# THE CJD SUPPORT NETWORK

## Details

- **Country:** England & Wales
- **Charity number:** 1097173
- **Status:** Registered
- **Legal form:** Other
- **Registered:** April 23, 2003
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1097173


## Contact

- **Address:** C J D SUPPORT NETWORK, Associates House, 118a East Barnet Road, New Barnet
- **Postcode:** EN4 8RE
- **Phone:** 08007747317
- **Email:** admin@cjdsupport.co.uk
- **Website:** www.cjdsupport.co.uk



## Activities

**Objects:** 1. TO RELIEVE PERSONS AND THEIR CARERS AFFECTED BY CREUTZFELDT JAKOB DISEASE AND ALL HUMAN PRION DISEASES (CJD* FOR THE REST OF THE CONSTITUTION) BY THE PROVISION OF INFORMATION, ADVICE AND SUPPORT.2. TO ADVANCE SCIENTIFIC AND MEDICAL EDUCATION AND RESEARCH IN TOPICS RELATED TO CREUTZFELDT JAKOB DISEASE AND ALL PRION DISEASE (CJD*) INCLUDING, BUT NOT EXCLUSIVELY BY THE PROVISION OF CONFERENCES, TRAINING, WORKSHOPS AND TALKS.

**Activities:** To provide accessible, plainly written CJD information, advice, emotional and practical support for patients, carers, professionals and those at risk through secondary transmission. Promoting good quality care, support and interagency co-operation. Linking families with similar experience.

**Area of benefit:** NOT DEFINED




## Classification

- **How:** Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, Elderly/old People, People With Disabilities



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £260541 | £38640 | — | — |
| March 31, 2024 | £101052 | £83728 | — | — |
| March 31, 2023 | £61299 | £34990 | — | — |
| March 31, 2022 | £35269 | £44070 | — | — |
| March 31, 2021 | £57230 | £17570 | — | — |



## Trustees

- **Richard Sydney Godfrey Knight** (Chair) — appointed Nov. 18, 2017
- Andrew Paul TAKOUSHIS — appointed Nov. 24, 2025
- Bethan Rose Marsh — appointed Nov. 24, 2025
- Daniel Michael Schonberg — appointed Nov. 24, 2025
- Dr Diane Louise Ritchie — appointed Nov. 24, 2025
- Elizabeth Amy Hill — appointed Nov. 24, 2025
- Katherine Dahill — appointed Nov. 24, 2025
- Professor Simon Harvey Mead — appointed Nov. 24, 2025
- Sean Kevan Horstead — appointed Nov. 24, 2025