THE CJD SUPPORT NETWORK ANNUAL REPORT AND ACCOUNTS
FOR THE YEAR ENDED 31[st] MARCH 2024 Associates House 118a East Barnet Road New Barnet Hertfordshire EN4 8RE
TRUSTEES
Prof. Richard Knight (Chairman) Andy Tomaso (Treasurer) Anita Tipping (Secretary)
BANKERS
Lloyds Bank Plc 1 Claremont Road Surbiton Surrey KT6 4QS Sorting code 30-98-62
REGISTERED CHARITY NUMBER
1097173
INDEPENDENT EXAMINER
Weaver-AFS Ltd Associates House 118a East Barnet Road New Barnet Hertfordshire EN4 8RE
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THE CJD SUPPORT NETWORK
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31[st] MARCH 2024
The Trustees are pleased to present their report together with the financial statement of the charity for the year ended 31[st] March 2024.
Legal and Administration information set out on the front page of this report.
STRUCTURE, GOVERNANCE AND MANAGEMENT
The CJD Support Network is governed by an independent constitution and administered by an executive committee.
The officers and other members of the committee are elected annually at the Annual General Meeting and there are currently three trustees.
OBJECTIVES AND ACTIVITIES
To support patients and their carers affected by Creutzfeldt Jakob Disease and all human prion diseases by the provision of information, advice and support and to advance scientific and medical education and research in topics related to Creutzfeldt Jakob Disease and all prion diseases.
ACHIEVEMENTS AND PERFORMANCE
The Network continues to be the principal charity for Prion disease and maintains good links with both the Centres of Excellence in the UK. We have been providing emotional and practical support to families affected by all forms of CJD and to those who are informed that they are at higher risk of CJD through secondary transmission i.e. blood transfusion and surgery instruments now for over 25 years.
Beth Marsh has continued in her role as our National Co-ordinator and continues to bring great passion, enthusiasm and skill to the role. In the period of this report we have responded to numerous helpline calls and agreed 8 care grants to families in need through caring for a loved one with all forms of CJD.
We once again hosted our Family Support Day in September 2023 in Oxford. The Family Support Day gives families the opportunity to meet with other families who have experience with CJD, and also provides information from presentations given by expert speakers. We received a lot of positive feedback from attendees.
We have continued to update our website with relevant information and news we feel is of use to anyone who wishes to find out more about CJD and how we can offer support.
The charity is also a member of the international support network for this disease and is often approached by families in European countries and worldwide, including those where no support is available.
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FINANCIAL REVIEW
We were the generous recipients of many donations throughout 2023-24, with major contributions from general Gifts and Donations totalling over £21,000 and In Memoriam donations totalling just under £58,000. Our overall income for year ending March 2024 was just over £101,000. This included approximately £1150 raised from our annual fundraising raffle.
Our expenditure for the year was £83,728. Research grants totalling £48,500 were awarded in the year. Other expenditure was broadly in keeping with previous years. As a result, we showed a financial surplus for year ending March 2024 of just over £17,000.
The time, effort and donations contributed by everyone is very much appreciated and we will endeavour to ensure that we continue to make the best use of all the monies raised. It continues to be the policy of our Charity to maintain sufficient reserves to safeguard against any future fluctuations in income and expenditure so the Network may continue operating as long as possible.
PLANS FOR THE FUTURE
The Network always considers its main purpose to be for the support of patients and carers affected by Creutzfeldt Jakob Disease and increasingly also those at risk through secondary transmission. Our priority will be to maintain our services in the present economic climate.
Prof. Richard Knight Chairman
Signed:
RSG KNIGHT
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THE CJD SUPPORT NETWORK INDEPENDENT EXAMINER’S REPORT
FOR THE YEAR ENDED 31[st] MARCH 2024
Independent examiner’s report to the trustees of CJD Support Network
I report to the trustees on my examination of the accounts of the CJD Network (the Trust) for the year ended 31 March 2024..
Responsibilities and basis of report
As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’).
I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner’s statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
- accounting records were not kept in respect of the Trust as required by section 130 of the Act; or 2. the accounts do not accord with those records.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Signed:
_______ David Wilkinson FCMA CGMA Weaver-AFS Ltd Associates House 118a East Barnet Road New Barnet Hertfordshire EN4 8RE Date: 20 January 2025
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THE CJD SUPPORT NETWORK STATEMENT OF FINANCIAL ACTIVITY INCOME & EXPENDITURE ACCOUNT FOR YEAR END 31ST MARCH 2024
| Unrestricted Funds Restricted Funds £ £ Income Member Subscriptions 130 Fundraising Item Sale 1,028 Gift Aid Reclaim 6,650 Gifts & Donations 21,104 Give As You Earn 803 In Memoriam 57,960 Interest Income 2,300 Raffle income 1,157 Dinner FSM 260 Sundry incom 220 Sponsored FundraisingEvents 9,441 TOTAL INCOME 101,052 0 Expenditure Accountancy 672 Caring Grants 3,635 Family Support Meeting 5,529 Fundraising Expenses 2,342 Insurance 902 Legal & Professional 295 Membership Fees 668 Mobile Phone/Internet 180 National Co-ordinator 0 New Website costs 46 Office Supplies 12 Postage & Delivery 600 Prion Conference 259 Raffle expenses 76 Research Grant 48,500 Salaries and employers nic 17,094 Software 597 Telephone 390 Travel/Committee 564 Travel/Co-ordinator 766 Website maintenance 600 TOTAL EXPENDITURE 83,728 0 Excess of expenditure over income 17,325 0 Balance brought forward 1st April 2023 215,159 1,709 BALANCE CARRIED FORWARD 31ST MARCH 2024 232,484 1,709 2024 |
Unrestricted Funds Restricted Funds £ £ Income Member Subscriptions 130 Fundraising Item Sale 1,028 Gift Aid Reclaim 6,650 Gifts & Donations 21,104 Give As You Earn 803 In Memoriam 57,960 Interest Income 2,300 Raffle income 1,157 Dinner FSM 260 Sundry incom 220 Sponsored FundraisingEvents 9,441 TOTAL INCOME 101,052 0 Expenditure Accountancy 672 Caring Grants 3,635 Family Support Meeting 5,529 Fundraising Expenses 2,342 Insurance 902 Legal & Professional 295 Membership Fees 668 Mobile Phone/Internet 180 National Co-ordinator 0 New Website costs 46 Office Supplies 12 Postage & Delivery 600 Prion Conference 259 Raffle expenses 76 Research Grant 48,500 Salaries and employers nic 17,094 Software 597 Telephone 390 Travel/Committee 564 Travel/Co-ordinator 766 Website maintenance 600 TOTAL EXPENDITURE 83,728 0 Excess of expenditure over income 17,325 0 Balance brought forward 1st April 2023 215,159 1,709 BALANCE CARRIED FORWARD 31ST MARCH 2024 232,484 1,709 2024 |
Unrestricted Funds Restricted Funds £ £ Income Member Subscriptions 130 Fundraising Item Sale 1,028 Gift Aid Reclaim 6,650 Gifts & Donations 21,104 Give As You Earn 803 In Memoriam 57,960 Interest Income 2,300 Raffle income 1,157 Dinner FSM 260 Sundry incom 220 Sponsored FundraisingEvents 9,441 TOTAL INCOME 101,052 0 Expenditure Accountancy 672 Caring Grants 3,635 Family Support Meeting 5,529 Fundraising Expenses 2,342 Insurance 902 Legal & Professional 295 Membership Fees 668 Mobile Phone/Internet 180 National Co-ordinator 0 New Website costs 46 Office Supplies 12 Postage & Delivery 600 Prion Conference 259 Raffle expenses 76 Research Grant 48,500 Salaries and employers nic 17,094 Software 597 Telephone 390 Travel/Committee 564 Travel/Co-ordinator 766 Website maintenance 600 TOTAL EXPENDITURE 83,728 0 Excess of expenditure over income 17,325 0 Balance brought forward 1st April 2023 215,159 1,709 BALANCE CARRIED FORWARD 31ST MARCH 2024 232,484 1,709 2024 |
Unrestricted Funds Restricted Funds £ £ Income Member Subscriptions 130 Fundraising Item Sale 1,028 Gift Aid Reclaim 6,650 Gifts & Donations 21,104 Give As You Earn 803 In Memoriam 57,960 Interest Income 2,300 Raffle income 1,157 Dinner FSM 260 Sundry incom 220 Sponsored FundraisingEvents 9,441 TOTAL INCOME 101,052 0 Expenditure Accountancy 672 Caring Grants 3,635 Family Support Meeting 5,529 Fundraising Expenses 2,342 Insurance 902 Legal & Professional 295 Membership Fees 668 Mobile Phone/Internet 180 National Co-ordinator 0 New Website costs 46 Office Supplies 12 Postage & Delivery 600 Prion Conference 259 Raffle expenses 76 Research Grant 48,500 Salaries and employers nic 17,094 Software 597 Telephone 390 Travel/Committee 564 Travel/Co-ordinator 766 Website maintenance 600 TOTAL EXPENDITURE 83,728 0 Excess of expenditure over income 17,325 0 Balance brought forward 1st April 2023 215,159 1,709 BALANCE CARRIED FORWARD 31ST MARCH 2024 232,484 1,709 2024 |
2023 | 2023 |
|---|---|---|---|---|---|
| Unrestricted Funds £ me Member Subscriptions 130 Fundraising Item Sale 1,028 Gift Aid Reclaim 6,650 Gifts & Donations 21,104 Give As You Earn 803 In Memoriam 57,960 Interest Income 2,300 Raffle income 1,157 Dinner FSM 260 Sundry incom 220 Sponsored FundraisingEvents 9,441 |
Restricted Funds £ |
Unrestricted Funds £ 130 422 3,452 16,464 122 29,931 379 454 640 0 9,305 |
Restricted Funds £ |
||
| TOTAL INCOME 101,052 |
0 |
61,299 |
0 |
||
| enditure Accountancy 672 Caring Grants 3,635 Family Support Meeting 5,529 Fundraising Expenses 2,342 Insurance 902 Legal & Professional 295 Membership Fees 668 Mobile Phone/Internet 180 National Co-ordinator 0 New Website costs 46 Office Supplies 12 Postage & Delivery 600 Prion Conference 259 Raffle expenses 76 Research Grant 48,500 Salaries and employers nic 17,094 Software 597 Telephone 390 Travel/Committee 564 Travel/Co-ordinator 766 Website maintenance 600 |
528 1,395 5,250 2,346 836 0 713 367 0 3,860 120 419 657 164 0 17,003 514 149 494 147 27 |
||||
| TOTAL EXPENDITURE 83,728 |
0 |
34,990 |
0 |
||
| Excess of expenditure over income 17,325 |
0 |
26,309 |
0 |
||
| Balance brought forward 1st April 2023 215,159 |
1,709 |
188,850 |
1,709 |
||
| BALANCE CARRIED FORWARD 31ST MARCH 2024 |
232,484 | 1,709 |
215,159 |
1,709 |
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THE CJD SUPPORT NETWORK
STATEMENT OF ASSETS AND LIABILITIES at 31st March 2024
| 2024 | 2023 | |||
|---|---|---|---|---|
| £ | £ | £ | £ | |
| Current Assets | ||||
| Other debtor | 0 | 162 | ||
| LloydsTSB Current Account | 21,318 | 6,312 | ||
| LloydsTSB Savings Account | 213,004 | 210,394 | ||
| 234,322 | 216,868 | |||
| Current Liabilities | ||||
| Other taxes and social security costs | (129) | 0 | ||
| TOTAL ASSETS LESS LIABILITIES | 234,193 | 216,868 | ||
| THE FUNDS OF THE CHARITY | ||||
| Restricted funds | 1,709 | 1,709 | ||
| Unrestricted funds | 232,484 | 215,159 | ||
| TOTAL CHARITY FUNDS | 234,193 | 216,868 |
Approved by the Board of Trustees on ___ January 2024 and signed on its behalf15th
Signed by
____ ____ Prof. Richard Knight Andy Tomaso Chairman Treasurer RSG KNIGHT
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