{"country": "England & Wales", "charity_number": "1101971", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1101971", "name": "ACTION DUCHENNE LIMITED", "known_as": null, "other_names": [{"name": "PARENT PROJECT UK LIMITED", "name_type": "Previous name"}], "status": "Registered", "date_registered": "2004-02-09", "date_removed": null, "legal_form": "Charitable company", "area_of_benefit": "NOT DEFINED.", "address": "Godfrey Wilson Ltd, 5th Floor, Mariner House, 62 Prince Street, BRISTOL", "postcode": "BS1 4QD", "phone": "07535 498 506", "email": "info@actionduchenne.org", "website": "www.actionduchenne.org", "lat": 51.449896, "lng": -2.597467, "activities": "Action Duchenne campaigns and supports research for a cure for Duchenne and Becker Muscular Dystrophy. Duchenne is a severe and progressive muscle wasting disease that leaves young people paralysed and facing early death by late teens. The Charity has launched a Registry for Duchenne patients to help to progress Clinical trials.", "purposes": null, "what_charity_does": null, "charitable_objects": "THE RELIEF OF PERSONS WITH DUCHENNES AND BECKER MUSCULAR DYSTROPHY THROUGH SUCH MEANS AS ARE CHARITABLE BY LAW.", "classifications": [{"type": "How", "code": 301, "description": "Makes Grants To Individuals"}, {"type": "How", "code": 302, "description": "Makes Grants To Organisations"}, {"type": "How", "code": 306, "description": "Provides Services"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "What", "code": 101, "description": "General Charitable Purposes"}, {"type": "What", "code": 102, "description": "Education/training"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "What", "code": 104, "description": "Disability"}, {"type": "Who", "code": 201, "description": "Children/young People"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}, {"type": "Who", "code": 207, "description": "The General Public/mankind"}], "areas_of_operation": [{"area_type": "Country", "area_description": "Northern Ireland"}, {"area_type": "Country", "area_description": "Scotland"}, {"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 590523, "latest_expenditure": 673765, "fin_period_start": "2024-04-01", "fin_period_end": "2025-03-31", "financial_years": [{"start": "2024-04-01", "end": "2025-03-31", "income": 590523, "expenditure": 673765, "assets": 452848, "funds": 452848, "num_employees": 12, "accounts_url": null}, {"start": "2023-04-01", "end": "2024-03-31", "income": 612379, "expenditure": 642358, "assets": 521436, "funds": 521436, "num_employees": 10, "accounts_url": null}, {"start": "2022-04-01", "end": "2023-03-31", "income": 711864, "expenditure": 580845, "assets": 551415, "funds": 551415, "num_employees": 9, "accounts_url": null}, {"start": "2021-04-01", "end": "2022-03-31", "income": 562186, "expenditure": 359863, "assets": 420396, "funds": 420396, "num_employees": 8, "accounts_url": null}, {"start": "2020-04-01", "end": "2021-03-31", "income": 494338, "expenditure": 367861, "assets": null, "funds": null, "num_employees": null, "accounts_url": null}], "documents": [], "trustees": [{"name": "Anna Mabile", "chair": false, "appointment": "2024-06-25"}, {"name": "Dr Victoria Pleydell", "chair": false, "appointment": "2024-06-25"}, {"name": "Emma Rose Simmonds", "chair": false, "appointment": "2024-02-08"}, {"name": "Greg Hill", "chair": false, "appointment": "2024-06-25"}, {"name": "Marion Main", "chair": false, "appointment": "2025-02-14"}]}