| Page | |||
|---|---|---|---|
| Administrative | and statutory | details | |
| Message from the National | Director | 2-4 | |
| Report ofthe | Trustees | 5 - 10 | |
| Independent | Examiners' report |
||
| Accounts comprising: | |||
| Statement of | financial activities | 12 | |
| Statement of | financial position | ||
| Statement of | cashflows | ||
| Notes to the accounts | 15-25 |
| ADMINISTRATIVE AND STATUTORY DETAILS |
ADMINISTRATIVE AND STATUTORY DETAILS |
|||
|---|---|---|---|---|
| Board of | Trustees | Mark Silverman | ||
| Gary Fegan | ||||
| Roger Cockerton (Treasurer) | ||||
| Dr Tina Flatau | ||||
| Robert Laid | ||||
| Simon Dadd | ||||
| Victoria Penrice | ||||
| Ellen Lambrix | ||||
| National Director | Florence Boulton | |||
| Scientific | Advisory Board | Dame Professor K | Davies —Chair | |
| Professor M Wood | —Vice Chair | |||
| Registered | office | CAN Mezzanine | ||
| 49-51 East Road | ||||
| Hoxton | ||||
| London | ||||
| Nl 6AH | ||||
| Independent | Examiners | Simpson Wreford LLP | ||
| Wellesley House | ||||
| Duke ofWellington | Avenue | |||
| Royal Arsenal | ||||
| London | ||||
| SE186SS | ||||
| Company | number | 04899036 | ||
| Charity number | 1101971 | |||
| SC043S52(Scotland) | ||||
| Solicitors | Morgan Cole | |||
| Bradley Court | ||||
| Park Place | ||||
| Cardiff | ||||
| CF103DR | ||||
| Banks | Barclays Bank | |||
| PO Box3 | ||||
| 77North Street, | ||||
| Keighley | ||||
| BD213SA | ||||
| The Co-operative Bank Pic | ||||
| PO Box250 | ||||
| Skelmersdale | ||||
| N3 6WT |
| 12mths to | 17mths to | |||||||
|---|---|---|---|---|---|---|---|---|
| 31March | 31March | |||||||
| 2021 | 2021 | 2021 | 2020 | |||||
| Unresticted | Restricted | Total | Total | |||||
| Notes | funds | funds | funds | funds | ||||
| Income and endowments | from: | 4 | ||||||
| Donations and legacies |
217,844 | 5,000 | 222,844 | 391,158 | ||||
| Charitable activities |
125,560 | 125,560 | 14,285 | |||||
| Other trading activities | 128,874 | 128,874 | 352,763 | |||||
| Investments | 32 | 32 | 228 | |||||
| Other - Government grants |
17 | 028 | 17028 | |||||
| Total income | 3~63 | 778 | ~130560 | ~494338 | ~758434 | |||
| Expeaditure on: |
16 | |||||||
| Raising funds: | ||||||||
| Cost ofevents and general | fundraising | 41,723 | 41,723 | 96,531 | ||||
| Charitable activities: | ||||||||
| Campaigning and education |
16,041 | 16,041 | 24,997 | |||||
| Scientific and clincial research | ||||||||
| and grants payable | 158,255 | 141,148 | 299,403 | 643,779 | ||||
| Improved management |
and | |||||||
| medical care | 10 | 694 | 10694 | 16665 | ||||
| Total expenditure | ~226 | 713 | ~141148 | ~367861 | 7~81972 | |||
| Net income/(expenditure) | 137,065 | (10,588) | 126,477 | (23,538) | ||||
| Transfers between funds | ~10 | 10419 | ||||||
| Net movement in funds |
~126 | 646 | ~169 | ~126477 | ~23538 | |||
| Reconciliation offunds | ||||||||
| Balance at I April 2020 | 91 | 600 | 21428 | 113028 | 136566 | |||
| Balance at 31March 2021 |
| Notes | Notes | 2021 | 2020 | |||
|---|---|---|---|---|---|---|
| Fixed assets | ||||||
| Tangible assets | 1,920 | 1,135 | ||||
| Investments | 2 | 2 | ||||
| 1,922 | 1,137 | |||||
| Current assets | ||||||
| Debtors | 51,093 | 43,867 | ||||
| Cash at bank | and in hand | 396747 | 98374 | |||
| 447,840 | 142,241 | |||||
| Current liabilities | ||||||
| Creditors due within one year |
166090 | 30350 | ||||
| Net current | assets | 281 750 | 111891 | |||
| Total assets | less current liabilities | 283,672 | 113,028 | |||
| Creditors due more than one year | 9 | 44 167 | ||||
| Net assets | 15 | 11 | 28 | |||
| Represented | by: | |||||
| Restricted funds | 13 | 21,359 | 21,428 | |||
| Unrestricted | funds | 14 | 218146 | 91600 |
| 12mths to | 17mths to | |||||
|---|---|---|---|---|---|---|
| 31March | 31March | |||||
| 2021 | 2020 | |||||
| Notes | Total | Total | ||||
| (12) | (17) | |||||
| Csshflows from operating | activities: | |||||
| Net cash (used in)/provided by operating activities |
19 | 299765 | ~87 110 | |||
| Cashflows from investing | activities: | |||||
| Dividends, interest and rents from investments |
33 | 228 | ||||
| Purchase ofequipment | (1,425) | |||||
| Purchase ofinvestments | ||||||
| Net cash provided by/(used |
in) investing activites |
I 392 | 228 | |||
| Change in cash and cash equivalents in the reporting |
period | 298,373 | (86,882) | |||
| Cash and cash equivalents | as at 1 April 2020 | 20 | 98374 | 185256 | ||
| Cash and cash equivalents | as at 31March | 2021 | 20 |
| Costs to the company were as follows: |
||
|---|---|---|
| 2021 | 2020 | |
| (12mths) | (17mths) | |
| Gross wages: | ||
| - projects | 169,635 | 62,333 |
| - non-projects | 20,498 | 210,045 |
| Staffpension | 4,123 | 5,687 |
| Employer's NI contributions |
14315 | 23 061 |
| 2021 | 2020 | ||
|---|---|---|---|
| Number | Number | ||
| (12mths) | (17mths) | ||
| Management -FTE |
0.6 | ||
| Research - FTE | 0.6 | ||
| Support - FTE | 2.3 | ||
| Fundraising -FTE |
1.8 | ||
| Advocacy/Campaigns | -FTE | 0.7 |
| Net incomia | g resources | is st | ated after c | harging | ||
|---|---|---|---|---|---|---|
| 2021 | 2020 | |||||
| (12mths) | (17mths) | |||||
| Independent | examination | snd | accountancy | fees | 7,620 | 8,697 |
| Depreciation | 640 | 378 |
| Unresticted | Restricted | 2021 | 2020 | ||||
|---|---|---|---|---|---|---|---|
| fuads | funds | Total | Total | ||||
| E | K | E | |||||
| (12mtbs) | (17mths) | ||||||
| Donations and | legacies | ||||||
| -Grants ofageneral | nature | 13,551 | 5,000 | 18,551 | |||
| -Membership subscriptions |
41,711 | 41,711 | 36,614 | ||||
| -Fundraising income |
104,688 | 104,688 | 341,830 | ||||
| -Gifi Aid | 7,894 | 7,894 | 3,736 | ||||
| -Other | 50,000 | 50,000 | 8,978 | ||||
| Charitable activities |
|||||||
| -Perfonnance related |
grants | 125,560 | 125,560 | 14,285 | |||
| -Other | |||||||
| Other trading activities | |||||||
| -Funraising events |
4,375 | 4,375 | |||||
| -Non-charitable | trading activities | 123,066 | 123,066 | 352,763 | |||
| -Shop income | 1,433 | 1,433 | |||||
| Investments | 32 | 32 | 228 | ||||
| Other —Government | grants | 17028 | 17028 | ||||
| ~7 | ~44 8 |
||||||
| 5. | Tangible assets | ||||||
| Computer | Fixtures | Office | |||||
| Equipment | dr fittings | equipment | Total | ||||
| E | |||||||
| Cost | |||||||
| At 1 April 2020 | 25,147 | 1,098 | 6,839 | 33,084 | |||
| Additions | 1 425 | 1 425 | |||||
| 31March 2021 | 25 147 | 1098 | 8264 | 34509 | |||
| Depreciation | |||||||
| At 1 April 2020 | 24,161 | 1,083 | 6,705 | 31,949 | |||
| Charge for the year | 246 | 4 | 390 | 640 | |||
| At 31March 2021 | 24 407 | 1087 | 7095 | 32589 | |||
| Net book value At 31March 2021 |
~120 | ||||||
| At 31March 2020 | ~4 | ~5 |
| Investments | ||||
|---|---|---|---|---|
| 2021 | 2020 | |||
| Programme | related investments | |||
| Converlible | loan note in Halo Therapeutics | LLC | 225,000 | 225,000 |
| Less:treated | as grant paid 2012 | (224999) | (~224 999 |
| Debtors | ||
|---|---|---|
| 2021 | 2020 | |
| K | ||
| Trade debtors | 42,858 | 7,500 |
| Other debtors | 4,441 | 9,976 |
| Prepayments | 3 794 | 26391 |
| 4~3 |
| Creditors: amounts falling due within one year |
||
|---|---|---|
| 2021 | 2020 | |
| Trade creditors | 21,426 | 7,311 |
| Accruals and deferred income | 137,426 | 20,655 |
| Tax snd social security | 47 | |
| Bank loan | 5,833 | |
| Other creditors | I 405 | 2337 |
| Newcastle | Lottery | Science | ||||
|---|---|---|---|---|---|---|
| CRF | Fund | on Tour | Demelza | Total | ||
| At 1April 2020 | 21,428 | 21,428 | ||||
| Donations / legacies / grants |
50,000 | 75,560 | 5,000 | 130,560 | ||
| Grants payable and research | costs | (50,169) | (75,560) | (9,999) | (5,420) | (141,148) |
| Transfers &om unrestricted | funds | 9999 | 420 | 10.419 | ||
| As at 31March 2021 | 212 |
| .Unrestricted funds |
|
|---|---|
| General | |
| fund | |
| At 1 April 2020 | 91,600 |
| Income | 363,778 |
| Expenditure | (226,713) |
| Transfer | ~10419 |
| At31March2021 | 21 246 |
| Fixed | Current | Current | Long-term | |||
|---|---|---|---|---|---|---|
| assets | assets | liabilities | liabiTities | Total | ||
| E | E | |||||
| Restricted funds | 21,259 | 21,259 | ||||
| Unrestricted | funds | 1922 | 426581 | ~l66 090 | ~44167 | 21R246 |
| .Analysis ofresources | expended | ||
|---|---|---|---|
| 2021 | 2020 | ||
| E | |||
| (12mths) | (17mths) | ||
| Support costs: | |||
| Bank charges and interest | 1,216 | 1,317 | |
| Insurance | 1,612 | (710) | |
| Wages and salaries | 208,571 | 301,126 | |
| Printing, postage and |
stationery | 7,380 | 6,184 |
| Training, recruitment | and other staff costs | 3,371 | 16,497 |
| Rent and rates | 6,026 | 38,238 | |
| Computer costs | 10,403 | 28,303 | |
| Storage | 2,201 | 1,252 | |
| Telephone and internet |
costs | 2,292 | 4,280 |
| Depreciation | 640 | 378 | |
| Trustees' meetings |
7,541 | ||
| Governance costs | 15,650 | 11,467 | |
| Professional fees |
6,188 | ||
| Miscellaneous expenditure |
1 800 | 740 |
| Support and | Direct | ||||
|---|---|---|---|---|---|
| governance | costs | Total | |||
| Scientific | and clinical | research and | |||
| grants payable 80% | 213,880 | 85,523 | 299,403 | ||
| Pundraising | 10% | 26,735 | 14,988 | 41,723 | |
| Campaigning and education 6% |
16,041 | 16,041 | |||
| Improved | management | and medical care 4% | 10694 | 10694 | |
| 2673 |
| 2021 | 2020 | ||||
|---|---|---|---|---|---|
| E | |||||
| (12mths) | (17mths) | ||||
| Grant | —The University ofNewcastle | 50,000 | 50,000 | ||
| Grant | —CSO | 9,063 | |||
| Grant | —UPPMD | membership | 1,810 | ||
| Grant | —University | Hospitals Bristol NHS Foundation | 12,260 | ||
| Grant | —Queen Mary University | London | 25,320 | ||
| Grant | —University | College London | 11,285 | ||
| Grant | —World Duchenne Organisation |
912 | |||
| Grant | —MD UK | 25 000 |
| The following payments in res |
pe | ct ofresearch | projects have | been committed to | but not prov | ided for in t |
|---|---|---|---|---|---|---|
| accounts: | ||||||
| 2021 | 2020 | |||||
| (12mths) | (17mths) | |||||
| Grant to The Univerisity ofNewcastle | 50,000 | |||||
| Grant to Queen Mary University | London | 25 320 | ||||
| 75 320 | ||||||
| 19.ReconciTiation ofnet income | / | (expenditure) | to net cashflow from operating | activities | ||
| 2021 | 2020 | |||||
| Total | Total | |||||
| E | K | |||||
| (12mths) | (17mths) | |||||
| Net surplus/(deficit) for the reportiag period |
36,476 | (23,538) | ||||
| Adjustments for: |
||||||
| Depreciation charges |
640 | 378 | ||||
| Dividends, interest and rents from investments |
(33) | (228) | ||||
| (Increase) / decrease in debtors | (7,226) | 40,606 | ||||
| Increase / (decrease) in creditors | 169908 | ~104328 | ||||
| Net cash provided by (used in) |
operating activites | 2 | 765 |
| 2021 | 2020 | |||
|---|---|---|---|---|
| (12mths) | (17mths) | |||
| Cash in hand | 396747 | 98374 | ||
| Total cash and cash equivalents | ~37 | |||
| 21.Commitments under operating |
leases | |||
| The Charity had annual commitments | under non-cancellable | leases as set out below: | ||
| 2021 | 2020 | |||
| E | ||||
| (12mths) | (17mths) | |||
| Operating leases which expire: within |
two to five years | 909 | ||
| 22.Loans and overdrafts | ||||
| 2021 | 2020 | |||
| (12mths) | (17mths) | |||
| Bank loans | 50000 | |||
| Payable within one year | 5,833 | |||
| Payable after one year |