# ACTION DUCHENNE LIMITED

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1101971
- **Other names:** PARENT PROJECT UK LIMITED
- **Status:** Registered
- **Legal form:** Charitable company
- **Company number:** [04899036](https://find-and-update.company-information.service.gov.uk/company/04899036)
- **Registered:** Feb. 9, 2004
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1101971


## Contact

- **Address:** Godfrey Wilson Ltd, 5th Floor, Mariner House, 62 Prince Street, BRISTOL
- **Postcode:** BS1 4QD
- **Phone:** 07535 498506
- **Email:** info@actionduchenne.org
- **Website:** www.actionduchenne.org



## Activities

**Objects:** THE RELIEF OF PERSONS WITH DUCHENNES AND BECKER MUSCULAR DYSTROPHY THROUGH SUCH MEANS AS ARE CHARITABLE BY LAW.

**Activities:** Action Duchenne campaigns and supports research for a cure for Duchenne and Becker Muscular Dystrophy. Duchenne is a severe and progressive muscle wasting disease that leaves young people paralysed and facing early death by late teens. The Charity has launched a Registry for Duchenne patients to help to progress Clinical trials.




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities, The General Public/mankind



## Geography

- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| Anna Mabile |  | June 25, 2024 |
| Dr Victoria Pleydell |  | June 25, 2024 |
| Emma Rose Simmonds |  | Feb. 8, 2024 |
| Greg Hill |  | June 25, 2024 |
| Marion Main |  | Feb. 14, 2025 |




