THE CJD SUPPORT NETWORK ANNUAL REPORT AND ACCOUNTS
FOR THE YEAR ENDED 31[st] MARCH 2023 Associates House 118a East Barnet Road New Barnet Hertfordshire EN4 8RE
TRUSTEES
Prof. Richard Knight (Chairman) Andy Tomaso (Treasurer) Anita Tipping (Secretary)
BANKERS
Lloyds Bank Plc 1 Claremont Road Surbiton Surrey KT6 4QS Sorting code 30-98-62
REGISTERED CHARITY NUMBER
1097173
INDEPENDENT EXAMINER
Weaver-AFS Ltd Associates House 118a East Barnet Road New Barnet Hertfordshire EN4 8RE
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THE CJD SUPPORT NETWORK REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31st MARCH 2023
The Trustees are pleased to present their report together with the financial statement of the charity for the year ended 31[st] March 2023.
Legal and Administration information set out on the front page of this report.
STRUCTURE, GOVERNANCE AND MANAGEMENT
The CJD Support Network is governed by an independent constitution and administered by an executive committee.
The officers and other members of the committee are elected annually at the Annual General Meeting and there are currently three trustees.
OBJECTIVES AND ACTIVITIES
To support patients and their carers affected by Creutzfeldt Jakob Disease and all human prion diseases by the provision of information, advice and support and to advance scientific and medical education and research in topics related to Creutzfeldt Jakob Disease and all prion diseases.
ACHIEVEMENTS AND PERFORMANCE
The Network continues to be the principal charity for Prion disease and maintains good links with both the Centres of Excellence in the UK. We have been providing emotional and practical support to families affected by all forms of CJD and to those who are informed that they are at higher risk of CJD through secondary transmission i.e. blood transfusion and surgery instruments now for over 25 years.
Beth Marsh has continued in her role as our National Co-ordinator and continues to bring great passion, enthusiasm and skill to the role. In the period of this report we have responded to numerous helpline calls and agreed 5 care grants to families in need through caring for a loved one with all forms of CJD.
We hosted our Family Support Day in September 2022 in Oxford. The Family Support Day gives families the opportunity to meet with other families who have experience with CJD, and also provides information from presentations given by expert speakers. We received a lot of positive feedback from attendees.
We have continued to update our website with relevant information and news we feel is of use to anyone who wishes to find out more about CJD and how we can offer support.
The charity is also a member of the international support network for this disease and is often approached by families in European countries and worldwide, including those where no support is available.
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FINANCIAL REVIEW
We were the generous recipients of many donations throughout 2022-23, with major contributions from general Gifts and Donations totalling over £16,000 and In Memoriam donations totalling just under £30,000. Our overall income for year ending March 2023 was just over £61,000. This included approximately £450 raised from our annual fundraising raffle.
Our expenditure for the year was £34,990. Other expenditure was broadly in keeping with previous years. As a result, we showed a financial surplus for year ending March 2023 of just over £26,000.
The time, effort and donations contributed by everyone is very much appreciated and we will endeavour to ensure that we continue to make the best use of all the monies raised. It continues to be the policy of our Charity to maintain sufficient reserves to safeguard against any future fluctuations in income and expenditure so the Network may continue operating as long as possible.
PLANS FOR THE FUTURE
The Network always considers its main purpose to be for the support of patients and carers affected by Creutzfeldt Jakob Disease and increasingly also those at risk through secondary transmission. Our priority will be to maintain our services in the present economic climate.
Prof. Richard Knight Chairman
Signed:
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THE CJD SUPPORT NETWORK INDEPENDENT EXAMINER’S REPORT
Independent examiner’s report to the trustees of CJD Support Network
I report to the trustees on my examination of the accounts of the CJD Network (the Trust) for the year ended 31 March 2023.
Responsibilities and basis of report
As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’).
I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner’s statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
-
accounting records were not kept in respect of the Trust as required by section 130 of the Act; or
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the accounts do not accord with those records.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Signed:
_______ David Wilkinson FCMA CGMA Weaver-AFS Ltd Associates House 118a East Barnet Road New Barnet Hertfordshire EN4 8RE Date:
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THE CJD SUPPORT NETWORK STATEMENT OF FINANCIAL ACTIVITY INCOME & EXPENDITURE ACCOUNT FOR YEAR END 31ST MARCH 2023
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----- Start of picture text -----
2023 2022
Unrestricted Restricted Unrestricted Restricted
Funds Funds Funds Funds
£ £ £ £
Income
Member Subscriptions 130 120
Fundraising Item Sale 422 271
Gift Aid Reclaim 3,452 2,215
Gifts & Donations 16,464 11,106
Give As You Earn 122 791
In Memoriam 29,931 17,058
Interest Income 379 18
Raffle income 454 1,308
Dinner FSM 640 120
Sponsored Fundraising Events 9,305 2,262
TOTAL INCOME 61,299 0 35,269 0
Expenditure
Accountancy 528 336
Caring Grants 1,395 2,780
Family Support Meeting 5,250 3,165
Fundraising Expenses 2,346 1,706
Insurance 836 754
Membership Fees 713 0
Mobile Phone/Internet 367 683
National Co-ordinator 0 0
New Website costs 3,860 0
Office Supplies 120 1,493
Postage & Delivery 419 11
Prion Conference 657 0
Raffle expenses 164 142
Research Grant 0 24,990
Salaries and employers nic 17,003 7,078
Software 514 533
Telephone 149 185
Travel/Committee 494 214
Travel/Co-ordinator 147
Website maintenance 27 0
TOTAL EXPENDITURE 34,990 0 44,070 0
Excess of expenditure over income 26,309 0 (8,801) 0
Balance brought forward 1st April 2022 188,850 1,709 197,651 1,709
BALANCE CARRIED FORWARD
215,159 1,709 188,850 1,709
31ST MARCH 2023
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THE CJD SUPPORT NETWORK
STATEMENT OF ASSETS AND LIABILITIES at 31st March 2023
| 2023 | 2022 | ||
|---|---|---|---|
| £ | £ | £ £ |
|
| Current Assets | |||
| Other debtor | 162 | 0 | |
| LloydsTSB Current Account LloydsTSB Savings Account |
6,312 210,394 |
4,742 186,015 |
|
| Current Liabilities Other taxes and social security costs |
216,868 0 |
190,757 (198) |
|
| TOTAL ASSETS LESS LIABILITIES | 216,868 | 190,559 | |
| THE FUNDS OF THE CHARITY Restricted funds Unrestricted funds |
1,709 215,159 |
1,709 188,850 |
|
| TOTAL CHARITY FUNDS | 216,868 | 190,559 |
Approved by the Board of Trustees on ___ January 2024 and signed on its behalf
Signed by
Prof. Richard Knight Andy Tomaso Chairman Treasurer
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