# ACTION DUCHENNE LIMITED

## Details

- **Country:** England & Wales
- **Charity number:** 1101971
- **Other names:** PARENT PROJECT UK LIMITED
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Feb. 9, 2004
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1101971


## Contact

- **Address:** Godfrey Wilson Ltd, 5th Floor, Mariner House, 62 Prince Street, BRISTOL
- **Postcode:** BS1 4QD
- **Phone:** 07535 498 506
- **Email:** info@actionduchenne.org
- **Website:** www.actionduchenne.org



## Activities

**Objects:** THE RELIEF OF PERSONS WITH DUCHENNES AND BECKER MUSCULAR DYSTROPHY THROUGH SUCH MEANS AS ARE CHARITABLE BY LAW.

**Activities:** Action Duchenne campaigns and supports research for a cure for Duchenne and Becker Muscular Dystrophy. Duchenne is a severe and progressive muscle wasting disease that leaves young people paralysed and facing early death by late teens. The Charity has launched a Registry for Duchenne patients to help to progress Clinical trials.

**Area of benefit:** NOT DEFINED.




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, People With Disabilities, The General Public/mankind



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £590523 | £673765 | £452848 | 12 |
| March 31, 2024 | £612379 | £642358 | £521436 | 10 |
| March 31, 2023 | £711864 | £580845 | £551415 | 9 |
| March 31, 2022 | £562186 | £359863 | £420396 | 8 |
| March 31, 2021 | £494338 | £367861 | — | — |



## Trustees

- Anna Mabile — appointed June 25, 2024
- Dr Victoria Pleydell — appointed June 25, 2024
- Emma Rose Simmonds — appointed Feb. 8, 2024
- Greg Hill — appointed June 25, 2024
- Marion Main — appointed Feb. 14, 2025