The Alkaptonuria Society Ltd
The Aku Society
- Country
- England & Wales
- Charity number
- 1101052
- Status
- Registered
- Reporting
- Up to date Last filed Oct. 30, 2025. Filing history
- Registered
- Dec. 5, 2003
- Legal form
- Charitable company
- Company number
- 04814120
Address
- Address
- 66 Devonshire Road
Cambridge
CB1 2BL
Contact
- Phone
- 01223 322897
- info@akusociety.org
- Website
akusociety.org
Activities
The Alkaptonuria Society is a patient group organisation which helps and supports people with Alkaptonuria a rare genetic disease. It helps people who suffer from Alkaptonuria and we receive worldwide enquiries. We are involved in research with the University of Liverpool to find a cure for Alkaptonuria.
Objects: I) To Advance The Education Of The Public Into All Matters Relating To Alkaptonuria Disease And Its Causes, Effects And Treatments Particularly By The Provision And Maintenance Of An Internet Website. Ii) To Relieve The Suffering Of Persons Suffering From The Disease By The Provision Of Information And Advice Iii) The Promotion And Research Into The Causes, Effects, Treatment And Management Of Alkaptonuria Disease And Disseminate The Useful Results Thereof
Classification
- How
- Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- What
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Who
- Children/young People, Elderly/old People, People With Disabilities, The General Public/mankind
Geography
- Region
- Throughout England And Wales
Finances
| Period end | Filed | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|---|
| June 30, 2025 | Oct. 30, 2025On time | £367,726 | £294,929 | - | - |
| June 30, 2024 | Nov. 4, 2024On time | £319,392 | £307,370 | - | - |
| June 30, 2023 | Oct. 10, 2023On time | £381,037 | £292,618 | - | - |
| June 30, 2022 | Oct. 28, 2022On time | £586,708 | £300,351 | £854,741 | 3 |
| June 30, 2021 | Dec. 17, 2021On time | £335,222 | £272,750 | - | - |
Trustees
| Name | Appointed |
|---|---|
| Dr DUNCAN BATTY (Chair) | April 18, 2018 |
| Dr LAKSHMINARAYON RAO RANGANATH | Sept. 15, 2025 |
| Dr NICOLAS SIREAU | Sept. 15, 2025 |
| Jessica Barnes | June 10, 2022 |
| Professor James Gallagher | Sept. 15, 2025 |
| Prof George Bou-Gharios | March 17, 2025 |
| Professor ALAN SHENKIN | |
| William Anthony Esmond | April 18, 2018 |
Nearby
- Brazelton Centre UK CIO 0.0 mi
- Cambridge Aid 0.0 mi
- Cogwheel Counselling 0.0 mi
- Beacon: For Rare Diseases Ltd 0.0 mi
- Cambridge And District Citizens Advice Bureau 0.0 mi