# HHUGS-UK HYPOTHALAMIC HAMARTOMA UNCONTROLLED GELASTIC SEIZURES UNITED KINGDOM

## Details

- **Country:** England & Wales
- **Charity number:** 1098698
- **Status:** Registered
- **Legal form:** Other
- **Registered:** July 22, 2003
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1098698


## Contact

- **Address:** 7 POND CLOSE, WINCHMORE HILL, AMERSHAM
- **Postcode:** HP7 0NU
- **Phone:** 0734143219
- **Email:** hhugsuk@hotmail.com
- **Website:** www.hhugs-uk.com



## Activities

**Objects:** THE RELIEF OF PERSONS SUFFERING FROM HYPOTHALAMIC HAMARTOMA PARTICULARLY BY;A)  THE PROVISION OF INFORMATION, SUPPORT AND ADVICE TO THESE PEOPLE;B)  RAISING AWARENESS OF THE PUBLIC AND THE MEDICAL PROFESSION OF THE EFFECTS AND CONDITIONS OF EFFECTIVE TREATMENT;C)  PROMPTING RESEARCH INTO THE CAUSES, EFFECTS AND TREATMENT OF HH AND DISSEMINATING THE USEFUL RESULTS THEREOF AND ASSIST IN THE PROVISION OF SUCH FACILITIES OR ITEMS FOR EDUCATION AT THE SCHOOL (NOT PROVIDED FROM STATUTORY FUNDS) AS THE COMMITTEE IN CONSULTATION WITH THE GOVERNING BODY SHALL FROM TIME TO TIME DETERMINE

**Activities:** HHUGS-UK give support to person/persons who are affected with hypothalamic hamartoma and its associated problems.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Provides Advocacy/advice/information, Other Charitable Activities
- **What:** General Charitable Purposes, Disability, Other Charitable Purposes
- **Who:** Children/young People



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £2750 | £380 | — | — |
| Dec. 31, 2023 | £3867 | £360 | — | — |
| Dec. 31, 2022 | £3867 | £360 | — | — |
| Dec. 31, 2021 | £4587 | £360 | — | — |
| Dec. 31, 2020 | £4587 | £180 | — | — |



## Trustees

- **VIVIANNE GATTOC** (Chair)
- DAVID THOMAS AMBROSE — appointed July 25, 2011
- STEPHEN HENRY PARKER