# THE CJD SUPPORT NETWORK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1097173
- **Status:** Registered
- **Legal form:** Other
- **Registered:** April 23, 2003
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1097173


## Contact

- **Address:** C J D SUPPORT NETWORK, Associates House, 118a East Barnet Road, New Barnet
- **Postcode:** EN4 8RE
- **Phone:** 0800 774 7317
- **Email:** admin@cjdsupport.co.uk
- **Website:** www.cjdsupport.co.uk



## Activities

**Objects:** 1. TO RELIEVE PERSONS AND THEIR CARERS AFFECTED BY CREUTZFELDT JAKOB DISEASE AND ALL HUMAN PRION DISEASES (CJD* FOR THE REST OF THE CONSTITUTION) BY THE PROVISION OF INFORMATION, ADVICE AND SUPPORT.2. TO ADVANCE SCIENTIFIC AND MEDICAL EDUCATION AND RESEARCH IN TOPICS RELATED TO CREUTZFELDT JAKOB DISEASE AND ALL PRION DISEASE (CJD*) INCLUDING, BUT NOT EXCLUSIVELY BY THE PROVISION OF CONFERENCES, TRAINING, WORKSHOPS AND TALKS.

**Activities:** To provide accessible, plainly written CJD information, advice, emotional and practical support for patients, carers, professionals and those at risk through secondary transmission. Promoting good quality care, support and interagency co-operation. Linking families with similar experience.




## Classification

- **How:** Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, Elderly/old People, People With Disabilities



## Geography

- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Richard Sydney Godfrey Knight** | Chair | Nov. 18, 2017 |
| Andrew Paul TAKOUSHIS |  | Nov. 24, 2025 |
| Bethan Rose Marsh |  | Nov. 24, 2025 |
| Daniel Michael Schonberg |  | Nov. 24, 2025 |
| Dr Diane Louise Ritchie |  | Nov. 24, 2025 |
| Elizabeth Amy Hill |  | Nov. 24, 2025 |
| Katherine Dahill |  | Nov. 24, 2025 |
| Professor Simon Harvey Mead |  | Nov. 24, 2025 |
| Sean Kevan Horstead |  | Nov. 24, 2025 |




