
**Expenditure on:**
Raising funds
**5**
210,094
Charitable activities
**6**
200,006
Other
20,302
**Total**
430,402
**Net income for the year before**
**transfers**
263,752
Transfers
**13**
6,979
**Net income**
270,731
Fund balances at 1st April 2020
**13**
197,345
**Fund balances at 31st March 2021**
**13**
**468,076**|**Restricted**
**Funds**
**£**

**-**
**-**
2,938,672
**-**
**-**
2,938,672
**-**
2,606,863
**-**
2,606,863
331,809
(6,979)
324,830
499,424
**824,254**|**Total**
**2021**
**£**
**273,195**
**151**
**3,339,178**
**20,302**
**-**
**3,632,826**
**210,094**
**2,806,869**
**20,302**
**3,037,265**
**595,561**
**-**
**595,561**
**696,769**
**1,292,330**|**Total**
**2020**
**£**
323,146
192
2,398,115
47,915
5,125
2,774,493
180,467
2,103,286
53,488
2,337,241
437,252
**-**
437,252
259,517
**696,769**| |---|---|---|---| All gains and losses arising in the year have been included in the Statement of Financial Activities and arise from continuing operations The notes on pages 46 to 55 form part of the financial statements. **43** **42** ## **THE HEPATITIS C TRUST BALANCE SHEET AS AT 31ST MARCH 2021** ## **THE HEPATITIS C TRUST STATEMENT OF CASH FLOWS FOR THE YEAR ENDED 31ST MARCH 2021** |**Note**
**Fixed Assets**
Tangible assets
**10**
**Current Assets**
Debtors
**11**
Cash at bank and in hand
**Creditors: Amounts falling due**
**within one year**
**12**
**Net Current Assets**
**Total Net Assets**
**Funds**
Unrestricted funds
**13**
Restricted funds
**13**|**2021**
**2021**
**2020**
**2020**
**£**
**£**
**£**
**£**
**-**
**-**
**575,383**
372,915
**1,615,073**
397,921
**2,190,456**
770,836
**(898,126)**
(74,067)
696,769
**1,292,330**
696,769
**468,076**
197,345
**824,254**
499,424
**1,292,330**
696,769| |---|---| ||| The accounts have been prepared in accordance with FRS 102. These financial statements have been prepared in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to small companies. The financial statements were approved by the Board of Trustees and authorised for issue on 7 December 2021 and signed on their behalf by: ……………………………………… **Hon David Macmillan** |**Notes**
**Cash (used in)/generated from operating activities:**
Net cash (used in)/provided by operating activities
**see**
**below**
**Cash flows from investing activities:**
Interest income
**3**
Purchase of property, plant and equipment
**10**
**Net cash (used in)/provided by investing and operating activities**
Change in cash and cash equivalents in the reporting period
**Cash and cash equivalents at the beginning of the reporting period**
**Cash and cash equivalents at the end of the reporting period**|**2021 **
**£ **
**1,217,001**
**151**
**-**
**1,217,152**
**397,921**
**1,615,073**|**2020**
**£**
151,686
192
-| |---|---|---| |||151,878| |||246,043| |||**397,921**| ## **Reconciliation of net expenditure to net cash flow from operating activities** |.,
**Net expenditure (as per the statement of**
**financial activities)**
**SOFA**
**Adjustments for:**
Depreciation charges
**10**
Investment income
**3**
(Increase)/Decrease in debtors
**11**
Increase /(Decrease) in creditors
**12**
**Net cash (used in)/provided by operating activities**
**Analysis of cash and cash equivalents**
Cash in hand
**Total cash and cash equivalents**|**2021 **
**£ **
**595,561**
**-**
**(151)**
**(202,468)**
**824,059**
**1,217,001**
**2021 **
**£ **
**1,615,073**
**1,615,073**|**2020**
**£**
437,252
-
(192)
(297,003)
11,629| |---|---|---| |||**151,686**| |||**2020**
**£**
397,921| |||**397,921**| Registered Company Number: 5069924 The notes on pages 46 to 55 form part of the financial statements. **45** **44** ## **THE HEPATITIS C TRUST NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31ST MARCH 2021** ## **THE HEPATITIS C TRUST NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31ST MARCH 2021** ## **1. Accounting Policies** ## **1. Accounting Policies (continued)** ## **Basis of Preparation** The financial statements have been prepared in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102), published on 16 July 2014. The Charitable Company is a public benefit entity for the purposes of FRS 102 and therefore the charity also prepared its financial statements in accordance with the Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (The FRS 102 Charities SORP), the Companies Act 2006 and the Charities Act 2011. The financial statements are prepared in sterling, which is the functional currency of the company. Monetary amounts in these financial statements are rounded to the nearest pound. Expenditure is included in the Statement of Financial Activities on an accruals basis, inclusive of any VAT which cannot be recovered. Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. ## **Fund accounting** Restricted funds are subject to restrictions imposed by the donor. These are accounted for separately from unrestricted funds and full details are given in note 13. Unrestricted funds are those which are not subject to restrictions, and any surpluses may be applied in furtherance of any of the organisation's objectives. The financial statements are prepared under the historical cost concept. The principle accounting policies adopted in the preparation of the financial statements are set out below. ## **Cash and Cash Equivalents** Cash and cash equivalents include cash at banks and in hand and short term deposits with a maturity date of three months or less. ## **Going Concern Basis** The trustees have assessed whether the use of the going concern basis is appropriate and have considered possible events or conditions that might cast significant doubt on the ability of the charity to continue as a going concern. The trustees have made this assessment for a period of at least one year from the date of approval of the financial statements. In particular the trustees have considered the charity’s forecasts and projections and have taken account of pressures on donation and investment income. After making enquiries the trustees have concluded that there is a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. The charity therefore continues to adopt the going concern basis in preparing its financial statements. ## **COVID 19** The Trustees have considered the organisation's work within Covid-19 restrictions this year. They have reviewed the innovative ways the Trust has developed to ensure services could still be delivered and patients fully supported. They are confident going forwards that should there be further restrictions in the coming year that with the Trust's workers being classified as essential workers, who have the ability to adjust models of delivery, there will be no negative financial impact on the financial year's projected and secured income. ## **Debtors and creditors** Debtors and creditors receivable or payable within one year of the reporting date are carried at their transaction price. Debtors and creditors that are receivable or payable in more than one year and not subject to a market rate of interest are measured at the present value of the expected future receipts or payment discounted at a market rate of interest. ## **Tangible Fixed Assets and Depreciation** Tangible fixed assets costing less than £500 are not capitalised and are written off in the year of purchase. Depreciation is provided so as to write off the cost of the fixed assets over their estimated useful lives at the following annual rates: Computer and Office Equipment Property Improvements Motor Vehicles Straight Line over 4 years Over the length of the lease Straight Line over 4 years ## **Income** Income is recognised in the period to which it relates, when the criteria of entitlement, measurable and probable receipt are met. ## **Pension** The charity operates a defined contribution stakeholder pension scheme. The assets of the scheme are held separately from the charity. Deferred income is income which is received in respect of a future accounting period and is deferred to that period. ## **Critical accounting estimates and areas of judgement** Gifts in kind are valued and brought in as income and the appropriate resources expended, when the items are used/distributed. The values attributable to gifts in kind are an estimate of the gross value to the organisation, usually the market cost. Where this intangible income relates to project activities it is included as an activity in furtherance of the charity's objects. ## **Expenditure** The annual depreciation charge for property, plant and equipment is sensitive to change in useful economic life and residual values of assets. These are reassessed annually. In the view of the trustees in applying the accounting policies adopted, no other judgements were required that have a significant effect on the amounts recognised in the financial statements nor do any estimates or assumptions made carry a significant risk of material adjustment in the next financial year. Direct charitable expenditure comprises all expenditure relating to the activities carried out to achieve the objectives. Governance costs include those costs incurred in the governance of the charity and are primarily associated with constitutional compliance and statutory requirements. Expenditure is allocated directly to the expenditure headings as far as practically possible to reflect the activities of the charity. Support costs have been allocated to the activities based on employee time spent on that activity. **47** **46** ## **THE HEPATITIS C TRUST NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31ST MARCH 2021** ## **THE HEPATITIS C TRUST NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31ST MARCH 2021** ## **2. Donations** ## **4a. Grants** |**. Donations**||||||| |---|---|---|---|---|---|---| |**Year to 31 March 2021**
Donations
Art on a Postcard
**Year to 31 March 2020**
Donations
Art on a Postcard

**Investment Income**
**Year to 31 March 2021**
Bank interest
**Year to 31 March 2020**
Bank interest||**Unrestricted**
**Funds**
**2021**
**£**
11,423
261,772
**273,195**
**Unrestricted**
**Funds**
**2020**
**£**
13,703
309,443
**323,146**
**Unrestricted**
**Funds**
**2021**
**£**
151
**151**
**Unrestricted**
**Funds**
**2020**
**£**
192
**192**||**Restricted**
**funds**
**2021**
**£**
-
-||**Total**
**2021**
**£**
11,423
261,772| |||||**- **||**273,195**| |||||**Restricted**
**funds**
**2020**
**£**
-
-||**Total**
**2020**
**£**
13,703
309,443| |||||-||**323,146**| |||||**Restricted**
**funds**
**2021**
**£**
-
-
**Restricted**
**funds**
**2020**
**£**
-
-||**Total**
**2021**
**£**
151| |||||||**151**| |||||||**Total**
**2020**
**£**
192| |||||||**192**| ## **3. Investment Income** ## **4. Income for Charitable Activities** |**Year to 31 March 2021**
**Unrestricted**
**Funds**
**2021**
**£**
AbbVie Ltd
**-**
AbbVie Ltd (HCV Action)
**-**
Brighton and Sussex University Hospitals NHS Foundation Trust
25,000
Cambridge University Hospitals NHS Foundation Trust
1,022
Care UK/Practice Plus Group Health and Rehabilitation Services Limited
**-**
DWP
3,440
Enigma Consultancy Coaching Ltd
845
Frontier NX Limited
**-**
Gilead - HCV Action & Parliamentary Work
**-**
Gilead HITT
**-**
Kings College Hospital
53,000
Leeds Teaching Hospitals NHS Trust
42,320
MSD
**-**
MSD (HCV Action)
-
NHS England and NHS Improvement – East Midlands (H&J)
-
NHS England Health & Justice Materials
-
NHS Health and Justice Midlands (Peer Programme)
-
NHS Forth Valley
-
Nottingham University Hospitals NHS Trust
4,669
Other
2,990
Oxford University Hospitals NHS Foundation Trust
10,000
Pilgrim Trust
-
Royal Surrey NHS Foundation Trust
10,000
Sheffield Teaching Hospitals NHS Foundation Trust (Peer Programme)
103,809
Sheffield Teaching Hospitals NHS Foundation Trust(Training and
Volunteers)
-
St George's University Hospitals NHS
45,000
University College London Hospital
-
University Hospital Southampton NHS Foundation Trust
20,000
University Hospitals Bristol & Weston NHS Foundation Trust
25,000
University Hospitals of Leicester NHS Trust
53,411
**400,506**|**Restricted**
**funds**
**2021**
**£**
456,250
25,000
-
-
665,512
-
-
2,000
37,500
130,680
51,000
-
1,068,200

57,865
23,500
100,000
67,500
20,000
-
1,165
-
7,500
-
-
75,000
-
150,000
-
-
-
**2,938,672**|**Total**
**2021**
**£**
456,250
25,000
25,000
1,022
665,512
3,440
845
2,000
37,500
130,680
104,000
42,320
1,068,200
57,865
23,500
100,000
67,500
20,000
4,669
4,155
10,000
7,500
10,000
103,809
75,000
45,000
150,000
20,000
25,000
53,411| |---|---|---| |||**3,339,178**| |**Income for Charitable Activities**|||| |---|---|---|---| |**Year to 31 March 2021**
Grants
**4a**
**Year to 31 March 2020**
Grants
**4a**|**Unrestricted**
**Funds**
**2021**
**£**
400,506
**400,506**
**Unrestricted**
**Funds**
**2020**
**£**
47,000
**47,000**|**Restricted**
**funds**
**2021**
**£**
2,938,672
**2,938,672**
**Restricted**
**funds**
**2020**
**£**
2,351,115
**2,351,115**|**Total**
**2021**
**£**
3,339,178| ||||**3,339,178**| ||||**Total**
**2020**
**£**
2,398,115| ||||**2,398,115**| **49** **48** ## **4a. Grants (Continued)** ## **THE HEPATITIS C TRUST NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31ST MARCH 2021** ## **THE HEPATITIS C TRUST NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31ST MARCH 2021 y** ## **6. Analysis of Charitable Expenditure by type** |**Year to 31 March 2020**
AbbVie Ltd
BASL
Care UK
Gilead
Gilead HITT
King's College Hospital
Mary Kinross Charitable Trust
Medicash
MSD
NHS Birmingham
NHS Imperial (West London)
NHS Leicester
The Pilgrim Trust
Roddick Foundation
Russell Webster
St George's University Hospitals NHS
Other|**Unrestricted**
**Funds**
**2020**
**£**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
45,000
2,000
**-**
**-**
**47,000**|**Restricted**
**funds**
**2020**
**£**
384,167
5,000
265,000
141,395
119,167
142,000
38,000
5,500
630,000
77,000
90,542
15,263
7,500
75,000
**-**
349,807
5,774
**2,351,115**
|**Total**
**2020**
**£**
384,167
5,000
265,000
141,395
119,167
142,000
38,000
5,500
630,000
77,000
90,542
15,263
7,500
120,000
2,000
349,807
5,774| |---|---|---|---| ||||**2,398,115**| ## **5. Cost of Raising Funds** |**Year to 31 March 2021**
Staff Costs
Direct Costs
**Year to 31 March 2020**
Staff Costs
Direct Costs|**Unrestricted**
**Funds**
**2021**
**£**
87,405
122,689
**210,094**
**Unrestricted**
**Funds**
**2020**
**£**
79,914
100,553
**180,467**|**Restricted**
**funds**
**2021**
**£**
-
-
**- **
**Restricted**
**funds**
**2020**
**£**
-
-
**- **|**Total**
**2021**
**£**
87,405
122,689| |---|---|---|---| ||||**210,094**| ||||**Total**
**2020**
**£**
79,914
100,553| ||||**180,467**| |**Year to 31 March 2021**
Advocacy and Drug Services
HCV Action and Parliamentary Work
National Volunteer & Trainer
NHS Health & Justice Materials
NHS Health & Justice Prison Peers
Scotland Peer Project
Women's Prisons
World Hepatitis Day
**Year to 31 March 2020**
Advocacy and Drug Services
Consulting
HCV Action and Parliamentary Work
Helpline
NHS Health & Justice Prison Peers
Scotland Peer Project
South Asian Awareness
Women's Prisons
World Hepatitis Day|**Staff Cost**
**2021**
**£**
1,470,442
-
-
-
646,545
56,548
17,127
-
**2,190,662 **
**Staff Cost**
**2020**
**£**
755,377
-
-
50,337
429,080
35,011
15
88,798
-
**1,358,618**|**Direct**
**Cost**
**2021**
**£**
252,039
85,320
10
53,386
103,906
6,808
7,373
4,108
**512,950**
**Direct**
**Cost**
**2020**
**£**
216,345
489
52,499
25,551
281,165
3,316
2,000
34,977
5,781
**622,123**|**Support**
**Cost**
**2021**
**£**
103,257
-
-
-
-
-
-
-
**103,257 **
**Support**
**Cost**
**2020**
**£**
98,287
-
1
204
22,810
-
1,243
-
-
**122,545**|**Total**
**2021**
**£**
1,825,738
85,320
10
53,386
750,451
63,356
24,500
4,108| |---|---|---|---|---| |||||**2,806,869**| |||||**Total**
**2020**
**£**
1,070,009
489
52,500
76,092
733,055
38,327
3,258
123,775
5,781| |||||**2,103,286**| ## **7. Support Costs** |Staff costs
Staff training
Rent, rates, light and heat
Travel and subsistence
Insurance
Office supplies and maintenance
Telephone
Computer Costs
Sundry costs
Legal and professional costs
Audit and accountancy
Bank charges|**Total**
**2021**
**£**
10,697
-
61,643
585
2,050
5,881
1,900
1,148
1,110
13
17,870
360
**103,257 **|**Total**
**2020**
**£**
-
3,220
53,681
380
7,373
20,199
8,157
10,758
1,787
2,505
14,206
279| |---|---|---| |||**122,545**| Other expenses in the sofa are made up of Rent £20,302 (2020: £47,915) incurred by WHA, £nil (2020: £5,125 ) of costs covered by an insurance claim and other costs £nil (2020: £448). **50** **51** ## **THE HEPATITIS C TRUST NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31ST MARCH 2021** ## **THE HEPATITIS C TRUST NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31ST MARCH 2021** ## **8. Staff Costs** |Wages and salaries
Social Security costs
Pension costs
Other staff costs
Average number of employees during the year
Average number of volunteers during the year|**2021**
**£**
2,031,055
203,645
43,367
-
**2,278,067**
**Number**
63
100|**2020**
**£**
1,283,798
123,615
28,122
2,997| |---|---|---| |||**1,438,532 **| |||**Number**
42| |||150| One employee was paid in the range £60,000 to £69,999 in the year (2020: none). Key management personnel include the Trustees, Chief Executive (and senior management reporting directly to the Chief Executive). The total employee benefits, including pension costs and employers national insurance contributions of the charity's key management personnel were £227,735 (2020: £121,426). Four employees (2020: two) were considered to be key management personnel during the year. ## **11. Debtors** |**Debtors**||| |---|---|---| |Trade debtors
Other debtors
Prepayments|**2021**
**£**
568,249
2,850
4,284
**575,383**|**2020**
**£**
366,665
-
6,250| |||**372,915**| ## **12. Creditors: Amounts falling due within one year** |Trade creditors
Tax and social security costs
Sundry creditors
Income received in advance
Accruals|**2021**
**£**
8,709
58,744
3,206
733,094
94,373
**898,126**|**2020**
**£**
10,262
38,336
3,615
-
21,854| |---|---|---| |||**74,067**| Income received in advance is funding for project work to be completed in the year 2021-22 ## **13. Statement of Funds** ## **9. Trustees and related parties** No remuneration was paid to any trustee for services as a trustee and no expenses were reimbursed. Trustees participated in the Art on a Post Card auction on an arms-length basis The charity rents office space to the World Hepatitis Alliance (WHA). Rachel Halford is a European Board Member of WHA and Chief Executive of The Hepatitis C Trust. All rents charged to WHA on a fair proportion of the Hepatitis C Trust total rental costs ## **10. Fixed Assets** All fixed assets are held for use by the charity. |**Cost**
At 1 April 2020
Additions
At 31 March 2021
**Depreciation**
At 1 April 2020
Charge for the year
At 31 March 2021
**Net Book Value**
At 31 March 2021
At 31 March 2020|**Motor**
**Vehicles**
**£**
35,746
-
35,746
35,746
-
35,746
-
-|**Computer**
**and Office**
**Equipment**
**£**
58,402
-
58,402
58,402
-
58,402
-
-|**Property**
**Improvements**
**£**
29,820
-
29,820
29,820
-
29,820
-
-|**Total**
**£**
123,968
-| |---|---|---|---|---| |||||123,968| |||||123,968
-| |||||123,968| |||||-| |||||-| |**Unrestricted funds**
**Restricted funds**
Advocacy and Drug Services
HCV Action and Parliamentary Work
National Volunteer & Training
NHS Health & Justice Prison Peers
Scotland Peer Project
Women's Prisons|**Funds at**
**31 March**
**2020**
**£**
197,345
409,798

-
-
63,125
-
26,501
499,424
**696,769**|**Income**
**£**
694,154
1,725,449
122,366
75,000
988,347
20,000
7,510
2,938,672
**3,632,826**|**Expenditure**
**£**
(430,402)
(1,629,841)
(85,320)
(10)
(803,836)
(63,356)
(24,500)
(2,606,863)
**(3,037,265)**|**Transfer**
**of funds**
**£**
6,979
(50,335)
-
-
43,356
(6,979)
**-**|**Funds at**
**31 March**
**2021**
**£**
468,076
455,071
37,046
74,990
247,636
-
9,511| |---|---|---|---|---|---| ||||||824,254| ||||||**1,292,330**| **53** **52** ## **THE HEPATITIS C TRUST** ## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31ST MARCH 2021** ## **THE HEPATITIS C TRUST NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31ST MARCH 2021** ## **13. Statement of Funds (continued)** ## **13. Statement of Funds (continued)** |**Unrestricted funds**
**Restricted funds**
Advocacy and Drug Services
HCV Action and Parliamentary Work
Helpline
NHS Health & Justice Prison Peers
Scotland Peer Project
South Asian Awareness
Women's Prisons|**Funds at**
**31 March**
**2019**
**£**
42,546
129,392
-
-
68,579
-
-
19,000
216,971
**259,517**|**Income**
**£**
418,362
1,350,415
52,500
76,092
727,601
14,989
3,258
131,276
2,356,131
**2,774,493**|**Expenditure**
**£**
(240,225)
(1,070,009)
(52,500)
(76,092)
(733,055)
(38,327)
(3,258)
(123,775)
(2,097,016)
**(2,337,241)**|**Transfer**
**of funds**
**£**
(23,338)
-
-
-
-
23,338
-
-
23,338
**-**|**Funds at**
**31 March**
**2020**
**£**
197,345
409,798
-
-
63,125
-
-
26,501| |---|---|---|---|---|---| ||||||499,424| ||||||**696,769**| **NHS Health and Justice Prison Peers** : The Hepatitis C Trust engages in peer-to-peer and awareness raising activities across UK prisons in order to: 1) Provide information about hepatitis C to those at risk, who are often hard to engage. 2) Encourage and support people in prisons to get tested and to access treatment and care. 3) Train people in prison to become hepatitis C peers. **Scotland Peer Project** : A peer-to-peer awareness and education project that provides key messages about hepatitis C prevention, diagnosis, treatment and care to people attending recovery cafes, homeless hostels, shelters as well as people in prison. Our Voices group brings together people affected by hepatitis C, building their knowledge and awareness, and supporting them in having their voices heard. **South Asian awareness:** The Trust employs a South Asian worker to communicate awareness messages to the South Asian population in the UK; in areas where research indicates that prevalence rates are much higher than in the general population. We also attend Melas and community information events to conduct testing amongst people in the community. **Women’s Prisons** : A women specific hepatitis C peer programme working across the female prison estate by educating, raising awareness, changing the conversation, reducing stigma and supporting women to get tested and treated. A transfer of £6,979 (2020: £23,338) was made from the unrestricted fund to the restricted funds to cover overspends on restricted projects that will not be reimbursed next financial year. ## **Restricted Funds** The nature and purpose of each of the funds is as follows: **Advocacy and Drug Services:** Includes peer-to peer education and awareness programmes, delivering key messages about hepatitis C prevention, diagnosis, treatment and care to people attending community drug services, hostels and homeless shelters. Staff training is carried out within the programme and is delivered to those staff working in services with people who are at a high risk of hepatitis C. We also have a mobile outreach programme which provides testing and raises awareness, especially amongst high prevalence communities and populations that are difficult to reach, such as the homeless community. **HCV Action** : A very useful vehicle for collecting and disseminating best practice in hepatitis C care and treatment, and for supporting Hepatitis C as the patient voice. **The Helpline and Infected Blood Inquiry:** Work to support people affected by hepatitis C. The helpline does this primarily through our helpline and support service (via telephone, email and the occasional face-to-face meetings). Our Infected Blood Inquiry work is delivered through our helpline one-to-one support to those affected by infected blood, and through working with professionals to provide them with information about hepatitis C and its impacts. ## **National Volunteer and Training Service:** The National service team operate through two strands: 1) The delivery and oversight of core mandatory training and development of our staff, including induction, and hepatitis C training to professionals and other service providers. 2) The delivery of The Hepatitis C Trust volunteering programme, which includes supporting our volunteers across different areas of our work ensuring that all volunteers are provided with the opportunity to access training and development to support them in their role and further their employment opportunities. ## **14. Analysis of Net Assets between Funds** |**Year to 31 March 2021**|**Unrestricted**|**Unrestricted**|**Restricted**||| |---|---|---|---|---|---| |||**Funds**
**2021**|**funds**
**2021**|
|**Total**
**2021**| |Fixed assets||**£**
-|**£**
-|
|**£**
-| |Current assets
Current liabilities|1,366,202
(898,126)
**468,076**||824,254
-
**824,254 **|

|2,190,456
(898,126)
**1,292,330**| |**Year to 31 March 2020**|**Unrestricted**||**Restricted**||| |||**Funds**|**funds**||**Total**| |||**2020**
**£**|**2020**
**£**|
|**2020**
**£**| |Fixed assets||-|-||-| |Current assets||271,412|499,424||770,836| |Current liabilities||(74,067)|-||(74,067)| |||**197,345**|**499,424**||**696,769**| ||**Equipment**||**Land and**||**buildings**| ||**2021**|**2020**|**2021**||**2020**| ||**£**|**£**||**£**|**£**| |Operating lease which expire:|||||| |Less than 1 year|3,239|539|13,204||38,975| |Within 2-5 years|12,955|
-||-|-| ||**16,194**|
**539**|**13,204**||**38,975**| **55** **54** ## Thank You **We would like to take this opportunity to thank our funders, from individual donors to large statutory and trust funders, with who we would not be able to achieve the work we have reported on this year.** **We greatly appreciate their commitment to our cause and the resources they provide in order for us to reach our goals.** ## **We would like, in particular, to thank:** AbbVie Ltd Brighton and Sussex University Hospitals NHS Foundation Trust Cambridge University Hospitals NHS Foundation Trust Care UK/Practice Plus Group Health and Rehabilitation Services Limited DWP Enigma Consultancy Coaching Ltd Frontier NX Limited Gilead Kings College Hospital Leeds Teaching Hospitals NHS Trust MSD NHS England and NHS Improvement, East Midlands NHS England Health and Justice Materials NHS Health and Justice Midlands NHS Forth Valley Nottingham University Hospitals NHS Trust Oxford University Hospitals NHS Foundation Trust The Pilgrim Trust Royal Surrey NHS Foundation Trust Sheffield Teaching Hospitals NHS Foundation Trust St George’s University Hospitals NHS University College London Hospital University Hospital Southampton NHS Foundation Trust University Hospitals Bristol & Weston NHS Foundation Trust University Hospitals of Leicester NHS Trust **A big thank you also to all our partners who share our ambitions and enable us to bring about change together. As well as all the artists who have so generously donated their artworks to our Art on A Postcard fundraising and awareness raising initiative.** **Design and Production:** LJ Design and Production **Photo credits:** Pg11 Alamy Stock Photo/Phanie, Pg26/27 Science Photo Library/Eduard Muzhevskyi, Pg29 Shutterstock/fizkes (middle), Alamy Stock Photo/Raw8 (bottom), Pg31 Shutterstock/Gurzoglu. All other photos The Hepatitis C Trust. **57** **56**