Down Syndrome Medical Interest Group
Trustees’ Report
For the year ended 31 March 2024
Reference and administrative details
Down Syndrome Medical Interest Group
Registered charity name: Down Syndrome Medical Interest Group Other names used: DSMIG Charity registration number: 1103450 Charity principal address: C/O Downs Syndrome Association The Langdon Down Centre 2A Langdon Park TEDDINGTON Middlesex TW11 9PS
The Trustees: Dr Jill Mary Ellis (Chair) Emma Jane Telford Dr Richard John Harrison Dr Ella Rachamim Dr Hilary Towse Jo Hughes Dr Vicky Karen Ho Dr Patricia Denise McClure OBE Dr Sarah Caroline Morris Dr Mary Jane Small Penny Green Dr Elizabeth Marder Fiona McGrane
Objectives and Activities
The DSMIG strives to advance education in all matters relating to Down Syndrome, its causes, effects, and treatment, by the provision of facilities to share information among interested healthcare professionals and the dissemination of the useful knowledge gained for the benefit of the public in general, and in particular persons with Down Syndrome, their parents and carers.
Work of volunteers
The steering group works entirely on a voluntary basis. Speakers at our conferences do this for reimbursement of expenses only (and guided by an expenses policy).
Down Syndrome Medical Interest Group
Trustees’ Report
For the year ended 31 March 2024
Achievements And Performance
Summary of the DSMIG annual activities
Educational opportunities
An annual winter meeting for healthcare professionals focussing on the health needs of people with Down Syndrome took place on 11[th] November 2023 and was enjoyed by over 90 attendees.
A further health education session was run by the DSMIG in collaboration with BAPA (the British Association of Paediatric Audiologists) and the Royal College of Paediatrics and Child Health (RCPCH) annual conference. This took place in Birmingham on 27th March 2024 and had a theme on hearing loss in Down Syndrome. This session was targeted at a wider paediatric audience and received positive feedback. The DSMIG had responsibility for review of abstracts and speakers for this conference.
Oversight of the Jennifer Dennis Award – this bi-annual award of £250 is awarded for research in Down Syndrome. Research applicants are invited to apply with the 2 top shortlisted candidates invited to present at the Winter meeting, with 1 winner selected by the judging panel. (This was awarded in 2022 and 2024 and not in this financial year).
Membership
The DSMIG has a membership of over 100 health professionals, all with an interest in Down Syndrome, allowing a network to share health information, queries and give advice and research opportunities.
The charity steering group is made up of volunteers, many of whom have a background in health and all who have an interest in Down Syndrome.
Down Syndrome Growth Charts
DSMIG has been designated by the MRC (Medical Research Council) as sub-licensee for the data on which Down Growth Charts are based, specifically for children under 18. In this financial year, work continued to expand the accessibility of this chart with license selling to individual hospital trusts and to collaborate with the RCPCH as part of a wider electronic package of growth charts. This is also a source of income for the DSMIG.
Contribution to the Down Syndrome Act
The Act was given Royal Assent in 2022, and guidance was requested to enable action. DSMIG chair Jill Ellis and other members contributed stakeholder information to inform The Act and
Down Syndrome Medical Interest Group
Trustees’ Report
For the year ended 31 March 2024
spoke at the Houses of Parliament on the need for collaboration in providing care for people with Down Syndrome
Provision of Health Information
DSMIG provides medical advice and guidance by doctors with special interest in Down Syndrome to parents and families in close collaboration with the DSA (Down Syndrome Association).
DSMIG website
The DSMIG website provides a wealth of health information. Sections include: topic guidance, recent research, information on DSMIG professional meetings and the Jennifer Dennis award. There is a member’s area which hosts an archive of previous DSMIG talks.
DSMIG guidelines on health in Down Syndrome
The DSMIG oversees guidelines on the most up to date guidance in relation to the health of people with Down Syndrome. In the 23-24 financial year updates included: review of cardiac guidance (in anticipation of the international guidance led by Down Syndrome International), vision and cervical spine management.
There is a close working relationship with the DSA and DSS (Down Syndrome Scotland).
The trustees have had regard to the guidance issued by the Charity Commission on public benefit.
Financial Review
For the year ended 31 March 2024, total income amounted to £29,663 (2023: £12,328). The main sources of income were from membership, meeting income, Growth Chart revenue and additional secretarial costs paid by the DSA.
Total outgoing costs for the year amounted to £13,719 (2023: £2,421). The largest outgoing costs were the cost of hosting the winter meeting. This facility is no longer available to hire for our event. The cost of hosting will go up in 2024/25 significantly as the previous venue is no longer available and so will be held at the Royal Society of Medicine. The cost of attending for delegates will remain the same.
The charity showed a net surplus of £15,944 for the year (2023: £9,907). As at 31 March 2024, DSMIG had surplus assets totalling £86,344.
Reserves policy
DSMIG does not currently have a formal reserves policy. A sub-committee will meet in early 2024 and plan to formalise a reserves policy. Currently the reserves are sufficient to cover costs for the foreseeable future.
Down Syndrome Medical Interest Group Trustees. Report For the year ended 31 March 2024 The DSMIG flnancial subcommittee will meet in 2024 to consider the current level of reseryes and the next steps for supporting the DSMIG'S charitable aims. Structure. Governance and Management DSMIG has a constitution document adopted in October 2002. DSMIG are a small interest community interest charlty, of which the Trustees are the majority members of the DSMIG Steering group (executive committee), who have agreed in additlon to be Trustees. Steering group members are elected as per the constitution at the DSMIG AGM. DSMIG has a close working latIonShIp with both the DSA and DSS. Members of DSA and DSS sit a5 co-opted members on the DSMIG steering group to advocate for the voice of persons and families with Down Syndrome and have also contributed to professional events. The DSA provides administrative support as detailed above. DSMIG is a member of the Down Syndrome International. The DSA grant an annual payment to DSMIG under a Service Level Agreement to support meeting5. The grant is in addition to the DSA providing additional funds for approximately 12 hours of administrative support. This support covers day to day enquires and management of the health informatlon service and admlnistration within DSMIG. The trustees, annual report was approved on .... of trustees by: . and signed on behalf of the board Dr Jill Mary Ellis (Chair)
| Section A Receipts and payments Unrestricted funds Restricted funds Endowment funds Total funds Last year to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts No (if any) Charity Name Receipts and payments accounts Period start date Period end date To For the period from CC16a 1103450 Downs Syndrome Medical Interest Group 01-Apr-23 31-Mar-24 a ee eee- |
Section A Receipts and payments Unrestricted funds Restricted funds Endowment funds Total funds Last year to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts No (if any) Charity Name Receipts and payments accounts Period start date Period end date To For the period from CC16a 1103450 Downs Syndrome Medical Interest Group 01-Apr-23 31-Mar-24 a ee eee- |
Section A Receipts and payments Unrestricted funds Restricted funds Endowment funds Total funds Last year to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts No (if any) Charity Name Receipts and payments accounts Period start date Period end date To For the period from CC16a 1103450 Downs Syndrome Medical Interest Group 01-Apr-23 31-Mar-24 a ee eee- |
Section A Receipts and payments Unrestricted funds Restricted funds Endowment funds Total funds Last year to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts No (if any) Charity Name Receipts and payments accounts Period start date Period end date To For the period from CC16a 1103450 Downs Syndrome Medical Interest Group 01-Apr-23 31-Mar-24 a ee eee- |
Section A Receipts and payments Unrestricted funds Restricted funds Endowment funds Total funds Last year to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts No (if any) Charity Name Receipts and payments accounts Period start date Period end date To For the period from CC16a 1103450 Downs Syndrome Medical Interest Group 01-Apr-23 31-Mar-24 a ee eee- |
Section A Receipts and payments Unrestricted funds Restricted funds Endowment funds Total funds Last year to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts No (if any) Charity Name Receipts and payments accounts Period start date Period end date To For the period from CC16a 1103450 Downs Syndrome Medical Interest Group 01-Apr-23 31-Mar-24 a ee eee- |
Section A Receipts and payments Unrestricted funds Restricted funds Endowment funds Total funds Last year to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts No (if any) Charity Name Receipts and payments accounts Period start date Period end date To For the period from CC16a 1103450 Downs Syndrome Medical Interest Group 01-Apr-23 31-Mar-24 a ee eee- |
Section A Receipts and payments Unrestricted funds Restricted funds Endowment funds Total funds Last year to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts No (if any) Charity Name Receipts and payments accounts Period start date Period end date To For the period from CC16a 1103450 Downs Syndrome Medical Interest Group 01-Apr-23 31-Mar-24 a ee eee- |
Section A Receipts and payments Unrestricted funds Restricted funds Endowment funds Total funds Last year to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts No (if any) Charity Name Receipts and payments accounts Period start date Period end date To For the period from CC16a 1103450 Downs Syndrome Medical Interest Group 01-Apr-23 31-Mar-24 a ee eee- |
Section A Receipts and payments Unrestricted funds Restricted funds Endowment funds Total funds Last year to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £ A1 Receipts No (if any) Charity Name Receipts and payments accounts Period start date Period end date To For the period from CC16a 1103450 Downs Syndrome Medical Interest Group 01-Apr-23 31-Mar-24 a ee eee- |
|---|---|---|---|---|---|---|---|---|---|
| Donations & grants 3,360 |
- | - | - | 3,360 | 2,910 | ||||
| Fundraising events 24,636 |
- | - | - | - | 24,636 | 8,983 | |||
| Investment income 1,667 |
- | - | - | - | 1,667 | 435 | |||
| - | - | - | - | - | - | - | |||
| - | - | - | - | - | - | - | |||
| - | - | - | - | - | - | - | |||
| - | - | - | - | - | - | - | |||
| - | - | - | - | - | - | - | |||
| Sub total(Gross income for AR)29,663 |
- | - | - | - | 29,663 | 12,328 | |||
| A2 Asset and investment sales, (see table). - - - - - - - - - Sub total - - - - - Total receipts 29,663 - - 29,663 12,328 A3 Payments Cost of raising funds 11,608 - 11,608 255 ————~~——~~ |
|||||||||
| Expenditure on charitable activities 2,111 |
- | - | - | - | 2,111 | 2,166 | |||
| - | - | - | - | - | - | - | |||
| - | - | - | - | - | - | - | |||
| - | - | - | - | - | - | - | |||
| - | - | - | - | - | - | - | |||
| - | - | - | - | - | - | - | |||
| - | - | - | - | - | - | - | |||
| - | - | - | - | - | - | - | |||
| Sub total 13,719 | - | - | - | - | 13,719 | 2,421 | |||
| A4 Asset and investment purchases, (see table) - - - - - - - - Sub total - - - - - Total payments 13,719 - - 13,719 2,421 Net of receipts/(payments) 15,944 - - 15,944 9,907 A5 Transfers between funds - - - - - A6 Cash funds last year end 70,400 - 70,400 60,493 Cash funds this year end 86,344 - - 86,344 70,400 ————~~——~~ —S=—S=S==>= |
Section B Statement of assets and liabilities at the end of the period
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|---|---|---|---|---|
|Unrestricted|Restricted|Endowment|
|Categories|Details|funds|funds|funds|
|to nearest £|to nearest £|to nearest £|
|B1 Cash funds|CAF|86,344|-|
|-|-|-|
|-|-|-|
|Total cash funds|86,344|-|-|
|——_——|
|(agree balances with receipts and payments|
|account(s))|OK|OK|OK|
|Unrestricted|Restricted|Endowment|
|funds|funds|funds|
|Details|to nearest £|to nearest £|to nearest £|
|B2 Other monetary assets|-|-|-|
|-|-|-|
|-|-|-|
|-|-|-|
|-|-|-|
|-|-|-|
|=—===|
|Fund to which|Current value|
|Details|asset belongs|Cost (optional)|(optional)|
|B3 Investment assets|-|-|
|-|-|
|-|-|
|-|-|
|-|-|
|=—===|
|Fund to which|Current value|
|Details|asset belongs|Cost (optional)|(optional)|
|B4 Assets retained for the|-|-|
|charity’s own use|-|-|
|-|-|
|-|-|
|-|-|
|-|-|
|-|-|
|-|-|
|-|-|
|=—===|
|Fund to which|Amount due|When due|
|Details|liability relates|(optional)|(optional)|
|B5 Liabilities|-|
|-|
|-|
|-|
|-|
|=—===|
|Signed by one or two trustees on|Date of|
|behalf of all the trustees|Signature|Print Name|approval|
|Dr Jill Mary Ellis 30.01.2025|
|=|
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Independent examiner's report on the accounts
Section A Independent Examiner’s Report
Report to the trustees/ Charity Name members of Downs Syndrome Medical Interest Group
On accounts for the year 31 March 2024 Charity no 1103450 ended (if any) Set out on pages (remember to include the page numbers of additional sheets)
I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended 31/03/2024.
Responsibilities and As the charity trustees of the Trust, you are responsible for the preparation basis of report of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).
I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner's statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination which gives me cause to believe that in, any material respect:
-
accounting records were not kept in accordance with section 130 of the Act or
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the accounts do not accord with the accounting records
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in order to enable a proper understanding of the accounts to be reached.
Signed: Date: Name: S Yeshin ~~OT~~ Relevant professional ICAEW (1349326) qualification(s) or body (if any):
Address: 24 Mandrell Road London SW2 5DL
IER
Section B Disclosure
Only complete if the examiner needs to highlight matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).
Give here brief details of N/A any items that the examiner wishes to disclose .
IER