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2021-03-31-accounts

Page
Administrative and statutory details
Message from the National Director 2-4
Report ofthe Trustees 5 - 10
Independent Examiners'
report
Accounts comprising:
Statement of financial activities 12
Statement of financial position
Statement of cashflows
Notes to the accounts 15-25

ADMINISTRATIVE
AND STATUTORY DETAILS
ADMINISTRATIVE
AND STATUTORY DETAILS
Board of Trustees Mark Silverman
Gary Fegan
Roger Cockerton (Treasurer)
Dr Tina Flatau
Robert Laid
Simon Dadd
Victoria Penrice
Ellen Lambrix
National Director Florence Boulton
Scientific Advisory Board Dame Professor K Davies —Chair
Professor M Wood —Vice Chair
Registered office CAN Mezzanine
49-51 East Road
Hoxton
London
Nl 6AH
Independent Examiners Simpson Wreford LLP
Wellesley House
Duke ofWellington Avenue
Royal Arsenal
London
SE186SS
Company number 04899036
Charity number 1101971
SC043S52(Scotland)
Solicitors Morgan Cole
Bradley Court
Park Place
Cardiff
CF103DR
Banks Barclays Bank
PO Box3
77North Street,
Keighley
BD213SA
The Co-operative Bank Pic
PO Box250
Skelmersdale
N3 6WT

12mths to 17mths to
31March 31March
2021 2021 2021 2020
Unresticted Restricted Total Total
Notes funds funds funds funds
Income and endowments from: 4
Donations
and legacies
217,844 5,000 222,844 391,158
Charitable
activities
125,560 125,560 14,285
Other trading activities 128,874 128,874 352,763
Investments 32 32 228
Other - Government
grants
17 028 17028
Total income 3~63 778 ~130560 ~494338 ~758434
Expeaditure
on:
16
Raising funds:
Cost ofevents and general fundraising 41,723 41,723 96,531
Charitable activities:
Campaigning
and education
16,041 16,041 24,997
Scientific and clincial research
and grants payable 158,255 141,148 299,403 643,779
Improved
management
and
medical care 10 694 10694 16665
Total expenditure ~226 713 ~141148 ~367861 7~81972
Net income/(expenditure) 137,065 (10,588) 126,477 (23,538)
Transfers between funds ~10 10419
Net movement
in funds
~126 646 ~169 ~126477 ~23538
Reconciliation offunds
Balance at I April 2020 91 600 21428 113028 136566
Balance at 31March 2021

Notes Notes 2021 2020
Fixed assets
Tangible assets 1,920 1,135
Investments 2 2
1,922 1,137
Current assets
Debtors 51,093 43,867
Cash at bank and in hand 396747 98374
447,840 142,241
Current liabilities
Creditors
due within one year
166090 30350
Net current assets 281 750 111891
Total assets less current liabilities 283,672 113,028
Creditors due more than one year 9 44 167
Net assets 15 11 28
Represented by:
Restricted funds 13 21,359 21,428
Unrestricted funds 14 218146 91600

12mths to 17mths to
31March 31March
2021 2020
Notes Total Total
(12) (17)
Csshflows from operating activities:
Net cash (used in)/provided
by operating
activities
19 299765 ~87 110
Cashflows from investing activities:
Dividends,
interest and rents from investments
33 228
Purchase ofequipment (1,425)
Purchase ofinvestments
Net cash provided
by/(used
in) investing
activites
I 392 228
Change in cash and cash equivalents
in the reporting
period 298,373 (86,882)
Cash and cash equivalents as at 1 April 2020 20 98374 185256
Cash and cash equivalents as at 31March 2021 20

Costs to the company
were as follows:
2021 2020
(12mths) (17mths)
Gross wages:
- projects 169,635 62,333
- non-projects 20,498 210,045
Staffpension 4,123 5,687
Employer's
NI contributions
14315 23 061
2021 2020
Number Number
(12mths) (17mths)
Management
-FTE
0.6
Research - FTE 0.6
Support - FTE 2.3
Fundraising
-FTE
1.8
Advocacy/Campaigns -FTE 0.7

Net incomia g resources is st ated after c harging
2021 2020
(12mths) (17mths)
Independent examination snd accountancy fees 7,620 8,697
Depreciation 640 378

Unresticted Restricted 2021 2020
fuads funds Total Total
E K E
(12mtbs) (17mths)
Donations and legacies
-Grants ofageneral nature 13,551 5,000 18,551
-Membership
subscriptions
41,711 41,711 36,614
-Fundraising
income
104,688 104,688 341,830
-Gifi Aid 7,894 7,894 3,736
-Other 50,000 50,000 8,978
Charitable
activities
-Perfonnance
related
grants 125,560 125,560 14,285
-Other
Other trading activities
-Funraising
events
4,375 4,375
-Non-charitable trading activities 123,066 123,066 352,763
-Shop income 1,433 1,433
Investments 32 32 228
Other —Government grants 17028 17028
~7 ~44
8
5. Tangible assets
Computer Fixtures Office
Equipment dr fittings equipment Total
E
Cost
At 1 April 2020 25,147 1,098 6,839 33,084
Additions 1 425 1 425
31March 2021 25 147 1098 8264 34509
Depreciation
At 1 April 2020 24,161 1,083 6,705 31,949
Charge for the year 246 4 390 640
At 31March 2021 24 407 1087 7095 32589
Net book value
At 31March 2021
~120
At 31March 2020 ~4 ~5

Investments
2021 2020
Programme related investments
Converlible loan note in Halo Therapeutics LLC 225,000 225,000
Less:treated as grant paid 2012 (224999) (~224 999

Debtors
2021 2020
K
Trade debtors 42,858 7,500
Other debtors 4,441 9,976
Prepayments 3 794 26391
4~3

Creditors: amounts
falling due within one year
2021 2020
Trade creditors 21,426 7,311
Accruals and deferred income 137,426 20,655
Tax snd social security 47
Bank loan 5,833
Other creditors I 405 2337

Newcastle Lottery Science
CRF Fund on Tour Demelza Total
At 1April 2020 21,428 21,428
Donations
/ legacies / grants
50,000 75,560 5,000 130,560
Grants payable and research costs (50,169) (75,560) (9,999) (5,420) (141,148)
Transfers &om unrestricted funds 9999 420 10.419
As at 31March 2021 212

.Unrestricted
funds
General
fund
At 1 April 2020 91,600
Income 363,778
Expenditure (226,713)
Transfer ~10419
At31March2021 21
246

Fixed Current Current Long-term
assets assets liabilities liabiTities Total
E E
Restricted funds 21,259 21,259
Unrestricted funds 1922 426581 ~l66 090 ~44167 21R246

.Analysis ofresources expended
2021 2020
E
(12mths) (17mths)
Support costs:
Bank charges and interest 1,216 1,317
Insurance 1,612 (710)
Wages and salaries 208,571 301,126
Printing,
postage and
stationery 7,380 6,184
Training, recruitment and other staff costs 3,371 16,497
Rent and rates 6,026 38,238
Computer costs 10,403 28,303
Storage 2,201 1,252
Telephone
and internet
costs 2,292 4,280
Depreciation 640 378
Trustees'
meetings
7,541
Governance costs 15,650 11,467
Professional
fees
6,188
Miscellaneous
expenditure
1 800 740
Support and Direct
governance costs Total
Scientific and clinical research and
grants payable 80% 213,880 85,523 299,403
Pundraising 10% 26,735 14,988 41,723
Campaigning
and education 6%
16,041 16,041
Improved management and medical care 4% 10694 10694
2673

2021 2020
E
(12mths) (17mths)
Grant —The University ofNewcastle 50,000 50,000
Grant —CSO 9,063
Grant —UPPMD membership 1,810
Grant —University Hospitals Bristol NHS Foundation 12,260
Grant —Queen Mary University London 25,320
Grant —University College London 11,285
Grant —World Duchenne
Organisation
912
Grant —MD UK 25 000
The following
payments
in res
pe ct ofresearch projects have been committed to but not prov ided for in t
accounts:
2021 2020
(12mths) (17mths)
Grant to The Univerisity ofNewcastle 50,000
Grant to Queen Mary University London 25 320
75 320
19.ReconciTiation ofnet income / (expenditure) to net cashflow from operating activities
2021 2020
Total Total
E K
(12mths) (17mths)
Net surplus/(deficit)
for the reportiag period
36,476 (23,538)
Adjustments
for:
Depreciation
charges
640 378
Dividends,
interest and rents from investments
(33) (228)
(Increase) / decrease in debtors (7,226) 40,606
Increase / (decrease) in creditors 169908 ~104328
Net cash provided
by (used in)
operating activites 2 765

2021 2020
(12mths) (17mths)
Cash in hand 396747 98374
Total cash and cash equivalents ~37
21.Commitments
under operating
leases
The Charity had annual commitments under non-cancellable leases as set out below:
2021 2020
E
(12mths) (17mths)
Operating
leases which expire: within
two to five years 909
22.Loans and overdrafts
2021 2020
(12mths) (17mths)
Bank loans 50000
Payable within one year 5,833
Payable after one year