REGIERED COMPA]YY NUMBER: 04883580 {England and Wales) REGISTERED CHARITY NUMBER: 1101935 Report of the Truslees and Unaudiltd Finaneial Ststements For The Year Ended 31 Dttember 2024 The NatK•nal Organtsalion For FASD Fuller Swrling Mill House 58 Guildford Stre Cherts¢y Surre KT16 9BE
The National Organisaiion For FASD Conlents of the FinaDcial Sta¢ements "or'l'he Year Ended JI December 2024 Page Report of the TrystCeS I to 10 Independen¢ Examinerfs Report Statement of FlnatttSal AttiYiti¢s 12 Balance Sheet 13 to 14 Notes to the Finncil StstemeDts 15 to 22 Detsiled St8tement of Finaneial Activities 23
The National Org4lliSXt#)th For FASD
Report of the Trustees
For The Y¢4r Ended 31 Dectmber 2024
The trLL8iees who att also directors of the charity for the purpm of the Cornpanies Ath 2(X)6, their report with
the financial statemenls of the charity for the year ended 31 December 2024. The tnee5 have adopted the provisions of
Accounting and RertIng by Charities: Staiemenl of Rec(xnrnended Practice applicable to charities preparing their
accounts in accordance with the Financi Reting Standard 4ylicable in the UK and ReblIC of Ireland IFRS 102)
(effective l January 2019).
oPEIVEs AND ACTIVITIES
Objeetives and aim$
Whal we do:
The National Organisation for FASD is the UK'S nalional clwity iThlividuals with Fetrl Alcohol Spectrum Disorder
(FASD). a lifelong conditi(M Ca by alcohol harni in FYegnar¢cy. We seek iKth to decrease incidence of FASD and to
reat¢ brighter futures for those who have it. Foun(kd in 2IXI3, The National Organisation for FASD is the county's
IgeSt-standIng organi5atiffl raising awareness of a1coknl-ex5ed pregnancies and sUprtIng wellbeing for people
with FASD and their familie5. In 2024 we c£tinued to devel(y innovative approaches to FASD Prevention and supwjrt
while also highlighting arw where further action is neaJe
The National OryanitIon For FASD Report of the Trn51ees For The Year Ended 31 December 2024 OwEIVEs AND A1VITIEs Significant activities Our Learning Programme ntion isin In the UK 77 % of women drink alcohol and nearly half of PTcgnancies are unplanned. Studie5 have suggested ithveen 41 and 7Y/o of women drink alcolK)l in pregnancy. In comFWi50n 11.50/0 of women smoke and 7.30/0 smoke in pregnancy. Alcohol is a teratogen. means it aff the development of a baby. Prenatal a]cohol exwsure increases the risk of miscarriage. premature bilth and stillbirth and is the cause of FASD (Fetsl Alcohol Spectrum Disorder). FASD is a lifelong complex neurodevelopmenthl disorder. Whilst the biggest effect is on the development and fimction of the brain, FASD is a Whole-l). disor&r and 428 conditions are knowi to ¢fr(cUr. This condition can I life-limiiing and without early recognition, diagnosis and apFKopriate surv>rt theTV LS an inCred risk of associated issues such as mental health problem& homelessnes& drug aDd alc4)hol misuse, employment problems and eonWt with the criminal JU1ce Syem. FASD is more comrnon than autism. yet unlike autism il is preventsble. The guidance from the Chief Medical oificers since 2016 has been thai there is no known re amount of alcohol in pregnarKy and all the major UK heatth EKxlies (NICE. SIGN, DHSC) are in agreemenl with this. Despite akohol being more harniful to a devekwing bthy and alcohol use in wegnancy much more wolific than smokin& the government lIcY is on reducing smoking in pregnancy and l(xal areas are giving financial incentives to support this. As it is not yet in p)IAcy. teaching 21x) the risks ass(xiated with prenalal-alcohol use is noi mandatory. NICE Quality Standard 2(H (2022) says that 811 preart w(ym¢n should given Infonnati ab)ut the risk of prenatal alcohol extK>sure throughout their wegnancy. However. as midwives have not received mandatory training on the risks a5%>ciated with alcohol in pregnancy and FASD. many of the mlxhers of the 605,(MXI babies iKirn each year in the UK will not have received the inforniation rllid supw>rt that n¢£dcd rcsarding pruwtsl alcohol cxposurc. National FASD'S Alcohol and Pregnan Twlkit- th¢ only resource pxkage like li in the UK With the supEx)n of Diagw, we crethl an exFth-reviewed midwives-reviewed Akohol and Pregnancy tc¥)Ikit ts) fill this void. The t(M)Ikil tncludes a range of reurceS to meei QualTty Standard 21H, addtessing issues I¢.. The latesl guidance on alcohol in pregnancy. Ivhy and how to &%k aboul Fyenatal alcohol exwsure. What to do if you're pregnant and have ten drinking alcohol; How to recognise FASD; and Advice for when women are drinking in pregnancy. The i(x)Ikit includes, a free ¢mline CP[XredIled ecourse, imnners. leaflet& a tsbletop discu&sion aide, a wKket guide, banners, buntin& balloons and moff. We have igun to receive bulk orders for some of these materials from Ial areas and fanstIC feedtmck from midwives who have taken our erycoufse. As a naturdl nexl slep. we also have begun a scq)ing PTOieCt see Wh rnight be KSIble and Wh might needed when engaging Health Visitors. There is a need for moff behinthscene5 }lICY WOTk to ensure the needed changes are made. In 2024. we supported national Work on improving digitsl maternity stsndanls around akohol use tn pregnancy. rdised awareness through al media campaign& and gan work to piloi our toolkit in clinical settings. We engaged closety with key w)licy leaders such as those from NHS England the Nursing and Midwifery Council and the Royal College of Midwives to adv(Kate for MandC training on the risks associed with an alcohol pgnan. how to have effective conversations about alcohol and pregnancy and on FASD. We have also been working with these groups about the need for specialist resou f(K maternty teams. We Promoted our me&saging at a major maternity and neonatal event The National Maternity Safety conferee. in SeptemF*r 2024. We have provTded more than 30.0(K) leaflets. pK)ste other materials (some of these via the Greater manches FASD Ne( funher below). (kn Akohol and Pregnanc>' e-COLwse for maternity teams has had 718 1varne. In 2024 we also continued meeting5 with industry - including encouraging m(Ye inforniation about the risks of alcohol and pr¢w¢y at the point of sale - a proje¢t slatsd for pilotin8 Jn 2025. Feedback on our erycourse for maternitv le4ms: "[This course hasl held exwd my knowledge ar{Kd FASD and [1] will able to tske this into prdctice." _ Midwife "I will be advising all midwive5 in my trust to access this c(Ktyse as the infolrnation is current and pyoviths sUNrt Én how to gei the most from women regarding their alcohol use during a IxKJking in a SUPFKYtive and educational way in order to support their health and that of baby's in a kind and non-judwentsl way." _ Midw'ife Page 2
The Nitional Oryanlsation For FASD
Rtw)rt oftht Trnstees
For The Year Ended 31 Derrnr 2024
OWEcfivES AND ACTIVITIES
"I have gained confidence in how to tslk to women antenatslly and tttalty alxiut alcohol. I found the videos very
useful." . Mithyife
t was lots of valuable inf(Thi*ion and me learn knw to appmach the subject of alcohol usage in pregnancy.
somdhing that can %)mrfimes feel uncomfortable io tslk aly)uL". Stu(knl Midwife
"This is a brilliant c
The National Organisation For FASD Report of ibe Trustee5 For Tbt Year Ettded 31 December 2024 OWEcfivES AND ACTIVITIES Providing evidenee to the Health and Social Care Committee In Februari ?024. our Chief Executive was invited to yak before the Heahh and knial Care Committee about preventing harni from akohol exp1 wegnancies and the wevention of further harni from undiagnOs and unsupwjrted FASD. The evidence called for: ' Policy makers to meet with people with FASD and their farnilie5. ' A Government Green Pa&r iMwJ on the DHSC FASD Health Need5 AssessmenL ieadin8 to an FASD Preventi(¥n and Response Act. . Urged the Committee to invile the Secrrtary of State f(f Health kn come discuss next Ste folk)wing the Neojs Assessment and the NICE Qual&ty Stath 204. . An FASD Prevention and Reswn5e Fund * about the level ai least of O.IO/• or OY/o of the alcohol duty. . Industry to act on better lalIn8 about alcdK)l and pregnancy and infomiation ab(Krt the risks at point of sale. Highlighting the reality thai the majority of NHS bodies a¢r(&%s England and Waks are failing to take action on NICE Quality Stsndgrd 204 National FASD coniinuing our emrA)18is i)n pivotal resear¢h. Our in-depth I4page reFK•rL The Time is Now.. The National Perspective on Ramping Up FASD Preventi(. DiagrsiS and Supw)rt Services continues to be used a¢r055 the country to inforni development of servicts following the NICE (lty Swidard. and in 2024 - a year after its release there wer¢ 864 views of the which emphasises best WlICe. tn Wemttr 2024. Natifflal FASD released tts new reim Not commissi(Ad. Systanic C)fuSi{ in NHS Services for alcohoL pregnancy and FASD. The report found that the majority of NHS Integratej Care BdS and NHS Trnsts are missing a golden OPFOrtunity to proteci baby's brains and fuwres with their slow, non-stratcsic and uncoordinated resn5¢S to the 2022 NICE Quality Standard 204 on Fetsl Alcohol Spectrimi DiSder (FASD). NICE QS 204 is in effect in England and Waies and calls for improvements in we 88rdIng di%ussions ab)ut risks of alc(thol in pnCY during antenatal visits and reCOlt10n, diagnosi5 and 5UPFQrt of those with FASD. ' While there are pKkets of Iwe and encowing progre4 more broadly the is $yeIC confusion and a lack of CoordinkOn and CommissicIng across the NHS. ' Nearly 530/0 of Integrnted Care Boanls (ICBS) and 560/0 of NHS Tnws (not including the I I specialist ambulance tnjsts) that replied by the deadline to National FASD'S Freedom of infO10n requests arc not thking aciion med the needs of this vulnerable p)pUlatI with FASD and to prevent alcoholxrwd pregnancies. In Wajes all the health tKwds that re5wnded are tsking w lea51 partial action. ' There are Lmclear lines of responsibility betw¢eD ICB Health Boards TnL8, as well as within Tn8 ttheen dtff¢r¢nt ser¥icc5. The vast majority of English ICBS that replied by the slalulory deIllne are ncrt c(ffnmissioning for diagnosis and management of care for children {7/0), young Ftople (730/•X and adults (87%) and the majority of Welsh Heahh B(wds have not commissioned serviees for diagnosis and managemeni of people for children {67 % l young people (6V/o) and adults {830/0). Resp5¢5 indice the rest of the NICE QS 204 Su8geI0nS for conunissioners are not being followed. ' There is a nearty univ¢rsal failu io ttack irnprovements in services over tTme Sing NICE indicators. ' Training across the workforce as called for by NICE is n(rt happening in many areas. ' Lal pathways are unclear and under ffs(xwced. Many restKXW indicate th* local diagnosis is not available. On 16 September 2024 we held an online briefing alKMrt the rewrt that had 120 pvticipants, many from the NHS. The reFK)rt has led many areas io have a IcK)k at what they are doin& As one tM)licy maker sail "This h&s Ixen a really helpful reframe for me thank you - like you say. we are already doins this WOTK maybe we just n¢d io go ahead and vIT¢i diwiviiJ fvllvw up 5UPPOrt.- The rep)n was shared with the Health and Social Care LoMmit. who were ready to have a briefmg IL bul an electi was callaj and that cL¥tllnittee w&s disbandeiL Promoting wellbeing for people witb FASD via the hands-on, expert-reviewed Me and My FASD Toolkrf Narional FASD wa5 originally fvnded thr{gh a one-off DHSC grani io create, along with partner Se&shell. some cutting-edge resources and training to suptM)n chIldn and young pe(yle with FASD. Some further COVID fitnding and funding from Contacvkn help1 us to create some •lditi(x)al resources in the Me and My FASD Tix)IkiL Page 4
The Nation41 Or¥4DiSAtKbn For FASD Report of tbt Trustees ForThe Year Ended 31 Decemr 2024 oWEIvEs AND A]VITIEs The Me and My FASD website is at the core of this w(ffK PM)sting an interactive My. BraiTh Me ar FASD comic and bookle( coping reSreeS, songs creaied by and for pIe with FASD. pages featuring succews of wple with FASD and more. In 2024 www.fasd.me had more ihan 69.699 view5 from 13.687 Use and 8.746 free do1(d5 of our resijurces. This unique website is used by people atl across the UK and an)und the H'orld. The Me & My FASD Club is the part of the National (k88nisation for FASD that the Living FASD maga7ine. The Living FASD magazine is a unique publicati( that features the successes and diversity of people with FASD. and highlights peer-trFpeer coping strategies for challenges that can arise. In 2024 we prJu¢ed the last issue of Series l of the Living FASD magazine (wtmluced with SUFVXt from ContacVPear5 and subsLTiPtion5) and the start of Series 2 (pr(Kluced as Fwt of our work coordinating the Gater Manche5r FASD NetworL described further below. and thrwgh subscnpu(ms.I The final editi{ of Series l and our 5th magazine in the series wa5 also a celeiKion editi featuring the 57 ppIc with FASD who contributed to the Series I magazines and the 12 Mcmi of OUT advis(Ky committee. This version also f¢Kused on prts. We were able to feature our first two guest authoT5 with FASD. and Eduardo who spxe about how their love of animals has transled inio the in dog walking and eque5trianiyn. The Me and My FASD Eduetitin T(K>lkit The firsi edition of the second series was iswed in September 2024 and fUSed learning. Thi5 included a hard copy of the completrty UTxlated and revised Teaching a SDJdent with FASD, iy)okleL based on extensive research previously th)ne by Dr Carolyn Blackiwn and Prof CarFtnler OBE for the th¢n-FASD¢d prvj¢cL The IxK)kld is available in copy and PDF veT5ions and has rK)w become the centre piece of the schools, ioolkit that is being marf(eted throughout England. The includes inforniation alM)ui FASD. how it presents. the 5trength5 of 5tud¢nts with FASD and prnctical suggestions on how Io SUPFKKt vaTiOUS educational challenges of those wilh FASD, including a section on reasonable adjusthients that can ix requesd wittm) diagnosis or an Educatio Health and Care Plan. Trnining a new genernti(m of prtItiOnerS. edtorS. social w0eT$ to SUPPK*t pwk with FASD NICE Quality Standard 2ts1 and the DHSC FASD Health Needs Assessment (2021) highlight the need for multi-sector training on FASD to ensure that Fyle with FASD are a[elY rwised diagnosal and Supted. We provided 40 training events spread across In-rson training (17) as well as th(K (klivered virtually via Zc4)m or Tearn5 (23). This is dwble the numttt of events that we delivered in 2023 as we were extwimenting with a differenl type of trainins offer. W¢ rwhed just over 1.3¢K) people at the various tr4iDinss. We have been providins trainin8 for educational providers (individual main5CaM and s181 schoots. IndeFndeni special h)Is, mulri academy chains, & virtual schwls for Children in Care) and ChilthEn's social care (social workers. foster CWEfs, adopters, kinship carers and Sidential care settings) Participants vdued the unique blend of lived experience (frTrn w4)le with FASD. those who live with thern and those who work profe55ionalty with them) mixed in with the latest infimation from research and national develq)ments. The verage evaluati(yn score was 5.5 out of 6. A score that we are very pleased with and on that stsnds at the highest level for trdining provideT5. The vast majority of people filling in evaluati(m fomis c(Mnmented that the strategies that we were suggesting for working with )ple with FASD worked in their own prtIce and many commented that tsaining h¥1 made them realise pxentialjy how many Fvle affected Developing more in4iepth colkni¥Jration with key partners In Greaier Man¢heM¢r via the Greater Manchester FASD Network WOTk l(kscri1d further k>w) we have offed a rdnge of virtual training opwrtunities for workers in fields that include SLlPIN)rting Fwple with FASD. Additionally. in January 2024 in Grealer Manchester, we provided a Spch & Language Masler Cl&%s for the local area. usin8 the specialist knowledge of Louise Fox from the Nalional Clinic. alLg51(k our CEO to pmvide the professional lived cxp¢ri¢nce the Imprt&e of spKech and language inwi io the lives of peopk with FASD. Page 5
The NatioD81 OrganistiDn For FASD Report of ¢be Trustees For The Year EDded 31 Dteember 2024 OWEcfivES AND ACTIVITIES In Hackney we Ixgan developing training thal aim5 rc¥h &8 many of the children's forc¢ as w)ssible in all sectors, including the Famity and Children Hubs. In 2024. we delivered one trdining io all of the teams th work with hildren in care including social care, hea]th and the virlual School. The training included a ZLK)m input from Dr Patricia Jackson (c(K(K)rdinator of the SIGN 156 c(rnmillee thai esthblished the cwent diagnostic guidelines in effeth aOsS Englan(L Scotland and Wales) kn explain why a diag]lS of FASD is essential for wellbeing. This work continues into 2025. In 2024 we also negotiated a training offer for th¢ charity Kinship in 8 in person trainings across the n(th of England and 12 vtrrual trdtning events funded by a DfE grant to Kinthip. 2024 saw the aement of the package and the developmeni of the resources th will be used in the trainings in 2025. Thk5 is an imwTrrtant group of Fople to SUprt as we anticipate th many of the kiTLthip families will SUPW1ing at least one child with FASD. We continue 10 work in paership with Seashell in Greater Manchester to gW and deliver out one-day and three-day training packages created under our DHSC grdnt with them. This parthership continues flourish to the mutual benefit of both organi5ations. (kn collaix)ratiffl with the c}id8¢shi Virtual SCIM] and the media & trdining compw Ciffnerstlme was nominated for a national Children & Young People5 Award f(r Partnttthip w01ng within the chilitren's W0forCe. We didnl win the final bth Presented wh& was a wiique pgrther5hip lkn¥een a charity. Local Authority and ¢ommer¢ial company working togeiher io raise awareness of a major imct on childtrn and young pIe in the UK. One of our Adults & Young 0p]e'S advisors voiced the thoughts of a fetus in an alcohol exp)sed pregnancy for a virnol reality film to be used in training in CamlKidgeshire and offered through the UL The Cambridgeshire Virtual schwl continue5 to use the Me & My FASD and National organisati for FASD rvJ)urces as the key Materials for raising aWaeSS of FASD with in the county. This is lIt on memtrs of their aM attending the three day SUM)(1n8 a chlld with FASD trainings that we delivered. E-5chool 154 pe(yle tiy)k our e-learning ¢(WT5¢ '1ntroduction to FASD,. from a rdnge of sector5 includin& education, health and social. Those who un(krtook it from ethKation contacted f(r more specific inforn)ation alMWt teaching and learning strdtegies. 210 individuals: obtriciw& midwive5 and midwifery Sup& WO¢ undertook our free e-learning mcKlul¢ Talking about Alcohol and Prewcy. Coordinating tb¢ Greater M8n¢bes¢er FASD Network National FASD wa5 contraed to Tun the Greater Manch¢Aer FASD ne0 from January 2024-June 2025, working in c(x)Frdtion with a local sieering group and FASD Grealer Manchester. The Greater Manchester FASD Netwoth was founded in 2019 and exi5L5 to provide a link across Greater Mancheer for paren, carers. professlonal& ¢ommuniry. and volLmtsry or88nisaiions to facilirate infoffl]ati(Kt sharing and communication on how to promotr better (lComeS for individuals with FASD and prevent akohol ¢xposed Fregnanci¢s. In 2024. the Greater Manchester FASD Network fostered meaningfvl engagement among families and professionals. enhancing supm awareness, and acce55 to services and resources. In 2024 the Greater Mancbester FASD work included.. ' 16 in person & online 'road8hi)ws' & thematic intriKluctory events involving 350 attendees in¢luding FWEnt& carers, health and social care professional4 educ015 and thffie community arnl voluntary organi5ations. tn person roadshows were held in l(Kal areas xross Greater MancheSr and online included themes of preventio working with vulnerable adults, education and more. ' Development of indeFendent brdndin& LN]line presen¢r. website, Sla1 media and new resources including an 'Ask abo FASD, poster and leaflet with the aim to tter engage birth families and a Teaching a StLMlent with FASD bjoklet ' Distribkon of 98iJ) Alcohol & Prwancy Ivdfiets; 46 of newly created "Ask about FASD" leaflets; 1820 Network Posicords. 4070 alcohol and pregnancy w>sters distributed to (ireater Manchester hosprtajs and maternity services. Awareness day eveni reported by BBC. highlighiing 660 lbleS likely l)orn each year in Greater Mancheer with FASD Video here.. ht4)s.'l/wwiv.youtulK.cornlwatchgr wFgC LCiITol ' Created a growing dttthb of132 network Mem[5 a05$ Grer Manchester ' Living FASD magaxine subscripti5 made available to families and professionals rosS Greater Manchester The Network h&s received p)stiive feedback frn parents and PTofe55ionals. F¢eth&k highlights how valuablc and needed the Greaier M&)chester FASD Netwa is and how it help5 to fi118ap5 knowledge: Page 6
The Nalional organi For FASD Report of the Trnstees For Thy Yrdr 31 2024 OWECTIVES AND A1VITIEs "Health care professionals don't know enough ab)ut this c(dition. and [the network is] spr&ing the word and educating." . Parent "tthe GM FASD Network h&s] helped me ga a diagnosis for a child and is a great communty for help and advice.. Parent '[The GM FASD Netw(Kk has supwtrd me to gain] an dersth8 of why my son dwnl know why he dS what he d(Ks.". "I'll use this inforniation to p on to the pYofe5sionals, famity and frÉenth involved wtth rny &year-old son with FASD and talk about il more openly in general to ople. Feel more emp)wetEd io help and understand rny son." "J rcturn as and when ncakd to thc wcb5itr to f(Y diffetrnt Strth¢gie ag¢nci¢5 that may help at the time.". Pa1 "[It wa5 useful] learning atKwi FASD and finding out who we can netWLYk Wlth io help our parents in our local are&. &xial worker, Trdfford "IThe network is helpingl greatty. health care wofessionals dm't know enough atrAWt this conth.tion and they [the Network] aff spreading the word and educating." "[One key take home message frn the Roadshow 15] IK)W to apw(h families who may need to take ep$ for FASD diagnosis."_ Practitioner. Bolton "[1 plan] to thinl "Is li FASD?" and help others to consiikr this t... Nurse. Boh( Publit benefil Ihe I rustees confirni thal tw have referred to the guidance conthined in Ihe Charny Commissi(m's GeneTal Guldance on Publit Benefit w'hen reviewing the Ciiarity's aims and objectives in planning fUtt tivity. FI]YANCIAL REVIEW FinaneÉAI position The financial results are sei out in the attached COUnts. Thry show a surplu8 for the year of £5.581. comparal with deficit of £214,525 for the year ended 31 st December 2023.. The totsl nd reserves at 3 1st December 2024 were £57,IK15 compared with £51.424 at 31 st December 2023. Total exF*nditure during the year was £242,838 (?023'. £359.234.) Prtnoipal funding sourets The National Organisation for FASD rclies uwi the generosty of individual& foundations and philanthropic entities. Thr Naiional lSatIO1) for FASD 1n5 5tricl 5ub5¢antive indctKndcnce over its w(ffk and contcnt. Every cOntriltIon 15 valued. In 2024 our individual 9upT rdnged from frienits of The National Oan153t10n for FASD who donale regularly each month. to indiliduals who conduct arative fundraising events. We also rely l&Eer grdnts. Receni suN)oners include Diageo GB. The Austtn & Hope PilkinOn TruA. and ContacLIPears. At the end of 2023 th¢ organiwivn a i(Kitrari in thc am(nmt of £89,897 with Nl IS Grter Manchcstcr ICB tmd had promises of £75,(KK) renewed fidIng from Diageo in 2024. Page 7
The Nadonal OryDlsath)n For FASD Report of ¢he Trusttes For The Year Euded 31 December 2024 FINANCIAL REVIEW Reserves >11¢Y The chariry'5 fEscrvr wliLy IS lu t(01n suiriLl1 rLXtves & a kv¢l which is ¢guival¢nt to six Jn(ynth's owational expenditure. TneS review the rescrv¢s poli annually. In 2024. rcflcctins thc ¢hallmg¢s flleing the eharitable sector &$ o whole and in pwticular the health relaied and educational sectors. the wisation continued io struggle to fmd new incorne. Nevertheless, the organisation successfully continued to expand its unrestriaed income via service contwts and through saks of rvA)urces and training. As a result Trustees apFwved spending some reserves while ensuring minimal reserves available to meet outstanding commilments. Ai the end of 2024. through the ongoing w(wk with the Grer manchCeT FASD Networl and through the sttured fiujding f( the Learning proje£l and the UranceS that at le&%t £75,(KK> of funds from Diageo would be likely in 2025. the Tnths hJJ no ccernS the end of 2024 aEK)ut the viability of the organisation althcmjgh they are tracking closety the p11¢ need for a further decrease in staffin The Trustees are monitoring our expenditure. c(Mnmitinents aftd anticipated inc(Mne closely and a wepared to make turther cutbacks costy includmg staft c(W as needeiL "lThey nole the charitable sector has hit hard by the national economic situation and eSclayIY by chanzes in heahhcare and education seOIs. they are confident the organisation will conttnue io operate in the next 12 months and are expl(King PTomi5ing OPPK)rtunities for new fijnding and income sources. FUTURE PLANS In 25 National FASD will ¢(lInue to cxplore new funding streams that will enable the organisation increase its level of fmancial security. This will include Iking move closely al 0oi(ms for service5 and pr(Nlucts that I commissioned by Ic1 public and volunw (Wions. We also are explonn8 further ideas on how to tffmg the pr¢v¢ntion m¢ssag¢ to a wider audienr£. Th¢ organisation remains f(£used on wckins with tnat¢tnity, 5¢xua] h¢alth and other leVant Iwactilion¢rs Oli improving the training and resouw receive io dISc$s1On5 alcthol and pregnancy. This woTk continues lo be funded by Diageo. We also have 6 months left on an l&month COntrt to fijnded by the NHS Greater manchcer Integratrd Care Board ecrdIne the Gre2ter ManchesieT FASD N¢tWOTk in CtiOn with a l(Kal stecring group. We hope to discwss the renewa] or extension of this contract durin2 the Crst of 2025 but public funds are ixcoming more constraÉn¢d 50 this Source of funding is at risk We will continue to promote welliEing for rryle with FASD and trir families via wr training and resources, including the 'Me and My FASD, re50urce5. This work is largety funded thrh sales of our trainin8 and res(mceS. STRUCTURE, GOVERNANCE AND MA]¥ACEME Governing documenl The charity is controlled by its governing (kKurnenL a th¢d of and cfflstitute5 a lirnited company. limited by guarante& as defined by the CINnnIeS Art 2(KkS. Re¢rni¢ment and app)intment of new trustees Trustees are selected and invited lo join the Bd of Tnjstees ty existing TrSte¢S and the apwintment of TThtees is vesied wilh the Trustee9. Ex11n8 can recommend the pIntment of a new Trustee * any time. The numlxr of trustees shall be not less than three t1 shall n(rt te subjec( io any rn&ximum. OrganiTational stru¢¢yr¢ The day io day managcmcni of the charity. a5 dc5ignat¢d by th¢ trus1¢ 15 und¢[k¢ll by Chi¢f ExKuiiv¢.
The National organi110 For FASD Report of the Trnstees For The Year Ended 31 December 2024 STRucfuRE, GOVERNANCE AND MANAGEMENT Induction and training of new truste A potenlial Trustee is inviled to icome a Tnlee and the aims of the Charity are explained in detail. Copies of annual reEYJrts and 2ccnullLS 2nd a cnp>' nf the gnverning trIL deed And the c.harity Cnmmiiqinn's guidance. The Essentia] Truslee, a made available io PXenfTal Trustees. The wtential TnL%tee is then invited to a nomial bwd meeting arKI introduced to the resl of the Ttee5 and unless theTC are any Obje10nS is invited to join the chariry as a Tntre, after the meeting. It is recommended that all Trustees real the relevant Charity C{15510n guidelines and the reswnsibilities of a TnLStee alf clearly defined under these guidelines. (ICSA guide 'Recrnitment Appointment and tnduction of Charity Trustees.). Providing advice and support acr055 tbe corDmunity National FASD wojks collalx)ratively across the FASD c(Knrnunity. We wise that at the end of the day, our work comes down lo the individual impxt on Fvle's lives.ln 2024 we more than 2(Kl helpline ca]Is that rdnged from tCPi¢5 including". How to get a diagn05is' EHCP Advice: Genernl advice on SupF1ng a YP l &luh with FASD; SchcKJl settings suitsble for those with FASD; Resources: Sign}StIng for wofessionals: Advice for &Jults with FASD. LAM)king to promo re5varch: Slf1¢ professional& including legal. educatiorn SaLTs and OTS Ic4)king for case specific advice; Specific questions regarding trdits and how it manifests in individual ca Two of our staff memL*rs are also coqdmin (m the FASD UK FaceEthk Supp group. supwvting m¢ than 4,500 families in c(M)peration with othergroups that part of the FASD UK Alliance. In 2024 our team Sup[ed res&qrcher& staff. educat0 aNI others at a rnnge of more than rfi org3nisations. institution& univer5itie5. ¢harities. Ial and nloal lIcY maker5. industry. This thkes signilicant time and exrtISe, and we are proud of our collatrK)rative work. TIMyJgh it often is unseen. this is helping to change how the nlon thinks aimjut FASD. REFERENCE AND ADMINISTRATIVE DETAIiS Registered CompaDy numbtr IH883580 (England and Walcs) Registered Charity number 1101935 Registered office Mill House 58 Guildford Street Chertsey SuThey KT169BE Trustees R R¥ynul(1s" T V GrilthS NLPkmBE P Jackson OBE. FRCPCH A Bovaird Hon. Vict-President Michael Attwell Chief Execulive Sandra Butcher Page 9
The National OrganisxtioD For FASD Report of the Trusttts For The Year Ended 31 De¢ember 2024 REFERENCE AND ADMINISTRATIVE DETAILS Independent Examiner Susan Keane Fuller Spurling Mill House 58 Guildford Street Chertsey Surrey KT16 9BE Approved by order of the b(wd of trustees ... P8ge 10
Independent EAaminer's Rew)rt to the Trustees of The National Organisation For FASD Independent examiner's report to the trlet5 of The Naiional OrganitIOn For F.45D I'ihe Company.) I iepon to the charity trus¢$ on my examination of the accounLS of the Compan). for ihe )ear ended 31 December 2074. Responsibilities and basis of rert As the chartt) s trustees of ihe Compan!. land also its directors for the puryK)ses of compan!. law l l'ou are restK)nsible for the Preparlon of ihe accounts in accordance with the requirements of ihe Companies A¢1 ?006 I'the ?006 Ath'i. Hawing satisfied m)self thai the accounts of the Compani. are noi required to be audited under Part 16 of rhe 7006 Aci and arc eligible for independeni examinaiion. I re)rt in respect of m). examinaiTon of l'our charity's accounts carried out under Section 145 of the Chariiies Aci ?01 I Ilhe ?011 .4ct'l. In carr¥ing out m) ¢.wnination I have follow'ed Ihe Directions given b). the Charity Commtssion under Section 14415) Ibl of ihe OI l Act. Independenl exgmioer's ststemenl I have compleied MJ examination. I confimi that no matters have corne io my attention in conneaion with ihe examination giving me cause to believe: accotsnting records M'er¢ noi kepi in respect of the Compan). as required b). Seciion 386 of the ?006 Act: or the accounts do not accord wilh those records. or the accoLEnts do noi compl with the accounling requirements of Section 396 of the tyIK16 Art oiher than an). requirement th the accounts giN'e a true and fair i'iem knhich is noi a matt¢r Considered part of an independeni e.xaminaiion: or the accounts have not been prepared in accordance M'ith the methods and principles of the Siatemeni of Rccommended Praciice for accouniing arbd rerting b)" chariiies iapplicable io ¢harities preparing their accounts in accordance with the Financial RekN)rting Standard applicable in ihe L'K and Republic of Ireland i FRS I O?11. I have no concerns and have come across no other mallers in connection i¥ith the examination to which attention should be drdwlj in this reTX)rt in order io enable a proper understsnding of ihe accounts to be reached. Susan Keane Fuller Spurling fill House 58 Guildford Sirc¢t Ch¢nsey Surre). KT16 9BE Date.. 2410912025 Page 11
The National OrgAni5ation For F.4SD Statement of Financial .4cti%'Fties (Incorpor4tin2 an Income #nd Expendilure.4ccountl For The I'e¥r Ended 31 December 2024 31.12.?4 Total fiinds 31.12.23 Tots] funds Linrestricied fund Restrithed fijnds INCOIIE AND ENDOM'NIEN'TS FRONI tk)naiions and legacies 108.751 119,056 83,685 Other trdding activiiies 1?8.1?7 ?36 129J63 61,024 Total 138.43? 109.987 248.419 144.709 EIPENDITLRE O Raisin2 funds 1.6?] 1.078 ?,699 23.049 Charitable *rtii'ities Il"ellbein¥ Lvarning Prevention projecl General and administrative Governance 137.279 3?6 350 .83 137,629 91.161 114.054 1 ?6.306 92.730 887 887 10,462 10.46? 3.095 Total 149.688 93.150 742.838 359.734 INET INCOIIEI(EIPE)DITL',RE) 111256) 16.837 5.581 (214,5251 RECONCILI.4TION OF FLINDS Total funds brouohi forward ?7.8?5 23,599 51.424 265,949 TOTAL FI,'%'DS CARRIED FORII'.4RD 16.569 40,436 57.005 51.424 The noi¢s fom) part of these financial statements Pe 12
The National Organisa¢K•n For FASD Balanet Sheet 31 tktemtrtr 2024 31.1?.24 Total fijnds 31.12.23 Total fiJn&8 Unrestrictd Restrict funds funds Notes FIXED ASSETS Tangible assets 3233 3233 3.598 CURRENT ASSETS Stocks DebtOTS Cash at bank and in hand 12 13 26,542 11.474 23.566 26,542 1,474 64.2 19,5 2,176 70.781 40.436 61582 40.436 102.018 92.457 CREDITORS Amounts falling within one year 14 (48246) {48246) {44.631) NET CURRENT A&SETS 13J36 40.436 53.772 47.826 TOT AL ASSETS LESS CURRENT LIABILITIES 16,569 40,436 s7.5 51,424 NET ASSETS 16.569 40.436 s7.5 51.424 FUNDS Unrestricted funds Restricted funds 15 16.569 40.430 27,825 23.599 TOTAL FUNDS 57.(M15 51.424 The charitable CoMpY is eniitled io eXemon frThn audit under Section 477 of the Companie5 Aa 2(K16 for the year ended 31 tkcemttr 2024. The members have not Yequired the CoMnY to (thain an a]11 of its financial for the year ended 31 December 2024 in accordance with Section 476 of the C(YntMnies Act 2(M)6. The trustees acknowledge their resp)nsibiltties f( (a) ensuring that the charitable ¢(Nnpany keep5 accounting records that comply with Section5 386 and 387 of the Companies Act 20[ and (b) preparin8 fjnsncial stgtements whieh Irt and fair vie.w of the qtAtp nf AITAir¢ nf ehArit2hle cr)mtJany as at the end of each rtnancial year and of its SUTplus or deficit each financial year in accordark¢¢ With the r¢quirernents of Sections 394 and 395 and whith oth¢rwise comply with the requiments of the coMFnIcS A 21 relating to fmancial statements, so far Ls aFylicable to the charitable comwy. The notes forni of these fala1 statunents Page 13 continued..
The National OrganisatKID For FASD Balance Sheel- continued 31 December 2024 These financial statements have been epared in act with the provisicA]s #pplieable to charitable ccttnpanies subject to the small companie5 resirn¢. The Iinaniidl staieinents weff approved by the Board of TnL5tees and authorised for issue ZI.. SLpfr ........... and were Siwd ILS behalf by.. on ovaird- TNsiee The notes fo of these finan¢ial swements Page 14
The Nat1 Organisation For FASD Note5 to the l1CIal Statemeuts For Th¢ Y¢•r Ended 31 D¢etmlkr 2024 ACCOUNTING POLICIES Basis of preparing the financial statements The financial statements of the charitsble company. which is a public benefit entiry under FRS 102, have Een prepared in accordance with the Charities SORP ff RS 102) 'Accounting and Reporting by Charities: Ststemenl of Recommended Practice applicable to chartties preparing their accounts in accordance with the Financial ReFK)rting Standard aFvlicable in the UK and Rq)ublic of treland (FRS 102) (effeaive l January 2019)., Financial Rewrting stand 102 The FinanciaI Rerting Standard applicable in the UK and Republic of Ireland, and the Companies Aa 21x16. The fjnancial stements have tren prepred under the hisiorical cost conveniion. Income All income is recognised in the Sernent of Financial Aaivities once the clwity has entitlement to the funds. 1¢ is pyobable that the income will be received and the amouni can be mAsured reliably. Revenue grants are lted to the stement of fmancial activities when receivable. Expenditure Liabilities are recognised as expenditure as S( as there is a legal or constructive obligation commirting the charity 10 thai expenditure, it is probable that a transfer of onoMiC benefits will t required in settlement and the amount of ihe obligati(M can k measured trliabty. ExwiditrJ is ted for on an aCCnlS basis and has been cl&ssified under headings that aggregate all CO related io the egory. Where costs cannot directty attrilted io particular tadings have been all(Ked to activities on a b&sis LM)n5iStent with the use of resources. Charitsble artivities Charitable activities include exwmlithre associated with the PTovision of training and educatiiNI to healthcare professionals to rdise awaTene5s of Fetsl Akthol Spthm Dis<rder and supFK)rt services to those affected by the condition. They include Lxjth the direct costs and sUpt costs relating to these activities. The charioble activities headings have been changed for 2020 and onwards to reflect the wogrdmmatic f(5 of the tnle¢S going forward. Governance costs Governance costs include those incuNed in the governan of the clwity and is assds and are primarily associed with Consti110nal and statuiory requiremthts. Allocation •pportltsnmtnl of tosts sUprt costs include cenlTal function5 and have Pen allocat1 to activiry cost L*egories (m a EAsis consislenl with the use of resouTh. e.&, allocating staff costs by the time S11 and other cost5 by their usage. Frnm January 2024 the all(Kation of 5UFWrt wsts for the Chariry has iwi betwcen". Wellbeing Learning Tangible fixed &ssets Depreciation is provided at the following annual Trtes in order to write off each asset over its estimated useful life. Fixtures and frttings 25Yo on wst Stocks Stocks are valued 3t the lower of cost atyj net realisable Vdlue, after making due allowance for obsolde and slow moving items. TaxAtion The charity is exempt fr(rfD Corymrtion tt¥ on its charitable activities. Fund aceounting Unrestricfed funds can in &cordance with the chaTioble objectives at the discreti of the trustees. Page 15 continued...
The NatiM41 OrpnisatiOD For FASD Notes to the Financial StatemeDts- ¢ontinued For Tbe Year Ended 31 December 2024 ACCoU1NG POLICIES- continutd Fund accounting Restrtcted fund5 can only be used for pIcUlar restriaed rrts WTthin the objects of the tharity. Restricticms arise when 5Fttified by the don( or when funds are rdised for particular restricted pUrrrt. The restricted income fund5 are desIgne0 io provide resources and to raise awareness of aicohol. preancY and FASD among maternilv, sexuat health teams and other prathilimers. as well as to provide funding for sFKcific projects for Fwple with FASD and their families. Ikbtor5 Trade and er debtors are recolSed at the settlement amount du¢ aft¢r any tr* dix(xmt offer¢d. Prepayments are valued at the am(wnt net of anv trale discounts due. Cash at bank Ind in h4ryd Cash at imnk and cash in hand includes at bank and in hand and thmand dep)sits with Creditoys Creditors and Provisions are gnIsed where the charity ha5 a FTe5ent obl110n resulting a pasl event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are norn]ally recognised at their settkmeni amount after allowing for an), trade discounts due. Fittaneial Instrnments The charlble Company has fmancial a55¢ts fjnancial liabilities of a kind that qualify b&sic financial instruments. Basic financial instnunents are initially at tranlon value and sulwuentty measured at their 5ettlemcnt value, exccm for Investments which mcasured * their market valuation * the balance sheet dak. DONATIONS AND LEGACIES 31.12.24 31.12.23 InatIonS GrdDts 10,756 108,3(K) 9.560 74.125 119.050 83,685 OTHER TRADING A1VITIEs 31.12.24 31.12.23 Shop ineome Trainingleduc&ional ser¥i¢es 12.711 16,652 13,933 47.091 129,363 61.024 Page 16 ontinu¢(L..
The National Organisatitin For FASD Nole5 to the Finanelal Ststements- continued For The Year Ended 31 Decwnber 2024 CHARITABLE ACTIVITIES cosrs Direct Costs (see note 5) SuNM)rt costs (see note 6) Totsls Wellbeing Learning General and administrative Govemance 11242 (5.558) 827 126.387 96,719 137.629 91,161 887 10,462 10.462 6.511 233,628 240.139 DIREcf COSTS OF CHARITABLE A1VITIEs 31.12.24 31.12.23 Project printin& wom(rtion and distri1tIon Entertatnment 39.568 877 27 6,511 40,445 SUPPORT COSTS Governance ¢05 Totals Wellbeing Learning General and alkninistrative Governanc¢ 126.387 96.719 126.387 96,719 10,462 10.462 223.166 10.462 233.628 Support costs, included in the aix)ve, a &$ folknv& General and Iministrative Wellbeing Ixaming Wages Rent, rdtes and utilities Insurance Training Telephone otTice costs Sundries Travel Depreciation of Wlgible red assets Indndent examin¢rs fte Accountancy, legal and consultancy ¢(ts 86.181 10.713 71.328 11.962 .393 7.2 722 9,649 5,321 4.584 1245 839 9251 1.256 126.387 96,719 Page 17 Continued..
The Nati1 organisatll For FASD Noles to the FinAn¢i*l Stsiements- continued For The Year Ended 31 Decembtr 2024 SUPPORT COSTS- eontinued 31.12.24 31.12.23 Total aclivitie5 Governance activitie5 Wages Rent, ratrs and utilities Insurance Trdining Telephone Ol¢e costs Sundries Travel Depreciation of tangible fued assets Independent examineTS fee Accountancy, legal and consultancy cc6ts 157.5(VJ 22.675 2.075 72SX 1,561 18.9fA) 6,577 5274 1245 4,980 5.482 213.115 19.467 1.969 1.258 11.751 7,470 14,617 816 2.5(X) 10.777 4,980 5,482 10,462 233,628 295,740 NET INCOMEI{EXPENDITURE) Net incomeJ(expenditure) is Stst after Chargin{CredItingI. 31.1?.24 31.12.23 Inthwdent examiners fee tkpreciation. owned assets 4,980 1245 2,5 816 TRUSTEES, REMUNERATION AND BENEFITS There were no tntee$, Trmuneration other benefits for the year end&1 31 [kcernr 2024 for the year ended 31 December 2073. Trustees, expenses There were no trustees. expe pid for the year ended 31 Deeernbcr 2024 nor for thc year ended 31 December 2023. STAFF COSTS The average monthly number of employees duTing the year was as follows: 31.12.24 31.12.23 Administration No employees ¢¢ived emoluments in excess of £60.(KX). Page 18 continued...
The Nitional Orgtdnisation For FASD Notes lo the Finan¢i#l Ststements- eorttinul For The Year Ended 31 DeCem1r 2024 COMPARATIVES FOR THE STATEMENT OF FINAIYCIAL A1vITIEs ure51cl Restricted funds funds funits INCOIIIE AND ENIX)WMENTS FROM Donations and legacies 19,185 ,5fN) 83.685 Other trading activities 61,024 61,024 Total 802( 64.51K) 144,709 EXPENDITURE ON Raising fijnds 15.517 7.532 23,049 Charitable gctivities Wellbeing IrnIng Pmention project Governance I(.157 13,897 114,054 126..3n6 92.730 3.095 92.730 3.(Y)5 Total 118.769 240,465 359234 NET INCOMLI(LXPENDI I UKL) (38.SbO) (175,965) (214,525) RECONCILIATION OF FUNDS Totsl fimds brou1 for*¥ard 66.385 IW,564 265,949 TOTAL FUNDS CARRIED FORWARD 27,825 23 J99 51.424 TANGIBLE FIXED ASSETS Fixtures fittings COST Ai l January 2024 Additions 4.414 880 At 31 December 2024 5294 DEPRECIATION At l January 2024 Charg¢ for year 816 ,245 At 31 December 2024 2,061 NET B(K)K VALUE At 31 Dettmber ?024 3233 At 31 DeCeMr 2023 3,598 Page 19 Continu..
The Na¢ioD¥l Oryanis*tion For FASD Nolfs to the Finftneill Stsiements- continue41 For Th¢ Y¢4r Ended 31 December 2024 12. STOCKS 31.12.24 31.12.23 StrKLs 26.542 19.5C(I 13. DEBTORS: AMOUKTS FALLING DUE WITHIN ONE YEAR 31.12.24 31.12.23 Tradc deOr5 Other debior5 10,632 935 399 11,474 2.176 J& CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR 31.12.24 31.12.23 Trade creditors Other crediioTS Deferred income Accrued expenses 4,614 2.532 37.5 2.727 37,5 2.940 48246 44,631 MOVEMENT tN FUNDS Net movement in funds At 31.12.24 At 1.124 Unrestricted funds Unrestricted 27.825 (11250) 16,569 Restricted funds Learning ContsrVP¢ar5 Grant Austin & Hope 21.71? 887 18.724 {887) {I.(KKi} 40.436 23.59) 16.837 40.436 TOTAL FUNDS 51,424 5.581 57,005 Page 20 continued..
The ]4ational OrgaDisation For FASD Notes to the FinY4neial Slatements- continued For The Year Ended 31 Deeembtr 2024 MOVEMENT IN FUNDS- tolltlnutd Net movement in fund& included in the above as follows: Incoming Resources expeThJed Movemerrt in funds Unrtstricied fund5 Unr¢strlcd 13&432 (149,688) (11256) Restrieted funds Learning LontacVPears (irant Austin & H 109.987 (91263) (8S7) (i.(w) 18,7?4 (887) (i.(MX)) 109.987 (93.150) 16.837 TOTAL FUNDS 248.419 {242.838) 5,581 Compgratlves for movemeDt in funds Net movemen¢ in funds At 31.12.23 At 1.1.23 Unrestricted funds Unrestricted J85 (345) 27,825 Restricted funds Learning Prevention proj¢ Wellbeing Austin & l(X),8(K> 83.980 14.78A (79,088) (83.980) (13.897) 21.712 887 199,$64 (175.905) 23.599 TOTAL FUNDS 265.949 (214,525) 51,424 cOmpalye net movement in fi included in th¢ th)ve 8re as follows: Inming ReSOue$ ex Movement in fun¢ls Unrestricied funds Unrestricted 8021 (118.769) (38.560) Reslricted funds ikaming Prevention project Wellbeing Austin & Hq)e 54.750 8.750 (133,838) (92,730) (13,897) (79.088) (8i,980) (13,897) 64,5 {240.465) (175,965) TOTAL FUNDS 144.709 (359.234) (214.525) Page21 continued...
The National OryanI(lOn For FASD Noles to the YinaDcial Ststements- Continued For The Year Ended 31 December 2024 15. MOVEMENT I]Y FUNDS- continued Other projects The other resrricted funds for Learnin& AuStin-HO and ContsLtq>ears are explainaj further in the Truslees, RewrL i& RELATED PARTY DISCLOSURES e trnstee also works for the Greater Manchester ICB is n¢A a MeMr of the finance and governance commitiee. The Trustee has recused herself from all truAee discussions related to the contract with that Fx)dy mentioned in Trus*es ReFK)rt and wa5 thjly trdn5paTent with the ICB. Page 22